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The Road Before & After Surgery
March 9, 2017
Spinach+Kale+Watermelon=Hmmmm....
Mood:  bright
Now Playing: Day 2621-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Here we go!

Eric's visit to a new health food market meant coming home with a few new super healthy drinks for me to give a try... bai Antioxidant Infusion-Kula Watermelon and the latest, not sure about tasting the greatest, TSAMMA-Spinach+Kale+Watermelon.

WHEEEEWWW~WEEEEE!

It's no wonder I sit here and type with a major upset stomach. Hahahahaha! I love bai Antioxidant Infusion water, but their newest addition to the line, 'Kula Watermelon' was a bit too much for my liking. There is just something not so right with mixing watermelon, white tea and vegetable juice which equaled a not so pleasant tasting water. Hmmmm.... My favorite bai Antioxidant water is still hands down, Maui Coconut Raspberry! I have no problem drinking my fair share, but I might have to pass on the next round of watermelon meets vegetable juice and white tea.

My next new super healthy drink to try just happens to only 'NOT' sound very good, but the smell alone could make one gag! You know me... Always one still willing to give it an ole try! Spinach+Kale+Watermelon= Hmmmm.....

It might not sound very good by solely reading the bottle. It might not even smell very pleasant, but if you can get past both the smell and the ingredients on the bottle. You have one very super healthy and actually, pretty darn TASTY drink! It isn't something that you want to literally sit there and guzzle down. SAVOR the unique flavor!

I actually give both new products a BLOGATIVELY HIGH-FIVE!

Definitely worth a try!

If you want to go the opposite route and gorge yourself on some unhealthy food... I would suggest reading the latest new study on the 10 foods that lead to death. See! Kale, spinach, watermelon, white tea and vegetable juice all mixed into a few super healthy new drinks isn't so bad after all! ~Bottoms  up~ 

 

FOODS OF DEATH: BACON, SODA TIED TO US MORTALITY, STUDY SAYS

AP

If you're gorging on bacon or skimping on nuts, you might want to rethink your diet. That's according to new research that links 10 foods with deaths from heart disease, strokes and diabetes.

The study says overeating or not eating enough of those foods contributes to nearly half of U.S. deaths from the three causes.

The researchers used data showing that about 700,000 Americans died in 2012 from heart disease, strokes and diabetes. They also examined several years of national health surveys that asked adults about their diets.

"Good" foods that were under-eaten included nuts and seeds, seafood and fruits. "Bad" foods that were overeaten included salt, processed meats and sugary drinks.

Results were published Tuesday in the Journal of the American Medical Association.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 11, 2017 3:43 AM EST
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March 8, 2017
Busy-Busy-BUSY Day!
Mood:  rushed
Now Playing: Day 2620-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Yesterday's scans=a morning of feeling tired, achy and mighty cranky!

Thank goodness for some much needed sunshine and far drier weather so our flooded garage and basement can receive a final clean-up. Round 2 of necessary duct cleaning, bacterial sanitizer and other remedies to prevent any possible mold growth in the ducts and furnace system. I have to remain super safe with my health as we continue to take all necessary precautions. Sometimes... Even a bit costly precautions.

Once Eric got home from work. The lack of sleep, achy and mighty cranky began! Heeheeheehee! 8am, out the door to pick up our car from the body shop and drop off the super comfy SUV rental. CHECK! Not only did the body shop do an outstanding job repairing the damage done to our car, but as well had it once again looking like NEW with a nice coat of polish! SHINY~ Next it was time to get back home, grab a 2 hour nap, literally, before the duct cleaning company were on their way. This all quickly followed by the construction company to once again, excess damage to our roof and foundation from this past weeks major storms, flooding and 70 mph winds that unfortunately also ripped off sections of our roof. The wind was so strong that it also caused further significant damage to an already unstable, unsafe foundation. I won't bore you with continued detail, but as a team of 2, we are doing everything in our power to find a temporary rental home. A rental by a private owner whom isn't crossing personal information, privacy boundary lines as those we have run across that had us quickly putting a halt to our rental home search. We have learned from our attorney. "Yes, there are boundaries, even as a private rental company or private property owner. No one can access banking or medical information without your knowledge or they can be held liable." We certainly feel a whole lot better now about continuing the process of finding a rental home and a heck of lot more educated on legal boundaries of what private owners and rental companies can demand when it comes to your private information.

Since our home suffered a lot of damage from last weeks storms, flooding and high winds. We have a lot of claims on our home that are being reviewed by our insurance company, yet another one as of with today's damage found on our roof. Yep, it never ends when prior owners sell a home that should never been placed on the open market in the first place. Amen. NO ONE asks for a seller to lie on a disclosure and sell a house that is not safe for anyone to live inside nor even to place a tent outside the property. Saying such a thing to others without having your facts straight, without a folder we would gladly lend with civil and eco engineer facts and information regarding this property, among other contractor receipts and information, is not only silly, rude and distasteful, but is far from any sort of truth.

For saying such a thing stating to others as well, that we get what we deserve, shows the type of individual that once again, I personally strive to never become.

WE are beyond thankful for honest companies, honest contractors and honest folks who helped direct Eric on some less costly ways to band-aid our home until we can find a safe temporary home to move into, sooner than later. The fear of this springs upcoming rain and further storms is enough to really have us AMP up the rental home process of seeking a safer place to live! A temporary rental until the second round of litigation begins and this house remains vacant during the court process. In the many opinions by those who have walked through and saw first hand, a home that clearly should had never been sold... Hopefully this house will be condemned after all legal proceedings end which could take a few years.

Any home that shows signs of literally crumbling, inside and out, need never to be occupied again.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 9:31 AM EDT
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March 7, 2017
SCARE Factor!
Mood:  d'oh
Now Playing: Day 2619-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This morning marks another 3-month rescan and labs. Another early morning drive back over the state line. Back to Ohio. OH'NO'HIO~Heeheeheehee!

Time for additional knowledge of what I remain determined as ever to continue battling. What unfortunately also continues to remain defiant as ever against me. Eric is very curious to find out from my doctors about why the little magic pill, Marinol is no longer working for me. For some reason, I continue with out of nowhere, making no sense, no rhyme and reason, nausea and painful vomiting. We can be out, just driving in the car and it will hit me. No warning.

My doctors usually have me scheduled first rescan of the day and then it's off for repeat labs. Its extremely important that we arrive on time, regardless of the early morning rush hour traffic. This morning we were actually 10 minutes ahead of schedule. Talking about very happy technicians that were able to take me back within a mere moment after getting registered at the front desk. This new year brings with it, a new change with our health insurance. Eric's insurance plan with the county has completely changed to an entirely different insurance provider. Our out-of-pocket primary care physician office visits are a bit cheaper, but our out-of-pocket for hospital testing and specialist office visits unfortunately went up a bit. Our prescription copays are now a little less expensive. Go figure, after the fact of us paying outrageous out-of-pocket costs over the past several months for my Marinol. Our new insurance had just recently approved coverage for the medication. A mere $15.00 out-of-pocket for a drug, that for some reason, is no longer working for me?.

This rescan is by no means any sort remedy for any type of cure. My 3-month rescans does not change the fact that I am past the point of any further surgical options or medical treatments, as well... Any further experimental oncology treatments. I am given the option, as a patient, to continue the rescans as a means to know what I continue to battle. New symptoms that also arise since my prior rescan can also be handled, even sometimes like today, answered by my specialists. I understand that some folks do better not knowing nor want to know their fate. As for myself, the fighter within me remains determined as ever to continue knowing my battle. I want to know why things have changed as far as new symptoms and other changes since my last rescan.

Knowing... Is only HALF the battle.

Not every scan goes as planned. Today was one of those rescan days when GI dysmotility clearly becomes an issue. Eric grew worried in the waiting area as the technician attempted other means in trying to see past organs fused together. Organs literally twisted and stuck together in one very dangerous mess. My largest tumor was difficult for the technicians to find due to internal factors progressing far worse than just my last rescan. Instead of one test scheduled this morning. I ended up with a rare, but it does happen, two separate tests in order for my specialists to receive the best imaging as possible. This does not make for an easy morning when it comes to pain. Having to endure pressure placed upon angry organs all fused together due to as well intestinal paralysis did not make for things to go very easy. It actually took a little over an hour between two rounds of back-to-back scans in order for radiology to finally get some decent images of the tumors. They weren't exactly the best images, nor what radiology would had liked to had gotten, but at least the tumors were found. Tangled within a mess of strangled bowel, intestines and stuck to surrounding organs.

This is where the scare factor comes into play.

Reality. My reality.

After the final scan, we were then whisked away to find out my results. We weren't surprised to quickly learn that nothing had changed as far as the tumors. Oncology treatments not only continue to show on the big imaging screens that they royally failed, but as well there was no miraculous miracle granted to me this morning. I remain going to my every 3-month rescans expecting nothing, but at least continuing to know my battle. Knowledge is the key to survival. Knowledge is power!

It was extremely difficult for the technicians to not only find the tumors, but even radiology had a very hard time trying to at least get some sort of measurements via side view of the tumors. The problem is just as the many surgeons, clinics and even oncology had told myself and Eric, time and time again... "Your organs are literally stuck together and wrapped tightly around the tumors. The largest tumor was nearly impossible to even target during 3D radiation treatments. It seems like we treated everything, but our main targets." 9 months later, not only are things continuing to progress, but my intestines and surrounding organs are now showing signs of suffering greatly from the radiation. My organs are now more fused together than ever before with far more scar tissue that is only making matters worse. The reason we were told that the Marinol is no longer working is because things have gotten worse over time. The zero warning, out of nowhere nausea and painful vomiting is due to my intestines having very little passage for even fluids to transit in a safe manner. If the reality of being told to avoid all solid food as much as possible wasn't taken seriously before, then clearly I need no further warnings after this mornings scans. I was told how extremely important it now is to stick to a full liquid diet due to the high risks of fatal complications with my intestines having very little passage way for anything to pass. My already watered down full liquid diet must now become even further watered down so it can somehow manage to safely transit through many feet of bowel, intestines and other organs fused together. 

I will never be overweight. That has been obvious for many years now, but the real concern of continuing to drop a rapid amount of weight has everyone concerned. The problem is that with things going past the point of no return with my health, has now placed my specialists in a position of very limited things they can do for me. My immunotherapy treatments have a long way to go in hopes of successfully rebuilding a somewhat of an immune system. Procedures for placing feeding tubes are out of the question due to as we were told, "High risks of fatal infections and other complications." If I wasn't happy and literally bored living a life of nothing, but liquids. I guess I better get my big girl britches on and learn to embrace a lifetime of even further watered down liquids. Time to face what is and what will be here on out for me.

Talking about more changes! Time to start getting creative!

This mornings rescan was another wake up call for myself and Eric. As far as traveling? Once again we were told that only I could answer that question and it really depends on how I am feeling which changes on a daily, even hourly basis. The Journey concert is less than a month away, but even at this point, I can not predict the future. Sometimes you just have to roll with the punches and take life day-by-day.

Next rescan and labs... June 6th, 2017.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 9, 2017 5:48 AM EST
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March 6, 2017
Elizabeth's GP Story
Mood:  hug me
Now Playing: Day 2618-Next GP Chapter... Turning Lemons Into Lemonade :)
 
 
Hi, my name is Elizabeth
 
GP Survivor 5 1/2 years
 
I started out as a single mom living in subsidized housing. I began getting so sick that I had no idea what was happening due to the pain and nausea. At one point, I ended up crawling from my bedroom to the bathroom as my daughter who was 1 1/2 at the time asked me if I was ok? I said, "Yes." My daughter said, "Ok mommy," and went back to watching television. Once again, the nausea became more intense, then all I remember was sweating so badly that my clothes became soaked. I couldn't breathe, let alone raise my head to throw up. I was naked on the floor and couldn't move due to being in so much pain. The pain became so bad that it felt as if my insides were going to rupture. As I began crying for help, cold and helpless. My daughter came to comfort me as she began rubbing my back while talking to me. I told her to grab mommies phone, but once she grabbed it, sure enough... It was dead. As my daughter began plugging in my phone in order to charge it, I was in and out of consciousness. I wasn't sure how long I had been on the bathroom floor.
 
I am lucky that my daughter was taught how to call for an ambulance since I had been on the bathroom floor for 2 days. My daughter used a chair to unlock and open the heavy apartment door for the paramedics. I am thankful for a good friend who quickly came to my side and helped care for my daughter as I was being rushed to the hospital. While on the way to the hospital. The paramedics had to start an IV due to being so weak and barely alert. I was so weak while laying on the hospital bed that I wasn't sure if I was dying. The hospital doctor came in and began talking to me as I explained that I wasn't sure what had happened. I got very sick and next thing I knew, I was in the hospital.
 
I was advised to see my family physician after being released from the hospital with medication to begin taking at home. The medication was suppose to help assist with my pain and nausea. I went to see my family physician and was then referred to a GI specialist. I had already lost 60 lbs in 2 months. The specialist did not think it was possible for me to lose so much weight in such a short amount of time. I began to explain how sick I had been with my stomach and that I needed to know what was happening to me. The GI specialist sent me for further testing, in which, it took them awhile to actually be able to diagnosis my condition. It wasn't until they ran a few tests on my stomach before quickly finding rice that had been sitting for 3 months. My GI specialist nor hospital technicians had never seen such a thing as the rice sat in my stomach rotting due to lack of stomach acid. I was quickly referred to a nuclear study so they could see how fast my stomach was emptying. After 90 minutes, I began throwing up everything so they sent me home. I was then released back to my GI specialist and finally given a diagnosis, "You have Gastroparesis."  
 
They do not know the cause of my Gastroparesis. I now live on a very specific diet plan and medication that must be taken on a daily basis. The medication helps to somewhat relieve my stomach pain, as well nausea, but does not always work.
I struggle with finding hope and a cure for this awful disease. I still suffer on a daily basis and continue to lose weight. I have tried all the various medically recommended diets, but still look sickly.
 
I rely on Ensure to help give my body the much needed nutrients that are depleted due to my Gastroparesis. I have no immune system anymore due to my Gastroparesis. It takes me a very long time to rid any type of cold, flu or other viruses. I do receive medical injections to help with the rapid weight loss. I do my best to walk everyday when I'm not so sick. I enjoy feeling the suns warm rays and wind on my cheeks. 
I thank God everyday that I am still here as I continue my long journey looking for a cure to this disease.
 
Elizabeth M
 

 WOULD YOU LIKE TO SHARE YOUR GASTROPARESIS STORY WITH THE WORLD? 

The Gastroparesis Awareness Campaign would like to share your GP journey with the world in 2017

We are looking for fellow GP patients, family, friends and loved ones interested in sharing their GP journey for an upcoming Gastroparesis project. Please submit your story with a bio photo:

gpawarenessfund@yahoo.com

GP JOURNEY 2017

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 8, 2017 1:22 AM EST
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March 5, 2017
The GOOD Ole Days! EMPIRE HOUSE HOTEL :)
Mood:  surprised
Now Playing: Day 2617-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Can't you just SMELL the history!

LOVE IT!

I absolutely love visiting old historical sites that still hold every single bit of charm about them!

EMPIRE HOUSE HOTEL

We actually ended up staying at this beautiful and quite prestigious hotel a week ago. Talking about a brain-break from the final Duke Energy tree hacking project!. I could not handle one more day hearing several different chain saws all going on at once. NO WAY! At least everyone came to a friendly agreement on giving us a one week, 'heads-up,' instead of a mere two minute warning. It also gave us a chance to secure a room at the historic Empire House hotel. Just a hop, skip and jump! Right down the street, along the river banks of another little, lazy, river town.

What a beautiful and quite mesmerizing historic hotel!

The Empire House was built in 1816 by a well known steamboat captain and owner Daniel Brown. The historic hotel is located along the banks of the Ohio River. The Empire House offers guests a break from the hustle and bustle of everyday life by blending historic charm and modern convenience. The hotel actually has 3 floors with a porch that spans the entire length of the second floor. It was a perfect way to end the evening while relaxing on a few old wooden rocking chairs. Eric was so relaxed, that he actually ended up drifting asleep while I took a few photos of the barges going up and down the river.

We learned quite a bit of some very interesting history about the hotel. Back in the day there were rumors that the owner, Captain Daniel Brown counterfeited bank notes. While visiting out of state, in New Orleans, he was arrested and imprisoned. He later died before ever going to trial.

During the periods between 1817-1844. The second floor of the hotel served as the first home of the Masonic Lodge. It was later used for balls, club meetings and by the Tippecanoe Club which was found by President William Henry Harrison.

In the 1820's Colonel S.S. Scott operated the building as the Commodore Perry Inn. Over the course of history the three-story building has been used as a hotel and apartment building. During the 1937 flood, it was noted that the waters reached halfway up the first floor of the Empire House. At that time the building was called, Dower Apartments. The apartments were advertised back then with entirely new furnishings and bedding. The cost for renting a room per day was $1.00-$1.50.

Talking about changes within our economy! History certainly does speak for itself. In more ways than one!

Since we stayed during the week. During the hotel's slow season. The owner, Marsha had our room already cleaned, sanitized and ready by the time we walked through the front door. I have to continue remaining, as far away from germs as possible. Marsha was not only very understanding, but extremely hospitable in accommodated us. We were not only taken back by the size of this gem of a historic beauty, but the inside as well did not disappoint! It wasn't overwhelming, but tastefully done as most of the original furniture still remains through out the hotel. We even got to see actual photos of the prior owner, Captain Daniel Brown and many others who occupied the building from long, long ago. It really was like time stood still! A walk back in the day... How life used to be... The good ole days.

We had our choice of rooms, since with it being the slow season, we chose one of the first floor rooms. One of the first original rooms built back in the early 1800's with lots of antiques, a claw foot tub and even a few modern day conveniences such as a coffee maker, small refrigerator and even a television which never got touched. That was because our bed never got touched either. Talking about the thick feeling of history that surrounds you in an old hotel like the Empire House! Even stepping foot near the bed left a really uneasy feeling that we most definitely were not alone. Not in this hotel. Not in this room. Whomever was present, clearly did not want us in their bed or even near their bed.

As soon as the sun began to set... The old historic building began to come alive. In more ways than one! There was certainly something about the bed. A very uneasy feeling that whomever owned that bed, did not want you near it. Eric didn't feel comfortable. I didn't feel comfortable. Even as we tend to always do when visiting or staying over at old historic sites. Even our equipment began to verify that we were not alone nor were we going to be sleeping in whomevers bed. Thick energy led to the most craziest night! So crazy, that whomever owns that bed, we firmly believe still resides in that bed. Later the next morning, we casually asked Marsha if she knew who owned the bed in the room or if the bed was bought at an estate sale. We were told that the bed and other original contents of the historic property came with it when she bought the building. Minus an old sewing machine and a few other items located through out the hotel. I wasn't sure if the owner believed in such things that we had witnessed, however, we were actually very surprised to find out that we weren't the first ones to experience a very odd feeling of not being alone. We were told that others have had similar experiences, although not in that particular room, but within other areas of the historic hotel.

The Empire House is most definitely one-of-a-kind! Not only is the size of the historic property impressive, but so is the amount of history that still seems to remain active to this very day. An experience not only worth sharing, but worth experiencing on your very own.

A step back in time...  The GOOD ole DAYS!

EMPIRE HOUSE HOTEL

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 6, 2017 3:15 AM EST
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March 4, 2017
A SMILE At The End Of My Dental Rainbow! :)
Mood:  surprised
Now Playing: Day 2616-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Yep, I just knew this was going to happen! Another year. Another beginning of more dental work. GEESH!

I predicted that no-way would I get out of not having to visit my dentists for another round of dental issues. Not that last years dental work, dental repairs and oral surgeries were enough to tip the ole wallet and checkbook, WAYY OVER! Looks like I got a mere 3 month break, this new year, in order to start back where I left off last year. Anything dental is downright expensive! Even with dental insurance that barely covers anything past the typical once or twice a year cleanings and x-rays. My dental costs go well beyond the point of any dental plan and it appears that this year will be no exception to the dental rule.

Time for new teeth!

On a very happier, brighter note... It took 2 months, but our insurance company finally came back with their review team decision. Regardless of pre-existing conditions, they are going to cover 80% of new dental work. YAYYY! That also includes... Are you ready? FINISHING MY NEW SMILE! YES! My new smile will FINALLY be completed within the next 2 weeks! YAYYYY! There is even a silver lining to be found at the dentists office! Not only was I super surprised and beyond excited, but so was my entire dental team who have been working to help save my smile for almost a year. Good things do come to those who wait! This gal will be SMILING like a crazy SMILING fool soon! Like... Within 2 weeks!

 YAYYYYY!

New hair, new teeth, what's next? How about, a new immune system? Yep, we are slowly working on that too and come early next week. In a mere 3 days... I will be finding out the first lab results of how immunotherapy is coming along in hopes of rebuilding a new immune system. I will also find out my post-oncology treatment status with regards to Tuesday mornings rescan which will show the oncologists what is going on with my tumors. Crossing my fingers and toes for results that show a very slow growth. Nothing new and nothing rapidly increasing in size. S-l-o-w would be ideal with my tumors.

Time to find lots of reasons to SMILE at the end of my dental rainbow!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 6, 2017 3:56 AM EST
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March 3, 2017
Even Change Can Be POWERFUL!
Mood:  vegas lucky
Now Playing: Day 2615-Next GP Chapter... Turning Lemons Into Lemonade :)

 

If anyone is to embrace change. It's ME.

Constant change? Well, that can honestly get to be a bit old, but one still has to learn to take the good with the bad. Accept change and even sometimes. Embrace it!

A little not-at-fault accident last week ended up with me driving a really nice new car. I highly suggest that when seeking cancer treatments. Always take someone to drive you, because you never know how you might feel afterwards. One oncology appointment turned into a little not-at-fault accident in the parking lot. It also turned into me now driving a new 2017 Ford SUV. A little silver lining from an unforeseen inconvenience and our insurance company making sure we are well taken care of and so is our car. As far as the other vehicle, passing out behind the wheel after an oncology treatment that left them physically incapable of driving? Thankfully, they are also OK, but an unfortunate lesson for them to learn. Don't drive yourself to and from any type of cancer treatment. Especially, if you are not able to exit the parking lot in a safe manner. No worries though... It's just a car and in time, it will be back in our hands again. Repaired. In the meantime...

I LOVE THIS NEW SUV!

Super comfy, super sleek, lots of room and heated seats! BONUS! My silver lining~

We are looking forward to getting our car back from the body shop sometime next week. Or... Are we?.. Heeheeheehee!

A no-nausea and no-tremors kind of day, means it's time to embrace this evenings change with the super fabulous and talented, Michelle. NO hair? DON'T care. A really super sporty, cute cut with lots of FIERCENESS kind of change! Time to rid the rest of the nasty chemicals from a years worth of various oncology treatments from my hair. A positive change! Healthy hair=Happy hair!

I was born to ROCK short HAIR! LOVE IT!!

No photo updates. Not just yet, but don't be surprised to find me sporting all sorts of various lengths and styles of hair. I have a closet full of secret hair magic and I'm not afraid to use it either! Heeheeheehee! When it comes to going back to a super dark hair color? Well... You can forget that ever happening again. I must admit...

BLONDES DO HAVE MORE FUN!  

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 4, 2017 5:52 AM EST
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March 2, 2017
It's Official! We are B-A-C-K!
Mood:  celebratory
Now Playing: Day 2614-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's been almost 3 weeks, but we are now officially back up and running! Full CYBER SPEED ahead!

What a mess, but as with lessons in life, one only grows stronger. A lot smarter too! If you have never owned a website nor designed every aspect of your website. When all hell hits... Expect it to take the power of many to help resolve very serious domain issues. Also... Legal issues.

A tremendous round of applause for everyone involved in helping to not only get this blog back up and running, but as of this morning... All four domains connected to this blog and the Gastroparesis Awareness Campaign website are now officially back up and running.

YAYYYYYY!!

You can't keep a good gal down nor a good thing, as the Gastroparesis Awareness Campaign is soon to hit a record 11,000,000 server requests. Talking about a huge success raising Gastroparesis Awareness one person, one city, one state and one country at a time!

Thank you for being patient with us, but most importantly... Thank YOU for being YOU~

www.gastroparesisawareness.com

www.gastroparesisawareness.net

www.gastroparesisawareness.org

www.gpawarenessfund.com

http://www.gpawarenessfund.com/Kimberly/

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 4, 2017 5:46 AM EST
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March 1, 2017
HAPPY 1ST DAY OF MARCH!
Mood:  d'oh
Now Playing: Day 2613-Next GP Chapter... Turning Lemons Into Lemonade :)

 

HAPPY 1ST DAY OF MARCH!

Isn't March suppose to be considered, the luckiest month of the year? The Luck of the Irish month? If that is true, then clearly my luck of the Irish ran out after receiving my DNA ethnicity, ancestry report. No true Irish blood in this gal. If I ever could have really used some Irish luck. It was most definitely, today!

I have personally, never experienced a flash flood. I have never experienced what it is like to also be stuck in a tornado. I really would like to not experience either. Not in this lifetime, but of course, if there is something still left to experience in my lifetime. Clearly, it will find me.

The calm before the storm...

Thankfully, my oncologist gave me a medication to help me to sleep last night. The tremors and shakes from the allergy shots are horrible. They not only make me cranky, but they drive me nuts! It's no wonder that I do not drink caffeinated sodas or regular coffee. No caffeine, only decaf for this gal! I don't know how folks drink all of the various energy drinks out on the market? How do they sleep? At least I can say that I finally got some really good, quality sleep last night. As far as this evening? Forget it!

I was able to tag along with Eric, Snoreo and Littleblue this evening for a nice, relaxing walk along the river trails. The calm before the storm. The super scary, high winds, frightening hail, tornado watch, flash flood warning type of storms. A new experience to go through in life, kind of storms. EEEEE~YIKES!! Once we got home and began our normal daily household chores. The dark scary clouds started rolling into our little, lazy, river town. Generally, storms don't really bother me. That was of course, before moving into our not-so-stable home with a scary foundation. Located on the side of a wooded hill, among other houses on our street in the direct path of a very strong storm system that instantly turned me a firm believer... We need to GET THE HELL OUTTA THIS HOUSE! That kind of firm believer.

Today was one of Eric's rotating off days from work, but we already had decided for him to go ahead on doing some overtime. We have more oncology and medical bills to pay, than I would like to say. Overtime is important when it comes to never-ending medical bills. The nasty storms were already beginning to slam us on top of the hill, before Eric even had a chance to head out the door for work. I anticipated for us to eventually lose electric, but that wasn't going to happen. Not until after Eric left for work, in between the many tornado watches and flash flood warnings in our area. Talking about beginning to feel a bit nervous, as Eric was already running late leaving for work due to dodging the hail. It wasn't even, but a few hours after Eric left for work. Then all HELL hit!

I never really understood, flash floods. I assume maybe because I have never personally experienced a flash flood. Not in my lifetime. Maybe I should had said... SO FAR, not in my lifetime. That however, was about to quickly change as I got three warnings, back-to-back on my cell phone.

"FLASH FLOOD WARNING IN EFFECT."

I had yet to ever receive a weather warning on my phone. I only thought you received those if you have some sort of weather app downloaded on your phone. Talking about naive! Talking about getting to experience, first hand, what happens during a flash flood! A mere 3-minute warning before the water sounded like a bathtub quickly draining outside the living room windows. Not only did I begin to hear a very strange running water sound, but at the same time back-to-back, BANG! BANG! BANG! As the house started to once again, make very disturbing noises deep below the foundation. The hail was so loud, that I thought the windows were going to blow. The gusts of wind sounded more like a train coming through the wooded hillside. I can't remember ever being so panicked and scared in a storm. Not in this lifetime, but then again, I have yet to live in such a scary, unsafe home with a shifting and sinking foundation. We thought that the foundation game had finally stopped, but BOY we were wrong! VERY WRONG.

Forget worrying about the house at this very moment, when I firmly believed that either it was a tornado rolling through or something else. I didn't worry about myself. I was more worried about our fur children. As my fight-or-flight mode began kicking into gear! I quickly scrambled placing everyone in either cat carries, guinea pig travel boxes and even leashes on Littleblue and Snoreo. I can't believe in a mere few minutes. I was able to safely get our fur children into the basement. Although, what part of this scary house is really safe in the first place?!? There were so many loud noises around us, that I sent one text message to Eric and then the lights went out. A loud roar shook the entire house and then I could hear another loud sound as if someone let the bath water out of the tub. Right outside of the basement windows. We are lucky that our side of the street is not connected to two separate transformers that instantly blew and sounded like a bomb going off! That also shook the house as I prayed for safety and if I was granted such a wish. I would then sure the hell start looking once again, to get out of this scary, unsafe, unsettling home. AMEN!

Once the lights began to flicker. The electric on our side of the street turned back on, but the other side wasn't so lucky. As I quickly began taking everyone back upstairs. I took one look outside to see complete darkness. Only the homes on our side of the street now had electric. It was a good thing that I quickly brought our fur children back upstairs. The flash flood was not only going on outside of our home, but our basement flooded within only a mere 5 minutes after everyone was back upstairs to safety. A loud rattling sound of the basement door had me quickly grabbing a flashlight and then slowly walking down the basement steps. I wasn't very sure of what I would see next, but then again, this was another first for me. A first as well for Eric, once he got home from work and spent hours doing his best to free up the flash flood waters.

We not only had major flooding in both of our garages, but as well in the basement and all around the perimeter of our home. A first major claim on our home insurance policy. Assistance with the clean up process is the only claim covered since we still have pre-existing issues with our home. THANKS, once again, to the sellers handing us a fictitious property disclosure before buying our home of far too many lemons. This house is not only unstable, but it's outright SCARY in any type of storm! This is just the beginning of what they predict, the worst spring and summer storm season yet in history due to global warming. EEEE~YIKES! Let's just say, that myself and Eric will be doing everything in our power to get into a safe home. The sooner... The safer! Far away from this house that is nothing, but a death trap waiting to happen. This means going back to the drawing board. It won't be easy, trying to figure out what to do next, but it's a MUST.

 This evening? It was enough for me. Far enough for us!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 3, 2017 8:35 AM EST
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February 28, 2017
Immunotherapy Day... Round 2..
Mood:  chillin'
Now Playing: Day 2612-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's already the last day of February?!? Where does the time go? I have a hunch that this year is going to continue flying on by...

I used to get some really good sleep. Before this next great treatment adventure began, anyways. Lately, getting any type of decent sleep has been virtually impossible and that makes for one very cranky gal! Some days... I can't even handle myself. HA! Another early morning RISE N' SHINE! Time for the second round of outpatient Immunotherapy treatment and allergy shots to help some-what counteract the side effects. Back to the second round of post-allergy jitters and shakes. GRRRRR!

In less than a week. It's time for my next rescan and labs. The tumors never left, but only continue to annoy me and my entire team of amazing specialists. I have yet to avoid the consistent round-upon-round, upon round of antibiotics. My doctors do not anticipate for me to ever have much, if any type of break from needing to constantly be on antibiotics. It is such a slow, steady pace with not knowing if Immunotherapy drugs will help rebuild some type of immune system for my body. I have depleted what little immune system I had left before oncology treatments began last year. My body temperature is still up and down like a yo-yo. Myself and Eric were told to expect the constant changes since my body has really no sense of temperature due to what is going on with everything, internally. It's been one hell of a challenge with constant changes, but if anyone is to handle such twists, turns, ups and downs. It's this gal... Me, myself and I.

I just past my 2 year prognosis since the great tumor mystery was finally solved. February 8th was my two year mark. Let's face it. I have SO MUCH to still be thankful for in this crazy place we call, "Life." Ovarian cancer is a very tricky monster. Much like any type of cancers. The earliest it can be discovered. The better the odds of a possible cure. My ovarian issues had far too much time to brew up and then begin raising the ole red flags. We know that the largest tumor never was zapped, fried, starved or whatever you would like to call experimental oncology treatments. To make it to the 2 year mark. Is one hell of an accomplishment! Not only are my specialists still in complete awe and amazement. Every time this gal walks through their office doors. With each educational office visit, test, rescan or anything else connected to my journey. Only allows me to be that much more educated and in the know of what I am battling.

Isn't 'knowing' half of the battle anyways? As far as for myself. It sure is! Knowledge is power.

FIGHTING POWER!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: March 3, 2017 6:55 AM EST
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