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The Road Before & After Surgery
April 19, 2017
Something's... You Can't Predict.
Mood:  chillin'
Now Playing: Day 2662-Next GP Chapter... Turning Lemons Into Lemonade :)

 

You know me...

I am one to make sure that when I experience something. I have some UMPF to it!

Especially when it came to my phone literally coming alive on it's very own last night. We decided to visit our cell phone carrier this afternoon. Just to make sure.... There wasn't some sort of possible glitch with my cell phone. Hmmmm?...

When explaining what had happened to the gentleman whom had proudly told us how many years he had been working for the phone carrier. The look on his face was PRICELESS! Hahahaha! "So... You were laying on the couch and your cell phone was not being used. Then the Google search asked you to repeat your search request, but you were not using your phone?" Yes. I was turned the other way, watching television, ready to go to sleep. "Ummm... Well... You would first need to swipe to the screen to find the Google search bar on it. Then proceed by pressing the microphone icon. If you didn't touch your phone? Ummm... I don't know how it would detect anything without you pressing the microphone icon right here on this screen. Of course, you have to first swipe over to get to this screen on your phone." I wasn't using the phone at the time. It was laying on the head rest part of our couch. "Well... That's strange. I never heard of this phone manipulating on it's own because in all reality. That's what it did because I had our tech look at your phone and he didn't see anything wrong with it." Wow! Myself and Eric were actually chuckling a bit, but all I could do was thank the gentleman and wish him a blessed afternoon. I wasn't going to go into the full story. The parts of the strange, yet amazing conclude to a very special day, yesterday.

Over the years. Actually... Decades. I have learned that not everyone believes in my gift. You have your believers and then you have those who don't believe. Something's... You can't predict. Like the reactions from the non-believers. Then again... Something's... Like last night. No one can predict. It just happens and pretty much, the same way it always has happened for me since I was young. When least expected, but in the most special way. My gift.

Today was a pretty busy and quite hectic day! We started off this morning with once again, changing days with the RV tech that is now coming out to meet us this coming weekend. Things happen. Life happens. Today was my follow-up appointment to see how things are doing GI speaking. Decompressing takes time, especially when your are lucky enough to be spared a major intestinal blockage. My labs ended up coming back late yesterday afternoon, but my specialist wasn't in office to read them. By the time we went over my labs. Walgreens had already beat my specialist to the medication punch! BAH! Back on another round of medication. At least, two more for the time being. We did go over my labs from the hospital, in which, they weren't the best when it comes to hoping for a far better report. My white blood cell counts and other WBC test levels were super low, off the charts low. Worse than just a few weeks ago. Not good. My lymph levels weren't even registered on the chart. They were way below the already low end of the scale. 9.1L, 0.09L. My Gran levels were also way off, too high. 86.2H, 9.74H. Other lab results also showed changes that were only worse, not better than we could had anticipated. I do my best, to not allow my labs or any other tests to get the best of me. Things can always change. Better or worse. Over the years, I have learned to accept the good with the bad. Sometimes that is all you can do. No need to cry over spilt milk. There are no pity parties, WHOA as me. I am not a victim. HA! That even sounds silly! Stressing out, over what you can not control, doesn't do anyone any good. Especially, YOU.

My next rescan is already in a mere 6 weeks. Until then, I need not worry so much and instead, get out and continue living. Enjoying life to the fullest during my good days! While accepting there will always be the bad days. I don't believe in having expectations. I have changed the way that I look at life.

Wherever the wind takes me... Is where you will find me...


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 20, 2017 2:53 AM EDT
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April 18, 2017
A Special Balloon... A Special Message... Larry :)
Mood:  special
Now Playing: Day 2661-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Remember the message on a special balloon that we came across last month? The message that got hung up on one of the memorial light posts along the river trails?

I had every single intention to resend that special message on Easter. That was until Mother Nature brought us her own special basket of rain during the early evening hours on Easter. Definitely not a good time to set sail a very special balloon for a very special person. A balloon that had every intention to reach it's special birthday message destination.

Heaven.

Unfortunately, I knew that I couldn't use the exact same balloon to sent back up to the pillowy white clouds in the sky. Not after losing all of it's helium flying powers when it accidently got stuck, wrapped around the top of the memorial light post along the river trails. What the balloon needed was a bit of assistance from a few other balloons. As I carefully un-taped the birthday message. I noticed what appeared to be another message from someone else written on the back side of the note. Not only was it another birthday message to the special someone in Heaven, but now the special someone had a name. Larry. How ironic could this be?!? Myself and Eric always wondered about the name with so many heartfelt birthday messages that had every intention, to be delivered back home. In Heaven.

I believe in signs. Always have, always will. Today was certainly the day that this message would once again fly up to the Heavens with a special message to be delivered. To Larry from his loved ones, who wanted to let him know how much he is loved. Forever loved. On a very special day. Larry's birthday.

Maybe Easter just wasn't the right day to release the balloon. I believe in signs. As we got ready this evening to head up for our late walk along the river trails. We stopped at a local store so I could pick up a few balloons to help resend Larry's message. What I needed was some helium flying power! A balloon with some substance to it! Enough helium to carry the message high above the clouds so it wouldn't get caught again along the way. A balloon that would help assist this special message all the way up to Heaven.

I initially picked a colorful square balloon and a very pretty Happy Birthday balloon with sunflowers. As the young lady was filling the balloons up with helium, I felt drawn to look up towards the ceiling. There it was! Enough helium flying power to reach beyond the clouds! A super-size mylar balloon with the same appropriate message, "Happy Birthday!" Yep, that would be the one! The one balloon that not only assisted the colorful square balloon, but as well the pretty sunflower balloon carrying the very special message. Trust me by saying, that I planned on making double, even TRIPLE sure that this message would not be getting hung up on any light posts or anything else along the way!

This evening as I tied all three balloons together. I looked for the most perfect location along the river trails in hopes of making sure that Larry's message got sent back up to the skies, way past the clouds, onto it's destination. Back home with a very special birthday message. Heaven. It didn't very take long for all three balloons to quickly disappear among the clouds. In fact, within only a mere five minutes the balloons completely disappeared. To think, that something so wonderful, so rare, a once-in-a-lifetime moment, I was blessed enough to help assist. An evening walk, that led us to a special balloon, in need of assistance. To help resend a very special message to a most very special person. Larry. I don't believe in things like this happening again. Not ever again, because this is a once-in-lifetime moment. Was it meant to be for me? Most definitely!

As we continued walking along the river trails. I kept looking back, while saying a special prayer to the special balloon carrying a special message to a very special person, Larry. I prayed that the balloon would finally make it to it's very special destination, Heaven. I also prayed that somehow, someway, someone would let me know later down the road of life... That the message on the balloon was finally delivered.

This evening at exactly 11:11pm~Angel digits. While resting on my couchbed with my beloved Littleblue. The most odd, yet spectacular thing happened. As my cell phone sat on the left side of the couch, where I always keep it before going to sleep. Out of nowhere, my Google search microphone was somehow pressed and then activated. "If you just said something. I didn't hear what it was?" Not only did it scare the BEJEEPERS out of me, but I got that overwhelming feeling of nothing but pure electric surrounding me. Do I believe in signs? Sure I do! I looked at my phone and smiled. A very big, happy, content smile.

Thanks Larry for letting me know that your message made it back home to you.  Heaven.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 17, 2017
Easter..Take 2!
Mood:  happy
Now Playing: Day 2660-Next GP Chapter... Turning Lemons Into Lemonade :)

 

While some may celebrate Easter, once a year. This year in our household. We decided to celebrate Easter twice this year. Two days in a row..

Easter..Take 2! WOO~HOO!!

The unfortunate rain quickly followed behind us late last night. More rain in our country, where we count the remainder of our days down in our lemonade home. We had planned on exchanging homemade Easter baskets filled with various goodies once we got home yesterday, but Littleblue wasn't feeling her best so we decided to hold off until today. Easter Monday! Easter two days in a row-YAYYY!

Everyone, that includes our fur children, got to enjoy a few Easter goodies. Even DaisyMae and SnuggleDoo got to explore their first colored eggs this year. We didn't leave them in the cage for too long, since the chances of them becoming a bit too curious could mean, scrambled eggs and picking up pieces of egg shells. They were too curiously CUTE!

Snoreo is still in his non-sharing 3's with everyone. Including the kitty gang and Littleblue. So we opted for giving everyone their own special baskets in separate areas of the house. This way there wouldn't be any disagreements on who got the best basket. HAHAHAHA! Less is MORE! That has been our motto and new way of life! This year we scaled back quite a bit with the holidays, but no complaints what so ever. Even with zero disagreements and fighting among each other. Heeheeheehee!

 Myself and Eric also scaled back this year when exchanging homemade Easter baskets. No candy or sugary goodies this year for me from the Easter Bunny. This year was all about comfy colorful socks and a few light material summer short sleeve shirts. PERFECT! Thanks Easter Hubby! Heeheeheehee! Eric on the other hand... Well... I guess the Easter Bunny still had a little bit of a sweet tooth. Hahahahaha! Yep, someone got the goodie basket! Better Eric, than me.

A second day of celebrating Easter was just what we needed to start off the beginning of another long week. The Easter Bunny must had known just what to do! A blue basket filled with treats and a very HAPPY Littleblue

Easter..Take 2!

 


Posted by GastroparesisAwarenessCampaignOrg. at 11:56 PM EDT
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April 16, 2017
HAPPY EASTER! :)
Mood:  happy
Now Playing: Day 2659-Next GP Chapter... Turning Lemons Into Lemonade :)

 

HAPPY  EASTER!

Time for some country peace and quiet to start off our Easter Sunday! Ahhhh... R-e-l-ax-i-n-g...

We had to head up north, way far into the country in order to check on YOLO, our RV. It's been a week since we had a chance, actually a breather, to check and see how she was doing. We also wanted to make sure she did well during last weeks crazy weather. Since YOLO is brand new, she didn't disappoint as far as weathering the storms. Until we are officially all moved into our new little home, YOLO-You Only Live Once, we will be slowly taking a few totes up at time during each visit. Today was more so about making a few changes and add-ons for the upcoming summer months. We had scheduled an RV technician to also come out and fix a few minor things, but there must had been a bit of miscommunication. Instead of this weekend. Looks like the repairs will be completed next week.

Today was all-around an absolutely BEAUTIFUL and most PERFECT Easter day to enjoy all the sights and sounds of life in the country! In between the rain. We ended up having nothing but beautiful weather and partly cloudy skies with sunshine peaking every so often in between the clouds. PERFECT! There is just something about the country that brings nothing but pure peace for both of us. Peace and quiet in a little hidden country gem! God's country.

Pictures don't even begin to describe the beauty. There aren't enough words. YOLO is indeed living the good life!

Thanks to those who watched our Littleblue while we attended to things up north. It all worked out with hardly any holiday traffic and getting back early enough to still enjoy Easter together. As family. Our little family.

Littleblue continues to amaze us! She is doing so good with her surgical recovery and the stitches are even healing better than we could had ever anticipated! She is most definitely strong and I am so proud of how good she has been, even while being in so much pain. Our beloved fur angels in heaven have definitely been keeping a very close eye on her! There is no other way to explain how lucky we have been. How fortunate we are to have our Littleblue back home, minus the cancerous tumor. Dr. T has played such a huge part in our lives. God is good and so are those whom he has brought into our lives.

Easter is a time to celebrate the gift of life. We have so much to be thankful for that has happened in such a short amount of time. It was such a beautiful day to remember what is most important in life. The overwhelming amount of blessings and those who have brought so much joy into our lives. Framily, friends who are family and the kindness of strangers. I am beyond humbled and appreciative for everyone. There are not enough... Thank YOU'S!

So... As we attend to a few Easter traditions. Adding a new one or two. Our little family would like to wish everyone a very blessed and Happy Easter.

Peace~Love~Joy~Laughter

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 15, 2017
Keep Going~
Mood:  bright
Now Playing: Day 2658-Next GP Chapter... Turning Lemons Into Lemonade :)

 

B-E-A-U-T-I-F-U-L!

The first red tulip of the season! Spring or summer season? Who knows with temperatures hitting an all-time record here in the country. A mighty warm 87-degrees record! Can we say... A/C time? Sure we can! It's already on!

It was a very busy, yet another mighty productive day. There is still so much on our plate before we are officially on our way farther north in the country. All in less than 3 weeks... RVinggggg! We are still doing our best to stay organization and on track, but there is always room for the exception. Even the best intentions with planning. Don't always go as planned.

Another round of medication via outpatient and labs that won't come back until early next week. Not exactly how one envisions starting their Easter weekend, but one still has to keep going! I was never one to let medical hurdles get the best of me, nor stand in my way. I not only never plan on looking sick, but I never plan on looking how I really feel. Internally. Not everyone might feel the same way nor do the same as I do, but that's just me. That is what makes us all so different and unique. I like still looking and feeling... B-E-A-U-T-I-F-U-L

Maybe spending most of the day, not feeling my absolute best, didn't necessary=beautiful, but there's always tomorrow. Another beautiful day. EASTER!

No matter the battle or hurdles ahead... KEEP GOING~

That's what the good Lord said!

HAPPY EASTER

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 16, 2017 12:48 AM EDT
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April 14, 2017
The Night Owl Grew Wings! :)
Mood:  bright
Now Playing: Day 2657-Next GP Chapter... Turning Lemons Into Lemonade :)

 

So much for us being on the same sleep schedule... No more.

 Me, the early bird is now falling asleep before the clock strikes midnight, while Eric has only been at work for a mere hour. HA! Another sleep schedule instantly thrown off while slowly coming off of various treatment medication.

Talking about being mighty productive... At 8am. HA!

The Night Owl grew wings! Early bird wings!

While Eric was resting at home with Littleblue. I was already up, walking the trails along the river. Unfortunately, since needing to resort back to nasty GI treatments this week in hopes of a slow decompression. I can't afford to lay around, but instead must continue doing my best to move around, physically. My treadmill is no longer. In fact, the thought of not being able to use it since radiation, not only made me frustrated, but very depressed. I did my best getting back into the swing of things, but with a home continuing to pull and sink. We didn't trust having the treadmill on any part of such unstable floors. My treadmill of many miles, to China and back again, is now enjoying some use from another determined traveler! I sure do miss using my treadmill, but at the same time. I am glad to know it is back in use! Until we are finally back in a home. On a stable and safe foundation. I will be utilizing the great outdoor parks and trails for daily exercise.

Lately... It's been early morning exercise! The early bird does get the worm and a mighty productive day too!

Since Eric was at home, keeping a close eye on Littleblue while she continues on the road to recovery. I finally was able to catch up with my dental treatments. Yes, three more unexpected dental treatments. It never seems to end. At last! I was also finally able to pick up my new prosthesis, since the last one caused me to have an allergic reaction due to the type of material that was used. Its been a few weeks, but I can finally get back to smiling again! YAYYY! One dental treatment back down and two more to go.. Thank goodness for changing our dental plan and going up a notch! It most definitely will come in handy this year!

With Eric having to work on Easter. We plan on taking it easy over the holiday weekend. Especially with our beloved Littleblue home recovering from surgery. So far-so good! She's doing better than we could had ever anticipated! Even with having to take turns running errands, while the other stays home with her. It's all been working out, A-OK!

I already miss all of us taking our evening walks along the river trails, but I know soon enough, we will be enjoying the views again... Together~XOXOXO


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 15, 2017 11:13 PM EDT
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April 13, 2017
Talking About A THROW-BACK Thursday!
Mood:  d'oh
Now Playing: Day 2656-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Easter weekend is quickly hopping upon us!

With the summer temperatures we have been having in the country. I'm not so certain if the Easter Bunny will be able to deliver all of the chocolate goodies in everyone's baskets this year. At least... Without them quickly melting. Might as well tote up the spring clothes and bring out the summer short sleeves. BAH!

Littleblue has been resting over the past 24 hours since her surgery. We are beyond shocked on how well she is doing with such an invasive surgery. She is most definitely just like her human Mommy... A born fighter!  Littleblue has a long road to recovery, but we plan to do our best to make it as much as a smooth one as possible. With of course, the help of her buddy Snoreo who has been keeping a close eye while she rests through out the day. Myself and Eric already have a game plan in action. When one of us needs to head out, the other stays at home with Littleblue. Today was a low-key day anyways for all of us. GI-treatment day for me while Eric kept a close eye on Littleblue. Talking about fortunate to have made it through surgery! Littleblue most definitely had the Angels on her side. We are most grateful, forever blessed.

We still plan on keeping up with a few annual Easter traditions this year, such as decorating Easter eggs and exchanging Easter baskets. One is never too old to receive an Easter basket from the Easter Bunny. *WINK-WINK* Even our beloved fur children get a special Easter basket filled with pet-friendly treats! Our holidays might be celebrated a bit differently than most, but we still make sure to celebrate with love, laughter and plenty of reasons to smile!

Kind of like this THROW-BACK  THURSDAY photo...

The good ole days... At least we still have one thing. Good memories... NAH! GREAT memories!  


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 9:16 AM EDT
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April 12, 2017
A Critical Decision By Experience OR By Notoriety?.
Mood:  sad
Now Playing: Day 2655-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It has not been a very good past 24 hours.

In fact. The past 24 hours have been not only stressful, but sad and depressing.

We rushed our beloved Littleblue up to the same animal hospital where she was scheduled for surgery to possibly remove her cancerous mammary tumor early next week. We only did as anyone would in an emergency setting when clearly time is not on your side. For confidential reasons, we only trust a few surgeons at this particular animal hospital. One of the best surgeons that works there just happens to be the same surgeon who was scheduled to do Littleblue's surgery early next week. Unfortunately, he was not scheduled to work during our emergency visit. Instead... The one whom we have the least trust or faith in when it comes to any type of veterinarian care, was scheduled to work. The same veterinarian who trumped the emergency room veterinarian who was assigned to Littleblue during our visit.

Not good.

I don't care who you are, but when it comes to emergency care and a possible life saving surgery. We all want the best. We want the most skilled surgeon, not the most well-known surgeon. These are the times when the upmost surgical experience overrides the highest notoriety. Not just with pets, but even with our own medical care. I have seen both sides of the surgical card being played by both hands. I have met those who decided upon a career in the medical field, solely due to following in their parents or another family members footsteps. Then I have met those who actually followed the next generation and achieved great honors in the medical field. Not in the same exact medical field, but instead did so with passion. A medical avenue that might had been a bit different, but were extremely passionate with their chosen medical career.

During the past 24 hours. I have seen both sides of the surgical card. Played very differently by three different veterinarian surgeons. Littleblue's tumor that was in the process of a fatal rupture needed urgent, emergency attention. Surgical attention. Unfortunately, our scheduled surgeon whom we would trust even performing surgery on us, was not scheduled to work. Instead, we received lack of care and urgent attention for our beloved Littleblue by a veterinarian who doesn't share the same passion about his job as his father did many decades ago. It wasn't a minor mistake. It was a critically poor choice in not performing surgery due to their opinion of it not being an emergency. You see... Sometimes in these situations, one has to look outside of the situation. This isn't about Littleblue or a really bad decision to not operate and instead, send us home for her to only get worse. It's about making a life choice in a career, in which, some only do so to follow in another family members footsteps for notoriety. Some are only motivated solely for money, not for the love or passion of the career. 

 Notoriety doesn't equal experience by any means.

After a shocking decision was placed upon us and the emergency veterinarian refused to perform any type of emergency surgery. We were forced to go back home with a very sick fur child and a tumor ready to rupture at any moment. I even left a message for the surgeon who worked at that particular animal hospital to let them know what was going on since Littleblue was only getting worse. It wasn't their fault, for their superior's decision. You can't blame others for others lack of passion or choice in career. So... Instead I made one phone call and left one detailed text message to the one person that I know could guide us in the right direction. The right direction for our beloved Littleblue.

Then... There was Dr. T.

In one single reply text message. We were told to come up right away! This was at 8:15pm. In less than 40 minutes and a drive back across the Ohio state line. Littleblue received the upmost best, professional, compassionate, kind and experienced care that a beloved fur child could ever possibly receive. In such an urgent necessity to get Littleblue quickly into surgery. Dr. T, once again, came through for us. For our little family. There are not enough words to describe his kindred soul. Dr. T has not only been here for me, helping to direct me during my own medical journey, but he as well has been there for our beloved fur children. I have always believed that the good Lord brings good souls to us. Those who have our best interest, even our fur children's best interest to heart. A 45 year, highly skilled, with the upmost talent, professionalism and passion for all animals, career. God's creatures both big and small. Dr. T's children have followed in his footsteps. Not for the title nor the money, but for a medical career chosen by where their hearts had led them. A well-known Pediatric Cancer Professor and Surgeon.

If you are reading this tonight. Thank you Dr. T for answering our call. Answering another prayer. I have not enough to repay you for such kindness. Myself and Eric thank you from the bottom of our hearts.

This evening... Littleblue is at home. A life regardless of human or animal. SAVED.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 14, 2017 10:20 PM EDT
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April 11, 2017
2 Days Down.. 3rd Day?
Mood:  rushed
Now Playing: Day 2654-Next GP Chapter... Turning Lemons Into Lemonade :)

 

2 days down.. 3rd day?  Right back UP again!

Not by choice.

We had already pre-booked the moving truck for this morning. This was prior to not realizing that a few health matters would be causing continued delays. What we don't have time for? Any delays, especially when we have deadlines to meet. We have already pushed things back a week with regards to moving totes to have stored for the time being. There is already limited room in our new RV while RVing over the next several months. Our next crazy and quite exciting adventure!

Regardless of how I feel. Today must go on! So does having to follow Eric with the moving truck back and forth across three state lines. Indiana, Kentucky, Ohio and then back to Indiana. I guess you can say three state lines and then back across to our current state line. Indiana. Nuts? Stressful? Hectic? OH YES! All three and then some! It took quite a few hours and one extremely achy and irritable me, but we did it! An Army of two after a friend and coworker of Eric's got hit for mandatory overtime. Of all mornings... The morning he was going to help Eric, but it's more than understandably, OK. Life happens and if any two folks know that more than anyone, it's us two folks. Amen.

Thanks to those who allowed part of our life to be temporarily stored in their basement. Safe and sound. Temporarily because it appears that all parties involved will be moving full speed ahead with the start of litigation once we give them the A-OK! The final last personal belonging out of our 5-month old lemonade home. Can we say... WHEW!! Yes, we WILL!

I have a hunch, that this will end up becoming a three-move-process, all in less than 12 months. The next organized move can only get better or... At least we hope so! Eric said, "It can't get any worse." It actually wasn't that bad for Eric moving all the storage totes by himself. However, he will be receiving help from a few friends when it comes time to move the last little bit and furniture we still currently have left in our house. I am soooo ready to be done with this chapter! The great house hunting adventures mistake. Hahahaha! At least my first home purchase on my very own, RVing, seems to be going extremely well! Even the final walk through only showed a mere 3 minor repairs. We still have an outlet to be rechecked and part of a screen to be repaired. Otherwise, we are all set and only need a few of our belongings still brought to our next new home and NEW way of living.

RVing... WOO~HOO!

Once we got home, took a nap and attended to a few daily household chores. Littleblue started to act a bit odd. Most definitely, not like herself. One look at her tumor and it was time to head up to the animal hospital. We already have Littleblue's surgery scheduled for early next week, however, we were warned that the tumor could rupture and without much, if any type of warning. I tend to always go with my gut instincts and it was screaming, "GO, GO, GO!"

As I now catch-up with my blog. All I can say to end this day, is that it was only the beginning to not much, if any type of warning. My beloved pets are my fur children. I treat them as if I would my very own human children. Regardless of how I feel. As a human parent or a beloved fur child parent, you come second, the child or fur child comes first.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 13, 2017 7:01 PM EDT
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April 10, 2017
Another Page... Turned.
Mood:  d'oh
Now Playing: Day 2653-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Boy! Do we have a LOT to do before May 1st! What we don't have time for? Set-backs.  Delays.

Crazy enough, I am starting to get used to all of these early morning wake-up calls. That IS crazy! Especially, coming from someone who used to be such a night owl, but not anymore. There is so much on our already full plate and not a whole lot of time left. I don't need any set-backs nor do we need any huge delays. Time to get things straight with my health!

This current chapter.

After far too much IV medication. I was scheduled for another outpatient round again this morning due to lack of still being able to get the vomiting under control. My blood work didn't help matters. Especially when my immune system should be making even a teeny, tiny sort of some type of change in the right direction. Instead... It took another nose-dive. In the wrong direction. Another early morning assisted walk through the hospital halls in hopes of finding answers instead of continuing to spin the ole wheels. This morning my specialists made their decision against any type of temporary tube due to obvious factors with lack of an immune system and the far too high risk of developing an infection that my body would not be able to fight off. Not with the way my blood levels are right now. It's just far too risky. Time to slowly decompress my small intestine a far different way than with the aid of a tube.

It's times like these, that I am beyond GLAD for pushing myself to continue getting out to enjoy life! JOURNEY~

It's other times, when the universe seemed to line up perfectly for us and we were able to once again be one with the ocean or even feeling a whole lot LUCKY out west in Nevada. I don't regret one single moment. I wouldn't dare change one single thing when going against the grain.

Like... Today.

Thanks be to those behind the scenes. Those who continue lending their medical expertise during the times when I have come to a crossroads. After careful review of my labs and other medical reports. Myself and my specialists have come to a decision to discontinue immunotherapy treatments. The reason should be quite obvious for anyone in my unique situation. When your labs come back far worse than just a mere month ago. When your counts have taken another dip in the wrong direction. Much like radiation treatments, although that decision wasn't made by me, it was made for me by my radiologist and oncologists after a maximum fast-track course of treatment failed. There are going to be times when even the best in medical advancements aren't going to work the way they were intended. Sometimes you must take a step back and question if you are helping the situation or hurting the situation. Your health.

When your immune system becomes depleted from oncology treatments and countless infections due to lack of a normal immune system. Even sometimes experimental means of alternate therapy might not be the answer. It could also backfire on you. My goal, same as always, was to seek means of alternative ways to bide myself a better quality of life. Not take away from my good days, but to gain a few more good days. I have come to realize, that same with oncology treatments. I am only hurting my health. Not helping my health. For those very same reasons. Same as with trying other treatments that didn't work for me. I have opted to now stop existing treatments due to changes going the opposite direction with my health.

Maybe, I will always be the 'less' is 'MORE' kind of gal. At this point. I tend to believe so.

With everyone on the same page. The slow decline of treatment medication now begins. I don't expect it to be easy and who knows what this will mean for my overall health. However, I am once again, beyond proud of myself for sticking things out! Even though it didn't work out for me. I do believe that some experimental treatments and means of hopefully biding patients more good days than bad days, still do exist. For some patients they work. For others like myself... All you can do sometimes is give it your best Girl Scout try.

Life goes on... Another page... Turned.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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