Now Playing: Day 3010-Chapter 3... Happiness~My Silver Lining
You know what today's Podcast-Blogcast video is all about?
It's totally all about how to really annoy the bejesus out of your husband when your not feeling well... COOKIE MONSTER! HAHAHAHAHA!
I am finally starting to feel the pain with both of my lungs and the lower left lobe obstruction. This really made for a not-so-great night of sleep. My Critical Care specialists were finally able to control the inflammation a bit with an addition of another medication which somewhat helps. All of the latest medical findings really still has me baffled and quite concerned with how the end of my journey is going to unfold as far as suffering. Just when we believe I am done with another organ failing me... I am met with the next great challenge.
My life has not been an easy one as far as medical struggles which started not long after my birth. With recently having my care now being taken over by an advanced team of Critical Care specialists means finally receiving those long overdue answers with regards to my health continuing to decline. What we now know is unfortunately the majority of what I have gone through in this lifetime is due to autoimmune issues which have now greatly advanced as my body continues to attack itself... my organs.
With far more understanding means having the ability to figure out how I will live the remainder of my life. One which I have decided it to be lived out peacefully and very happily. I have also made the decision to close the doors permanently on discussing anything to do with my health to anyone outside of my team of Specialists or my spouse. It has been the best choice I could have ever made for myself by just allowing the medical frustration to remain on line as mere typed out words... a Daily Journal. A way to be able to continue to vent out my frustrations without allowing my emotions to get the best of me which has happened when discussing my health issues with others. I have grown... and I have learned through out my journey. I no longer feel the need to discuss my health or answer questions regarding my health which a lot of times meant subjecting myself to snarky comments by those who will never, nor would they ever... understand.
Hopefully by continuing to write about my journey and sharing far happier video moments will also be of great help to others whom may also be struggling in their own personal Journey.
Myself and Eric were hopeful that they would be able to place me on the lung transplant list. However now that we know everything is coming down to a major autoimmune issue... they can not place me on any type of transplant list due to the realization that my body would also go after any type of transplanted organ. This leaves my Critical Care specialists in a position where there is not much else they can do for me. Some days are good and of course... some days are going to be bad.
I have been down the same road through out my journey since the beginning of birth and it hasn't been an easy one. But at the end of the day... I keep going. God could have not given the greatest battles to a far stronger person... me.
If there is any silver lining out of learning that my condition continues to advance with no end in sight... is the realization that each and every day there is still a reason to smile and OH MOST DEFINATELY a reason to laugh!
And of course... when you're not feeling well and really in the mood to just annoy the bejesus out of your spouse... just remember the COOKIE MONSTER!
"Our Crazy Little Life"
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The ourcrazylittlelife's Podcast~Blogcast