« December 2016 »
S M T W T F S
1 2 3
4 5 6 7 8 9 10
11 12 13 14 15 16 17
18 19 20 21 22 23 24
25 26 27 28 29 30 31
You are not logged in. Log in
Entries by Topic
All topics  «
Road to Survival
Blog Tools
Edit your Blog
Build a Blog
RSS Feed
View Profile
The Road Before & After Surgery
December 31, 2016
HAPPY SNOOZE YEARS EVE`2016! :)
Mood:  celebratory
Now Playing: Day 2553-Next GP Chapter... Turning Lemons Into Lemonade :)

 

HAPPY NEW YEARS EVE!

OR...

HAPPY SNOOZE YEARS EVE!

That is how I plan on celebrating the last day of 2016! Lots of rest and plenty of snoozing... zzzzzz....

Thank goodness for getting out of the house this morning! It's always good to catch a breath of fresh air in order to clear the ole mind a bit! Nothing wrong with enjoying another beautiful morning sunrise, while Eric let Snoreo and Littleblue run their energy out at our local dog park. Forget needing a huge fenced in back yard. We got two ginormous fenced in dog runs at a new dog park, a mere 2 minutes from our lemonade home. Our temporary rental home is only a few streets away. At least we will be super close in order to keep an eye on any vandalism issues once we vacate our house of lemons. It is also within only a mere 2 minute drive from the dog park. Talking about some very happy fur children! Heeheeheehee...

This New Years Eve is another first for me, as I remain home for the holidays. No way! Will I risk catching any viruses going around right now. Especially when I still need to rid current infections. Eric picked up my next round of strong antibiotics and IV meds from the hospital pharmacy this afternoon. I am extremely lucky and very fortunate to be able to continue home care, away from being stuck in a hospital. God willing, if I am blessed to beat a double infection. I plan on enjoying a bit of happiness with lots of laughter and plenty of smiles! Creating more new and very happy memories in 2017 with our little family. XOXOXO

Regardless if today is New Years Eve. Eric is still scheduled to work, even during the holidays. Murderers and other bad guys still need someone to keep them in check while awaiting trial or being transferred to in and out of state prisons. I did my best to stay awake in order to ring in a New Year 2017, but of course the fatigue slowly began to take over...

Staying at home on New Years Eve? A first. Falling asleep hours before the clock strikes midnight? Another first, but still kind of funny! Heeheeheehee!

Boy, do I feel old! HA!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 2, 2017 6:42 AM EST
Post Comment | Permalink
December 30, 2016
S-I-G-H....
Mood:  not sure
Now Playing: Day 2552-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Yesterday's huge blow of defeat, left me mentally exhausted. I am sure, the stress of it also will leave it's mark on my health... Internally speaking. Mentally? I doubt, that I will ever be, OK, with now needing to let things go.

It's like a really bad version of the movie, "Frozen." HA.

I didn't get much sleep last night, but boy oh BOY! Did I EVER make up for it this evening! I let it go alright! I let my inner most ZZZZZ'S go...

Since I was out like a light, along with a very tired fur gang. Eric on the other hand, was awake for the very uneasy sounds of a very unsettling, pissed off lemonade home. Scary enough, the sounds don't phase me anymore as I have taken enough pictures and kept close enough watch on every single room. I follow the voices of the walls within inside and outside. That sounds like a really scary movie doesn't it? EEK! Finding a basement wall now pushed up against a mere brand new, 2 week old hot water tank? Frightening! It's no wonder that the officially day we can start moving into the temporary rental home falls on 1-11, Angel digits. I believe with all my heart, that those up in Heaven certainly have played a strong roll in watching over our entire little family. Those involved in the selling of this hazardous property? HARDLY watching over anyone, but more so watching only their hands inside their wallets and bank accounts. Jerks. Yep, that is how I view anyone who sells a home in an extremely meticulously hidden way that this property was sold. A house that will be deemed a complete loss. JERKS.

Thank you good Lord for allowing me the opportunity to cross paths with jerks through out my life journey. If it wasn't for the jerks. I wouldn't be able to share my journey as a great lesson for all. Amen.

Our back bedroom is expected, by all engineers involved, to collapse inward within a few months. The ceiling is now pulling away from the walls even more so, than just yesterday. The increased egg shell cracks from the weight of the collapse is continuing to easily be visually seen through out the house. Especially, the back bedroom, dining room and garage. As of this afternoon. We were told to remove all cars from inside the garage due to the weight that the engineers fear is causing further collapse much rapidly, than initially anticipated. The rain forecasted for this weekend most definitely will not be helping out matters, but only to be expected. I am on guard. Eric is on guard. The bank, insurance company, engineers, attorneys, the city utility company and many others are also, on guard.

 We are less than two weeks away before the rental property will be ready and we quickly evacuate anything and everything out of this doomed property. Will they demolish the house later down the road? By the opinions so far, of many, YES. We will be selling off a lot! Everything that we can, because nothing will be able to be saved. We are already carefully planning each and every process of our move. Two moves, within 2 months. This move won't be nearly as stressful and hopefully, not physically speaking either. We never did fully 'unpack' our belongings that are still in boxes, in the middle of the basement. I go by my instincts and did the very first day, within 24 hours after waking up, not being able to breathe inside this doomed house of horrors.

I got a strange email that came from the Gastroparesis Awareness Campaign website today. An email showing the same broker that sold us our home, now adding 'FYI's', for any potential buyers, on new listings.

Once again, you do the math. I know... We did!

As far as my final oncology report and news that was given to us at yesterday's appointment? Mentally, still processing. Physically, my body, sadly is tired. Sleep dominates all, but 7 hours on a daily basis. The future? It's clearly not in my hands anymore. It's in God's hands now.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 1, 2017 8:30 AM EST
Post Comment | Permalink
December 29, 2016
Oncology Day... Final Day Of Hope.
Mood:  sad
Now Playing: Day 2551-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What a beautiful morning here in our little, lazy, river town!

For what ended up becoming, a very stressful day. It sure was an absolutely picture perfect morning! When your sleep remains anything, but normal, there is a positive side to being awake during the early morning hours.

Another BEAUTIFUL sunrise!

Today was the ultimate day of truth for this gal. Time to figure out if all the risks in putting my body through pure oncology treatment hell was in the end, worth it. Time to figure out my fate. Time to also figure out why in the world my body is still battling the same infections that continue literally kicking my booty!

Eric is always on the edge, at least a few days before my oncology appointments. I might have gotten a lot of sleep over the past 24 hours, but poor Eric, he was struggling this morning. In between battling medical odds that remain stacked against us and a sinking home. Eric is stressed out and maxed out. Once again, we had absolutely no expectations for this mornings oncology appointment, at a new Cancer Center, number 4. Expect the worst, but hope for the best. Yep, that remains our life motto...

As the suns rays continued to give us a small glimmer of hope. It also appeared that the suns rays followed us all the way to the hospital. Eric received a few rays of sunshine blessings as we walked towards the hospital doors. Eric has yet to leave my side. He remains devoted to fight along side with me in the medical land of the unknown. It didn't take, but a mere 2 minutes, by the time our feet hit the Cancer Center floor, before being called back into a room. I didn't even have time to finish signing registration and insurance forms before being quickly called back by the oncologist's nurse. Talking about staying on schedule! This Cancer Center sure doesn't mess around!

Once the nurse took my vitals. The new oncologist's assistant came into the room to go over my current medication and any new reports that might be missing in my medical chart. I did have to wait a bit in the room before the new oncologist's came in to introduce themselves. Another very uncomfortable situation quickly began brewing as I could clearly hear a few voices discussing a patient outside of our room. Hmmmm.... Sounds familiar... It actually sounds very similar to my own medical case... Hmmmm.... Ummmm? Then my gut instincts started instantly kicking in as I heard the oncologists discuss my case, right outside of our room. WOW! What I heard next was not only disappointing, but extremely disturbing.

"Is this patient in a room yet?"

As I hear them go over my medical records while reviewing recent scans and labs...

"I am not quite sure why the oncologists did not contact her last week after we discussed the case with them? We can not do anything for this patient."

As the nurse and assistant began discussing my vitals and recent labs. My gut instincts were literally screaming at me, "Get out of here! RUN! They can't help you! RUN!" I should had listened. My gut instincts have yet to ever fail me or steer me wrong. Not only was I quickly finding myself in a very bad situation, but I was blazing mad at the oncologist's discussing my medical case, right outside of our room. Clearly, they must had thought I didn't hear them. If we were to remain in this room, I definitely needed to say something as soon as they walked through the door.

And I did... Just that.

Eric just looked at me in complete shock. He didn't know what to say or do. I looked at him and said, "We need to get out of here!" Not even five seconds later, the door opened and the oncology team began introducing themselves. I was already very, rightfully so, extremely angry and upset. I can't believe they would discuss my case and say the things that we both heard right outside of our room. Mind you, there are other patient rooms next to the oncologist's desk. They could easily, as well, hear everything they were saying. Very sad and completely disturbing. I could either, not say a word, or... Say something with regards to hearing everything they were discussing, very loudly, outside of our room. I chose the latter. After they introduced themselves and I shook each of their hands, "We heard what you were saying outside of the room about my case. It sounds like I might be wasting my time."

The looks on everyone's very uncomfortable faces? PRICELESS.

Clearly, if anything good was to come out of a really bad, final oncology and last Cancer Center appointment for the remainder of this gal's life. Oncology patients private, confidential medical records and individual cases, most likely will never be discussed again outside of the patients room. Please, use a room for discussing any patients medical information. Preferably, behind closed doors. I really didn't need to hear what they were discussing. There was nothing that they didn't discuss, once they introduced themselves, that I didn't already hear outside of our room. My guards? UP, like the Great Wall Of China!

That uneasy feeling once a lead oncologist pulls up a seat, right next to you, means that you are about to get some very unfortunate news. There isn't anything positive about to transpire when an oncologist pulls a seat up next to you and the rest of the team's facial expressions turn to sadness. As we were explained the shocking news. I could hear the sound of the treatment room bell ring loudly, "DING-DING!" The sound of what would hopefully be a successful treatment. A ringing sound of hope for a cure. The sound of what is hopefully, a second chance at life for a cancer patient.

"As oncologist's, we are given five steps in hopes of helping a patient. There are no further options we can provide for you. I have to be honest with you. I don't want to argue or debate with the facts, but we ran out of options. All five avenues, everyone has aggressively taken, have been exhausted. I am sorry, but there is nothing that anyone can further do for you. There is nothing remaining out of the five options that everyone didn't already try in desperate attempts to help you. I am sorry, but you must accept that now you need to let it go. Antibiotics are becoming resistant in fighting infections that keep rebounding due to a very compromised immune system. Your body is tired after going through so much, yet you are still mentally fighting. You need to now let things go."

I was not only still really disturbed that they discussed my case outside of the patients rooms, so loudly, that we could hear every single word, but now this?!? Honestly, I can't say that I wasn't expecting some bad news, but I can't say either that I was expecting to hear that I need to now let things go?.. WOW! Eric's facial expression went completely blank. I felt more for him, than I did for myself. I assume all patients, when exhausting all avenues and find themselves out of options, want to protect those who have protected them. I wasn't worried about how I was going to handle this mornings news. I was more worried about how Eric was going to handle the news.

We were given copies of scans and other notes by quite a few oncologists and other specialists. Even the high voltage radiation didn't phase the internal war within. Nothing changed, but had only gotten worse with each experimental treatment. By me, risking everything, with experimental oncology treatments over this past year, not only was risky, but I put my health in further danger. I don't regret my decisions in seeking hopes of a cure, but in the process, I further damaged my already compromised immune system. Infections are quickly becoming impossible for even the best of the best doctors to manage. The window of hope has now closed.

Being officially released by four separate teams of oncologists is the hardest pill to swallow. I feel a huge sense of defeat. I feel completely let down by my own body. Mentally, they feel that my brain will continue fighting and at the end of my journey. I will suffer greatly. I was given two options in making sure the end of my journey isn't paved by a road of overwhelming suffering. Could I bounce back? They believe by the photos I shared with them, taken of myself and Eric at Christmas, were as they expressed with a smile, "A gift." Honestly, I couldn't agree with them more. My Guardian Angels gave me a gift of two generally amazing days, celebrating my favorite magical holiday. Christ~mas.

I will be handed back over to my specialist and his team. The same specialist and surgeon who helped assistant with my last and final surgery, 7 years ago. My team of many oncologists do not feel the need for scans to continue being performed every three months, but felt if being in the know helps me, then they would leave the decision up to me. Every three months, rescan and labs. I was given my final round of strong antibiotics and a referral to a pain management specialist. We were also given information on hospice care for when the battle can no longer be fought, physically. Mentally, I still want to fight the great fight. Physically, I know that I am at the end of a very long journey. Coming to grips with a sad reality?

It will be a very hard, emotionally draining and mentally exhausting struggle.....


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 1, 2017 7:23 AM EST
Post Comment | Permalink
December 28, 2016
WE Are Moving... Again.
Mood:  rushed
Now Playing: Day 2550-Next GP Chapter... Turning Lemons Into Lemonade :)

 

While I have been doing mostly, nothing but, sleeping. Eric has been busy securing a rental property.

As of this evening...

Our little family is moving. Again.

There hasn't been much good that has come out of our lemonade home. A house that should had never been sold in the first place to anyone. Ever. Due to even far greater risks of a serious collapse with walls now pushing, pulling and exterior concrete splitting and sinking. We had no other choice, but to quickly secure a temporary rental property, ASAP! How temporary will it be? I sadly suspect, a very long time. Thank you to amazing friends and framily (friends who are family) in and out of state who quickly worked their magic and beyond helpful assistance. We are now in the process of once again, packing it up and moving into a far safer, rental home. Within time, hopefully I can as well, finally get some much needed rest. Actually... ALL of us! Amen.

I go purely with my gut instincts, that to this very day, have yet to ever fail me nor steer me wrong. I also go by signs from those who watch over me and our entire little family from Heaven. When it's meant to be, it will be meant to be, you will know. Our new home was not only meant to be, but the nice couple who are renting us the home will be quickly getting it ready for us to move in no later than January 11th, 2017. Angel digits day! Yes, it's not a lot of time, but with our lemon of a home quickly sinking, pulling and buckling. We have no time. The engineer was hopeful that the house would allow for us to wait until at least a few more months, but unfortunately, 1 of the 3 walls that were deemed, 'safe,' are no longer safe.

This afternoon, we continued to hear some very disturbing sounds now coming from the front of our lemonade home and behind the garage. These are just a few pictures of what we found, along with the basement floor now separating. Needless to say, moving much sooner, than later is a blessing within itself. This house is not safe structurally, environmentally nor with hard wood floors in the bedrooms starting to quickly separate from the weight of a very unstable house. What a very sad situation, all around, but what a tremendous lesson to learn. There are still good people left in this world that walk among us. We need to take extra, special care of those who take care of us, because sadly, there are not many of those good folks still left in this world. There is a whole lot more I would like to say about the entire purchase from beginning to end, but for legal reasons. I can only disclose so much. Pictures do say a thousand words. Even sometimes, a million words.

Eric was asked to reach out to the media, however, I am leaving that decision up to him. This is his loan, using his hard earned VA, veteran benefits. I assume, we can all learn a lesson from a very unfortunate sale of a property that should had never been sold in the first place. When your house starts talking... Listen and listen very carefully, but most importantly, closely. We never had time to call our first purchased home together, "Home." This house is far from what I would consider a home, but hopefully some day, far down the road, some one can repair what was hidden very meticulously by prior sellers and other parties involved. A fictitiously clean property disclosure and a good buddy hand shake by a VA appraiser that only lives a mere 15 minutes down the street and good buddies with all parties involved with the property, minus the buyers. Us.

Yes, once again, you do the math. We already did.

Time is not on our side, all around, from packing it up again and my doctors attempts in getting a very nasty infection back under control, again. All in less than a mere 2 weeks.

Financially... Oh YES! Financially... We have spent well over $10,000 and counting as we are once again, spending hard earned money and maxing credit cards in hopes of staying afloat. More so, in hopes of staying on solid, stable land when it comes to our 8 week old home purchase. We will be paying $300.00+ more for the rental home per month, than what we are paying on our mortgage. That doesn't include security deposits, pet deposits, etc. Many of you have reached out with regards to setting up a Go Fund me account. Those in the know of the entire purchase contract and unsafe home have something far greater in mind. Asking Eric to go to the media. We have enough as far as oncology treatment bills that arrived in the mail this week. Our portion, as expected, in the thousands. Another financial burden, but well spent, hard earned money, in hopes of a cure for me. Money in our opinion... WELL SPENT!

This gal has goals. Some SERIOUS goals for the next 3 months, but for right now. My #1 goal is to get my body well enough for another move. That within itself will be the greatest feat of all!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 30, 2016 8:13 AM EST
Post Comment | Permalink
December 27, 2016
A DNA Present! :)
Mood:  special
Now Playing: Day 2549-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This has been one very unexpected Christmas of gift giving!

I couldn't be more shocked, excited or curious on what will become of some very special gifts from those dearest to me. This gal has 3 months to get her blood levels back up to some sort of normalcy in hopes of making it, front and center stage, 2017 Journey concert. I also got lots of healthy and some very new, not yet out on the market, protein shakes, meal replacement drinks, vitamins and even frozen organic beverages. My dietician and her assistant have always been beyond kind in keeping a look out for me on new products presented through out the year by their hospital dietician reps.

A very special gift I received this Christmas will hopefully unlock the key of some extremely important medical questions. DNA. Yes, DNA!

Today was the day, as I took my first steps in submitting everything to the lab in hopes of not only connecting with blood relatives, but also in hopes of helping my medical team. Having the chance to have your DNA thoroughly examined for connected, rare cancers, that another relative might have also experienced during their lifetime is truly a very special gift! I am super anxious to not only see if my rare medical condition might have been handed down from another generation, but as well, I can't wait to finally learn more about my blood relatives. The ability as well to be able to connect through DNA research will hopefully land me the possibility of connecting with family all over the world. Those who are alive, living and thriving.

This evening, I started the process of uncovering the past, the present and hopefully, a future with family that I had no idea even existed. It's going to seem like a century while waiting, but I just know that the results are going to be well worth the wait! I never thought of the gift of DNA research?. If so, it would had most likely been at the top of my Bucket List! I can't wait to share the lab results with everyone, but in the meantime... I have no plans on giving up, nor giving in.

It's been tough as ever lately while once again, dealing with one of the same post-treatment infections rearing it's ugly head. The same infection has even trumped my doctors, as they once again had to place me back on strong antibiotics while continuing my home care. One infection could easily become fatal when your immune system is already extremely compromised. I don't take what it going on with the internal war within lightly. Neither do my doctors. I am scheduled to sit down with another cancer team this week. I have no expectations of any cure, not by any means. If someone else can lend any kind of help to hopefully put some complications finally to rest. Then it will be worth traveling to a different state to meet with a different oncology team.

Who knows?.. Maybe a gift given to me this Christmas. A DNA present. Might end up being the greatest gift of all!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 30, 2016 6:38 AM EST
Post Comment | Permalink
December 26, 2016
Sings: "Up On The House Top..."
Mood:  d'oh
Now Playing: Day 2548-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Once again...

Christmas comes... Christmas goes...

I can't believe that we are only a mere week away from ringing in another New Year~2017?! Time sure does fly by, just unfortunately with our lemonade home, not quick enough!

A house rapidly sinking and being pulled in a million directions. TOO QUICKLY! ~eeeeeYIKES!

I wasn't sure if maybe one of Santa's reindeer were stuck on the rooftop this morning... Or... It was once again the sounds of one very pissed off house. BOOM~BAM! Then at the same time a feeling as if someone took a sledgehammer to the basement. Actually, more like the foundation.

With incredibly strange and anything, but normal weather so far for this winter season. It's no wonder that we were warned to evacuate our lemonade home much sooner, than later. I sleep on my couchbed in the living room. This was due to honestly believing that we were all much safer in the living room. That was before hearing a really uneasy breaking sound next to me, which is actually, the fireplace. I have been so fatigued lately, that I ended up going back to sleep, only to wake up later with a visually disturbing reminder of a house quickly falling apart.

We spoke to an Eco engineer today and was advised that it would be far safer for everyone to vacate the property ASAP. Of course, we must first find a rental home in order to move for the second time in 2 months. What an experience this entire home purchase has left for both of us. I thought living in a rental property was bad, but quickly have come to realize that it isn't the rental home or purchased home. It's the lack of decent human morals that today's society has quickly forgotten. It isn't a rental home or a purchased home to blame for such irresponsibility, blatant disrespect and zero morals or compassion on how we treat others, as well, our homes. We only have one person to blame as today's society only becomes worse with each passing year. A social media, entertainment society. We only have ourselves to blame on how we care for our homes and other personal belongings. Most importantly, we only have ourselves to blame on how we care for and treat one another.

Let's face it. It isn't called being dealt a bad deck of cards, nor is it called, "Bad Luck." It's called unfortunate situations with having to deal with jerks. Heeheeheehee! OK. I have to admit. That did sound pretty funny! HA! Sadly, it's true. Maybe it is far better to be in a private rental home, so I can at least give my body some sort of break. I am sure having the outside environment coming indoors has not playing wisely with me being so darn sick. Many have mentioned the fact of having such horrible foundation problems and a home quickly sinking, that all the cold winter air could easily make anyone sick. Add onto that fact, a very compromised immune system? This house is downright, deadly. I have said it numerous times to Eric, since the first night we actually spent the night in this house, only to wake up unable to breathe. One call and less than 24 hours we quickly found out, visually, just how unsafe environmentally and structurally this house truly is for anyone.

Our lemonade home should had never, ever been placed for sale. Out on the open market by all parties involved and whom knew just how incredibly dangerous this property is for anyone who steps foot into it. AMEN. As far as the broker and agent that represented us, knowingly admitting to the property sitting for a very long time... After closing...

SHAME ON ALL OF YOU.

That's really all I have to say. Honestly and legally within my rights. All I can say for now as this property will begin sitting within the court system for at least 2 years. Vacant as it should had been in the first place. I have the ability to put myself outside of any given situation. Even when it involves our little family. I can not, for the life of me, understand how anyone sleeps at night. Knowingly selling a home to another family and putting their lives in major risk. Environmentally and structurally. This home has taken it's own toll on our marriage, in which, we have still maintained a very close friendship which includes a tremendous amount of daily laughter. Lord knows, laughter will always keep one sane when dealing with a tremendous amount of stress. Add onto that, lack of help from physically able families. What we are going through could easily and most certainly, take a toll on any relationship. Any type of relationship, whether that be a friendship, relationship or marriage. 

Life is a lesson learned. I have only become wiser with each lesson that I have learned. I am far from a weak human being, but I also have an incredibly huge heart. I feel for Eric, especially with this home being used with his VA, veteran benefits. Nothing quite like serving time overseas, in a combat zone, then realizing that the ones you are really battling aren't the enemies behind the lines. It's your own citizens within your own borders. Once again, SHAME, SHAME, on the broker, agent, sellers and VA appraiser. All extremely close friends. All very close buddies. You do the math. I believe in our God. We have a good God. I also believe as someone in our little, lazy, river town told us, "We all answer to the same God."

Christmas comes... Christmas goes...

Those sure weren't reindeer prancing that we heard on the roof this morning, but you can certainly bet come this time next year. Santa won't need to come down the chimney, because the chimney most likely won't be here.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Post Comment | Permalink
December 25, 2016
MERRY CHRISTMAS! :)
Mood:  happy
Now Playing: Day 2547-Next GP Chapter... Turning Lemons Into Lemonade :)

 

MERRY CHRISTMAS!

OUR RENDITION... THE 10 DAYS OF CHRISTMAS

"THE YEAR 2016 STYLE!"

 

On the 1st day of Christmas my true love gave to me.

Hornets chasing him while mowing

On the 2nd day of Christmas my true love gave to me..

A nice inflatable pool that kept SINKING

 

On the 3rd day of Christmas my true love gave to me...

A bat that he let in the house while I was sleeping

On the 4th day of Christmas my true love gave to me....

Two years of house hunting m-e-m-o-r-i-e-s

 

On the 5th day of Christmas my true love gave to me.....

Losing five pounds a week while stressing

On the 6th day of Christmas my true love gave to me......

Laughter during chemo and radiation therapy

 

On the 7th day of Christmas my true love gave to me.......

A rental house with gas lines leaking

On the 8th day of Christmas my true love gave to me........

A lemon house not worth investing

 

On the 9th day of Christmas my true love gave to me.........

A years worth of happy, funny memories

 

On the 10th day of Christmas my true love gave to meeeeeeeee..........

Devoted support through out my cancer journey~

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 27, 2016 7:40 AM EST
Post Comment | Permalink
December 24, 2016
HAPPY CHRIST~MAS EVE! :)
Mood:  happy
Now Playing: Day 2546-Next GP Chapter... Turning Lemons Into Lemonade :)

 

MERRY CHRISTMAS EVE!

YAY!! It's Christmas Eve! The very first and the very last holiday celebration in our house of a billion lemons.

This is also the very first Christmas that I can remember having to stay home. Of course, our fur children didn't mind. Not one bit! Being home for the holidays means lots of extra unconditional love and bonding time with all our beloved fur children. Due to obvious reasons with my blood count, it was strongly advised that I stay away from crowds and any possible germs. I can't remember the last year that I wasn't able to attend Christmas Eve candlelight service, but as well the traditional manger scene and homes decorated with beautiful Christmas lights. I will have to visit beloved friends and family, placing holiday flowers at the cemeteries during another day. Sadly, it won't be during Christmas.

This year marks the first in not being able to stay true with any of our holiday traditions, but we still vow to do our best with what we got. Sometimes, that is all you can do and do so with lots of laughter plus a smile or two!

I am due back with two new oncologists who have joined my other oncology team at another new cancer center next week. We have been advised on doing everything we can to stay clear of large crowds and especially anyone who is sick. One more infection could easily tip things, once again, over the edge. As of this evening... I got some serious goals to achieve within the next 3 months!

Thanks to a certain couple in northern Ohio...*wink-wink* One of my ultimate Bucket List dreams will be coming true in 2017!

"Don't Stop Believin!"

WOO~HOO!!! FRONT ROW-CENTER STAGE

JOURNEY!!!!!!!!

Eric already knew well in advance along with a new television that gave me a little hint of a certain Christmas, Bucket List surprise! I am still speechless! Yes, it still doesn't seem real! That is, not until I am at the concert, right in front of one of my all time favorite bands, JOURNEY! WOO~HOO!! Needless to say, I have some major goals to achieve! I must get better, along with my blood counts, so I can once again travel. That means my white cell and other blood counts must also be far better than what they are currently now. I am beyond HAPPY and rightfully so, EXCITED! Who gets to see Journey in concert, front and center?!? I know.... ME! To those up in northern Ohio. You could had not made my Christmas more exciting and what an INCREDIBLE surprise!! Thank YOUUUUUUUUUU!

I may have grown out of being excited when it comes to presents, but even I could had not predicted this Christmas Eve, Bucket List surprise! Even a brand new television to watch the live Journey concert in Milan that Eric taped for me after setting things up while I was asleep. You should had seen my face walking into the living room on that one! PRICELESS~

Pinch me now! Me. Front row seats. Right smack center stage.

JOURNEY!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 27, 2016 6:29 AM EST
Post Comment | Permalink
December 23, 2016
Thank YOU! :)
Mood:  chillin'
Now Playing: Day 2545-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Tis not a good day, but I have been very fortunate to had gotten a few good days this week.

The high possibility of rebounding an infection began early this morning. Instead of running a high fever. I woke up with cold sweats and a very low body temperature. After waking up Eric, due to not being able to get up on my own. We proceeded back up to the hospital so my oncology team could get another round of IV medication started. It's unfortunate that my medical team works so hard to get me out of trouble, yet it only takes a matter of seconds to quickly go back to square one. Running an abnormally low body temperature is just as serious as running a very high temperature. Strange how cancer and the immune system can quickly either become friends or enemies. I am still a long ways away from my white cell count and lymphocyte count getting back to normal. So... Instead of enjoying a day of holiday festivities. I ended up having to stay on my couchbed all day in order to allow my body further rest. Tomorrow tis another day...

Thanks to everyone who reached out to Eric over the past few days. Especially the outpouring of support from local and out of state motorcycle clubs who honor our great Veterans. From the Night Hawks, Warrior Brotherhood, Men of War and Combat Veterans are just to name a few. Thank YOU for assisting all of our brave men and woman of the armed forces!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 24, 2016 9:12 AM EST
Post Comment | Permalink
December 22, 2016
FINALLY! Feeling A Bit Like Christmas!
Mood:  special
Now Playing: Day 2544-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Christmas?! Less than 3 days away?!

AHHHHHH!

No, we certainly are not ready for Christmas. Not in the least bit this year. This year has been non-stop action as we both are ready for a serious break! Yet, we still have a lot on our plate. We were also told to expect legal issues with our lemonade home to remain in litigation for at least 2 years. Let's just hope that my tired internal war within can continue fighting that long. It's no wonder that honestly. It's not about the money. It's about decent, human morals and common sense that our lemonade home should had never been listed in the first place. It most definitely should had never, EVER been sold to anyone. Amen.

With Christmas just a few days away.. It's time for some fun! Time to place all our cares and woes aside in exchange for some laughs, smiles and far happier holiday festivities!

Thanks to framily (friends who are family) down south in the great state of Texas for all of my super nice Christmas gifts that arrived on our front door step this morning! You BET this gal really loves her new super comfy robe that actually won't scare the deer when I step outside to feed them early in the morning. Heeheeheeheehee! Thank you big Sis, hubby and fur children for such a neat kitchen wall clock with a very special message. Now we both have matching clocks so every time we look up at the time. We are reminded of all of life's blessings. Indiana time and Texas time! MUCH APPRECIATED!

For those who are wondering where our annual holiday photo cards are in the mail... I finally finished them last night and hopefully all will arrive to everyone just in time for Christmas. A blonder, extreme to the umpteen EXTREME 2016 makeover for me! Blondes DO have more fun and especially with the help of hair and makeup! I can only imagine what those who have already seen my final extreme makeover are saying. Here's one for you! "I can't believe she is sick. She sure doesn't look sick." HA! It's sure not chemo or radiation that continues to allow for me to pull the wool over everyone's eyes. I refuse to look how I feel. If I am looking like hell, you sure won't be seeing it! BAH.

With all the foundation problems going on in and outside of our lemonade home. I almost had forgotten to take the box of investigation equipment out of my closet where I keep bare minimum of clothes. We never did unpack everything since moving into this 'AURORAVILLE' home, almost 7 weeks ago. Less is truly more and I have done just that with less clothes and less shoes! The foundation issues have continued to create some serious cold drafts through out the entire house. Especially in the bedroom closets. So, while I was finishing up some last minute gift wrapping and Christmas cards. I took down the box of equipment out of my drafty closet. It's a good thing that I secured all the equipment in the same box and used extra packing which kept everything safe from being damaged.

Time to turn on some holiday music and enjoy some last minute gift wrapping! I decided at the same time to turn on all of our equipment that we have slowly accumulated over the years. Eric had sent me a text message from work earlier to remind me to make sure that none of the equipment got damaged from the cold draft in both bedroom closets. This is a time, of course, when I really don't expect to connect to anyone. I just wanted to make sure nothing was damaged. I did do a prior sage cleansing of our house. Especially since we are having such serious foundation problems that has led us to seek a rental home while this property will be sitting in litigation. As I began wrapping a few last minute gifts and going through the holiday card address book. Two pieces of our equipment started talking.

Mind you. I did a sage cleansing of the house a few hours prior and really wasn't expecting anything, but to make sure all the equipment was still working and not damaged during the move nor the cold drafts in the bedroom closet. As I sang along to holiday carols, several pieces our equipment instantly began to come alive.

I know. I know... There are skeptics out there in this world and I am sure, there are plenty of them! However, I have always believed in the after life and the ability to connect to our loved ones. I believe that our spirit still remains. There are those who are gifted in this world. I call it a special gift and whomever was with me, surely wanted their presence and present of being able to connect, known. There was an hour series of very specific things that quickly came across a few pieces of our equipment. What came across was not only astonishing, but drained every single piece of equipment, my cell phone battery and dimmed the lights in the kitchen and connected dining room. This isn't the first time a connection was made. The first unexpected connection was actually 24 hours after the passing of a very sad and disturbing robbery that took the life of a family connection. I am blessed to have a special gift, in which, some may believe, some may not believe. Skeptics.

Over the years, we have visited many locations as the love of history has grown deeper and so has my spiritual connection. A gift that has gotten a lot stronger as I grow older. I am hoping that with a new year, we may continue going together visiting some of the most historic locations through out the great USA.

What an extremely unexpected gift! A 'hello' and possibly someone else enjoying the holiday season, from Heaven.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 24, 2016 8:19 AM EST
Post Comment | Permalink

Newer | Latest | Older