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The Road Before & After Surgery
January 3, 2017
Sings: "Wheel In The Sky Keeps On Turnin"
Mood:  bright
Now Playing: Day 2556-Next GP Chapter... Turning Lemons Into Lemonade :)

 

"Made of silver, not of clay

I've been runnin' down this dusty road"

 

I have one thing to say about doing the same repetitive action or thing over and over and over again... Yet, getting the same repetitive action or response over and over and over again... Consistently repeating the same pattern that never works is... Nuts. Wasted energy.

Here we are, blessed with another new year, 2017. Another year and another chance to get it right this time. Finally, right this time! By my own personal experience, and sometimes, by far too much personal experience. Don't try to fix something that is not broken. On the other hand... Quit spinning yourself on the same wheel. If you continuously find yourself in the same circle, then take a different path.

Focus on a new direction.

I only say this to others, because my own personal light bulb, amongst other things, has finally went off after being told that my battle is now over.

Oncologists: "You need to let it go. What is no longer working needs to be let go now. You can no longer fight what can no longer be controlled."

It didn't take me long to sit back, reflect and then realize what I was being told. I don't have time nor weeks to get it through my brain that the fight is over. It's in God's hands now and will remain there until I am called back home to Heaven. A very upsetting and extremely disappointing, last oncology, final Cancer Center visit actually turned into a blessing in disguise. Not only am I now taking a new direction, moving forward with accepting a very well, bravely fought battle, but also learning to accept defeat. I may not have won myself a cure, but I gained so much more!

I gained freedom from any and all restraints that have held me down. I am learning to embrace... Defeat.

If I could give a gift to the world. It would be one gift. A simple word of advice, per my own personal experience.

Quit beating a path that is already broken. Quit spinning yourself in the same circle, on the same wheel that has gotten you absolutely nowhere. Embrace not just the positive things in life, but as well, embrace all the negative. There is a lesson to be learned from bad experiences.

You know what is next, right?

"Let it go."

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 4, 2017 10:14 AM EST
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January 2, 2017
ENERGY!
Mood:  rushed
Now Playing: Day 2555-Next GP Chapter... Turning Lemons Into Lemonade :)

 

ENERGY!

That is exactly what myself and Eric need for our second move, all within a mere 2 months.

We are set to move into our temporary rental home next week. I had a strong gut feeling not to unpack after moving our contents into our newly purchased, lemonade house of horrors. Instead, we left everything packed in boxes and carefully placed them in the middle of the basement. It's only been 2 months, but with environmentally unsafe air, all of our contents have to be transferred to plastic totes. Who in their right frame of mind would want to bring over this toxic air into another home? HECK NO! I actually anticipated the repacking project to take at least 3 days, but Eric has been on a very determined roll! We should be ready, all packed up, with our belongings safely placed into new plastic totes by tomorrow. YAYYY!!!

I have been doing my best to help assistant, in between allowing my body as much rest as needed. I no longer go by any schedules. That includes any type of sleep schedule. I now allow my body the rest it needs and when it needs it. At this point, at the end of my journey, I have decided to go back on what has proven to work for me. Physically and internally. I was taking 5mg of Marinol, my little magical pill, 3x a day. Due to our insurance company not covering the medication and rare cancer grant money no longer able to be offered to me due to maximum dose of treatments that unfortunately did not work, I have at least been given the option to continue taking Marinol on a daily basis. I slowly weaned myself off of the medication over a week ago, but due to the vomiting and nausea, as well, additional weight loss, this afternoon I have officially restarted the medication. Marinol, the little magical pill that allows for me to have better days! YAYYY! Thank you to those who have offered to help. There are not enough words for such appreciation. My body says, "Thank YOU!"

It will take awhile before I once again, begin reaping all the amazing benefits of the little magical pill, but all good things come to those who wait. Patiently... wait.

I attempted to stop doing my Relistor injections, but as well, that failed. Royally! When you have an obsolete GI tract and large tumors as well causing major digestive problems. One has to do, what one has to do. Back to what has always proven to work for me. I refuse to suffer through the rest of my journey, but as well, I refuse to be placed in a comatose state. Not now anyways.... Right now, I need to do my best to work with the right combination of drugs that will allow for me to have the best days possible when I am blessed to be given a good day or two, even hopefully, three! Bad days? Well... They will happen and as told, more frequently, as expected. No more schedules. I now listen to my body and allow the rest that is needed. 5 hours of energy today isn't very good, but it's 5 hours. It was a happy, productive as my body would allow, 5 hours. We even laughed a good majority of those 5 hours while myself and Eric reminisced about the past. The good, bad, happy and even, the sad. Let's face it, I plan on laughing and smiling as long as I can, all the way to the end of the road...

While playing a very crucial role, packing supervisor to Eric, heeheeheehee! We continued transferring our contents into three separate piles. Keeping, donating and not worth either, trash. While we were busy, so was our equipment. We only got two responses, but needless to say, two of the most accurate responses that one can get, when moving contents around in hopes of another successful move.

 Amazing~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 4, 2017 10:13 AM EST
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January 1, 2017
HAPPY NEW YEAR 2017! :)
Mood:  celebratory
Now Playing: Day 2554-Next GP Chapter... Turning Lemons Into Lemonade :)

 

YAY!!!

HAPPY NEW YEAR!

 

For Eric... Happy Legal Year`2017! Heeheeheehee!

I always told him, never take the court system for granted. It should be used for only, 'serious' matters, not for 'silly' matters. A new year means an entire year of litigation with regards to our home which continues to be pulled in a million directions, while quickly sinking. We are less than a week before we are finally safe, in a new home, under a secure roof and stable walls. A new year 2017, can't start off much luckier nor safer for our entire little family!

This is a year of letting it... go...

There is no sense in continuing to try to control, what can no longer be controlled. There is no further sense in trying to change things, that can no longer and some, never could be changed. It's a new year and a new beginning. Time to also rid of what needs no longer to be held onto. Some... for sentimental reasons. I finally was able to let go of my beloved Lucky's heart medications. Its time to let go of what limited the last two years of a very short special kitties life. I am so glad we were able to enjoy watching Lucky play with her new buddy and guardian kitty, Mittens. We didn't find her, Mittens found us at our prior residence. Lucky actually found her as a stray kitten that started coming around, eating bird seed, while watching us through the window. The rest of the story? Well... of course... Mittens is now enjoying the life of one extremely happy and beyond spoiled fur child. During the final hours of our beloved Lucky's life. Mittens remained by her side, watching over her. God had plans for Mittens. God had plans for us welcoming another one of his special animals sent from Heaven. XOXOXO

One thing I have learned with my journey, is just how important a good diet is for the human body. I have reiterated time and time again to Eric, on watching what he eats. What he puts into his body. I don't eat any fast food. I still remain on a very highly nutritional diet that consists of mainly liquids. I will remain devoted to trying any and all organic, msg-free, no-sodium products. No red meats, pork or chicken. I rarely eat fish and can actually count on one hand how many times I consumed fish last year. By the words of my oncologists, specialists and dietician, "You may be fighting an uphill battle, but your diet has helped in playing an important roll of outliving the odds. A one year prognosis has turned into two years. Way past anyone's expectations. Your diet has played a crucial part in your survival."

I also believe that staying as active as my body will allow, has also played a huge part in surviving the odds. 7 hours of energy a day, might not seem that much to most, but it is a LOT for a very tired body that has been put through hell and back. AMEN. I am beyond proud of my fight! I am one very determined gal, but I know that with this new year. I must accept that some things are now out of my control. Especially with my health. Fighting takes a lot of energy and maybe letting things just... go... Is the key to preserving what energy I have left. I might not had been happy with this weeks news. A final oncology appointment at the last Cancer Center, but now I can understand what I was told, is actually for my own good.

Let it go... God now has it in his hands as my Guardian Angels remain diligently by my side.

There is another, new year 2017, resolution that I promised myself. To some, skeptics, those who don't believe... Keep not believing, all the way back home to Heaven. For me, I consider myself with a special gift that started at a young age. I chose for decades to keep it to myself, but only to talk to others, connecting with those who also have a gift. I plan on reconnecting with my gift on a daily basis this new year. We have so much equipment, that has sadly been placed to the side in hopes of giving myself a gift of a cure. Time to... Let it go... Let things go medically and now take that energy and focus spiritually. I have crazy enough, predicted the majority of what has transpired with our lemonade home. I have also made some very remarkable connections over the past few months as if my gift has been literally screaming at me.

So... As I started a new year... I began my first of what will be, many sessions. Within a mere 30 seconds of saying, "Hello!" I got a response back, "Hi".

My special gift never left me, while trying to save myself over the past 24 months. I believe that connection always remained and so does those who continue watching over me.

2017 for me?

A year of special blessings and maybe even some, unexplained blessings. Gifts from Heaven.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 2, 2017 12:27 PM EST
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December 31, 2016
HAPPY SNOOZE YEARS EVE`2016! :)
Mood:  celebratory
Now Playing: Day 2553-Next GP Chapter... Turning Lemons Into Lemonade :)

 

HAPPY NEW YEARS EVE!

OR...

HAPPY SNOOZE YEARS EVE!

That is how I plan on celebrating the last day of 2016! Lots of rest and plenty of snoozing... zzzzzz....

Thank goodness for getting out of the house this morning! It's always good to catch a breath of fresh air in order to clear the ole mind a bit! Nothing wrong with enjoying another beautiful morning sunrise, while Eric let Snoreo and Littleblue run their energy out at our local dog park. Forget needing a huge fenced in back yard. We got two ginormous fenced in dog runs at a new dog park, a mere 2 minutes from our lemonade home. Our temporary rental home is only a few streets away. At least we will be super close in order to keep an eye on any vandalism issues once we vacate our house of lemons. It is also within only a mere 2 minute drive from the dog park. Talking about some very happy fur children! Heeheeheehee...

This New Years Eve is another first for me, as I remain home for the holidays. No way! Will I risk catching any viruses going around right now. Especially when I still need to rid current infections. Eric picked up my next round of strong antibiotics and IV meds from the hospital pharmacy this afternoon. I am extremely lucky and very fortunate to be able to continue home care, away from being stuck in a hospital. God willing, if I am blessed to beat a double infection. I plan on enjoying a bit of happiness with lots of laughter and plenty of smiles! Creating more new and very happy memories in 2017 with our little family. XOXOXO

Regardless if today is New Years Eve. Eric is still scheduled to work, even during the holidays. Murderers and other bad guys still need someone to keep them in check while awaiting trial or being transferred to in and out of state prisons. I did my best to stay awake in order to ring in a New Year 2017, but of course the fatigue slowly began to take over...

Staying at home on New Years Eve? A first. Falling asleep hours before the clock strikes midnight? Another first, but still kind of funny! Heeheeheehee!

Boy, do I feel old! HA!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 2, 2017 6:42 AM EST
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December 30, 2016
S-I-G-H....
Mood:  not sure
Now Playing: Day 2552-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Yesterday's huge blow of defeat, left me mentally exhausted. I am sure, the stress of it also will leave it's mark on my health... Internally speaking. Mentally? I doubt, that I will ever be, OK, with now needing to let things go.

It's like a really bad version of the movie, "Frozen." HA.

I didn't get much sleep last night, but boy oh BOY! Did I EVER make up for it this evening! I let it go alright! I let my inner most ZZZZZ'S go...

Since I was out like a light, along with a very tired fur gang. Eric on the other hand, was awake for the very uneasy sounds of a very unsettling, pissed off lemonade home. Scary enough, the sounds don't phase me anymore as I have taken enough pictures and kept close enough watch on every single room. I follow the voices of the walls within inside and outside. That sounds like a really scary movie doesn't it? EEK! Finding a basement wall now pushed up against a mere brand new, 2 week old hot water tank? Frightening! It's no wonder that the officially day we can start moving into the temporary rental home falls on 1-11, Angel digits. I believe with all my heart, that those up in Heaven certainly have played a strong roll in watching over our entire little family. Those involved in the selling of this hazardous property? HARDLY watching over anyone, but more so watching only their hands inside their wallets and bank accounts. Jerks. Yep, that is how I view anyone who sells a home in an extremely meticulously hidden way that this property was sold. A house that will be deemed a complete loss. JERKS.

Thank you good Lord for allowing me the opportunity to cross paths with jerks through out my life journey. If it wasn't for the jerks. I wouldn't be able to share my journey as a great lesson for all. Amen.

Our back bedroom is expected, by all engineers involved, to collapse inward within a few months. The ceiling is now pulling away from the walls even more so, than just yesterday. The increased egg shell cracks from the weight of the collapse is continuing to easily be visually seen through out the house. Especially, the back bedroom, dining room and garage. As of this afternoon. We were told to remove all cars from inside the garage due to the weight that the engineers fear is causing further collapse much rapidly, than initially anticipated. The rain forecasted for this weekend most definitely will not be helping out matters, but only to be expected. I am on guard. Eric is on guard. The bank, insurance company, engineers, attorneys, the city utility company and many others are also, on guard.

 We are less than two weeks away before the rental property will be ready and we quickly evacuate anything and everything out of this doomed property. Will they demolish the house later down the road? By the opinions so far, of many, YES. We will be selling off a lot! Everything that we can, because nothing will be able to be saved. We are already carefully planning each and every process of our move. Two moves, within 2 months. This move won't be nearly as stressful and hopefully, not physically speaking either. We never did fully 'unpack' our belongings that are still in boxes, in the middle of the basement. I go by my instincts and did the very first day, within 24 hours after waking up, not being able to breathe inside this doomed house of horrors.

I got a strange email that came from the Gastroparesis Awareness Campaign website today. An email showing the same broker that sold us our home, now adding 'FYI's', for any potential buyers, on new listings.

Once again, you do the math. I know... We did!

As far as my final oncology report and news that was given to us at yesterday's appointment? Mentally, still processing. Physically, my body, sadly is tired. Sleep dominates all, but 7 hours on a daily basis. The future? It's clearly not in my hands anymore. It's in God's hands now.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 1, 2017 8:30 AM EST
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December 29, 2016
Oncology Day... Final Day Of Hope.
Mood:  sad
Now Playing: Day 2551-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What a beautiful morning here in our little, lazy, river town!

For what ended up becoming, a very stressful day. It sure was an absolutely picture perfect morning! When your sleep remains anything, but normal, there is a positive side to being awake during the early morning hours.

Another BEAUTIFUL sunrise!

Today was the ultimate day of truth for this gal. Time to figure out if all the risks in putting my body through pure oncology treatment hell was in the end, worth it. Time to figure out my fate. Time to also figure out why in the world my body is still battling the same infections that continue literally kicking my booty!

Eric is always on the edge, at least a few days before my oncology appointments. I might have gotten a lot of sleep over the past 24 hours, but poor Eric, he was struggling this morning. In between battling medical odds that remain stacked against us and a sinking home. Eric is stressed out and maxed out. Once again, we had absolutely no expectations for this mornings oncology appointment, at a new Cancer Center, number 4. Expect the worst, but hope for the best. Yep, that remains our life motto...

As the suns rays continued to give us a small glimmer of hope. It also appeared that the suns rays followed us all the way to the hospital. Eric received a few rays of sunshine blessings as we walked towards the hospital doors. Eric has yet to leave my side. He remains devoted to fight along side with me in the medical land of the unknown. It didn't take, but a mere 2 minutes, by the time our feet hit the Cancer Center floor, before being called back into a room. I didn't even have time to finish signing registration and insurance forms before being quickly called back by the oncologist's nurse. Talking about staying on schedule! This Cancer Center sure doesn't mess around!

Once the nurse took my vitals. The new oncologist's assistant came into the room to go over my current medication and any new reports that might be missing in my medical chart. I did have to wait a bit in the room before the new oncologist's came in to introduce themselves. Another very uncomfortable situation quickly began brewing as I could clearly hear a few voices discussing a patient outside of our room. Hmmmm.... Sounds familiar... It actually sounds very similar to my own medical case... Hmmmm.... Ummmm? Then my gut instincts started instantly kicking in as I heard the oncologists discuss my case, right outside of our room. WOW! What I heard next was not only disappointing, but extremely disturbing.

"Is this patient in a room yet?"

As I hear them go over my medical records while reviewing recent scans and labs...

"I am not quite sure why the oncologists did not contact her last week after we discussed the case with them? We can not do anything for this patient."

As the nurse and assistant began discussing my vitals and recent labs. My gut instincts were literally screaming at me, "Get out of here! RUN! They can't help you! RUN!" I should had listened. My gut instincts have yet to ever fail me or steer me wrong. Not only was I quickly finding myself in a very bad situation, but I was blazing mad at the oncologist's discussing my medical case, right outside of our room. Clearly, they must had thought I didn't hear them. If we were to remain in this room, I definitely needed to say something as soon as they walked through the door.

And I did... Just that.

Eric just looked at me in complete shock. He didn't know what to say or do. I looked at him and said, "We need to get out of here!" Not even five seconds later, the door opened and the oncology team began introducing themselves. I was already very, rightfully so, extremely angry and upset. I can't believe they would discuss my case and say the things that we both heard right outside of our room. Mind you, there are other patient rooms next to the oncologist's desk. They could easily, as well, hear everything they were saying. Very sad and completely disturbing. I could either, not say a word, or... Say something with regards to hearing everything they were discussing, very loudly, outside of our room. I chose the latter. After they introduced themselves and I shook each of their hands, "We heard what you were saying outside of the room about my case. It sounds like I might be wasting my time."

The looks on everyone's very uncomfortable faces? PRICELESS.

Clearly, if anything good was to come out of a really bad, final oncology and last Cancer Center appointment for the remainder of this gal's life. Oncology patients private, confidential medical records and individual cases, most likely will never be discussed again outside of the patients room. Please, use a room for discussing any patients medical information. Preferably, behind closed doors. I really didn't need to hear what they were discussing. There was nothing that they didn't discuss, once they introduced themselves, that I didn't already hear outside of our room. My guards? UP, like the Great Wall Of China!

That uneasy feeling once a lead oncologist pulls up a seat, right next to you, means that you are about to get some very unfortunate news. There isn't anything positive about to transpire when an oncologist pulls a seat up next to you and the rest of the team's facial expressions turn to sadness. As we were explained the shocking news. I could hear the sound of the treatment room bell ring loudly, "DING-DING!" The sound of what would hopefully be a successful treatment. A ringing sound of hope for a cure. The sound of what is hopefully, a second chance at life for a cancer patient.

"As oncologist's, we are given five steps in hopes of helping a patient. There are no further options we can provide for you. I have to be honest with you. I don't want to argue or debate with the facts, but we ran out of options. All five avenues, everyone has aggressively taken, have been exhausted. I am sorry, but there is nothing that anyone can further do for you. There is nothing remaining out of the five options that everyone didn't already try in desperate attempts to help you. I am sorry, but you must accept that now you need to let it go. Antibiotics are becoming resistant in fighting infections that keep rebounding due to a very compromised immune system. Your body is tired after going through so much, yet you are still mentally fighting. You need to now let things go."

I was not only still really disturbed that they discussed my case outside of the patients rooms, so loudly, that we could hear every single word, but now this?!? Honestly, I can't say that I wasn't expecting some bad news, but I can't say either that I was expecting to hear that I need to now let things go?.. WOW! Eric's facial expression went completely blank. I felt more for him, than I did for myself. I assume all patients, when exhausting all avenues and find themselves out of options, want to protect those who have protected them. I wasn't worried about how I was going to handle this mornings news. I was more worried about how Eric was going to handle the news.

We were given copies of scans and other notes by quite a few oncologists and other specialists. Even the high voltage radiation didn't phase the internal war within. Nothing changed, but had only gotten worse with each experimental treatment. By me, risking everything, with experimental oncology treatments over this past year, not only was risky, but I put my health in further danger. I don't regret my decisions in seeking hopes of a cure, but in the process, I further damaged my already compromised immune system. Infections are quickly becoming impossible for even the best of the best doctors to manage. The window of hope has now closed.

Being officially released by four separate teams of oncologists is the hardest pill to swallow. I feel a huge sense of defeat. I feel completely let down by my own body. Mentally, they feel that my brain will continue fighting and at the end of my journey. I will suffer greatly. I was given two options in making sure the end of my journey isn't paved by a road of overwhelming suffering. Could I bounce back? They believe by the photos I shared with them, taken of myself and Eric at Christmas, were as they expressed with a smile, "A gift." Honestly, I couldn't agree with them more. My Guardian Angels gave me a gift of two generally amazing days, celebrating my favorite magical holiday. Christ~mas.

I will be handed back over to my specialist and his team. The same specialist and surgeon who helped assistant with my last and final surgery, 7 years ago. My team of many oncologists do not feel the need for scans to continue being performed every three months, but felt if being in the know helps me, then they would leave the decision up to me. Every three months, rescan and labs. I was given my final round of strong antibiotics and a referral to a pain management specialist. We were also given information on hospice care for when the battle can no longer be fought, physically. Mentally, I still want to fight the great fight. Physically, I know that I am at the end of a very long journey. Coming to grips with a sad reality?

It will be a very hard, emotionally draining and mentally exhausting struggle.....


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 1, 2017 7:23 AM EST
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December 28, 2016
WE Are Moving... Again.
Mood:  rushed
Now Playing: Day 2550-Next GP Chapter... Turning Lemons Into Lemonade :)

 

While I have been doing mostly, nothing but, sleeping. Eric has been busy securing a rental property.

As of this evening...

Our little family is moving. Again.

There hasn't been much good that has come out of our lemonade home. A house that should had never been sold in the first place to anyone. Ever. Due to even far greater risks of a serious collapse with walls now pushing, pulling and exterior concrete splitting and sinking. We had no other choice, but to quickly secure a temporary rental property, ASAP! How temporary will it be? I sadly suspect, a very long time. Thank you to amazing friends and framily (friends who are family) in and out of state who quickly worked their magic and beyond helpful assistance. We are now in the process of once again, packing it up and moving into a far safer, rental home. Within time, hopefully I can as well, finally get some much needed rest. Actually... ALL of us! Amen.

I go purely with my gut instincts, that to this very day, have yet to ever fail me nor steer me wrong. I also go by signs from those who watch over me and our entire little family from Heaven. When it's meant to be, it will be meant to be, you will know. Our new home was not only meant to be, but the nice couple who are renting us the home will be quickly getting it ready for us to move in no later than January 11th, 2017. Angel digits day! Yes, it's not a lot of time, but with our lemon of a home quickly sinking, pulling and buckling. We have no time. The engineer was hopeful that the house would allow for us to wait until at least a few more months, but unfortunately, 1 of the 3 walls that were deemed, 'safe,' are no longer safe.

This afternoon, we continued to hear some very disturbing sounds now coming from the front of our lemonade home and behind the garage. These are just a few pictures of what we found, along with the basement floor now separating. Needless to say, moving much sooner, than later is a blessing within itself. This house is not safe structurally, environmentally nor with hard wood floors in the bedrooms starting to quickly separate from the weight of a very unstable house. What a very sad situation, all around, but what a tremendous lesson to learn. There are still good people left in this world that walk among us. We need to take extra, special care of those who take care of us, because sadly, there are not many of those good folks still left in this world. There is a whole lot more I would like to say about the entire purchase from beginning to end, but for legal reasons. I can only disclose so much. Pictures do say a thousand words. Even sometimes, a million words.

Eric was asked to reach out to the media, however, I am leaving that decision up to him. This is his loan, using his hard earned VA, veteran benefits. I assume, we can all learn a lesson from a very unfortunate sale of a property that should had never been sold in the first place. When your house starts talking... Listen and listen very carefully, but most importantly, closely. We never had time to call our first purchased home together, "Home." This house is far from what I would consider a home, but hopefully some day, far down the road, some one can repair what was hidden very meticulously by prior sellers and other parties involved. A fictitiously clean property disclosure and a good buddy hand shake by a VA appraiser that only lives a mere 15 minutes down the street and good buddies with all parties involved with the property, minus the buyers. Us.

Yes, once again, you do the math. We already did.

Time is not on our side, all around, from packing it up again and my doctors attempts in getting a very nasty infection back under control, again. All in less than a mere 2 weeks.

Financially... Oh YES! Financially... We have spent well over $10,000 and counting as we are once again, spending hard earned money and maxing credit cards in hopes of staying afloat. More so, in hopes of staying on solid, stable land when it comes to our 8 week old home purchase. We will be paying $300.00+ more for the rental home per month, than what we are paying on our mortgage. That doesn't include security deposits, pet deposits, etc. Many of you have reached out with regards to setting up a Go Fund me account. Those in the know of the entire purchase contract and unsafe home have something far greater in mind. Asking Eric to go to the media. We have enough as far as oncology treatment bills that arrived in the mail this week. Our portion, as expected, in the thousands. Another financial burden, but well spent, hard earned money, in hopes of a cure for me. Money in our opinion... WELL SPENT!

This gal has goals. Some SERIOUS goals for the next 3 months, but for right now. My #1 goal is to get my body well enough for another move. That within itself will be the greatest feat of all!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 30, 2016 8:13 AM EST
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December 27, 2016
A DNA Present! :)
Mood:  special
Now Playing: Day 2549-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This has been one very unexpected Christmas of gift giving!

I couldn't be more shocked, excited or curious on what will become of some very special gifts from those dearest to me. This gal has 3 months to get her blood levels back up to some sort of normalcy in hopes of making it, front and center stage, 2017 Journey concert. I also got lots of healthy and some very new, not yet out on the market, protein shakes, meal replacement drinks, vitamins and even frozen organic beverages. My dietician and her assistant have always been beyond kind in keeping a look out for me on new products presented through out the year by their hospital dietician reps.

A very special gift I received this Christmas will hopefully unlock the key of some extremely important medical questions. DNA. Yes, DNA!

Today was the day, as I took my first steps in submitting everything to the lab in hopes of not only connecting with blood relatives, but also in hopes of helping my medical team. Having the chance to have your DNA thoroughly examined for connected, rare cancers, that another relative might have also experienced during their lifetime is truly a very special gift! I am super anxious to not only see if my rare medical condition might have been handed down from another generation, but as well, I can't wait to finally learn more about my blood relatives. The ability as well to be able to connect through DNA research will hopefully land me the possibility of connecting with family all over the world. Those who are alive, living and thriving.

This evening, I started the process of uncovering the past, the present and hopefully, a future with family that I had no idea even existed. It's going to seem like a century while waiting, but I just know that the results are going to be well worth the wait! I never thought of the gift of DNA research?. If so, it would had most likely been at the top of my Bucket List! I can't wait to share the lab results with everyone, but in the meantime... I have no plans on giving up, nor giving in.

It's been tough as ever lately while once again, dealing with one of the same post-treatment infections rearing it's ugly head. The same infection has even trumped my doctors, as they once again had to place me back on strong antibiotics while continuing my home care. One infection could easily become fatal when your immune system is already extremely compromised. I don't take what it going on with the internal war within lightly. Neither do my doctors. I am scheduled to sit down with another cancer team this week. I have no expectations of any cure, not by any means. If someone else can lend any kind of help to hopefully put some complications finally to rest. Then it will be worth traveling to a different state to meet with a different oncology team.

Who knows?.. Maybe a gift given to me this Christmas. A DNA present. Might end up being the greatest gift of all!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 30, 2016 6:38 AM EST
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December 26, 2016
Sings: "Up On The House Top..."
Mood:  d'oh
Now Playing: Day 2548-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Once again...

Christmas comes... Christmas goes...

I can't believe that we are only a mere week away from ringing in another New Year~2017?! Time sure does fly by, just unfortunately with our lemonade home, not quick enough!

A house rapidly sinking and being pulled in a million directions. TOO QUICKLY! ~eeeeeYIKES!

I wasn't sure if maybe one of Santa's reindeer were stuck on the rooftop this morning... Or... It was once again the sounds of one very pissed off house. BOOM~BAM! Then at the same time a feeling as if someone took a sledgehammer to the basement. Actually, more like the foundation.

With incredibly strange and anything, but normal weather so far for this winter season. It's no wonder that we were warned to evacuate our lemonade home much sooner, than later. I sleep on my couchbed in the living room. This was due to honestly believing that we were all much safer in the living room. That was before hearing a really uneasy breaking sound next to me, which is actually, the fireplace. I have been so fatigued lately, that I ended up going back to sleep, only to wake up later with a visually disturbing reminder of a house quickly falling apart.

We spoke to an Eco engineer today and was advised that it would be far safer for everyone to vacate the property ASAP. Of course, we must first find a rental home in order to move for the second time in 2 months. What an experience this entire home purchase has left for both of us. I thought living in a rental property was bad, but quickly have come to realize that it isn't the rental home or purchased home. It's the lack of decent human morals that today's society has quickly forgotten. It isn't a rental home or a purchased home to blame for such irresponsibility, blatant disrespect and zero morals or compassion on how we treat others, as well, our homes. We only have one person to blame as today's society only becomes worse with each passing year. A social media, entertainment society. We only have ourselves to blame on how we care for our homes and other personal belongings. Most importantly, we only have ourselves to blame on how we care for and treat one another.

Let's face it. It isn't called being dealt a bad deck of cards, nor is it called, "Bad Luck." It's called unfortunate situations with having to deal with jerks. Heeheeheehee! OK. I have to admit. That did sound pretty funny! HA! Sadly, it's true. Maybe it is far better to be in a private rental home, so I can at least give my body some sort of break. I am sure having the outside environment coming indoors has not playing wisely with me being so darn sick. Many have mentioned the fact of having such horrible foundation problems and a home quickly sinking, that all the cold winter air could easily make anyone sick. Add onto that fact, a very compromised immune system? This house is downright, deadly. I have said it numerous times to Eric, since the first night we actually spent the night in this house, only to wake up unable to breathe. One call and less than 24 hours we quickly found out, visually, just how unsafe environmentally and structurally this house truly is for anyone.

Our lemonade home should had never, ever been placed for sale. Out on the open market by all parties involved and whom knew just how incredibly dangerous this property is for anyone who steps foot into it. AMEN. As far as the broker and agent that represented us, knowingly admitting to the property sitting for a very long time... After closing...

SHAME ON ALL OF YOU.

That's really all I have to say. Honestly and legally within my rights. All I can say for now as this property will begin sitting within the court system for at least 2 years. Vacant as it should had been in the first place. I have the ability to put myself outside of any given situation. Even when it involves our little family. I can not, for the life of me, understand how anyone sleeps at night. Knowingly selling a home to another family and putting their lives in major risk. Environmentally and structurally. This home has taken it's own toll on our marriage, in which, we have still maintained a very close friendship which includes a tremendous amount of daily laughter. Lord knows, laughter will always keep one sane when dealing with a tremendous amount of stress. Add onto that, lack of help from physically able families. What we are going through could easily and most certainly, take a toll on any relationship. Any type of relationship, whether that be a friendship, relationship or marriage. 

Life is a lesson learned. I have only become wiser with each lesson that I have learned. I am far from a weak human being, but I also have an incredibly huge heart. I feel for Eric, especially with this home being used with his VA, veteran benefits. Nothing quite like serving time overseas, in a combat zone, then realizing that the ones you are really battling aren't the enemies behind the lines. It's your own citizens within your own borders. Once again, SHAME, SHAME, on the broker, agent, sellers and VA appraiser. All extremely close friends. All very close buddies. You do the math. I believe in our God. We have a good God. I also believe as someone in our little, lazy, river town told us, "We all answer to the same God."

Christmas comes... Christmas goes...

Those sure weren't reindeer prancing that we heard on the roof this morning, but you can certainly bet come this time next year. Santa won't need to come down the chimney, because the chimney most likely won't be here.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
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December 25, 2016
MERRY CHRISTMAS! :)
Mood:  happy
Now Playing: Day 2547-Next GP Chapter... Turning Lemons Into Lemonade :)

 

MERRY CHRISTMAS!

OUR RENDITION... THE 10 DAYS OF CHRISTMAS

"THE YEAR 2016 STYLE!"

 

On the 1st day of Christmas my true love gave to me.

Hornets chasing him while mowing

On the 2nd day of Christmas my true love gave to me..

A nice inflatable pool that kept SINKING

 

On the 3rd day of Christmas my true love gave to me...

A bat that he let in the house while I was sleeping

On the 4th day of Christmas my true love gave to me....

Two years of house hunting m-e-m-o-r-i-e-s

 

On the 5th day of Christmas my true love gave to me.....

Losing five pounds a week while stressing

On the 6th day of Christmas my true love gave to me......

Laughter during chemo and radiation therapy

 

On the 7th day of Christmas my true love gave to me.......

A rental house with gas lines leaking

On the 8th day of Christmas my true love gave to me........

A lemon house not worth investing

 

On the 9th day of Christmas my true love gave to me.........

A years worth of happy, funny memories

 

On the 10th day of Christmas my true love gave to meeeeeeeee..........

Devoted support through out my cancer journey~

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 27, 2016 7:40 AM EST
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