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The Road Before & After Surgery
November 24, 2017
Getting My Game Face Ready!
Mood:  bright
Now Playing: Day 2880-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What a great way to wake up on this early Black Friday, crazy shoppers day'!

Post-Pansgiving

Another most beautiful morning with Sweetie kitty paying us a visit while playing among the trees. When you live in the country, neighborhood kitties are taken care of by everyone. If you find a stray or feral kitty and can catch them. Our county animal rescue and shelter will spay or neuter, along with shots for free. Then the kitties are released back into the wild with a special marking. This is to let everyone know that they have been spay or neutered and considered safe to roam free.

With the long winter months quickly upon us. Everyone takes care of the special kitties that roam free here in the country. We have been watching Sweetie grow up since she was a young kitten. Now at almost a year old, she has gotten so much bigger. Yet, still roams wild and free! Papa kitty is still as well keeping us company in the morning and evening. He's a big ole porch kitty with a huge heart!

This morning we had an early appointment for pre-surgical testing. I can't believe that my surgery is already early next week. This month is literally flying on by! One would assume, that we would be hospital pros by now. However, I am not so certain that anyone gets used to living with long term medical issues. Especially anything dealing with cancer. In any way, shape or form. The constant uneasiness, uncertainness and living the remainder of your life while walking on egg shells. It's never an easy feeling. It's never an easy road. But today, we found ourselves walking on the same ole road that we walked just a year prior. Crazy how some things in life come full circle.

The same ole broken road. Broken... because not one of my specialists on my medical team has been able to predict one day from the next. Nothing has been easy. This morning, I find myself once again, dealing with another surgery. 50/50 is what I give this one, as far as complications. My largest ovarian tumor has continued to far surpass the size it was prior to beginning this road with oncology. That was back in May, 2016. Yet, here we are, once again, walking back down that same ole broken road. It's not easy. But I have faith, that we can get past these bumps in the road. Doing so... together.

Eric, he still remains a bit uneasy with next weeks surgery. I am more concerned with the real reality of handling two totally different types of pain after surgery. Thankfully my pain tolerance is already off-the-charts, not normal. I can handle a hell of a lot of pain. However, laying around while trying to recover this time around is going to be quite tricky. Two totally different types of pain. In two totally different areas of the body. I was told to expect the worst, this time around, when it comes to post-surgical pain. I don't do well with narcotics due to my body not being able to break down pills and absorb them properly. This is where my port would had greatly come in handy! Hopefully the good stuff, anesthesia, will last me a bit longer this time around so I can sleep away the pain.

As I finish off the remainder of this weekend... resting and taking it easy. I also have to go full liquids starting today. No more sampling the super yummy pancakes from Pansgiving.

 So... you know what that means for Eric...

ANOTHER SUGAR RUSH!

I totally feel a pillow  fight coming on this evening!!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 25, 2017 2:46 AM EST
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November 23, 2017
HAPPY PANSGIVING! ummmm.... THANKSGIVING! ;)
Mood:  happy
Now Playing: Day 2879-Next GP Chapter... Turning Lemons Into Lemonade :)

 

GOOD MORNIN' FROM HERE IN THE COUNTRY!

HAPPY PANSGIVING

A most picture~perfect way to start our 2nd annual Pansgiving on this most beautiful day! Actually, Thanksgiving. This day is a reminder of not only about how much we are blessed. But as well how many different varieties of pancakes can one possibly digest. Hehehehehehe!

Yep, that's how we came up with our new holiday tradition.

PANSGIVING! PANCAKES GALORE ON THANKSGIVING!

Talking about being PANFUL! Hehehehehehe!

These pancakes are a holiday match made in sugar heaven!

YUMMMMMMYYYYY

The sugar buzz alone is enough to send someone into a state of sheer sugar bliss! In order to figure out just how high ones blood sugar will jump after eating more than their stomach can handle (Eric still laughing). This is the aftermath, a mere 20 minutes later after Eric inhaled a combination of trying all three stacks of pancakes for Pansgiving.

Cinnamon apple with vanilla crème fluff on the side, and a really thick Irish crème syrup. Then of course, one can never go wrong with banana nut bread with dark raspberry maple syrup. Lastly was the manly-man pancakes with crushed turkey bacon and turkey sausage, topped with extra thick syrup goodness! We didn't even need a place setting. No way! Bring on the spoons already! And... we did just that on this second annual PANSGIVING! A bite of this pancake and a little bite of that pancake. Lordie!! My body had no idea what to make of such super delicious sugariness!

An hour later....

We were still laughing!!!  Hahahahaha! Blame it on the sugar rush from head to toe! I never laughed so hard! It's been a long time coming and we both totally deserved this happiest Thanksgiving yet! The holidays really are about smiles, laughter and sheer, undeniable, pure happiness! Sharing new memories together as family. Our little families second annual tradition was absolutely PERFECT! I wouldn't had changed a thing!

This evening we took Snoreo and Babyblue for some play time at our local dog park and then enjoyed a most beautiful  sunset along the river trails.

There are so many things to be thankful for this Thanksgiving. Most importantly is having the ability to share such a beautiful day as a family. Out with the old traditions and in with the new! One tradition that remained the same is our blessings and prayers. From our little family here in the country, to you!

Here's wishing everyone a very Happy Thanksgiving, PANSGIVING or whatever way you celebrate to your hearts desire.

CHEERS & GOBBLE-GOBBLE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 25, 2017 1:21 AM EST
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November 22, 2017
A Holiday Taste-Tester Is Always A Must! ;)
Mood:  hungry
Now Playing: Day 2878-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Why... hello there from Ms. Babyblue~

It seems as if a little someone has already taken over duties of watching mommy bake for the upcoming holidays. Hehehehehe! Such a cutie!

Last year it was Ms. Littleblue who was up and ready to watch mommy bake all sorts of tasty treats for Thanksgiving. I sure do miss my Littleblue, Cuddles and the rest of our beloved fur gang. God must had known the exact husky pup to send us from heaven. Babyblue is every bit a splitting image of our beloved Littleblue. Talking about one super excited taste-tester for tomorrows Thanksgiving goodies!

This year things will be different as we continue celebrating Thanksgiving with a new tradition. PANSGIVING!Nothing but pure happiness, peace, joy and undeniable celebratory bliss~

That's how we do the holidays here in the country! 

On a different note... unfortunately Eric has to work during this years Thanksgiving and Christmas. Instead of rushing to cook and bake for the holidays. I have decided to prepare food ahead of time for a far more enjoyable Thanksgiving day shared with our little family. There will be no cooking for tomorrow so we can enjoy that extra time together. Creating new holiday memories to last a lifetime. A day of giving thanks for so many blessings we have received this year. All of our silver linings.

So maybe our holidays aren't spent like normal folks do... But what really constitutes 'normal' anyways?. The holidays aren't about what society sees fit. It's about what makes you happy. The happiest yet! No arguments, no drama and no unnecessary shenanigans allowed during our holiday season. Life is far too short not to celebrate Thanksgiving and Christmas with a smile on your face and joy in your heart. Surrounded by those who love you... unconditionally. Flaws & all!

Here's wishing you and yours a very thankful Thanksgiving from our little, lazy, river town here in the country. YEE~HAW!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 7:36 AM EDT
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November 21, 2017
The Holiday Season
Mood:  hug me
Now Playing: Day 2877-Next GP Chapter... Turning Lemons Into Lemonade :)

 

The holiday season symbolizes a most happiest time of the year. But for many, the holidays symbolize a time of sadness and despair.

During this upcoming holiday season. Most of us will be celebrating far happier times with family, friends and loved ones. Let's face it... Thanksgiving and Christmas generally represent time spent with family. For many people, this is the hardest part of the year. Some family members celebrate the holidays alone, absent from family. While for others, the holidays can be especially tough after suffering the loss of a loved one. Even those whom have suffered the loss of a beloved fur child. This time of year can be especially difficult as we continue to grieve far happier memories of days gone by. The holidays aren't always such a happy, joyous occasion. For some, it represents overwhelming sadness.

For a lot of people. The holidays symbolize a time of overwhelming grief. Far from a time of happiness. Holidays only tend to magnify the loss. Sadness feels sadder and loneliness feels so much deeper than any other time of the year.

Over the past year, myself and my spouse have spent a lot of time grieving from overwhelming loss. Time spent trying to heal from the same overwhelming pain. This is the time of the year that we have dreaded the most. Yet, we are not alone.

The holidays are a time of the year when we all need support. A smile... a simple hug.... kindness from a stranger. A lending hand to let others know who also suffer from grief, loss and overwhelming sadness during the holidays. That they too are not alone. A time to let others know that it is okay to feel all of the emotions that come with the holidays. This is the time where we all need to practice the art of kindness far more now, than any other time of the year. How to treat others. Even the kindness to a stranger who may be standing in line behind you at the register. Let's also not forget those who work during the holidays. They too could use a random act of kindness. A simple smile goes a very long way during the holidays. 

Thanksgiving is a time to give thanks for what truly matters in our lives. This doesn't mean monetary gains such as with a business. It is sad to see those who have truly lost the meaning of Thanksgiving. What the holidays truly symbolize which means a time to be thankful for the little things in life. A very precious and most memorable time to spend with family. A time to reflect on what is most important. At the end of the day. That business will mean nothing. How you treat loved ones and even strangers is what truly counts at the end. The holidays is a time to be thankful and most importantly, humble. Amen.

During this holiday season. Please remember those who may be suffering from grief and overwhelming sadness. Pray for those who may be suffering from illness. Even those who may not have family to celebrate the love and joy that comes with the holiday season. Give back to those around you, help lend a caring hand and even a simple smile to a stranger.

The act of compassion reminds us of our blessings. The true beauty of Thanksgiving and Christmas.

 

 

 

 

 

 

 

 

In memory of those we have lost and those who will remain in our hearts for eternity~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 22, 2017 5:11 AM EST
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November 20, 2017
Fall... Is In The Air...
Mood:  bright
Now Playing: Day 2876-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Fall...  Is In The Air...

At least what remainder of the fall that is in the air after a huge cold front blasted our little, lazy, river town.

It might be a good thing that Eric decided to wait a week before raking all the leaves. What hadn't already blown off the trees that surround our property. Those leaves are now long gone after high winds blew the rest of the leaves off our trees and landed them into our neighbors yard. OOPSIE! Our neighbor just had a landscaping company out at their property a few days prior before the storm paid us a visit here in the country. Like I said... OOPSIE!

Today was a picture perfect day and not too terribly cold to take the fur gang up to our local dog park. It was also a great day to take a walk on the trails. There are a lot of trails within a few minutes drive from our home. On my good days, I like to at least walk the trails in the morning. If time permitted, even another walk during the evening. With Babyblue quickly gaining weight. There are days when I can't walk her and instead have to hand the leash over to Eric. We are blessed to have such a smart puppy and very well behaved! There really was no potty training involved with Babyblue. Instead she instantly learned that outside is for using the bathroom after having an accident inside her crate. A mere 3 accidents in the house is really unheard of with a puppy. Babyblue is all around such a super smart husky. I believe that holds true for all rescues. They are a very special blessing!

With so many surgeries and routine testing lined up for the remainder of the year. Eric has been doing his best to pick up as much overtime as possible with the Sheriff's department. Just because you have health insurance does not mean you are exempt from high out-of-pocket deductibles. The county has a really good health insurance plan, however we first have to pay our yearly deductible before everything is covered at 100 percent. It can get to be very expensive with our out-of-pocket deductible at $5,000 per calendar year. We have to pay the first $5,000 before claims are covered at 100 percent. The end of the year is the worst time for Eric to try getting in as much overtime as possible. Everyone is looking for extra money in order to cover holiday gifts. Even on weeks when there is no overtime available. We still believe that in the end, everything will work out...okay. It always has for us. Where there is a will. There will always be a way.

This house has maybe not been such a blessing for us over the past year. However, the second lawsuit of the year will be officially filed tomorrow. Ideally, another lawsuit is the last thing we really need, but it must be done. There has been a lot that has transpired over the past year with this house. A lot of very unacceptable and quite shady things. Even with the bank that holds Eric's very first use of his VA benefits. A really misfortunate, yet really huge mistake that we found after the first lawsuit that began earlier this year. Never 'assume' that the bank that holds your mortgage loan and cashing your monthly mortgage payments are reporting those payments to the credit bureaus. Eric found out the hard way. Actually... I found out the hard way for him after realizing that the bank was not reporting his monthly payments that were being made on a monthly basis. All the way back to the very first mortgage payment, November 2016. Only a mere two payments have been shown being reported by the bank whom holds his VA mortgage loan. Not only is this a huge problem, but it is also literally destroying his FICO score. Not good.

After several failed attempts at trying to work with the bank on getting this huge issue resolved. It has instead went absolutely... no where. Even the consumers protection agency has gotten no where with the bank. Several failed attempts at trying to have this resolved without needing to go through legal means. Another lawsuit. Let's face it. This entire home purchase has been a complete nightmare. A huge mess in the making. But there is always a silver lining in EVERYTHING.

On my good days, this gal has been able to study real estate law, among other legal topics that might apply to us at a later date. Eric has also been doing his fair share of educating himself on legal matters. This is the second lawsuit where he will be going Pro Se. No attorney needed as he will be representing himself. We see no reason to pay for an attorney. Especially when we have medical bills and other medical costs that trump hiring any attorney. I am hopeful to be a part of this lawsuit that will be filed tomorrow morning. It's one thing to have dealt with such a mess, hidden lemon gems through out the first year of purchasing our home here in the country. But to have a bank literally refuse to report payments being made on your mortgage loan, is inexcusable. Until they fix the issues with not reporting payments being made. We will not be able to sell our home here in the country. We had no other choice, but to go the legal route. We are hopeful that the assigned judge to our case agrees. The only payments being shown reported, out of an entire year, are two mortgage payments. Where are the other 10 mortgage payments? Who knows?. Crazy isn't it.

I believe in destiny. I also believe in fate. I also very well believe in karma. Both good and bad.

Lessons we have learned over the past year, aren't such a bad thing, if you really look for the silver lining. We have learned a lot and have gained a lot. We have also educated ourselves in topics that otherwise would had never been opened. Legal matters at hand. This evening we took one final look over everything that will be filed tomorrow morning. A huge pot of dark roasted coffee and a few seasonal favorites to hit the spot after a long day.

A BLOGTASTIC tasty treat to share!  Y-U-M-M-Y!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 21, 2017 4:54 AM EST
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November 19, 2017
Embrace Change! :)
Mood:  bright
Now Playing: Day 2875-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Can you believe it?

We are only several weeks away from the start of a new year!

This means a really crazy remainder for the rest of our year. By the looks of our calendar hanging up in the kitchen. It appears that we are going to be mighty busy!

We finally have surgical dates set after our insurance company approved two separate surgeries. It took a bit, but once again we finally have definitive dates. My first surgery is set for the week after Thanksgiving. The second attempt at surgically placing my port will be during the second week of December. In the meantime, my team of specialists have me finishing up a combination of antibiotics while continuing pain management with my new pain specialist. I am aiming for less-is-more with both surgeries when it comes to a smooth road to recovery. More so the first one lined up in order to get to the root (literally) with another bone tumor that was found after labs showed my body fighting a pretty big infection. That infection halted my surgical procedure for the first attempt at a port. This isn't the first bone tumor that has been surgically removed. The very first one was found by accident, via x-ray, while finishing up a long year of dental work. In all reality, it's really not a huge surprise with tumors, once again, rearing their ugly head. It only takes one cancer cell to run wild and for a long enough period of time to find another home within the human body.

With such a small window of opportunity to gain some weight. I have already started to amp things up a bit with my daily nutrition. The best that one can with a limited liquid diet. I don't foresee things to be easy over the next few months. But this gal has proved to be one hell of a fighter! This won't be the first time, nor probably the last to get my game face ON!

There has been so many changes within our lives over the past 12 months. It has been quite a challenge keeping up with everything! But someway, somehow, we continue doing so and doing so with a smile. With that in mind, how fitting is it to share some changes of my very own.

So many different looks that I have embraced over the past year. Crazy how one's life can change that much in a mere year! Hehehehehehe! We may not be able to prevent constant change within our very own lives. But what we can do is welcome change and embrace it.

Totally keeping the red! WINKWINK** 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 21, 2017 3:11 AM EST
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November 18, 2017
As She Sings...
Mood:  cheeky
Now Playing: Day 2874-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What is bold?

Bold is when you run outside in your flip-flops, t-shirt, shorts and winter hat (like a winter hat made all the difference) due to monsoon rain and high winds that literally ripped a huge tarp right off the roof! A tarp that was suppose to be highly secured by the warranty company contractors whom just repaired a section of the roof earlier this week.

Bold is when Eric has to literally run to the garage and get up on the roof with his shorts, t-shirt and gym shoes on. No coat while having to literally wrap the flying tarp around the chimney and then place landscaping rocks around it in order to secure the recent repairs. So...we thought the next round of monsoon rain and high winds were going to hold off a bit. Wrong. I wish I had a video of this mornings crazy roofing event and one huge gray tarp that went flying up in the air like a huge kite! POOF! Almost taking Eric along with it! Hehehehehehe! Sure, we can laugh about it now, along with our clothes that went right into the washing machine after instantly being soaked by the rain.

What a way to start off the weekend! A most memorable Saturday! Hahahaha!

Of course, Mr. BigLOVE didn't move an inch. No way, not even an inch! He was far too busy being comfortable inside his heated house, that he couldn't even make it all the way inside it for a quick afternoon nap. Hehehehehehe! So much for lending his human parents a helping paw or hand....HA! Too darn funny!

This hilarious Saturday didn't stop with mere outdoor events. Oh no! This evening it continued with quite a few indoor chuckles too! Needless to say, I will never make it as a famous makeup artist. HAHAHAHAHA! Why is it so easy to put on your own makeup. Yet so darn impossible to apply it on someone else? Poor Eric became my first and last student in order to try my hand at contouring, blending and eyebrow shaping that were aimed at making him look younger.

As she sings; Don't Cry For Me Argentinaaaaaa~

Good lordie! What a hot mess! Hahahahaha!

So... maybe my first make up application on someone else might be the last. But at least the rest of our evening turned out a whole lot better! One can never go wrong with a little surprise from their sweetie while taking a nap. One can never go wrong with a super dark roast coffee and a great bottle of wine.

A less eventful evening with two of my favorites and a great movie in mind! CHEERS

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 19, 2017 2:00 AM EST
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November 17, 2017
WE Have A Very Special Announcement! :)
Mood:  special
Now Playing: Day 2873-Next GP Chapter... Turning Lemons Into Lemonade :)

 

We have a very special announcement as our little family has officially welcomed this little ball of cuteness!

Introducing.... Babyblue

Honestly, we weren't looking into bringing in another fur child into our family. Losing our beloved Littleblue to such an aggressive cancer was heartbreaking. Not only did we take it extremely hard, but poor Snoreo seemed to not be able to get over the loss of his companion. Snoreo grieved day in and day out. The evenings were the worst for Snoreo as he was so used to Littleblue sleeping next to him on the couch.

We didn't rescue Babyblue. Oh no! Babyblue rescued us as our entire little family is over~the~moon with her cuteness! Her sweet kisses and baby howls are the best! I missed hearing that husky howl that used to wake me up from a deep sleep. Looking up to see Littleblue wagging her tail and staring at me. Those were the days and the most treasured moments that I will never forget. It's been tough without having Littleblue here by our side. But now with this little mini version of Littleblue. It's like she was reincarnated again! There are just far too many similarities to list between Littleblue and Babyblue.

It was just meant to be! Rescuing such a sweet puppy!

I will spare most details of why everyone should think twice about buying from a breeder. Babyblue came from a very hard life as a puppy. No food, no water, a make-shift outdoor area that was overpopulated with other huskies and her siblings. It was a very sad situation. A horrible way to treat such loving huskies. It really made myself and Eric sick to find out how long this so-called, breeder was breeding and then selling huskies with serious birth defects due to such horrific living conditions. It honestly still makes us sick to the very core. This is why I am such a strong advocate about the need to continue cracking down much, much harder on these so-called, breeders.

Babyblue is one of the most sweetest, gentlest husky puppies I have ever had the privilege to rescue and welcome as one of our own. Babyblue has been nothing but a blessing for our entire little family. She has brought so much joy and laughter during times when we really need it the most. Snoreo instantly bonded with Babyblue! There are no words to describe their love and companionship for one another. It's amazing how much we see Littleblue in Babyblue! Almost like seeing double!

Rescued pups come with a very special responsibility. One in which shouldn't be taken lightly. Babyblue has a few birth defects due to poor living conditions and neglect that her mom and siblings experienced while living in cramped outdoor make-shift cage. Babyblue is missing toes that never fully developed. She also suffers from vision problems with her right eye which makes it hard for her to see. But you know what? No matter what... WE love her unconditionally!

We can only hope and pray that Babyblue's parents and the rest of her siblings were also rescued ASAP. Welcomed into their forever homes, safe and sound. To be loved for eternity. What they all so much deserve! Every single rescued fur child on the face of this earth.

This little girl has already brought us so much love, happiness and joy. She is a very special puppy and we are very special fur parents to have her now as part of our little family

Many thanks to PETA and their amazing rescue team!

#Rescue #Adopt

http://husky.rescueme.org/Ohio

http://www.howlatthemoonrescue.com/

http://indyhomesforhuskies.rescuegroups.org/

http://savearescue.org/breed/siberian-husky/

https://www.peta.org/


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
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November 16, 2017
Schedule? What's That?.
Mood:  quizzical
Now Playing: Day 2872-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Talking about tired! I am beat!

There is so much going on at once that it's becoming nearly impossible to keep up with everything. Or more so... to remember everything.

Back to lots of post-it-notes scattered across the kitchen cabinets. Daily reminders on a little bit of everything that needs to be done. Not just with final repairs inside and outside of our house before the cold winter months. But as well with a pending surgery that needs approved by our insurance company among many other things. I also have a taping that was scheduled by a very reputable production company. That taping was suppose to happen last month. Yet everything still remains on hold after needing to endure another unexpected surgery. And of course... another recovery.

The way things are going with all sorts of continued bumps in the road. A little thing called...life. We might end up going straight into another super crazy schedule for next month, December. Right in time for the holidays! Pfffff... Yep, that's life for ya!

I have been missing out on a lot lately while being pulled in a million directions. What I really miss are the walks we shared along the river trails. Not once a day, but twice a day. Sure, we both enjoy watching the fur babies have lots of fun at our local dog park. However this gal needs to keep herself moving! Gravity is the key which I believe helps more so with the pain than prescribed medication and spinal injections. If only I could gain back some energy that even I had this time last year. Winter is usually the time of year when I have the most energy. I'm just not so sure if that statement will ring true for this winter season. All my body seems to be wanting to do lately is sleep. Although my brain still wants to battle with that logic. Pushing myself is most definitely not in my best interest.

With not having too many making Santa's nice list this year. At least holiday shopping will be the easiest for me yet! Our fur children are never picky and always enjoy whatever Santa Paws brings them. Little E is at the age now where gift certificates are the way to go when hoping to bring a smile on a 10 years old face. I remember at that age when wrapped presents were the best gift one could receive on Christmas Eve. Cash and gift certificates were the last thing on a child's wish list. Crazy how times have changed. But the old saying is true, 100 percent! I would much rather have a homemade gift than something bought from a store. It just means so much more! Eric said, "Ditto for him! Bring on the baked goods!" Hehehehehehe!

I better stop here with talking about Christmas. We still have yet to even celebrate Thanksgiving next week. This Thanksgiving we plan on doing our best to stick to new traditions with our little family. With Eric working and my surgery awaiting to have a final scheduled date. We have to wait until later this week before knowing if we can celebrate Thanksgiving or spend time relaxing while I go through another recovery. Time will only tell. Another watch, wait and see.

Tomorrow will be such a fun and exciting blog as I make an official announcement to share with everyone!

Until then...zzzzzzz...


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
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November 15, 2017
Knowledge Is... Bliss~
Mood:  bright
Now Playing: Day 2871-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Good day. Bad day. Bad day. Good day.

Some times  it feels as if they all blend together as one. This is what happens after a good pie!

POOF! Hahahahaha!

One couldn't tell that Eric really liked sweet potato pie. Nah. Not in the least bit.

Today I assumed (so wrong to assume anything in life) that I would have a new specialty oncologist here in the country. This way I wouldn't have to continue tracking over state lines with my other oncologist. At least occasionally. But one should never assume anything in life. Just like assuming that everything would turn out okay with a new specialist that is much closer to our home here in the country. That appointment went literally no where as I was referred to the same place where my other team of specialists are referring me. Back to the Cleveland Clinic.

How far of a drive would that now be since moving out here in the country. Here in Indiana.... Oh... only a 4 hour and 18 minute drive?. Well then, sign us on up! Said no one, ever.

I might not be much when it comes to compromising such as with another even longer drive back up to the Cleveland Clinic. Once was enough with all the bumps in the road that only made matters worse, internally. Instead, I decided to do a far different compromise and take my specialists up on the offer to have my most recent physician notes and medical reports faxed up to the team at the Cleveland Clinic. All within the hopes of helping my team of specialists down here back across state lines in the city. And lets not forget, a new team member now here in the country. But even so, that oncologist appointment today didn't go so well as planned. They felt that the level of expertise needed for my care way exceeds the level of care that they could offer me. One even commented to Eric that my unique case is like something that came right out of the New England Medical Journal. A rare condition that needs extremely high expertise medical care.

Not only have I officially come full circle with my tumors since ending experimental oncology treatments. But now, as of most recently, I am once again dealing with two separate ovaries that have woken up from a deep radiation therapy sleep. One ovary that miraculously grew back and is now it's own entity. Even as much as ovulating on a different cycle than my other ovary. Need not mention the hormone levels that are being fed to already extremely large ovarian tumors. Ovarian cancer is one of the most difficult female cancers to treat, whether alone to even cure. I can't possibly see me enduring a drive up to Cleveland Clinic twice a month. Even with Eric driving and staying overnight at one of their connected hotels for free. It's just not possible nor feasible for me anymore. That window of opportunity has sadly already passed by me.

How in the world did my body become such a huge mess, internally. It is beyond me. But what I have learned to do, is to put all of my mental energy into far more productive things.

The truth will set you free. As I once again listened to my gut instincts. Myself and Eric both agree when it comes to having closure with family. The latest denied, dismissed court filings are very puzzling. I feel as if with some family members. I am getting mixed information. I sure hope it doesn't end up with mixed information that turns out to be mere lying. This afternoon, I began the process of finding answers. Seeking final closure on some quite bizarre filings. I should have all transcripts within the next few weeks. Once again, all I can hope and pray is that we don't end up reading about more lying. The truth may set you free. But I tend to believe more so on gut instincts. We even agree to so much as to give a few the chance to come clean with anything that hasn't been truthfully told to us with both court filings. But as such, they must had decided to plead the fifth. "Mum," was the response for the remainder of the day. Time will only tell who is finally being honest and who is once again, lying. I anticipate for a huge shock once we are finally able to read all court transcripts regarding both filings. Knowledge is... bliss~

With rain, rain and more rain that continued for the remainder of the day here in the country. I opted to begin my new pain medication a bit early. Eric... he took on the chore of at-home pet grooming.

These two! Too darn CUTE! Hehehehehehe!

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 16, 2017 12:39 AM EST
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