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The Road Before & After Surgery
January 29, 2017
LOVING WINTER! :)
Mood:  on fire
Now Playing: Day 2582-Next GP Chapter... Turning Lemons Into Lemonade :)

 

LOVE, LOVE, LOVE this cold winter weather!

Lots of big, comfy clothes and warm blankets kind of weather here in our little, lazy, river town...

With still not feeling GI better, this afternoon was the perfect opportunity to put on our winter clothes and enjoy a short walk along the river trails. Littleblue and Snoreo are always up for a brisk winter walk, our trail leaders! I may not had been feeling too much up for it, physically, but have yet to finish a walk, look at Eric and say, "BOY! Do I feel horrible after that terribly relaxing walk!" Heeheeheehee... Never.

Mobility=Better Motility

What I have also still yet to do, since moving out of state, is to dust off and plug in the ole home treadmill. Luckily, our home foundation has been extremely quiet lately. We aren't sure if this might possibly have to do with Duke Energy hired crews cutting far too many trees in the back of our property, instead of pruning them?. Additional pressure and weight released from the foundation could very well be a possibility for the eerie silence. The cold winter weather and ground starting to freeze might also possibly have something to do with our home finally catching a break. Professional expects feel that it could be very well from both. Released pressure, weight from the trees and much cooler winter weather. This doesn't mean that our troubles are over. Not by any means. It just means that we have finally gotten our long overdue house break. Literally... Break.

With winter weather finally staying for more than a few days, the last thing that I want is to have to stay indoors. Regardless of puking and waves of nausea. There is always an extra large zip lock bag nearby! I still do my best to continue carrying on with life. I could choose to feel sorry for myself and fall victim on the couch `OR` I could vow to continue on and seize the day. You know me...

I decided to seize the day! That included running errands and... Dusting off my treadmill.

Dare you ask what comes next?

YOU already KNOW! #DeterminedAndFIERCE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 30, 2017 10:04 PM EST
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January 28, 2017
Journey? JOURNEY!
Mood:  chillin'
Now Playing: Day 2581-Next GP Chapter... Turning Lemons Into Lemonade :)

 

With all this much cooler, FINALLY, winter weather. I have been thinking about a few Christmas gifts...

My DNA genetic testing is scheduled to come back within the next few weeks. Myself and Eric are super anxious to see if I am really related to Donald Trump...hmmm... BAH~HAHAHAHA! At this current moment, while he continues to seriously anger the living you-know-what out of folks. In and out of the country. I think it would be far safer right now to be related to Donald Duck. EEEEE~YIKES!!! *applauds*

Less than 2 weeks in office and he has already pissed off almost the entire world. I understand the need for change, but the guy needs to seriously s-l-o-w his r-o-l-l! Our president is becoming down right scary! I sure hope this isn't the making of our next assassinated president, but it sure isn't looking very good. My heart goes out to those who are needing to get back to their families here in the used-to-be, great USA. Those whom have been on a work permit program, working for large corporations like Proctor & Gamble, GE and many others. These same human beings, just like you and me, that have families anxiously awaiting for them to come back home. It's a shame that we the people, have voted for what now seems to be a great bully in the making, running our used-to-be, great country. Don't get me wrong. I like Donald Trump. I would like him even more back where he belongs... On 'Celebrity Apprentice.' If his hair stands as strong as his presidential term. Then we all need to be scared. VERY scared. EEEEEE~YIKES! Heeheeheehee...

Did I just write two paragraphs on politics?!?

LORDIE, I must be not feeling well! HAHAHAHA!

Where was I at again? Oh... yes... Christmas gifts! My other Christmas gift just happens to also be right around the corner, as I still hold the tickets to what should be, one amazing concert of a lifetime! Front row and center, tickets to see Journey at the end of March. YAYYYY! This means I am super excited at the idea of going and finally Journey in concert, but I am still a bit apprehensive. Sure, I have my tickets, but after yesterday's grand let down and unexpected internal war within surprise, who knows?. There is no way in this lifetime that I want to give my tickets away and I will do whatever it takes to attend the concert, but I must still be realistic. I can't predict my good days, from my bad days. I can't even predict anymore if a good day will end in a mere second. Like yesterday. The concert location is 3 hours away. A total of 6 hours in one day, driving time. That is A LOT to ask from my body. These are the times, that I wish research could invent some type of 24 hour magic pill. A one dose pill that would allow you to be free of being sick and other connected medical constraints. I used to think that it did exist, in the form of a little magical pill, Marinol. That was until yesterday.

I still have several weeks before my body ultimately decides for us, the fate of those concert tickets. In the meantime... I have an appointment with my specialist next week, to see where I am with an 8 month rebounding E Coli infection. I am almost certain on the exact location, where I picked up this upmost nasty infection. I remember the day when I gave up a room after radiation for another cancer patient who was struggling to walk after his chemotherapy treatment. On our way out of the oncology treatment center, I started feeling sick and was in need of a bathroom, ASAP! I ended up using a bathroom, right outside of the closed oncology society doors, in which, I would greatly regret later. Like days later, after the first initial signs of E Coli began to surface. The rest? The rest should be history, but unfortunately for me, it is still in the present. I plan on asking my specialist next week if we could possibly move up my dosage of Marinol. I started off on 2.5 mg capsules and now currently taking the 5 mg capsules. The problem is that I have to melt each 5 mg capsule in a large thermal mug of decaf coffee. That means having to drink two large thermal mugs of decaf coffee or decaf tea on a daily basis, on top of my other daily liquid nutrition. I am good just to be able to consume one large thermal mug a day. This might be why I am not reaping the full benefits of my little magical pill. Some days, even with medical, are better than others. If I didn't have an obsolete GI tract, Gastroparesis, my transit time with medications would be normal. I am not alone, but I still get by, like the rest of us GP'ers. One day at a time. Adding cancer treatments and rare tumors only made matters that much harder to handle. Far more difficult for a team of doctors to treat, but I vow to continue on...

Journey?  JOURNEY!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 29, 2017 1:42 AM EST
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January 27, 2017
Marinol... EPIC Fail!
Mood:  d'oh
Now Playing: Day 2580-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today started off as a really 'good'  day!

Mother Nature brought us back much cooler temperatures and little white snowflakes this morning. A perfect opportunity to really bundle it up and head out to walk the trails along the river. Littleblue and Snoreo are both cold winter pups, so they were super excited to walk the trails with all the beautiful white snowflakes slowly falling from the sky. It was the first time to actually enjoy the snow, instead of only a mere window view or while in route to the hospital.

#SuperHAPPY #BeyondCONTENT

We were actually surprised at all the barges that were slowly drifting down the Ohio river. I love photography, always have, always will! It was a picture perfect morning walk on the new river trails. Cold weather must had scared other walkers and joggers away this morning. Not only was it a beautiful morning with tiny snowflakes falling from the sky, but as well, only us brave winter folks were out on the trails. What a peaceful walk!

One would think, since they started the day off on a 'good' note. The same would hold true for the rest of the day. At least one could had only hoped for as well a good afternoon and great evening! Since we didn't have any plans and Eric's overtime at work got canceled... Again. We decided to head out to watch a few of Eric's old Army buddies compete in a national dart tournament. Time to get out and enjoy something new for a change! I am not one for darts, but have played darts over the years. What we weren't expecting was the huge dart tournament set up with teams from all over the great USA. This was a first for us!

What a great way to team up and have some fun with friends, while also getting the chance to tour around to various locations during tournament season. Talking about some serious competition! Just when you think you have seen it all... You have never truly seen it all! Heeheeheehee~ We saw some of the most creative team shirts from Kentucky, Illinois, New York, Michigan, Ohio, Pennsylvania, Tennessee. You name the state and they were there to represent! Now I can see why Eric's friends are so passionate about playing darts, especially at the beginning of dart tournament season. Of course, we didn't play darts, but were there instead for team support, but unfortunately that support only lasted a mere 2 hours.

My Marinol is 'supposed' to stop nausea and vomiting. A day that started on a good note, which we assumed, would end on an even better note, quickly went all downhill...

I haven't been able to consume many of my nutritional shakes due to still dealing with E Coli intestinal pain. The new antibiotics also make me feel pretty darn achy. My Marinol was working really good on helping to counter act any side effects from the antibiotics, as well, effects from the E Coli itself. Nausea, pain and vomiting. Out of nowhere, the pain and nausea hit me as we quickly made a mad dash for our car. Eric didn't even get a chance to say goodbye to anyone, because I was already sprinting to the car in hopes of getting home ASAP! Needless to say, not having a handy extra large zip lock bag would be our lesson learned, so instead we used the next best thing. A clear bag in the glove box which we use to place the vehicle manufacturer information and other brochures.

Thank goodness Eric at least had left over napkins that he got from work the other day. We couldn't even make it out of the parking lot and the clear bag? It had a hole in it and of course, puke went everywhere! Down my pants, inside my boots, on the car seat, floor mats. UGGGGG! So much for keeping up with my Marinol on a daily basis. Looks like even sometimes, Marinol isn't going to win. It's quite frightening to now realize that I can't even predict when a good day can quickly turn for the worse. Even more frightening to think that if I didn't start sprinting to the car, I would had gotten sick in front of a very large crowd.

Talking about feeling a bit paranoid now!

The pain and puking didn't stop until an hour after we got home. Instead of enjoying the start to what could had been, a really good evening and end to a 'good' day. We instead had to spend it, once again, at home. Eric playing nurse and my beloved fur children by my side.

I am scheduled for my next rescan and labs for the first week of March. A mere 5 weeks away. A mere 5 very scary weeks away...

Facing the unknown, is a very uncomfortable feeling to face.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 28, 2017 11:04 PM EST
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January 26, 2017
RE-Energize Day!
Mood:  chillin'
Now Playing: Day 2579-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Talking about burning the midnight oil!

After spending the past few days, doing a bit of sight seeing around the city, this gal is officially DONE. Time for some much needed rest... Time to re-energize! 

There is still so much more to explore around the little, lazy, river town. We also want to visit a local rescue organization, only a mere 10 minute drive from our home. The organization only allows visitors by appointment. It's hard to make an appointment, because my good and bad days are impossible to predict. I live day to day, hour by hour. Not on promises or any plans made well in advance. We live by the word, 'spontaneous.' Maybe next weeks doctors appointment will bring with it, some insight on any other possible treatments so I can enjoy far more good days! We have been told about possible, immunotherapy, but it never got past a brief conversation. For now, I must continue listening to my body, which unfortunately requires a lot of rest...

The first of the year brings with it, downtime at the Sheriff's department. Eric was fortunate to pick up a lot of overtime in the past few months, but as of now, there has been no overtime available. Overtime that he did sign up for in advance, has already been canceled. This is the time of year where we start to pinch pennies. Especially when our out-of-pocket insurance deductibles have officially been reset. We have to be extra careful with our budget. Not like living in a house with foundation issues isn't any better when it comes to the cost of our utilities. We hit an all-time record high on our gas and electric bill last month. So much for the listing agent telling us how much more cheaper utilities are in Indiana, compared to Ohio. Sure.... Maybe if you are staging the house you are selling, instead of actually living in it. BAH!

Next months blogs are going to be SUPER FUN! I can't wait to start using our green screen that we got for Christmas and start really having some SELFIE FUN!  

Kind of like Eric... Who might possibly be having a bit too much selfie fun! Heeheeheehee!


Posted by GastroparesisAwarenessCampaignOrg. at 10:22 PM EST
Updated: January 26, 2017 10:32 PM EST
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January 25, 2017
A BEAUTIFUL Day On The River! :)
Mood:  happy
Now Playing: Day 2578-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What an incredibly BEAUTIFUL day!

Before Mother Nature serves us another extreme temperature PUNCH! Today was all about doing our best to get out and enjoy the beautiful weather. Dry weather for a change! YAYYYY!

You know... I never considered myself to be much of a river type of gal, nor one to actually be fond of watching the big ships and barges slowly make their way down the river. It's no wonder, that a new walk and bike path that runs along the river, still receiving some finishing touches, always seems to have those who sit in their cars, enjoying the majestic ships and barges as they sail on by... Ironically, I can understand why, as I have quickly found out, it is VERY relaxing! We have yet to not come back home feeling super relaxed after taking a walk on the new river walking trails... What a great and healthy way to clear the ole mind! I can't use my home treadmill right now, not in this house anyways, due to fear I might become one with the basement. So for now... It looks like we will be hitting the walking trails a whole lot more, weather permitting. There is so much to look forward to on my good days, as we continue to explore the little, lazy, river town...

Today was another perfect day to seize the moment, as well, possibly a new opportunity in hopes of finding some sort of closure with our lemonade home. After Eric received some friendly, legal advice last week. We decided to place our home up for sale, by sellers-us, 'AS IS.'

Unfortunately, due to home rentals now being owned by large corporations. We have yet to find a temporary home to rent while this house begins the process of going through litigation. As we were told, could be a very long, 18 months before finally reaching the judge and a reversal for Eric. In the meantime, per legal advice, we have placed our home for sale. 'AS IS.' Also, as this house should had been properly placed by the prior owners. Sold, 'AS IS.'

We aren't sure if the house will sell. We also might end up with a different set of circumstances very soon, in which, the bank executive we have been working with will end up taking over things with the house. Nevada is in the works, as it has always been in the works, behind the scenes. Eric is still waiting for a few credentials and documents from the Army, but so far, so good! Putting my body through another stressful move might seem nuts to some, but then again, nuts is not doing whatever it takes to get out from under a roof that can collapse and kill you in a mere second.

After catching some really great quality sleep, naptime for all of us, we decided to end this evening with a coffee date! We don't have Star~bucks in this little, lazy, river town, but we do have the next best thing! A little Coffee Shoppe, two hops, a skip and a jump, right down the street...

Shhhh... It's a wig! ~HoneyBooBoo Child

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 26, 2017 2:52 AM EST
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January 24, 2017
Time For The Long, Overdue, 100+ Emails.
Mood:  bright
Now Playing: Day 2577-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What an AMAZING weekend!  

There are so many things going on behind the scenes, just as with life, some good and some bad. No parent should ever tell their children or adult children how they should or should not feel. It's not only wrong to not allow people the right to go through emotions, but as well, it is downright unhealthy. I don't take things that have transpired over the past 5 years very lightly nor should anyone assume, that we don't take it very seriously.

Over this past year, we have bravely put on warrior masks during cancer treatments, other treatments and more surgical procedures that we could had ever imagined in one single year. To set the facts straight with one particular cousin named, Tammy and a few others. We had to remove ourselves from some blood members for almost a year, due to not by our choice, but per the advice of a team of specialists and oncologists who insisted that family stress, if continued, could not only cause a major delay in post-treatment recovery, but could as well, be fatal when it comes to your health. There are times when we caught holy hell from blood members, for stories that were not about them, although they assumed, but instead from other readers, those like you, who choose to be anonymous and now, a publishing company who is proud of their dedicated blogger. A writer who has a passion in writing. This blog will live on with the help of a very reputable publishing company. 

There are permalink readers, that have shared their stories with us over the years. We have used more stories that we can count and for those kind, compassionate, brave souls. Our hearts go out to you. It takes a strong person, a hell of a strong person to be OK with their feelings and emotions. For those who are braver than you will ever know... WE thank YOU! XOXOXOXO

To those over this past year, that put their necks on the chopping block, because they cared, those who put their own relationships with family members on the line, because they did not agree. Even those whom never understood how families can keep the next generation from having the opportunity to know their families. What you have reached out over this past year, to let us know, has never fell on deaf ears. To read about, see and look at photos of events that even little E, our son, was not included, is not only sad, but disturbing.

We may not like the emails we read, to see all the photos and other information that goes along with more than 100+ emails, but it is a must. For both of us. We must come to terms with everything. Through struggles, we have learned a lot. We have gained a lot. We appreciate the little things in life so much more! 

I am a far more wiser person for the lessons learned.

For those who tell their blood relatives or adult children what they can or can not say. What they can or can not feel. To those who told us this week and told others how this blog is so negative, among other things, do yourself a favor. Especially do a huge favor for those who contribute to this blog. Those who also enjoy this blog and actually look forward to reading it. Do new permalink readers a favor, those waiting to sign up. Remove yourself from this blog and all links attached. If you don't like what you are reading, then why read it? It's that easy. Don't read the blog.

We plan on reading every single email this week, look at every single photo from what we were excluded from over this past year. All 100+ emails. Some even, years prior to this past year. We both plan on allowing ourselves the much needed closure to permanently move on... There are so many amazing, compassionate, kind hearted, good folks in this world. We refuse to here on out, allow great and amazing future friends and framily (friends who are family) for life, slip through our hands.

 It's finally time to make peace with what is, what used to be, and those whom will never be again...

The choice is ours for the taking. Out with the negative! In with the positive!

Time to be truly and genuinely HAPPY

~H.B.D


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 26, 2017 1:33 AM EST
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January 23, 2017
The HAPPIEST Of The Most HAPPIEST Day! :)
Mood:  happy
Now Playing: Day 2576-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today

Today was one of the HAPPIEST of the HAPPIEST days!

If every day in 2017 would be like today, this gal would be her most HAPPIEST yet!

Instead of another dreary, rainy day. Mother Nature decided to give us a little taste of spring! Lots of sunshine during the morning and afternoon hours, following quickly by overcast skies for the evening.

Not only was it a beautiful day to enjoy the great outdoors, but an even far more perfect day to enjoy these magnificent beauties!

LOVE~LOVE~LOVE

My soul instantly filled with nothing but, pure happiness!

We had never seen, whether alone, able to be one with such cute miniature horses. They were so tiny, but yet, so beautiful as their long manes flowed with the wind...

This is what living in the country should be like! God's land, untouched and enjoyed by all creatures who run free through out the land. What an amazing time we had with such beautiful horses! The day could not had been more perfect and the weather? PERFECTO! Taking in some country air, away from the hustle and bustle of city life, far away from all the factories, certainly set well with me.

After a day taking in breathtakingly beautiful Beauties, we did our part to clean up the wooded area surrounding our property. The part that Duke Energy hired crews left behind earlier this week. I believe in making sure to instill values in our children at a young age, so they can appreciate and respect Earth and the best gifts in life that are truly free.

I could get used to this kind of living! The country way of life where all animals are free to roam. The way our good Lord intended it to be!

What a mesmerizing, beautiful day, with far more beautiful Beauties... #LOVE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 24, 2017 9:49 PM EST
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January 22, 2017
LOVE My STEELERS! :)
Mood:  cheeky
Now Playing: Day 2575-Next GP Chapter... Turning Lemons Into Lemonade :)

 

A HUGE shout-out to sis and her hubby down south as they celebrate a little ole someones birthday today. A mere 30ish birthday or... maybe a few years younger?..

*WINK*

I am so happy that everyone had such a great time! You all more than deserve it and such a dashing couple!

Framily, friends who are family. XOXOXO

We are still in the process of things legally with regards to our lemonade home. Due to a few family members stating to some, that they are tired of hearing about the lemonade home, along with anything else that is negative. Whether that be the house or health issues. I have decided to honor ones wishes with many BLOGTASTIC entries for the upcoming month of February! A little hint... Greenscreen! Now mind you, I am not referring to our entire family, please now... No assumptions. Heeheeheehee!

We have, however, come across some very interesting findings. Thanks to those who have also weighed into the great lemonade house mystery, those whom have recently given us some friendly advice based off of many years of experience. Professional experience.

It seems, we might be sitting on some sort of sinkholes, among other foundation issues. There is also a fairly large and very long creek that runs behind our property. Actually, it begins from the top of the hill and down around to other properties on our street. Mind you, this doesn't mean that it was OK, to lie on a disclosure nor sell a home without listing it, 'AS-IS.' This photo is a neighbors foundation, also separating, which could be contributed as well to clay in the soil, the creek running through the back of the property, limestone and rock shifting, among other things. Needless to say, we would not recommend anyone purchasing a home in the small city where we recently bought our home. In fact, Geo Engineers gave us even better information, after realizing the city soil report for our home has been recently and quite mysteriously, locked for public viewing. Hmmmm?...

Per told by Geo Engineers who are also working on a local Walmart store, a mere 1 minute drive from our home, which is also sinking. "I would not suggest buying a home in the city which you currently reside because the ground is not stable." Too bad we weren't warned this ahead of time, same as not knowing a year prior, local counselor and the city mayor approved the Duke Energy tree slashing proposal. Like... sometime before closing would had been nice to know everything. Who would had thought to check on the soil and city property soil report, before purchasing a home? Not I. This entire experience has been some what, positive. I have learned a great deal about a huge array of topics that I would had never, prior to purchasing a home, would had ever dreamed about learning.

There is always a silver lining! A-L-W-A-Y-S!

Knowing that other neighbors are dealing with somewhat, similar issues, doesn't make what happened with our fictitious purchase any better, but at least if we sink, our neighbors will be going down with us. Together! Hahahahaha! Well, there are other options you know. Like... turning a storage shed into a really cool eco-friendly tiny house! Put three of them together and Eric said, "You could have a super tiny home with an attached garage! Hahahahaha!

Then of course, there is always a possibility in purchasing the oldest home in our little, lazy, river town. If this old, back in the day mansion, can not only withstand the test of time, but as well, too many great floods to mention. Then sign us up! WOO~HOO!! It's not only a sturdy home with lots of potential, but what a great place to investigate with all of our equipment. BONUS! Heeheeheehee...

Why, look at the time! Yep, time to get my Steelers face on! I have hope, but this sure is going to be one HECK of a playoff GAME!

WOO~HOO!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
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January 21, 2017
SILLY SATURDAY SELFIE SELF-OFF! Let The SELFIES Begin!
Mood:  cheeky
Now Playing: Day 2574-Next GP Chapter... Turning Lemons Into Lemonade :)

 

You k-n-o-w...

I am always up for a little friendly competition!

Years ago... A dear friend of mine used to take turns with me playing the game called, "Silly Selfies." We used to make it a competition on who could create the silliest, funniest, unique and sometimes, even the most fierce selfie! Of course, we would start our competition during the most random times. Heeheeheehee!

Years later...

There are now a total of 3 of us, SILLY SATURDAY SELFIE SELF-OFF competitors. We started our random selfie silliness over just this past year. Saturdays are for some serious selfie competition!

The object is to see who can create the best selfies, whether they are silly, serious, obnoxious, down right ridiculous and of course, the most FIERCE! Hahahahaha... We take our selfies very seriously!

It's not only a great excuse to throw on random outfits, doll yourself up and throw your best selfie pose for the camera, but it also helps you forget about far more serious things in life. We also see it a great way for us, adults, to have some serious fun and a whole LOT of LAUGHTER! Hahahahaha!

Me and Eric have our own silly selfie competitions during the week. We also like to see who can create the best lyrics regarding the days events, while throwing in random dance moves. BAH! I usually win on the lyrics part, while Eric is still the winner with his creative dancing. Although, sometimes I am not sure if he just threw out his back, or is actually busting out another new dance move?. HAHAHAHAHA! Life need not always be so serious, nor taken so seriously. Bust a selfie or two! Who cares what people will think, everyone has taken a selfie at some point in their lives. I believe that some folks used to call them polaroid's back in the day. Not selfies, as they are called in the present time.

I am certainly no Kim Kardashian when it comes to taking selfies, but for someone battling a nonstop, internal war within. I pride myself on cleaning up MARVELOUSLY!

One might even say, that she sure doesn't look her age. 25... errrrr... 45 years young and actually looking far better than when I was a mere 25 years of age. I like to give props to lots of liquid vitamins, protein shakes, too much Smartwater, zero fast food, a 95% liquid diet and of course, my little magical pill, Marinol. Yes, it is a medically researched fact. Medical marijuana does reverse the signs of aging.

Well... let's face it. I still absolutely refuse to look sick and I like to keep my competitors guessing on what I will look like during next weeks round of...

SILLY SELFIE SATURDAY SELFIES!

Life is far too short to take yourself so seriously. If you can laugh at yourself, then you can laugh with the rest of the world. We did vote Donald Trump as President of the United States. Right? R-I-G-H-T...

*WINKWINK*

As for the other two of my friendly, friend, Silly Selfie Saturday contestants? Let's 'face' it! You know who won this latest round!

'Face' it... HAHAHAHA!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 22, 2017 5:00 AM EST
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January 20, 2017
Other Examples... What To Strive NOT To Be.
Mood:  bright
Now Playing: Day 2573-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Another day... Another inch closer to one of our lemonade homes great stone walls ready to collapse.

What we certainly did not need, is more rain for an already record rain season. Winter season. The constant rain and constantly changing temperatures has us scrambling for alternate solutions in vacating. Anything has to be safer, than what this house is sitting on, an unsafe foundation. Even if that means buying a 5th wheel way of life. The problem wasn't in getting the loan, since we did so in my name. The problem was finding a place to set up. A place that has a bit of privacy, not reaching out to shake hands with your neighbor.

 Thanks, but no thanks!

It was an exciting, yet great idea for the perfect, not yet thought of, vacating a dangerous home opportunity. Unfortunately, it was a no-go, since there are no year round places that offer water connections in the winter. Who wants to spend more unnecessary money, buying a home on wheels and you can't find a place to park it? A great idea quickly went all downhill from there... Back to the drawing board...

Another problem we have been running into, is most home rental properties are now owned and managed by huge corporations. Private owned properties are becoming few and far between. One out of every 50 rentals, are now owned by large corporations. A mere, home rental Monopoly. Not only do they charge you, per person in the household, application fee, but as well make it virtually impossible to be approved. We only did one round of applications, with one large company, only to find out that Snoreo was not accepted because he is part German Shepherd. BAH! They accept mixed breed dogs, but not if they are part German Shepherd. Not only ridiculous, but a waste of application fee $$ and valuable time that I do not have to waste in the first place. We did rent from a private owner prior to purchasing our doomed home, but once we went under contract, we gave our 60 day vacate notice to the owner. For some reason, there are family members who are stating we got evicted, which is down right silly! We have the letter stating we gave our 60 day notice, yet, once again we find ourselves defending such a silly, ridiculous assumption. All because Snoreo was not approved. Not because of any eviction, because we never got evicted, we gave a 60 day notice after going under contract. Nothing more annoying than folks causing more unnecessary stress. Especially, when we have enough going on and far more important things to worry about, like... Finding a safe home while our doomed home sits in litigation. AMEN.

We have only been able to find, so far, 3 private rental homes. The three that we viewed were all beyond dirty from top to bottom. What some folks refuse to understand, is that when you have an already compromised immune system, that can no longer fight off infections. You CAN NOT move into a filthy, dirty, nasty, unkempt rental home. You CAN NOT also subject yourself to attempting to clean a rental property, in which, the private owners are just too lazy or too money hunger to clean up after the prior tenants. We have now seen this 3 times, too many, for our liking. Eric only has the garage to finish packing as it looks like our final big move destination, Nevada, will be here sooner than we anticipated. We have been constantly looking for a temporary rental home, but unfortunately, have been unsuccessful. Due to health reasons, on my end, we also do not have time to wait around, it's now or never.

What bothers Eric the most, out of this entire unfortunate situation, is watching the reactions of those who took part in causing stress and problems for us over the past 5 years. The same individuals who have caused escalated problems, should be the ones helping to look for a rental. What I try time and time again to have Eric understand, is the same as what others have already told him. "They don't care. They did what they did and ran for the hills. They don't care about anyone, but themselves. Don't worry about those who aren't worth worrying about in the first place." I just hope that one day, Eric will understand that all the time and energy, isn't worth investing in those who aren't worth investing into. My motto this year, "Let it go..." We all have to live with our actions at the end of the day. I believe that we all, in time, will also have to explain our actions to a higher power in heaven. Eric looked at me this afternoon and said, "I got a problem with those who care more about someone out on parole or those who have stole money and drugs for addiction issues, compared to caring for their own blood." Well... as I said... We all have to come to grips with our decisions some time in our lives. If someone is more worried about saving the life of someone addicted to pills than their own blood, then they must be OK with the person in the mirror looking back at them. If I am to treat someone out on parole, far better than someone that is one with my own blood. Then the old saying isn't necessarily true. "Blood is thicker than water." Sadly, priorities in this day and age are pretty screwed up.

I must had been born in the wrong generation.

During a mere, 3 private owned property viewings, that we have viewed over the past 2 months. One private owner really left a lasting impression on both of us, as I accidentally contacted them through a connected GP website email account. What I wasn't expecting, after realizing it was another property in need of serious cleaning and updating, before just whisking one tenant out and the next day, whisking another one in...

"How do you know about Gastroparesis?"

~I am a Gastroparesis patient, of 11 years.

"So you are the one who owns the website? You are the same person, the founder?"

~A ummm... reply... y-e-s...

"My granddaughter recently got diagnosed with Gastroparesis. They told her it was from a rare genetic disease. She has a list of other problems. Probably 19 other things. It's always something."

We would had been perfectly fine with hearing the story, however, the facial expressions and lack of compassion for another family member struck a cord with us. Instead of supportive, we felt more as if, the person was explaining how much of a burden their grandchild was for being so sick, with multiple, obvious to me, connected issues. Gastroparesis isn't just something you acquire by a mere diagnosis. It is a condition that is connecting with a pre-existing issue. A complication. Sometimes the connected diagnosis is found. Other times, it is not.

We both left feeling absolutely horrible for the grandchild whom we were told is so sick with so many issues, as if a mere burden. Clearly, the reasons for starting the Gastroparesis Awareness Campaign, were the exact reasons for hearing such a story. So patients do not feel alone. I know that feeling. Feeling as if only to be a burden to loved ones. It's not a good feeling, especially when such hatred is behind it. No one asks to be sick, yet, I don't sit well with hearing such lack of compassion from any loved one. Regardless if it is Gastroparesis, cancer, MS, diabetes or any other medical condition. At the end of the day, not one single patient, asks to be sick. What patients do ask? To be RESPECTED.

Respect means you don't create stress, conflict nor jeopardize ones place of residency. Respect doesn't mean you constantly bash, belittle, make light or fun of someone who is sick. Respect means you don't butt into or jeopardize care, privacy between a patient and their doctor. Respect means that regardless of how you feel about the patients spouse or caregiver, you still respect the patients spouse or caregiver. Respect means not putting down someone who is sick to their friends, neighbors, landlord, place of employment or to other family members. Respect is when you care and have enough compassion in your heart, as a decent human being, to include them in not only your life, but the lives of your family, children, grandchildren, etc. The ultimate form of respect for anyone who is sick, whom did not ask to be sick, is to respect the patient enough, that when the cards come tumbling down. YOU, the decent HUMAN BEING, have enough compassion and a big enough heart and are a big enough person to catch the person, loved one, friend or family member, when they FALL.

Is there a lesson to be learned from this blog entry? Well... if you look in the mirror and you find yourself being this person who treats those who are sick in any of the above, way, shape or form. Then yes, there is a blog lesson to be learned. How we should never strive to be and how to never, ever treat those who are sick.

Those who never ask to be sick, but do ask to be RESPECTED.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 21, 2017 10:53 AM EST
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