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The Road Before & After Surgery
March 10, 2018
Looking Forward To Our Next Great Historic Venture!
Mood:  chillin'
Now Playing: Day 2985-Chapter 3... Happiness~My Silver Lining

 

Ahhhh... tis another day being stuck at home. Waking up to the hope of treatments keeping me out of any further trouble and on my way of being stabilized... medically speaking.

Eric has already missed an entire week of work. We have surpassed paid leave and now on unpaid leave which doesn't make me feel very comfortable. You know that uneasy feeling where you look at your checkbook and figure out how it's going to hit you later. After seeing two additional new specialists since being hospitalized earlier this week... they are giving me till next week to start feeling better. I have my moments throughout the day where a good hour will hit me and which I believe I am close to coming to the other side of this big mountain. Then of course... I will get hit out of nowhere and then back down for the count again stuck on what feels like a forever couch bed. 

Myself and Eric were hopeful that he would be able to return to work but that was 3 days ago. My doctors are not comfortable with me being home alone until they are able to stabilize me with at home treatments... every 4 hour treatments. (More of those crazy treatments on the next podcast.) Slowly but surely medical reports are coming back from Radiology. Most recent EKG, ECG, lung tests and lactic acid testing. Congestive heart failure with septic shock is something that you don't really survive a second time around so they want to make sure that all of my organs are working as normal as possible. 

Four specialists are still not sure if the blood infection had come from the ovarian tumors or GI intestinal infection. What they do now know is that it had nothing to do with the most recent surgery regarding my kidneys and bladder. At least we know that this is just a connected problem... complication of far bigger issues that have been going on for quite a long time. As for myself and Eric... we most definitely believe that this is the cause from the largest ovarian tumor leaking very dangerous fluid, cells or whatever you may call it or choose to call it.

I tend to look at things differently now in my life through another new set of eyes / my own personal experiences. Dwelling on things doesn't change what has happened. But I know for a fact my Angels were with me in that hospital emergency room. Eric asked me this evening if I noticed the point when everyone was trying to do multiple tests at once and there was hardly no room to move and yet my blood pressure and pulse would quickly change to 111. Is it a mere coincidence? No... it's not. If you're familiar with the Angel digits then I need not say more. 

It's going to still be a little ways before I start feeling better, but in the meantime I've been able to sit through videos that were taking during our many historic ventures. This video is from Waverly Hospital located in Kentucky. It was another once-in-a-lifetime opportunity to be able to connect with our past. History that still seems Frozen in Time. No... Waverly Hospital which was also an asylum was not scary and we did not feel any negative presence. But instead a very overwhelming sad energy of those who greatly suffered while spending months and some even years at this very large historic Hospital that housed tuberculosis patients and even acted as an orphanage for abandoned children. This video was taken inside an underground tunnel where they would bring the bodies of those who were deceased. So many beautiful souls had lost their lives in such great numbers that it was not uncommon to have more than a hundred bodies waiting to be picked up at the end of the tunnel where a secret door waited to be opened. Some were returned to their respective families... while others were brought to local funeral homes or buried in small grave sites away from the hospital.

Towards the end of the video located on our Podcast~Blogcast at the following link below you can distinctively hear a gentleman's voice at the end of the video while Eric is talking. We aren't sure if he is saying you or boo?. For those who are permalink readers you will recall this photo of the apparition that we didn't realize we photographed standing looking down at an autopsy table. A woman in a very distinctive long gown.

womanapparitionWaverlyKy.jpg

It was an amazing experience! One in which myself and Eric had learned so much... yet after we left... we felt so incredibly humbled. We can't wait till I get better so we can pick back up again to our next great historic venture! 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:12 AM EDT
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March 9, 2018
The POWER Of The Little Hidden LEMON GEMS!
Mood:  d'oh
Now Playing: Day 2984-Chapter 3... Happiness~My Silver Lining

 

Do you like lemons? Do you like the super citrusy bitter taste of lemons?

Neither do I.

benefitsofLemons_525x800_.jpgWhat I didn't know about lemons were all the amazing health benefits that are packed in just one bright yellow little citrus gem! Funny enough... I have blogged over the past year about how many little lemon gems we have found since purchasing our new home. Just imagine our surprise over the past 72-hours on just how many amazing health benefits the little lemon gems really can offer everyone!

Talking about turning lemons into SWEET LEMONADE!

Lemons are now a huge part of my daily diet after being handed a new list of super foods that will now need to be added to my liquid beverages. Lemons... there are now a must! I never really cared for the bitter taste of lemons. But they are most definitely quickly growing on me! Soon enough... I will be slowly growing a bitter face... Hehehehehe!

While Babyblue continues to enjoy her organic peanut butter and all the extra energy it packs in just a few spoonful's a day. Her mommy will be taking a seat and sipping on her packed full of health benefits lemon and tea.

Here are many reasons why YOU should also join in on these super healthy lemon gems!

Life is far too short folks not to still keep things healthy!

 

15 Amazing Benefits Of Lemon

The health benefits of lemon include treatment of indigestion, constipation, dental problems, throat infections, fever internal bleeding, rheumatism, burns, obesity, respiratory disorders, cholera, and high blood pressure, while also benefiting your hair and skin. Known for its therapeutic property since generations, lemon helps strengthen your immune system, cleanse your stomach, and is considered a blood purifier.

The health benefits of lemon are due to its many nourishing elements like vitamin C, vitamin B6, vitamin A, vitamin E, folate, niacin, thiamin, riboflavin, pantothenic acid, copper, calcium, iron, magnesium, potassium, zinc, phosphorus, and protein. Lemon contains antioxidants and have cancer-fighting properties. Lemon helps prevent diabetes, constipation, high blood pressure, fever, indigestion, as well as improve the skin, hair, and teeth. Studies conducted at the American Urological Association highlight the fact that lemonade or lemon juice can eliminate the occurrence of kidney stones by forming urinary citrate, which prevents the formation of crystals.

Here are a few other reasons why lemons should be added to your daily diet!

Hair Care

Lemon juice has proven itself useful in the treatment of hair care on a wide scale. Its juice, when applied to the scalp can treat problems like dandruff, hair loss and other problems related to the hair and scalp. If you apply this juice directly to the hair, it can give your hair a natural shine.

Skin Care

Lemon juice, being a natural antiseptic medicine, can also cure problems related to the skin. The juice can be applied to reduce the pain of sunburns and it helps to ease the pain from bee stings as well. It is also good for acne and eczema. It acts as an anti-aging remedy and can remove wrinkles and blackheads. Drinking its juice mixed with water and honey brings a healthy glow to the skin, and if you thoroughly search the cosmetic market, you will find some soaps containing this juice, but they aren’t too easy to find!

Cures Burns

Using lemon juice on the site of old burns can help fade the scars, and since it is a cooling agent, it reduces the burning sensation on the skin while you have an irritating burn.

Internal Bleeding

It has antiseptic and coagulant properties, so it can stop internal bleeding. You can apply lemon juice to a small cotton ball and place it inside your nose to stop nosebleeds.

Weight Loss

If a person drinks lemon juice mixed with lukewarm water and honey, it can help reduce body weight.

Soothes Respiratory Disorders

Lemon juice assists in relieving respiratory problems and breathing problems, such as its ability to soothe a person suffering from an asthma attack. Being a rich source of vitamin C, it helps in dealing with more long-term respiratory disorders as well.

Treats Cholera

Diseases like cholera and malaria can be treated with lemon juice because it acts as a blood purifier.

Relaxes Feet

Lemon is an aromatic and antiseptic agent and is useful for foot relaxation. Add some of its juice to warm water and dip your feet into the mixture for instant relief and muscle relaxation.

Treats Rheumatism

It is also a diuretic and can treat rheumatism and arthritis. It helps to flush out bacteria and toxins from the body.

Reduces Corns

Lemon juice can dissolve lumps on the skin, so it can be applied to the areas where the skin has hardened up, like the soles of feet and the palms of your hands. Drinking it with water can help patients reduce gallstones for the same reasons.

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:13 AM EDT
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March 8, 2018
This Too Shall Pass... And Your Troubles Shall Cease.
Mood:  bright
Now Playing: Day 2983-Chapter 3... Happiness~My Silver Lining

 

When I think about the past month... excessive tiredness, fatigue, dizziness, uneasiness in the chest... it all makes sense. Unfortunate... perfect sense.

Over the past 48-hours... how did I get to this current place in time? Respiratory appointments for breathing treatments, another EKG, ECG... then the diagnosis hits us like a freight train as we stand in the middle of the tracks.

I most definitely don't feel like the person in the most recent medical reports. Even fooling myself to believe that the person in the pictures looks pretty darn normal. But internally... anything but medically normal. Trying to literally jump over this latest hurdle is going to prove to be one hell of a feat!

Today has started off to be... no better of a day.

I may have mastered the new regimen of one new specialist after another, but I don't look at it quite the same anymore. Instead of how I used to view appointments as mere inconveniences, when in all reality, I felt as if I had far better things to do with my time. I now view my appointments with my new specialists as a blessing. A very life-saving blessing in disguise.

What I have also changed is how I respond to mere personal perception of how others may see me as a constant complainer, negative Nelly or seeking some sort of bizarre attention. Bizarre is the minds of anyone whom believes that those who are sick are any of the above. I now see it as those who feel that way as nothing but a mere character flaw within themselves. Maybe because I never saw anyone who was sick as any sort of constant complainer, negative Nelly or seeking some sort of bizarre attention. I never felt that way when my Aunt was at the end of her journey with lung cancer. I never even saw my Grandmother who bravely battled kidney cancer as anything but a determined woman. Same for my Grandfather who stood firmly in looking directly into the eyes of prostate cancer... yet still ran mile after mile, each and every day, until he could run no longer. Those aren't people as any of the above... those are instead some god-given strong willed people.

When you surround yourself with those types of uncompassionate, inhumane, negative folks. You are only setting yourself up for mere troubles now or... later down the road. When you fear seeking medical treatment due to fear of what some may think as any of the above... then clearly you need to sit down and do some serious life inventory. No one in this lifetime who ever makes light of, pokes fun of, or belittles anyone who is sick, should ever be a part of your inventory.

You deserve so much more! You deserve far better! Especially when bravely battling any chronic illness. It isn't about seeking attention. It isn't about being negative Nelly. It isn't even about any sort of bizarre attention. When you share a piece of yourself and your struggles... no matter what they may be... you should never receive anything but pure kindness and sheer compassion from others.

My journey may have taken another unfortunate turn... but at least I now have the full support, kindness, compassion and love from others that will help keep me going.

I can only hope that if this blog post reaches just one beautiful soul out in this world that is struggling alone... that they now know you truly are never alone.

Tomorrow tis another day. Another new specialist. It hasn't been easy, but I plan on taking things one day at a time, doing my best to keep going.

 

"Life is going to bring you lots of ups and downs
After each storm learn to straighten your crown
Don’t let anything destroy your peace
This too shall pass... and your troubles shall cease."

~K


Posted by GastroparesisAwarenessCampaignOrg. at 3:08 PM EST
Updated: July 5, 2018 5:15 AM EDT
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March 7, 2018
Feeling Just A WEE Bit Sickeroo...
Mood:  chillin'
Now Playing: Day 2982-Chapter 3... Happiness~My Silver Lining

 

Yea... so feeling a wee bit under the weather. Tis not a good past  24-hours.

But you know what? This too shall pass!

Glad to be home now and just waiting on labs that had to be sent out of state. A record 79 blood tests. Thank God for an amazing hospital and emergency room team! Not sure where the blood infection is coming from... although they suspect the largest ovarian tumor. At least I was quick in knowing to head up ASAP to the hospital! We also had no idea I was starting with early signs of pneumonia?. I honestly thought it was just asthma due to seasonal allergies. At least the 103 fever is down to a safer 101... I will take it! Two bags of fluids later... bloated as hell. But you what? This too shall pass!

So.. for now back to rest, rest and more rest. Can't stand being negative Nelly nor do I want to be a constant complainer regarding my health but you know what folks? Shish kabobs.... happen (my choice word instead of curse word~HA). Life happens. 

You know... when that perfect song just hits ya! All while heading to Lowe's just a day before my health decided to take a spiral turn. Isn't it crazy how one day you can feel as if you're getting better and then the next day you're down for the count?. Cancer is never to be taken lightly. Neither are experimental treatments such as chemotherapy and radiation therapy. Always make sure to go with your gut when not feeling well. Never wait around until it's too late. 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:07 AM EDT
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March 6, 2018
Taking The Blog To NEW HEIGHTS! :)
Mood:  bright
Now Playing: Day 2981-Chapter 3... Happiness~My Silver Lining

 

Here is another great reason why I plan on slowly transitioning everyone to the new website. This software currently being used for my blog is as old as Trump's hairstyle... HA! (Oh come on now Trump supporters... it's a mere joke! Take it easy now because if you think about it... he really has had the same hairstyle for decades now.) It takes me far too long to do one single blog entry. Another great reason for slowly transitioning everyone to a new blog site is because even when I am not feeling my best. It really only takes me a mere 5-10 minutes to post a text blog, photos and even videos or audio. Compared to this current blog's old school software that really stinks! It takes me forever in a day to post just one blog and then add photos, animated gifs, etc.

So where I am getting at? This software stinks! Due to the constant crashes and taking forever in a day to post each individual blog entry. This blog will be in a permanent state of sleep later this year with only the ability to view past blog posts. It's going to be a slow transition with the best of the best software that will help to continue taking this blog to new heights!

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:18 AM EDT
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March 5, 2018
YOUR A JUNK FOOD JUNKY!
Mood:  bright
Now Playing: Day 2980-Chapter 3... Happiness~My Silver Lining

 

Hehehehehe!

They're really addicted to the Amish peanut butter and homemade preserves! A little treat in the evenings has now turned into a 24-hour ordeal each time Eric goes into the kitchen. Hahahaha! There's absolutely nothing wrong with using organic peanut butter as a treat since a lot of treats that they consume also have the same ingredient... peanut butter. Maybe it's the Husky or German Shepherd in them. But one thing is for certain... they sure do love their peanut butter and jelly!Hehehehehe!

I had my first of two follow up appointments since surgery last week. It was very unfortunate news to hear that there's nothing the surgeon can do after realizing 3D Fast Track radiation that missed its target ended up hitting surrounding organs that ended up instead being targeted during treatment. 3D means I actually  received radiation therapy in a 3 dimensional way that moved the radiation machine around my body in a circular motion doing its best to aim at the initial target which is the largest ovarian tumor. We already knew towards the end of radiation therapy that they could not get to the target due to the large tumor being strangulated around my intestines and nearby organs. 

They say that the true side effects of radiation therapy do not rear their ugly head until a year to 2-years post radiation treatment. Unfortunately, I am one of the 5% that will be dealing with ongoing problems that have stemmed from radiation affecting other surrounding organs, away from its main targeted area. We have went from a promising 15-week experimental treatment. To now another possible treatment that is also experimental, in which, they are not certain if our insurance will even cover this other treatment. 

As for today... I try not to think too far ahead and just take things one day at a time. The goal right now is to recover successfully from surgery... then I will deal with the far bigger issues at hand. 

In the meantime... there's always a reason to smile and share some laughter in this far too serious world. Life is far too short to sweat the big nor the small stuff. I don't go with logistics of things medically anymore... I go with the direction that the wind carries me~

 


Posted by GastroparesisAwarenessCampaignOrg. at 7:38 PM EST
Updated: July 5, 2018 5:19 AM EDT
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March 4, 2018
Motivation~Inspiration :)
Mood:  special
Now Playing: Day 2979-Chapter 3... Happiness~My Silver Lining

 

Ever have one of those days when all you want to do... is just stay in bed?

For me, today was one of those days. These are the days when motivating myself to keep going is just one of many ways to keep myself in check! We are truly our own best friend! I hope these kind words of just how special YOU are helps when you stumble across... one of those days... HUGS~

You are smart, you are beautiful, you are powerful, strong and needed.... YOU got this today my friends and if you feel like you don't, that's ok.

We all feel that exact same way sometimes.

What matters is that you keep that bright beaming ray of light in your soul that says you aren't done. Let that bright light guide you the way. YOU have the power to be everything that you want to be in this lifetime.

Keep on climbing... keep on doing... keep on going!

Whatever and wherever it is or may be in your journey... that bright light is all you need and you will get there!

-K

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 5:20 AM EDT
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March 3, 2018
To Believe... Believe.
Mood:  bright
Now Playing: Day 2978-Chapter 3... Happiness~My Silver Lining

 

You know... I couldn't make this stuff up if I tried when it comes to having a special gift that began at such a young age. 

The ability... to connect with the afterlife.

I have been waiting for the day to share so many of our amazing moments captured on video. 

There has yet to be any historic location that we have visited over the years... that I have not connected with at least one, if not many spirits of those who still live on past this life. Yet... somehow they still have the ability to be present in this lifetime. 

It has always fascinated me on how those who have passed on to Heaven can still have the ability to be present here with us on Earth. Visiting as some form of energy manifesting as sound and spirit. Over the course of my lifetime... I have been beyond blessed to have first hand personal experiences with those blessed spirits. 

I can remember this evening as if it was yesterday while spending the night at a very historic bed and breakfast. It did not dawn on us what exactly we had captured on video until the very next morning after talking to the owners and showing them this amazing video. It was after this experience... that one stormy evening, in which I realized I had been connecting with the spirits of animals throughout my life. 

For those that are not sure to believe that even our fur children have the ability to go to Heaven and come back to visit in some sort of spirit form. Those angelic fur angels whom come back to visit their beloved human families. This video we captured that one stormy night, when the energy that surrounded us was as thick as molasses is clear as clear can be... yes indeed the spirit of our fur children still remain with us here on Earth. I firmly believe their spirit will stay with us until the day comes when we are called back home to heaven.

The day when we cross the Rainbow Bridge... together.


Posted by GastroparesisAwarenessCampaignOrg. at 11:45 PM EST
Updated: July 5, 2018 5:20 AM EDT
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March 2, 2018
Getting Back To The Basics...
Mood:  chillin'
Now Playing: Day 2977-Chapter 3... Happiness~My Silver Lining

 

Three surgeries... all in less than two months.

This weeks surgery was tough! After all the super powers, happy-go-lucky anesthetic drugs wore off... the realness of post surgical pain began to take front and center. So did the fatigue and feeling overall... BLAH. If only we could somehow make the same kind of medication that they used during surgery that made me feel absolutely WONDERFUL! But only in a safe, natural pill form. Yea... right! Wishful thinking!

Of course, I had my fair share of post surgical complications that began as soon as we got home from the hospital. Clotting issues that lasted over the past three days which required a few trips back in order to receive a few treatments. I also had to stop all pain medication, vitamins, protein shakes and other supplemental meal beverages. I literally had to rely on solely over the counter Tylenol. Talking about building some serious, out of this world tolerance when it comes to pain! There hasn't been a hour that has gone by yet that Eric hasn't thrown in one of two rotating herbal heat wraps into the microwave.

Sleep... that's another story. A 24-hour story after literally sleeping an entire day away. Poor Eric... he once again will be paying for it when going back to work with one heck of a constantly rotating sleep schedule. HA!

Sometimes, it is what it is.

Today was the very first day in doing my best to slowly get back to the basics. Not being able to consume my protein shakes and other healthy beverages had begun to really take a toll on my overall energy level. Surgery is hard enough to bounce back from, yet alone dealing with limitations due to clotting issues. I was finally given the A-OK this afternoon to start back on some serious nutrition! My body said, "THANK YOU! THANK YOU! THANK YOU!" I am still fatigued as hell and the pain still has yet to subside when trying to find some sort of comfortable position on my couchbed. But I made it... I actually made it through a third surgery in less than two months! That within itself is one hell of a feat!

I know that the road ahead for me is going to be a long one. But for now... it's one day at a time.

 


Posted by GastroparesisAwarenessCampaignOrg. at 8:48 PM EST
Updated: July 5, 2018 5:21 AM EDT
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March 1, 2018
PROUD!
Mood:  surprised
Now Playing: Day 2976-Chapter 3... Happiness~My Silver Lining

 

After such a long week... how can one go wrong with such a cute little blog!

Such cuteness as Babyblue starts saving up money from the tooth fairy! Hehehehehe!

YoungFireDepartmentCrewTakingBreak2.jpgAs I slowly begin the surgical road to recovery and figure out my next step of many... our little Lazy River Town fire department has been kicking some serious butt! The entire team have been working non-stop, Around the Clock, going from one street to the next in order to clear everything out of the way so our roads can be safely reopened. These guys deserve a medal for doing such an amazing job with little sleep... but every bit of pride! These guys rock! 

What a picture perfect photo opportunity heading for treatment this afternoon as we drove past an exhausted crew.... still smiling, still fighting and still going strong in order to make sure our little Lazy River Town gets back to how it used to be before the flood. Same goes for the rest of our community as one-by-one our local parks, walking trails, biking trails and dog parks receive the help from many volunteers. What is there not to be proud of when living in such a tight-knit community, working together as one! The way it used to be... back in the good old days! 

ProudofOURfiredepartment1_800x367_.jpg

Those days... are now... today.

Thank you to those who have donated to help restore our historic little Lazy RiverTown. 

Much APPRECIATED! Smile

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 4:59 AM EDT
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