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The Road Before & After Surgery
April 24, 2017
The Undeniable FIGHTING Spirit!
Mood:  celebratory
Now Playing: Day 2667-Next GP Chapter... Turning Lemons Into Lemonade :)

 

"Fighting spirit. Noun. Courage and determination expressed in a willingness to fight or struggle. Her fighting spirit had refused to give in to illness."

The willingness to compete or to do things that are difficult:

Don't take no for an answer-where's your fighting spirit?

audacious, audacity, backbone, balls, bold, bottle, bravery, daring, derring-do, courage, fearless, fortitude, grit, gut, heroism, intestinal fortitude, liquid courage, nerve, pluck, valour

 

Yes, the UNDENIABLE FIGHTING SPIRIT!

What an amazing day! What an absolutely magical day to celebrate the one thing that most of us take for granted... LIFE.

I have been approved for a medical re-evaluation in hopes of moving forward with an additional SSD work permit review. I have also been approved for possible grant assistance with stem cell therapy in hopes of a long, awaited cure. Stem cell therapy, without all the toxic, long-term side effects that I had suffered from prior experimental treatments. A possible, near future trip out west for another chance at a possible cure using stem cell therapy.

If that news isn't exciting enough!

Our beloved Littleblue is not only back to our daily family walks along the river trails, but it was the first time, in a very long time. Littleblue took her very first running steps again! Undeniably, unbelievable! A malignant tumor with slim-to-non chances of survival. Turned down by 5 veterinarians and two veterinarian surgical teams. By the grace of God and those whom walk among us that we call, Angels. Littleblue's emergency surgery to remove the large mammary tumor is so far, a HUGE success! Today marks the very first day that our beloved Littleblue has shown us signs that she is feeling back to her ole spunky, feisty, husky self, again!

One amazing, yet quite spectacular day, just couldn't get any better, but YES! OH YES! It most definitely DID!

When you see bikes on this blog. That could only mean one thing and one thing only! You can't keep a good gal down! This gal is determined as ever! I WILL prevail! I WILL overcome the odds, yet once again... And she most definitely DID!

I woke up with the good Lord on my side. You know what he said? He told me to keep going! That fire inside of me to continue fighting has only gotten stronger. With each set-back. I am only determined to fight that much harder! Today was the very first day, in almost a year. With the good Lord by my side and never faltering support from my dear friends and one heck of an incredible spouse.

A miraculous 4 miles....

I need not type any further. Sometimes a picture says more than a thousand words. It says a MILLION words. I won't give up. I won't give in. Yes! OH YES!

The Undeniable Fighting Spirit. It lives... Within.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 26, 2017 1:47 AM EDT
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April 23, 2017
The Love Of Framily! :)
Mood:  lucky
Now Playing: Day 2666-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Sunday.

A day to relax. A time to reflect on what's most important.

That's how we spent our day. Together with a certain someone not only important, but a certain someone that we both consider our framily. Friends who are family.

What do you buy for someone who has done so much for you? Especially so far this year? In such a mere, short amount of time? What can you do to repay someone who not only lifts your spirits up, when feeling down, but who has God's gift of saving lives? Even the furry kind. Our beloved Littleblue.

No matter what. Today we were adamant about meeting out a very special someone. Someone who cares the world about us. Our entire little family and we also care a GREAT deal about them too! Dr. T.

As we get older. Material things aren't so material anymore. In fact, they really don't mean a thing. I already feel this way, maybe because of what I have gone through over the past year. Cancer is the single most life-changing event one can go through in their entire lives. I have witnessed, front and center, watching patients who are barely clinging onto life. Hoping for another chance at life. While enduring round after round of radiation and chemo therapy. To cancer patients? Material things mean nothing and living life to see another day means EVERYTHING.

I used to have horrible anxiety with crowds. Even with friends and framily. With several years of successful counseling and figuring out the triggers that made such a joyous occasion. Such a high anxiety event. Today brought with it... A great change. I finally broke-free of my anxiety. I did so with a very special friend. Myself, Eric and the honors of Dr. T. An amazing friend. Framily.

My creative low-fat, organic dessert was the perfect gift for him! Food comes from the heart! With a huge smiley to show our deepest appreciation. For everything Dr. T has done for us over the years. Especially over this past year, before, during and after oncology treatments. We had a wonderful time just enjoying each others company. Laughing, smiling and even sharing the newest medical news for me. Thanks to our wonderful Dr. T. Stem cell therapy! More of that to come at a later date...

 Today? Today was an absolutely w-o-n-d-e-r-f-u-l day! A break from any and all stress from moving. Sunday. A day to reflect and remember what's most important. Time with framily.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 9:11 AM EDT
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April 22, 2017
Help? It's A BLESSON!
Mood:  bright
Now Playing: Day 2665-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What has been going on has been anything but, fun and games.

2 major moves in less than 6 months is not going to be easy, not by any means. Fun and games? HA! What's that? I'm not sure what anyone would consider fun and games when losing a home in less than 6 months and rushing into another temporary home. A new way of living. RVing...

Today was a grim reminder of how much mentally and physically moving can take a toll on a body still in recovery from oncology treatments. May 4th, will mark a year since starting an array of experimental treatments. Radiation has still been the most difficult to overcome as well the unforeseen side effects that begin to surface between 1-2 years. Post-radiation therapy.

You know me... Wonder Woman. Or at least... My mind believes so. BAH!

Far too much of doing far too much, landed me almost blacking out while driving back home from the RV site. I'm not sure why I think I can do it all and that includes moving twice in a mere 6 months while still trying to recover, medically. I am also not sure why I believe that asking for help is some sort of bad taboo or something? 

It's been tough. Not just mentally with more changes and not really sure when we will be able to have everything over turned in court, so we can move forward with an actual home purchase on a secure foundation. Without hidden foundation issues not listed on a disclosure. It's going to be tough to be able to trust again, when it comes to buying another home. We got burned. We got burned, badly. Eric? He got double burned, especially when using his VA benefits for the first time and being lied to by the sellers with a home that was very meticulously hidden with major foundation issues. It's going to take him awhile before being able to trust again.

Trust... It's a really bad thing to break. When it's broken. It can be a really hard thing to earn back.

What has been really difficult in excepting? Help from others. The overwhelming kindness from strangers. Even with framily.

It's been a long day, but we both made it. Mentally and physically exhausted, but we BOTH made it! Thanks to a few new friends, Trent and Sam. We accepted their kindhearted offer to help. The first step to learning that it's perfectly... OK! A great lesson learned today! 

Help?

It's a BLESSON!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 9:13 AM EDT
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April 21, 2017
HOT-HOT-HOT!
Mood:  chillin'
Now Playing: Day 2664-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's a HOT-HOT-HOT day in the country!

EWWW~WEEEE! 91 degrees is a wee bit too HOT for a spring day in the country!

We aren't even close to the hot summer months. What happened to spring? Time to continue sorting through our summer short sleeve shirts and shorts! For now... anyways...

Our Cuddles kitty hasn't been doing too well over the past 24 hours. Instead of taking it easy, relaxing on her big comfy bed. Cuddles has been doing nothing, but non-stop pacing and meowing through out the house. Something is definitely wrong with her, which meant having to wait until 10am before we could take her up to our local veterinarian. I didn't get much, if any sleep and by the time Eric got home from work. We only had a mere hour of rest before needing to take our beloved soon-to-be, 19 year old Cuddles to be checked out.

Cuddles will be 19 years young on Mother's Day. That is an awful lot of kitty years, enjoying life to the fullest! We do understand that at Cuddles age, 90 years young in human years, that eventually she will want to reunite with her siblings back home in heaven. Cuddles has more extended 9-lives than all of our beloved fur kitties combined! Just when we think, Cuddles is not doing well, especially at her age. She once again defies the odds! It's actually pretty darn amazing if you think about just how lucky our little family truly is! We really do have a lot to be thankful for! Cuddles is now on a new prescription combination drug to help her feel a bit more relaxed, also to help with any pain she may be experiencing at a young 19 years of age. Cuddles is now Grandma Cuddles to soon-to-be 1 year old Mittens and 3-year old Beary kitty. She most definitely takes care of the youngins in our household. Cuddles is just as her name. Super cuddly and super sweet to all of our beloved fur children!

Once we got home from the visit to our local veterinarian and Cuddles was finally able to rest. We all decided to catch up on some much needed sleep. A long afternoon nap... zzzzz... With it far too hot today in the country. I opted to hit the trails solo later in the evening while Eric stayed home to keep a close eye on Cuddles and Littleblue recovering from surgery. We still have a list to complete before we are officially moved into our new temporary home, but life happens. Today was another small, minor delay. Eric will be attending to the RV tech tomorrow morning while I stay home to watch over the gang. It's a tag-team kind of move this time around!

Hopefully Littleblue will continue on a smooth road to recovery and Cuddles kitty starts feeling like herself again very soon! Happy fur children on their way with their human parents. Onto our next destination!

RV~ING...


Posted by GastroparesisAwarenessCampaignOrg. at 11:53 PM EDT
Updated: April 21, 2017 11:54 PM EDT
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April 20, 2017
A Little Healthy Summer Cooking... In The Spring?.
Mood:  bright
Now Playing: Day 2663-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Talking about busy as a bee!

That would be me!

Talking about bees in general? That would be here in the country with far too many bees flying all around us due to an unseasonably warm winter which means a really bad insect season. Spring. Really... It's more like summer in the country this week!

What a great opportunity to unwind from a long day by cooking up a few healthy summer dishes! Pretty to look at and Eric said, "Super delicious!"

The first seedless watermelons were already available at our local grocery store. Summer in spring? Sure, why not! Why not also add some fresh squash, zucchini and sweet potato noodles with vegetarian meatballs and basil pesto sauce. Creative, colorful and very season appropriate. Especially when it already feels like summer in the country. YUMMY!

I added the seedless watermelon juice to my BAI coconut water. Talking about TASTY! I don't know how some folks constantly eat out or consume fast food on a daily basis? Not only is it ridiculously expensive, but extremely unhealthy. Thanks, but no thanks. I would much rather cook clean, healthy and save more than a few $$. I'm not saying that what I have endured, as far as toxic-experimental oncology treatments is any healthier, but as far as me detoxifying my body. YOU BETCHA! I plan on reversing what my body has endured over the past year. The clean and organic way!

I can't wait to start living the RV way of life. I also plan on amping up our clean eating habits as well slowly adding in additional daily exercise. It's going to be strange having so much extra time to actually enjoy life on my good days. As a family. Our little family. With lots of parks and hundreds of acres of land, wooded trails and super clean lakes to fish. You can certainly bet that we will be sleeping as sound as one can while taking in all the sights and sounds. Living in the country~

Until then... BON  APPETIT!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 19, 2017
Something's... You Can't Predict.
Mood:  chillin'
Now Playing: Day 2662-Next GP Chapter... Turning Lemons Into Lemonade :)

 

You know me...

I am one to make sure that when I experience something. I have some UMPF to it!

Especially when it came to my phone literally coming alive on it's very own last night. We decided to visit our cell phone carrier this afternoon. Just to make sure.... There wasn't some sort of possible glitch with my cell phone. Hmmmm?...

When explaining what had happened to the gentleman whom had proudly told us how many years he had been working for the phone carrier. The look on his face was PRICELESS! Hahahaha! "So... You were laying on the couch and your cell phone was not being used. Then the Google search asked you to repeat your search request, but you were not using your phone?" Yes. I was turned the other way, watching television, ready to go to sleep. "Ummm... Well... You would first need to swipe to the screen to find the Google search bar on it. Then proceed by pressing the microphone icon. If you didn't touch your phone? Ummm... I don't know how it would detect anything without you pressing the microphone icon right here on this screen. Of course, you have to first swipe over to get to this screen on your phone." I wasn't using the phone at the time. It was laying on the head rest part of our couch. "Well... That's strange. I never heard of this phone manipulating on it's own because in all reality. That's what it did because I had our tech look at your phone and he didn't see anything wrong with it." Wow! Myself and Eric were actually chuckling a bit, but all I could do was thank the gentleman and wish him a blessed afternoon. I wasn't going to go into the full story. The parts of the strange, yet amazing conclude to a very special day, yesterday.

Over the years. Actually... Decades. I have learned that not everyone believes in my gift. You have your believers and then you have those who don't believe. Something's... You can't predict. Like the reactions from the non-believers. Then again... Something's... Like last night. No one can predict. It just happens and pretty much, the same way it always has happened for me since I was young. When least expected, but in the most special way. My gift.

Today was a pretty busy and quite hectic day! We started off this morning with once again, changing days with the RV tech that is now coming out to meet us this coming weekend. Things happen. Life happens. Today was my follow-up appointment to see how things are doing GI speaking. Decompressing takes time, especially when your are lucky enough to be spared a major intestinal blockage. My labs ended up coming back late yesterday afternoon, but my specialist wasn't in office to read them. By the time we went over my labs. Walgreens had already beat my specialist to the medication punch! BAH! Back on another round of medication. At least, two more for the time being. We did go over my labs from the hospital, in which, they weren't the best when it comes to hoping for a far better report. My white blood cell counts and other WBC test levels were super low, off the charts low. Worse than just a few weeks ago. Not good. My lymph levels weren't even registered on the chart. They were way below the already low end of the scale. 9.1L, 0.09L. My Gran levels were also way off, too high. 86.2H, 9.74H. Other lab results also showed changes that were only worse, not better than we could had anticipated. I do my best, to not allow my labs or any other tests to get the best of me. Things can always change. Better or worse. Over the years, I have learned to accept the good with the bad. Sometimes that is all you can do. No need to cry over spilt milk. There are no pity parties, WHOA as me. I am not a victim. HA! That even sounds silly! Stressing out, over what you can not control, doesn't do anyone any good. Especially, YOU.

My next rescan is already in a mere 6 weeks. Until then, I need not worry so much and instead, get out and continue living. Enjoying life to the fullest during my good days! While accepting there will always be the bad days. I don't believe in having expectations. I have changed the way that I look at life.

Wherever the wind takes me... Is where you will find me...


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 20, 2017 2:53 AM EDT
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April 18, 2017
A Special Balloon... A Special Message... Larry :)
Mood:  special
Now Playing: Day 2661-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Remember the message on a special balloon that we came across last month? The message that got hung up on one of the memorial light posts along the river trails?

I had every single intention to resend that special message on Easter. That was until Mother Nature brought us her own special basket of rain during the early evening hours on Easter. Definitely not a good time to set sail a very special balloon for a very special person. A balloon that had every intention to reach it's special birthday message destination.

Heaven.

Unfortunately, I knew that I couldn't use the exact same balloon to sent back up to the pillowy white clouds in the sky. Not after losing all of it's helium flying powers when it accidently got stuck, wrapped around the top of the memorial light post along the river trails. What the balloon needed was a bit of assistance from a few other balloons. As I carefully un-taped the birthday message. I noticed what appeared to be another message from someone else written on the back side of the note. Not only was it another birthday message to the special someone in Heaven, but now the special someone had a name. Larry. How ironic could this be?!? Myself and Eric always wondered about the name with so many heartfelt birthday messages that had every intention, to be delivered back home. In Heaven.

I believe in signs. Always have, always will. Today was certainly the day that this message would once again fly up to the Heavens with a special message to be delivered. To Larry from his loved ones, who wanted to let him know how much he is loved. Forever loved. On a very special day. Larry's birthday.

Maybe Easter just wasn't the right day to release the balloon. I believe in signs. As we got ready this evening to head up for our late walk along the river trails. We stopped at a local store so I could pick up a few balloons to help resend Larry's message. What I needed was some helium flying power! A balloon with some substance to it! Enough helium to carry the message high above the clouds so it wouldn't get caught again along the way. A balloon that would help assist this special message all the way up to Heaven.

I initially picked a colorful square balloon and a very pretty Happy Birthday balloon with sunflowers. As the young lady was filling the balloons up with helium, I felt drawn to look up towards the ceiling. There it was! Enough helium flying power to reach beyond the clouds! A super-size mylar balloon with the same appropriate message, "Happy Birthday!" Yep, that would be the one! The one balloon that not only assisted the colorful square balloon, but as well the pretty sunflower balloon carrying the very special message. Trust me by saying, that I planned on making double, even TRIPLE sure that this message would not be getting hung up on any light posts or anything else along the way!

This evening as I tied all three balloons together. I looked for the most perfect location along the river trails in hopes of making sure that Larry's message got sent back up to the skies, way past the clouds, onto it's destination. Back home with a very special birthday message. Heaven. It didn't very take long for all three balloons to quickly disappear among the clouds. In fact, within only a mere five minutes the balloons completely disappeared. To think, that something so wonderful, so rare, a once-in-a-lifetime moment, I was blessed enough to help assist. An evening walk, that led us to a special balloon, in need of assistance. To help resend a very special message to a most very special person. Larry. I don't believe in things like this happening again. Not ever again, because this is a once-in-lifetime moment. Was it meant to be for me? Most definitely!

As we continued walking along the river trails. I kept looking back, while saying a special prayer to the special balloon carrying a special message to a very special person, Larry. I prayed that the balloon would finally make it to it's very special destination, Heaven. I also prayed that somehow, someway, someone would let me know later down the road of life... That the message on the balloon was finally delivered.

This evening at exactly 11:11pm~Angel digits. While resting on my couchbed with my beloved Littleblue. The most odd, yet spectacular thing happened. As my cell phone sat on the left side of the couch, where I always keep it before going to sleep. Out of nowhere, my Google search microphone was somehow pressed and then activated. "If you just said something. I didn't hear what it was?" Not only did it scare the BEJEEPERS out of me, but I got that overwhelming feeling of nothing but pure electric surrounding me. Do I believe in signs? Sure I do! I looked at my phone and smiled. A very big, happy, content smile.

Thanks Larry for letting me know that your message made it back home to you.  Heaven.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 17, 2017
Easter..Take 2!
Mood:  happy
Now Playing: Day 2660-Next GP Chapter... Turning Lemons Into Lemonade :)

 

While some may celebrate Easter, once a year. This year in our household. We decided to celebrate Easter twice this year. Two days in a row..

Easter..Take 2! WOO~HOO!!

The unfortunate rain quickly followed behind us late last night. More rain in our country, where we count the remainder of our days down in our lemonade home. We had planned on exchanging homemade Easter baskets filled with various goodies once we got home yesterday, but Littleblue wasn't feeling her best so we decided to hold off until today. Easter Monday! Easter two days in a row-YAYYY!

Everyone, that includes our fur children, got to enjoy a few Easter goodies. Even DaisyMae and SnuggleDoo got to explore their first colored eggs this year. We didn't leave them in the cage for too long, since the chances of them becoming a bit too curious could mean, scrambled eggs and picking up pieces of egg shells. They were too curiously CUTE!

Snoreo is still in his non-sharing 3's with everyone. Including the kitty gang and Littleblue. So we opted for giving everyone their own special baskets in separate areas of the house. This way there wouldn't be any disagreements on who got the best basket. HAHAHAHA! Less is MORE! That has been our motto and new way of life! This year we scaled back quite a bit with the holidays, but no complaints what so ever. Even with zero disagreements and fighting among each other. Heeheeheehee!

 Myself and Eric also scaled back this year when exchanging homemade Easter baskets. No candy or sugary goodies this year for me from the Easter Bunny. This year was all about comfy colorful socks and a few light material summer short sleeve shirts. PERFECT! Thanks Easter Hubby! Heeheeheehee! Eric on the other hand... Well... I guess the Easter Bunny still had a little bit of a sweet tooth. Hahahahaha! Yep, someone got the goodie basket! Better Eric, than me.

A second day of celebrating Easter was just what we needed to start off the beginning of another long week. The Easter Bunny must had known just what to do! A blue basket filled with treats and a very HAPPY Littleblue

Easter..Take 2!

 


Posted by GastroparesisAwarenessCampaignOrg. at 11:56 PM EDT
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April 16, 2017
HAPPY EASTER! :)
Mood:  happy
Now Playing: Day 2659-Next GP Chapter... Turning Lemons Into Lemonade :)

 

HAPPY  EASTER!

Time for some country peace and quiet to start off our Easter Sunday! Ahhhh... R-e-l-ax-i-n-g...

We had to head up north, way far into the country in order to check on YOLO, our RV. It's been a week since we had a chance, actually a breather, to check and see how she was doing. We also wanted to make sure she did well during last weeks crazy weather. Since YOLO is brand new, she didn't disappoint as far as weathering the storms. Until we are officially all moved into our new little home, YOLO-You Only Live Once, we will be slowly taking a few totes up at time during each visit. Today was more so about making a few changes and add-ons for the upcoming summer months. We had scheduled an RV technician to also come out and fix a few minor things, but there must had been a bit of miscommunication. Instead of this weekend. Looks like the repairs will be completed next week.

Today was all-around an absolutely BEAUTIFUL and most PERFECT Easter day to enjoy all the sights and sounds of life in the country! In between the rain. We ended up having nothing but beautiful weather and partly cloudy skies with sunshine peaking every so often in between the clouds. PERFECT! There is just something about the country that brings nothing but pure peace for both of us. Peace and quiet in a little hidden country gem! God's country.

Pictures don't even begin to describe the beauty. There aren't enough words. YOLO is indeed living the good life!

Thanks to those who watched our Littleblue while we attended to things up north. It all worked out with hardly any holiday traffic and getting back early enough to still enjoy Easter together. As family. Our little family.

Littleblue continues to amaze us! She is doing so good with her surgical recovery and the stitches are even healing better than we could had ever anticipated! She is most definitely strong and I am so proud of how good she has been, even while being in so much pain. Our beloved fur angels in heaven have definitely been keeping a very close eye on her! There is no other way to explain how lucky we have been. How fortunate we are to have our Littleblue back home, minus the cancerous tumor. Dr. T has played such a huge part in our lives. God is good and so are those whom he has brought into our lives.

Easter is a time to celebrate the gift of life. We have so much to be thankful for that has happened in such a short amount of time. It was such a beautiful day to remember what is most important in life. The overwhelming amount of blessings and those who have brought so much joy into our lives. Framily, friends who are family and the kindness of strangers. I am beyond humbled and appreciative for everyone. There are not enough... Thank YOU'S!

So... As we attend to a few Easter traditions. Adding a new one or two. Our little family would like to wish everyone a very blessed and Happy Easter.

Peace~Love~Joy~Laughter

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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April 15, 2017
Keep Going~
Mood:  bright
Now Playing: Day 2658-Next GP Chapter... Turning Lemons Into Lemonade :)

 

B-E-A-U-T-I-F-U-L!

The first red tulip of the season! Spring or summer season? Who knows with temperatures hitting an all-time record here in the country. A mighty warm 87-degrees record! Can we say... A/C time? Sure we can! It's already on!

It was a very busy, yet another mighty productive day. There is still so much on our plate before we are officially on our way farther north in the country. All in less than 3 weeks... RVinggggg! We are still doing our best to stay organization and on track, but there is always room for the exception. Even the best intentions with planning. Don't always go as planned.

Another round of medication via outpatient and labs that won't come back until early next week. Not exactly how one envisions starting their Easter weekend, but one still has to keep going! I was never one to let medical hurdles get the best of me, nor stand in my way. I not only never plan on looking sick, but I never plan on looking how I really feel. Internally. Not everyone might feel the same way nor do the same as I do, but that's just me. That is what makes us all so different and unique. I like still looking and feeling... B-E-A-U-T-I-F-U-L

Maybe spending most of the day, not feeling my absolute best, didn't necessary=beautiful, but there's always tomorrow. Another beautiful day. EASTER!

No matter the battle or hurdles ahead... KEEP GOING~

That's what the good Lord said!

HAPPY EASTER

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 16, 2017 12:48 AM EDT
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