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The Road Before & After Surgery
April 9, 2018
Even Hubbies TOOT! ;)
Mood:  cheeky
Now Playing: Day 3015-Chapter 3... Happiness~My Silver Lining

 

Last blog...Undecided Podcast~Blogcast for the evening was just a bit too serious for my liking!

We all know that this gal likes a good ole belly laugh or two or three or four!

Poor Eric... yep! I got em again and funnier than ever! 

Oh come now all you tight britches... even YOU toot! 

HeheheLaughinghehehe!

**I forgot to mention that our trip to the Middle East had to be postponed until next weekend... stay tuned!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 1:30 AM EDT
Updated: April 9, 2018 1:35 AM EDT
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April 8, 2018
The Ability To Connect... The Purple Bunny~
Mood:  surprised
Now Playing: Day 3014-Chapter 3... Happiness~My Silver Lining

 

We were planning on taking down the Easter decorations today. However... a little certain someone or some type of energy or whatever whomever you may want to call it decided to make their presence known.

There are times when my gift tends to become a bit silent. Then there are times like this evening where the ability to connect still never ceases to amaze me. More like... amaze us as a huge flashing light flew past us in the hallway and instantly disappeared. I saw it. But the bigger question was did Eric see it. 

Oh yes... he most definitely saw it as if almost literally jumping out of his skin, "Did you just see that?!"

 I have never lived a boring life... I doubt that my life will ever get boring while still being blessed each and every day. Celebrating the gift of life. I take great faith in knowing that one day I will finally have the long awaited answers and the reasons to have been given such a special gift. A gift that had been given to me at a very young age. The ability to connect.

Another time another moment and another opportunity caught on camera now up for viewing on our Podcast~Blogcast. Instead of taking down the Easter decorations. We decided to leave them be for a little while longer. No need to explain this video because there will always be those who believe... and there will always be skeptics.

Our loved ones may leave this earth in the physical sense. However their spiritual connection and love for us always remains in many ways shapes and forms.

A true gift from Heaven. 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 7, 2018
A Great CORE Deal!
Mood:  surprised
Now Playing: Day 3013-Chapter 3... Happiness~My Silver Lining

 

 We're all about a great deal... especially the healthy kind!

I literally live off of Core Organic beverages so imagine our surprise after seeing this weekend steal of a deal!

50 cents a bottle?! Get outta here!

If you as well drink Core Organic beverages... then you are also well aware that this little healthy organic drink runs close to over $3 a bottle at your local grocery retailers and health food stores. This can get to be Mighty expensive!

This weekend while you are out and about and live near a Big Lots store... I highly suggest making a quick pit stop to stock on up on the good stuff! $0.50 a bottle goes a long way folks! It also leaves extra money in the old pocket book to go towards other major accessories and repairs such as our fourth time around plumbing issues... pffff! 

More of that to follow because we have far more important things to worry about as we trek our way to the Middle East for tomorrow's Sunday Podcast~Blogcast treat...

Enjoy this quick little video located at the link below and get yourself on out there girl and stock up on the Good Ole healthy stuff! Hehehehehe!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 8, 2018 3:12 AM EDT
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April 6, 2018
1 Rude. 2 Nice..
Mood:  bright
Now Playing: Day 3012-Chapter 3... Happiness~My Silver Lining

 

LORDIE! 

PLEASE tell me that people are acting a fool' due to this crazy weather! 

MittensSillyKitty_450x800_.jpgWe have officially set a record of what feels like 6 months of winter weather with just a few warm days here and there over the past few months. You know what this means right? Crazy foolish people are out and about today folks! Especially here in the country where people not only may be walking around in a bad mood... but as well have no qualms about letting you have a taste of it.

 I've been to New York once during my last interview with the company I worked for and had planned to retire with being given a once-in-a-lifetime opportunity to work alongside the vice president. Of course... I hid my medical issues that had later came back to haunt me as I started becoming too ill to work while getting sick on the job. Back then I thought people in New York and New Jersey were bold and brazen. Now I've come to realize... they sure ain't got nothing on folks here in the country! LORD HAVE MERCY!

I've been through my fair share of counseling and learning the art of how to take things people say or do with a mere grain of salt. But nothing could had prepared me for the extremely loud and snappy rude woman that made a wrong choice to yell on top of her lungs a few curse words at us in front of a few young gentleman. Of all people to yell at today when I am not in the mood and this weather is making my breathing 10 times worse as if walking around with a bag over my head. So then again... I would like to think that I have learned enough by great counseling that sometimes as I've been told time and time again... if you don't take time to acknowledge and correct those that treat you wrongly... you are only allowing that person to continue their behavior to the next person in line and so on and so on.

To the woman in medical scrubs that had the audacity to literally yell curse words at us for parking in a handicap spot. Clearly she didn't see the handicap tag on my plate nor the blue placard. To do so yelling curse words while I am on the phone with my specialist and having to mute the call. Well... one should not expect me to not have a response once the car is in park. All this... just to pick up prescription medication at Walgreens... YEP.

If your day is that horrible and you have to be so bold and brazen to take it out on people for no good reason whatsoever.... then clearly you should just stay home. Also you need to reevaluate the next time you go off cursing at someone saying they are not old enough to use a handicap spot so the whole parking lot can hear you including two young gentleman.

I am not the same person as I was yesterday. I am not even the same person as I was last week. Let's be honest by saying... I am not close to being the same person I was last year either. With good counseling... nah... with GREAT counseling you learn how to respond to rude folks such as this woman we had the unfortunate opportunity to cross on our path today.

But such as with life... everything happens for a reason. 

In my case a really great reason because my response was a bit shocking for this woman in medical scrubs as I got off the phone and slowly made our way out of the car. All while this woman still insisted on rolling some words off her lips while now gaining the attention of a few others. My response... direct, clear and to the point.

"I don't appreciate the choice of taking your bad day out on me with such rude, childish behavior. To have such a bad attitude out in public and take it out on anyone... especially me is the wrong person to take it out on because I have been through a lot in my life lady and dealing with you is the least of my worries."

As a gentleman nearby started clapping after hearing my response. All I could hope for this bitter woman is that next time she decides to hastily pass judgment on others for no good reason... she reconsiders letting it roll off her lips. I am clearly no longer the person that's going to take listening to anyone chastise, belittle or put me down. Especially a stranger. I've earned this backbone and I'm not afraid anymore to use it.

I believe in respect. I also believe that respect is earned by the way you allow people to talk to you and treat you. Especially in today's society where people like this woman in of all things, medical scrubs, do not think twice about how they treat strangers while out in public. LORDIE do I ever feel for her patients! 

1 rude. 2 nice..

Instead of letting a mere stranger ruin the rest of my day when I was already not feeling well. I decided to instead respond differently as we walked into the pharmacy. I took the time to pay a sincere compliment to the woman at the register. I also made the decision to take a $10 rewards coupon and instead of using it towards our purchase. I decided to give it to someone else. You know why? Because that's what we all should be doing in this world. We all should be taking the time to pass positivity, kindness, compassion and a smile to one another. There are so many ways to spread the love... not the hate.

OurHerdOfDeerAngels_800x450_.jpg

I hope you enjoy today's super cute and funny video! A smile from me to YOU! 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 7, 2018 12:54 AM EDT
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April 5, 2018
Feeling... Comfy!
Mood:  cheeky
Now Playing: Day 3011-Chapter 3... Happiness~My Silver Lining

 

1. comfy - providing or experiencing physical well-being or relief (`comfy' is informal); "comfortable clothes."

The above describes me perfectly... especially today! 

OldcomfyshortsHA2.jpgThe attached is totally what a bit too much of that comfy feeling looks like over a decade later... HA! My favorite pair of comfy shorts that need a bit of stitching TLC this weekend. Oh come on now... we all have that one article of clothing that still stands the test of time. Even with now built-in waist air holes to boot! HAHAHAHA!

Eric absolutely hates these super comfy shorts of mine that I refuse to part ways with in this lifetime. It's no wonder he earned today's Podcast~Blogcast video! Hehehehehe!!

These are my ultimate go-to comfy shorts! My single one comfy clothes item that means my a*s ain't going nowhere today... literally! Hahahahaha! Unless... I plan on sharing the color of my drawers! BAH! Eric said one of these days they're going to magically disappear... POOF! But I say, "No way!" These shorts are here to stay!

There's nothing wrong with keeping a favorite article of comfy clothes that hopefully will last for a lifetime if you take good enough care of it.

For me... it's my SUPER comfy shorts! Just in time to add my big fluffy sweater and plug in my electric blanket to watch the first episode of Jersey Shore Family Vacation... YAYYYYY!

deenanicoleandkimberlygpcelebrityspokespersonjan2012copyright.jpg

#MyHappyPlace

www.gastroparesisawareness.com 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 10:41 PM EDT
Updated: April 5, 2018 10:59 PM EDT
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April 4, 2018
How To REALLY Annoy Your Spouse! HAHAHAHAHA!!!
Mood:  chillin'
Now Playing: Day 3010-Chapter 3... Happiness~My Silver Lining

 

You know what today's Podcast-Blogcast video is all about?

It's totally all about how to really annoy the bejesus out of your husband when your not feeling well... COOKIE MONSTER! HAHAHAHAHA!

I am finally starting to feel the pain with both of my lungs and the lower left lobe obstruction. This really made for a not-so-great night of sleep. My Critical Care specialists were finally able to control the inflammation a bit with an addition of another medication which somewhat helps. All of the latest medical findings really still has me baffled and quite concerned with how the end of my journey is going to unfold as far as suffering. Just when we believe I am done with another organ failing me... I am met with the next great challenge.

My life has not been an easy one as far as medical struggles which started not long after my birth. With recently having my care  now being taken over by an advanced team of Critical Care specialists means finally receiving those long overdue answers with regards to my health continuing to decline. What we now know is unfortunately the majority of what I have gone through in this lifetime is due to autoimmune issues which have now greatly advanced as my body continues to attack itself... my organs.

With far more understanding means having the ability to figure out how I will live the remainder of my life. One which I have decided it to be lived out peacefully and very happily. I have also made the decision to close the doors permanently on discussing anything to do with my health to anyone outside of my team of Specialists or my spouse. It has been the best choice I could have ever made for myself by just allowing the medical frustration to remain on line as mere typed out words... a Daily Journal. A way to be able to continue to vent out my frustrations without allowing my emotions to get the best of me which has happened when discussing my health issues with others. I have grown... and I have learned through out my journey. I no longer feel the need to discuss my health or answer questions regarding my health which a lot of times meant subjecting myself to snarky comments by those who will never, nor would they ever... understand.

Hopefully by continuing to write about my journey and sharing far happier video moments will also be of great help to others whom may also be struggling in their own personal Journey.

Myself and Eric were hopeful that they would be able to place me on the lung transplant list. However now that we know everything is coming down to a major autoimmune issue... they can not place me on any type of transplant list due to the realization that my body would also go after any type of transplanted organ. This leaves my Critical Care specialists in a position where there is not much else they can do for me. Some days are good and of course... some days are going to be bad. 

I have been down the same road through out my journey since the beginning of birth and it hasn't been an easy one. But at the end of the day... I keep going. God could have not given the greatest battles to a far stronger person... me.

If there is any silver lining out of learning that my condition continues to advance with no end in sight... is the realization that each and every day there is still a reason to smile and OH MOST DEFINATELY a reason to laugh!

 And of course... when you're not feeling well and really in the mood to just annoy the bejesus out of your spouse... just remember the COOKIE MONSTER

HeheheTongue outhehehe!!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 3, 2018
Cookin' With Little Ole Me~VEGAN STYLE SOUTHERN GREENS DE'LISH!
Mood:  on fire
Now Playing: Day 3009-Chapter 3... Happiness~My Silver Lining

 

You know what I'm going to do with all the recent bad news? 

Why of course girl!

I'm going to get myself to COOKIN'... and I'm going to do so with a huge smile and plenty of laughter! So I've been asked more than a few times or two since this new Podcast-Blogcast website is finally up and running... will I be posting cooking videos online to share with everyone? You bet I will! Wink

Behold... this evenings first of many upcoming cooking Podcast-Blogcast episodes with Little Ole Me~

The first cooking episode is all about the little ole crockpot... or the BIG OLE CROCKPOT.... depending on which size you may be in possession of in your kitchen. 

Enjoy this evenings first cooking video located on our Podcast-Blogcast link at the bottom of this post!

Cookin'with Little Ole MeKiss~

VEGAN STYLE SOUTHERN GREENS DE'LISH

VeganStyleSouthernGreensDELISHbyLilOLEme_800x465_.jpg

One package of Gardein classic meatless vegan meatballs

2 cups of white rice-Minute Rice

2 cups of water

1 can-27 oz of seasoned southern style mixed greens-Glory brand

You can season to your liking with a little mild or go a little WILD with the following...

Kikkoman Stir Fry & Sweet and Sour Sauce

Black Pepper

Sriracha HOT Chili Sauce

If you're using the Crock-Pot we all know everything eventually cooks together in a slow... simmering... manner. Cook meatless meatballs on high in Crock-Pot and crumble with fork while stirring in 2 cups of white rice and two cups of water.

You can then add your can of mixed southern-style greens, pepper and Kikkoman sauces.

Cook on high for 20 minutes. 

Turn down to a warm simmer while adding your Sriracha HOT Chili Sauce to your liking. Remember if you're going for mild... a little goes a long way. If you're going for WILD... a lot goes a heck of a long way! Hahahaha!

Once everything has been stirred then set your Crockpot on warm to simmer for 10 additional minutes.

Now turn off the Crock-Pot and get yourself a little taste of the good ole HEALTHY stuff! This dish is high in protein, low in calories and packed full of flavor!

VeganStyleSouthernGreensDELISH1_800x492_.jpg

VEGAN STYLE SOUTHERN GREEN DE'LISH

Recipe by... Little Ole MeKiss~

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 4, 2018 1:13 AM EDT
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April 2, 2018
When All Else Fails...
Mood:  chillin'
Now Playing: Day 3008-Chapter 3... Happiness~My Silver Lining

 

When all else fails...

We always have our epic Easter photos and videos to fall back on with plenty of laughter and a whole lotta smiles! Hahahahaha!

Today's meeting to go over last weeks test results with my Critical Care specialists... no laughter, zero smiles.

We always walk into each appointment with zero expectations. I guess what we also need to go into each appointment with is expecting more bad news.

I am in the right hands of two amazing specialists... yet they still can not offer me much more hope as far as treatment drugs that will keep me stable. Today's meeting brought with it more test results and more bad news.

I am in the right hands of two amazing specialists... yet the next hands seem to be nothing of this world.

At the end of the day... there are always far better, happier moments of memorable~bliss to fall back on.

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 3, 2018 3:42 AM EDT
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April 1, 2018
HAPPY~HOPPY~EASTER
Mood:  happy
Now Playing: Day 3007-Chapter 3... Happiness~My Silver Lining

 

I must admit... this Easter is most definitely one to remember!

20180401_222931_resized.jpg

What we didn't remember is that we do not have our dining room set because it is back across state lines in storage. I asked Eric to bring one chair back home the other day when he went to retrieve storage totes filled with Easter decorations and other personal belongings. Since a few of his friends that offered to help move a few large items were out of town for the Easter holiday he could not pick up our dining room set. We have been so scatterbrained lately that we didn't even realize the absent table and chairs for Easter. Ironically.... it didn't dawn on us until early this morning. Hahahahaha!

20180401_202452_resized_1.jpgThey say it isn't what you got... but what you do with what you got that really counts!

With no table and only one chair... I was still determined as ever to make this an Easter to remember! The ultimate Easter to chalk up for the books!

And of course... a once-in-a-lifetime moment... a once-in-a-lifetime Easter... a once-in-a-lifetime holiday recreation of my own version of what I would like to call Five Star VIP Easter brunch lunch seating for two! Hehehehehehe! 

20180401_222914_resized.jpgThere is no need to get into too much further detail. Because in all actuality... this video says it all.

Another moment... another day... another reason to smile and share more than a few chuckles while creating memories that will last for a lifetime. Even the capability to catch it all on today's Podcast~Blogcast video.

We had the best Easter that we can ever remember and yet we never laughed so loud making do with what we got and what we got is more than enough to get us by... and quite a few laughs to boot! 

HAPPY~HOPPY~EASTER

img1522641248707.jpg

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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March 31, 2018
Glorious~
Mood:  hug me
Now Playing: Day 3006-Chapter 3... Happiness~My Silver Lining

 

There are times in our life when we find ourselves struggling to find the right words... trying to make sense out of something that seems so senseless... yet so unfair.

My Critical Care specialists received another report from one of many tests that were performed this week. We are fortunate to have the Head of Radiology be the one reading each and every single test very carefully over this holiday weekend so my specialists can quickly figure out why home treatments are not working for me. The treatments will work for a few days... then I am once again left struggling to catch my breath on some of the most simplest tasks. I have been a super neat freak my entire life. Some may even call my excessive way of making sure everything stays super clean and spotless as an OCD clean freak... hehehehehehe! I am known to leave no dirt behind and even enjoy vacuuming on a daily basis. I like my home neat, clean and very tidy! That pretty much goes for all of my belongings as well making sure that our fur children are beyond taken care of and always well groomed.

Lately... even doing the most simplest of tasks has left me feeling winded.

We still have a few other reports to come back from the Head of Radiology... but were advised that everything will be available to my specialists no later than tomorrow evening... Easter. I am scheduled to sit down in person with my Critical Care specialists next week, Monday morning. This morning one of the long awaited nuclear scan reports of my lungs came back with further news that isn't what anyone could had anticipated. Sometimes... finding out new news on an ever declining body that is failing me seems as if this is someone else's body... not mine.

Believing that the largest ovarian tumor would surely one day be my ultimate demise... only to then come to the realization of something far more aggressive and far more scarier has me scrambling to attempt some sort of control with the end of my journey. I fear the worst come early Monday morning with my specialists... yet... I am not alone. Eric is growing beyond fearful as one report after another is slowly coming back with more bad news than one person can handle in a lifetime.

When I sit here while Eric is at work and really let reality hit me square in the face. The fear... the fear is real... yet somehow through this medical journey I lost the control of stopping what is far greater than I could ever battle.

Tomorrow is Easter and to most folks that means large family gatherings, big elaborate dinners and even bigger Easter egg hunts and bright colorful candy filled baskets. But for us... this year will be our last Easter to celebrate as a family. That sentence is the hardest sentence to type whether alone to accept. Somehow through such a dark time in our lives, we still find the strength and will to carry on because sometimes finding a way to carry on is the best one can do with a grim reality.

As we shake our heads in disbelief. We are now questioning everything. What is really the point in one final test that is scheduled for later next week? Will there be any further treatment options or will I have to greatly suffer through the rest of my journey? What about current medical expenses and future medical costs... and then sitting down Monday morning with my specialists to find out the prognosis due to my lungs now being greatly affected. Through it all and then some... we must still find a way to carry on with as much laughter that life will allow us and everyday reasons to still smile.

You know... this song pretty much sums up the last few years of my journey as I sit here and wipe away my tears... telling myself... you fought one hell of a battle! Don't cry... be proud!

VERY PROUD!

Glorious (Macklemore)

You know I'm back like I never left (I never left)
Another sprint, another step (another step)
Another day, another breath (another breath)
Been chasing dreams, but I never slept (I never slept)

I got a new attitude and a lease on life
And some peace of mind
Seek and I find I can sleep when I die
Wanna piece of the pie, grab the keys to the ride
And sht I'm straight
I'm on my wave, I'm on my wave
Get out my wake, I'm running late, what can I say?
I heard you die twice, once when they bury you in the grave
And the second time is the last time that somebody mentions your name
So when I leave here on this earth, did I take more than I gave?
Did I look out for the people or did I do it all for fame?
Legend, it's exodus searching for euphoria
Trudging through the mud to find the present, no ignoring us
Got 20,000 deep off in the street like we some warriors
My mama told me never bow your head, woo!

I feel glorious, glorious
Got a chance to start again
I was born for this, born for this
It's who I am, how could I forget?
I made it through the darkest part of the night
And now I see the sunrise
Now I feel glorious, glorious
I feel glorious, glorious

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 11:45 PM EDT
Updated: April 1, 2018 12:33 AM EDT
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