« April 2017 »
S M T W T F S
1
2 3 4 5 6 7 8
9 10 11 12 13 14 15
16 17 18 19 20 21 22
23 24 25 26 27 28 29
30
You are not logged in. Log in
Entries by Topic
All topics  «
Road to Survival
Blog Tools
Edit your Blog
Build a Blog
RSS Feed
View Profile
The Road Before & After Surgery
April 8, 2017
A Little Set-Back...
Mood:  chillin'
Now Playing: Day 2651-Next GP Chapter... Turning Lemons Into Lemonade :)

 

We had everything planned accordingly for this weekend. With very limited time, we still have a lot left to do before moving onto our next adventure.

Our new way of life... RVing~

Such as with life, things can happen. Things can also happen as they tend to always do, unexpectedly.

I have been doing fairly well with my new treatments in hopes of rebuilding an immune system that unfortunately became quickly depleted after radiation and ongoing infections. Allergy shots are suppose to help counteract the many side effects with treatment, but as I learned today. Nothing is a guarantee.

When I think of allergic reactions. I assume that one would experience a rash, hives or something along that nature. That is how I generally respond to an allergic reaction, but this evening into the early morning hours things were quite different. I am not used to having upper pain, vomiting, seizures, shortness of breathe and overall, feeling out of it happen in such a short amount of time. I also began feeling very toxic. My goal this year was to stay as far away from emergency care as possible. Sure, I still go for treatments, but they are provided as well allergy shots via outpatient. With Littleblue not feeling well and her surgery right around the corner on top of needing to finish everything with our move. The last thing I need is any type of set-back. Then again, one should already be used to expecting the unexpected.

A little set-back...

Thanks to those who once again, picked up their phones. What I needed was someone to just listen and help direct me in what they felt I should do since I was anything, but wanting to seek emergency care. This is the second time I have been handed a set-back with serious complications, yet I still remain determined to fight without seeking medical help. Let's just say that vomiting every 10 minutes got the best of me. I also started to quickly become dehydrated and my seizures were not getting any better. Either I continue to fight or I officially give up. I once again, chose the latter. Eric becoming an emotional, nervous wreck also played a part in deciding it was time to head up to the hospital. Littleblue also needs her human mommy to be with her during and after surgery. There are reasons to fight and continue fighting the great fight.

Anyone who has undergone radiation near or below the abdominal area can understand how quickly scar tissue can form. We were told by my oncologists that post-radiation scar tissue can actually be worse than post-surgical scar tissue. I expected it only to be an allergic reaction to one of the treatment drugs I have been taking, but instead there are a few issues going on that has thrown me for another set-back. I refuse to take pain medication, due to not wanting to be someone that gets addicted. The thought alone scares the heck out of me enough that I refuse to take pain medication. I have even backed off a bit from the little magic pill, Marinol, but mainly due it not providing much relief. As things have progressed, even getting relief from Marinol has been limited. Not taking pain medication can cause seizures as my pain tolerance has now become extremely high! The brain is very much in tune when the body is experiencing pain. There is a connection with pain and seizures as we learned a great deal in the hospital today.

I had my first major scan in almost a year due to the emergency room physicians not sure if something else was going on after a second visit since the vomiting only had gotten worse. It seemed we treated one problem, but clearly there was something else they were missing. This tends to be the norm, which is why I dread hospitals. Especially, the emergency room. Sure enough, I am once again dealing with blockage issues. This time with my small intestine. This is first time however, that they wanted to do a NJ tube, but my specialist wants to make that decision and give my body time to see if we will need to still go that route to help decompress things. It took a lot of medication through an IV, but I remain determined to pull another odds in my favor. To me, this is just another small set-back. I will prevail, but it will take a little bit longer this time. I didn't ask about the procedure for the NJ tube. I figure that I will cross that bridge when the time comes. I tend to not allow myself to think too far ahead anymore, because anything is possible. Even when tests might show otherwise.

So... I decided to ride this out again, let my specialists decide what is best for me. Even if it means changing things up a bit. NJ tube? I have my opinions, but if it's for my best, then the best it will be. Temporarily.

Life goes on... Tomorrow is another chance. Another beautiful day here in the country...  


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: April 10, 2017 2:46 AM EDT
Post Comment | Permalink

View Latest Entries