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-Reaching out to over 10 MILLION and still growing strong!
are the one and only OFFICIAL Gastroparesis Awareness Organization since 2006
DO YOU HAVE GASTROPARESIS?
Awareness Campaign Team
WE ARE HERE TO HELP YOU!
Mike, Donna, Pam, Tae, Pat, William, Michelle, KimberlyH
CLICK LINK BELOW TO JOIN THE
OTHER 1,438,224 READERS FOLLOWING A GASTROPARESIS PATIENTS LIFE STORY:
The Road Before & After Surgery/Gastroparesis Life 2017
Next GP Chapter... Turning Lemons Into
Sharing my journey with others in hopes of inspiring the great
fight for life!
"Survivorship means you are alive to advocate
for research, to help those who need help, and to gain a better perspective on what life is really about –
loving and being loved, giving and sharing.
WE are all survivors from the first day of our diagnosis and will each have a unique walk down
the medical journey. However, we will all meet challenges, successes and failures that have been
met and dealt with before us and will be met and dealt with again after us.
Each and every one of us have a responsibility to leave behind
whatever knowledge and life experiences that will benefit those who walk the path after us."
WOULD YOU LIKE TO SHARE
YOUR GASTROPARESIS STORY WITH THE WORLD?
Awareness Campaign would like to share your GP journey with the world in 2017
We are looking for fellow GP patients, family, friends and loved ones interested in sharing their GP journey
for an upcoming Gastroparesis project. Please submit your story with a bio photo:
GP JOURNEY 2017
Hi, my name is Elizabeth
A GP Survivor of 5 1/2 years
I started out as a single mom living in subsidized housing. I began getting so
sick that I had no idea what was happening due to the pain and nausea. At one point, I ended up crawling from my
bedroom to the bathroom as my daughter who was 1 1/2 at the time asked me if I was ok? I said, "Yes." My daughter said,
"Ok mommy," and went back to watching television. Once again, the nausea became more intense, then all I remember
was sweating so badly that my clothes became soaked. I couldn't breathe, let alone raise my head to throw up. I was naked
on the floor and couldn't move due to being in so much pain. The pain became so bad that it felt as if my insides were
going to rupture. As I began crying for help, cold and helpless. My daughter came to comfort me as she began rubbing
my back while talking to me. I told her to grab mommies phone, but once she grabbed it, sure enough...
It was dead. As my daughter began plugging in my phone in order to charge it, I was in and out of consciousness. I
wasn't sure how long I had been on the bathroom floor.
I am lucky that my daughter was taught how to call for an ambulance since I had been on the bathroom
floor for 2 days. My daughter used a chair to unlock and open the heavy apartment door for the paramedics. I am thankful for
a good friend who quickly came to my side and helped care for my daughter as I was being rushed to the hospital.
While on the way to the hospital. The paramedics had to start an IV due to being so weak and barely alert. I was so weak while laying
on the hospital bed that I wasn't sure if I was dying. The hospital doctor came in and began talking to me
as I explained that I wasn't sure what had happened. I got very sick and next thing I knew, I was in the hospital.
I was advised to see my family physician after being
released from the hospital with medication to begin taking at home. The medication was suppose to help
assist with my pain and nausea. I went to see my family physician and was then referred to a GI specialist.
I had already lost 60 lbs in 2 months. The specialist did not think it was possible for me to lose so much weight in
such a short amount of time. I began to explain how sick I had been with my stomach and that I needed to know what was happening
to me. The GI specialist sent me for further testing, in which, it took them awhile to actually be able to diagnosis
my condition. It wasn't until they ran a few tests on my stomach before quickly finding rice that had been sitting for
3 months. My GI specialist nor hospital technicians had never seen such a thing as the rice sat in my
stomach rotting due to lack of stomach acid. I was quickly referred to a nuclear study so they could see how fast my
stomach was emptying. After 90 minutes, I began throwing up everything so they sent me home. I was then released
back to my GI specialist and finally given a diagnosis, "You have Gastroparesis."
They do not know the cause of my Gastroparesis. I now live on a very specific
diet plan and medication that must be taken on a daily basis. The medication helps to relieve the stomach nausea and pain.
I struggle with finding hope and a cure for this awful
disease. I still suffer on a daily basis and continue to lose weight. I have tried all the various medically
recommended diets, but still look sickly.
I rely on Ensure to
help give my body the much needed nutrients that are depleted due to my Gastroparesis. I have no immune system anymore due
to my Gastroparesis. It takes me a very long time to rid any type of cold, flu or other viruses. I do receive
medical injections to help with the rapid weight loss. I do my best to walk everyday when I'm not so sick. I enjoy feeling
the suns warm rays and wind on my cheeks.
I thank God everyday
that I am still here as I continue my long journey looking for a cure to this disease.
The Gastroparesisclinic.org offers FREE
information and a 6-week psychologically-focused support program for individuals who live with Gastroparesis.
The online treatment program brings together validated psychological treatments such as cognitive
behavioral therapy and mindfulness therapy; both treatments have been shown to be effective in reducing
the symptom severity and psychological distress associated with Gastroparesis.
The Gastroparesis Awareness Campaign is honored
to join hands with the Royal Melbourne Hospital & Swinburne University of Technology located in Hawthorn Victoria,
Australia by announcing their new online Gastroparesis-focused information and psychological support service.
'The Gastroparesis Friendly Diet'
Helping those with Gastroparesis by providing better food choices!
*Created by Gastroparesis patients
through years of food trial and error
-See left tab for more information
A Huge "SHOUT OUT!
Counts Kustoms-Counting Cars
Many, many thanks to Danny, Mike, Roli, Scott, Kevin & the entire crew
at Counts Kustoms for honoring those who fight the great GP fight!
From the hit movies, Mean Girls, The Big Wedding & A Million Ways To
Die In The West
Joins hands with the Gastroparesis Awareness Campaign Team helping
to spread Gastroparesis Awareness!
Seyfried began her career as a child model when she was 11 and at 15 began her career as an actress, starting off with
uncredited roles and moving on to recurring roles on As the World Turns and All My Children.
In 2004, Seyfried
made her film debut in Mean Girls. Her subsequent supporting roles were in independent films, such as Nive Lives (2005)
and Alpha Dog (2006) and she also had a recurring role in the UPN TV show Veronic Mars (2004–2006). Between
2006 and 2011, she starred on the HBO series Big Love. After that, Seyfried appeared in her breakthrough role in the 2008
musical feature film Mamma Mia! Her other appearances include leading roles in Jennifer's Body (2009), Chloe, (2009),
Dear John (2010), Letters to Juliet (2010), Red Riding Hood (2011), In Time (2011) and Gone (2012).
She played Cosette in the musical film Les Miserables (2012), The Big Wedding (2013) and Seth MacFarlane's
frontier spoof, A million ways to die in the west (2014).
Joins the Gastroparesis Awareness Campaign Team!
Jackie Chan, (born Chan Kong-sang, 陳港生; 7 April 1954 in Hong Kong) is a Hong Kong actor, action choreographer,
comedian, director, producer, martial artist, screenwriter, entrepreneur,
singer, and stunt performer. In his movies, he is known for his acrobatic fighting style,
comic timing, use of improvised weapons, and innovative stunts. He is one of the few actors that did all of his stunts in
all of his films. Jackie Chan has been acting since the 1960s and has appeared in over 150 films.
|Jason Lively & Cast
|Helping to raise GP Awareness & Education
Gastroparesis guest speakers available for special
For further information please send offline requests
|John Travolta & Family
|Continuing joining hands with the Gastroparesis Awareness Campaign Organiztation
THE GASTROPARESIS AWARENESS CAMPAIGN SUPPORTS
"KNOTS OF LOVE"
|Christine M. Fabiani-Founder, Executive Director
Knots of Love’s primary goal is to brighten the lives of those in need with kindness
and love. All Knots of Love creations are given free of charge to people who are battling cancer or other life-threatening
illnesses or injuries.
|Kimberly, Founder & Patient-Gastroparesis Awareness Campaign Org.
Thank you to Christine and her amazing organization along with the many volunteers who
give their time helping to spread love and support to patients all over the world, "ONE KNOT AT A TIME!"
|Gastroparesis Patient Advocate-Pennsylvania
|Debby With The Official March 2013 Gastroparesis Awareness Proclamation
What is Gastroparesis?
is a digestive motility disorder where the vagus nerve is damaged. The muscles and nerves of the stomach, intestines
and other GI organs become paralyzed. This condition delays food emptying from the stomach and other GI organs which
can result in serious complications and further gastrointestinal problems. 1 out of every 2 diabetics will develop
Gastroparesis. This is 50 percent of all patients.
-National Institutes of Health estimates there
are over 5 million Gastroparesis patients in the United States. Lack of medical education of Gastroparesis and patients
not being properly diagnosed are still left untreated, suffering in silence.
*Gastroparesis is most commonly caused by diabetes,
but can also be hereditary or occur as a result of surgery on the stomach or vagus nerve, viral infections, food poisoning,
MS/Multiple Sclerosis, Parkinson's disease, ALS/Lou Gehrig's disease, stroke, medications that slow contractions in the intestines
such as anticholinergics and narcotics, gastric bypass, lap band, gastric sleeve surgery, smooth muscle disorders, Scleroderma,
Amyloidosis, gastro esophageal reflux disease, metabolic disorders, autoimmune diseases, Mitochondrial Disease, chemo/radiation
therapy, Bells Palsy syndrome, Ramsey Hunt syndrome, Anorexia nervosa and Bulimia.
has no known origin. Many diagnostic tests can be performed however it is still unknown to the medical profession the
cause of those patients who suffer from this more rare type of Gastroparesis.
"The Gastroparesis Awareness Campaign
Our mission is to spread world
wide international public awareness and education for this debilitating GI disorder.
The most important issue will
be continued communication with local Government on increasing federal funds for research and development. We also hold yearly
public awareness activities helping to educate all state citizens and health professionals about Gastroparesis. The
Gastroparesis Awareness Campaign team keeps in close communication with current bio-tech companies conducting research for
possible future Gastroparesis drugs.
*Don't forget to check back for
our upcoming 2017 Gastroparesis Awareness Campaign events helping to raise Gastroparesis Awareness one person at
a time! :)
TOGETHER WE WILL FIGHT FOR
|Gastroparesis Patient Advocate-Texas
|Kaitlin With The Official March 2013 Gastroparesis Awareness Proclamation
|-The Key to Success for Gastroparesis is Awareness
|A huge THANK YOU to all of our Governors!
*In response to the open
hunting of wolves in the states of Wisconsin and Minnesota the Gastroparesis Awareness Campaign has decided to no longer affiliate
with either state government but will continue providing support for ALL Gastroparesis patients residing in both states. We
do not condone hunting as a sport of these sacred animals.
God’s creatures both big and small quickly replace what lacks in compassion with society. Animals bring what
patients who are sick and terminally ill need, which is, “Unconditional Love and Companionship.”
-The Gastroparesis Awareness Campaign Team & Founder
Many Thanks To:
Governor Susana Martinez of New Mexico-Gastroparesis
Awareness Month-May 2013
Governor Nathan Deal of Georgia-Gastroparesis
Awareness Month-May 2013
Governor Tom Corbett of Pennsylvania-Gastroparesis
Awareness Month-March 2013
Governor Rick Perry of Texas-Gastroparesis
Awareness Month-March 2013
Governor John. R Kasich of Ohio-Gastroparesis
Awareness Month-October 2011
Governor Mike Beebe of Arkansas-Gastroparesis
Awareness Month-October 2011
Governor John A. Kitzhaber, M.D. of Oregon-Gastroparesis
Awareness Month-June 2011
Governor Chet Culver of Iowa-Gastroparesis
Awareness Month-July 2010
Governor Martin O' Malley of Maryland-Gastroparesis
Awareness Month-February 2010
Governor Charlie Crist of Florida, Governor
Jim Gibbons of Nevada-Gastroparesis Awareness Month-August 2009
Governor David Paterson of New York, Governor
Bev Perdue of North Carolina-Gastroparesis & Digestive Awareness-June 2009
Governor Deval L. Patrick of Massachusetts-Gastroparesis
& Digestive Awareness-February 2009
Governor Haley Barbour of Mississippi-Gastroparesis
& Digestive Awareness-August 2008
Governor Edward G. Rendell of Pennsylvania-Gastroparesis
& Digestive Citizen Awareness-May 2008
Governor Phil Bredesen of Tennessee-Gastroparesis
& Digestive Awareness-April 2008
Governor Joe Manchin III of West Virginia,
Governor Ted Kulongoski of Oregon-Gastroparesis & Digestive Awareness-March 2008
Governor Dave Freudenthal of Wyoming, Governor
Kathleen Babineaux Blanco of Louisiana, Governor
Ted Strickland of Ohio, Governor Mitchell E. Daniels Jr of Indiana-Gastroparesis & Digestive Awareness-March 2007
Janet Napolitano of Arizona & Governor M. Jodi Rell of Connecticut-Gastroparesis & Digestive Awareness-October
Mark Sanford of South Carolina-Gastroparesis & Digestive Awareness-December 2007
Governor James E. Risch-Idaho-Gastroparesis
& Digestive Motility Awareness-October 2006
Ernie Fletcher-Kentucky, Governor Bill Richardson-New Mexico, Governor Jennifer M. Granholm-Michigan, Governor Rod Blagojevich-Illinois,
Governor John E. Baldacci-Maine, Governor Matt Blunt-Missouri, Governor Jon S. Corzine-New Jersey, Governor Christine O. Gregoire-Washington-Gastroparesis
& Digestive Awareness-May 2006
*Official state proclamations are the sole possession
of the Gastroparesis Awareness Campaign Organization. We are not affiliated with
any other Gastroparesis
or GI organization.
Queen Elizabeth & The Prince of Wales
show their Gastroparesis Awareness Campaign support!
As of April 1,
2017 the Gastroparesis Awareness Campaign has successfully filled over 10,486,003 server requests helping to raise awareness
and educate people worldwide on Gastroparesis.
Let's continue to
grow these numbers and never give up the fight!
KEEP ON! KEEPING
© February 27th, 2006
GP Awareness One Person At A Time"
My Friend Will Never Again Walk Alone