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The Road Before & After Surgery
February 6, 2018
WE'RE... B-A-C-K... Time To Hit The Road For Another HISTORIC Adventurer!
Mood:  celebratory
Now Playing: Day 2953-Chapter 3... Happiness~My Silver Lining

 

Talking about keeping busy before surgery!

There is no better way in my book to stay busy than to be offered by a private owner to check out their historic property. An old historic, 3rd generation farmhouse built in 1898. NO WAY was this gal going to turn down an amazing chance to investigate another historic gem of a property!

Keeping my mind and body busy before surgery... CHECK-CHECK!!

This historic property investigation has been in the making over the past four days. I have been in contact, back and forth via online and telephone between the current generation who owns the historic gem of a farmhouse located in Kentucky as well as the grounds keeper. The property has been kept closed and winterized for several months after what the current owners, a 3rd generation family believe is not one, but several spirits that have taken over the farmhouse. I did ask what they believe might had caused a shift in the homes environment, so to speak. I was told that after their Dad, Grandfather had passed and they began cleaning out all the contents of the old farmhouse. It was then that things took a very sudden turn and not always in a good way. Not only did the entire family used to be skeptics. But it was only until after cleaning out the farmhouse of it's entire contents did they then realize they were not alone.

I always inform private residential owners as well as those who are owners of historical sites... the less information you give me... the better.

I like to go into an old historic property with the least amount of history as possible. I don't want to assume anything that I was told as maybe my brain is seeing or sensing the same information given to me prior to arriving. Myself and Eric have visited many historical sites over the years. Doing so with the least amount of history of the location as possible. Just the standard walk-through as we will be given later this week by one of the family members who took over the historic family farmhouse. We were also asked to please not list the name or exact location of the historic farmhouse due to the family still using parts of the property for very well known fundraisers that are held through out the year. They believe that the skeptics might poke light or make fun of what they now firmly believe as those who reside, spiritually, in the historic home. However, we were given their blessing to document and share our findings. The family was then given the links to this blog and our new Podcast-Blogcast website.

An Indian Chief bigger than life, several spirits, some playful... others not. I also believe that it could very well be possible to connect with their Dad, Grandfather whom recently passed away and handed down the historic farmhouse to the next generation. I believe that anything... is possible.

There will always be skeptics, those who don't believe in the afterlife and that is fine. Everyone is entitled to their own beliefs and opinions. But when it comes to an entire family of skeptics, that are now believers due to first hand experiences, even so much as of documenting full apparitions walking across the living room... well... it's really hard not to believe. Anything... is absolutely... possible. Even in the afterlife.

I am beyond ecstatic to be able to share our first new historic adventurer of the year with everyone on our new Podcast-Blogcast website! So much more soon to follow as well on prior trips visiting some of the most impressive, yet historically b-e-a-u-t-i-f-u-l buildings and private residential locations. We are already scheduled for another private residential visit with an owner who has a very playful spirit that has been residing in their home for years. A secluded property right outside of West Chester, Ohio. More of that and this week's historic property visit soon to follow!

Don't forget to check out today's Podcast-Blogcast at:

 "Our Crazy Little Life"

We will be sharing video footage of our most memorable connection. An old historic bed-and-breakfast that we visited last year with a spirit whom refused to share their bed.

https://ourcrazylittlelife.podbean.com/


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 7, 2018 12:33 AM EST
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February 5, 2018
Rice Krispy Treats... Take 2!
Mood:  d'oh
Now Playing: Day 2952-Chapter 3... Happiness~My Silver Lining

 

You know, this gal can cook with the best of them!

However... when it came down to my first attempt last month of making Rice Krispy Treats... it was truly an epic fail.

How in the world can one create unique recipes that always end up tasting scrumptiously amazing! Even so much as my very first one-of-a-kind holiday fruitcake. My very first fruitcake that literally just fell right out of the bundt cake pan. Yet... I can't even follow a simple recipe for Rice Krispy Treats that actually turn out to taste... just like Rice Krispy Treats?.

Hmmmm... time for a do-over! Rice Krispy Treats... take 2!

Once again, of course I didn't really follow the recipe on the back of the Rice Krispy cereal box. BAH! I never did like following recipes and would always end up finding my own take on the same ole recipe. But with a twist! I personally do not like using a whole lot of butter. What I do use is not actual butter, but an organic-vegetarian imitation butter. It tastes a bit different, but in a far better way! Not as heavy, pretty light with a really clean buttery taste. It also melts a lot quicker than regular better and with zero lumps. Perfect for my second attempt at making Rice Krispy Treats!

Low... and... slow... making sure not to rush melting the marshmallows and three tablespoons of butter in a very large cooking pot. They say to cook on a medium setting, but I opted for the low-setting this second time around. 

So far... looking pretty good!

As far as my new cooking assistants? Well let's just say that today they decided to just sit back, watch and take notes. Hehehehehehe! Papa & Big LOVE kitty were the best cooking assistants on their bestest behavior!

My first attempt with mixing the Rice Krispy cereal once the marshmallows were 'almost' completed melted should had been my first hint. This time around, I made sure that every single marshmallow was completely melted, along with the butter. Nice and smooth! Next step was removing the large cooking pot off of the burner and slowly stirring in all of the Rice Krispy cereal at once, not one cup at a time.

Five-minutes off of the burner and then back on a low-heat setting for another 5 minutes. Stirring enough to make sure that the mixture did not stick to the edges. I removed the mixture off of the burner for the final time and then used parchment paper to line a large glass cake dish... not butter as instructed on the recipe. Really, the trick to having Rice Krispy Treats turn out their absolute best is making sure that the Rice Krispy's have enough time to cool off in the marshmallow and butter mixture. This was the difference that did the trick for me, the second time around!

Some folks like their Rice Krispy Treats crunchy and a bit firm. Then others... like myself and Eric can remember growing up and enjoying the really soft and gooey Rice Krispy Treats that literally melt in your mouth!

Sometimes it just takes a second-time-around for a recipe to turn out PERFECTO!

 Like my do-over that turned out this second time around to be a DO-right on a very classic, ooey, gooey, marshmallowy heavenly dish of Rice Krispy treats... YUMMY!

Want to hear Snoreo and Babyblue's take on yesterdays Puppy Bowl XIV? Make sure to check out todays Podcast-Blogcast audio on our new website!

"Our Crazy Little Life"

https://ourcrazylittlelife.podbean.com/


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 6, 2018 3:28 AM EST
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February 4, 2018
Well... Looks Like A Little Someone Took Over Super Bowl Sunday! :)
Mood:  happy
Now Playing: Day 2951-Chapter 3... Happiness~My Silver Lining

 

What a great way to kick off Super  Bowl Sunday!

While other folks are out celebrating with huge festivities, lots of food and plenty of beer... not I.

This evening was a wonderful opportunity to bundle up as if one was heading out to hike the great Antarctic! Time to hit the walking trails along the river! There is always something quite magical about the energy along the river... even enjoying the very first snowflakes gently falling from the sky as I came back home, peacefully content.

Eric had planned on watching the Super Bowl, however, Babyblue had other plans in mind while claiming the television remote.

PUPPY BOWL XIV

Hehehehehehe! I mean come on now... who could say no to such a cutie patootie! With her super comfy winter sweater on and a square stuffed animal friend in hand (paw), Babyblue enjoyed her very first Puppy Bowl! Of course, Snoreo was close by... however out of embarrassment of watching the puppy bowl, he quickly hid from the camera lens. Hehehehehehe!

Life... it truly, undeniably, absolutely is... the little things that bring the most joy to my heart~

**Join us for Babyblue's first Puppy Bowl video on our Podcast-Blogcast... Our Crazy Little Life**

https://ourcrazylittlelife.podbean.com/


Posted by GastroparesisAwarenessCampaignOrg. at 11:19 PM EST
Updated: February 4, 2018 11:24 PM EST
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February 3, 2018
Pay CLOSE Attention To Your Dreams! :)
Mood:  lucky
Now Playing: Day 2950-Chapter 3... Happiness~My Silver Lining

 

Talking about sweaty palms!

It sure isn't my first rodeo launching a new website. But I sure didn't expect to hit as many glitches in such a short amount of time. Finally... the website is now up and running, yet, far from complete. It's only the beginning of something far bigger and super EXCITING!

What hasn't been exciting over the past 24-hours is the new medication. Another new experimental, therapeutic medication that I will be taking over the next few weeks. At least up until my scheduled surgery date. I really didn't want to start another new drug, especially anything that is still in the experimental phase of sorts. But somehow, someway, I found the courage within and decided to give the medication a try late yesterday evening. The first initial hit with side effects began early this morning. But as always, I once again found my strength within and pushed through the discomfort. This gal has lots on her full plate and not everything is medical related. There is still a really super exciting production in the works which will pick up later this spring. When you have a really amazing idea and a really compassionate, beyond understanding producer, anything and everything is possible! Even... while still battling the medical demons within.

Life doesn't stop, just because your sick. No way. No how!

A little sneak peak on a new restaurant concept that is sure to bring lots of smiles and sheer delight! You know those really vivid dreams... the ones where you wake up and remember every single little detail. The really big dreams in full color! I had a dream many months ago. A very vivid dream, in color, that led me to reach out to an investor. That same dream also had me realizing another goal of mine as I represented myself and finally acquired a temporary work permit while still fighting my way to one day also... embrace a cure. It may have taken me awhile to get through the medical hurdles so I could continue pushing forward, onward and one day soon... realize that dream. A really amazing dream!

Right now, I have other important items on the ole agenda. Surgery in less than 3 weeks, followed by 15-weeks of important outpatient therapy. I plan on multi-tasking to the highest of my ability! Even while recovering from surgery and yes... even during outpatient therapy. There really is nothing one can't accomplish with a laptop in hand and a dream in their heart~

YOU have all the reasons in the world to achieve your grandest dreams.

Imagination+Innovation=REALIZATION

 


Posted by GastroparesisAwarenessCampaignOrg. at 1:02 AM EST
Updated: February 3, 2018 1:09 AM EST
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February 2, 2018
WELCOME TO THE OFFICIAL LAUNCH OF OUR NEW WEBSITE!
Mood:  celebratory
Now Playing: Day 2949-Chapter 3... Happiness~My Silver Lining

 

JOIN US AS WE CELEBRATE THE LAUNCH OF OUR NEW WEBSITE!
 
"OUR CRAZY LITTLE LIFE"
 
**NEW PODCAST~BLOGCAST**

It's been a long time in the making as we transition from our blog of many years at the Gastroparesis Awareness Campaign website, to now this amazing new site here at PodBean.

I know... I know... change can sometimes be a bit hard, but I am so glad that you could join us on this new adventure with so many more BLOGSTASTICLY FUN features! Endless capability for photos, audio and even my latest new hobby... videography. Talking about a funtastic, superbloggy, videotoggy, audiolicious blog on steroids of sorts!

Time to get comfy, grab a blanket and your favorite beverage and CHEERS to this crazy adventure in this place we call, life. 

Get ready for lots of smiles & plenty of laughter!

 WELCOME TO OUR CRAZY LITTLE LIFE!

  https://ourcrazylittlelife.podbean.com/

 


Posted by GastroparesisAwarenessCampaignOrg. at 11:28 PM EST
Updated: February 2, 2018 11:31 PM EST
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February 1, 2018
We're UP! Then We're D-o-w-n... We're UP?.
Mood:  d'oh
Now Playing: Day 2948-Chapter 3... Happiness~My Silver Lining

 

Not only does life... unexpectedly happen. But so do unexpected issues... major first day new website release crashes.

PFFFFFF!!!!

All went well early this morning with selective online invites to those first to view the new website. All was going A-OK, until around 1pm then... POOF!.. that's all she wrote.

I anticipated issues within the very first week for our new website. What I didn't anticipate was such a major crash within the very first few hours. GEESH! Yes, it does come with the territory when launching any new website. It's only to be anticipated, because let's face it, life happens. Especially when least expected. If anyone knows how this goes, it's little ole me.

So... I have been working over the past several hours with the software developer and a few others within the new website serving host. I am very happy to say that issues should be resolved by early tomorrow evening. YAYYY!!

Thanks to those who have already given their HIGH MARKS of APPROVAL! Quite a few chuckles and a whole lotta laughs among those in cyber world! Even those who just wanted to let me know, "Hey! I can totally relate to a few of your Podcast-Blogcast episodes!" Your much appreciated words of approval let me know that we are most definitely onto the next best phase of a super blog on steroids so to speak! Hehehehehehe!

Thank you everyone for your ongoing patience. I hope as well you too enjoy the new website with all the bells and whistles!

You know what time it is tomorrow...

 TIME TO CELEBRATE with colorful hats, fancy blowouts, sparkling candles and the biggest cupcake one could ever dream of and more!!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 2, 2018 3:24 AM EST
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January 31, 2018
The 20-Day Countdown... Begins.
Mood:  rushed
Now Playing: Day 2947-Chapter 3... Happiness~My Silver Lining

 

Thank goodness for Eric taking a message early this morning when central scheduling called to go over my surgery date and other information at 8am. After some much needed rest, I was finally able to call them back at 3pm.

It took me awhile to finally get to sleep. I have yet to get feeling better, but was only told it would be expected. Lots of rest and just taking it easy until surgery. We really had hoped for surgery to be scheduled for next week. This way I wouldn't have too long of a chance to allow my brain to run wild with surgical possibilities and other 'what-if' scenarios. I would much rather just get this surgery one and done, ASAP! But instead... we were given a date of February 20th.

The 20-day countdown... begins.

As of late this evening. We are actually thankful to have 20 days to figure out a game plan. During a very lengthy phone call with the surgery department, I was advised to begin a medication given to me by my specialist yesterday. Quite scary medication that honestly... I rather not take nor put myself at risk of far-too-many side effects. But the unfortunate part of this, is that this time, I have no other choice. By 8pm, I finally had the courage to get my brain face on as I began the first round of medication. What I had yet to tell Eric was the 15-weeks of outpatient therapy that I will have to endure, regardless of the outcome of surgery. A 15-week course of therapy, once a day, 7-days a week. That news delivered to Eric late this afternoon... well... to say he is still shocked would be an understatement. We have already maxed out leave time with his employer. Another unfortunate, yet unexpected turn of events regarding an ongoing battle with my health. I am now finding myself feeling as if I have become a huge burden. It's not a pleasant feeling dealing with health issues that are still spiraling out of control. Far out of my own control. This is where great counseling helps one to put things into perspective.

I have to remember that what is going on... what has been going on... what is taking place... what will be happening during and after surgery isn't my fault. No one asks to be sick.

Outpatient therapy to help filter out my kidneys and bladder will be done back across state lines for a course of 15-weeks, 7-days a week, 4-5 hours per daily treatment. To say that I am feeling a bit overwhelmed by all this news, would be an understatement. I have already handled more than any normal human being could ever handle in a lifetime. Yet, it still isn't the end of my lifetime. I am living, breathing and through it all, still somehow fighting. How in the heck do I do it? With the help of my guardian angels. It is something that I have always believed, deep in my heart, to be true.

Over the next few days, while I am doing my best to deal with another new course of therapy and the medications not-so-welcoming side effects. Eric has already begun doing his best to figure out how in the world we are going to pull everything off in a matter of 20-days. A green letter written to the Sheriff requesting donated hours, generously donated by fellow employees, coworkers that over the years have become good friends. We don't do well asking for help. I assume that's where pride somehow always gets in the way. But life happens... everyone at some point of their life... sometime in their lifetime... can't win the battle alone. There will be a time, in everyone's lifetime, where asking for help is perfectly... okay.

Eric will not be able to work during the 15-weeks of outpatient therapy, back across state lines, in Ohio. It's going to be hard enough driving back and forth, especially when not feeling well. But somehow, we will find a way to make it work. We always have... always will. Maybe the new website that will be officially released tomorrow really does have a place in this current part of my journey. In more ways, than one.

Another means to find a reason to laugh and share a smile. A therapeutic way to get through the rough road ahead. 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 1, 2018 2:03 AM EST
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January 30, 2018
Stable... Unstable.
Mood:  quizzical
Now Playing: Day 2946-Chapter 3... Happiness~My Silver Lining

 

What Eric could had used more of this morning was some serious coffee! Another far-too-early morning wake up call for my surgical procedure. All in 'hopes' of keeping my functioning kidney out of harms way from, once again, getting blocked from the reappearing ovary and large ovarian tumor. A surgically placed stent to fully free my left ureter tube that helps drain my kidney.

But as with life... expect the unexpected.

Rewind a few days, back to results from an emergency rescan. Hoping to make some sort of sense from existing and new symptoms. Far too much blood in the urine. Way too much uncomfortable pain. Enough nausea which doesn't allow for a need to consume much, if any protein shakes or other valuable daily nutrition.

17 surgeons later... three big specialty hospitals-mayo clinics later and maximum experimental oncology treatments. Yet, everyone has their own respective opinions regarding an ovary that has magically re-appeared after pathology reports show it being surgery removed several years ago. Yet, one single microscopic fragment that grew over the course of several years has done more than enough damage that still to this very day... continues. ORS-Ovarian Remnant Syndrome, one in now 13 in the world that still has gone above and beyond all the other 12 documented cases. Not only did this bizarre, magical ovary of many sorts grow back from one, single, microscopic fragment. But has once again defied all odds of being placed in a deep, permanent state of sleep. Last weeks emergency scan shows not just one magical ovary producing follicles. But now my right ovary is awakening from the deep radiation sleep. Another three follicles appearing on the big screen which makes for two separate ovaries, functioning on two different cycles. Not only is this unheard of by most, but as well it's the nightmare of sorts that my team of specialists were hoping would never happen... again. Which is why fast-track, maximum course of radiation therapy and a few other experimental treatments were used, yet still failed to shut down the feeding blood supply to this medical mess.

Stable... Unstable.

The only good part of the page upon page of reports was with regards to one word, 'Stable.' This means that the largest tumor and smaller tumors have remained pretty much stable since my last scan. They have only grown a slight bit, not much since the last scan. However, there is still an active feeding blood supply to all areas of the tumors and magical re-appearing ovary. Stable... is a most welcoming and encouraging word for someone like me with a very rare medical case.

What isn't a very welcoming nor encouraging word... unstable.

Once arriving for my surgical procedure this morning. I was asked to fill out a few additional forms of needed medical information and other releases. They also asked if I could provide a morning urine sample, which I only thought was possibly routine before the procedure. Then we were whisked away to the waiting area before being directed into an examination room, literally waiting a little over an hour for my specialist to come in and delivery the news. Expect the unexpected... it comes with the territory.

This mornings surgical procedure to place a stent got canceled as labs showed a far larger amount of blood coming from my kidneys than just last week. There were also cells, not good cells, that were detected which gave my specialist no other option but to cancel the procedure. We were then told the other unexpected news, "I am going to have to schedule you for exploratory surgery and biopsy of your bladder and kidney. We have a very high suspicion of cancer within the bladder or possibly the left kidney." Not the news anyone in their right frame of mind wants to hear. Myself and Eric were in no way, shape or form ready for that kind of news nor having the anticipated procedure this morning literally canceled within a last second notice.

Cancer? Again? Bladder? Kidney?

I just successfully beat skin cancer. I would never dare to say that it was an easier form of cancer. But instead, I would rather say that the location and options to treat skin cancer are far greater than other types of cancers. To now come face to face with another unexpected turn is not only frustrating, but downright frightening. I went from one report showing tumors... stable. To now other aspects with regards to labs and reports... unstable.

What about the new third option with regards to making our move out west this year that much easier? As of this evening, we are still trying to come to the realization of cells so out of control that things have now gotten way out of control. We are now facing a far bigger surgery. A major surgery with regards to two completely different types of cancer... or is it really? In my mind, if this doesn't go very well since labs are now worse than just last week, this is all connected. Things like this just don't happen. No way. No how. The only silver lining I see in today's news is hopefully things haven't had the chance to go beyond the point of medical intervention. Once again, another specialist who looked up at us across the desk with their computer, letting us know that any doctor who brushed things off with regards to my unique medical case and ongoing symptoms didn't help matters. If anything, they allowed things to get worse. Medically speaking, nothing got better. If that is so much as they had hoped or planned.

Maybe Mother Nature will bring us a huge snowstorm as they have predicted to possibly come visit us here in the county later this week. I could use a few smiles or two or three or four.

 


Posted by GastroparesisAwarenessCampaignOrg. at 10:31 PM EST
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January 29, 2018
Guess Who Just Turned 6-Months Old! :)
Mood:  party time!
Now Playing: Day 2945-Chapter 3... Happiness~My Silver Lining

 

Why look who just turned 6-months old today!

Cutie~Patootie~Babyblue!

She may be all girl, but still loves to hang with her best friend Mr. Snoreo. A bit terror on all four paws at times... but still the ultimate CUTIE~PATOOTIE!

So much for the 40-45 pounds that our veterinarian guessed as far as her max weight. Babyblue is already just a few pounds shy of 40 pounds at 6-months old! We have a really strong hunch where this could be possibly going... BIG DINOSAUR PUPPY! Hehehehehehe! Just like our Snoreo who is pretty close at maxing out around 103 pounds. That's one GINORMOUS puppy! Together they make for one huge adventurer! Especially with Eric trying to wrangle both of them while opening up the gate at our local dog park. Babyblue is already past the point of me trying to handle her while walking. She is already far too strong for me and way too rambunctious! It's a good thing that both her and Snoreo have become best of friends and such great playmates while burning off lots of energy in and out of the house! What we need next is a fenced in yard after having to tear down the newly (poorly) installed fence only a few months after purchasing our home.

Our new third option with regards to our next and final move out west is still in the works. At least with this third option, there is a fenced in backyard. Tomorrow is my scheduled surgical procedure to put in the stent. If all goes well, we should be on our way to taking advantage of a third option which will allow our move out west this year to be that much easier!

But as with life... expect the unexpected. No matter how meticulously things may be planned. Life can change in an instant. Life happens and so do change of plans.

What will never change is the unconditional love and endless hugs from all of our super affectionate fur children. Even from Mr. Big ole lap kitty, Papa.

Love doesn't get any better than happy purrs and smiling eyes from our big and small bundles of joy~ 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 30, 2018 9:08 PM EST
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January 28, 2018
A Most Beautiful Star~My Guardian Angel *:)
Mood:  special
Now Playing: Day 2944-Chapter 3... Happiness~My Silver Lining

 

When the stars align... amazing things start to happen for a person.

A most perfect star, my guardian angel, has been greeting me lately during the late evening hours. Looking outside our cloud themed room to see one, single, solitary, most beautiful bright star twinkling above me from the heavens.

Allowing the wind to direct my sail in the right direction. Allowing fate to guide me the way. When something is truly meant to be... it will happen on it's very own. I always felt this to be true in life. When you let go of the reins of trying to control your life. Giving in to a far higher power... my guardian angel. That single, most beautiful twinkling star, greeting me each and every night was helping to guide me in the right direction.

When the stars align... amazing things will start to happen in the most unexpected ways.

Decades ago... I would had never embraced so much change. Constant change that mostly has been out of this gals control. But with age comes wisdom and plenty of lifetime experience. I now welcome and embrace change, all change that may come before me. I have learned to fully embrace change and not to fear taking those huge leaps of faith.... because in all actuality.... change can be a really good thing! Change can be the most rewarding gift of all.

There are big changes that have already begun to quickly unfold this morning for our entire little family. Positive change, welcoming change, exciting change, the most HAPPIEST of HAPPY change! By letting go of those reins and allowing life to take the wheel. I have come to realize that when things are meant to be... they truly will happen.

Never doubt, always believe and have faith.

Allow your guardian angel to guide you the way~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 29, 2018 1:34 AM EST
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