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The Road Before & After Surgery
March 24, 2017
What REALLY Stresses Me OUT! :(
Mood:  sad
Now Playing: Day 2636-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Losing a beloved fur child is heartbreaking.

Coming to grips with another cancer diagnosis is not only sad and depressing, but downright FRUSTRATING!

This is what REALLY stresses me out... CANCER.

Cuddles kitty still seems to be living life to the fullest. At a soon-to-be 19 years young, she still never seizes to amaze us nor our veterinarian staff. I credit such a long and happy kitty life to how much we love and care for our super sweet elder kitty. No matter how much her needs and demands might change as she continues aging gracefully. WE will always love her no matter what and do what we must to make sure she lives a super happy kitty life! Same goes for all of our beloved fur children. Even Miss DaisyMae and SnugglyDoo guinea piggy's who will be turning a year old this weekend. There are times though when no matter how much we care and love our beloved fur kids, illness can strike out of nowhere. Of all evils that be... Cancer.

Littleblue was recently diagnosed with mammary cancer only a mere 3 months ago. Sadly and shockingly, we found out today that Littleblue's cancer has become very aggressive. As parents of fur children, same as with parents of human children. I could tell something just wasn't quite right with Littleblue. Lately her energy level has been much lower than just over the past few weeks. Littleblue has also been very guarded with her tumor and a bit more irritable. Fatigue and excessive sleeping is normal when suffering from cancer. It is expected, but what no one can expect nor predict is the progression of the disease within itself. If the cancer will slowly progress or quickly start to spread to other areas of the body.

Today's veterinarian appointment was the most important one yet with regards to finally coming to realize Littleblue's prognosis.  We most definitely did not expect it to be such a grim one. What we also did not expect to hear was that her cancer has already began to progress as it continues to spread to other areas of her body. Littleblue will be 10 years young within only a few months. Today's very sad and depressing news is another grim reminder of just how much cancer has taken front and center stage in our lives. All of our lives. Of all evils that be... Cancer is the most evil of them all and the most difficult to beat. If even possible to defy and overcome such slim odds. 

Littleblue's veterinarian appointment and heartbreaking prognosis isn't about making her suffer. It is about what is BEST for our beloved Littleblue. It isn't about prolonging a life of suffering just for the sole sake of her human parents. It is about allowing Littleblue to continue the remainder of her life as comfortable as possible. I would 100% do the same for human children of my own. To me, there is no difference in how I would treat a fur child or a human child. My heart still beats the same. We have come to a crossroad where there is no turning back. There are no surgical options for Littleblue due to the complexity of her cancer and the affects it is having on her lungs. Our veterinarians were successfully able to stabilize her breathing issues with medication, but it isn't a cure by any means. Her lungs never got any better, just stabilized for now by daily medication. I assume we were a bit naive in believing that there could possibly be some sort of surgical option, but today's new x-rays and blood work show otherwise as we now come to another realization. The inevitable loss of another one of our beloved fur children. 

We were briefed on what to anticipate with Littleblue's cancer within the months ahead... It won't be easy, but I vow to make sure that Littleblue's remaining time with us is the most comfortable and happiest as possible. I have done so for all of our beloved fur children. I wouldn't have it any other way as they have always been there for me through out my journey. I vow to remain just as dedicated for them through out their own journey. Sadly, another cancer journey.

What makes me the most stressed? Today's news and grim reminder of another cancer diagnosis and sad prognosis. This is what makes me stressed and very depressed, but WE will carry on! Life will not stop. Not even for our beloved fur children, our unconditionally  loving pets. 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 26, 2017 11:24 PM EDT
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March 23, 2017
The ROAD Before & AFTER Surgery
Mood:  lucky
Now Playing: Day 2635-Next GP Chapter... Turning Lemons Into Lemonade :)

 

The Road Before & After Surgery

How fitting for a blog title! My life has literally changed in so many ways and more directions that I can even remember, but today it has become official...

We are on the move to safer ground!

This mornings sunrise walk along the river trails was a perfect time to reflect on just how far we have come in a mere 5 crazy months. I honestly thought our house of hidden lemon gems would end up killing us before we could find a temporary home, but the good Lord wouldn't have and neither would those who watch over us from heaven. Today? Today was a blessing in disguise, because some how, some way, things in life end up happening at their own pace. On their own terms. Sometimes... Things are just meant to be.

What an absolutely beautiful morning to walk along the river trails with the suns rays reflecting off the water. It was a very peaceful, quiet walk as we continue making plans on a far more successful move than just a mere 5 months ago. We learned a great deal from our last move! With those mistakes, trials and errors. I believe that this move will be a lot smoother and far less stressful as we head 90 minutes further into the country. Our current little, lazy, river town might be country, but where we are heading to next is REALLY COUNTRY! YEE~HAW!!!

We just couldn't see literally throwing our money away nor handing it to a distrustful private property owner. I have seen enough lying, deceit and sneakiness from not only private property owners, but also property rental companies. This is where keeping an OCD eye on our credit has literally saved US! We won't be renting, sorry private property owners and rental companies. You won't be seeing a dime from us. Never, ever. Time to get our big adult britches on!

Time to head out to the country.... Where peace and quiet is calling our name...

I will miss all of the wildlife that I have fattened up over the past 5 months. Heeheeheehee! Even the very lucky and super rare Albino Squirrel who happened to show up on a very lucky morning, St. Patrick's Day. I tend to believe that the lucky little white squirrel blessed us that morning, as good things come to those who wait... I will most definitely miss all of the little things that brought so much joy, happiness, smiles and even laughter in our little, lazy, river town. Yes! Even in a house that should had never been sold in the first place. I call those, "Silver Linings." We all have them in our lives. You just have to be willing to believe.

It took months, but we are excited to announce that our plan is now in full steam ahead! We will soon be on the road again...

The Road Before & After Surgery


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 24, 2017 8:13 AM EDT
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March 22, 2017
An Apple A Day...
Mood:  bright
Now Playing: Day 2634-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's a sunshine day~ No rain!

An early morning "Rise N' Shine" kind of day! Time to head out in hopes of switching out a few things on our new home. Temporary, maybe not the most ideal, but tis a home! A safer home that is also surrounded by a huge wildlife preserve.

How ironic! Could it be the most perfect spot for such animal lovers like ourselves?... YOU BETCHA!

I can't believe that I am actually saying it, but I am honestly looking forward to our next move! Unfortunately, it won't be Nevada, not just yet, but heading out west for our final and permanent destination is still in the works. Right now we have court proceedings that will require us to stay a bit nearby in hopes of settling things out much sooner, than later. Today we took another step in the right direction! Thank YOU for all who have been involved in such short notice. Thank the good Lord for framily. Friends who are family. XOXOXO

Grandma Cuddles kitty will be turning 19 years young in a month. With age comes difficulty in keeping up on daily nutrition. Cuddles is slowly getting senile so we had to come up with an alternate way to feed her, nothing that involves needles. While venturing out over the weekend, we noticed a new senior cat food that is mostly chicken broth with tiny pieces of chicken. At $1.99 for a very small pouch of food, I decided to try something new for Cuddles. A far better way for her to still be able to eat on her own without being fed through a syringe or IV. WHA~LA! I have now mastered a new and far more reasonable way for Cuddles to still enjoy a variety of canned foods, but at a far easier and healthier way for her to enjoy them!

One high powered blender, warm spring water, low sodium chicken broth and a can of her favorite cat food. We weren't sure if Cuddles would like the new way to enjoy her food, puréed, but she actually LOVES IT! YAYYYY! Make that 'THEY' all love it! Mittens and Beary kitty too! Not only will we be saving a lot of money on can food that she could barely chew or eat, but now we have a far happier and healthier Grandma Cuddles! YAYYYY!

We have also made a change when it comes to cooking our own food. Since our microwave finally saw the light, off to microwave heaven. Heeheeheehee! We decided to take some great advice from my dietician and opt for a toaster oven. For those who remember their parents or grandparents having one of these cooking beauties during the holidays while tossing in a few appetizers. The new toaster ovens are even better and far more energy efficient! They aren't just for toasting anymore! The new updated version not only toasts like a pro, but cooks pretty much anything too! Of course, I need to reintroduce myself a second time around to the new toaster oven settings after my first failed attempt to cook some hamburgers and toast some garlic bread for Eric. I couldn't figure out why the hamburgers were hardly cooking?. Hmmmm?... That was until I accidently put them on broil, walked away for a mere few minutes and set off all of our smoke alarms in the house. HAHAHAHA! First time for everything and that includes burning the first round of garlic bread. HA! Microwaves have been known for decades to not be healthy for cancer patients. The microwave, radio waves over long periods of time show to be unhealthy for anyone, especially those suffering from long term health conditions. My dietician suggested last year to toss our microwave and opt for a much healthier way to heat and cook our food. Welcome to the toasting way of life!

As for a little friend of mine over in Illinois. Yes, see I was right! Too much caffeinated coffee not only dries you out, due to absorbing water within the body, but it also ages you. I expect a few text messages tomorrow morning once he reads this blog entry while sipping on that darn grande Starb*cks! Heeheeheehee! Join me in a far healthier way of life by toasting, juicing, pureeing and drinking lots of wellness water! Healthy=Happy

"Coffee is highly acidic. High doses of caffeinated coffee mess with your hormones. On top of that, it acts like a diuretic, dehydrating your body.

Cutting back on caffeinated coffee helps not only your body to rehydrate, but it helps keep your skin glowing and hair shiny. Too much caffeine not only dehydrates the body, but advances the aging process."

Or... You can opt like myself by staying away from large crowds, smoking, drinking and just liquid diet with some of the most healthiest ingredients you can find! That would make me pretty much like a vampire of some sorts wouldn't it?. Heeheeheehee! A far less aging one, but you will never see me complain. Less unhealthy microwave-radio waves, less dehydrating caffeinated coffee and far more healthier options. Not just for ourselves, but for our beloved fur children too!

Like I always say... If you truly want to be happy in life...

LESS is MORE!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 23, 2017 11:43 AM EDT
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March 21, 2017
A Message On A Balloon... A Very Special Balloon :)
Mood:  special
Now Playing: Day 2633-Next GP Chapter... Turning Lemons Into Lemonade :)

 

There is a special place within the country. A place within our little, lazy, quiet, river town. A small area that runs along side the river trails.

How do I know? A little birdy told me so!

For some reason, this area along the river trails calls me and some how... It tends to always know that I will answer it's urgent beck and call.

We finally had a some-what dry day to enjoy a nice evening walk along the river trails. Snoreo and Littleblue were extra jumpy since having to stay indoors over the past 24 hours due to all the rain. They have yet to really enjoy our fenced in backyard due to the condition of the soil that surrounds our property. Unstable and definitely unsafe. The soil is also very soft, like sand. When it rains, even a little bit of rain, it's super muddy. Tis better safe, when dry!

7pm and out the door for a nice evening walk along the river trails. A time to reflect on the day and life in general. However, I have come to quickly realize that I never know what to expect when walking through a particular area of the river trails. I try to describe the feeling of good energy, even... special energy to Eric, but it's honestly very hard to explain to someone who doesn't have the same gift. A gift that started at a very young age. A gift from heaven. The same section of river trails was where I sadly had to watch the life of a neighbors beloved elderly cat lose his life. As Mr. Chester Orangie Angel remains at peace, surrounded by 18 acres of God's country, in our backyard, buried safe, sound and with one of Mitten's toys cradled in his paw. The same special area, along the river trails, had a very special calling this evening. I don't know why nor do I know how, but the special and very unexpected in life always tends to find me.

It knows that I will answer it's beck and call. This evening... A special message that needed a little bit of help reaching heaven.

As we ironically walked through the exact same area with the exact same strong energy, a special message awaited to be saved. As a long white string quickly caught my eye, way up and twisted around an old walking trail light post. Eric didn't see it, but I sure saw it and I most definitely felt the instant pull by the unexplained energy! I looked up and there it was! A message. A very special message on a balloon. As I told Eric to grab some sort of long stick with an end to it, he looked at me puzzled. I said, "See that balloon? It needs rescued because it has a message for me that needs to be delivered!" Eric was in complete shock. Not only did he not see the balloon, but he had no idea how I knew there was a message on it since it was far too high up on the 20ft light post to see it. Especially in the evening hours, when it was almost dark.

These are the times that I even have a hard time explaining, but I just know, it's a gift that I have been blessed with as a message anxiously awaited to be saved, along with the very special balloon.

As I took over Snoreo and Littleblue's leash. Eric did his best jump possible with a long wooded stick and a perfect claw like limb on the end. We both were shocked that he actually was able to wrap the stick around the white string on the very first try! Heeheeheehee! How crazy is that?!! As I stood with the balloon in my hand. There was an overwhelming sense of peace. Even Eric felt it as I read the message that didn't make it back home to heaven. Not just yet, anyways...

"Happy Birthday Daddy

Hope your day was as awesome as you.

I love you & miss you more & more every day

you always

Your baby girl

 

Happy birthday grandpa

I Love you and Miss you

Im glad to know you will be

watching over us I Love You

sooo much

forever & always

your grandson

Aaron"

It was a very sobering walk back to our car as the message on the balloon that got stuck along the way, had yet to reach it's final destination. To the Daddy and Grandpa that is loved more than most on the face of this earth will ever know. On a very special Birthday. At that moment, I knew my beck and call. This message on the beautiful, colorful birthday balloon had someone anxiously awaiting to read it. So this evening, after the world fell asleep and the energy around me began to change, I used my gift to connect with their loved one.

The pictures on this blog were taken with my cell phone. A plain, normal cell phone. Nothing fancy is ever needed. There is nothing altered or changed. I don't expect everyone to believe, that is, unless you too share a special gift. A way to connect with those back home in heaven.

I don't know how I know. I just know when the time is right as the energy begins to thicken in the air.

As I placed the balloon with the message on top of our fireplace (photos clearly show fireplace not turned on) and a few pieces of equipment around it. The energy instantly changed and so did the air that surrounded me as I began to aim the cameras towards the balloon and welcomed the message to be read for their loved one. These are the back-to-back images that were captured as clearly someone was waiting. I could only stand there in sheer disbelief to the point, of even being a bit taken back myself at the image walking up to the fireplace, in front of the balloon. As if... NAH! Let's face it! The message that some how got stuck on the tall light post, along the special area of the river trails, finally got delivered. I answered it's beck and call, but in all realty. Their loved one answered it's beck and call in hopes of receiving their message on a very special day.

A heart felt, full of love that runs deeper than any river, message that was finally read by their loved one. A Happy Birthday Daddy, Happy Birthday Grandpa, message on a very special balloon~

As that special balloon, with a very special message remains safely in my care. I will be placing the message on a new balloon this coming weekend and send it back off to the place where love has no boundaries. Not even of this earth.

Heaven

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 22, 2017 8:54 AM EDT
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March 20, 2017
TIME TO RESCUE ANOTHER TURTLE! :)
Mood:  special
Now Playing: Day 2632-Next GP Chapter... Turning Lemons Into Lemonade :)

 

 

Another day...  Another treatment...

No complaints though, only that they tend to be scheduled way too bright and early! I already have one heck of a time trying to stay on some sort of sleep schedule. HA! What's that?

Unfortunately, we got hit with another huge storm system that brought with it WAY too much rain. Rain that our sinking house did not need which made the scary sounds from a leaning and pulling stone chimney top that much scarier! EEEEE~YIKES!! No worries, because our urgent vacating game plan is already in the works! We were hopeful that this time would never come, but soon enough it will be back on the road with our fur children in tow. Did I just pull another rhyme or what?. Hahahahaha!

I remember as a kid my Dad stopping on the middle of the road out of no where! He would do a quick illegal U-turn, look in the backseat at us kids and say, "All be darn! Hold on for a minute. I see a turtle out on the road!" Those were the good ole days. One just never knew what we were stopping for or what would be rescued next, but by golly! My Dad made sure it was rescued! Same with a raccoon that once got stuck in our bird feeder. Talking about a tricky rescue with a thick glass enclosure and one very scared raccoon stuck inside after gorging himself a few extra pounds. Heeheeheehee! I guess you can say, that the turtle rescue has continued onto the next generation. Me.

On our way up to the hospital. In the middle of the road. Sure enough! There was a poor little box turtle. How in the world did he get there, out in the middle of a busy road? Who knows, but OFF to turtle RESCUE! Heeheeheehee! As I quickly did a huge U-turn, illegal as heck in the country, I looked at Eric and said, "Hold on! Be back in a second! Gotta rescue the turtle!" Eric didn't even have a chance to react. He was still shocked that I pulled an illegal U-turn and then parked on the side of the shoulder. Another illegal stunt, but who cares when a turtle is in need of being rescued! Heeheeheehee!

Of course, since we were on our way to the hospital for my next round of treatments, we had to do a make-shift temporary bed for the little box turtle. While I was in treatment, Mr. Turtle was snoozing the morning hours away, tucked nice and snug in Snoreo and Littleblue's back seat blanket. NO way! I wasn't going to put him anywhere, but where I know he would be safe and happy. A place where he could eat lots of bugs, leaves, twigs and with a small creek so he could have lots of water to drink.

Sounds like a familiar place... Hmmmm....

18-acres that surrounds the wooded hillside. Right behind our fence on far more safer and stable ground, we welcomed our first rescued box turtle. Eric built a nice make-shift hide out, just until Mr. Turtle got comfortable enough to explore his new 18-acre wooded home.

What a great way to start the beginning of spring! Another one of God's creatures rescued! Now safe and sound.

Isn't it crazy how life repeats itself? One turtle rescue generation after another and without one single U-turn violation, illegal shoulder parking ticket!

*WINKWINK*


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 22, 2017 7:15 AM EDT
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March 19, 2017
Another Round Of Things That Make You Go... HMMMM?....
Mood:  d'oh
Now Playing: Day 2631-Next GP Chapter... Turning Lemons Into Lemonade :)

 

 

Talking about a frightening sound that woke me up from a very deep sleep!

No need to heed the warning... HEAR the WARNING!

The warning of something next to me as I attempted to catch up on some serious sleep. Only a few hours later after having to call my dentist around 3am due to severe pain, burning and white ulcers through out my entire mouth. Mostly around my new dental prosthesis. Not good.

Sure, I was warned. We all knew of the chances in which my body might reject what I have dreamed in accomplishing. A new smile. So... At 3am I had to call my dental group and speak to the lead dentist, Dr. Brown so we could go over what was happening which I learned is a reaction my body is having to the dental prosthesis. Sadly, it happens. Unfortunately, it is happening to me. Luckily we took some photos earlier in the day of the strange white ulcers that started appearing around the dental prosthesis. The sore throat, burning and pain only got worse through out the night and into the early morning hours. After reviewing photos and going over my symptoms over the phone. I was told to take the prosthesis out and not put it back in until they see me early next week. Once again, back on another round of antibiotics due to fear of complications with my current immunotherapy treatment. I am pretty bummed out, that things happened so quickly with my body rejecting the dental prosthesis. What I thought would be my permanent new smile, but things like this do happen. No reason to let it continue to bring me down. I can't change what is not within my power. I will let my dental group handle things from here...

What myself and Eric really need to be concerned with right now is the sound below the ground. Or... As of this morning. The sounds coming from the other side of the couch. Where of course, I sleep.

We haven't really heard any foundation settling lately. Not since the Duke Energy tree butchering project was finally completed. BAH! We really hoped, along with the engineers and insurance company, that the weight of the trees being released would also relieve some pressure around our foundation. No one can predict what the foundation will do next, but this morning was definitely not a very good sound, nor a very good sign. A sign of things still yet to come.

We didn't get much sleep this morning. Not until we had to make our way back up to our local home improvement store due to finding a few other hidden lemon gems left by the prior owners. At least we have narrowed down two further pre-existing issues that are now leaving visual evidence around the exterior of our foundation and interior perimeter of our garage. The garage attached to the dining room and living room chimney. EEEEE~YIKES! Our chimney has three different sections which now makes things a lot more serious. The exterior pipe to our furnace runs through this unstable chimney that is now making sounds of soon to be a fatal collapse. We have a block foundation, stone exterior and a complete after-thought stone chimney MISTAKE which is now shifting the house in another direction. Add pre-existing issues due to seller negligence and you have a death trap waiting to happen on an entirely different death trap level.

Eric had to get on top of the roof this morning, which I wouldn't trust even a leaf to land on, in order to place a large tarp around the chimney that is now cracking, seperating and pulling. With rain in the forecast for tomorrow afternoon, we can't risk a thing. Not even one single raindrop. The contractor dash will be on come 8am, Monday morning as we attempt to quickly find someone to come out and evaluate some very seriously scary issues with the stone fireplace and stone chimney that is now sitting unstable on top of our roof. Below it? The air conditioner. We also have a garage door that would had only taken Eric a mere few hours to replace due to our other garage door suffering damage from the unstable house. That IS... If the prior owners did not do such a half you-know-what job with the original garage door and even laid live wires for the garage door opener against the sensors. BRAVO! BRAVO! Said, no one, ever.

Do trust, just because we attempted to go above, beyond and give our best Boy Scout and Girl Scout try, did we ever NOT have a back-up plan in case something like this was to happen. Again. We actually had two back-up plans in place in case of a quick vacate and as of this evening. It has come down to one single back up plan. It isn't what we would had envisioned or most definitely deserve due to negligence on the prior owners, sellers of these hidden lemon gems, but things must now proceed at full steam ahead. That is before this house comes crashing down on us with thousands upon thousands of pounds of stones, full steam down upon us, a-head! Our heads. 

We had hoped for a much more laid back upcoming week, but life happens. It isn't what happens to you, but how you handle and respond to what is happening. I am a hell of a lot wiser by trial, errors and even tribulations. Time to be brave and embrace all the changes ahead with the Good Lord by our side!

Ready or not! P.O. Box here we COME!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 20, 2017 7:22 AM EDT
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March 18, 2017
13 Years Later.............
Mood:  lucky
Now Playing: Day 2630-Next GP Chapter... Turning Lemons Into Lemonade :)
 
 
 
The week of St. Patrick's Day is not only a very lucky week, but it is also the time of year to reflect on another lucky accomplishment.
 
Today, March 18th, 2017 marks 13 years since my initial Idiopathic Gastroparesis diagnosis.
 
Tis been a very, VERY long time!
 
I never went through the experimental pacemaker surgery nor did I opt for any type of GI organ transplant. My specialists always kept me away from any type of feeding tubes and other artificial means of daily nutrition. What we all do agree on is one thing... LESS is truly MORE!
 
Instead of opting for any type of experimental medical options that are offered to Gastroparesis patients. I always remained diligent to go against the grain. Always up for being the GP guinea pig whether that meant a new prescription supplemental shake, new organic drinks and even opting for advice from a few Amish doctors that my dieticians keep in touch with up north. Everything, through it all, has been trial and error. Even 13 years later............. Everything is still trial and error. Some days are good. Other days are bad. Isn't that life in a nutshell? We have to learn to take the good with the bad and continue life to the best of our ability.
 
I have learned that LESS not only means MORE, but I have also spared my body surgical mutilation from experimental GI, Gastroparesis treatments. I might be a dietary GP guinea pig, but I sure won't be an experimental GP surgical guinea pig. Amen! Less medications, less surgeries, less solid food-mainly liquids, LESS stress and far more reasons to smile and be happy in life IS MORE! I have no regrets with any of my decisions over the past 13 years when it came to desperately managing such a poorly researched and still to this very day, misunderstood GI condition. Gastroparesis.
 
I am more proud than ever to say, that I have yet to endure any further Drano aka Hell-In-A-Jug intestinal treatments. I still must rely on injections to help mimic an obsolete GI tract, but over time, it has gotten easier. With each treatment and each injection, it has gotten a lot easier to tolerate. Remaining on a full liquid diet isn't easy nor is it for those who don't have some serious willpower, but for me, it works!
 
Gastroparesis doesn't define you. Cancer doesn't define you nor any other illness. It only makes you STRONGER! Suffering is only part of the journey. What would life be without the struggles and lessons learned that come out of suffering? The good Lord will always make sure that you never walk alone. Even days as if you feel you are alone. YOU are not alone. YOU will never be alone.

 
To the Father and Son medical team back in Ohio. My 4 year prognosis, based off of your determination of the seriousness of my Gastroparesis, as well from years working with other Gastroparesis patients at one of the most well known clinics in the great USA, Cleveland clinic... 9 years later.
I am still here. I have survived!
 
#DETERMINED #BLESSED #LUCKY

  "Survivorship means you are alive to advocate for research, to help those who need help, and to gain a better perspective on what life is really about – loving and being loved, giving and sharing.

 
WE are all survivors from the first day of our diagnosis and will each have a unique walk down the medical journey. However, we will all meet challenges, successes and failures that have been met and dealt with before us and will be met and dealt with again after us.
 
Each and every one of us have a responsibility to leave behind whatever knowledge and life experiences that will benefit those who walk the path after us."
 
Kimberly-Founder
Gastroparesis Awareness Campaign
www.gastroparesisawareness.com

 

Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 20, 2017 6:26 AM EDT
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March 17, 2017
HAPPY ST. PATRICK'S DAY! :)
Mood:  lucky
Now Playing: Day 2629-Next GP Chapter... Turning Lemons Into Lemonade :)

 

"HAPUS DIWRNOD  SAN PADRIQ!"

That's HAPPY ST. PATRICK'S DAY in Welsh as I finally was able to connect with a 99.9% DNA match, first cousin this week. He actually lives with his fiancé on Caldey Island, Pembrokeshire. The island goes back over 1500 years ago and is considered one of the Holy Islands of Wales. Talking about SUPER EXCITED to finally connect with a first cousin who shares the same grandparents! Our communication will take some time since they speak Welsh, not English, but the first correspondence has most definitely been exciting!!

There is so much to be thankful for on this very lucky St. Patrick's Day! Instead of becoming one with overly intoxicated crowds, thanks but no thanks, we celebrated in our own unique way. At home and far away from the large festive crowds due to various reasons, not just those intoxicated. We were all once part of those crazy beer drinking crowds back in the day. Heeheeheehee! Talking about the look on Eric's face as festive Irish music was playing on our Comcast music channel as I reached for his hands to dance a few Irish steps! Even Snoreo got into the festive music or more so because we both were laughing so loudly that he also got excited! Heeheeheehee! It was too funny watching Snoreo attempt jumping up while we danced a little Irish Jig and everything else crazy in between! Celebrating all that is good, green and LUCKY!  

Of course, we can't forget wearing of the green and cooking a little something special for St. Patrick's Day which consisted of homemade turkey chili and stuffed peppers. As for myself... A Cocofusion, Molokai Coconut drink and pureed vegetable soup. TASTY! Eric's homemade chili... SUPER SPICY! We like to not only feel lucky, but eat mighty brave on St. Patrick's Day! HA! I miss all the cooking that I used to do back in Ohio, so why not carry on the cooking tradition today? St. Paddy's Day!

It was not only a day to celebrate all that we have been blessed with in our lives, but also to celebrate the love for one another and our little family. Regardless of our ups and downs, we continue to only grow stronger. Our relationship is truly a-one-of-a-kind and I wouldn't have it any other way. We have overcome and persevered time and time again. No matter what life may through our way, we will always remain blessed and thankful on this very LUCKY day!

OH yes... We couldn't end this blog without sharing some fun, smiles and lots of laughter on this happy St. Patrick's Day!

Live-LOVE-LaughCHEERS~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 19, 2017 6:56 AM EDT
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March 16, 2017
Over 12,000 Reasons To SMILE!!!!!! :)
Mood:  lucky
Now Playing: Day 2628-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today was meant to be!

Today was the start of a very LUCKY ST. PATRICK'S DAY weekend!

I was scheduled in hopes of once again, realizing my smile yesterday evening. I am always the last appointment of the evening with regards to needing to stay as far away from the public as possible with continued immunotherapy treatment. What was suppose to be a long-time-coming, a year coming in hopes of smiling again, didn't turn out as planned. Yesterday's appointment had to be cancelled due to my body making the decision of not realizing a dream. Not just yet. Dental appointment... Cancelled.

If I was a Jeanie things would had gone as planned, but yet once again, I can not predict what my body will do next. Day to day, hour to hour, sometimes even minute to minute. If I am given a good day. A clearance to GO! This gal is ON IT! A night and morning with cold sweats, feeling mentally confused due to low body temperature, meant having to stay home and allow my body urgent rest. This is what happens when your immune system becomes depleted. Your bodies internal thermostat stops working and things such as a low body temperature can occur without much, if any type of warning. Dealing with cold sweats and the mental confusion that comes with it is very new to me. Its quite scary, but the worst you can do is to panic. I tend to just go with the flow and listen to what my body is telling me.

Yesterday... Rest.

Today? This gal IS ON IT!

One phone call to my dental teams office and a green light to GO with the suns rays shining down upon me while driving on the open road. I had one thing on my mind. I was determined as ever to finally begin the end of my dental journey. A very long and extremely pricey dental journey, but worth all the pain and a very long wait! I have so many reasons to smile and FINALLY... FINALLY I can do so without covering my mouth and feeling embarrassed of what attempted to overcome me. Why was I ever embarrassed over something that clearly isn't my fault? I don't know, because no one and I mean, NO ONE asks to be sick. I have done my best rolling with the punches. All the ins, outs, ups and downs. Here I am, on the road, in hopes of realizing a long-time-coming dream of mine!

To finally have the most normal looking as possible, ~SMILE~

Did I make it to my dental teams office? You bet I did! I smiled all the way through the front doors, into the famous dental chair, room 2 and through even more unexpected dental work. I smiled because I made it! I had come to realize a dream and I be damn if it was going to be taken away from me. Not this time. No way! If anyone has any type of prosthesis, then you will easily understand what I mean by saying, that you can only hope that your body will accept the prosthesis. The other part is that no one knows, not even the treating doctor or dentist, if your body will accept the foreign object. The prosthesis. As I was given an introduction, education on the newest material in prosthetic teeth and prosthetic gums to replace what tumors have taken away from me. I was also told that sometimes, the body will not accept the prosthesis. It is a learning process for not just the patient, but as well the doctors and dentists. Still... I remain hopeful.

New treatments are taking a slight toll that tends to always show through my gums and teeth. I still have another biopsy and three more dental treatments left to go after they uncovered some new issues, but the HECK with all of that news! Guess what I ended up leaving with this evening?...

A SMILE! MY NEW SMILE!

It might not be the smile I was born with and there is still another part of the prosthesis that needs to be finished by the lab, but it's my smile. I have decided to share part of my smile with everyone. I am no longer ashamed nor embarrassed. I have learned by a great lesson of pain and suffering that we are only as happy and comfortable with ourselves as WE allow. Not the person next to me, not the neighbors, not Tommy, his wife or his kids at the local store nor anyone else. Who are we to judge a story that we may not understand, whether alone, may not even know. It's my smile and I am darn proud of it! I am beyond PROUD OF ME! I made it through a very long, years worth, extremely expensive and more painful than words can describe, dental journey. I made it and that within itself is nothing but, POWERFUL!

Don't like selfies? Well, I am here to say, GET READY! I have a lot more selfies and over 12,000 reasons to SMILE today, tomorrow and every single day that the good Lord gives me!

~MY NEW  SMILE~

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 18, 2017 8:34 AM EDT
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March 15, 2017
RELIEF!
Mood:  lucky
Now Playing: Day 2627-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today would had been a great day to just take it easy!

R-E-L-A-X...

However, we have a lot of visitors scheduled through out the day. Today.

RELIEF!

We had absolutely no luck on finding a temporary rental property so this home can go through the proper legal channels. Litigation. Yes, it would had been 'ideal' to get out of dodge in order to allow for the bank, insurance company and other parties to proceed full steam ahead on a property that should had never been sold or listed on the open market in the first place. Just when we think we have seen it all in this new era, day and age way of renting homes via private sellers or rental companies. TRUMPED again! This time it was after a little slip up by another private owner with regards to charging potential tenants, those interested in their rental properties a $40.00 per applicant in each household fee for supposedly doing a background check, etc, etc, etc. The problem was that the private owner wasn't collecting fees for background checks, but instead was pocketing as much money as possible by those whom were interested in their rental properties. We accidently got wind of just how sneaky the individual was being with literally taking application money, yet was never renting the properties, only pocketing the $40.00 fee per applicant, per each individual in the potential tenants household. One call to the wrong phone with a voicemail letting the correct individual know who they should had called in the first place, that the money for the down payment wouldn't be received until they cashed a few other applicant checks. Down payment for a new vehicle which had nothing to do with the rentals. It was for his wife.

Talking about the wrong number! BAH!

It was another rude awakening for myself and Eric. You should be able to trust those who are listing their properties. Once again, another reason why we had to sit down and really put everything out on the table. The ideal situation would be to vacate our lemon home that was sold to us late October. Less than 6 months ago. That would had been 'ideal' in a trust worthy day and age, but sadly, you can't trust folks. Not many folks in this day and age. Sad, disturbing, but true. Eric looked at me after listening to the voicemail on my phone and said, "How many other private owners or these so-called rental companies are doing the exact same thing as this person? How can you trust that your application fee is going towards what they are telling you? So called, background checks are actually just extra money in their pockets. WOW! Who regulates these owners and companies?"

Great questions... No answers.

Unfortunately, we are not alone. It seems to be the scamming norm anymore when seeking a temporary rental home. Something that we just can't trust anymore. Of course, there is a silver lining in this entire situation. There is ALWAYS a silver lining!

Last weeks unforeseen storms, large hail and 70-80 mph winds took a toll on quite a few homes in our neighborhood. Since we live up on a country hillside, with open areas between houses, it made for a great disaster that was bound to happen! We experienced flooding in our basement, both upstairs and downstairs garage, fireplace, roof, windows and other areas of a home that was already dealing with pre-existing issues. Thanks to the prior home owners! I need not get into continuing to cry over spilt milk, but the nasty storms took their toll on our home and quite a few other homes through out the neighborhood. At least we didn't experience windows blowing out from the wind and large hail like some of those down the street from us. Some experienced a complete loss with roofs that peeled back from 70+mph high winds. We contacted our insurance company a few days after the storms once we realized that sections of our roof were laying in the backyard. The wind was so strong that it knocked over part of our chimney top on the roof and the 5 inches of rain in less than a few hours caused water to pour into our basement, garage and left quite a mess in our crawl space, ducts and around the foundation.

Then... There was HOPE.

A glimmer of hope. Our silver lining~

After we contacted our insurance company, within 24 hours they had sent out their disaster team. These guys do nothing, but evaluate claims due to anything from earthquakes, hurricanes, fires, floods, you name it! This was actually a blessing in disguise because these type of experienced teams can determine the difference between pre-existing damage and damage that is caused by other factors such as last weeks winter storms. More like, spring and summer storms that appeared during the winter months. Our house actually suffered more damage from the hail, high winds and flooding than what we could only see with a naked eye. There was other damage found in the crawl space, duct work, foundation around the garage, gutters, all corners of the roof and the actual garage door. We already had problems with the house due to a fictitious disclosure. Sure... the sellers didn't know anything about major foundation issues. That's why they abandoned the house once placing it with a local realtor, took some belongings and moved in with the agents friend. A few cities over and a P.O. box later. We found this out after concerned neighbors let us know once they saw far too many contractors within the first week of moving into our new home.

Our claims adjuster from the disaster team was super nice, beyond helpful and extremely educated on everything with regards to our multiple issues home. Our clean-up had already begun the day after the storm barreled down and caused such a mess for everyone. We are not alone. There are others that are not so fortunate. Those who don't have insurance, but in a little, lazy, river town... Everyone pitches in to help one another. Country folk stick together! City folk... They tend to turn their head, bat an eye and move on! As of this evening, we successfully completed 3 various contractor repairs with plumbing issues due to the flooding, roofing and another round of duct cleaning. Excellent job from the duct cleaning company who even used the same SUPER STRONG antibacterial spray that they use in hospitals. Once that spray was released into the furnace system and through out the ducts, you could tell a HUGE DIFFERENCE with the air! The entire house finally smells exceptionally clean and super FRESH! That is saying A LOT from a home that was left SUPER NASTY for us to have to clean up after closing! The dual agent? She didn't help with the cleaning, but instead dropped off a mere $100.00 check and wrote on the bottom, "For cleaning." Hmmmm... Tis better check on cleaning supply costs as well costs for using a cleaning company. She might had wanted to make that check out 100x10. What an experience we have been given, all less than 6 months, but life goes on. It always... goes on.

We are on our way to wherever the wind may take us. Heeheeheehee! That was a pun, but even I had to laugh at that one! We don't expect our home to magically repair itself, but the calm after the storm brought with it... HOPE.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 18, 2017 6:41 AM EDT
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