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The Road Before & After Surgery
January 24, 2017
Time For The Long, Overdue, 100+ Emails.
Mood:  bright
Now Playing: Day 2577-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What an AMAZING weekend!  

There are so many things going on behind the scenes, just as with life, some good and some bad. No parent should ever tell their children or adult children how they should or should not feel. It's not only wrong to not allow people the right to go through emotions, but as well, it is downright unhealthy. I don't take things that have transpired over the past 5 years very lightly nor should anyone assume, that we don't take it very seriously.

Over this past year, we have bravely put on warrior masks during cancer treatments, other treatments and more surgical procedures that we could had ever imagined in one single year. To set the facts straight with one particular cousin named, Tammy and a few others. We had to remove ourselves from some blood members for almost a year, due to not by our choice, but per the advice of a team of specialists and oncologists who insisted that family stress, if continued, could not only cause a major delay in post-treatment recovery, but could as well, be fatal when it comes to your health. There are times when we caught holy hell from blood members, for stories that were not about them, although they assumed, but instead from other readers, those like you, who choose to be anonymous and now, a publishing company who is proud of their dedicated blogger. A writer who has a passion in writing. This blog will live on with the help of a very reputable publishing company. 

There are permalink readers, that have shared their stories with us over the years. We have used more stories that we can count and for those kind, compassionate, brave souls. Our hearts go out to you. It takes a strong person, a hell of a strong person to be OK with their feelings and emotions. For those who are braver than you will ever know... WE thank YOU! XOXOXOXO

To those over this past year, that put their necks on the chopping block, because they cared, those who put their own relationships with family members on the line, because they did not agree. Even those whom never understood how families can keep the next generation from having the opportunity to know their families. What you have reached out over this past year, to let us know, has never fell on deaf ears. To read about, see and look at photos of events that even little E, our son, was not included, is not only sad, but disturbing.

We may not like the emails we read, to see all the photos and other information that goes along with more than 100+ emails, but it is a must. For both of us. We must come to terms with everything. Through struggles, we have learned a lot. We have gained a lot. We appreciate the little things in life so much more! 

I am a far more wiser person for the lessons learned.

For those who tell their blood relatives or adult children what they can or can not say. What they can or can not feel. To those who told us this week and told others how this blog is so negative, among other things, do yourself a favor. Especially do a huge favor for those who contribute to this blog. Those who also enjoy this blog and actually look forward to reading it. Do new permalink readers a favor, those waiting to sign up. Remove yourself from this blog and all links attached. If you don't like what you are reading, then why read it? It's that easy. Don't read the blog.

We plan on reading every single email this week, look at every single photo from what we were excluded from over this past year. All 100+ emails. Some even, years prior to this past year. We both plan on allowing ourselves the much needed closure to permanently move on... There are so many amazing, compassionate, kind hearted, good folks in this world. We refuse to here on out, allow great and amazing future friends and framily (friends who are family) for life, slip through our hands.

 It's finally time to make peace with what is, what used to be, and those whom will never be again...

The choice is ours for the taking. Out with the negative! In with the positive!

Time to be truly and genuinely HAPPY

~H.B.D


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 26, 2017 1:33 AM EST
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January 23, 2017
The HAPPIEST Of The Most HAPPIEST Day! :)
Mood:  happy
Now Playing: Day 2576-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today

Today was one of the HAPPIEST of the HAPPIEST days!

If every day in 2017 would be like today, this gal would be her most HAPPIEST yet!

Instead of another dreary, rainy day. Mother Nature decided to give us a little taste of spring! Lots of sunshine during the morning and afternoon hours, following quickly by overcast skies for the evening.

Not only was it a beautiful day to enjoy the great outdoors, but an even far more perfect day to enjoy these magnificent beauties!

LOVE~LOVE~LOVE

My soul instantly filled with nothing but, pure happiness!

We had never seen, whether alone, able to be one with such cute miniature horses. They were so tiny, but yet, so beautiful as their long manes flowed with the wind...

This is what living in the country should be like! God's land, untouched and enjoyed by all creatures who run free through out the land. What an amazing time we had with such beautiful horses! The day could not had been more perfect and the weather? PERFECTO! Taking in some country air, away from the hustle and bustle of city life, far away from all the factories, certainly set well with me.

After a day taking in breathtakingly beautiful Beauties, we did our part to clean up the wooded area surrounding our property. The part that Duke Energy hired crews left behind earlier this week. I believe in making sure to instill values in our children at a young age, so they can appreciate and respect Earth and the best gifts in life that are truly free.

I could get used to this kind of living! The country way of life where all animals are free to roam. The way our good Lord intended it to be!

What a mesmerizing, beautiful day, with far more beautiful Beauties... #LOVE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 24, 2017 9:49 PM EST
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January 22, 2017
LOVE My STEELERS! :)
Mood:  cheeky
Now Playing: Day 2575-Next GP Chapter... Turning Lemons Into Lemonade :)

 

A HUGE shout-out to sis and her hubby down south as they celebrate a little ole someones birthday today. A mere 30ish birthday or... maybe a few years younger?..

*WINK*

I am so happy that everyone had such a great time! You all more than deserve it and such a dashing couple!

Framily, friends who are family. XOXOXO

We are still in the process of things legally with regards to our lemonade home. Due to a few family members stating to some, that they are tired of hearing about the lemonade home, along with anything else that is negative. Whether that be the house or health issues. I have decided to honor ones wishes with many BLOGTASTIC entries for the upcoming month of February! A little hint... Greenscreen! Now mind you, I am not referring to our entire family, please now... No assumptions. Heeheeheehee!

We have, however, come across some very interesting findings. Thanks to those who have also weighed into the great lemonade house mystery, those whom have recently given us some friendly advice based off of many years of experience. Professional experience.

It seems, we might be sitting on some sort of sinkholes, among other foundation issues. There is also a fairly large and very long creek that runs behind our property. Actually, it begins from the top of the hill and down around to other properties on our street. Mind you, this doesn't mean that it was OK, to lie on a disclosure nor sell a home without listing it, 'AS-IS.' This photo is a neighbors foundation, also separating, which could be contributed as well to clay in the soil, the creek running through the back of the property, limestone and rock shifting, among other things. Needless to say, we would not recommend anyone purchasing a home in the small city where we recently bought our home. In fact, Geo Engineers gave us even better information, after realizing the city soil report for our home has been recently and quite mysteriously, locked for public viewing. Hmmmm?...

Per told by Geo Engineers who are also working on a local Walmart store, a mere 1 minute drive from our home, which is also sinking. "I would not suggest buying a home in the city which you currently reside because the ground is not stable." Too bad we weren't warned this ahead of time, same as not knowing a year prior, local counselor and the city mayor approved the Duke Energy tree slashing proposal. Like... sometime before closing would had been nice to know everything. Who would had thought to check on the soil and city property soil report, before purchasing a home? Not I. This entire experience has been some what, positive. I have learned a great deal about a huge array of topics that I would had never, prior to purchasing a home, would had ever dreamed about learning.

There is always a silver lining! A-L-W-A-Y-S!

Knowing that other neighbors are dealing with somewhat, similar issues, doesn't make what happened with our fictitious purchase any better, but at least if we sink, our neighbors will be going down with us. Together! Hahahahaha! Well, there are other options you know. Like... turning a storage shed into a really cool eco-friendly tiny house! Put three of them together and Eric said, "You could have a super tiny home with an attached garage! Hahahahaha!

Then of course, there is always a possibility in purchasing the oldest home in our little, lazy, river town. If this old, back in the day mansion, can not only withstand the test of time, but as well, too many great floods to mention. Then sign us up! WOO~HOO!! It's not only a sturdy home with lots of potential, but what a great place to investigate with all of our equipment. BONUS! Heeheeheehee...

Why, look at the time! Yep, time to get my Steelers face on! I have hope, but this sure is going to be one HECK of a playoff GAME!

WOO~HOO!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
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January 21, 2017
SILLY SATURDAY SELFIE SELF-OFF! Let The SELFIES Begin!
Mood:  cheeky
Now Playing: Day 2574-Next GP Chapter... Turning Lemons Into Lemonade :)

 

You k-n-o-w...

I am always up for a little friendly competition!

Years ago... A dear friend of mine used to take turns with me playing the game called, "Silly Selfies." We used to make it a competition on who could create the silliest, funniest, unique and sometimes, even the most fierce selfie! Of course, we would start our competition during the most random times. Heeheeheehee!

Years later...

There are now a total of 3 of us, SILLY SATURDAY SELFIE SELF-OFF competitors. We started our random selfie silliness over just this past year. Saturdays are for some serious selfie competition!

The object is to see who can create the best selfies, whether they are silly, serious, obnoxious, down right ridiculous and of course, the most FIERCE! Hahahahaha... We take our selfies very seriously!

It's not only a great excuse to throw on random outfits, doll yourself up and throw your best selfie pose for the camera, but it also helps you forget about far more serious things in life. We also see it a great way for us, adults, to have some serious fun and a whole LOT of LAUGHTER! Hahahahaha!

Me and Eric have our own silly selfie competitions during the week. We also like to see who can create the best lyrics regarding the days events, while throwing in random dance moves. BAH! I usually win on the lyrics part, while Eric is still the winner with his creative dancing. Although, sometimes I am not sure if he just threw out his back, or is actually busting out another new dance move?. HAHAHAHAHA! Life need not always be so serious, nor taken so seriously. Bust a selfie or two! Who cares what people will think, everyone has taken a selfie at some point in their lives. I believe that some folks used to call them polaroid's back in the day. Not selfies, as they are called in the present time.

I am certainly no Kim Kardashian when it comes to taking selfies, but for someone battling a nonstop, internal war within. I pride myself on cleaning up MARVELOUSLY!

One might even say, that she sure doesn't look her age. 25... errrrr... 45 years young and actually looking far better than when I was a mere 25 years of age. I like to give props to lots of liquid vitamins, protein shakes, too much Smartwater, zero fast food, a 95% liquid diet and of course, my little magical pill, Marinol. Yes, it is a medically researched fact. Medical marijuana does reverse the signs of aging.

Well... let's face it. I still absolutely refuse to look sick and I like to keep my competitors guessing on what I will look like during next weeks round of...

SILLY SELFIE SATURDAY SELFIES!

Life is far too short to take yourself so seriously. If you can laugh at yourself, then you can laugh with the rest of the world. We did vote Donald Trump as President of the United States. Right? R-I-G-H-T...

*WINKWINK*

As for the other two of my friendly, friend, Silly Selfie Saturday contestants? Let's 'face' it! You know who won this latest round!

'Face' it... HAHAHAHA!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 22, 2017 5:00 AM EST
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January 20, 2017
Other Examples... What To Strive NOT To Be.
Mood:  bright
Now Playing: Day 2573-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Another day... Another inch closer to one of our lemonade homes great stone walls ready to collapse.

What we certainly did not need, is more rain for an already record rain season. Winter season. The constant rain and constantly changing temperatures has us scrambling for alternate solutions in vacating. Anything has to be safer, than what this house is sitting on, an unsafe foundation. Even if that means buying a 5th wheel way of life. The problem wasn't in getting the loan, since we did so in my name. The problem was finding a place to set up. A place that has a bit of privacy, not reaching out to shake hands with your neighbor.

 Thanks, but no thanks!

It was an exciting, yet great idea for the perfect, not yet thought of, vacating a dangerous home opportunity. Unfortunately, it was a no-go, since there are no year round places that offer water connections in the winter. Who wants to spend more unnecessary money, buying a home on wheels and you can't find a place to park it? A great idea quickly went all downhill from there... Back to the drawing board...

Another problem we have been running into, is most home rental properties are now owned and managed by huge corporations. Private owned properties are becoming few and far between. One out of every 50 rentals, are now owned by large corporations. A mere, home rental Monopoly. Not only do they charge you, per person in the household, application fee, but as well make it virtually impossible to be approved. We only did one round of applications, with one large company, only to find out that Snoreo was not accepted because he is part German Shepherd. BAH! They accept mixed breed dogs, but not if they are part German Shepherd. Not only ridiculous, but a waste of application fee $$ and valuable time that I do not have to waste in the first place. We did rent from a private owner prior to purchasing our doomed home, but once we went under contract, we gave our 60 day vacate notice to the owner. For some reason, there are family members who are stating we got evicted, which is down right silly! We have the letter stating we gave our 60 day notice, yet, once again we find ourselves defending such a silly, ridiculous assumption. All because Snoreo was not approved. Not because of any eviction, because we never got evicted, we gave a 60 day notice after going under contract. Nothing more annoying than folks causing more unnecessary stress. Especially, when we have enough going on and far more important things to worry about, like... Finding a safe home while our doomed home sits in litigation. AMEN.

We have only been able to find, so far, 3 private rental homes. The three that we viewed were all beyond dirty from top to bottom. What some folks refuse to understand, is that when you have an already compromised immune system, that can no longer fight off infections. You CAN NOT move into a filthy, dirty, nasty, unkempt rental home. You CAN NOT also subject yourself to attempting to clean a rental property, in which, the private owners are just too lazy or too money hunger to clean up after the prior tenants. We have now seen this 3 times, too many, for our liking. Eric only has the garage to finish packing as it looks like our final big move destination, Nevada, will be here sooner than we anticipated. We have been constantly looking for a temporary rental home, but unfortunately, have been unsuccessful. Due to health reasons, on my end, we also do not have time to wait around, it's now or never.

What bothers Eric the most, out of this entire unfortunate situation, is watching the reactions of those who took part in causing stress and problems for us over the past 5 years. The same individuals who have caused escalated problems, should be the ones helping to look for a rental. What I try time and time again to have Eric understand, is the same as what others have already told him. "They don't care. They did what they did and ran for the hills. They don't care about anyone, but themselves. Don't worry about those who aren't worth worrying about in the first place." I just hope that one day, Eric will understand that all the time and energy, isn't worth investing in those who aren't worth investing into. My motto this year, "Let it go..." We all have to live with our actions at the end of the day. I believe that we all, in time, will also have to explain our actions to a higher power in heaven. Eric looked at me this afternoon and said, "I got a problem with those who care more about someone out on parole or those who have stole money and drugs for addiction issues, compared to caring for their own blood." Well... as I said... We all have to come to grips with our decisions some time in our lives. If someone is more worried about saving the life of someone addicted to pills than their own blood, then they must be OK with the person in the mirror looking back at them. If I am to treat someone out on parole, far better than someone that is one with my own blood. Then the old saying isn't necessarily true. "Blood is thicker than water." Sadly, priorities in this day and age are pretty screwed up.

I must had been born in the wrong generation.

During a mere, 3 private owned property viewings, that we have viewed over the past 2 months. One private owner really left a lasting impression on both of us, as I accidentally contacted them through a connected GP website email account. What I wasn't expecting, after realizing it was another property in need of serious cleaning and updating, before just whisking one tenant out and the next day, whisking another one in...

"How do you know about Gastroparesis?"

~I am a Gastroparesis patient, of 11 years.

"So you are the one who owns the website? You are the same person, the founder?"

~A ummm... reply... y-e-s...

"My granddaughter recently got diagnosed with Gastroparesis. They told her it was from a rare genetic disease. She has a list of other problems. Probably 19 other things. It's always something."

We would had been perfectly fine with hearing the story, however, the facial expressions and lack of compassion for another family member struck a cord with us. Instead of supportive, we felt more as if, the person was explaining how much of a burden their grandchild was for being so sick, with multiple, obvious to me, connected issues. Gastroparesis isn't just something you acquire by a mere diagnosis. It is a condition that is connecting with a pre-existing issue. A complication. Sometimes the connected diagnosis is found. Other times, it is not.

We both left feeling absolutely horrible for the grandchild whom we were told is so sick with so many issues, as if a mere burden. Clearly, the reasons for starting the Gastroparesis Awareness Campaign, were the exact reasons for hearing such a story. So patients do not feel alone. I know that feeling. Feeling as if only to be a burden to loved ones. It's not a good feeling, especially when such hatred is behind it. No one asks to be sick, yet, I don't sit well with hearing such lack of compassion from any loved one. Regardless if it is Gastroparesis, cancer, MS, diabetes or any other medical condition. At the end of the day, not one single patient, asks to be sick. What patients do ask? To be RESPECTED.

Respect means you don't create stress, conflict nor jeopardize ones place of residency. Respect doesn't mean you constantly bash, belittle, make light or fun of someone who is sick. Respect means you don't butt into or jeopardize care, privacy between a patient and their doctor. Respect means that regardless of how you feel about the patients spouse or caregiver, you still respect the patients spouse or caregiver. Respect means not putting down someone who is sick to their friends, neighbors, landlord, place of employment or to other family members. Respect is when you care and have enough compassion in your heart, as a decent human being, to include them in not only your life, but the lives of your family, children, grandchildren, etc. The ultimate form of respect for anyone who is sick, whom did not ask to be sick, is to respect the patient enough, that when the cards come tumbling down. YOU, the decent HUMAN BEING, have enough compassion and a big enough heart and are a big enough person to catch the person, loved one, friend or family member, when they FALL.

Is there a lesson to be learned from this blog entry? Well... if you look in the mirror and you find yourself being this person who treats those who are sick in any of the above, way, shape or form. Then yes, there is a blog lesson to be learned. How we should never strive to be and how to never, ever treat those who are sick.

Those who never ask to be sick, but do ask to be RESPECTED.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 21, 2017 10:53 AM EST
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January 19, 2017
E Coli...8 Months And Still... Counting?!?.
Mood:  chillin'
Now Playing: Day 2572-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I have my good days. I have my bad days.

I am fortunate, to still be able to enjoy a few good days. Lately, my bad days only seem to be getting worse. Physically, internally.

We continue to quickly lose count on how many rounds of antibiotics, iv meds, injections and other medication. Still, I can't get over the same infections. What my doctors did not anticipate, was to have cultures and labs come back showing the same nasty E Coli infection. This among other tumor and experimental oncology treatment complications.

This is the same infection that I picked up back in June, 2016. During radiation treatments. Yes, I am still battling the same infection, as well two other infections, all at the same time. E Coli has once again, showed up on labs and that within itself, has my entire treating team of specialists very concerned. The constant infections have also began working their way to other good organs. Organs that were not affected by radiation causing good and also bad cells, continue to scramble. Not only are my kidneys in danger, but now labs are showing early stages of cells within the bladder. Not good.

We have been to the new hospital, in our little, lazy river town, way too many times to count. It's not only been quite expensive, but also quite concerning. After finishing round after round of antibiotics. I will have 2-3 good days, then the infections will rebound and the high fevers come back with vengeance. It isn't a matter of complaining about what I am going through. It's about continuing to do my best to battle. It's about facing the facts that my body can no longer fight, what it used to be able to fight against. It's a reminder that my journey is slowly starting to end. I am not afraid of death, but at the same time. I refuse to suffer at great lengths.

The words by the last Cancer Center oncologists still haunt me. "You need to start letting go, accepting what can no longer be controlled." I can fully understand and now respect what they were trying to tell me. By not accepting, I could suffer greatly. This is not what I would want for myself. Mentally, I am now allowing my body to make the decisions. Compared to constantly fighting, mentally, what is going on, physically. I still continue sleeping an average of between 12-14 hours a day. All, we were told at the hospital today, is to be expected.

8 months of fighting a very difficult strain of E Coli is unheard of, by most, even by the hospital staff. Some days, I still amaze myself, but I know that my guardian angels play an important roll in making the impossible, possible. I have defied more than the odds, especially with something so serious. I consider myself extremely LUCKY! However, my organs have suffered greatly. When you come to the crossroads, of what you can no longer control. It's easy to put life into perspective. I continue to change how I view life. I am constantly striving to be a better person and be a better example for others. I try my best to not be the status quo in today's society. I would rather be the 5% of good people still left in this world. Someone who wants to make a difference. I have come to realize that negativity and stress from others, can be a reflection of what we think we should accept from others. I now have the most deepest level of self respect, I am not ashamed of doing whatever it takes to maintain that self respect. All the way to the end of my journey.

I can only hope that this blog, will always serve it's purpose. A way to inspire others. Maybe one day, 5% of good folks still left in this world, will grow to 100.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 20, 2017 11:59 PM EST
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January 18, 2017
We ARE Our Own Worst Enemy.
Mood:  sad
Now Playing: Day 2571-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today was another extremely sad and very grim reminder with regards to our doomed purchased property that began day 1.

As a dear high school friend quoted, after seeing photos I posted on social media of complete devastation;

"This disgusts me!... Man will be the cause of their own extinction."

Sadly, myself and Eric, could not agree with Kathy more! We ARE our own worst enemy.

So much for peace, quiet and enjoying nature. This is what we were left with after a mere two hours of Duke Energy Indiana and the local mayor approving a project. One year ago, in which, we were never informed.

Hired crews by Duke Energy Indiana completely devastated hundreds of trees through out the entire little, lazy, river town. In the process of literally taking down trees to their stumps. Hundreds of birds, nests and other wildlife were either killed or left quickly scrambling to find their homes. Our calls to Duke Energy corporate and the mayors office, fell on deaf ears. Not surprising, is it?.

 This is what makes me sick. Not cancer, nor illness, but the complete devastation of trees, birds and other wildlife that I once enjoyed. It's a shame that humans are the ones who destroy the most. Absolutely heartbreaking!.

Those who own land in the Cincinnati, Ohio area, beware, we were told that Duke Energy Ohio will be sending hired crews starting next week. We were given no notice about any type of project before, during or after purchasing this doomed house of horrors. The beginning of desecrating nature and wildlife began at 8:30am, in which, we both had to leave due to fear I would probably had put a stop to the project. By all means possible, because of course, that is just me. I value what God has created. Most people in today's society, sadly do not.

Finding some sort of peace, in this doomed home, now forever gone.

The eerie silence, standing where so many trees once stood and wildlife habitat, makes me sick. I feel for those in the Cincinnati, Ohio area, anyone who owns land, yet has Duke Energy lines on their property. A simple job of just pruning trees back so they do not come in contact with Duke Energy lines, turned into dead wildlife and trees that once stood for decades, some even hundreds of years. Gone, forever.

Big corporations do not care. Too bad this very sad world doesn't first think with their hearts, instead of their wallets. Maybe the world would then be a much better and far more loving place.

All around... Sad, disappointing and beyond depressing day.

Of course, there is a lot of native American land where we reside. I guess you can do the math on what happens when you destroy God's earth. Native American land? I have my opinions on what happens to those who do such a thing as we witnessed today. Ask my friend, Wingz...


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 20, 2017 11:00 PM EST
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January 17, 2017
The Things One Will Use~ The Things One SHOULD Use~
Mood:  sharp
Now Playing: Day 2570-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Another record has been officially broken!

My prior record of sleeping 12 straight hours has been officially broken after going to sleep last night at 8:30pm and waking up this morning at 11:00am.

Yep, all part of the internal war within continuing it's downhill spiral. I can no longer mentally fight the physical need of some serious sleep! I am also on my umpteen round of some pretty, down right, vicious medication. Another round of labs and cultures are also waiting to come back, after another round had to be taken a few days ago. Another rebound, antibiotic resistant infection. This is what happens when the body begins to break down. Dental work? That no longer is holding up after taking an entire year, last year, in order to complete. My dental team and oral surgeon were hoping that the dental repairs would last, however, they didn't, as they too are failing. Somehow, in the middle of everything, including one very physically tired body. I have to find the time this week for another round of dental work. Again.

What I miss most, is the beautiful snow... Magical visions of beautiful white snow, that somehow, always brought a huge smile to my face. What happened to the winter season? I know! Global warming, by the hands of man. Not nature, but by our own doing. Sad, but true. Slowly, winter season will be no longer. Instead of Mr. Trump worrying about building a wall. Maybe he should first focus on the most important matter at hand. Global warming. I predict that sooner, than later, the American population will be the ones saying, "YOUR FIRED!" Just my opinion in this great place we call, America. Where anyone can run for President. I still favor, Ronald McDonald for the next presidential term. At least, he will make sure that everyday is a HAPPY  MEAL!

While the world is warming and winters are now more like, springtime. Our house of lemons continues to sink and crumble. We have gotten so desperate, that even duct tape and rubber sealant in a can, seems like a temporary good idea. Temporary, is the key word! It could also be a minimum 3-day temporary fix with a home that is anything, but remaining stable on a continuously, shifting foundation. Will this home ever resell in the future or find itself being fully repaired? Per Geo engineer today... Not likely. It's a shame if you think about it, but more so a shame of such deceit by a group of mere liars. Did I ever mention, how much I despise those who lie? Especially, when lying could literally cause mortality to an entire family. Need I say more? Nah! I think I have more than once, gotten my point across. Well... There is always church for the entire involved party. A chance to make right with God.

Eric had a meeting with an attorney this afternoon. A very productive meeting with a lot of great information! Let's just say, that we are doing everything we are told. All good things come to those who wait. God help those who took a part in such a very fraudulent disclosure. The attorney was very disappointed and saddened by such a horrible thing to do, especially when all parties involved knew exactly what they were hiding, what they were selling and stuck together like some old western town. Us? We are considered the outsiders, from out of town. Out of state. Not the peaceful, little, lazy, river town we were so anxiously awaiting... It's most certainly not everyone in this town who think with only their wallets, instead of thinking first, with their heart. You can't blame the entire town, but we can only hope that our actions prevent this from happening to another family. That is what we hope for the most and so does the attorney we met today. The same goes for many others involved that have also been affected.

Another great blog lesson to be learned? Per, by our own home buying experience...

Don't ever be afraid to bring a tool box with you during the first initial walk through, or even during the final 2, before closing. Don't be afraid to lift that huge piece of art work on the wall. Don't be afraid to move the dresser that seems to be oddly placed or even wall border that looks fairly new. Just run your fingers across the border, let your hands do the talking! I also suggest removing one vent, in order to see what's inside the ducts and what you could potentially end up breathing. Bring a flashlight with you, for homes like this one, where they recently repainted with dark colors in order to further conceal problems. Flush the toilets, turn on the water, look for Drano bottles, open the cabinets. Heck! Just go ALL OUT! Heeheeheehee... You may look nuts to the realtor, but isn't looking nuts far better than dealing with a bunch of nuts when you end up buying a house that was anything, but true to the sellers disclosure?.. There are things that even your inspector will most likely, not do during inspection. There are far more things with a VA loan, that VA appraisers will not do for the bank.

Being proactive during such a huge purchase will not only save you time and money, but could prevent you from ever having to experience our nightmare. Who cares if you look nuts bringing in tools during a walk through? Tis better to be a safe nut, than to be a sorry nut! 

Just some good ole friendly advice we would like to pass on to others. Those who are getting ready to search for their new home during the upcoming home buying season... 


Posted by GastroparesisAwarenessCampaignOrg. at 12:27 AM EST
Updated: January 18, 2017 8:41 PM EST
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January 16, 2017
FEAR... Is NOT An Option.
Mood:  sharp
Now Playing: Day 2569-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Well... at least there was something to celebrate today. Especially when there isn't much, if anything, to celebrate anymore.

Happy kitty birthday to our beloved Beary~3 years young!

It's mind blowing, just how much life has changed in a mere 3 months. I feel absolutely all over the place! I have no clue what day we are on anymore, whether alone, what month we are on?. I can't tell you the last time, I really was able to sit down, relax and watch television. We really see no point in having any sort of digital or satellite service, when we are far too busy spinning ourselves in circles.

It's a tough reality when home isn't even home. We are in total limbo. I am beyond depressed and overwhelming stressed.

We still have yet to find any temporary rental in order to catch a break from this nightmare. For starters, the prices of rental homes are beyond ridiculous! You could take out a $250,000 mortgage for the price of what a rental home costs you in this day and age. Add all utilities onto the actual rental price, deposits, pet deposits and additional per pet monthly fees. It's absolutely nuts! We certainly did not ask for this entire mess, but then again, we really don't have much of a choice right now. Last week was a rude awakening on how frightening this house, that is ready to crumble, can really be when a huge storm system is right on top of you. The sounds coming from the foundation are no better. Especially at night.

All around... Staying here isn't working. If we stay much longer, we are all going to end up dead, under a collapsed house. Sounds scary, because it is! We saw photos from the engineers on homes, just like ours, that have collapsed. It's down right frightening! Something has to give, because I refuse to die as a result from staying inside a home that is crumbling, sinking, shifting and twisting on a very unsafe, unstable foundation.

Thank goodness! for friends like my dear Kev! He has been joining us on our quest to figure out the easier, safest and quickest way possible to vacate this lemonade home. It hasn't been easy, but we are down to a plan that could possibly work. It isn't a typical plan by any means, but neither is buying a home on fictitious lies by the sellers, agent, broker and others involved on a fraudulent disclosure and hidden nightmare. Our next step could possibly involve living in the great outdoors, which in all reality, is definitely my cup of tea! Peace, quiet and a place to actually give my body time to heal from radiation and other experimental oncology treatments, is what we are aiming for and FAST! There has been absolutely ZERO peace, quiet and rest since beginning, during and after oncology treatments. If it wasn't a group of folks constantly creating stress, then we buy a home from a bunch of liars, fibbers, whatever you want to call it. My body has gotten absolutely no proper time to heal. It's no wonder, I am finding myself quickly getting physically worse, not better.

There is a light somewhere at the end of the tunnel and I plan on doing what it takes to find it! I refuse to have a home literally kill our entire little family. Sometimes, extreme situations in life, call for extreme measures.Trust me by saying, you haven't seen nothing yet!

Those who had a hand in causing our little family such a nightmare and think it's OK? I am here to say, it most certainly is NOT OK. I'm not dead yet. Medically, I have continued beating the odds. Lately, it hasn't been looking very good nor in my favor, but I am still here. I am still alive. I will continue to fight in order to live to see another day. If it means taking extreme measures in order to have some sort of safe roof over our head? Then so be it.

I have no fear in life. Not anymore. Extreme oncology treatments change a person. You realize that fear is when you stare at a huge radiation machine and hold your breath as you get radiated 3-6 rounds per session. Fear is when you have to come to terms of complication after complication, infection after infection, growing tumors that continue growing. THAT my friends is FEAR. If you can get past that fear, everything else means nothing. It's minor. We are at the crossroads of a very tricky situation. This is the week when we place all of our cards out on the table and hope we make the best decision possible. The best decision out of the worst hand possible.

There is no time for fear. It's time to take a leap. A GREAT leap of FAITH with a whole LOT of PRAYING!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 17, 2017 11:00 PM EST
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January 15, 2017
Radiation... What They Don't Tell You.
Mood:  bright
Now Playing: Day 2568-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today was another grim reminder of the uphill battle that I continue to face. Another round of antibiotics, once again, failed after just less than a week. It only takes a mere 48 hours before the rebound infections come back in full force. It only takes a mere 24 hours before the physical toll begins to hit me, all over again... Today was another grim reminder. Another antibiotic resistant infection, rearing it's ugly head and a team of doctors trying to figure out what to do next . It was another grim reminder as well of what radiation can do to not only it's target area, but as well, your good organs. Your overall immune system. 

This blog entry is about all the ins, outs, do's and don'ts. All the things that you don't find out prior to and after receiving radiation therapy. All the things that you won't hear from Oncology.

Of course, this is based off what I learned from my own personal experience. After receiving a maximum dose, fast track, course of radiation.

Radiation therapy did not work for me. I did not wind up with my miracle cure, but it did change me for the better. I also learned a great deal before, during and after receiving radiation. By sharing a few ins, outs, do's and don'ts of my own personal experience, might help someone else along the way... Those who are making a very difficult, life altering, life changing decision. All in hopes of a cure.

 

 

 

The ins, outs, do's and don'ts...

Radiation treatment-before-during-after

 

*I was in far better health, before radiation, and that isn't saying much

*Radiation can scatter for weeks, months and even, years

*Radiation is the harshest, most deadly, long term-unknown complications oncology treatment and is not to be taken lightly

*Expect to smell the radiation after each session. Radiation has a way of perforating through the skin

*Depending on the area receiving radiation, expect your bones to ache. Radiation is known to dry out the bones. Expect to have a long term, deep ache. This is nothing like the ache you feel after a good work out or pulling a muscle

*Oncology will give you a printed out radiation schedule. Plan to stick to the schedule and be on time! Cancer treatment centers run a very tight ship!

*Radiation is like an internal match, that doesn't stop burning

 

The ins, outs, do's and don'ts...

Cancer centers... Patient waiting areas

 

*Word to the wise... patients are on scheduled visits, cycles. No one wants to socialize nor do the patients who are waiting to go back with their directed teams. These cancer patients are extremely sick from the treatments they are going through, MUM is the word!

*Those who wait in the waiting area like the quietness and time to reflect in order to collect their thoughts while anxiously awaiting the return of their loved one. One can only relate to what I am saying, if you are going through cancer treatments. The waiting room atmosphere is a very sobering one. An eerie silence. Please go in the same way as you leave... quietly

*No one wants to discuss their battle due to feeling so sick. Puzzles, magazines and other quiet activities are provided in the waiting area for a good reason. I suggest bringing a good book or magazine

*Do NOT use the patient restrooms or those located directly outside the treatment facility. It's very common for patients to get sick in those same restrooms. Including those located outside of the treatment rooms. Please don't risk patients by spreading your germs

*Do not bring a football team with you to the treatment center. Recovery rooms for patients are very limited and so is the space for loved ones

*For those a bit overly religious... Please do not bring your bible up to preach or pray. Cancer treatment centers are the wrong time and wrong place

*Treatment tote bag, A MUST! Trust me, by experience, you will use some or all before, during or after treatments. Keep the tote handy, front passenger area of your car. We created our own during my treatments which included the following.

Large zip locks bags in case of vomiting, baby wipes, paper towels, peppermint drops for nausea, warm hand wraps-can buy at local drug stores, sunglasses for sunny days, airplane pillow, blanket, diet 7up, saltine crackers. You will thank yourself time and time again for having a handy go-to tote!

*Radiation patients... Expect the first two treatments to go seemingly well, that is, after the first initial radiation burn. After that, it's all downhill from there...

 

The ins, outs, do's and don'ts...

Post-treatment. Home recovery

 

*Same with not bringing a football team with you during cancer treatments. You will not be feeling well nor up to a lot of company while recovering from treatments at home. Patients need their peace, quiet and rest

*Soup, saltine crackers and diet soda will become your prime staple foods when it comes to your post radiation treatment diet. Make sure to stock up!

*No one knows much when it comes to rebounding infections due to radiation therapy. I am a constant, rebound, infection patient. Expect post treatment infections to be brutal. Staying on top of them by seeking medical help ASAP is vitally important!

*As Eric knows by experience... Be prepared for when the radiation starts attacking your GI tract. Loved ones and caregivers should always be near the patient during recovery. There will be many times when the patient is far too weak to get up, stand up and walk on their own

*It's perfectly OK to look like Casper The Friendly Ghost. Radiation takes the color from your entire body, especially your complexion

 

I believe in the honesty game when it comes to radiation therapy. It would be nice if someone came out with a book on radiation expectations for not just the patient, but loved ones, friends, family and caregivers. Oncologists will never tell you what to fully expect during and after radiation, because they don't even know exactly what to expect. Most cancer patients choose not to talk about their journey, out of fear of scaring others and being far too weak to share.

REMEMBER... You have the choice to make your choices when it comes to cancer treatments. All cancer treatments are experimental. No one is for certain of the outcome. The same holds true for radiation and other cancer treatment complications.

REMEMBER... You can always change your mind about radiation therapy, but you can't after all is said and done.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 16, 2017 7:01 PM EST
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