« January 2018 »
S M T W T F S
1 2 3 4 5 6
7 8 9 10 11 12 13
14 15 16 17 18 19 20
21 22 23 24 25 26 27
28 29 30 31
You are not logged in. Log in
Entries by Topic
All topics  «
Road to Survival
Blog Tools
Edit your Blog
Build a Blog
RSS Feed
View Profile
The Road Before & After Surgery
January 12, 2018
Freeze... Cut... Chemo
Mood:  on fire
Now Playing: Day 2929-Chapter 3... Happiness~My Silver Lining

 

A HUGE surprise awaited us before heading out on the open road late this morning...

SNOW!!! YAYYYYY!!!  WOO~HOO!!!!

We even called ahead of time to make sure that my surgery wasn't canceled. But nope... everything remained right on track to get this surgery done and over with!

I would be lying, if I said that I wasn't a bit nervous. This gal does better being knocked out, cold turkey, during any surgery. The mere thought of having to be awake through the entire procedure left me feeling a bit uneasy. But tis better now to get these skin lesions under control! I can't believe it... but here I go again. Less than 2 weeks later... another surgery.

Poor Eric... he hadn't even slept yet this morning after just getting home from work, changing clothes and having to head out the door with me. Our life has yet to slow down. What we both need this year is a much needed break. More like... a long overdue vacation since we weren't able to take one last year. A great escape for the mind, body and soul! Florida sounds like a wonderful idea for later this year. However, we have far more important matters to attend to such as our move out west. So many things that need to go as-smoothly-as possible before loading up all our contents and getting our fur children ready for the long, picturesque trek out west. We both are super excited for all of the amazing opportunities that lie ahead for us this new year!

But first... there are surgeries, recoveries and lots of follow-up appointments that I must attend while we are still living along the Ohio/Indiana/Kentucky border.

Today, I not only learned a bit more about the various ways that skin cancer is treated. All in hopes of a permanent cure. But as well, I have learned that skin cancer has come a very long way as far as different treatment options. I am lucky to have another skilled surgeon to add to my team of specialists. Not only does he have many decades of surgical experience removing various types of skin cancer. But as well, he was able to perform my surgery with minimal damage to the surrounding skin. Freeze, cut and chemo. That pretty much summed up a rather quick surgery. Removing both skin lesions. I didn't know they used liquid chemo for skin cancer? But they say you never truly learn it all in a lifetime. I may had rather been sleeping during the procedure. But on the flip-side... I learned a great deal as my surgeon talked me through the entire surgical procedure. It was rather fascinating! He even tolerated my, "OUCH! Good GRIEF!!" and other choice words during the freezing and cutting of the skin lesions.... Hahahahaha! And guess what? A mere hour later... surgery was complete.

I feel pretty darn proud of myself to finally be able to face a medical obstacle and this time... WIN!

If only other medical challenges were that easy. If only they were found much, much earlier. But tis all just a learning lesson. God gives his bigger challenges to his strongest warriors. Amen.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 13, 2018 9:16 PM EST
Post Comment | Permalink
January 11, 2018
Another Step Closer! :)
Mood:  chillin'
Now Playing: Day 2928-Chapter 3... Happiness~My Silver Lining

 

What a day! What a very l-o-n-g day!

We are quickly making huge steps towards making sure our big move this summer is a huge success! Eric has been keeping in close contact with his assigned recruiter out west. Making sure that all necessary certifications and military documents are sent over to the recruiters office. We don't want to miss a thing or have anything delay the start of his training. We still have quite a few steps to go in the process of our big move. But we are super excited to announce that it WILL be happening this year. YAYYYY! 

As for making steps towards positive change... I have a few upcoming further surgical steps of my very own. Tomorrow will be skin lesion surgery to remove a few cancerous spots. I was told it will be a fairly easy surgical procedure. However, I honestly prefer to be cut while asleep under anesthesia. Not wide awake with mere local numbing anesthesia of the areas being removed. Thankfully the second smaller lesion was found upon further examination. I honestly thought it was just a mole, but at least it too will be removed tomorrow morning. I have had a few offline emails asking how I was able to become a surgical candidate after being denied so many prior surgeries with a compromised immune system. The answer to that very good question is that some surgeons will proceed ahead with liability wavers signed by the patient. There aren't that many surgeons, at least that I have come across, that will make such a huge decision to surgically proceed ahead. But thankfully, I have come across a few that will still honor the patients request and final decision. Regardless of how big or minor the surgery. A surgery is a surgery. It's still going to be tough on anyone with a compromised immune system. There is always the chance of surgical complications. What will never be surgically performed is removing the far bigger medical giant of large ovarian tumors. I went through the oncology process and maximum experimental therapies. Awakening the sleeping, yet still growing giant, isn't something that I believe to be such a wise idea anymore. At least both of my surgeons are able to get to the problem areas that have thankfully been found over the past few months. After tomorrows surgery, I will at least have a 3-month break before my next surgery to replace bone that had to be removed during my most recent surgery. I am definitely crossing my fingers that all signs of skin cancer are successfully removed tomorrow morning. Never, ever to return again.

One thing that I was super excited to get back to this evening was walking along the river. It's been quite awhile in between not feeling well and this crazy winter weather. Over the past few days it has felt more like spring here in our little, lazy, river town. A perfect opportunity to get out and enjoy a nice walk along the river trail before the rain heads back into the area for the remainder of the evening. Actually... over the next few days along with SNOW! YAYYYY! SNOW!!! It might not had been a picture perfect walk along the river. More so like a scene out of The Pirates Of The Caribbean. Hahahahaha! But I made it! I finally was able to get back to something that I truly enjoy! I give myself a round of applause for also being able to walk the entire trail along the river! WOO~HOO!!!

This evening it was all about taking it easy. Catching up on some of my favorite shows on the DVR and sifting through some really old photo albums. Gees! Talking about the beginning of photo bombing-selfies at the mere age of 9-years old! HAHAHAHAHA!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:53 AM EDT
Post Comment | Permalink
January 10, 2018
BIGGER Puppy! BIGGER Bath!
Mood:  cheeky
Now Playing: Day 2927-Chapter 3... Happiness~My Silver Lining

 

Talking about sleeping like a baby!

That is totally me over the past week!

I went from being one with the vampires... to now waking up with the birds. HA! I don't mind though, it just means being able to now get things done during 'normal' hours when folks are up. HA!

Poor Eric is still on third shift and really despises this new sleep schedule. No worries, I rotate with the sun, sometimes the moon too! This too will most likely pass after enduring this weeks second round of surgery. A far less invasive surgery to remove a cancerous skin growth on my chest. I was told that it will be a whole lot less invasive which means barely any noticeable pain due to my already anything-but-normal, high tolerance of pain. A small scar left behind that I like to consider a mere battle wound. Even the rainbow colors of bruising is almost gone from the entire left side of my face. So is the swelling. Regardless of the hilarious comments from those out in the public, during the day, I still made sure to get out and catch some fresh air. As always... staying active, keeping your blood flowing, is the best way in order to make sure you continue on the path to a smooth road to recovery!

We will be placing our current home, here in the country, up for sale at the start of the summer season. Thankfully we don't have much, as far as repairs still left to do in order to complete our house flip. A far too many repairs, repainting and redecorating project. We don't plan on making any money from the sale, if anything, our expectations remain low. We will be happy to just break even with this home in order to begin the long trek ahead to our final and permanent destination out west. As an OCD organized, neat freak... I plan on making sure that everything here on out goes as smooth as possible! We are fortunate to have the help from a new friend out here in Indiana who will be guiding us along with our private sale of our home. The bank has already been notified by all three credit bureaus regarding incorrect information and lack of showing all payments with regards to Eric's VA mortgage loan. That crazy 'mental error' as the bank so put it of adding over $148,000 without Eric's knowledge, onto his existing loan has already quickly gotten resolved. However, there is still a freeze on Eric's credit information until the remaining issues get resolved between the bank and the credit bureaus. We have until July, at least enough time to get things resolved.

In the meantime... it's important as ever to remember to not dwell on things and keep smiling! Sharing laughter among each other as one big puppy took his first and last far bigger bath at a nearby self grooming salon. So much for trying to save money by doing the grooming ourselves. Instead of paying the lady at the counter $10.00 for using their self-service salon. Maybe we should had just handed them a $10.00 bottle of extra strength Tylenol. Hahahaha! Not only did Snoreo want no part, what-so-ever, of his first and last bath out in the open for everyone to see and hear... bark-whine-bark-whine-whine-bark-whine... but I tend to firmly believe that the employees at this salon never want to see us back again. Hahahahaha! If only video capability was available on this current blog software. Hahahahaha! I never laughed so hard in my entire life! It was EXACTLY what we both needed! Maybe exactly what everyone needed that worked at the salon and customers who just had to see what all the commotion was about with a BIG puppy and a far BIGGER fear of getting a bath! Hahahahaha!

As far as the real puppy at home, Babyblue... we will just stick to bathing her in our bathroom tub. Hehehehehehe!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:32 PM EST
Updated: January 10, 2018 12:45 PM EST
Post Comment | Permalink
January 9, 2018
2018~OUT With The Old... IN With The New! :)
Mood:  lucky
Now Playing: Day 2926-Chapter 3... Happiness~My Silver Lining

 

You know what I love most about the start of a new year?

The chance to start over and do things right!

So many opportunities to live life to it's fullest! The chance to take what you have learned from last year and apply it to a new year. Live, learn and keep on, keeping on!

Today was all about... OUT with the old... and IN with the NEW!

Two huge garbage bags of old shredded documents from over the past year. Crazy isn't it?! Letting it all out... one page at a time. When you make the decision to free yourself from any and all unnecessary stress.

 Yesterday was going to be the start of another war of unnecessary, sheer nonsense with Eric's side of those whom he no longer has contact with here in the now or in the future. But with great counseling over the years. We finally took all that really good, solid advice and sprung into action. We did everything in our power to make sure that little unnecessary war of immaturity and lack of communication, never has the chance to proceed forward from the here and now. We put a quick stop to it. Unfortunately, that also meant putting the brakes, permanent brakes on a few relationships that are now... no longer. 

Life is just far too short folks. Especially to let anyone try to rain on your happiness parade. Attempting to pour a bucket over your beautiful, glowing, beaming ray of light. Like... how my face will be looking after a really good charcoal therapy mask!

It's unfortunate that I have been front row to far too much chaos over the years. However, it really has made me a much wiser person with a far bigger heart for the underdog and all black sheep within families. 

*HIGH CLAPS-LOUD APPLAUSE*

At the end of the day. We all must remember, that this is a new year. A chance to start over and do things the RIGHT way! Take what you have learned over the past 12 months and make sure to embrace the learning experience that it has given you. No one is perfect. Not one single human being in this world is perfect. But we all can really benefit from choosing to be a far bigger and better person today. Than who we were just a mere 24-hours ago. Even a year ago. 

Take this new year and new opportunity in life to make those much needed significant changes. Only then will you find yourself truly, undeniably, selfishly... HAPPY!

2018~OUT with the old... IN with the NEW!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:57 AM EDT
Post Comment | Permalink
January 8, 2018
Are YOU Ready For The Beginning Of Some REALLY BIG NEWS!!!!!
Mood:  celebratory
Now Playing: Day 2925-Chapter 3... Happiness~My Silver Lining

 

I just LOVE surprises!

I love surprises that literally leave others with their jaws on the floor!

I LOVE surprises, especially when others don't feel you have the courage or guts to make such HUGE moves that will forever change your life!

No worries for all those doubters... because the many big moves have already officially begun to take place... today.

If life were one, big, ginormous chess board. Then clearly today we finally got the chance to say, "CHECKMATE!"

Over the past 15 years, I had the opportunity to have the same cell phone number. This evening, I finally had the privilege to change my cell phone number to our new area code that we will officially be residing in this year.

YAYYYYYYY! FINALLY! WOO~HOO!!!!

Never deny the power of change! I have never, ever said I was going to do something and not follow through with it. Sure, it may have taken us a bit longer than predicted. But life happened and we had a whole lot happening in our life over the past few years. But god is good and so are those who watch over us from heaven. All of the signs had significant meaning. This evening we finally took that GINORMOUS leap of faith!

Life is a lesson to be learned and should only be learned one time around. Not only have we made our very first steps over the past week for significant and permanent change of residency. But permanent change that will bring with it, permanent happiness. Happiness that was a very long time coming! Sheer, undeniable, pure happiness! Ours for the taking!

Are we excited? YOU BET WE ARE!!

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 11:58 PM EST
Updated: July 5, 2018 5:58 AM EDT
Post Comment | Permalink
January 7, 2018
Take Heed Of The Signs...
Mood:  bright
Now Playing: Day 2924-Chapter 3... Happiness~My Silver Lining

 

Take heed of the signs... for they have valuable meaning.

Lately, I have been seeing a lot of signs.

Signs that have been visible at the most peculiar times. Or... when absolutely, least expected. Do they all have meaning? If they don't then I sure believe this all to be some really strange and quite odd coincidence. Nah. No way. There is a valuable meaning behind these signs that we have been literally walking upon lately.

I believe in fate. I believe that the universe can guide you into the right direction. A mere complete turn around from your past. A far happier road to a much more happier journey. If only you take heed of the signs that are all around you.

Between waking up from another very vivid dream. Only to look up at the television and see once again, another sign. I did a bit of online research to see if others had the same occurrence during a surgical procedure. Very vivid visions of being somewhere else. Only to awaken in disappointment of being sent back. It isn't the first time this has happened to me. I know it won't be the last. But it seems as well upon research that many, many others have had the same similar experiences. Signs. They do have a special meaning. I know mine are being directed to me. To us. Through those that have passed on and watching over us from heaven. It isn't something I believe. It is something that I firmly know.

The chances of walking outside to get the mail and looking down in the snow to see a bright red berry of some sorts. Then having that gut feeling to go back and pick it up. It was not only a sign. But a sign from someone not of this world. The chances of that very little red berry with a white heart engraved on the other side not only took me by complete surprise. But I finally received the last bit of signs that we had been looking for in such a very long time. An approval of sorts with regards to major decisions that will bring with them... major changes in our life.

2018 is going to be a big year for our entire little family.

Thanks to those who continue watching over us.

Thank you for the signs that helped us to make some very big, life changing decisions.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 8, 2018 10:59 PM EST
Post Comment | Permalink
January 6, 2018
Tis A Great Day To Take It Easy... Indoors! :)
Mood:  chillin'
Now Playing: Day 2923-Chapter 3... Happiness~My Silver Lining

 

I may be the only one right now really enjoying this extreme cold weather so early in the winter season. A long awaited break from far too many warm winter seasons. If only we could add a bit more snow to the mix... ahhhhh... that would be heavenly! Last nights temperatures heading back from the hospital dipped to a rare zero degrees. Although this isn't the coldest we have seen over the past few weeks. It is pretty rare to see zero and below zero temperatures. The only downside to this super cold winter weather are the double size record utility bills that hit our mailbox today. Our bill literally doubled from just the month prior! Even our high efficiency furnace couldn't keep up with the constant demand for warmth. This might not only be a record cold winter season. But also a record season for extremely high utility bills! Crossing our fingers for some available overtime at the sheriffs department!

Until then... tis a great day to enjoy the great outdoors via a room with a view. Actually our living room with a huge window view of some rather large visitors. It never gets old looking up to see a new visitor or two from all the deer that surround the wooded hillside. You know... someone has to feed god's creatures, both big and small. We continue to be fortunate to be a part of those someone's. Nothing fancy, just a few homemade food stations to provide something to eat for all the wildlife visitors through out the cold winter season.

At least Papa and Sweetie kitty are doing very well with their temporary shelter in the basement during these cold winter months. Other neighborhood friendly felines have also taken indoor shelter with other neighbors. I will say one thing about our area here in the country. The love for all animals runs deep! If there is a stray, you can certainly bet that someone will be opening their doors. Having more than one fur child is very common in our little, lazy, river town. It's not uncommon for a typical household to have more than 3 fur children at a time. Especially during the past few weeks when even those that have gotten lost are still welcomed with open arms. Seeking temporary shelter in a strangers home.

Unity is a really big theme when you live outside of the big cities. Back in Ohio... unity was pretty much obsolete. What I enjoy most about living in a much smaller community within a little, lazy, river town is the closeness among families. Folks here live together, as one, including the grandparents. Together under one roof. The way it used to be. I have lost track of how many times we have seen an entire family get out of their car... together. The love that is shared among family in a very small tightknit community.

There is something to be had... when seeing the love among family. It never gets old... never.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 8, 2018 10:04 PM EST
Post Comment | Permalink
January 5, 2018
Remember That One Time...
Mood:  chillin'
Now Playing: Day 2922-Chapter 3... Happiness~My Silver Lining

 

Remember that one time... when you said that one of these days you are going to sleep for an entire day.

Yep... today was that day.

I'll be darn if I am not once again, backtracking my blog entries.

Not only that... but I literally slept for over 24-hours. Not of course counting the times that Eric woke me up for meds and consuming something to drink. This of course is what happens when your body is fighting a nasty post-surgical infection.

Once again, my body temperature and blood pressure did a major dip. Another trip to the hospital meant staying long enough to get a bit of IV medication support. Long enough to receive a few good drugs to help me sleep for over 24-hours.

This past surgery was tough! Yet... I still have another upcoming surgery to remove a cancerous skin lesion in less than 2 weeks. I also have a few more surgeries still left to endure once I make a full recovery from my most recent surgery. Two separate surgical procedures to replace bone that had to be cut back due to tumors causing the initial infection. Bone that literally crumbled on my surgeon. But first... I must make a full recovery. It's like another flashback from surgery a little over several years ago that started this entire mess. A surgical procedure that turned out anything, but normal. An ovary that literally crumbled as well on them. Scary enough... there seems to be quite an eerie pattern going on here with my body. A very bad pattern.

Physically... something good has to give... right? RIGHT!

Five months from now seems pretty darn fair to me in order to recover from my recent surgery. They say that skin cancer is the most common, yet also the easiest to endure as far as having the lesions removed. I can only hope that the second time around, as far as surgeries, goes a lot smoother than this one! I guess we will find out come later next week when I meet with my other surgeon. What a way to start a new year... but tis only to be expected when you continue fighting an uphill battle.

This too shall pass. It really is true... what doesn't kill you only makes you stronger.

A hell of a LOT STRONGER. Amen.

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 8, 2018 9:05 PM EST
Post Comment | Permalink
January 4, 2018
To My Wife
Now Playing: Day 2921-Chapter 3... Happiness~My Silver Lining

 

The World

Brad Paisley

To the teller down at the bank
You're just another checking account
To the plumber that came today
You're just another house
At the airport ticket counter
You're just another fare
At the beauty shop at the mall
Well, you're just another head of hair
Well, that's alright, that's okay
If you don't feel important, honey
All I've got to say is

To the world
You may be just another girl
But to me
Baby, you are the world

To the waiter at the restaurant
You're just another tip
To the guy at the ice cream shop
You're just another dip
When you can't get reservations
'Cause you don't have the clout
Or you didn't get an invitation
'Cause somebody left you out
That's alright, that's okay
When you don't feel important, honey
All I've got to say is

 

To the world
You may be just another girl
But to me
Baby, you are the world

You think you're one of millions
But you're one in a million to me
When you wonder if you matter, baby, look into my eyes
And tell me, can't you see you're everything to me?

That's alright, that's okay
When you don't feel important, honey
All I've gotta say is

To the world
You may be just another girl
But to me
Baby, you are the world


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 5, 2018 1:12 AM EST
Post Comment | Permalink
January 3, 2018
Carry On!
Mood:  lucky
Now Playing: Day 2920-Chapter 3... Happiness~My Silver Lining

 

It's been almost a week since surgery. My how time really does fly by! So far... things have been going well with surgical recovery. It's been a slow, work in progress.

 

GI wise... well... that's another story. Side effects from anesthesia that put your entire digestive tract to sleep for almost an entire week. Tis reasons for not so much fun extreme nausea and waves of vomiting. The unwillingness to consume much of anything. Protein shakes... well... they haven't been too easy to consume either. But all is expected when you find yourself dropping a few pounds of weight. But you know what? These are just minor things. They are just minor set backs.

I have the world  ahead of me!

My surgeon had me come into his office today during his lunch break in order to address issues with another post-operative infection. Not only is my digestive system extremely slow when it comes to an anesthetic state of sleep. But so is my overall healing process. My body is just now beginning to show signs of healing. Crazy! At least all of the surgical bruising is finally starting to fade away. One grows tired of hiding indoors in fear that some folks will assume that Eric is a wife beater of some sorts. HAHAHAHA! No worries... we already had to explain my bruising to a few at our local bank. BAH! Even my surgeon's assistant got in a few of her own funnies regarding odd, but normal for me, various shades of bruising that is just now beginning to fade away. As she told my surgeon, "I sure hope she didn't give out the name of who did her surgery!" Hahahahaha! Once again... being called the 'special patient,' with some really special post-operative complications like another nasty infection. Another procedure, but a far shorter one today in order to drain the infection.

Eric wasn't given every little detail with regards to what my surgeon encountered during last weeks surgery. But today we both got full details of not just problems with my far too low blood pressure issues. But as well with bone tumors that literally crumbled on my surgeon which meant the need to cut far deeper than anticipated. Surgical incisions that we were told will take up to 5 months to heal. We were also told that I will need to have a few additional surgeries, surgical implants, to replace bone that had to be removed within the entire upper left portion of my jaw. I don't need to go into any further detail on how fortunate one can be to have such an amazing surgeon with decades of handling such highly complex cases as my unique case. Let's just say that sometimes pictures say more than a thousand words. I will handle the changes within the structure of my face. I will prepare, once again, for the necessary upcoming surgeries.

At the end of the day. It truly isn't the end of the world. It is just the beginning of one very lucky journey.

This evening, I received another call that will change my life for the better. Production will carry on into this new year out west. YAYYYY! WOO~HOO!! I can't wait for the opportunity to share some additional details! I am thankful for the producers who have not only remained patient with me, working around some unforeseen surgeries. But who still believe in this long awaited project for the world to see.

2018 is going to be one AMAZING year!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 5, 2018 12:32 AM EST
Post Comment | Permalink

Newer | Latest | Older