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The Road Before & After Surgery
March 8, 2018
This Too Shall Pass... And Your Troubles Shall Cease.
Mood:  bright
Now Playing: Day 2983-Chapter 3... Happiness~My Silver Lining

 

When I think about the past month... excessive tiredness, fatigue, dizziness, uneasiness in the chest... it all makes sense. Unfortunate... perfect sense.

Over the past 48-hours... how did I get to this current place in time? Respiratory appointments for breathing treatments, another EKG, ECG... then the diagnosis hits us like a freight train as we stand in the middle of the tracks.

I most definitely don't feel like the person in the most recent medical reports. Even fooling myself to believe that the person in the pictures looks pretty darn normal. But internally... anything but medically normal. Trying to literally jump over this latest hurdle is going to prove to be one hell of a feat!

Today has started off to be... no better of a day.

I may have mastered the new regimen of one new specialist after another, but I don't look at it quite the same anymore. Instead of how I used to view appointments as mere inconveniences, when in all reality, I felt as if I had far better things to do with my time. I now view my appointments with my new specialists as a blessing. A very life-saving blessing in disguise.

What I have also changed is how I respond to mere personal perception of how others may see me as a constant complainer, negative Nelly or seeking some sort of bizarre attention. Bizarre is the minds of anyone whom believes that those who are sick are any of the above. I now see it as those who feel that way as nothing but a mere character flaw within themselves. Maybe because I never saw anyone who was sick as any sort of constant complainer, negative Nelly or seeking some sort of bizarre attention. I never felt that way when my Aunt was at the end of her journey with lung cancer. I never even saw my Grandmother who bravely battled kidney cancer as anything but a determined woman. Same for my Grandfather who stood firmly in looking directly into the eyes of prostate cancer... yet still ran mile after mile, each and every day, until he could run no longer. Those aren't people as any of the above... those are instead some god-given strong willed people.

When you surround yourself with those types of uncompassionate, inhumane, negative folks. You are only setting yourself up for mere troubles now or... later down the road. When you fear seeking medical treatment due to fear of what some may think as any of the above... then clearly you need to sit down and do some serious life inventory. No one in this lifetime who ever makes light of, pokes fun of, or belittles anyone who is sick, should ever be a part of your inventory.

You deserve so much more! You deserve far better! Especially when bravely battling any chronic illness. It isn't about seeking attention. It isn't about being negative Nelly. It isn't even about any sort of bizarre attention. When you share a piece of yourself and your struggles... no matter what they may be... you should never receive anything but pure kindness and sheer compassion from others.

My journey may have taken another unfortunate turn... but at least I now have the full support, kindness, compassion and love from others that will help keep me going.

I can only hope that if this blog post reaches just one beautiful soul out in this world that is struggling alone... that they now know you truly are never alone.

Tomorrow tis another day. Another new specialist. It hasn't been easy, but I plan on taking things one day at a time, doing my best to keep going.

 

"Life is going to bring you lots of ups and downs
After each storm learn to straighten your crown
Don’t let anything destroy your peace
This too shall pass... and your troubles shall cease."

~K


Posted by GastroparesisAwarenessCampaignOrg. at 3:08 PM EST
Updated: July 5, 2018 5:15 AM EDT
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March 7, 2018
Feeling Just A WEE Bit Sickeroo...
Mood:  chillin'
Now Playing: Day 2982-Chapter 3... Happiness~My Silver Lining

 

Yea... so feeling a wee bit under the weather. Tis not a good past  24-hours.

But you know what? This too shall pass!

Glad to be home now and just waiting on labs that had to be sent out of state. A record 79 blood tests. Thank God for an amazing hospital and emergency room team! Not sure where the blood infection is coming from... although they suspect the largest ovarian tumor. At least I was quick in knowing to head up ASAP to the hospital! We also had no idea I was starting with early signs of pneumonia?. I honestly thought it was just asthma due to seasonal allergies. At least the 103 fever is down to a safer 101... I will take it! Two bags of fluids later... bloated as hell. But you what? This too shall pass!

So.. for now back to rest, rest and more rest. Can't stand being negative Nelly nor do I want to be a constant complainer regarding my health but you know what folks? Shish kabobs.... happen (my choice word instead of curse word~HA). Life happens. 

You know... when that perfect song just hits ya! All while heading to Lowe's just a day before my health decided to take a spiral turn. Isn't it crazy how one day you can feel as if you're getting better and then the next day you're down for the count?. Cancer is never to be taken lightly. Neither are experimental treatments such as chemotherapy and radiation therapy. Always make sure to go with your gut when not feeling well. Never wait around until it's too late. 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:07 AM EDT
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March 6, 2018
Taking The Blog To NEW HEIGHTS! :)
Mood:  bright
Now Playing: Day 2981-Chapter 3... Happiness~My Silver Lining

 

Here is another great reason why I plan on slowly transitioning everyone to the new website. This software currently being used for my blog is as old as Trump's hairstyle... HA! (Oh come on now Trump supporters... it's a mere joke! Take it easy now because if you think about it... he really has had the same hairstyle for decades now.) It takes me far too long to do one single blog entry. Another great reason for slowly transitioning everyone to a new blog site is because even when I am not feeling my best. It really only takes me a mere 5-10 minutes to post a text blog, photos and even videos or audio. Compared to this current blog's old school software that really stinks! It takes me forever in a day to post just one blog and then add photos, animated gifs, etc.

So where I am getting at? This software stinks! Due to the constant crashes and taking forever in a day to post each individual blog entry. This blog will be in a permanent state of sleep later this year with only the ability to view past blog posts. It's going to be a slow transition with the best of the best software that will help to continue taking this blog to new heights!

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:18 AM EDT
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March 5, 2018
YOUR A JUNK FOOD JUNKY!
Mood:  bright
Now Playing: Day 2980-Chapter 3... Happiness~My Silver Lining

 

Hehehehehe!

They're really addicted to the Amish peanut butter and homemade preserves! A little treat in the evenings has now turned into a 24-hour ordeal each time Eric goes into the kitchen. Hahahaha! There's absolutely nothing wrong with using organic peanut butter as a treat since a lot of treats that they consume also have the same ingredient... peanut butter. Maybe it's the Husky or German Shepherd in them. But one thing is for certain... they sure do love their peanut butter and jelly!Hehehehehe!

I had my first of two follow up appointments since surgery last week. It was very unfortunate news to hear that there's nothing the surgeon can do after realizing 3D Fast Track radiation that missed its target ended up hitting surrounding organs that ended up instead being targeted during treatment. 3D means I actually  received radiation therapy in a 3 dimensional way that moved the radiation machine around my body in a circular motion doing its best to aim at the initial target which is the largest ovarian tumor. We already knew towards the end of radiation therapy that they could not get to the target due to the large tumor being strangulated around my intestines and nearby organs. 

They say that the true side effects of radiation therapy do not rear their ugly head until a year to 2-years post radiation treatment. Unfortunately, I am one of the 5% that will be dealing with ongoing problems that have stemmed from radiation affecting other surrounding organs, away from its main targeted area. We have went from a promising 15-week experimental treatment. To now another possible treatment that is also experimental, in which, they are not certain if our insurance will even cover this other treatment. 

As for today... I try not to think too far ahead and just take things one day at a time. The goal right now is to recover successfully from surgery... then I will deal with the far bigger issues at hand. 

In the meantime... there's always a reason to smile and share some laughter in this far too serious world. Life is far too short to sweat the big nor the small stuff. I don't go with logistics of things medically anymore... I go with the direction that the wind carries me~

 


Posted by GastroparesisAwarenessCampaignOrg. at 7:38 PM EST
Updated: July 5, 2018 5:19 AM EDT
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March 4, 2018
Motivation~Inspiration :)
Mood:  special
Now Playing: Day 2979-Chapter 3... Happiness~My Silver Lining

 

Ever have one of those days when all you want to do... is just stay in bed?

For me, today was one of those days. These are the days when motivating myself to keep going is just one of many ways to keep myself in check! We are truly our own best friend! I hope these kind words of just how special YOU are helps when you stumble across... one of those days... HUGS~

You are smart, you are beautiful, you are powerful, strong and needed.... YOU got this today my friends and if you feel like you don't, that's ok.

We all feel that exact same way sometimes.

What matters is that you keep that bright beaming ray of light in your soul that says you aren't done. Let that bright light guide you the way. YOU have the power to be everything that you want to be in this lifetime.

Keep on climbing... keep on doing... keep on going!

Whatever and wherever it is or may be in your journey... that bright light is all you need and you will get there!

-K

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:20 AM EDT
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March 3, 2018
To Believe... Believe.
Mood:  bright
Now Playing: Day 2978-Chapter 3... Happiness~My Silver Lining

 

You know... I couldn't make this stuff up if I tried when it comes to having a special gift that began at such a young age. 

The ability... to connect with the afterlife.

I have been waiting for the day to share so many of our amazing moments captured on video. 

There has yet to be any historic location that we have visited over the years... that I have not connected with at least one, if not many spirits of those who still live on past this life. Yet... somehow they still have the ability to be present in this lifetime. 

It has always fascinated me on how those who have passed on to Heaven can still have the ability to be present here with us on Earth. Visiting as some form of energy manifesting as sound and spirit. Over the course of my lifetime... I have been beyond blessed to have first hand personal experiences with those blessed spirits. 

I can remember this evening as if it was yesterday while spending the night at a very historic bed and breakfast. It did not dawn on us what exactly we had captured on video until the very next morning after talking to the owners and showing them this amazing video. It was after this experience... that one stormy evening, in which I realized I had been connecting with the spirits of animals throughout my life. 

For those that are not sure to believe that even our fur children have the ability to go to Heaven and come back to visit in some sort of spirit form. Those angelic fur angels whom come back to visit their beloved human families. This video we captured that one stormy night, when the energy that surrounded us was as thick as molasses is clear as clear can be... yes indeed the spirit of our fur children still remain with us here on Earth. I firmly believe their spirit will stay with us until the day comes when we are called back home to heaven.

The day when we cross the Rainbow Bridge... together.


Posted by GastroparesisAwarenessCampaignOrg. at 11:45 PM EST
Updated: July 5, 2018 5:20 AM EDT
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March 2, 2018
Getting Back To The Basics...
Mood:  chillin'
Now Playing: Day 2977-Chapter 3... Happiness~My Silver Lining

 

Three surgeries... all in less than two months.

This weeks surgery was tough! After all the super powers, happy-go-lucky anesthetic drugs wore off... the realness of post surgical pain began to take front and center. So did the fatigue and feeling overall... BLAH. If only we could somehow make the same kind of medication that they used during surgery that made me feel absolutely WONDERFUL! But only in a safe, natural pill form. Yea... right! Wishful thinking!

Of course, I had my fair share of post surgical complications that began as soon as we got home from the hospital. Clotting issues that lasted over the past three days which required a few trips back in order to receive a few treatments. I also had to stop all pain medication, vitamins, protein shakes and other supplemental meal beverages. I literally had to rely on solely over the counter Tylenol. Talking about building some serious, out of this world tolerance when it comes to pain! There hasn't been a hour that has gone by yet that Eric hasn't thrown in one of two rotating herbal heat wraps into the microwave.

Sleep... that's another story. A 24-hour story after literally sleeping an entire day away. Poor Eric... he once again will be paying for it when going back to work with one heck of a constantly rotating sleep schedule. HA!

Sometimes, it is what it is.

Today was the very first day in doing my best to slowly get back to the basics. Not being able to consume my protein shakes and other healthy beverages had begun to really take a toll on my overall energy level. Surgery is hard enough to bounce back from, yet alone dealing with limitations due to clotting issues. I was finally given the A-OK this afternoon to start back on some serious nutrition! My body said, "THANK YOU! THANK YOU! THANK YOU!" I am still fatigued as hell and the pain still has yet to subside when trying to find some sort of comfortable position on my couchbed. But I made it... I actually made it through a third surgery in less than two months! That within itself is one hell of a feat!

I know that the road ahead for me is going to be a long one. But for now... it's one day at a time.

 


Posted by GastroparesisAwarenessCampaignOrg. at 8:48 PM EST
Updated: July 5, 2018 5:21 AM EDT
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March 1, 2018
PROUD!
Mood:  surprised
Now Playing: Day 2976-Chapter 3... Happiness~My Silver Lining

 

After such a long week... how can one go wrong with such a cute little blog!

Such cuteness as Babyblue starts saving up money from the tooth fairy! Hehehehehe!

YoungFireDepartmentCrewTakingBreak2.jpgAs I slowly begin the surgical road to recovery and figure out my next step of many... our little Lazy River Town fire department has been kicking some serious butt! The entire team have been working non-stop, Around the Clock, going from one street to the next in order to clear everything out of the way so our roads can be safely reopened. These guys deserve a medal for doing such an amazing job with little sleep... but every bit of pride! These guys rock! 

What a picture perfect photo opportunity heading for treatment this afternoon as we drove past an exhausted crew.... still smiling, still fighting and still going strong in order to make sure our little Lazy River Town gets back to how it used to be before the flood. Same goes for the rest of our community as one-by-one our local parks, walking trails, biking trails and dog parks receive the help from many volunteers. What is there not to be proud of when living in such a tight-knit community, working together as one! The way it used to be... back in the good old days! 

ProudofOURfiredepartment1_800x367_.jpg

Those days... are now... today.

Thank you to those who have donated to help restore our historic little Lazy RiverTown. 

Much APPRECIATED! Smile

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 4:59 AM EDT
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February 28, 2018
What Happened To One Of Many Trails And Dog Parks… Aurora, Indiana Flood 2018
Mood:  hug me
Now Playing: Day 2975-Chapter 3... Happiness~My Silver Lining

 

Sometimes you have to get back to far more serious matters in life such as the beginning stages of the flood clean-up of our little Lazy River Town.

A tremendous effort of many!FloodAuroraFeb20183_570x1024_.jpg

We took these photos and video on day 4 during the flooding that has affected the majority of our little town. What used to be the town of many along with beautiful walking trails, playgrounds and dog parks. Now... underwater. It still blows my mind when it comes to the power of the almighty River. When Mother Nature and Earth collide. The video is now up for viewing on our Podcast~Blogcast, "Our Crazy Little Life." The website information and link can be found at the bottom of this blog entry.

Myself and Eric have never seen such a tight-knit community joining hands together as one in order to restore our beautiful historic town. Those who need assistance with cleanup as well those that just need food and a place to stay until the river recedes to a far safer level.

The following is a list of supplies that are currently needed: 

  • Gloves
  • Heavy Black Trash Bags
  • Bleach
  • Fans
  • Mops
  • Water Bottles
  • Dehumidifiers
  • Trash Cans

For drop off and shipping information or if you would like to make a donation please contact:

Aurora City Manager, Guinevere Emery

gemery@aurora.in.us


 

"When the going gets tough... the TOUGH get going!"

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 4:59 AM EDT
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February 27, 2018
Oh YES! Tis A FIRST For EVERYTHING!
Mood:  party time!
Now Playing: Day 2974-Chapter 3... Happiness~My Silver Lining

 

You know that old saying... there is a first... for EVERYTHING!

imSOdone.jpgThere's even a first when it comes to waking up from surgery after coming down from some serious goofy, loopy, downright silly feeling anesthesia! I have never felt so absolutely exhilarated in my entire life! The video is just a touch of the sheer goofiness and giddiness that I felt not just after surgery... but for 48-hours straight after surgery.

My anesthesiologist warned myself and Eric that he is old school and uses old school drugs. One of the anesthetic drugs just happens to sometimes give 5% of patients or less the side effect of feeling as if everything is a superpower and super funny. Needless to say by the looks of this video... I fell into the 5% of utter silliness! Hehehehe! I don't remember much, but I'm certainly glad Eric handed me over my cell phone so I could share just how ridiculously funny, silly and any other word to explain overwhelming laughter of how I was feeling after surgery. 

72-hours later... after all the anesthesia has slowly worn off...

I'm not feeling so funny, silly and with amazing superpowers. I am feeling sluggish, hellish and extremely irritable as the pain game begins. But in the meantime... I always have this absolutely hilarious photos of far more hysterical times to enjoy!

A big ole belly laugh at my expense! HAHAHAHA!

ENJOY!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:00 AM EDT
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