Another Page... Turned.
Mood:  d'oh
Now Playing: Day 2653-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Boy! Do we have a LOT to do before May 1st! What we don't have time for? Set-backs.  Delays.

Crazy enough, I am starting to get used to all of these early morning wake-up calls. That IS crazy! Especially, coming from someone who used to be such a night owl, but not anymore. There is so much on our already full plate and not a whole lot of time left. I don't need any set-backs nor do we need any huge delays. Time to get things straight with my health!

This current chapter.

After far too much IV medication. I was scheduled for another outpatient round again this morning due to lack of still being able to get the vomiting under control. My blood work didn't help matters. Especially when my immune system should be making even a teeny, tiny sort of some type of change in the right direction. Instead... It took another nose-dive. In the wrong direction. Another early morning assisted walk through the hospital halls in hopes of finding answers instead of continuing to spin the ole wheels. This morning my specialists made their decision against any type of temporary tube due to obvious factors with lack of an immune system and the far too high risk of developing an infection that my body would not be able to fight off. Not with the way my blood levels are right now. It's just far too risky. Time to slowly decompress my small intestine a far different way than with the aid of a tube.

It's times like these, that I am beyond GLAD for pushing myself to continue getting out to enjoy life! JOURNEY~

It's other times, when the universe seemed to line up perfectly for us and we were able to once again be one with the ocean or even feeling a whole lot LUCKY out west in Nevada. I don't regret one single moment. I wouldn't dare change one single thing when going against the grain.

Like... Today.

Thanks be to those behind the scenes. Those who continue lending their medical expertise during the times when I have come to a crossroads. After careful review of my labs and other medical reports. Myself and my specialists have come to a decision to discontinue immunotherapy treatments. The reason should be quite obvious for anyone in my unique situation. When your labs come back far worse than just a mere month ago. When your counts have taken another dip in the wrong direction. Much like radiation treatments, although that decision wasn't made by me, it was made for me by my radiologist and oncologists after a maximum fast-track course of treatment failed. There are going to be times when even the best in medical advancements aren't going to work the way they were intended. Sometimes you must take a step back and question if you are helping the situation or hurting the situation. Your health.

When your immune system becomes depleted from oncology treatments and countless infections due to lack of a normal immune system. Even sometimes experimental means of alternate therapy might not be the answer. It could also backfire on you. My goal, same as always, was to seek means of alternative ways to bide myself a better quality of life. Not take away from my good days, but to gain a few more good days. I have come to realize, that same with oncology treatments. I am only hurting my health. Not helping my health. For those very same reasons. Same as with trying other treatments that didn't work for me. I have opted to now stop existing treatments due to changes going the opposite direction with my health.

Maybe, I will always be the 'less' is 'MORE' kind of gal. At this point. I tend to believe so.

With everyone on the same page. The slow decline of treatment medication now begins. I don't expect it to be easy and who knows what this will mean for my overall health. However, I am once again, beyond proud of myself for sticking things out! Even though it didn't work out for me. I do believe that some experimental treatments and means of hopefully biding patients more good days than bad days, still do exist. For some patients they work. For others like myself... All you can do sometimes is give it your best Girl Scout try.

Life goes on... Another page... Turned.