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The Road Before & After Surgery
March 15, 2018
NOW PLAYING... The BONE BURGLAR!
Mood:  d'oh
Now Playing: Day 2990-Chapter 3... Happiness~My Silver Lining

 

So... I am on my first 24-hours of at home treatments. When my Pulmonologist said I'd be feeling a little crappy, a little light-headed and quite a lot of shaky... she wasn't joking. 

Today I have been doing my best in keeping my mind off of far scarier things while still getting up throughout the day for a little exercise. Keeping up with the constant and various methods of at home treatments has been quite a task! I vow to do my absolute best to stay out of being admitted to the hospital. In my mind... being admitted to the hospital is a death sentence for me.

Sure... to some the above may sound silly, but going in for heart and respiratory issues does not seem very promising as far as being able to make it back home. Trust me by saying... I fought my doctors... both of my doctors for a matter of 3-hours during yesterday's appointment. If I don't get any better after the next 24-hours. Then clearly I have done all I can and the cards just aren't stacked in my favor. 

You can expect this girl to go in fighting all the way!


 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 5:23 AM EDT
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March 14, 2018
For A Thousand Years...
Mood:  sad
Now Playing: Day 2989-Chapter 3... Happiness~My Silver Lining

 

 Today has been a really tough day...

Emotionally... everything finally came to a head as we were given 48-hours for the final and last round of treatments to start working before my specialists will have to admit me to the hospital.

Today... I got lucky.

Tomorrow... I am not so sure... but I live for the day. I live in the present. I live for the moment. 

What I can't predict... is the future... tomorrow. 

I do know what I am. I am human. I have emotions, sometimes like today, really raw emotions. Hospitals scare the hell out of me. Especially if being admitted. I have been fighting like hell to get better and somehow make my way over this Mammoth Mountain. But for some reason.. my body is just not following my brain.

So... as I sit here and look at over $2,500 worth of medications, at home treatments, nebulizer machine and other information from my specialists... I am lost for words. I am completely dumbfounded. I would not be human if I didn't say that I am also starting to get pretty scared and very concerned for my life.

I am very fortunate to have a new team of specialists who haven't given up on me. They have desperately continued trying over the past week to get me stabilized. When other doctors have given up on me back across state lines. These doctors in our new home state have yet to give up on me.

As I was sitting here sifting through my phone. I found this video of our beloved Oreo bravely taking his very first steps after suffering a stroke that paralyzed him from the neck down. I remember as if it was just yesterday taking him to the emergency veterinarian hospital and being told Time After Time by each veterinarian that he would not make it and that we should let him go. You know what we did? We didn't listen to the veterinarians. We listened to our heart. We did what any decent human being and great fur parents would do... we took our beloved Oreo home and fought alongside him each and every day. We made sure Oreo had our undivided attention, daily physical therapy provided by both of us along with a customized wheelchair. 

We never gave up on Oreo being able to walk again and Oreo never gave up on us as he bravely took his first steps six months after a major stroke. What a remarkable gift to be able to say that together... we defied the odds with our beloved, brave and remarkable fur child, Oreo. 

Never give up never give in.

I will always love you... For A Thousand Years...

OreoAndMommyMeLOVE.jpg

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 5:29 AM EDT
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March 13, 2018
Winding Down Our Rootin Tootin Tuesday!
Mood:  cheeky
Now Playing: Day 2988-Chapter 3... Happiness~My Silver Lining

 

Just ending this evening on a little note... taking it easy... here in the country.

The snow has unfortunately stopped, but at least I was able to capture a few extra pictures in case it will be the last snow of the season. 

Eric is already slowly getting stir crazy from being stuck in the house for over a week now. I was contacted a few hours ago by my doctors office so looks like tomorrow will be another early morning wake up call for our little family.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 5:16 AM EDT
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March 12, 2018
Enjoying The Most B-E-A-U-T-I-F-U-L Sights & Sounds :)
Mood:  happy
Now Playing: Day 2987-Chapter 3... Happiness~My Silver Lining

 

BreathtakenlyBeautifulSNOWw_450x800_.jpgAll the most beautiful sights and sounds of snow slowly glistening down from the sky. An unexpected... but most definitely welcomed snowfall late in the winter season.

What a perfect way to start the morning just listening to all the sights and sounds of Mother Nature and the most beautiful snowflakes falling around us while on our way to the hospital for another round of treatments.

We are hopeful that Eric will be able to return to work this coming week. No one can predict the unpredictable especially when it comes to your health. I am still struggling with shortness of breath even when walking around the house trying to get back some of my energy. My doctors are still working hard to get me stabilized so I don't fall back into any further trouble.

Another most humbling experience when one quickly understands the true meaning of life. The most simplest of pleasures... the simplicity of things that mean the most... what money can't buy.... true happiness.

Thank you Mother Nature for bringing a most memorable late-season gift of such beautiful snow! I couldn't have asked for anything more.

Live~Love~Life

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 5:30 AM EDT
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March 11, 2018
Blessed.
Mood:  lucky
Now Playing: Day 2986-Chapter 3... Happiness~My Silver Lining

 

Being  married means being with someone for life who wants to make you laugh and smile. A lifelong partner who you can talk to about anything.

When all else fails, when times are tough, your friendship will pull you through anything... I can promise you that!

It wasn't a good day, but I have a great husband and an amazing little family by my side.

Yes... I am blessed.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:12 AM EDT
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March 10, 2018
Looking Forward To Our Next Great Historic Venture!
Mood:  chillin'
Now Playing: Day 2985-Chapter 3... Happiness~My Silver Lining

 

Ahhhh... tis another day being stuck at home. Waking up to the hope of treatments keeping me out of any further trouble and on my way of being stabilized... medically speaking.

Eric has already missed an entire week of work. We have surpassed paid leave and now on unpaid leave which doesn't make me feel very comfortable. You know that uneasy feeling where you look at your checkbook and figure out how it's going to hit you later. After seeing two additional new specialists since being hospitalized earlier this week... they are giving me till next week to start feeling better. I have my moments throughout the day where a good hour will hit me and which I believe I am close to coming to the other side of this big mountain. Then of course... I will get hit out of nowhere and then back down for the count again stuck on what feels like a forever couch bed. 

Myself and Eric were hopeful that he would be able to return to work but that was 3 days ago. My doctors are not comfortable with me being home alone until they are able to stabilize me with at home treatments... every 4 hour treatments. (More of those crazy treatments on the next podcast.) Slowly but surely medical reports are coming back from Radiology. Most recent EKG, ECG, lung tests and lactic acid testing. Congestive heart failure with septic shock is something that you don't really survive a second time around so they want to make sure that all of my organs are working as normal as possible. 

Four specialists are still not sure if the blood infection had come from the ovarian tumors or GI intestinal infection. What they do now know is that it had nothing to do with the most recent surgery regarding my kidneys and bladder. At least we know that this is just a connected problem... complication of far bigger issues that have been going on for quite a long time. As for myself and Eric... we most definitely believe that this is the cause from the largest ovarian tumor leaking very dangerous fluid, cells or whatever you may call it or choose to call it.

I tend to look at things differently now in my life through another new set of eyes / my own personal experiences. Dwelling on things doesn't change what has happened. But I know for a fact my Angels were with me in that hospital emergency room. Eric asked me this evening if I noticed the point when everyone was trying to do multiple tests at once and there was hardly no room to move and yet my blood pressure and pulse would quickly change to 111. Is it a mere coincidence? No... it's not. If you're familiar with the Angel digits then I need not say more. 

It's going to still be a little ways before I start feeling better, but in the meantime I've been able to sit through videos that were taking during our many historic ventures. This video is from Waverly Hospital located in Kentucky. It was another once-in-a-lifetime opportunity to be able to connect with our past. History that still seems Frozen in Time. No... Waverly Hospital which was also an asylum was not scary and we did not feel any negative presence. But instead a very overwhelming sad energy of those who greatly suffered while spending months and some even years at this very large historic Hospital that housed tuberculosis patients and even acted as an orphanage for abandoned children. This video was taken inside an underground tunnel where they would bring the bodies of those who were deceased. So many beautiful souls had lost their lives in such great numbers that it was not uncommon to have more than a hundred bodies waiting to be picked up at the end of the tunnel where a secret door waited to be opened. Some were returned to their respective families... while others were brought to local funeral homes or buried in small grave sites away from the hospital.

Towards the end of the video located on our Podcast~Blogcast at the following link below you can distinctively hear a gentleman's voice at the end of the video while Eric is talking. We aren't sure if he is saying you or boo?. For those who are permalink readers you will recall this photo of the apparition that we didn't realize we photographed standing looking down at an autopsy table. A woman in a very distinctive long gown.

womanapparitionWaverlyKy.jpg

It was an amazing experience! One in which myself and Eric had learned so much... yet after we left... we felt so incredibly humbled. We can't wait till I get better so we can pick back up again to our next great historic venture! 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:12 AM EDT
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March 9, 2018
The POWER Of The Little Hidden LEMON GEMS!
Mood:  d'oh
Now Playing: Day 2984-Chapter 3... Happiness~My Silver Lining

 

Do you like lemons? Do you like the super citrusy bitter taste of lemons?

Neither do I.

benefitsofLemons_525x800_.jpgWhat I didn't know about lemons were all the amazing health benefits that are packed in just one bright yellow little citrus gem! Funny enough... I have blogged over the past year about how many little lemon gems we have found since purchasing our new home. Just imagine our surprise over the past 72-hours on just how many amazing health benefits the little lemon gems really can offer everyone!

Talking about turning lemons into SWEET LEMONADE!

Lemons are now a huge part of my daily diet after being handed a new list of super foods that will now need to be added to my liquid beverages. Lemons... there are now a must! I never really cared for the bitter taste of lemons. But they are most definitely quickly growing on me! Soon enough... I will be slowly growing a bitter face... Hehehehehe!

While Babyblue continues to enjoy her organic peanut butter and all the extra energy it packs in just a few spoonful's a day. Her mommy will be taking a seat and sipping on her packed full of health benefits lemon and tea.

Here are many reasons why YOU should also join in on these super healthy lemon gems!

Life is far too short folks not to still keep things healthy!

 

15 Amazing Benefits Of Lemon

The health benefits of lemon include treatment of indigestion, constipation, dental problems, throat infections, fever internal bleeding, rheumatism, burns, obesity, respiratory disorders, cholera, and high blood pressure, while also benefiting your hair and skin. Known for its therapeutic property since generations, lemon helps strengthen your immune system, cleanse your stomach, and is considered a blood purifier.

The health benefits of lemon are due to its many nourishing elements like vitamin C, vitamin B6, vitamin A, vitamin E, folate, niacin, thiamin, riboflavin, pantothenic acid, copper, calcium, iron, magnesium, potassium, zinc, phosphorus, and protein. Lemon contains antioxidants and have cancer-fighting properties. Lemon helps prevent diabetes, constipation, high blood pressure, fever, indigestion, as well as improve the skin, hair, and teeth. Studies conducted at the American Urological Association highlight the fact that lemonade or lemon juice can eliminate the occurrence of kidney stones by forming urinary citrate, which prevents the formation of crystals.

Here are a few other reasons why lemons should be added to your daily diet!

Hair Care

Lemon juice has proven itself useful in the treatment of hair care on a wide scale. Its juice, when applied to the scalp can treat problems like dandruff, hair loss and other problems related to the hair and scalp. If you apply this juice directly to the hair, it can give your hair a natural shine.

Skin Care

Lemon juice, being a natural antiseptic medicine, can also cure problems related to the skin. The juice can be applied to reduce the pain of sunburns and it helps to ease the pain from bee stings as well. It is also good for acne and eczema. It acts as an anti-aging remedy and can remove wrinkles and blackheads. Drinking its juice mixed with water and honey brings a healthy glow to the skin, and if you thoroughly search the cosmetic market, you will find some soaps containing this juice, but they aren’t too easy to find!

Cures Burns

Using lemon juice on the site of old burns can help fade the scars, and since it is a cooling agent, it reduces the burning sensation on the skin while you have an irritating burn.

Internal Bleeding

It has antiseptic and coagulant properties, so it can stop internal bleeding. You can apply lemon juice to a small cotton ball and place it inside your nose to stop nosebleeds.

Weight Loss

If a person drinks lemon juice mixed with lukewarm water and honey, it can help reduce body weight.

Soothes Respiratory Disorders

Lemon juice assists in relieving respiratory problems and breathing problems, such as its ability to soothe a person suffering from an asthma attack. Being a rich source of vitamin C, it helps in dealing with more long-term respiratory disorders as well.

Treats Cholera

Diseases like cholera and malaria can be treated with lemon juice because it acts as a blood purifier.

Relaxes Feet

Lemon is an aromatic and antiseptic agent and is useful for foot relaxation. Add some of its juice to warm water and dip your feet into the mixture for instant relief and muscle relaxation.

Treats Rheumatism

It is also a diuretic and can treat rheumatism and arthritis. It helps to flush out bacteria and toxins from the body.

Reduces Corns

Lemon juice can dissolve lumps on the skin, so it can be applied to the areas where the skin has hardened up, like the soles of feet and the palms of your hands. Drinking it with water can help patients reduce gallstones for the same reasons.

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:13 AM EDT
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March 8, 2018
This Too Shall Pass... And Your Troubles Shall Cease.
Mood:  bright
Now Playing: Day 2983-Chapter 3... Happiness~My Silver Lining

 

When I think about the past month... excessive tiredness, fatigue, dizziness, uneasiness in the chest... it all makes sense. Unfortunate... perfect sense.

Over the past 48-hours... how did I get to this current place in time? Respiratory appointments for breathing treatments, another EKG, ECG... then the diagnosis hits us like a freight train as we stand in the middle of the tracks.

I most definitely don't feel like the person in the most recent medical reports. Even fooling myself to believe that the person in the pictures looks pretty darn normal. But internally... anything but medically normal. Trying to literally jump over this latest hurdle is going to prove to be one hell of a feat!

Today has started off to be... no better of a day.

I may have mastered the new regimen of one new specialist after another, but I don't look at it quite the same anymore. Instead of how I used to view appointments as mere inconveniences, when in all reality, I felt as if I had far better things to do with my time. I now view my appointments with my new specialists as a blessing. A very life-saving blessing in disguise.

What I have also changed is how I respond to mere personal perception of how others may see me as a constant complainer, negative Nelly or seeking some sort of bizarre attention. Bizarre is the minds of anyone whom believes that those who are sick are any of the above. I now see it as those who feel that way as nothing but a mere character flaw within themselves. Maybe because I never saw anyone who was sick as any sort of constant complainer, negative Nelly or seeking some sort of bizarre attention. I never felt that way when my Aunt was at the end of her journey with lung cancer. I never even saw my Grandmother who bravely battled kidney cancer as anything but a determined woman. Same for my Grandfather who stood firmly in looking directly into the eyes of prostate cancer... yet still ran mile after mile, each and every day, until he could run no longer. Those aren't people as any of the above... those are instead some god-given strong willed people.

When you surround yourself with those types of uncompassionate, inhumane, negative folks. You are only setting yourself up for mere troubles now or... later down the road. When you fear seeking medical treatment due to fear of what some may think as any of the above... then clearly you need to sit down and do some serious life inventory. No one in this lifetime who ever makes light of, pokes fun of, or belittles anyone who is sick, should ever be a part of your inventory.

You deserve so much more! You deserve far better! Especially when bravely battling any chronic illness. It isn't about seeking attention. It isn't about being negative Nelly. It isn't even about any sort of bizarre attention. When you share a piece of yourself and your struggles... no matter what they may be... you should never receive anything but pure kindness and sheer compassion from others.

My journey may have taken another unfortunate turn... but at least I now have the full support, kindness, compassion and love from others that will help keep me going.

I can only hope that if this blog post reaches just one beautiful soul out in this world that is struggling alone... that they now know you truly are never alone.

Tomorrow tis another day. Another new specialist. It hasn't been easy, but I plan on taking things one day at a time, doing my best to keep going.

 

"Life is going to bring you lots of ups and downs
After each storm learn to straighten your crown
Don’t let anything destroy your peace
This too shall pass... and your troubles shall cease."

~K


Posted by GastroparesisAwarenessCampaignOrg. at 3:08 PM EST
Updated: July 5, 2018 5:15 AM EDT
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March 7, 2018
Feeling Just A WEE Bit Sickeroo...
Mood:  chillin'
Now Playing: Day 2982-Chapter 3... Happiness~My Silver Lining

 

Yea... so feeling a wee bit under the weather. Tis not a good past  24-hours.

But you know what? This too shall pass!

Glad to be home now and just waiting on labs that had to be sent out of state. A record 79 blood tests. Thank God for an amazing hospital and emergency room team! Not sure where the blood infection is coming from... although they suspect the largest ovarian tumor. At least I was quick in knowing to head up ASAP to the hospital! We also had no idea I was starting with early signs of pneumonia?. I honestly thought it was just asthma due to seasonal allergies. At least the 103 fever is down to a safer 101... I will take it! Two bags of fluids later... bloated as hell. But you what? This too shall pass!

So.. for now back to rest, rest and more rest. Can't stand being negative Nelly nor do I want to be a constant complainer regarding my health but you know what folks? Shish kabobs.... happen (my choice word instead of curse word~HA). Life happens. 

You know... when that perfect song just hits ya! All while heading to Lowe's just a day before my health decided to take a spiral turn. Isn't it crazy how one day you can feel as if you're getting better and then the next day you're down for the count?. Cancer is never to be taken lightly. Neither are experimental treatments such as chemotherapy and radiation therapy. Always make sure to go with your gut when not feeling well. Never wait around until it's too late. 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:07 AM EDT
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March 6, 2018
Taking The Blog To NEW HEIGHTS! :)
Mood:  bright
Now Playing: Day 2981-Chapter 3... Happiness~My Silver Lining

 

Here is another great reason why I plan on slowly transitioning everyone to the new website. This software currently being used for my blog is as old as Trump's hairstyle... HA! (Oh come on now Trump supporters... it's a mere joke! Take it easy now because if you think about it... he really has had the same hairstyle for decades now.) It takes me far too long to do one single blog entry. Another great reason for slowly transitioning everyone to a new blog site is because even when I am not feeling my best. It really only takes me a mere 5-10 minutes to post a text blog, photos and even videos or audio. Compared to this current blog's old school software that really stinks! It takes me forever in a day to post just one blog and then add photos, animated gifs, etc.

So where I am getting at? This software stinks! Due to the constant crashes and taking forever in a day to post each individual blog entry. This blog will be in a permanent state of sleep later this year with only the ability to view past blog posts. It's going to be a slow transition with the best of the best software that will help to continue taking this blog to new heights!

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:18 AM EDT
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