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The Road Before & After Surgery
April 11, 2018
One Word...
Mood:  not sure
Now Playing: Day 3017-Chapter 3... Happiness~My Silver Lining

 

Today's Podcast~Blogcast video pretty much sums up our hectic and crazy life as this morning we made our way back up to the hospital... again. More appointments, more testing and more bad news that doesn't make things seem very promising.

It's hard to comprehend one organ after another beginning to fail me. It's even worse to find out today that fast-track, maximum course of 3D radiation therapy from almost 2 years ago has caused another complication. Another reason for concern as radiation therapy has now been blamed for causing the lower lobe obstruction. My Critical Care Specialists have now isolated everything as far as two separate issues with my lungs and a connected issue with my heart. This really has been a life long struggle with what they know now as serious autoimmune issues that also play an important role with upper lobe scarring in both of my lungs. My body has continued going after its own organs which has caused a slew of problems when we thought ovarian tumors (cancer) was a big enough concern. We might as well forget gastroparesis because that seems to now be the least of my worries. 

20180408_192955_resized_1.jpgAt the end of the day as I set my cell phone alarm for two additional times to take more medication than I could have ever imagined to be on in this lifetime... just to be able to breathe. I look forward to embracing another good day. Far happier days that mean plenty of smiles and a whole lotta laughter that literally takes your breath away... but in a good way!

It's been another day coming to terms with more unforeseen permanent changes in my life due to medical reasons. Another day realizing why it's so important to embrace the little things in life that bring the most happiness. The little things that we all take for granted.

"The secret to reach the butterflies is not to run after them, the best secret is to take care of your garden with love and patience so that they get to you. Normally the things that have cost you the most to achieve are the ones that are most enjoyed."

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 10:46 PM EDT
Updated: April 11, 2018 10:53 PM EDT
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April 10, 2018
Earthy To-Go Snacks... By Little Ole Me
Mood:  bright
Now Playing: Day 3016-Chapter 3... Happiness~My Silver Lining

 

Tomorrow marks another start to a bit more serious of a day at the hospital while meeting with my Cardiologist and Critical Care team. Needing to still get the old lungs and heart back on track and finally somewhat stable.

In the meantime...  there's always room to make some funnies!

Today's recipe by Little Ole Me is something quick, easy and a whole lot healthy! An earthy heart-healthy little treat for anyone on the go that needs some extra energy... a little pep to the old step! 

"Earthy To-Go Treats... by Little Ole Me"

There really isn't much to throwing this little healthy mix together. All you need is a few minutes and a couple of plastic or Tupperware containers. It most definitely beats all the unhealthy stuff that sure isn't good to snack on throughout the day. Gastroparesis for me means a lifetime of trial and error. There are recipes that I have created over the years that actually do pretty well for me! Like this super easy earthy to-go treat. Set your clocks for a few minutes... actually less than five because here's all you need:

2 plastic or Tupperware containers

One box of Very Berry Cheerios

One box of Kashi Organic Blueberry Clusters cereal

One box of Sun-Maid Golden California Raisins

For those wanting extra fiber to help cinch the old waistline during this upcoming bikini season... Kashi Go-Lean cereal pretty much says it all! It will lean you out really quick and then some! Hahahahaha! After last night's episode of both of us trying the Kashi Go-Lean... I think I will stick with the lower fiber content of Kashi Blueberry Clusters Organic cereal! 

All you need to do is get your containers ready and add a little bit of all three ingredients to your liking. Snap that lid on tightly and give it a few good shakes! 

Not only is this a super healthy, high-fiber and low-calorie quick snack on the go... but it's super easy to make and to store in any size container. I personally like to use the smaller containers that fit in my purse.

Bon Appetit and enjoy today's funny and informative recipe video located at the link below! 

"Earthy To-Go Treats"

By Little Ole Me

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:41 AM EDT
Updated: April 10, 2018 12:52 AM EDT
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April 9, 2018
Even Hubbies TOOT! ;)
Mood:  cheeky
Now Playing: Day 3015-Chapter 3... Happiness~My Silver Lining

 

Last blog...Undecided Podcast~Blogcast for the evening was just a bit too serious for my liking!

We all know that this gal likes a good ole belly laugh or two or three or four!

Poor Eric... yep! I got em again and funnier than ever! 

Oh come now all you tight britches... even YOU toot! 

HeheheLaughinghehehe!

**I forgot to mention that our trip to the Middle East had to be postponed until next weekend... stay tuned!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 1:30 AM EDT
Updated: April 9, 2018 1:35 AM EDT
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April 8, 2018
The Ability To Connect... The Purple Bunny~
Mood:  surprised
Now Playing: Day 3014-Chapter 3... Happiness~My Silver Lining

 

We were planning on taking down the Easter decorations today. However... a little certain someone or some type of energy or whatever whomever you may want to call it decided to make their presence known.

There are times when my gift tends to become a bit silent. Then there are times like this evening where the ability to connect still never ceases to amaze me. More like... amaze us as a huge flashing light flew past us in the hallway and instantly disappeared. I saw it. But the bigger question was did Eric see it. 

Oh yes... he most definitely saw it as if almost literally jumping out of his skin, "Did you just see that?!"

 I have never lived a boring life... I doubt that my life will ever get boring while still being blessed each and every day. Celebrating the gift of life. I take great faith in knowing that one day I will finally have the long awaited answers and the reasons to have been given such a special gift. A gift that had been given to me at a very young age. The ability to connect.

Another time another moment and another opportunity caught on camera now up for viewing on our Podcast~Blogcast. Instead of taking down the Easter decorations. We decided to leave them be for a little while longer. No need to explain this video because there will always be those who believe... and there will always be skeptics.

Our loved ones may leave this earth in the physical sense. However their spiritual connection and love for us always remains in many ways shapes and forms.

A true gift from Heaven. 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 7, 2018
A Great CORE Deal!
Mood:  surprised
Now Playing: Day 3013-Chapter 3... Happiness~My Silver Lining

 

 We're all about a great deal... especially the healthy kind!

I literally live off of Core Organic beverages so imagine our surprise after seeing this weekend steal of a deal!

50 cents a bottle?! Get outta here!

If you as well drink Core Organic beverages... then you are also well aware that this little healthy organic drink runs close to over $3 a bottle at your local grocery retailers and health food stores. This can get to be Mighty expensive!

This weekend while you are out and about and live near a Big Lots store... I highly suggest making a quick pit stop to stock on up on the good stuff! $0.50 a bottle goes a long way folks! It also leaves extra money in the old pocket book to go towards other major accessories and repairs such as our fourth time around plumbing issues... pffff! 

More of that to follow because we have far more important things to worry about as we trek our way to the Middle East for tomorrow's Sunday Podcast~Blogcast treat...

Enjoy this quick little video located at the link below and get yourself on out there girl and stock up on the Good Ole healthy stuff! Hehehehehe!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 8, 2018 3:12 AM EDT
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April 6, 2018
1 Rude. 2 Nice..
Mood:  bright
Now Playing: Day 3012-Chapter 3... Happiness~My Silver Lining

 

LORDIE! 

PLEASE tell me that people are acting a fool' due to this crazy weather! 

MittensSillyKitty_450x800_.jpgWe have officially set a record of what feels like 6 months of winter weather with just a few warm days here and there over the past few months. You know what this means right? Crazy foolish people are out and about today folks! Especially here in the country where people not only may be walking around in a bad mood... but as well have no qualms about letting you have a taste of it.

 I've been to New York once during my last interview with the company I worked for and had planned to retire with being given a once-in-a-lifetime opportunity to work alongside the vice president. Of course... I hid my medical issues that had later came back to haunt me as I started becoming too ill to work while getting sick on the job. Back then I thought people in New York and New Jersey were bold and brazen. Now I've come to realize... they sure ain't got nothing on folks here in the country! LORD HAVE MERCY!

I've been through my fair share of counseling and learning the art of how to take things people say or do with a mere grain of salt. But nothing could had prepared me for the extremely loud and snappy rude woman that made a wrong choice to yell on top of her lungs a few curse words at us in front of a few young gentleman. Of all people to yell at today when I am not in the mood and this weather is making my breathing 10 times worse as if walking around with a bag over my head. So then again... I would like to think that I have learned enough by great counseling that sometimes as I've been told time and time again... if you don't take time to acknowledge and correct those that treat you wrongly... you are only allowing that person to continue their behavior to the next person in line and so on and so on.

To the woman in medical scrubs that had the audacity to literally yell curse words at us for parking in a handicap spot. Clearly she didn't see the handicap tag on my plate nor the blue placard. To do so yelling curse words while I am on the phone with my specialist and having to mute the call. Well... one should not expect me to not have a response once the car is in park. All this... just to pick up prescription medication at Walgreens... YEP.

If your day is that horrible and you have to be so bold and brazen to take it out on people for no good reason whatsoever.... then clearly you should just stay home. Also you need to reevaluate the next time you go off cursing at someone saying they are not old enough to use a handicap spot so the whole parking lot can hear you including two young gentleman.

I am not the same person as I was yesterday. I am not even the same person as I was last week. Let's be honest by saying... I am not close to being the same person I was last year either. With good counseling... nah... with GREAT counseling you learn how to respond to rude folks such as this woman we had the unfortunate opportunity to cross on our path today.

But such as with life... everything happens for a reason. 

In my case a really great reason because my response was a bit shocking for this woman in medical scrubs as I got off the phone and slowly made our way out of the car. All while this woman still insisted on rolling some words off her lips while now gaining the attention of a few others. My response... direct, clear and to the point.

"I don't appreciate the choice of taking your bad day out on me with such rude, childish behavior. To have such a bad attitude out in public and take it out on anyone... especially me is the wrong person to take it out on because I have been through a lot in my life lady and dealing with you is the least of my worries."

As a gentleman nearby started clapping after hearing my response. All I could hope for this bitter woman is that next time she decides to hastily pass judgment on others for no good reason... she reconsiders letting it roll off her lips. I am clearly no longer the person that's going to take listening to anyone chastise, belittle or put me down. Especially a stranger. I've earned this backbone and I'm not afraid anymore to use it.

I believe in respect. I also believe that respect is earned by the way you allow people to talk to you and treat you. Especially in today's society where people like this woman in of all things, medical scrubs, do not think twice about how they treat strangers while out in public. LORDIE do I ever feel for her patients! 

1 rude. 2 nice..

Instead of letting a mere stranger ruin the rest of my day when I was already not feeling well. I decided to instead respond differently as we walked into the pharmacy. I took the time to pay a sincere compliment to the woman at the register. I also made the decision to take a $10 rewards coupon and instead of using it towards our purchase. I decided to give it to someone else. You know why? Because that's what we all should be doing in this world. We all should be taking the time to pass positivity, kindness, compassion and a smile to one another. There are so many ways to spread the love... not the hate.

OurHerdOfDeerAngels_800x450_.jpg

I hope you enjoy today's super cute and funny video! A smile from me to YOU! 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 7, 2018 12:54 AM EDT
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April 5, 2018
Feeling... Comfy!
Mood:  cheeky
Now Playing: Day 3011-Chapter 3... Happiness~My Silver Lining

 

1. comfy - providing or experiencing physical well-being or relief (`comfy' is informal); "comfortable clothes."

The above describes me perfectly... especially today! 

OldcomfyshortsHA2.jpgThe attached is totally what a bit too much of that comfy feeling looks like over a decade later... HA! My favorite pair of comfy shorts that need a bit of stitching TLC this weekend. Oh come on now... we all have that one article of clothing that still stands the test of time. Even with now built-in waist air holes to boot! HAHAHAHA!

Eric absolutely hates these super comfy shorts of mine that I refuse to part ways with in this lifetime. It's no wonder he earned today's Podcast~Blogcast video! Hehehehehe!!

These are my ultimate go-to comfy shorts! My single one comfy clothes item that means my a*s ain't going nowhere today... literally! Hahahahaha! Unless... I plan on sharing the color of my drawers! BAH! Eric said one of these days they're going to magically disappear... POOF! But I say, "No way!" These shorts are here to stay!

There's nothing wrong with keeping a favorite article of comfy clothes that hopefully will last for a lifetime if you take good enough care of it.

For me... it's my SUPER comfy shorts! Just in time to add my big fluffy sweater and plug in my electric blanket to watch the first episode of Jersey Shore Family Vacation... YAYYYYY!

deenanicoleandkimberlygpcelebrityspokespersonjan2012copyright.jpg

#MyHappyPlace

www.gastroparesisawareness.com 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 10:41 PM EDT
Updated: April 5, 2018 10:59 PM EDT
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April 4, 2018
How To REALLY Annoy Your Spouse! HAHAHAHAHA!!!
Mood:  chillin'
Now Playing: Day 3010-Chapter 3... Happiness~My Silver Lining

 

You know what today's Podcast-Blogcast video is all about?

It's totally all about how to really annoy the bejesus out of your husband when your not feeling well... COOKIE MONSTER! HAHAHAHAHA!

I am finally starting to feel the pain with both of my lungs and the lower left lobe obstruction. This really made for a not-so-great night of sleep. My Critical Care specialists were finally able to control the inflammation a bit with an addition of another medication which somewhat helps. All of the latest medical findings really still has me baffled and quite concerned with how the end of my journey is going to unfold as far as suffering. Just when we believe I am done with another organ failing me... I am met with the next great challenge.

My life has not been an easy one as far as medical struggles which started not long after my birth. With recently having my care  now being taken over by an advanced team of Critical Care specialists means finally receiving those long overdue answers with regards to my health continuing to decline. What we now know is unfortunately the majority of what I have gone through in this lifetime is due to autoimmune issues which have now greatly advanced as my body continues to attack itself... my organs.

With far more understanding means having the ability to figure out how I will live the remainder of my life. One which I have decided it to be lived out peacefully and very happily. I have also made the decision to close the doors permanently on discussing anything to do with my health to anyone outside of my team of Specialists or my spouse. It has been the best choice I could have ever made for myself by just allowing the medical frustration to remain on line as mere typed out words... a Daily Journal. A way to be able to continue to vent out my frustrations without allowing my emotions to get the best of me which has happened when discussing my health issues with others. I have grown... and I have learned through out my journey. I no longer feel the need to discuss my health or answer questions regarding my health which a lot of times meant subjecting myself to snarky comments by those who will never, nor would they ever... understand.

Hopefully by continuing to write about my journey and sharing far happier video moments will also be of great help to others whom may also be struggling in their own personal Journey.

Myself and Eric were hopeful that they would be able to place me on the lung transplant list. However now that we know everything is coming down to a major autoimmune issue... they can not place me on any type of transplant list due to the realization that my body would also go after any type of transplanted organ. This leaves my Critical Care specialists in a position where there is not much else they can do for me. Some days are good and of course... some days are going to be bad. 

I have been down the same road through out my journey since the beginning of birth and it hasn't been an easy one. But at the end of the day... I keep going. God could have not given the greatest battles to a far stronger person... me.

If there is any silver lining out of learning that my condition continues to advance with no end in sight... is the realization that each and every day there is still a reason to smile and OH MOST DEFINATELY a reason to laugh!

 And of course... when you're not feeling well and really in the mood to just annoy the bejesus out of your spouse... just remember the COOKIE MONSTER

HeheheTongue outhehehe!!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 3, 2018
Cookin' With Little Ole Me~VEGAN STYLE SOUTHERN GREENS DE'LISH!
Mood:  on fire
Now Playing: Day 3009-Chapter 3... Happiness~My Silver Lining

 

You know what I'm going to do with all the recent bad news? 

Why of course girl!

I'm going to get myself to COOKIN'... and I'm going to do so with a huge smile and plenty of laughter! So I've been asked more than a few times or two since this new Podcast-Blogcast website is finally up and running... will I be posting cooking videos online to share with everyone? You bet I will! Wink

Behold... this evenings first of many upcoming cooking Podcast-Blogcast episodes with Little Ole Me~

The first cooking episode is all about the little ole crockpot... or the BIG OLE CROCKPOT.... depending on which size you may be in possession of in your kitchen. 

Enjoy this evenings first cooking video located on our Podcast-Blogcast link at the bottom of this post!

Cookin'with Little Ole MeKiss~

VEGAN STYLE SOUTHERN GREENS DE'LISH

VeganStyleSouthernGreensDELISHbyLilOLEme_800x465_.jpg

One package of Gardein classic meatless vegan meatballs

2 cups of white rice-Minute Rice

2 cups of water

1 can-27 oz of seasoned southern style mixed greens-Glory brand

You can season to your liking with a little mild or go a little WILD with the following...

Kikkoman Stir Fry & Sweet and Sour Sauce

Black Pepper

Sriracha HOT Chili Sauce

If you're using the Crock-Pot we all know everything eventually cooks together in a slow... simmering... manner. Cook meatless meatballs on high in Crock-Pot and crumble with fork while stirring in 2 cups of white rice and two cups of water.

You can then add your can of mixed southern-style greens, pepper and Kikkoman sauces.

Cook on high for 20 minutes. 

Turn down to a warm simmer while adding your Sriracha HOT Chili Sauce to your liking. Remember if you're going for mild... a little goes a long way. If you're going for WILD... a lot goes a heck of a long way! Hahahaha!

Once everything has been stirred then set your Crockpot on warm to simmer for 10 additional minutes.

Now turn off the Crock-Pot and get yourself a little taste of the good ole HEALTHY stuff! This dish is high in protein, low in calories and packed full of flavor!

VeganStyleSouthernGreensDELISH1_800x492_.jpg

VEGAN STYLE SOUTHERN GREEN DE'LISH

Recipe by... Little Ole MeKiss~

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 4, 2018 1:13 AM EDT
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April 2, 2018
When All Else Fails...
Mood:  chillin'
Now Playing: Day 3008-Chapter 3... Happiness~My Silver Lining

 

When all else fails...

We always have our epic Easter photos and videos to fall back on with plenty of laughter and a whole lotta smiles! Hahahahaha!

Today's meeting to go over last weeks test results with my Critical Care specialists... no laughter, zero smiles.

We always walk into each appointment with zero expectations. I guess what we also need to go into each appointment with is expecting more bad news.

I am in the right hands of two amazing specialists... yet they still can not offer me much more hope as far as treatment drugs that will keep me stable. Today's meeting brought with it more test results and more bad news.

I am in the right hands of two amazing specialists... yet the next hands seem to be nothing of this world.

At the end of the day... there are always far better, happier moments of memorable~bliss to fall back on.

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 3, 2018 3:42 AM EDT
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