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The Road Before & After Surgery
April 1, 2018
HAPPY~HOPPY~EASTER
Mood:  happy
Now Playing: Day 3007-Chapter 3... Happiness~My Silver Lining

 

I must admit... this Easter is most definitely one to remember!

20180401_222931_resized.jpg

What we didn't remember is that we do not have our dining room set because it is back across state lines in storage. I asked Eric to bring one chair back home the other day when he went to retrieve storage totes filled with Easter decorations and other personal belongings. Since a few of his friends that offered to help move a few large items were out of town for the Easter holiday he could not pick up our dining room set. We have been so scatterbrained lately that we didn't even realize the absent table and chairs for Easter. Ironically.... it didn't dawn on us until early this morning. Hahahahaha!

20180401_202452_resized_1.jpgThey say it isn't what you got... but what you do with what you got that really counts!

With no table and only one chair... I was still determined as ever to make this an Easter to remember! The ultimate Easter to chalk up for the books!

And of course... a once-in-a-lifetime moment... a once-in-a-lifetime Easter... a once-in-a-lifetime holiday recreation of my own version of what I would like to call Five Star VIP Easter brunch lunch seating for two! Hehehehehehe! 

20180401_222914_resized.jpgThere is no need to get into too much further detail. Because in all actuality... this video says it all.

Another moment... another day... another reason to smile and share more than a few chuckles while creating memories that will last for a lifetime. Even the capability to catch it all on today's Podcast~Blogcast video.

We had the best Easter that we can ever remember and yet we never laughed so loud making do with what we got and what we got is more than enough to get us by... and quite a few laughs to boot! 

HAPPY~HOPPY~EASTER

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"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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March 31, 2018
Glorious~
Mood:  hug me
Now Playing: Day 3006-Chapter 3... Happiness~My Silver Lining

 

There are times in our life when we find ourselves struggling to find the right words... trying to make sense out of something that seems so senseless... yet so unfair.

My Critical Care specialists received another report from one of many tests that were performed this week. We are fortunate to have the Head of Radiology be the one reading each and every single test very carefully over this holiday weekend so my specialists can quickly figure out why home treatments are not working for me. The treatments will work for a few days... then I am once again left struggling to catch my breath on some of the most simplest tasks. I have been a super neat freak my entire life. Some may even call my excessive way of making sure everything stays super clean and spotless as an OCD clean freak... hehehehehehe! I am known to leave no dirt behind and even enjoy vacuuming on a daily basis. I like my home neat, clean and very tidy! That pretty much goes for all of my belongings as well making sure that our fur children are beyond taken care of and always well groomed.

Lately... even doing the most simplest of tasks has left me feeling winded.

We still have a few other reports to come back from the Head of Radiology... but were advised that everything will be available to my specialists no later than tomorrow evening... Easter. I am scheduled to sit down in person with my Critical Care specialists next week, Monday morning. This morning one of the long awaited nuclear scan reports of my lungs came back with further news that isn't what anyone could had anticipated. Sometimes... finding out new news on an ever declining body that is failing me seems as if this is someone else's body... not mine.

Believing that the largest ovarian tumor would surely one day be my ultimate demise... only to then come to the realization of something far more aggressive and far more scarier has me scrambling to attempt some sort of control with the end of my journey. I fear the worst come early Monday morning with my specialists... yet... I am not alone. Eric is growing beyond fearful as one report after another is slowly coming back with more bad news than one person can handle in a lifetime.

When I sit here while Eric is at work and really let reality hit me square in the face. The fear... the fear is real... yet somehow through this medical journey I lost the control of stopping what is far greater than I could ever battle.

Tomorrow is Easter and to most folks that means large family gatherings, big elaborate dinners and even bigger Easter egg hunts and bright colorful candy filled baskets. But for us... this year will be our last Easter to celebrate as a family. That sentence is the hardest sentence to type whether alone to accept. Somehow through such a dark time in our lives, we still find the strength and will to carry on because sometimes finding a way to carry on is the best one can do with a grim reality.

As we shake our heads in disbelief. We are now questioning everything. What is really the point in one final test that is scheduled for later next week? Will there be any further treatment options or will I have to greatly suffer through the rest of my journey? What about current medical expenses and future medical costs... and then sitting down Monday morning with my specialists to find out the prognosis due to my lungs now being greatly affected. Through it all and then some... we must still find a way to carry on with as much laughter that life will allow us and everyday reasons to still smile.

You know... this song pretty much sums up the last few years of my journey as I sit here and wipe away my tears... telling myself... you fought one hell of a battle! Don't cry... be proud!

VERY PROUD!

Glorious (Macklemore)

You know I'm back like I never left (I never left)
Another sprint, another step (another step)
Another day, another breath (another breath)
Been chasing dreams, but I never slept (I never slept)

I got a new attitude and a lease on life
And some peace of mind
Seek and I find I can sleep when I die
Wanna piece of the pie, grab the keys to the ride
And sht I'm straight
I'm on my wave, I'm on my wave
Get out my wake, I'm running late, what can I say?
I heard you die twice, once when they bury you in the grave
And the second time is the last time that somebody mentions your name
So when I leave here on this earth, did I take more than I gave?
Did I look out for the people or did I do it all for fame?
Legend, it's exodus searching for euphoria
Trudging through the mud to find the present, no ignoring us
Got 20,000 deep off in the street like we some warriors
My mama told me never bow your head, woo!

I feel glorious, glorious
Got a chance to start again
I was born for this, born for this
It's who I am, how could I forget?
I made it through the darkest part of the night
And now I see the sunrise
Now I feel glorious, glorious
I feel glorious, glorious

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 11:45 PM EDT
Updated: April 1, 2018 12:33 AM EDT
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March 30, 2018
To Whom It May Concern.
Now Playing: Day 3005-Chapter 3... Happiness~My Silver Lining

 

To Whom It May Concern;

 

Because so many mutual friends, business associates, extended family members and others read this blog. We wanted to address the matter of coming to a very unfortunate decision this morning with our family attorney.

Out of respect, we ask that moving forward to no longer be contacted regarding all immediate family members.

We have arrived in a different chapter within our lives and the unresolved matters at hand with immediate family members are no longer healthy for myself and my spouse.

We have come to the crossroads of needing to make swift permanent changes in order to continue on with a peaceful and happy life.

We will no longer subject ourselves to be treated less than what we deserve as loving, decent, kind hearted human beings. This means coming to a very sad chapter in our lives which means having to cut final ties with immediate family members and unhealthy relationships.

Life goes on, as well we will continue going on in a more respectful, peaceful way.

 

 

Sincerely,

E.K.


Posted by GastroparesisAwarenessCampaignOrg. at 4:16 PM EDT
Updated: March 30, 2018 4:53 PM EDT
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March 29, 2018
A Great Day To Just...
Mood:  d'oh
Now Playing: Day 3004-Chapter 3... Happiness~My Silver Lining

 

Today is the perfect day to just sleep it all away....

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Today is also the third day in a row of non-stop rain here in our little Lazy River Town. It feels like just yesterday that the final massive cleanup due to all the flooding was finally complete. Yet here we are once again dealing with far too much rain. On the flip side... at least all of this rain will help wash away any pollutants from the river flooding. What's that old saying again?

"April showers bring May flowers."

 There's just a few days left for the month of March before we truly get into the rainy season of spring. Uggggg!

20180329_203652.jpgThis afternoon at least I was able to turn in my testing equipment at the hospital for my heart and lungs. The first report of many tests that have been performed this week didn't serve me so well. In fact... one could have never predicted such a fatal blow... another blow with regards to my health. Myself and Eric are still trying to wrap our brains around another huge slap in my face when it comes to my declining health. I was supposed to see my Critical Care specialists later this afternoon. However there are still nuclear test reports pending on my lungs that have yet to come back from radiology. I have a really bad gut feeling that I will be expecting more not-so-pleasant news within the next 24 to 48 hours. 

Somehow we still have to keep going... still keep living... still keep smiling and finding a reason for laughter each and every day. No one said life would be easy. If you ask me... that no one had not a clue about life.

Enjoy today's Podcast~Blogcast video of a little afternoon husky scare! Hehehehehe!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 


Posted by GastroparesisAwarenessCampaignOrg. at 9:26 PM EDT
Updated: March 29, 2018 9:31 PM EDT
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March 28, 2018
NEW PERSPECTIVES!
Mood:  lucky
Now Playing: Day 3003-Chapter 3... Happiness~My Silver Lining

 

One year ago today... I had once again signed on that dotted line... on the path of ongoing experimental treatments. Bravely making the decision to continue on each day as it came. 

One year later... I'm so grateful. Not just for my life, but for NEW PERSPECTIVES.

My best advice for those of you who are now going through cancer or any other painful medical nightmare... start building and creating a "happy place." Whatever and wherever it may be... but don't do it later. Do it now.

You know the reason for this simple... but ever-so-grateful advice that was once given to me?

Because one day when the dust finally begins to settle... that little peaceful place that makes you so very happy, that you created when you were going through hard times will manifest itself. That happy place doesn't have to be perfect by any means. But it will be YOUR place.

We all owe it to ourselves to be happy, even when the road before you appears to never end and you feel as if you will never see the light at the end of the tunnel. You will still prevail. You will one day arrive basking in that ever beaming bright light. You will make it through and be able to truly appreciate that place that you created on your very own!

Your "happy place."

YOU my dear friends are STRONGER than you know.

Time to get back to enjoying one of a few happy places of mine... enjoy this cute little video of Miss Babyblue too!

20180327_021248_resized.jpg 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

You can watch today's Podcast~Blogcast video on the web at the above link or find us on the App Store & Google play

The ourcrazylittlelife's Podcast~Blogcast

 
 

Posted by GastroparesisAwarenessCampaignOrg. at 11:27 PM EDT
Updated: March 28, 2018 11:28 PM EDT
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March 27, 2018
Here We Go~
Mood:  chillin'
Now Playing: Day 3002-Chapter 3... Happiness~My Silver Lining

 

It's taken more than a few days... waiting for the largest ovarian tumor to reposition itself off of my spine in order to finish off a long series of further testing for my Critical Care specialists. 

These tests should have happened last week after having to reschedule 3 days in a row because I could not lay down on the testing table equipment long enough to even begin the tests whether alone finishing the tests.... one after another. My case is very unique due to the fact that the largest tumor is like a mere ping pong ball glued together and constantly being moved around by surrounding organs which makes a lot of testing very tricky and sometimes almost impossible. 

But this morning...  we were finally able to finish a long series of extensive tests minus one that I wasn't able to complete. But four out of five tests that were finally able to be performed this morning sure beats nothing at all. We'll take it! 

Myself and Eric have thoroughly enjoyed creating quite humorous and even some a bit more serious Podcast~Blogcast videos. It's a shame that all it takes is one sour apple to try to ruin such a fun website for everyone that has been enjoying our funny, silly, crazy and even like today... sometimes a bit more on the serious side kind of videos... sharing our journey with others.

I think today's post and Podcast~Blogcast video at the link below is important to share because that bad sour apple fails to realize the true meaning of still being able to laugh and smile in everyday life when sometimes your everyday life is anything but a normal, happy life. But with age comes wisdom and growth along with hopping~hoping that the Easter Bunny leaves that sour apple a few smiles and a whole lotta Happy Meals in their Easter Basket this year! 

Back to the cute, funny and outrageously silly videos tomorrow... because there's always a reason to smile~ 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

Play this podcast on your phone.

The ourcrazylittlelife's Podcast~Blogcast

Download Free Podcast App

 


Posted by GastroparesisAwarenessCampaignOrg. at 11:34 PM EDT
Updated: March 28, 2018 11:32 PM EDT
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March 26, 2018
The Legend Of The White Squirrel'
Mood:  special
Now Playing: Day 3001-Chapter 3... Happiness~My Silver Lining

 

Here we are folks!

The start of another mystical, magical and quite wonderful week! 

Spring... Spring is definitely now in the air as all of the beautiful white snow has quickly melted away. Sure going to miss all of that snow and the peacefulness that the winter season brings. Now it's on to the hustle and bustle of the spring and summer seasons when the world is wide awake and so are the sounds of chainsaws, lawn mowers, leaf blowers and other various loud equipment... sigh. Eric will be one of those who will soon enough be firing up the chainsaw as we make our way towards the remaining smaller projects... Outdoors. 

As I begin evolving with the sun... evolving with the moon and evolving with this new season. I am still doing my best to work with the most recent changes with my health. I'm not a hundred percent... but I'm better than I was before being rushed to the hospital almost 4 weeks ago. Unfortunately... I will have to remain in the care of my Critical Care Specialists as they continue doing their very best to keep me stable. That also includes another round of tests at the hospital tomorrow morning. I may not have the energy like I used to just a year ago to this very day. But I remain thankful and beyond blessed for the chance to continue enjoying all the little things in life that bring me so much happiness... the unconditional love from my little family.

For me... their love... is enough. It keeps me going. It gets me through my darkest hours. 

Enjoy today's Podcast~Blogcast video of another little magical moment that brings me so much joy! 

The MYSTICAL, MAGICAL WHITE SQUIRREL`

Hehehehehehe! 

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

Play this podcast on your phone.

The ourcrazylittlelife's Podcast~Blogcast

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Posted by GastroparesisAwarenessCampaignOrg. at 10:30 PM EDT
Updated: March 27, 2018 12:17 AM EDT
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March 25, 2018
The Hymn Of 3,000 Blog Posts~
Mood:  celebratory
Now Playing: Day 3000-Chapter 3... Happiness~My Silver Lining

 

Good LORDIE!

Can you believe that the OB-original blog has reached 3,000 blog posts today?!. 

Talking about some serious dedication! I would had never anticipated in my wildest dreams to actually be sitting here typing out blog post #3,000!

You know what is even more surprising and quite inspiring? The realism of just how much I have grown over the years. The reality of how much I have gone through over the years... yet here I am still GOING and GROWING stronger than ever before! 

For anyone who is an avid, daily blogger or Podcaster on the worldwide web.... only you can truly appreciate and understand all the hard work and endless hours that go into writing a blog or posting a Podcast on a daily basis. Most only post on an every-other-day or even some a weekly basis. I have followed those over the years that have started off putting in all the hard work... yet somehow they lost sight, interest or just neglected the time it takes to follow through on such a life changing, life altering way to share your journey with the world. 

As for myself... I have nothing but extremely high expectations for myself and that goes for pretty much everything in my life. I have always given everything in my life 110%! That includes the countless hours and more than what I would like to express in frustrations when the original blog software went crashing time and time and time again. The only reason for the time and time again website crashes has now made me view it far differently! I now view the frustrations as a proud moment! That is because the software can not keep up with the high demands from almost 2 million permalink readers. 

You know... I not only see the world far more differently now while typing out blog post #3,000. But I also view folks much more differently now than years ago when I first started the original blog. I don't believe in the saying that time heals all wounds. Instead... I believe that time makes you realize that some people, some situations and some unnecessary conflict no longer needs your time, your energy and your undivided attention. I will be the first to admit going back through the blog and reading some posts that really made me upset with myself. Spending far too much valuable time on those who didn't deserve my time. What really made me even harder on myself was watching me waste the same time, attention and energy on the same folks when I really needed to conserve that time for myself while enduring maximum course treatments of radiation therapy and other oncology treatments. Those same blood connections as well had plenty of time to dish out unnecessary conflict on both sides. Yet... they should had instead put that energy towards being present as a group to offer support during treatments. The time when myself and even Eric needed them the most. It wasn't just one side... it was both absent sides. I was handed the same old excuses that they did not know what hospital the radiation therapy treatments were being performed. However, all would agree on how many photos that were on the blog posts day after day as we walked through the same hospital with the same big ole sign that read, "Jewish Hospital." Even stranger is that a parent had the same radiation oncologist, yet deliberately never bothered to call or even show up during early morning radiation therapy treatments. Ironically, months prior to realizing my own cancer demise... I was ever present that morning for all the same blood connections during that parents surgery for a promising cancer cure. But you know what I have learned through the art of blogging? It's okay and perfectly normal to express how you feel. And it's okay to be upset with lack of support when support was more than needed from both sides. Hey folks! You were not born in a factory as some mere robots! It's more than perfectly OKAY to have emotions and express them in the best way you know how! It's called being... human.

3,000 blog posts later... I am BEYOND PROUD of my many changes...

I have grown, evolved and learned a great deal of life lessons. Some good and a whole lot of really bad life lessons. I have mastered the art of gaining more wisdom than most will ever gain in an entire lifetime. I have also gained back the self-respect that I now demand from others. I am no longer that weak individual that you may feel you can attempt to once again walk on, although, I tend to believe that she was just far too sick and tired to stand up for herself against conflict among blood connections. 

As I sit here and type blog post #3,000... I have come to realize what truly matters in life... what is most important. It isn't just myself who has learned a great deal of life lessons through out the timeline of blogging on a daily basis. Eric has really learned a great deal about himself. It hasn't always been good, but what makes this blog great is realizing that he is now adult enough to own up to his mistakes. We have both mastered the art of forgiveness, yet at the same time, also demanding apologizes when apologies are owed. That's how you allow the healing process to begin and end by coming to realization of hurt. Giving yourself closure by any and all means. I will be the first to be the far bigger adult among mirrored reflective images of blood individuals to sit down and talk when any issues arise. But the far greater lesson I have learned through this is all the wasted time that can't be returned when you waste all your energy on adults that lack simple communication skills. 

There is clearly something to be said about any individual who runs to hide behind an attorney or judge, sharing personal matters that are no place to be addressed inside of a court room, instead of sitting down as an adult to communicate and work through your problems. Through my own personal experiences... you can not change people nor can you make adults grow up. Some adults may present their age as an adult, but yet their lack of the art of communication says far differently. What happened way back in the day when attorneys didn't exist? Wait... I know! Folks sat down and worked out their problems, communicating among one another until they reached a resolution. The way problems should be handled now as adults in this current day and age. 

I have learned so much about myself over the past 3,000 blog posts. But most importantly... I have learned far more about others. I have watched and learned by the actions of others whom I vow to myself to never act like nor become in this lifetime. I have watched adults by age act more like underage children. I have seen children act like adults more than the adults that are raising them. 

In all actuality... I could go on and on and on and on about everything I have learned in the past 3,000 blog posts. But at the end of the day and at the end of this blog... I have zero regrets. If it weren't for having the voice to express myself and the tenacity to stick up for myself. I wouldn't continue on this life journey being the strong willed woman that I am today. 

What I have learned the most as I type out the final words of blog post #3,000 is that you should never fear being the radiant bright soul that has real emotions and isn't afraid to show them to the world! Never be afraid and never be told to dim your bright light that has so much compassion, love and strength to show to others in this world! 

Did you read that quote before watching today's video on our Podcast~Blogcast? 

Yes! That's right! Those emotions are your BADASS SUPERPOWERS! 

USBLESSED.jpg

You there! YOU are B-E-A-U-T-I-F-U-L and never let anyone ever tell you otherwise because those folks are just jealous of your true self.... your undeniable BEAUTY!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

Play this podcast on your phone.

The ourcrazylittlelife's Podcast~Blogcast

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Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 26, 2018 1:37 AM EDT
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March 24, 2018
What Is The Last KIND Thing You Did For Yourself?
Mood:  quizzical
Now Playing: Day 2999-Chapter 3... Happiness~My Silver Lining

 

The doctors suggested that we now focus on my overall quality of life rather than quantity of life. 

Today I decided to take their advice and do something KIND for myself. A little something that didn't cost a penny. But yet... brought me so much joy and happiness just to drive around the windy roads along our wooded hillside. Catching a breath of fresh air and a glance at all the beautiful snow.

Most of us have a false sense that we are taking care of ourselves. Some go to the gym, eat all the right foods, buy all the in-style clothes and decorate our homes like something straight off of HGTV.

But... we aren't really KIND to ourselves.

What happened to the days of going on walks, sitting down to actually read a good book or two, bask in a really nice bubble bath with your favorite scent, or making a really super decadent home made snack with your significant other... without the TV on in the background.

Being kind to yourself means enjoying the true simplicity of life. Not all the fancy stuff.

Being truly kind to yourself doesn't really cost a thing. It's simply about making the choice to take moments for yourself to stop, smell the air and breathe...

So I ask you again... what is the last KIND thing you did for yourself?

If you can't answer this question, why not instead answer with what are you going to do to be kind to yourself starting at this very moment? 

Big changes in the quality of life... not quantity of life... can start right now.

Enjoy today's Podcast~Blogcast video of the last KIND thing I did for myself because today... TODAY is EVERYTHING! 

-Little Ole Me

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

Play this podcast on your phone.

The ourcrazylittlelife's Podcast~Blogcast

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Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: March 26, 2018 12:16 AM EDT
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March 23, 2018
The FASTEST VACUUMER IN THE WEST! ;)
Mood:  surprised
Now Playing: Day 2998-Chapter 3... Happiness~My Silver Lining

 

What a super  funny start to a far-too-early morning!

worldslargestCATTREE_800x525_.jpg

Not only are the fur kids enjoying their HUGE indoor feline jungle gym... but so did this morning's group of Jehovah witnesses that woke us up as they stood outside the dining room picture window smiling and laughing away... hehehehehehe! Even so much as to call the others in the van that they were driving, preaching the good word from house to house so they could also get a few smiles, a whole lot of laughs and quite a few pictures from their cell phones... hahahahahaha!

We honestly had no idea what was going on with all the commotion while getting ready to head out the door for my scheduled testing at the hospital. As we s-l-o-w-l-y peeked out the kitchen window... all we saw were the faces of five delighted folks truly enjoying the larger-than-life feline jungle gym as Mittens and Big LOVE showed off for the entire group... hehehehehehehe!

You know... it's always the little things in life that bring so much joy not just to ourselves, but as well to others~

Speaking of the little things in life that bring so much joy...

EarlySpringSurpriseSNOWDeerAngels_800x500_.jpgBy the looks of this photo taken of our visitors just a few days ago. It appears that Mother Nature might be bringing us one last round of early spring snowfall here in the country. YAYYYY! 3-6 inches or more of B-E-A-U-T-I-F-U-L SNOW!

LOVE~LOVE~LOVE

Eric is doing his very first SNOWDROP dance as we speak! Hehehehehehe!

THAT RIGHT THERE IS SOME F-UN-N-Y STUFF FOLKS!

Talking about being on a roll with some seriously funny stuff... enjoy today's Podcast~Blogcast video located at the link below of the FASTEST VACUUMER IN THE WEST!

Here's wishing everyone

a SUPER DOOPER FANTASTIC SNOW~IOUS weekend!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/

Play this podcast on your phone.

The ourcrazylittlelife's Podcast~Blogcast

Download Free Podcast App

 


Posted by GastroparesisAwarenessCampaignOrg. at 10:50 PM EDT
Updated: March 23, 2018 11:01 PM EDT
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