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The Road Before & After Surgery
June 26, 2017
Painting Away Depression...One Paint Stroke At A Time~
Mood:  bright
Now Playing: Day 2730-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I have a HUGE project ahead of me!

A deadline projected for October 11th.

PROJECTED...HA! Did I just make a funny?.

Since we have to remain here in our home of many lemons. Why not continue finding ways to take all of these lemons and keep turning them into sweet lemonade! There are enough reasons to also try my best by painting away my depression. One stroke of the paint brush at a time.

Many paint brushes with various cans of coastal country colored paint. HGTV paint is a must! That is the only paint I will ever use after seeing the end results back in Ohio. You sometimes, not all of the time. Get what you pay for! HGTV Sherwin Williams paint not only saves you time due to needing less paint. But it coats the first time with so many super vibrant colors to choose from! It also comes with a money-back guarantee. Just bring the paint can back to Lowes and they will either switch it to another color or give you a full refund.

Did that just sound like a super BLOG PLUG?! Yep, it did.

So far, I am finishing up one of our three bedrooms while also working on the bathroom and hallway. This house has seen it's far share of damage over the years. Strange enough, by once again listing to the house. We have found a few answers with regards to prior foundation issues. It seems not only did the prior owners have a friend do some work on the basement before placing the house up for sale. But today we put the final mystery puzzle pieces together and realized why one of the bedrooms suffered so much damage. Damage that was carefully and meticulously hidden by the prior owners. There is a wall in the basement where support posts were installed which lifted the bedroom directly above it. This is clearly why there was so much hidden damage. The rest of the foundation issues we are finally coming to realize is due to the prior owners most definitely not taking care of the house. In more ways than one!

We know who will be continuing to work on all of these repairs. Making sweet lemonade... Why of course...US.

I plan on taking things one day at a time. During my good days. Physically. Thank goodness for lots of do-it-yourself videos available online! So far they have come in very handy for myself and Eric. While I am patching, painting and doing other repairs inside our home. Eric has been busy trying to finish installing our new garage door, outside. The prior garage door was not only installed incorrectly by the prior owners. But they also never used any type of support brackets for the garage and garage door opener. It's no wonder with such poor installation that the prior garage door literally snapped on us, in half! PFFFFF! This is why having a home warranty is so very important! Some of the hidden damage has been able to be claimed. While other damage continues to be our responsibility. $$$ We had anticipated to vacate the house, but we had no where else to go. We also have no time nor thousands upon thousands of dollars to hire an attorney. Even if we decided to proceed ahead and represent ourselves, Pro Se. At this point with my health. We just don't have the desire nor the time.

I view life differently than most. God watches and so does karma. I have far better things to do with the ending of my journey. Sitting inside a courtroom isn't one of them. Amen.

While I paint the evenings away...One stroke at a time. My supervisor, Snoreo has been taking it easy on the job. Since the passing of his best friend, Littleblue, he has horrible separation anxiety. Where we go...Snoreo now goes. Grieving is different for all of us. So is depression. Keeping busy is important for not only our physical health. But also for our overall well being.

By the time October 11th rolls around...You can certainly BET.

This house will be looking COASTAL COUNTRY!

YEEHAW


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 28, 2017 7:08 AM EDT
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June 25, 2017
Celebration Sunday~
Mood:  special
Now Playing: Day 2729-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Talking about a day of celebration!

How about this absolutely BEAUTIFUL weather!

Fall in the summer...LOVING IT!!

Today was a picture perfect day to spend outdoors. Enjoying the super amazing weather! An early afternoon walk along the river trails and then it was off to our local dog park! This most definitely is Snoreo's kind of weather. We sure wish that our beloved Littleblue would of had the chance to enjoy these cool temperatures in the summer while playing with her best friend, Snoreo. But we know that she is still with us in spirit. More ways than one and with signs all around us. If only the summer brought with it days like today. Clear skies, low humidity and crisp, cool temperatures.

On our way back to the car we actually stumbled upon a rock that was carefully placed on a tree. A special rock with a super cute smile! A message on a rock to be precise! "Smile You Are Loved." What a very nice idea to paint happy images with uplifting messages on various rocks then place them around the park. This was just what we both needed after such a devastating month and very difficult point in our lives.

The little things in life that bring the most joy~

Today was our second week of celebration Sunday. An evening dinner outside on our coastalporchella! Heeheeheehee...That is my new name for our coastal country themed porch. A perfect ending to the most beautiful day. There are so many reasons to be blessed. I happen to be enjoying one of them this evening. A relaxing dinner for two and many reasons to toast to life.

There is always a reason to celebrate!

CoastalporchellaCHEERS!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 28, 2017 6:15 AM EDT
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June 24, 2017
Answers.
Mood:  not sure
Now Playing: Day 2728-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today I was able to collect my thoughts and emotions long enough to finally call back our lead veterinarian.

It has taken me a few weeks to finally reach back out with regards to questions about our beloved Littleblue. Some questions, I most likely had already known the answer. While other questions might always remain a mystery. Isn't cancer pretty much just that...A mystery?.

We are thankful to had two separate teams of veterinarians who worked together with Littleblue's care. As well our dear friend and amazing surgeon, Dr. T. I am still in the disbelief-grieving stage with the loss of our Littleblue. It hasn't been easy coming to terms with the way she had passed as we quickly had to provide assistance. Helping her journey to heaven as quickly as possible. Maybe that is what haunts me the most. How she passed. The images of her looking up at me while taking in her last breath. It terrifies me. It haunts me every single day. There are not enough painting projects in our home to completely erase those memories. The images of such a sweet, beautiful, kind and most gentle soul suffering while we tried to desperately save her.

While talking on the phone to our veterinarian. There seems to be a lot that we both agreed on with regards to such an aggressive cancer. Littleblue's inability at the end to breathe on her own. Each time they attempted to slowly bring her out of the oxygen chamber. Things only got worse. Littleblue's health took such an abrupt and unexpected decline, that no matter what both veterinarian hospitals attempted to provide as far as a new treatment plan. Nothing seemed to work. Littleblue only kept getting worse. Hearing her cry in discomfort and pain while we were walking into the veterinarian hospital is a sound that I can't get out of my head. The sound of extreme distress as she so desperately struggled to breathe even while in the oxygen chamber. Dr. T gave our sweet and beautiful 10-year old fur child a second chance at life. 30 days prior to her passing. It is still hard to accept that she is no longer around. We accepted that something could had most definitely happened during or right after her emergency surgery 30 days ago to remove a malignant and very infected mammary tumor. But cancer has no rhyme nor reason. What we had anticipated was just the opposite of what took our Littleblue's life. The inability to breathe is not what we could had ever anticipated nor prepared ourselves for emotionally while holding her close to my side. Enough room for me to get as close to her as possible inside the oxygen chamber with her favorite stuffed animal, Mr. Zebra.

We never had the opportunity to allow her at least a day of freedom outside of the oxygen chamber. A day to spend with her fur siblings and human parents. A second chance outside of the oxygen chamber to just hug and hold her before quickly being called back home to heaven. We never got the opportunity to bring her home. Only after her passing so the rest of our fur children could understand and begin their own process of grieving. Cancer is not only unfair, but most definitely the most unkind, inhumane suffering of all. The path of cancer is still to this very day. Poorly understood and most definitely very unknown. The unpredictability. One day a patient can be fine. The next day they are gone. Is there a key to the cure? I most definitely believe so! I believe it is locked away under some sort of hidden vault. Far away and far underground. There has been far too much money plugged into cancer research not only from the government, but far too many foundations and organizations.

There is a cure. But not of this earth.

I have had quite a few emails from those whom are bravely battling ovarian cancer. Questions regarding my treatments, the overall symptoms I had been experiencing, post-treatment side effects and if mine was hereditary. I have received other emails, but will answer them either personal replies or on a separate blog at a later date.

As of January 2017, these are the facts based off of research of other late stage ovarian cancer cases. Information based off of other patients diagnosed with stage IV ovarian cancer. First off, I would like to say that only 15 percent of women diagnosed with ovarian cancer are based solely off of genetic factors. The most significant risk factor for ovarian cancer is an inherited genetic mutation in one or two genes. Breast cancer being gene 1-BRCA1 or breast cancer gene 2-BRCA2. Ovarian cancer is not looked upon as solely being passed down genetically. 15% of all patients are diagnosed with ovarian cancer genetically. Hereditary. The chances of acquiring ovarian cancer from a single microscopic cell during surgical removal of one or both ovaries? You have a far greater chance of winning the lottery a billion times over than ever being diagnosed with ovarian cancer by a single microscopic cell or single microscopic fragment left behind from a prior surgery. My chances have now made me 1 out of 13 in the world. Out of all the women in the world. That should explain the rare chances of ever taking a walk in my shoes. But that is not to say that patient #14 will not soon one day be the next to take a walk in my shoes. Anything is possible. It can happen, but it's extremely unlikely. Giving rare cancer research the ability to closely monitor my case allows for medical documentation to be available for the next patient. For my team of oncologists and other specialists. There was nothing to go by as far as medical documentation from the other 12 cases. There were no medical cases that provided any type of treatment plan, or the patient did not survive.

As far as symptoms. I had experienced far too many strange and quite odd symptoms to list, 5 years prior to scans and other medical imaging picking up what appeared to be another ovary with an odd looking mass. It took over 5 years before the reappearing ovarian mystery was solved by a medical professor and his colleagues. It literally took me 17 surgeons and 3 mayo clinics before the mystery was finally solved. All by my doing and being proactive as hell in search of an answer. This after realizing that an ovary that was removed and verified by documented pathology reports literally grew back from a single microscopic cell. It took literally 6 years until the only option that would work was presented to me in writing via a contract to waiver all medical liability in order to proceed ahead with very rare and quite experimental oncology treatments. Ovarian cancer is generally never treated with radiation therapy. The gold standard treatment is first a biopsy, then surgery to encase and remove the tumor(s) and lastly chemotherapy. Rarely do they use radiation and only for late stage ovarian cancer when there are no other options. Where surgery is no longer an option due to the size, malignancy and complications with an ovarian tumor(s). There were no surgical options nor any other possible options in my unique and quite rare case. We went for the highest chance possible of destroying the bad cells in hopes of completely disintegrating the tumors. But when one tumor becomes larger than the size of a softball and is hidden among your intestines and other organs. Radiation may not even be the answer. There are some forms of cancer that can never be defied. I may or may not have all of my answers. But for what I have gone through and what I have seen transpire with my own beloved Littleblue's cancer.

We are a long way from ever receiving the cure. A cure for cancer that to this very day is probably and most likely locked up somewhere under ground. Keep giving money and they will keep it hidden. Money that has been given for decades to cancer. There may never be a cure.

Answers. I may have some. But on this earth. I will never have all the answers that I have so desperately been searching and fighting for. 

If I were a comic strip....Wonder Woman

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 26, 2017 9:07 AM EDT
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June 23, 2017
OOPSIE!
Mood:  d'oh
Now Playing: Day 2727-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Well...A big ole OOPSIE!

This entire week I have somehow been one day behind. I thought today was Thursday. Tomorrow...Friday. It's no wonder that we had to do a mad dash early this morning before missing my doctors appointments. Not one. But two. OOPSIE!

We had another round of some serious monsoon rain last night that lasted for over 15 hours. Of course, this meant another round of flash flood warnings that came across both of our phones through out the early morning into the late afternoon hours. Nothing quite like coming home to find the basement taking in water for the fourth time in less than 10 hours. Too much rain also equals some serious sink holes! We both didn't get much sleep. Today I was literally d-r-a-g-g-i-n-g... Try that on top of taking morphine to help with the pain so I can actually sleep. I was literally a walking zombie until early this evening when my body finally decided to wake the heck up!

I may not drink regular coffee, only decaf for this gal. But electrolyte water and other healthy organic juices really do the trick! As of right now. I am actually wide-awake! Ready to begin another round of nighttime painting. This evening I am going to attempt finishing the remaining two walls in the hallway. Then tomorrow is the start of both hallway closets and trim. I will be glad when the hallway is finally complete! I would much rather work on painting far larger areas of our home where I have more room to maneuver around with the paint brush and roller. 

Today I made a realization. That when sometimes you think that your team of treating doctors is complete. There is always room for another helping hand to help you with your journey. A helping hand to help make your journey as pain-free and functional as possible! My pain management is now being taken over by my new pain management specialist who promised me today that we will find a really great combination of what works best for me. Among still working with my gastroparesis and continued weight loss. I have to be careful of what I take since my immune system still remains extremely depleted and my body doesn't absorb many drugs the way they are intended to be made for pain. So far I am doing really well taking morphine in the evening to help with the pain along with getting some really solid sleep. The problem my other doctors have is trying to figure out some sort of medication to help manage the pain while I am awake. Without making me feel like a walking zombie. I have great faith that I am now in good hands with my new specialist! It might take him a little while, but I have a feeling that 24-hour pain relief is soon over the horizon!

That means more time to paintYAYYYY! 

Then time to relax with Snoreo via thanks to a kind neighbor for a very appropriate coastal country décor gift!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:38 AM EDT
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June 22, 2017
Feeling Special~Feeling...LOVED~
Mood:  special
Now Playing: Day 2726-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Dreams~Reality

I have been having some pretty vivid dreams lately. 

You know...The dreams where you wake up to not being certain if you are still dreaming or what you are witnessing is really reality.

My dream ended with someone or something in this huge light that had no left, right, up, down or ending in sight. The strange part of it all was that I could not figure out who it was or what it was?. All I know is that it was pure peace. No other words to describe. But...Pure peace.

To me, this could only mean one thing.

My entire day was filled with some of the most rare, once in a lifetime, moments of peace. If Heaven could come visit here on earth. Then clearly today I received the most precious visits and signs from Heaven of all. I have never felt so blessed nor at such peace.

It all started with waking up. Instead of doing the usual routine. For some reason I felt drawn to peer open the curtains to look outside. The huge living room window which is right above my head where I sleep on my couchbed. The same couchbed that I have slept on for several years. What was awaiting for me seemed more like something from a very beautiful dream. But this wasn't a dream. This was real. A very real, spiritually blessed day. I believe a day with signs from Heaven that brought with them some of the most amazing once-in-a-lifetime pictures caught on my cell phone.

Today...Is a day that I will always remember.

I personally have never seen a white dove. I have heard of folks who hire those whom have white doves to release at weddings and funerals. I have never yet to actually wake up ever in my lifetime to see such a beautiful white dove sitting outside my window. Then gracefully stand up and turn it's head to look at me. As if to say, "Hello, I am so glad to finally meet." A messenger from Heaven? They say white doves are most definitely a sign from Heaven. A messenger from God. Do you believe? I do. This was a first and most likely the last time this will ever happen in my lifetime. There are many theories, spiritual theories about those who experience a visit from the messenger white dove sent from Heaven. A mesmerizingly beautiful sign of peace and love.

Blessed? BLESSED!

Thankfully, I was able to not only capture a few pictures of the beautiful white dove, just peacefully sitting then standing up to watch me from the window. But I also was able to take a short video of the white dove stretching it's wings while watching me. It was almost, as if, the world stood still. If only for a moment. I felt nothing, but pure peace. But mostly, love.

The day went on to bring it quite a few once-in-a-lifetime moments. Signs I believe from Heaven. We received the beautiful angel urn later this afternoon that I have yet to open the box. Sunday. The day that I have always felt to be holy. A day to celebrate life and just take it easy. That will be the day next week when I will open the box. I am thankful to have the opportunity to make decisions for myself. Eric said he generally has in mind what my final wishes would be if I didn't have everything already in writing. But when it comes to choosing an urn. I knew the right one when I first saw it. A most beautiful serene angel urn. Appropriately named, "Serene Angel." Right on the outside of the box.

This evening as I was walking into the kitchen. I felt a warmness over my shoulder. As I looked towards it's direction, the box that contains my angel urn appeared to had taken on a life of it's very own. A most beautiful ray of sunshine reflected perfectly onto the outside of the box. Almost as if in the form of an angel.. Across the words, "Serene Angel."

Do you believe in messages? Do you believe in messages from our loved ones? Do you believe in messages from Heaven of peace and love? 

 Believe.

Forever. Blessed.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 23, 2017 3:57 AM EDT
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June 21, 2017
Let's Cut To The Chase...
Mood:  bright
Now Playing: Day 2725-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Let's cut to the chase!

With the help of some paint!

 

Do you think this painting would go best with palm green, cool beige or sand crème? 

 

 

Most definitely a cool ocean blue for the back bedroom! LOVE IT!

 

Coastal Country. Yes! That is our new house theme! 

 

Paint lemons into lemonade.

You will thank yourself later!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:40 AM EDT
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June 20, 2017
Lemons...LEMONADE!
Mood:  chillin'
Now Playing: Day 2724-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's taken me quite a few days to slowly ease up the pain from routine testing.

My last scan.

I have been doing my best to somehow maneuver through the pain. But it hasn't come without the need of taking new medication. Pain medication. Morphine. The good stuff. I have only been taking it at night in order to help me get some sleep. Between the largest tumor growing larger, other tumors slowly becoming larger and the uncontrollable intestinal pain from everything wrapped around in one huge mess. I feel pretty darn good about how well I have tolerated everything so far. The pain.

We have been only utilizing FMLA time when desperately needed. One never knows when the next complication might arise, as well no one is for certain how fast the tumors will continue growing. That is the hard part...Not knowing. One can't predict. No one can predict. We can only go by the symptoms and the need to somehow control the pain. On top of everything. I have a lot of things in my past that I need to put in the past. Permanently. My therapist feels that it is very important that I finally allow myself to go through all the emotions of what had transpired over the past several years. Most importantly...Over the past five years. I have bottled up a lot. Then there were other issues that I never had time to really react. I was too busy trying to stay on top of my health. I had far too many more important things to worry about. Like keeping up with the good fight.

I have been trying to think of an activity that I enjoy. Besides watching all of the beautiful wildlife during the morning and evening hours from my couchbed window. Something to help me process what I have gone through over the past several years. Ironically, I used to not like painting. But with age...Comes change of what one used to not like. But now...Enjoy. Painting is relaxing to me. It's also an activity that doesn't require much physical strength and when you need to take a break. You can take a break. Pace yourself. I had just finished up painting the rental home back in Ohio less than a year ago. But that was a rental. We now own a home. Not rent. I decided that come tomorrow. I will start the project of painting our entire house. Yes, the entire house. We have so much paint that we never used and I heard that most of the HGTV-Sherwin Williams paint can last up to a year. All you have to do is take it back up to Lowe's and they will place it into their machine which mixes it back to the same fresh color. As if you just bought the paint. We have several cans of various colors of paint that we never used, among a few gift certificates to Lowe's that we were going to use last fall.

My therapist suggested I start a new project. Looks like painting it will be! An entire house that has suffered a lot of damage over the years. But hopefully now I can finish turning the many lemons we have found into something new and fresh!

Lemonade!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 23, 2017 4:51 AM EDT
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June 19, 2017
An Uncomfortable Reality.
Mood:  chillin'
Now Playing: Day 2723-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I don't think there is a right blog mood for today. I am not sure anyone could really place a perspective mood when making funeral arrangements.

Chillin'

I guess?.

So... We had held off on final arrangements at the funeral home back in Ohio before moving to Indiana. Silly me assumed that since we found a Professor who figured out my great medical mystery, along with a team of oncologists. I wouldn't be needing to finalize my last wishes. AKA, funeral arrangements.

Maybe not so much funeral arrangements. More so called, private crematory service.

My final wishes placed in a Will have been in place for the past year. Only a few minor changes were made and notarized. What I haven't changed is the decision to not have a typical funeral visitation and service. For those who are fortunate enough, regardless what medical struggles or age, to pre-plan their own service. Put in writing all of their final wishes. Nothing is as hard and awkward as visiting your choice of funeral home to go over your own funeral arrangements. In my case... Crematory service plans.

Sure, this might be a very different kind of blog. But this is life. We are all guaranteed one thing in life. That is death. It is inevitable.

Eric was just as every bit nervous with high strung anxiety today, as he was a year ago. It's a good thing that I know exactly what I want, because if I left it up to Eric. He wouldn't had remembered a thing. HA! Looking over to see him barely flipping over the pages of various caskets was quite a sight. Asking him to go with me to look at the various caskets in the funeral planning room, along with seeing what involves private crematory services was no better. If Eric was a mist, he would had already quickly disappeared under the first door within sight! Heeheeheeheehee! I had to make a few funnies during the awkward, but necessary visit to the funeral home. In hopes of keeping Eric from losing it. Death doesn't scare me. Suffering as I have seen those that I love suffer up to their final breath. That scares me.

For me, finding out about private crematory services, along with the different types of caskets was fascinating. I didn't realize all of the different types of wooden caskets. Something simple, but pure. A wooden casket to me, is appropriate. Being buried under ground, to me, is frightening. The last thing we needed to plan, was private crematory service pre-planning. I want to make sure that my wishes are finalized and that Eric does not have to go through the stress of making decisions for me. I think the best thing we can all do for our partners or loved ones is to have our final wishes in writing. Not waiting until that decision has to be painstakingly made for you.

Somehow, over the decades. The way I view funerals has changed. Maybe by putting myself outside of the situation. Possibly by seeing things that I personally did not agree with nor feel as a necessity. I have been around those who have been sick. I have been there for those final weeks, days, hour, minute and even second. I have come to realize that human life needs human lives to be with them while they are alive.

This is my personal opinion. This is also why I have chosen a closed, private crematory service. I also do not believe in burial. I do not want to be buried underground. I would rather be with my spouse and fur children in a beautiful urn at home. Not a place where I am buried and hardly visited. My heart goes out to those who should always be respected. Yet, somehow their grave marker goes missing among overgrown grass and weeds. The forgotten. Thousands of dollars are spent for a typical funeral service. Flowers delivered to funeral homes that either are placed at the burial site or thrown away by funeral homes. Mind you, most cemeteries will throw a good majority of those flowers into their dumpsters. Sad facts, but they are true. I have been to my fair share of funerals. I have seen as well my fair share of those who fail to respect the person whom they came to pay their final respects. Those who sit on their cell phones or gossip about the person across the room whom happened to be paying their last respects.

When people are sick, they want to be surrounded by those who have loved them through out their lifetime, unconditionally. Not surrounded by hostility or spoken down about while they are with hospice. Trying to die with dignity and respect that they upmost deserve. I have seen it all and that all is why I have made my decision to have a closed, private crematory service.

One in attendance. Eric.

I not only refuse to suffer to the very end like those whom I have loved more than most will ever know. I also refuse to not have the power by choice to die with upmost respect, dignity and most importantly... Peacefully.

Integrity. It means having the ability to be honest with yourself in how you are treated. It means having the respect for yourself to demand respect.

 In the now and the after.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:43 AM EDT
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June 18, 2017
Father's Day
Mood:  special
Now Playing: Day 2722-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Father's Day

We were suppose to meet Dr. T out for dinner this evening. But after the past few weeks we felt it would be best to reschedule for later next week. I am still grieving the loss of Littleblue which would make it literally impossible to discuss at the dinner table without me breaking down. More like...Us.

The final scan has also taken us quite a bit back spiritually. I think we all get upset with God from time to time. I believe that it is only natural when life seems so unfair. I assume all the blessed grotto water in the world can't cure it all. Only the few get blessed. The worst part for us is being told and read the wrong report at the hospital last month. My doctors and oncologists notified the hospital after my final scan Friday. I am not sure what transpired, but I was told that all complications should be handled by only my current team of specialists. They made it very clear that one else should be handling my case. We are disappointed in being told the wrong information. The wrong report which made it seem like everything had disappeared since my last experimental oncology treatment. But in all reality...We both should had known better. Especially...Me.

During my last surgery they used prior scans placed on huge screens inside the surgical room. A meticulously, well thought out master surgical plan was put into place, far ahead of my surgery. But what my surgeons were not anticipating, was the reality of medical imaging not being accurate. During my first post-surgical recovery we were told not only did the surgery not go as planned. But a great lesson was learned for all in which even the best medical testing equipment is not error-proof. It took 5 years for a single microscopic ovarian cell to do the unthinkable, then turn into the most shocking of all. Ovarian cancer. One single microscopic ovarian cell defied the odds, growing back as well into a fully functioning ovary with deadly intentions. It's still scary as hell to realize that even the maximum dose of radiation therapy could not blast, burn and literally disintegrate it's targeted area. Somehow, I got defeated. Somehow, we all got defeated and that within itself is heartbreaking for not just for myself. But for everyone involved in my care over the past few years. The very first scan, two years ago, during an emergency room visit that accidently discovered a very odd and quite large mass.

The rest...I wish was history. But I am still in the present.

We decided to make Sunday each and every week a time to celebrate. Celebrating life with dinner for two on our newly decorated coastal theme porch. Bright, happy colors and the most perfect smiling sunshine. Even if today was designated as Father's Day. To me...Eric has been every bit an amazing, devoted, compassionate, loving fur Father to all of our fur children. Today we decided to replace our sadness with a few smiles. Cheering to life and a DAMN GOOD FIGHT! AMEN!!

Today there were no wigs, no hair extensions, no makeup. Just me. Just us. Sometimes I think being who you truly are, in the now, is what makes one hold the most power. It's rare to post the real me. Me now. What comes after far too many toxic oncology treatments that take the physical appearance right out of you. Treatments that not only make you lose a tremendous amount of weight. But as well make you feel as less of a woman. Sometimes as patients. We need to embrace what is and be proud of the fight we have so bravely endured.

Today... A reason to celebrate life.

LIVE-LOVELIFE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:43 AM EDT
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June 17, 2017
Not Sure.
Mood:  not sure
Now Playing: Day 2721-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Have the past two weeks only been...But a mere nightmare?

One could only wish.

Thank goodness for a new prescription to help me sleep! My mind was going a mile a minute last night into the early morning hours. Replaying everything in my mind that has transpired over the past few years. Medically, I have been defeated. Not an easy thing to accept. Having to go through various testing and being put in extremely uncomfortable positions being poked and pried has once again only aggravated the internal war within. Tumors? PISSED. Pain? OFF THE CHARTS!

Today was a day to recover. A designated day of some serious rest.

While Eric took on the many tasks we now have before us for over the next 3-4 months with the house. I took on the task of Trample World who left a few voicemails regarding the defective camper. Yes, of all times...Like I am really in the mood to deal with Trampled World whom never have contacted me since the camper's pulley system and faulty slides ricocheted right out of the wall. Honestly, I don't really recall what was being told to me on the phone. So instead I told them to call Eric. I had far bigger things to attend to...Like attending to some serious pain. Eric on the other hand was ready to let someone have it and needless to say, today was Tragedy World's day. Not only did they not tell us what was going on with repairs. But Eric found out they didn't even repair the damage sustained while the camper sat on two different Terrible World lots for two months. The far bigger shocker was Eric finding out that they only replaced one out of the three defective slides. Not all three, which we have photos showing the cables and pulleys ready to also SNAP! Surprised? We think NOT.

I have said it before and now as of yesterdays final scan. I will say it again. I have FAR BIGGER ISSUES to worry about than a defective camper that we won't be taking back nor will any campground. It's called, "Liability."

We don't expect to receive any further calls from Trampled World. Not in this lifetime and hopefully not in the next lifetime. As far as the camper. They can drop it off in the middle of the Ohio River. Then again...Even the Ohio River doesn't deserve to be tortured. Crazy how one single day can really put life into a far different perspective. The big things that we used to think were really big issues...They aren't so big anymore. What counts right now are the far more little things in life. The little things that will hopefully bring me a smile on the not so great upcoming days of my journey.

Like today.

Eric the country wildflower farmer calling me on my cell phone to come out to see if he sprinkled enough wildflower seeds in hopes of attracting all of God's creatures during the late summer and upcoming fall season.

WORTH A SMILE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 20, 2017 6:10 AM EDT
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