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The Road Before & After Surgery
January 16, 2017
FEAR... Is NOT An Option.
Mood:  sharp
Now Playing: Day 2569-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Well... at least there was something to celebrate today. Especially when there isn't much, if anything, to celebrate anymore.

Happy kitty birthday to our beloved Beary~3 years young!

It's mind blowing, just how much life has changed in a mere 3 months. I feel absolutely all over the place! I have no clue what day we are on anymore, whether alone, what month we are on?. I can't tell you the last time, I really was able to sit down, relax and watch television. We really see no point in having any sort of digital or satellite service, when we are far too busy spinning ourselves in circles.

It's a tough reality when home isn't even home. We are in total limbo. I am beyond depressed and overwhelming stressed.

We still have yet to find any temporary rental in order to catch a break from this nightmare. For starters, the prices of rental homes are beyond ridiculous! You could take out a $250,000 mortgage for the price of what a rental home costs you in this day and age. Add all utilities onto the actual rental price, deposits, pet deposits and additional per pet monthly fees. It's absolutely nuts! We certainly did not ask for this entire mess, but then again, we really don't have much of a choice right now. Last week was a rude awakening on how frightening this house, that is ready to crumble, can really be when a huge storm system is right on top of you. The sounds coming from the foundation are no better. Especially at night.

All around... Staying here isn't working. If we stay much longer, we are all going to end up dead, under a collapsed house. Sounds scary, because it is! We saw photos from the engineers on homes, just like ours, that have collapsed. It's down right frightening! Something has to give, because I refuse to die as a result from staying inside a home that is crumbling, sinking, shifting and twisting on a very unsafe, unstable foundation.

Thank goodness! for friends like my dear Kev! He has been joining us on our quest to figure out the easier, safest and quickest way possible to vacate this lemonade home. It hasn't been easy, but we are down to a plan that could possibly work. It isn't a typical plan by any means, but neither is buying a home on fictitious lies by the sellers, agent, broker and others involved on a fraudulent disclosure and hidden nightmare. Our next step could possibly involve living in the great outdoors, which in all reality, is definitely my cup of tea! Peace, quiet and a place to actually give my body time to heal from radiation and other experimental oncology treatments, is what we are aiming for and FAST! There has been absolutely ZERO peace, quiet and rest since beginning, during and after oncology treatments. If it wasn't a group of folks constantly creating stress, then we buy a home from a bunch of liars, fibbers, whatever you want to call it. My body has gotten absolutely no proper time to heal. It's no wonder, I am finding myself quickly getting physically worse, not better.

There is a light somewhere at the end of the tunnel and I plan on doing what it takes to find it! I refuse to have a home literally kill our entire little family. Sometimes, extreme situations in life, call for extreme measures.Trust me by saying, you haven't seen nothing yet!

Those who had a hand in causing our little family such a nightmare and think it's OK? I am here to say, it most certainly is NOT OK. I'm not dead yet. Medically, I have continued beating the odds. Lately, it hasn't been looking very good nor in my favor, but I am still here. I am still alive. I will continue to fight in order to live to see another day. If it means taking extreme measures in order to have some sort of safe roof over our head? Then so be it.

I have no fear in life. Not anymore. Extreme oncology treatments change a person. You realize that fear is when you stare at a huge radiation machine and hold your breath as you get radiated 3-6 rounds per session. Fear is when you have to come to terms of complication after complication, infection after infection, growing tumors that continue growing. THAT my friends is FEAR. If you can get past that fear, everything else means nothing. It's minor. We are at the crossroads of a very tricky situation. This is the week when we place all of our cards out on the table and hope we make the best decision possible. The best decision out of the worst hand possible.

There is no time for fear. It's time to take a leap. A GREAT leap of FAITH with a whole LOT of PRAYING!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 17, 2017 11:00 PM EST
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January 15, 2017
Radiation... What They Don't Tell You.
Mood:  bright
Now Playing: Day 2568-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today was another grim reminder of the uphill battle that I continue to face. Another round of antibiotics, once again, failed after just less than a week. It only takes a mere 48 hours before the rebound infections come back in full force. It only takes a mere 24 hours before the physical toll begins to hit me, all over again... Today was another grim reminder. Another antibiotic resistant infection, rearing it's ugly head and a team of doctors trying to figure out what to do next . It was another grim reminder as well of what radiation can do to not only it's target area, but as well, your good organs. Your overall immune system. 

This blog entry is about all the ins, outs, do's and don'ts. All the things that you don't find out prior to and after receiving radiation therapy. All the things that you won't hear from Oncology.

Of course, this is based off what I learned from my own personal experience. After receiving a maximum dose, fast track, course of radiation.

Radiation therapy did not work for me. I did not wind up with my miracle cure, but it did change me for the better. I also learned a great deal before, during and after receiving radiation. By sharing a few ins, outs, do's and don'ts of my own personal experience, might help someone else along the way... Those who are making a very difficult, life altering, life changing decision. All in hopes of a cure.

 

 

 

The ins, outs, do's and don'ts...

Radiation treatment-before-during-after

 

*I was in far better health, before radiation, and that isn't saying much

*Radiation can scatter for weeks, months and even, years

*Radiation is the harshest, most deadly, long term-unknown complications oncology treatment and is not to be taken lightly

*Expect to smell the radiation after each session. Radiation has a way of perforating through the skin

*Depending on the area receiving radiation, expect your bones to ache. Radiation is known to dry out the bones. Expect to have a long term, deep ache. This is nothing like the ache you feel after a good work out or pulling a muscle

*Oncology will give you a printed out radiation schedule. Plan to stick to the schedule and be on time! Cancer treatment centers run a very tight ship!

*Radiation is like an internal match, that doesn't stop burning

 

The ins, outs, do's and don'ts...

Cancer centers... Patient waiting areas

 

*Word to the wise... patients are on scheduled visits, cycles. No one wants to socialize nor do the patients who are waiting to go back with their directed teams. These cancer patients are extremely sick from the treatments they are going through, MUM is the word!

*Those who wait in the waiting area like the quietness and time to reflect in order to collect their thoughts while anxiously awaiting the return of their loved one. One can only relate to what I am saying, if you are going through cancer treatments. The waiting room atmosphere is a very sobering one. An eerie silence. Please go in the same way as you leave... quietly

*No one wants to discuss their battle due to feeling so sick. Puzzles, magazines and other quiet activities are provided in the waiting area for a good reason. I suggest bringing a good book or magazine

*Do NOT use the patient restrooms or those located directly outside the treatment facility. It's very common for patients to get sick in those same restrooms. Including those located outside of the treatment rooms. Please don't risk patients by spreading your germs

*Do not bring a football team with you to the treatment center. Recovery rooms for patients are very limited and so is the space for loved ones

*For those a bit overly religious... Please do not bring your bible up to preach or pray. Cancer treatment centers are the wrong time and wrong place

*Treatment tote bag, A MUST! Trust me, by experience, you will use some or all before, during or after treatments. Keep the tote handy, front passenger area of your car. We created our own during my treatments which included the following.

Large zip locks bags in case of vomiting, baby wipes, paper towels, peppermint drops for nausea, warm hand wraps-can buy at local drug stores, sunglasses for sunny days, airplane pillow, blanket, diet 7up, saltine crackers. You will thank yourself time and time again for having a handy go-to tote!

*Radiation patients... Expect the first two treatments to go seemingly well, that is, after the first initial radiation burn. After that, it's all downhill from there...

 

The ins, outs, do's and don'ts...

Post-treatment. Home recovery

 

*Same with not bringing a football team with you during cancer treatments. You will not be feeling well nor up to a lot of company while recovering from treatments at home. Patients need their peace, quiet and rest

*Soup, saltine crackers and diet soda will become your prime staple foods when it comes to your post radiation treatment diet. Make sure to stock up!

*No one knows much when it comes to rebounding infections due to radiation therapy. I am a constant, rebound, infection patient. Expect post treatment infections to be brutal. Staying on top of them by seeking medical help ASAP is vitally important!

*As Eric knows by experience... Be prepared for when the radiation starts attacking your GI tract. Loved ones and caregivers should always be near the patient during recovery. There will be many times when the patient is far too weak to get up, stand up and walk on their own

*It's perfectly OK to look like Casper The Friendly Ghost. Radiation takes the color from your entire body, especially your complexion

 

I believe in the honesty game when it comes to radiation therapy. It would be nice if someone came out with a book on radiation expectations for not just the patient, but loved ones, friends, family and caregivers. Oncologists will never tell you what to fully expect during and after radiation, because they don't even know exactly what to expect. Most cancer patients choose not to talk about their journey, out of fear of scaring others and being far too weak to share.

REMEMBER... You have the choice to make your choices when it comes to cancer treatments. All cancer treatments are experimental. No one is for certain of the outcome. The same holds true for radiation and other cancer treatment complications.

REMEMBER... You can always change your mind about radiation therapy, but you can't after all is said and done.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 16, 2017 7:01 PM EST
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January 14, 2017
TRYING To Keep On Top Of EVERYTHING!
Mood:  d'oh
Now Playing: Day 2567-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Talking about exhausted!

Our lemonade home is enough to kill anyone, whether that be mentally, physically or literally.

Here I am... Once again... Doing my best to also keep up with my blog. It's been tough, ever since moving into this house of cards, ready to collapse. I am exhausted~ Yet, the fun never ends and still has yet to end, when will it end?.

It's hard keeping yourself motivated when you live inside a home that is beating you into the ground with it. Eric has lost all motivation and that within itself, presents a lot of arguments waiting to happen. I do my best staying positive, but it's tough trying to stay upbeat, motivated and positive for both of us. I am sick. Eric isn't. That starts a lot of our arguments. A LOT! Eric just wants to give up and forget about things in hopes they will disappear, but that isn't how life happens. Nothing just goes away, but if you constantly try to push it away, things will only get worse. I look at our entire, unfortunate, frustrating, time consuming and money pit growing lemonade house situation like this...

Things haven't come to a head yet. Things have yet to truly 'BLOW-UP!' We are close to the tip of the iceberg, but not quite there, not just yet.

What gets me the most out of everything, is how people can just flat out lie. Know they are lying. Then not even flinch when they are caught. Kind of like this fraudulent property disclosure. It clearly states by the sellers, they do not know of any current or prior problems with the foundation. Yet, they admit to having a buddy attempt doing a failed foundation repair that only made matters worse for the next owners. Us. I don't understand how in today's society, we have learned to lie so effortlessly, yet not even care nor bat an eye at our lies. I don't get it?. One thing is for certain... When I catch anyone in a lie. I make sure to call them out. Maybe if we all did that, there would be far less liars and far more honest folks in this world.

I plan on making sure that my blog serves a purpose. I want to make sure that when the time comes and I must end this blog. My blog will make a difference in this world on quite a few levels. The most important? How we treat one another.

Liars? This world would be far better without them.

As I get back to doing my best to place temporary repairs through our lemonade home... I must also keep pushing Eric forward by doing my best to keep him motivated. My energy level is quickly starting to run out. Clearly, time is not on my side. Medically. It's hard enough for me to keep my own body motivated, although we clearly did not ask to be lied to by a group of five individuals, all buddies with this property sale. At the end of the day. We all have to live with our actions. As far as my standpoint... I have learned very quickly in just a mere 2 weeks of this new year 2017... Some things in life and some folks in life, you just have to;

LET IT GO... LET THEM GO...


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 16, 2017 2:21 PM EST
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January 13, 2017
There ARE Great Lessons To Be Learned! :)
Mood:  bright
Now Playing: Day 2566-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What a great day to just take it easy...

It's been a very trying week to say the least with our anything, but safe home. I warned Eric on numerous occasions to be careful going under the garage door since it too, seems anything, but safe. We were told by the agent and sellers that the garage door and garage door opener were new. Of course, another fabricated fib. Eric found out the hard way just how fabricated the fib actually was after the garage door literally ripped in half where the bracket for the garage door opener meets the top of the garage door.

AHHHHHHHHHHHHHH!

Yep, this house of lemons is most definitely full of surprises! Who needs coffee? This house will constantly keep you awake and on your toes without the need for caffeine! BAH~

We remain vigilant looking for a rental home while figuring out what is the next best step on this very sad and seemingly, very angry home. It's been hard not to get stressed out to the max! At the same time, it's been tough not to become depressed on the entire situation that has remained out of our hands. It's even more difficult in wrapping your brain around a group of individuals whom all are buddies, playing a part of one very well hidden, fraudulent disclosure. As Eric told all parties this morning via email.

"Every single one of you need to make right with God next time you are in church. Especially when it comes to taking advantage of people. Instead of thinking with your wallets. You all should had been thinking first with your heart."

I can totally understand and rightfully so, the reasons for Eric being extremely upset. I take what has happened very serious and so should the parties involved who not only filled out a fraudulent property disclosure, but also provided a fabricated document yesterday afternoon, via email. Our insurance company claims adjuster? Beyond shocked! All other parties whom have seen what has continued unraveling and transpiring with guilty parties attempting to cover their tracks? Not one bit surprised, but they too as well believe that in time, someone will end up having to pay and pay royally!

I try to see the good in all people, but even I am having a very difficult time seeing any type of good with the entire group of individuals. Of course, there are a million lessons, quite wonderful lessons to be learned when all is said and done. I told Eric this afternoon, while enjoying some peace and quiet along the river... "When we get to the other side of this, you will come out a far wiser and far more appreciative human being. There are great lessons to be learned. There are a lot of good people in this world. There are also a lot of bad people in this world. The bad people are the ones we cross that provide us with the greatest lessons learned. That is how we earn our wisdom. Consider it a blessing and a lesson on what not to strive to become. Tis not all a loss."

One of the greatest lessons so far I have learned by this very unfortunate situation? I have learned to become a minimalist. Less is more when it comes to being truly happy in life! Excess only causes excess stress. In the end, you can't take your belongings to heaven with you, but you can take a good heart!

 


Posted by GastroparesisAwarenessCampaignOrg. at 8:51 PM EST
Updated: January 13, 2017 9:00 PM EST
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January 12, 2017
Feeling A Whole Lotta B-L-A-H~~~~
Mood:  chillin'
Now Playing: Day 2565-Next GP Chapter... Turning Lemons Into Lemonade :)

 

To me, yesterday was the best day of this new year!

1-11-2017

Angel digits day!

Ironically, but not surprising to Eric. I looked at the clock, then looked at Eric, "Wow! Look at the time! It's angel digits, 1-11 at 11:11am." Of course, this happens as we are on our way up to the hospital so I can get another prescription refilled, again. One can only hope that the lucky angel digits day means blessings for this new year and a gal who can use all the blessings she can get! #blessed

As fast as the snow melted away, here comes more rain for our little, lazy, river town. An entire upcoming weekend of rain, rain and more rain. Just imagine, if all the rain was actually snow!

Sings: Snow... BEAUTIFUL snow... Glorious SNOW... I SNOW...

Heeheeheehee! We just have to get more snow during this winter season! I still have yet to find a perfect opportunity and excuse to brave the cold in order to lay on a fresh blanket of snow and make snow angels. I love snow! Always have, always will!

We still have yet to find a temporary rental home, but I believe that everything in time, will fall into place. Let's just hope that it isn't our lemonade home that falls into place first before we find a rental. EEEEE~YIKES! The hot water tank continues to become a very uncomfortable one with a continuously bowing retainer wall. Another mere failed attempt by the sellers in hopes of masking a fraudulent property disclosure. I am beyond relieved that we bought a new 'electric' hot water tank! Not that the situation is any safer, but compared to if the hot water tank operated on gas... Yes, once again, things could be far, far worse. Today however, just wasn't a very good day for this gal. After sleeping another record 12 hours, going to bed around 8pm. I still woke up feeling physically exhausted and ready to catch more zzzzzz's...

Maybe one day, I will wake up in a new home. Even if it's a temporary rental home. As long as it's safe. We all could use some peace and quiet for a change. It most definitely has been LONG overdue!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 13, 2017 11:39 PM EST
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January 11, 2017
Who INSPIRES You?.
Mood:  bright
Now Playing: Day 2564-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Ahhhhh... The late side effects of oncology treatments. Hair today, slowly going away tomorrow... Hello wigs! So... We meet again...

Another round of labs and cultures sent out for further review, once again, show an immune system far too compromised, even far more than what I could had ever anticipated after oncology treatments. A years worth of various treatments and far too many rounds of strong antibiotics. Add onto that, back-to-back emergency room visits with $200.00 insurance out-of-pocket copays.

I was told, to expect to be on antibiotics for the remainder of my time here on earth.

Once I come off of a slue of antibiotics. I have a mere two to three days break before the infections rebound and I am right back where I started... Back on another umpteen round of antibiotics and other prescription medication in various forms. It's like a vicious cycle that never ends. The constant back and forth can easily break you down to the core. Mentally and physically. It truly has been a tremendous test for me, because I could easily give up, give in and allow the end of my journey to be a quick one!

Sometimes... Even I don't know how I do it, but I some how seem to get back up, dust myself off and prepare to fight again and again and again and again...

This is a list, as were told, of organs at risk of complications during and after receiving pelvic radiation therapy. Some complications can happen during, after or even years after radiation. I received a rapid course of treatment, pelvic radiation, maximum dose. Frightening? I think so!

The organs at risk when treated with pelvic radiation therapy are the colon, small bowel, the bladder, ureters, urethra, spinal cord, skin, soft tissue, muscles, bones, vasculature, nerves in the radiation field, and the lymph-lymphatic system.

For anyone who is bravely awaiting to start radiation therapy, chemotherapy or other oncology treatments. I challenge you to find a source of inspiration. Someone who can inspire you along the way... Who inspires you? I know who inspires me, as we quietly connect by similar experiences, in hopes of beating the odds...

Shannen Doherty aka theshando

theshando First day of radiation treatment. I look like I'm about to make a run for it which is accurate. Radiation is frightening to me. Something about not being able to see the laser, see the treatment and having this machine around you just scares me. I'm sure I'll get used to it but right now... I hate it.

#radiation #radiationmondaysucks #stillfightinglikeagirl


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 13, 2017 10:58 PM EST
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January 10, 2017
HIDE FOR YOUR LIFE!!!!!
Mood:  don't ask
Now Playing: Day 2563-Next GP Chapter... Turning Lemons Into Lemonade :)

 

As I was quietly in my blogging moment...

What wasn't on in the background, was the television. What we also didn't realize was about ready to transpire was a huge storm system ready to touch down within a mere ten minutes.

One very important factor that we failed to realize with our lemonade home literally falling apart at the seams? One brutal storm could quickly topple a fragile home that is crumbling one wall at a time, all within a mere second.

This picture of Eric is absolutely HILARIOUS! What isn't hilarious is the fact that our home could literally kill all of us, within a mere second. This house is a death trap waiting to happen.

As the sirens started reaching us, on top of the hill. I looked at Eric and said, "What is that noise? Are those sirens? Is it suppose to rain?" Eric looked at me and replied, "I think it might just be a fire truck." Ummmm... NOPE. Once I looked at the weather on my cellphone. I quickly realized that we were in for not only a really nasty storm, a mere five minutes away, but as well this house could literally crumble at any time. NOT GOOD.

With only five minutes to spare. We quickly turned off the furnace system, left only a few lights on upstairs and placed the kitty gang in cat carriers, Eric grabbed the guinea pig cage with DaisyMae and SnugglyDoo, along with Littleblue and Snoreo as we made our way to the basement. Not that the basement is any more safe than the rest of our deathtrap home, but at least we had a wall of packing totes to hide behind. Heeheeheehee! Yep, those packing totes certainly came in handy! Even our beloved fur children were safely placed behind the great wall of totes as we anxiously awaited for the severe storm and tornado warnings to pass.

Talking about playing Russian Lemonade House roulette!

Let's just say, that we quickly learned another lesson! One in which, we failed to realize... We can not remain in this house much longer. We must find a temporary rental home and vacate ASAP! The upcoming spring and summer storm season is quickly coming upon us, in which, we have no time to waste in getting the heck out of here! AMEN. If that means, moving out of state, finishing the last leg of our great moving adventures much sooner, than anticipated. Then so be it.

NEVADA... HERE WE COME!

This evening, we counted our blessings one more time as we once again, danced on a very dangerous line with a house that is anything, but safe. We may have lucked out this time around, but next time we might not be so lucky. No electric? No worries, because this evening could had easily turned out a LOT worse!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 13, 2017 10:08 PM EST
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January 9, 2017
Who Will Outlive & Outlast Who First?.
Mood:  d'oh
Now Playing: Day 2562-Next GP Chapter... Turning Lemons Into Lemonade :)

 

RISE N' SHINE!

Talking about a way too early phone call! A far too early wake up call, all because of two additional tubes of blood that were accidently missed during yesterdays labs. All I wanted to do, was sleep in peace. Finally, some peace and quiet without the chainsaws from a ridiculous winter project that started a week ago. So much for moving to a place with some peace, quiet and away from the big city noise. PFFFF!

What really annoys the be-jeepers out of me, is why in the world does the electric company have to literally cut hundreds of trees, right down to their stumps??!?. When in all reality, if the tree tops are touching the power lines, just flipping trim/prune them back like most companies in the big cities do. So much for the once beautiful scenic views, that were, once beautiful. Now they are literally being destroyed, one tree at a time. Honestly, it makes me sick. It's really a shame. Not the shame of the forest and trees that have withstood the test of time, decades upon decades, but instead, such a shame that we are the ones who destroy such beauty. Earth's beauty and the wildlife that are left scattering for safety. It makes me sick! The sounds of the chainsaws also bring with it, seizure auras that I was hoping, to possibly put to rest. All with the peace, quiet and abundance of nature that we 'assumed' was to come with our new home.

A home that has literally been nothing but, pure hell since day 1.

AMEN!!!!!!!!!!!!!!!!!

A mere country setting, in a little lazy river town, has been nothing but, pure EVIL hell. HAHAHAHA! OK, once again, yes! That did sound funny! It's really no joke in what I am saying, but sometimes through the pure sadness, one has to find some sort of happiness. There are some things in life, that are out of your control. Those are the times when you have no other choice, but to let things be in God's hands. It might also help to channel the spirits of our native America Indians, those who once lived on such sacred land. Heeheeheehee! You bet! I got my sage and ceremonial feathers out! I plan on using them too!

 *WINK-WINK*

So... As we wait for the chainsaws to come back this week. As we were told, will continue until the project is complete. One can only hope and pray that my body will be able to withstand the test of time. A test of mental and physical endurance. It's either me or the house.

I wonder who will outlive and outlast who first?..


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 11, 2017 2:53 PM EST
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January 8, 2017
Feeling... BEAT~
Mood:  down
Now Playing: Day 2561-Next GP Chapter... Turning Lemons Into Lemonade :)

 

~I have come to realize one thing.

I am certainly no 'Long Island Medium' when it comes to how mentally exhausting it is after doing a reading, session, visit, channeling, whatever you may call it.

A few hours quickly turned into four hours and hopefully a few missing puzzle pieces might help to solve a year old mystery for an entire family. I left feeling completely exhausted. Mentally... depleted. By the time I got home, everything seemed like one huge blur. I even started dozing off while attempting to take a nice, warm, relaxing bath. One would believe that maybe exhausting my energy. Even, mental energy, would not be such a wise idea with a compromised immune system, still recovering from failed oncology treatments. Yet, still I felt the need for closure. Not just for the entire family that I visited, but as well, for myself. Almost an entire year of someone visiting you, relaying important information to you, in the most unexplainable ways. For me, last night was closure for both myself and the victim of such a senseless act. The loss of life.

Of course, I did run into a skeptic, but there will always be skeptics in this world. We are all skeptics of something, not just regarding the gift of connecting with the afterlife, but skeptics of many other things. I don't believe in UFO's, but that doesn't mean they don't exist. I am a skeptic of anyone who hunts for a sport, overpaid sports for entertainment purposes, mail order brides, any movie that is constantly plugged by the media, black Friday sales, etc, etc, etc. You get the picture!

I know what I see, hear, smell, feel and visually see. My gift is part of who I am and a blessing that will always be a part of me.

This super chilly morning, we made our way back up to the after care facility so they could start me back on another round of antibiotics. Cultures and labs will be sent out for further review in hopes of my doctors receiving additional information on why my body is not responding to important medication. My body has consistently rebounded one infection after another. It's not only physically exhausting, but as well, mentally. I still continue to fight as hard as my body will allow. I know this last leg of my journey will not be an easy one, but I still vow to continue fighting to the bitter end.

Today? It certainly wasn't a good day, but we can always try again... Tomorrow. 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 10, 2017 8:22 PM EST
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January 7, 2017
A Gift.
Mood:  special
Now Playing: Day 2560-Next GP Chapter... Turning Lemons Into Lemonade :)

 

As I sit here and type... I am reminded that everyone here on earth has a gift.

There are also those of us, whom have a special gift.

Early this morning, while taking our beloved fur children outside in order to enjoy the peaceful silence, calm of the world. While all is asleep. I embraced the tranquility of such a beautiful sky with so many bright and quite mesmerizing stars. I took a moment, as I always do around the same time, to send a special blessing to those back home in heaven.

This morning was different. I still felt that sense of overwhelming peace upon walking outside, but once I began looking up to the heavens. A big, bright, almost blinding white sparkling light began it's quick decent out of the sky and literally disappeared right in front of me. I was in such awe, that I didn't know what to do, but I knew deep in my heart, this was a gift. A reminder of my special gift from heaven.

I have been pondering on when it would be the 'right' time to talk more about my gift. I believe that everyone in this world has a gift. Some of us, a very blessed gift. I guess with so many skeptics out there in the world, as I told the publishing company, "Most would not even take the time to listen, whether alone, even believe such a gift."

So... with that... I have decided to listen to my heart, listen to my soul and listen to those closest in my life. Those who over the years have not only embraced my gift, but have gently pushed me into sharing my gift with others. We all have a gift. My gift started at a very young age. My gift? It comes from the heavens above, a blessing from God.

While some may start the new year 2017, tuning into their own gifts, whether that be starting a new family, working on a dream home, venturing into a new business or even taking that once in a lifetime vacation. We all have a gift, but that gift isn't monetary. It is a gift from God. It's up to each and every one of us to embrace that gift. The gift might be lending a hand overseas, business contributions donated to those in need, helping a neighbor, cleaning up the environment and yet, there are so many other gifts. Not gifts from your wallet. Gifts from your heart.

I finally made it up to visit with loved ones today. I was finally able to place my traditional holiday flowers next to those whom have always shared my gift with me. The gift and ability to connect with those back home in Heaven.

 Tomorrow marks a first for me, as I share my gift. A special gift. The gift of celebrating a very special life with others.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
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