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*Voted Best Of The Web~ 2007, 2008, 2009, 2010, 2011, 2012,
2013, 2014 & 2015 For Patient Education And Medical Information
-Reaching out to over 8 MILLION and still growing strong!
We are the
one and only OFFICIAL Gastroparesis Awareness Organization since 2006
DO YOU HAVE GASTROPARESIS? IF SO YOU HAVE COME TO THE RIGHT PLACE. WE ARE HERE TO HELP
Dave, Mike, Donna, Pam, Tae, Pat, William, Michelle, KimberlyH
Gastroparesis Awareness Campaign Team
February 8th, 2016: ACUTE MYELOID
In Honor of Brandon
Imagine you are 24, diagnosed with one of the most aggressive blood
cancers, have already spent your savings (what little you have at 24), and had to quit your job 6 months ago due to your illness.
You've moved 3 times in the last 4 months to get medical care and you were just told that there is no additional medical care
left for you in Canada. You have to leave your home and your family to get care in another country at your own expense
in order to have any hope at a viable treatment. That is the story of my courageous husband, Brandon. This is why we
desperately need your help.
On January 29, 2016, we learned that trial drug medication was not
working and increasing numbers of cancerous blast cells had begun to show in Brandon's blood, which lead doctors to believe
that the leukemia was continuing to flourish in his bone marrow. Furthermore, the highest dose of the medication was
starting to show toxic effects on Brandon's liver. With heavy hearts, Brandon's doctors were forced to remove him from the
trial drug study.
On January 29, 2016, we had the difficult conversation
with his doctors as they told
us there were no available treatment options left in Canada. Vancouver General Hospital is one of the leading
leukemia treatment centers in Canada, and they had tried everything they have available to help Brandon. All they could offer,
is comfort care to ease the side effects as the cancer takes over and eventually takes Brandon's life.
I are just not ready to quit. We are choosing to travel to the best cancer hospital in the United States, MD Anderson in Houston,
Texas. Because Brandon is a Canadian citizen, this comes with a heavy price tag. His initial consultation fee is $37,000.
I am working diligently to get all his paperwork in order so that he can be at MD Anderson to start treatment within the next
few weeks. Since his leukemia is so aggressive, getting him to MD Anderson as quickly as possible is extremely important.
Any donations received
will go towards paying for Brandon's treatment at MD Anderson.
Anyone who knows Brandon,
knows what a joy and light he is to the world. He is the most compassionate, generous, and contagiously funny guy I know.
He has the ability to light up the room and make everyone around him laugh and smile. He also has an incredible positivity
and strength that comes from within. Throughout this journey, he has never complained or been angry with his diagnosis. I
don't know how many times I've heard him say "Other people have it worse, I'm the lucky one." He has continued to fight leukemia
with a smile on his face and love in his heart.
The Gastroparesis Awareness Campaign has been such a huge success helping to spread
international Gastroparesis Awareness for so many that we feel it's just as important to help others that maybe don't
suffer from GP, but from other serious medical conditions such as Cancer. This evil beast also rings far too close to home.
It has touched not just our life, but the lives of many of our family members, friends, loved ones and fur Angels. As
a team, our greatest hope is to be just as successful with this huge event helping to raise Cancer Awareness in support of
those who bravely battle each and every day, as we have been over the past 10 years with raising Gastroparesis Awareness.
As patients, our unique medical journeys are only divided by the name
of our condition. What we struggle and fight for each and every day are one in the same. HOPE and a CURE.
Take the challenge by committing to 140 miles for 30 days starting February 1, 2016.
Doing so will help in raising
awareness for the most rare forms of cancer.
*Proudly sponsored by the Gastroparesis Awareness
*Click on left tab for more information
CLICK LINK BELOW TO JOIN THE
OTHER 990,205 READERS FOLLOWING A GASTROPARESIS PATIENTS LIFE:
Road Before & After Surgery/Gastroparesis Life 2016
KEEP ON! KEEPING ON!
Sharing my journey with others in hopes of inspiring the great fight for
Researchers from Swinburne University in Australia want to learn more about what it’s like
to live with Gastroparesis.
You can help them by completing an online questionnaire:
*This new study is an online questionnaire that explores how individuals experience
Gastroparesis and how it impacts upon their life. It is open to adults with Gastroparesis from anywhere in the world, and
takes about 45-60mins to complete.
The Gastroparesisclinic.org offers FREE
information and a 6-week psychologically-focused support program for individuals who live with Gastroparesis.
The online treatment program brings together validated psychological treatments such as cognitive
behavioral therapy and mindfulness therapy; both treatments have been shown to be effective in reducing
the symptom severity and psychological distress associated with Gastroparesis.
The Gastroparesis Awareness Campaign is honored
to join hands with the Royal Melbourne Hospital & Swinburne University of Technology located in Hawthorn Victoria,
Australia by announcing their new online Gastroparesis-focused information and psychological support service.
'The Gastroparesis Friendly Diet'
Helping those with Gastroparesis by providing better food choices!
*Created by Gastroparesis patients
through years of food trial and error
-See left tab for more information
A Huge "SHOUT OUT!
Counts Kustoms-Counting Cars
Many, many thanks to Danny, Mike, Roli, Scott, Kevin & the entire crew
at Counts Kustoms for honoring those who fight the great GP fight!
From the hit movies, Mean Girls, The Big Wedding & A Million Ways To
Die In The West
Joins hands with the Gastroparesis Awareness Campaign Team helping
to spread Gastroparesis Awareness!
Seyfried began her career as a child model when she was 11 and at 15 began her career as an actress, starting off with
uncredited roles and moving on to recurring roles on As the World Turns and All My Children.
In 2004, Seyfried
made her film debut in Mean Girls. Her subsequent supporting roles were in independent films, such as Nive Lives (2005)
and Alpha Dog (2006) and she also had a recurring role in the UPN TV show Veronic Mars (2004–2006). Between
2006 and 2011, she starred on the HBO series Big Love. After that, Seyfried appeared in her breakthrough role in the 2008
musical feature film Mamma Mia! Her other appearances include leading roles in Jennifer's Body (2009), Chloe, (2009),
Dear John (2010), Letters to Juliet (2010), Red Riding Hood (2011), In Time (2011) and Gone (2012).
She played Cosette in the musical film Les Miserables (2012), The Big Wedding (2013) and Seth MacFarlane's
frontier spoof, A million ways to die in the west (2014).
Joins the Gastroparesis Awareness Campaign Team!
Jackie Chan, (born Chan Kong-sang, 陳港生; 7 April 1954 in Hong Kong) is a Hong Kong actor, action choreographer,
comedian, director, producer, martial artist, screenwriter, entrepreneur,
singer, and stunt performer. In his movies, he is known for his acrobatic fighting style,
comic timing, use of improvised weapons, and innovative stunts. He is one of the few actors that did all of his stunts in
all of his films. Jackie Chan has been acting since the 1960s and has appeared in over 150 films.
|Jason Lively & Cast
|Helping to raise GP Awareness & Education
Gastroparesis guest speakers available for special
For further information please send offline requests
|John Travolta & Family
|Continuing joining hands with the Gastroparesis Awareness Campaign Organiztation
THE GASTROPARESIS AWARENESS CAMPAIGN SUPPORTS
"KNOTS OF LOVE"
|Christine M. Fabiani-Founder, Executive Director
Knots of Love’s primary goal is to brighten the lives of those in need with kindness
and love. All Knots of Love creations are given free of charge to people who are battling cancer or other life-threatening
illnesses or injuries.
|Kimberly, Founder & Patient-Gastroparesis Awareness Campaign Org.
Thank you to Christine and her amazing organization along with the many volunteers who
give their time helping to spread love and support to patients all over the world, "ONE KNOT AT A TIME!"
|Gastroparesis Patient Advocate-Pennsylvania
|Debby With The Official March 2013 Gastroparesis Awareness Proclamation
What is Gastroparesis?
is a digestive motility disorder where the vagus nerve is damaged. The muscles and nerves of the stomach, intestines
and other GI organs become paralyzed. This condition delays food emptying from the stomach and other GI organs which
can result in serious complications and further gastrointestinal problems. 1 out of every 2 diabetics will develop
Gastroparesis. This is 50 percent of all patients.
-National Institutes of Health estimates there are over 5
million Gastroparesis patients in the United States. Lack of medical education of Gastroparesis and patients not
being properly diagnosed are still left untreated, suffering in silence.
*Gastroparesis is most commonly
caused by diabetes, but can also be hereditary or occur as a result of surgery on the stomach or vagus nerve, viral infections,
food poisoning, MS/Multiple Sclerosis, Parkinson's disease, ALS/Lou Gehrig's disease, stroke, medications that slow contractions
in the intestines such as anticholinergics and narcotics, gastric bypass, lap band, gastric sleeve surgery, smooth muscle
disorders, Scleroderma, Amyloidosis, gastro esophageal reflux disease, metabolic disorders, autoimmune diseases, Mitochondrial
Disease, chemo/radiation therapy, Bells Palsy syndrome, Ramsey Hunt syndrome, Anorexia nervosa and Bulimia.
has no known origin. Many diagnostic tests can be performed however it is still unknown to the medical profession the
cause of those patients who suffer from this more rare type of Gastroparesis.
"The Gastroparesis Awareness Campaign
Our mission is to spread world
wide international public awareness and education for this debilitating GI disorder.
The most important issue will be continued
communication with local Government on increasing federal funds for research and development. We also hold yearly public awareness activities helping
to educate all state citizens and health professionals about Gastroparesis. The Gastroparesis Awareness Campaign
team keeps in close communication with current bio-tech companies conducting research for possible future
*Don't forget to check back in
spring 2016 for our new Gastroparesis Awareness Campaign t-shirts and the official Gastroparesis Awareness
TOGETHER WE WILL FIGHT FOR A CURE!
|Gastroparesis Patient Advocate-Texas
|Kaitlin With The Official March 2013 Gastroparesis Awareness Proclamation
|-The Key to Success for Gastroparesis is Awareness
|A huge THANK YOU to all of our Governors!
*In response to the open hunting of wolves in the states of Wisconsin and Minnesota the Gastroparesis Awareness
Campaign has decided to no longer affiliate with either state government but will continue providing support for ALL
Gastroparesis patients residing in both states. We do not condone hunting as a sport of these sacred animals.
creatures both big and small quickly replace what lacks in compassion with society. Animals bring what patients who are sick
and terminally ill need, which is, “Unconditional Love and Companionship.”
-The Gastroparesis Awareness Campaign Team & Founder
Many Thanks To:
Governor Susana Martinez of New Mexico-Gastroparesis
Awareness Month-May 2013
Governor Nathan Deal of Georgia-Gastroparesis
Awareness Month-May 2013
Governor Tom Corbett of Pennsylvania-Gastroparesis
Awareness Month-March 2013
Governor Rick Perry of Texas-Gastroparesis Awareness
Governor John. R Kasich of Ohio-Gastroparesis
Awareness Month-October 2011
Governor Mike Beebe of Arkansas-Gastroparesis
Awareness Month-October 2011
Governor John A. Kitzhaber, M.D. of Oregon-Gastroparesis
Awareness Month-June 2011
Governor Chet Culver of Iowa-Gastroparesis Awareness
Governor Martin O' Malley of Maryland-Gastroparesis
Awareness Month-February 2010
Governor Charlie Crist of Florida, Governor Jim Gibbons
of Nevada-Gastroparesis Awareness Month-August 2009
Governor David Paterson of New York, Governor Bev
Perdue of North Carolina-Gastroparesis & Digestive Awareness-June 2009
Governor Deval L. Patrick of Massachusetts-Gastroparesis
& Digestive Awareness-February 2009
Governor Haley Barbour of Mississippi-Gastroparesis
& Digestive Awareness-August 2008
Governor Edward G. Rendell of Pennsylvania-Gastroparesis
& Digestive Citizen Awareness-May 2008
Governor Phil Bredesen of Tennessee-Gastroparesis
& Digestive Awareness-April 2008
Governor Joe Manchin III of West Virginia, Governor
Ted Kulongoski of Oregon-Gastroparesis & Digestive Awareness-March 2008
Governor Dave Freudenthal of Wyoming, Governor Kathleen
Babineaux Blanco of Louisiana, Governor Ted Strickland of Ohio, Governor Mitchell E. Daniels
Jr of Indiana-Gastroparesis & Digestive Awareness-March 2007
Governor Janet Napolitano of Arizona & Governor M.
Jodi Rell of Connecticut-Gastroparesis & Digestive Awareness-October 2007
Governor Mark Sanford of South Carolina-Gastroparesis &
Digestive Awareness-December 2007
Governor James E. Risch-Idaho-Gastroparesis &
Digestive Motility Awareness-October 2006
Governor Ernie Fletcher-Kentucky, Governor Bill Richardson-New
Mexico, Governor Jennifer M. Granholm-Michigan, Governor Rod Blagojevich-Illinois, Governor John E. Baldacci-Maine, Governor
Matt Blunt-Missouri, Governor Jon S. Corzine-New Jersey, Governor Christine O. Gregoire-Washington-Gastroparesis &
Digestive Awareness-May 2006
*All original & official state proclamations
are the sole possession of the Gastroparesis Awareness Campaign Organization.
We are not affiliated with any other Gastroparesis
or GI organizations.
Queen Elizabeth & The Prince of
Wales show their Gastroparesis Awareness Campaign support!
As of February
1, 2016 the Gastroparesis Awareness Campaign has successfully filled over 8,812,397 server requests helping to raise awareness
and educate people worldwide on Gastroparesis.
Let's continue to grow these
numbers and never give up the fight!
KEEP ON! KEEPING ON!
© February 27th, 2006
GP Awareness One Person At A Time.
You My Friend Will Never Again Walk Alone.