A Sherlock Holmes Blog.
Now Playing: Day 1162-Gastroparesis Life-A New Road For Me
This is going to be a fact blog this evening. I like to also call it a "Sherlock Holmes" type of mystery solved by the eyes of those who enjoy Facebook & Twitter-America's social media network websites.
Sherlock Holmes: A London-based "consulting detective" whose abilities border on the fantastic, Holmes is famous for his astute logical reasoning, his ability to adopt almost any disguise, and his use of forensic skills to solve difficult cases.
Its been a mystery type of week. A mighty strange type of week with people all over the city coming out of the woodwork to not just myself but Eric and a few close friends in the city. Let's be honest by first saying, "I don't LIKE DRAMA." I didn't like drama in school and I certainly don't like dealing with drama in my adult life. Especially when trying to stay on top-dealing with being sick and all the constant changes. What I do like is complete honesty and respect from those who want nothing but the best and are also looking out for us. For our family-fur gang too! What I also don't like is dealing with anyone who lies. Sure, there are lots of liars in this world but lets be real by saying, eventually they get caught.
This week I was confronted at our home by a gentleman who had quite a few "HEADS-UP!" things he had been wanting to tell me. Honestly, for my own good. You know, those things you R E A L L Y don't want to hear because you kinda had a slight inkling they were going on anyways. Yes, those kind of things. At this point I am going to clear up any misinformation and help anyone who was sadly misled over the past 2+ years or however long... Here we go again...
*The Gastroparesis Awareness Campaign website was started by myself, not my ex-spouse, then quickly was contributed by many patients, now hundreds of patients who wanted their personal stories shared regarding their journey with Gastroparesis. It is a website to help educate and spread Awareness of Gastroparesis to the public, health care professionals and other GP patients, family, friends and loved ones. The website is not a company, LLC, etc. If I wanted to go that route it was offered by a few large corporate donors over the past several years however I do not believe in profiting off of any medical condition. I do not believe in profiting off of anyone who is sick. I don't believe in asking for money or funds for any medical condition when the government uses our hard earned tax dollars and government grants to conduct research at government funded/tax funded research facilities around the great USA. I do believe in, "Knowledge is power!" The key to a cure is AWARENESS. The key to a Gastroparesis cure is also through stem cell research, helping to find a way to regenerate damage nerves. The vagus nerve. Our GI organs might look great 'however' they have lost nerve firing-function-motility.
*Over the years there has been many families and corporations whom had wills written leaving donations to the Gastroparesis Awareness Campaign "HOWEVER" once again, I do not take donations and I am not a LLC or corporation therefore I directed them and their attorneys/estates to an organization. This organization has no clue that it has been me all along, over the past several years, directing donations to them 'however' it will be revealed to the organization when my time comes and I am called to a better place, "Heaven."
*The Gastroparesis Awareness Campaign was not started by my ex-spouse. I am sorry to hear misconstrued information from not just the one individual whom gave me a personal heads up visit at our home this week but as well others. Being told face to face that my ex-spouse is using me, being sick and my unique medical condition/situation as a way to gain sympathy from others literally makes my skin crawl! The website is my way of escaping my reality of being sick however due to the progression of my Gastroparesis I have been unable to be as active as I was years ago. Since not being able to give time that I would certainly like to give it has been managed for almost 2 years by other GP patients and friends. Every Gastroparesis celebrity spokesperson does get sent a complete packet and information on Gastroparesis. They are fully aware of the website and awareness program. They are fully aware it is not a "for profit" awareness program which gives them peace of mind knowing I am not holding my hand out asking for donations because clearly I am not a corporation, bio-tech company or research lab. Each celebrity is given a few options to assist the Gastroparesis Awareness Campaign by helping to spread Gastroparesis Awareness. Each celebrity is contacted directly via personal home or office. They do read each and every packet that is sent to them and always do what they can or is asked of them. Most are also active blog readers. 80%. Fact.
*The blog was created almost 3 years ago as a way for me to document how I was feeling or sadly progressing due to my unique medical set of circumstances. It has also helped some of my specialists gain a better understanding of my unique medical set of circumstances. There are other various contributors to the blog whether it be other GP patients or even those who don't have GP but other chronic/terminal conditions. There have also been blog contributions from health care professionals, etc, etc, etc, etc. The blog has been a therapeutic way for me to express my feelings. There are many days that I don't physically feel like writing but still want to express how I am doing so Eric takes over on those days.
Onto another great Sherlock Holmes mystery...
*There will always be people in the world who want to look out for you and your well being. There will always be people in the world who want nothing but the best for you. There will also be those out there who don't want the best for you and will try instead their best to take you down. I am going to quote from those who have been contacting me and Eric this week via in person, email and text messages. I personally do not care for social media websites. I feel they are just a way to cause trouble or to intentionally hurt others. Especially those who are already down. Four individuals text Eric photos and posts over the past 48 hours in question of support not being offered to us. With those text messages were attached photos and posts from social media pages. Four individuals brought to Eric's attention regarding those on vacation and then two others whom have told Eric they didn't have the time to offer support due to being too busy, working, etc, etc, etc. Since we do not have social media accounts due to this exact reason-truth leading to hurt-we have not been aware of things for quite sometime.
"Eric, how can your spouses family tell her they don't have time to offer support when they have time to take trips and cruises with their employees and just sit back like nothing is going on?"
"Everyone is sick of seeing your family post photos of flaunting their money."
I was told this week that one individual even went to the extreme of trying to contact a family member in regards of an ex-member stealing from their business. There was also a gentleman who personally stopped by our home to warn me of the ex-family member who is also doing/saying some really terrible things by trying to take advantage of my medical condition. Trying to gain sympathy by a terrible string of lies. Who the heck does such a thing?? It just makes my SKIN CRAWL!! I assume all I can say after everything that has been told to myself, Eric and a few close friends in the city is this; If someone wants to welcome back with open arms or hire any individual whom stole medically necessary drugs and money from your family, Grandmother who has cancer, parents or other family members whom are ill must understand they become the eyes and ears of the public. This public has come to myself and Eric this week with some quite disturbing information. I respect and appreciate the heads-up, even if it makes my skin crawl. There are many mysteries that got solved this week by eyes on social media networks and those whom have also been mislead by false information or being hurt by other means of an ex-family member and needed to give us a HEADS-UP. One individual had been trying to give me a heads-up for over a year now but just wasn't sure of the right time.
I don't put up with liars. I don't have liars in my life. I don't have time for liars and I don't have time for drama. I don't have time for people who find excuses and give them to Eric on why they can't offer support and help when I am sick. I have been sick. I have been working around and finding ways to do the best I can without support. Yes, I agree with everyone it is very sad but its life. I can keep crying over spilt milk but in the end what's the point when nothing changes? Its a waste of time and its also a waste of energy that I need to conserve. I need to focus all energy on my health right now due to obvious reasons. I guess you can say if you are tired of seeing someone post photos of vacations while knowing someone is really sick and needs help then maybe its time to speak up or remove yourself from their social media websites. If you are an employee, extended family or friend of those whom you are tired of reading about their elaborate trips, jewelry or other forms of money flashing then I suggest speaking directly to the individuals, removing yourself off of their social media pages or just don't read the posts, etc, etc, etc. Two of those who raised me said it best on two different occasions, "Some people do good with money and some people just don't."
This blog doesn't mean I don't want to continue getting a heads-up from those who are looking out for my best interest because I do greatly appreciate each and every personal-at home visit and via text/emails. I have moved onto a different chapter of my life now and I have moved past those who don't help those who need help. We are doing the best we can without support and will continue doing so by appreciating the support both physically and emotionally given by friends in and out of state.
I am sorry to hear some of the things we have been told this week however I do hope if anyone ever has any questions or concerns they can feel free to contact us.
Posted by GastroparesisAwarenessCampaignOrg.
at 11:59 PM EDT
Updated: June 16, 2013 4:13 AM EDT