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The Road Before & After Surgery
March 20, 2017
TIME TO RESCUE ANOTHER TURTLE! :)
Mood:  special
Now Playing: Day 2632-Next GP Chapter... Turning Lemons Into Lemonade :)

 

 

Another day...  Another treatment...

No complaints though, only that they tend to be scheduled way too bright and early! I already have one heck of a time trying to stay on some sort of sleep schedule. HA! What's that?

Unfortunately, we got hit with another huge storm system that brought with it WAY too much rain. Rain that our sinking house did not need which made the scary sounds from a leaning and pulling stone chimney top that much scarier! EEEEE~YIKES!! No worries, because our urgent vacating game plan is already in the works! We were hopeful that this time would never come, but soon enough it will be back on the road with our fur children in tow. Did I just pull another rhyme or what?. Hahahahaha!

I remember as a kid my Dad stopping on the middle of the road out of no where! He would do a quick illegal U-turn, look in the backseat at us kids and say, "All be darn! Hold on for a minute. I see a turtle out on the road!" Those were the good ole days. One just never knew what we were stopping for or what would be rescued next, but by golly! My Dad made sure it was rescued! Same with a raccoon that once got stuck in our bird feeder. Talking about a tricky rescue with a thick glass enclosure and one very scared raccoon stuck inside after gorging himself a few extra pounds. Heeheeheehee! I guess you can say, that the turtle rescue has continued onto the next generation. Me.

On our way up to the hospital. In the middle of the road. Sure enough! There was a poor little box turtle. How in the world did he get there, out in the middle of a busy road? Who knows, but OFF to turtle RESCUE! Heeheeheehee! As I quickly did a huge U-turn, illegal as heck in the country, I looked at Eric and said, "Hold on! Be back in a second! Gotta rescue the turtle!" Eric didn't even have a chance to react. He was still shocked that I pulled an illegal U-turn and then parked on the side of the shoulder. Another illegal stunt, but who cares when a turtle is in need of being rescued! Heeheeheehee!

Of course, since we were on our way to the hospital for my next round of treatments, we had to do a make-shift temporary bed for the little box turtle. While I was in treatment, Mr. Turtle was snoozing the morning hours away, tucked nice and snug in Snoreo and Littleblue's back seat blanket. NO way! I wasn't going to put him anywhere, but where I know he would be safe and happy. A place where he could eat lots of bugs, leaves, twigs and with a small creek so he could have lots of water to drink.

Sounds like a familiar place... Hmmmm....

18-acres that surrounds the wooded hillside. Right behind our fence on far more safer and stable ground, we welcomed our first rescued box turtle. Eric built a nice make-shift hide out, just until Mr. Turtle got comfortable enough to explore his new 18-acre wooded home.

What a great way to start the beginning of spring! Another one of God's creatures rescued! Now safe and sound.

Isn't it crazy how life repeats itself? One turtle rescue generation after another and without one single U-turn violation, illegal shoulder parking ticket!

*WINKWINK*


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 22, 2017 7:15 AM EDT
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March 19, 2017
Another Round Of Things That Make You Go... HMMMM?....
Mood:  d'oh
Now Playing: Day 2631-Next GP Chapter... Turning Lemons Into Lemonade :)

 

 

Talking about a frightening sound that woke me up from a very deep sleep!

No need to heed the warning... HEAR the WARNING!

The warning of something next to me as I attempted to catch up on some serious sleep. Only a few hours later after having to call my dentist around 3am due to severe pain, burning and white ulcers through out my entire mouth. Mostly around my new dental prosthesis. Not good.

Sure, I was warned. We all knew of the chances in which my body might reject what I have dreamed in accomplishing. A new smile. So... At 3am I had to call my dental group and speak to the lead dentist, Dr. Brown so we could go over what was happening which I learned is a reaction my body is having to the dental prosthesis. Sadly, it happens. Unfortunately, it is happening to me. Luckily we took some photos earlier in the day of the strange white ulcers that started appearing around the dental prosthesis. The sore throat, burning and pain only got worse through out the night and into the early morning hours. After reviewing photos and going over my symptoms over the phone. I was told to take the prosthesis out and not put it back in until they see me early next week. Once again, back on another round of antibiotics due to fear of complications with my current immunotherapy treatment. I am pretty bummed out, that things happened so quickly with my body rejecting the dental prosthesis. What I thought would be my permanent new smile, but things like this do happen. No reason to let it continue to bring me down. I can't change what is not within my power. I will let my dental group handle things from here...

What myself and Eric really need to be concerned with right now is the sound below the ground. Or... As of this morning. The sounds coming from the other side of the couch. Where of course, I sleep.

We haven't really heard any foundation settling lately. Not since the Duke Energy tree butchering project was finally completed. BAH! We really hoped, along with the engineers and insurance company, that the weight of the trees being released would also relieve some pressure around our foundation. No one can predict what the foundation will do next, but this morning was definitely not a very good sound, nor a very good sign. A sign of things still yet to come.

We didn't get much sleep this morning. Not until we had to make our way back up to our local home improvement store due to finding a few other hidden lemon gems left by the prior owners. At least we have narrowed down two further pre-existing issues that are now leaving visual evidence around the exterior of our foundation and interior perimeter of our garage. The garage attached to the dining room and living room chimney. EEEEE~YIKES! Our chimney has three different sections which now makes things a lot more serious. The exterior pipe to our furnace runs through this unstable chimney that is now making sounds of soon to be a fatal collapse. We have a block foundation, stone exterior and a complete after-thought stone chimney MISTAKE which is now shifting the house in another direction. Add pre-existing issues due to seller negligence and you have a death trap waiting to happen on an entirely different death trap level.

Eric had to get on top of the roof this morning, which I wouldn't trust even a leaf to land on, in order to place a large tarp around the chimney that is now cracking, seperating and pulling. With rain in the forecast for tomorrow afternoon, we can't risk a thing. Not even one single raindrop. The contractor dash will be on come 8am, Monday morning as we attempt to quickly find someone to come out and evaluate some very seriously scary issues with the stone fireplace and stone chimney that is now sitting unstable on top of our roof. Below it? The air conditioner. We also have a garage door that would had only taken Eric a mere few hours to replace due to our other garage door suffering damage from the unstable house. That IS... If the prior owners did not do such a half you-know-what job with the original garage door and even laid live wires for the garage door opener against the sensors. BRAVO! BRAVO! Said, no one, ever.

Do trust, just because we attempted to go above, beyond and give our best Boy Scout and Girl Scout try, did we ever NOT have a back-up plan in case something like this was to happen. Again. We actually had two back-up plans in place in case of a quick vacate and as of this evening. It has come down to one single back up plan. It isn't what we would had envisioned or most definitely deserve due to negligence on the prior owners, sellers of these hidden lemon gems, but things must now proceed at full steam ahead. That is before this house comes crashing down on us with thousands upon thousands of pounds of stones, full steam down upon us, a-head! Our heads. 

We had hoped for a much more laid back upcoming week, but life happens. It isn't what happens to you, but how you handle and respond to what is happening. I am a hell of a lot wiser by trial, errors and even tribulations. Time to be brave and embrace all the changes ahead with the Good Lord by our side!

Ready or not! P.O. Box here we COME!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 20, 2017 7:22 AM EDT
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March 18, 2017
13 Years Later.............
Mood:  lucky
Now Playing: Day 2630-Next GP Chapter... Turning Lemons Into Lemonade :)
 
 
 
The week of St. Patrick's Day is not only a very lucky week, but it is also the time of year to reflect on another lucky accomplishment.
 
Today, March 18th, 2017 marks 13 years since my initial Idiopathic Gastroparesis diagnosis.
 
Tis been a very, VERY long time!
 
I never went through the experimental pacemaker surgery nor did I opt for any type of GI organ transplant. My specialists always kept me away from any type of feeding tubes and other artificial means of daily nutrition. What we all do agree on is one thing... LESS is truly MORE!
 
Instead of opting for any type of experimental medical options that are offered to Gastroparesis patients. I always remained diligent to go against the grain. Always up for being the GP guinea pig whether that meant a new prescription supplemental shake, new organic drinks and even opting for advice from a few Amish doctors that my dieticians keep in touch with up north. Everything, through it all, has been trial and error. Even 13 years later............. Everything is still trial and error. Some days are good. Other days are bad. Isn't that life in a nutshell? We have to learn to take the good with the bad and continue life to the best of our ability.
 
I have learned that LESS not only means MORE, but I have also spared my body surgical mutilation from experimental GI, Gastroparesis treatments. I might be a dietary GP guinea pig, but I sure won't be an experimental GP surgical guinea pig. Amen! Less medications, less surgeries, less solid food-mainly liquids, LESS stress and far more reasons to smile and be happy in life IS MORE! I have no regrets with any of my decisions over the past 13 years when it came to desperately managing such a poorly researched and still to this very day, misunderstood GI condition. Gastroparesis.
 
I am more proud than ever to say, that I have yet to endure any further Drano aka Hell-In-A-Jug intestinal treatments. I still must rely on injections to help mimic an obsolete GI tract, but over time, it has gotten easier. With each treatment and each injection, it has gotten a lot easier to tolerate. Remaining on a full liquid diet isn't easy nor is it for those who don't have some serious willpower, but for me, it works!
 
Gastroparesis doesn't define you. Cancer doesn't define you nor any other illness. It only makes you STRONGER! Suffering is only part of the journey. What would life be without the struggles and lessons learned that come out of suffering? The good Lord will always make sure that you never walk alone. Even days as if you feel you are alone. YOU are not alone. YOU will never be alone.

 
To the Father and Son medical team back in Ohio. My 4 year prognosis, based off of your determination of the seriousness of my Gastroparesis, as well from years working with other Gastroparesis patients at one of the most well known clinics in the great USA, Cleveland clinic... 9 years later.
I am still here. I have survived!
 
#DETERMINED #BLESSED #LUCKY

  "Survivorship means you are alive to advocate for research, to help those who need help, and to gain a better perspective on what life is really about – loving and being loved, giving and sharing.

 
WE are all survivors from the first day of our diagnosis and will each have a unique walk down the medical journey. However, we will all meet challenges, successes and failures that have been met and dealt with before us and will be met and dealt with again after us.
 
Each and every one of us have a responsibility to leave behind whatever knowledge and life experiences that will benefit those who walk the path after us."
 
Kimberly-Founder
Gastroparesis Awareness Campaign
www.gastroparesisawareness.com

 

Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 20, 2017 6:26 AM EDT
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March 17, 2017
HAPPY ST. PATRICK'S DAY! :)
Mood:  lucky
Now Playing: Day 2629-Next GP Chapter... Turning Lemons Into Lemonade :)

 

"HAPUS DIWRNOD  SAN PADRIQ!"

That's HAPPY ST. PATRICK'S DAY in Welsh as I finally was able to connect with a 99.9% DNA match, first cousin this week. He actually lives with his fiancé on Caldey Island, Pembrokeshire. The island goes back over 1500 years ago and is considered one of the Holy Islands of Wales. Talking about SUPER EXCITED to finally connect with a first cousin who shares the same grandparents! Our communication will take some time since they speak Welsh, not English, but the first correspondence has most definitely been exciting!!

There is so much to be thankful for on this very lucky St. Patrick's Day! Instead of becoming one with overly intoxicated crowds, thanks but no thanks, we celebrated in our own unique way. At home and far away from the large festive crowds due to various reasons, not just those intoxicated. We were all once part of those crazy beer drinking crowds back in the day. Heeheeheehee! Talking about the look on Eric's face as festive Irish music was playing on our Comcast music channel as I reached for his hands to dance a few Irish steps! Even Snoreo got into the festive music or more so because we both were laughing so loudly that he also got excited! Heeheeheehee! It was too funny watching Snoreo attempt jumping up while we danced a little Irish Jig and everything else crazy in between! Celebrating all that is good, green and LUCKY!  

Of course, we can't forget wearing of the green and cooking a little something special for St. Patrick's Day which consisted of homemade turkey chili and stuffed peppers. As for myself... A Cocofusion, Molokai Coconut drink and pureed vegetable soup. TASTY! Eric's homemade chili... SUPER SPICY! We like to not only feel lucky, but eat mighty brave on St. Patrick's Day! HA! I miss all the cooking that I used to do back in Ohio, so why not carry on the cooking tradition today? St. Paddy's Day!

It was not only a day to celebrate all that we have been blessed with in our lives, but also to celebrate the love for one another and our little family. Regardless of our ups and downs, we continue to only grow stronger. Our relationship is truly a-one-of-a-kind and I wouldn't have it any other way. We have overcome and persevered time and time again. No matter what life may through our way, we will always remain blessed and thankful on this very LUCKY day!

OH yes... We couldn't end this blog without sharing some fun, smiles and lots of laughter on this happy St. Patrick's Day!

Live-LOVE-LaughCHEERS~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 19, 2017 6:56 AM EDT
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March 16, 2017
Over 12,000 Reasons To SMILE!!!!!! :)
Mood:  lucky
Now Playing: Day 2628-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today was meant to be!

Today was the start of a very LUCKY ST. PATRICK'S DAY weekend!

I was scheduled in hopes of once again, realizing my smile yesterday evening. I am always the last appointment of the evening with regards to needing to stay as far away from the public as possible with continued immunotherapy treatment. What was suppose to be a long-time-coming, a year coming in hopes of smiling again, didn't turn out as planned. Yesterday's appointment had to be cancelled due to my body making the decision of not realizing a dream. Not just yet. Dental appointment... Cancelled.

If I was a Jeanie things would had gone as planned, but yet once again, I can not predict what my body will do next. Day to day, hour to hour, sometimes even minute to minute. If I am given a good day. A clearance to GO! This gal is ON IT! A night and morning with cold sweats, feeling mentally confused due to low body temperature, meant having to stay home and allow my body urgent rest. This is what happens when your immune system becomes depleted. Your bodies internal thermostat stops working and things such as a low body temperature can occur without much, if any type of warning. Dealing with cold sweats and the mental confusion that comes with it is very new to me. Its quite scary, but the worst you can do is to panic. I tend to just go with the flow and listen to what my body is telling me.

Yesterday... Rest.

Today? This gal IS ON IT!

One phone call to my dental teams office and a green light to GO with the suns rays shining down upon me while driving on the open road. I had one thing on my mind. I was determined as ever to finally begin the end of my dental journey. A very long and extremely pricey dental journey, but worth all the pain and a very long wait! I have so many reasons to smile and FINALLY... FINALLY I can do so without covering my mouth and feeling embarrassed of what attempted to overcome me. Why was I ever embarrassed over something that clearly isn't my fault? I don't know, because no one and I mean, NO ONE asks to be sick. I have done my best rolling with the punches. All the ins, outs, ups and downs. Here I am, on the road, in hopes of realizing a long-time-coming dream of mine!

To finally have the most normal looking as possible, ~SMILE~

Did I make it to my dental teams office? You bet I did! I smiled all the way through the front doors, into the famous dental chair, room 2 and through even more unexpected dental work. I smiled because I made it! I had come to realize a dream and I be damn if it was going to be taken away from me. Not this time. No way! If anyone has any type of prosthesis, then you will easily understand what I mean by saying, that you can only hope that your body will accept the prosthesis. The other part is that no one knows, not even the treating doctor or dentist, if your body will accept the foreign object. The prosthesis. As I was given an introduction, education on the newest material in prosthetic teeth and prosthetic gums to replace what tumors have taken away from me. I was also told that sometimes, the body will not accept the prosthesis. It is a learning process for not just the patient, but as well the doctors and dentists. Still... I remain hopeful.

New treatments are taking a slight toll that tends to always show through my gums and teeth. I still have another biopsy and three more dental treatments left to go after they uncovered some new issues, but the HECK with all of that news! Guess what I ended up leaving with this evening?...

A SMILE! MY NEW SMILE!

It might not be the smile I was born with and there is still another part of the prosthesis that needs to be finished by the lab, but it's my smile. I have decided to share part of my smile with everyone. I am no longer ashamed nor embarrassed. I have learned by a great lesson of pain and suffering that we are only as happy and comfortable with ourselves as WE allow. Not the person next to me, not the neighbors, not Tommy, his wife or his kids at the local store nor anyone else. Who are we to judge a story that we may not understand, whether alone, may not even know. It's my smile and I am darn proud of it! I am beyond PROUD OF ME! I made it through a very long, years worth, extremely expensive and more painful than words can describe, dental journey. I made it and that within itself is nothing but, POWERFUL!

Don't like selfies? Well, I am here to say, GET READY! I have a lot more selfies and over 12,000 reasons to SMILE today, tomorrow and every single day that the good Lord gives me!

~MY NEW  SMILE~

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 18, 2017 8:34 AM EDT
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March 15, 2017
RELIEF!
Mood:  lucky
Now Playing: Day 2627-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today would had been a great day to just take it easy!

R-E-L-A-X...

However, we have a lot of visitors scheduled through out the day. Today.

RELIEF!

We had absolutely no luck on finding a temporary rental property so this home can go through the proper legal channels. Litigation. Yes, it would had been 'ideal' to get out of dodge in order to allow for the bank, insurance company and other parties to proceed full steam ahead on a property that should had never been sold or listed on the open market in the first place. Just when we think we have seen it all in this new era, day and age way of renting homes via private sellers or rental companies. TRUMPED again! This time it was after a little slip up by another private owner with regards to charging potential tenants, those interested in their rental properties a $40.00 per applicant in each household fee for supposedly doing a background check, etc, etc, etc. The problem was that the private owner wasn't collecting fees for background checks, but instead was pocketing as much money as possible by those whom were interested in their rental properties. We accidently got wind of just how sneaky the individual was being with literally taking application money, yet was never renting the properties, only pocketing the $40.00 fee per applicant, per each individual in the potential tenants household. One call to the wrong phone with a voicemail letting the correct individual know who they should had called in the first place, that the money for the down payment wouldn't be received until they cashed a few other applicant checks. Down payment for a new vehicle which had nothing to do with the rentals. It was for his wife.

Talking about the wrong number! BAH!

It was another rude awakening for myself and Eric. You should be able to trust those who are listing their properties. Once again, another reason why we had to sit down and really put everything out on the table. The ideal situation would be to vacate our lemon home that was sold to us late October. Less than 6 months ago. That would had been 'ideal' in a trust worthy day and age, but sadly, you can't trust folks. Not many folks in this day and age. Sad, disturbing, but true. Eric looked at me after listening to the voicemail on my phone and said, "How many other private owners or these so-called rental companies are doing the exact same thing as this person? How can you trust that your application fee is going towards what they are telling you? So called, background checks are actually just extra money in their pockets. WOW! Who regulates these owners and companies?"

Great questions... No answers.

Unfortunately, we are not alone. It seems to be the scamming norm anymore when seeking a temporary rental home. Something that we just can't trust anymore. Of course, there is a silver lining in this entire situation. There is ALWAYS a silver lining!

Last weeks unforeseen storms, large hail and 70-80 mph winds took a toll on quite a few homes in our neighborhood. Since we live up on a country hillside, with open areas between houses, it made for a great disaster that was bound to happen! We experienced flooding in our basement, both upstairs and downstairs garage, fireplace, roof, windows and other areas of a home that was already dealing with pre-existing issues. Thanks to the prior home owners! I need not get into continuing to cry over spilt milk, but the nasty storms took their toll on our home and quite a few other homes through out the neighborhood. At least we didn't experience windows blowing out from the wind and large hail like some of those down the street from us. Some experienced a complete loss with roofs that peeled back from 70+mph high winds. We contacted our insurance company a few days after the storms once we realized that sections of our roof were laying in the backyard. The wind was so strong that it knocked over part of our chimney top on the roof and the 5 inches of rain in less than a few hours caused water to pour into our basement, garage and left quite a mess in our crawl space, ducts and around the foundation.

Then... There was HOPE.

A glimmer of hope. Our silver lining~

After we contacted our insurance company, within 24 hours they had sent out their disaster team. These guys do nothing, but evaluate claims due to anything from earthquakes, hurricanes, fires, floods, you name it! This was actually a blessing in disguise because these type of experienced teams can determine the difference between pre-existing damage and damage that is caused by other factors such as last weeks winter storms. More like, spring and summer storms that appeared during the winter months. Our house actually suffered more damage from the hail, high winds and flooding than what we could only see with a naked eye. There was other damage found in the crawl space, duct work, foundation around the garage, gutters, all corners of the roof and the actual garage door. We already had problems with the house due to a fictitious disclosure. Sure... the sellers didn't know anything about major foundation issues. That's why they abandoned the house once placing it with a local realtor, took some belongings and moved in with the agents friend. A few cities over and a P.O. box later. We found this out after concerned neighbors let us know once they saw far too many contractors within the first week of moving into our new home.

Our claims adjuster from the disaster team was super nice, beyond helpful and extremely educated on everything with regards to our multiple issues home. Our clean-up had already begun the day after the storm barreled down and caused such a mess for everyone. We are not alone. There are others that are not so fortunate. Those who don't have insurance, but in a little, lazy, river town... Everyone pitches in to help one another. Country folk stick together! City folk... They tend to turn their head, bat an eye and move on! As of this evening, we successfully completed 3 various contractor repairs with plumbing issues due to the flooding, roofing and another round of duct cleaning. Excellent job from the duct cleaning company who even used the same SUPER STRONG antibacterial spray that they use in hospitals. Once that spray was released into the furnace system and through out the ducts, you could tell a HUGE DIFFERENCE with the air! The entire house finally smells exceptionally clean and super FRESH! That is saying A LOT from a home that was left SUPER NASTY for us to have to clean up after closing! The dual agent? She didn't help with the cleaning, but instead dropped off a mere $100.00 check and wrote on the bottom, "For cleaning." Hmmmm... Tis better check on cleaning supply costs as well costs for using a cleaning company. She might had wanted to make that check out 100x10. What an experience we have been given, all less than 6 months, but life goes on. It always... goes on.

We are on our way to wherever the wind may take us. Heeheeheehee! That was a pun, but even I had to laugh at that one! We don't expect our home to magically repair itself, but the calm after the storm brought with it... HOPE.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 18, 2017 6:41 AM EDT
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March 14, 2017
FOOD For Thought!
Mood:  hungry
Now Playing: Day 2626-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Good GRIEF!This time change is for the birds! With another early wake up call at 7am for this mornings next scheduled treatment. Even the birds aren't yet awake on this still dark outside and quite chilly Tuesday morning. Ha! 

What's even worse is waking up... H-U-N-G-R-Y.

It must had been all the cooking that I finally did last night with a stove that has only been used less than 5 times since our closing. At least it works! WOW! Something in this house of a million lemons actually works! Imagine our surprise with a working stove and a very happy, stuffed Eric for the remainder of the work week. Heeheeheehee! Now mind you, I am not one for hamburgers. The last time I have even had a bite of a hamburger has been so long ago, that I don't even remember?.

Maybe it was the smell of melted pepper jack cheese, smoldering onions or even possibly the Applewood seasoning sauce... No matter what Guy Fieri uses to season his inspiring hamburgers, gosh DARN IT!

They smelled  MOUTH WATERING~DELICIOUS~

I guess first of all. One has to have a GI tract that works. Secondly, my teeth have yet to receive the final finishing touches this week. Lastly, my brain may be thinking one thing, but the nausea said another. NO THANKS! This is clearly one time when the ole saying, "You play. You pay," isn't even worth one teeny, tiny bite of scrumptiousness. Instead, I decided to do the next best and most obvious thing. I COVERED THOSE BAD BOYS UP! Off to the refrigerator and far away from my tempted hands and misleading eyes that aren't thinking with the best of GI intentions. Hahahahaha! Eric on the other hand? I don't believe he really tasted much of any type of seasoning. In fact, two bites and a quick inhale later... He most likely didn't taste a gosh darn single thing. BAH!

Wasn't hamburgers, red meat, on the top 10 foods that kill just a few days ago? Hmmmm?.. If so, I guess I just won myself another life. Hahahahaha! Could I just get Guy's hamburger seasoning melted into a candle? Tis better safe, than sorry.

Talking about enjoying food... I received some wonderful messages from dear Dr. T through out the day. Thank goodness for a smooth road to recovery after Dr. T's recent surgery! I am so happy to see him so happy! Dr. T is also getting ready to reap the rewards of a lifetime of hard work. Surgical work. Retirement life looks good on him and his new friends who have a few hidden talents of their very own. Painting. I have a hunch that with such a long successful life helping to save lives. His new found passion and love for painting will as well be a huge success! Myself and Eric can't wait to receive his first of many new painting masterpieces that he promised to mail to us later this week. What a great looking group of very talented young women and gentlemen. Life should be nothing, but filled with happiness. CHEERS to Dr. T and his friends!

With needing a bit of our own happiness to end a very long day. We headed out with Littleblue and Snoreo in route to our local dog park. After successfully finishing this mornings outpatient therapy. I had to opt for watching all the fun via front seat of our car, but no worries. This evening was all about watching Eric have fun tossing Frisbee with Snoreo. Littleblue doesn't really play much, but she sure looked to have fun enjoying the last of this winter season. Too bad the beautiful snow didn't stick around, but we sure got some really great memories that will always remain.

LIVE-LOVE-LAUGH

The amazing smell of Guy Fieri hamburgers during a cold winter day doesn't hurt too!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 15, 2017 3:07 AM EDT
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March 13, 2017
One Word...
Mood:  happy
Now Playing: Day 2625-Next GP Chapter... Turning Lemons Into Lemonade :)

 

SNOW!

OMG!! Can you BELIEVE IT?!

 

SNOW... BEAUTIFUL SNOW... WONDERFUL SNOW...

I L O V E... SNOW!!!!

LOVE~LOVE~LOVE~LOVE

It isn't even St. Patrick's Day, but today most certainly still felt like one very lucky day! Inside and outside!

This morning, I got my long awaited phone call in order to schedule a final procedure this week. It's been officially one year since my dental journey began and as of this week. I will finally have my NEW SMILE! YAYYYYY! I don't think anyone, except of course Eric, will truly understand how much this gal had to go through in hopes of finally having a complete smile again. It's been far too long with way too many surgical and dental procedures later, but it's finally here! The time has almost arrived! As of this week...

I WILL BE ABLE TO SMILE AGAIN! WOO~HOO!! YAYYYY!!!

The tumors may have done their fair share of damage over the past few years. Especially with new tumors found over the past 12 months, even a lower jaw tumor that took 2 separate surgical procedures to remove and unfortunately most of my lower teeth with it. I have once again not only survived, but I will finally be able to have a normal, happy, glowing SMILE! It's been a long time coming, but good things really do come to those who wait! My news might not seem like much to some folks and maybe that is because I don't take anything in life for granted. Not even my smile. I have far more respect for life by the challenges and struggles I have endured. In the end... I have not only become stronger, but I have become more appreciative for the little things in life.

The little things... THAT is what makes ME the absolute HAPPIEST!  AMEN!

Today was a day to just relax in front of the window. Looking out at the little things in life that mean the most. The most beautiful white snowflakes slowly falling from the sky. The quietness of the world, while all was calm, as the snow continued for the remainder of the evening. These are the times that I am thankful to be alive. I don't have any regrets in my life nor would I ever change a thing. Even illness has it's own unique silver lining. It changes you and mostly... For the better. I am a far better person for the changes, challenges and all of the ups and downs.

Thank you Mother Nature for such a BEAUTIFUL SNOWY day in the country. I couldn't have asked for a better way to end this winter season. Appropriately... Angel Kisses from Heaven...

SNOW

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 15, 2017 12:52 AM EDT
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March 12, 2017
NOTHING Can Stop My JOURNEY!
Mood:  lucky
Now Playing: Day 2624-Next GP Chapter... Turning Lemons Into Lemonade :)

 

With less than 2 weeks away... It was finally decision time!

Journey? Or... JOURNEY!

During this weeks rescan, I had mentioned the topic of traveling to my specialist and oncologist. I am well aware of needing to stay away from large crowds due to a depleted immune system and still undergoing immunotherapy. What I needed to know were the risks involved with traveling in a car for 3 hours. I needed their opinion as well on the options and other alternative methods to help keep me safe in a very large crowd from potential germs. I won't go into the entire story, but let's just say that my amazing team of specialists know me very well! I didn't need to go any further past explaining a once-in-a-lifetime concert that I received tickets as a Christmas gift. Front row, center stage tickets to JOURNEY!

Sure, once again, no one can predict what could possibly happen with my tumors while traveling. No one can predict the many complications of my largest tumor if a complication would arise while on the road or even at the concert. I can do my best to take all preventable measures at the concert. Nose plugs due to not wanting to stand out wearing a mask, gloves that wouldn't be so obvious, long sleeve shirt, jeans, closed toe shoes, hat, lots of hand sanitizer and even scheduling my next in office treatment 4 days in advance of the concert. No one can predict the unpredictable. Not myself, not Eric, not even an entire team of specialists. As I explained the upcoming concert, it was clear they could sense the excitement within me. A once-in-a-lifetime chance to see one of my all-time favorite bands, JOURNEY!

With only a mere hesitation, while looking at the images on the big screen, "Don't let anything hold you back from doing what you enjoy. Continue going as you always have been, living life, happily."

I couldn't agree more! I know it will be a long shot, because let's face it... Anything and I mean, a-n-y-t-h-i-n-g can happen while on the road for 3 hours driving to the concert, 3 hours driving back home from the concert and even possibly, during the concert. That's life. I have to take risks from time to time in order to continue living, not just mere existing. No, not all the time, but this is a HUGE exception to the concert rule for this gal! Eric left the decision up to my doctors. Now that I have my doctors blessings, he is leaving the decision up to me. More so... My body. Now we must wait a little bit longer, actually the day before the concert in order to see how I am feeling. Internally. Mentally? You know this gal will be READY! I just hope my body will follow my mindset, onto the road and OFF we GO!

It will be a year this May. A year since starting another chapter of a very long journey with so many winding roads, twists and turns. How appropriate to take a break from the road and stop to enjoy the journey? The REAL Journey!

We still have some planning ahead of us. Even a same-day road trip to the concert will take some careful pre-planning. We already have some great fur Angels taking care of Littleblue and Snoreo until we get back from the concert. Since we only expect to be gone a maximum of 9 hours, things should be fine with our fur children under watchful eyes, good hands and those with gentle hearts. I can no longer take long drives in either of our vehicles due to needing room to lay down when the nausea and pain get to be a bit too much. Thanks to Kyle at our local rental car company, the same super comfy SUV will be ours to drive for the concert. YAYYYY! Extra room, big comfy heated seats and other 'must-haves' should help make our same-day road trip a lot more comfortable! A lot more safe too!

There is always a chance that regardless of how well prepared we might be for the trip. My body could still say otherwise, right up to the day before the concert. If that time comes, we do have those in mind to receive the super LUCKY, once-in-a-lifetime tickets, but I won't be thinking about that just yet. Not if my mind has any say in the matter of what my body might decide a few days before, or even the day before the concert. Heeheeheehee! You play... You pay. OK. I guess this gal might be paying ROYALLY! Playing royally too with the tunes of JOURNEY! YAYYYYY!  WOO~HOO!!!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 13, 2017 6:07 AM EDT
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March 11, 2017
Extra SPECIAL Care! :)
Mood:  hug me
Now Playing: Day 2623-Next GP Chapter... Turning Lemons Into Lemonade :)

 

We dreaded this day for weeks... Even months.

Time to take Littleblue for her tumor recheck. Of course, we didn't expect to have much, if any positive news. That is because Littleblue is now starting to show signs of pain. Her tumor has grown a lot since just her last recheck. Not good. It's heart breaking when our fur children become ill. Worse when it is a condition that has no cure. Cancer.

Poor Snoreo. It's like the roles have now reversed for Littleblue. She was the great big Sis for Oreo when he was very sick and reaching the end of his courageous battle. Littleblue had no one to play with for a few years while Oreo's health continued to quickly decline. Now it's Snoreo playing little Brother to his playmate, Littleblue that can no longer play. We do our best to run Snoreo's energy out at the local dog park, walks along the river trails and lots of toys that fill a huge plastic tote at home. No matter what we do, Snoreo can sense Littleblue is sick and that makes all of us very sad.

Mittens kitty, our little stray kitten that came around and stayed around at our prior home has taken on a new roll lately... We believe that Mittens might actually believe that she is part dog. KittyDog, CatDog or whatever you may want to call her very interesting and quite odd behavior. Heeheeheehee! Eric was so scared to take the little stray kitten with tiny white paws that resemble white mittens to our new home, but I wouldn't have it any other way. Eric now feels the same exact way! Mittens was just meant to be! Mittens was a very tiny kitty that came around one day out of the blue. The little stray kitten attempted to eat bird seed while having one eye on the seed and the other eye on Lucky who sat indoors watching the kitten from her cat tree. Of course, I would have no such thing, so Mittens started receiving her own little bowl of food and water outside. The rest? The rest is history! Heeheeheehee! Lucky instantly bonded with Mittens from the very first day she noticed that her little outdoor friend was now indoors with the rest of her fur siblings. Talk about excited! Lucky kitty had so much fun with her new best friend, all the way up to the very last few hours of her short life due to a heart defect. Mittens kitty was there for Lucky, all the way up to the end. Now Mittens is here for Snoreo. XOXOXO

Animals have a sense about them to know when something isn't quite right. Same goes for when one of their fur siblings become sick just as when Littleblue was there for Oreo.

Today's veterinarian appointment with 19 years young, Grandma Cuddles coming along for fur sibling support, didn't turn out the way we had hoped. Littleblue's cancerous tumor has sadly tripled in size and is now causing her a lot of pain. We had already consulted with 3 prior veterinarian specialists that have helped provide exceptional care during the time when our other beloved pets began their end of life journey. Their journey however was much later in life, at the ages of 17 and 18 years young. Littleblue will be 10 years young this year, but sadly her days of playing with Snoreo are no longer. It's very sad, but mostly, heartbreaking. We always expected Cuddles, the last of the original 6 rescued musketeers to cross over the Rainbow Bridge and be happily greeted by her other siblings. Not Littleblue. Same with our beloved 4 years young Lucky kitty who just crossed that same bridge only a few months ago.

As a human parent, I have always taken exceptional care of all of my fur children. Most would say, that I take care of them better than most folks take care of themselves or even others. I have yet to ever be let down by one of my beloved fur children. I receive nothing, but unconditional love from all of them. They have been here for me, more than most humans have been here for me. Sorry, but it's a fact. I know people who treat animals like a new pair of shoes. A few years go by... Then they find something new or cuter or bigger or whatever the reason to just rid a pet like a pair of shoes. These are the same folks and TRUST ME... I KNOW! The same kind of folks that treat animals the same way as they treat people in their own lives. At their discretion. At their disposal. It's no wonder that my passion for all of God's creatures, both big and small, is something that will never stop while I am here on the face of this earth. I believe my love for all animals, especially my fur children, will even go on in the after life. Until then... I will continue loving, spoiling and even caring for my beloved fur children when they become sick and start the end of their own journey. Back home to Heaven. Crossing the Rainbow Bridge. Love should never waiver, regardless if human, animal or any other living, breathing form of life.

LOVE... IS LOVE.

We are scheduled to meet again with our veterinarian next week. A meeting to figure out options for Littleblue so she can remain as comfortable as possible and not in so much pain. Just as we have with all of our other beloved fur children. Littleblue will be receiving all the extra SPECIAL care that she needs right here at home! Remaining by her human parents and the rest of her fur siblings side.

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 13, 2017 4:50 AM EDT
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