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The Road Before & After Surgery
December 6, 2017
"Oh Christmas Tree... OH Christmas TREES!" :)
Mood:  happy
Now Playing: Day 2892-Chapter 3... Happiness~My Silver Lining

 

It's not only beginning to feel a lot more like Christmas outside.

But as well... inside!

"Oh Christmas Tree

"OH Christmas TREES'

I finally was able to finish putting up the last tree and few totes of Christmas decorations this evening. YAYYYY! It's most definitely feeling a lot more like the holidays inside and outside of our house!

We actually put up more decorations this year than what we could muster up last year. Last years holiday vibe was dark and dreary due to the house being left by the prior sellers as one huge repair mess after another. Maybe this year I felt more festive due to the house now having a much more happier vibe and energy. We finished what we could outdoors for the season with repairs. This means what little that is left will have to wait until after the winter season. There really isn't much left to do indoors as far as repairing, repainting and redecorating. This gal busted her booty over the past year! My body is officially burned out from flipping our house of many hidden lemon gems. Time to take it easy for the rest of the year and upcoming winter season. I don't plan on adding any additional furniture. So until we sell this house and look forward to a new home, the next and final leg of our great moving journey. What little we have in the house will just have to due for the time being.

Less is MORE!

With less furniture means even far more room to set up all of our Christmas trees. Five Christmas trees and 5 totes of holiday decorations. This was by far the quickest it has ever taken me to put up all of the trees, lights and other decorations. Most of our lights actually worked from last year. Funny how they typically only last through one season. Compared to the monster bulbs from back in the day that would last from generation to generation. LED lights are really nice and energy efficient. But they really don't withstand the winter weather, wind and rain. I'm not so sure if Mother Nature will be delivering us a white Christmas. But one can still hold onto hope of waking up on Christmas morning to see beautiful snow flakes slowly falling down from heaven. L-O-V-E SNOW! I am a snow junky! HA!

I love Christmas. Pretty much everything about the most magical time of the year. Everything is so much more peaceful outdoors, which means a far more relaxing ambiance of holiday decorations, beautiful trees and twinkling lights in the evening, indoors. Christmas time for me, means a chance to sit back, relax and reflect on all of my blessings. A time to spend smiling, laughing and enjoying the far littler things in life with our little family. Even a nice cup of hot coffee, chocolate chai tea and even chocolate peppermint cocoa. Ahhhhh.... this is the most WONDERFUL time of the year for me!

#Family #Memories #Happiest


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 7, 2017 11:23 PM EST
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December 5, 2017
What's For Dinner?
Mood:  hungry
Now Playing: Day 2891-Chapter 3... Happiness~My Silver Lining

 

What's for dinner?

Why of course... something healthy and super tasty!

Today I got to enjoy some time in the kitchen doing something that I've always enjoyed...

Cooking

Continuing on the path of far healthier food choices for not just Eric, but our entire little family. Organic, low sodium and MSG free! That's my kind of cooking!

Even Babyblue enjoys tasting the new organic line of homemade Amish jarred goodies; Mango Berry Salsa, Mexican Cinnamon Apple Butter and Triple Berry Preserves. MMMMM!
 
This little girl loves organic peanut butter that actually makes for some simple recipe bone treats for her and Snoreo... Hehehehehe! Every bit the splitting image of our beloved Littleblue. How ironic that she also learned the art of eating from a spoon at the very first try! Now every time she hears me in the kitchen, I am quickly greeted with two cute little paws up on the baby gate. Hehehehehehe!
 
I have a few new recipes in mind for this upcoming weekends holiday baking. Of course... fruitcake! I plan on a few new creations this year, although Eric still insists that my traditional homemade Buckeye Candies should be on the list. Hmmmm.... I thought I left the Buckeyes back across state lines in Ohio last year? HA! They were even left out of the playoffs. A pun from Eric on that one!
 
But then again...

HOW DID YOU ALL LOVE THOSE STEELERS!!! WOO~HOO!!

Time to get my creative cooking genes ready for a weekend of holiday cooking bliss~
 

Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 7, 2017 9:41 PM EST
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December 4, 2017
The Legend Of Santa Paws'! Written By Little Ole Me :)
Mood:  happy
Now Playing: Day 2890-Chapter 3... Happiness~My Silver Lining

 

You better watch out

You better not howl

You better not pout

Or start to meow

Santa Paws' is coming to town

Did you just say... SANTA PAWS'?!

Why yes, I did! Santa Paws' really does exist!

These photos truly do say it all! Not only do they warm your heart. But as well bring an instant smile that just can't be denied!

Ecstatic fur children tickled pink that Santa Paws' was able to pay them a visit this evening. Hehehehehehe!

I wasn't sure how Snoreo was going to take seeing Santa Paws' with it being such a long time since paying him a visit last year on Christmas Eve. That huge smile on Snoreo's face is not only priceless! But it goes to show that Santa Paws' really does bring a smile to each and every good little puppy and kitty in the world. Those really special fur children who have been exceptionally well behaved all year long as they anxiously await the arrival for Santa Paws'!

This is BabyBlue's first-year meeting Santa Paws'. As she was getting ready to doze for a early evening nap. She was awakened by some commotion and chatter in the kitchen. Seems Santa Paws' was able to take some time out from his upcoming busiest season! Delivering toys to all the good little fur children, girls and boys.

This evening was the most happiest yet! Being able to see how much joy and sheer delight a visit from Santa Paws' brought BabyBlue, Snoreo and the rest of our fur children.

How silly can one really be to believe that Santa only delivers toys around the world for human children. No way, this is most definitely not true! I heard from the elves myself that Santa Paws' really does exist! The stories are true! Just like Santa Claus does for children, Santa Paws' rides his sleigh around on Christmas Eve delivering gifts and all sorts of toys for all the good fur children who live with their human families.

As the legend goes and his story continues on...

There's a special kind of Santa named Santa Paws', who visits all of God's creatures both big and small.

Instead of just milk and cookies. You know what this means? Extra toys and treats filling our fur children's stockings this Christmas Eve!

Signed, Kimberly/H

-Little ole me


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 5, 2017 7:58 AM EST
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December 3, 2017
HAPPY~HAPPY~HAPPY!
Mood:  bright
Now Playing: Day 2889-Chapter 3... Happiness~My Silver Lining

 

This image never gets old... love from Big LOVE~

One would never have guessed such neglect and abuse this little guy had been through for the very first year of his life. We not only rescued him, but he rescued me. Unconditional love, happiness and joy that he has brought to our entire little family during the times when we needed it the most. Big LOVE reminds us of what is most important in life... unconditional love and family.

Next week marks the start of not only finishing all of the holiday decorating and putting up the trees. But as well my most favorite thing before Christmas... holiday baking!! YAYYYY! Did I ever tell you how much this gal loves baking! Especially during the holiday season with all of the super yummy smelling scents of homemade delicious treats. This is the year of out with the old and in with the new! I am not so sure if buckeye candies will be on the list of holiday treats. But I do plan on making something new this year with my very own spin on the popular holiday cake... Fruitcake!! No... not the kind that is hard as a rock and can be used as a boomerang. HA! I plan on creating a recipe that is super moist, not of the same ole ingredients used in the classic fruitcake and is actually easy on the tummy. I can't wait to share my new creation next week! Bring on the good days! Time for holiday baking with my new assistance this year... Beary kitty. Too darn stinking cute!

HAPPY~HAPPY~HAPPY

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 7:19 AM EDT
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December 2, 2017
The Clock Is Ticking!
Mood:  sharp
Now Playing: Day 2888-Chapter 3... Happiness~My Silver Lining

 

What a b-e-a-u-t-i-f-u-l morning here in the country!

Even Papa kitty is enjoying the warm sunshine, clear blue skies and gentle breeze~

I woke up feeling blessed to start off the day with much more tolerable pain... YAYYYY! The good ole morphine family of pain medication seems to be doing the trick, but I can't take it 24/7. I am still trying to find a balance between the pain medication and prescription high calorie shakes. I wake up feeling like a zombie and instantly grab a shake for a quick pick-me-up and extra nutrition. It's a tough balance between the two, but there really hasn't been anything yet that I haven't found some sort of solution. I have been through it all and with those experiences comes an abundance of education on valuable nutrition! It's always a learning process living with Gastroparesis. Adding cancer just makes things a bit more challenging. But as always, this gal is up for the challenge! Bring it!

It's been almost a week since we have been able to hit the trails as a family. Eric has been keeping busy making sure that Snoreo and Babyblue still get their daily exercise and a breath of fresh air at our local dog park while I am back at home resting. But today was a good day! What an amazing feeling to be able to get my walking shoes back on this afternoon and later in the evening to enjoy some fresh air of my own out here in the country. Ahhhhhh... air... so refreshing! We also finally got to stop and take a few pictures of the beautiful mural that has been a painting project in the making of it's very own over the past few months here in our little, lazy, river town. Talking about a magnificent piece of art! The side of a very historic building has now turned into this incredible masterpiece!

I love little old towns with a ton of history. What I love more is the little, lazy, river towns that don't feel the need to keep up with the big cities. It's a shame to say... but it seems this little piece of history along the river might be only a mere few images left of what used to be a little, lazy, river town. A tight-knit, family oriented community. Not only are the houses going up for sale around us lately at record speed. But today it seemed as if we were the last ones to know what really was about to transpire here in the country. A piece of history and beauty here among the wooded hillside went up for sale this evening. 7+ acres with a local real estate company. And guess where at? Right across the street! Yep... you know what that means...

TIME TO MOVE FULL STEAM AHEAD WITH SELLING OUR PROPERTY!

Myself and Eric have been really getting into it lately regarding this lemon of a gem home here in the country. I have put so much heart and soul over the past 12 months since purchasing this house. That includes far too much time repairing, repainting and redecorating our home... that it isn't even funny. It's also not becoming very funny to say the least with Eric's mentality towards addressing issues with the bank regarding errors of not reporting monthly payments to all three credit bureaus. It's not an issue of Eric being overwhelmed, because life is always going to present challenges that we all will have to deal with from time-to-time. It's more about Eric not being responsible and taking the reigns with serious matters and issues that involve our little family. That includes my stepson, little E. This gal has busted her booty on this house and even on days when I was sick as hell with very limited energy. Something had to give as I firmly planted my foot down on the ground today. Eric doesn't have much time to get himself together and start thinking logically. I can't do everything on my own anymore, solo. So today is the day to start showing me by actions. Not telling me with words. Brushing off important matters isn't going to continue flying with me. I have my fur children, little E and myself to now worry about and that means Eric must now start acting responsibly.

We now have a far bigger challenge ahead of us as the race to sell our property begins now, today, at this very second. The 7+ acres of land could get bought by someone or an investment company at any time. Our little, lazy, river town committee has already approved the land to be used for a new home development, condominiums and section 8 housing. This means if Eric doesn't get his head on straight and brain in gear, our home could quickly depreciate in value. This means you can forget trying to sell it, whether alone me living here among constant future construction. Medically, we moved on the wooded hillside here in the country for some peace and quiet. Far, far away from large developments back across state lines in the city. Needless to say... my anxiety has skyrocketed after seeing the sale sign go up on the wooded hillside this evening. All 7+ acres of gods country... soon to be gone.

That my friends... is a sad reality when the all mighty $$$ within a family, means more than the lands history.

We aren't the first ones in shock and sheer disappointment with the sale sign going up today on this huge piece of property. There are many of those scrambling to also get their homes up for sale before a big developer starts bringing in the loud-as-hell construction equipment. As for Eric. He was given an ultimatum. He either puts his big britches on and starts taking things seriously. OR... he will be paying for an apartment rental come early spring if the land sells before he gets things straight with the bank and mortgage company. The constant loud construction noises and daily banging from hammers and other tools was already a huge problem back in the rental property where we lived before buying this house here in the country. That was before radiation therapy and other chemotherapy treatments failed to cure or provide me any sort of long term relief. Now just imagine dealing with all of that same construction noise now. Amplified 100 times more on top of a very large wooded hillside that already echoes noises that are easily able to be heard inside and outside of our property. With far larger and much more angry tumors through out my body...

No way! No how! 

It just won't work for me. It's unfortunate, because I didn't ask to be sick. But I can't take living across the street from a major construction zone either, so something has to give. I have done more than my fair share of hard work, physically and mentally over the past 12 months with this house. That doesn't include dealing with highly combatable immediate family, those who would rather run to the courts, then sit down like normal adults and address their issues. Now it's Eric's turn to step up to the plate. He either gets his head on straight... or he will be working a lot more overtime come spring, so I can have some peace and quiet while renting an apartment till he gets the issues resolved with the bank so we can sell off and move to a house that isn't located within a major construction zone.

Time will tell with 7+ acres now officially for sale across the street from our home here in the country.

Eric... the clock is ticking!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: July 5, 2018 7:21 AM EDT
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December 1, 2017
CHAPTER 3... HAPPINESS~MY SILVER LINING
Mood:  celebratory
Now Playing: Day 2887-Chapter 3... Happiness~My Silver Lining

 

Today marks the official beginning! 

 

CHAPTER 3... HAPPINESS~MY SILVER LINING

 I am super excited to begin this next chapter of what I hope to be, many silver linings!

 A personal journey sharing the ups, downs, ins and outs of this crazy place we call... life.

Thank you to all the permalink readers and those who never seize to amaze me with your own personal stories. Thank YOU for inspiring me through out my journey! 

Who would had thought we would now be on chapter 3 and under the wings of a very reputable publishing company. Next year is going to be one very exciting year! I can not wait to share the next phase of my journey and network production in the making! It's almost as if I really came full circle! What a blessing it has been over the years as once again, Viva Las Vegas... here we come!

There aren't enough kind words to express my deep appreciate to Mark who has helped this blog during a record year of website crashes and repairs. I am still in the process of realizing the dream of a new home for not just this blog. But a new home for myself and my little family.

Will Eric be coming along for the next phase of this journey or are things not as they appear? Will indifferences among families remain or is there a possible meeting of the minds in the works? Will I accept or decline any other options with new experimental chemotherapy drugs beginning in 2018?

Stayed tuned to see as we close in on another huge record! 2 million permalink readers... AMAZING!

HAPPINESS~MY SILVER LINING

The realization that you are in a pretty dark place in your life is never easy. But, that realization is the very first step to lifting yourself out of it. My saving grace is going to come from multiple methods. Be it finding new connections with other brave souls also realizing their dreams, taking up new hobbies, small weekend trips traveling during my good days and self reflecting on what I can change during my bad days. Maybe this next phase in my life might include learning a new language, a new exercise routine, or realizing a huge passion of mine which includes opening up an animal sanctuary.

When I unwillingly landed in a place such as where I stand now at this point in my life, now looking back in hindsight, that bright light that always helped me out, was my silver lining.

Chapter 3... Happiness~My Silver Lining

http://www.gpawarenessfund.com/Kimberly/


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 3, 2017 8:11 AM EST
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November 30, 2017
Got... To... Keep... GOING!
Mood:  chillin'
Now Playing: Day 2886-Next GP Chapter... Turning Lemons Into Lemonade :)

 

So... I got my awaited phone call today regarding Friday mornings surgery. In fact... I got more than just my one awaited phone call today. I got several phone calls today.

Time to hit the self~reset button! And quick!

High five with regards to the morphine family that finally started to provide me a bit of relief late last night into early this morning. I can't begin to tell you how great it felt to actually be able to walk around without being in a world of tumor pain through my lower spine and down my legs. The only problem I have with taking such a strong pain medication is the initial one heck of a powerful KICK! Don't ask me what I was doing the first few hours once it started to literally kick in... HA! I don't even remember falling asleep. Thank GOODNESS for finally getting some relief!

What didn't fair well so much for me was the news from oncology that next months rescan and labs have been bumped up a bit. They also did not feel it is in my best interest right now to proceed ahead with Friday mornings scheduled surgery. What is becoming some sort of cancelation (after-another-after-another) event. Oncology does want me to proceed with both surgeries, but at a much later date, next month. This way they can bump up my rescan to see what changes are taking place right now with the tumors. Regardless if things really are out of my control, internally. At least all of my doctors, specialists and the Cleveland Clinic are now on the same page. I finally feel a bit more at ease.

Instead of our kitchen cabinets being taken over by post-it-notes as reminders of what's next with regards to major house repairs. There are now post-it-notes scattered as medical appointment reminders for the next several weeks. It's still looking to be a very busy month of December. That's not even counting Christmas, but we already plan on celebrating low-key. We still plan on doing our best to keep some of our holiday traditions, but as well starting a few new ones this year. Change... is inevitable. But as well... change can be good!

I was informed today that oncology will still be working closely with Rare Cancer Institutes with my unique medical case. You know what this means... future opportunities' to be presented with the next experimental oncology treatments come 2018. The last opportunity at a chance of taking a really powerful experimental chemotherapy drug was a big ole definite NO from me. However, I am always on the look out for that silver lining

Hopefully taking a long time-out as I have over the past few weeks will benefit me for a very busy upcoming several weeks.

Got... to... keep... GOING!

"One of the most powerful actions you can do to intervene in a stormy world is to stand up and show your soul. Struggling souls catch light from other souls that are fully lit and willing to show it."

~c.s.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: December 1, 2017 6:28 AM EST
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November 29, 2017
A First For Everything!
Mood:  d'oh
Now Playing: Day 2885-Next GP Chapter... Turning Lemons Into Lemonade :)

 

How ADORABLE are these two!

We are finally starting to see our very first possums here in the country. Actually... early this morning while checking on our neighborhood kitties. We have a make shift safe winter haven set up in our spare garage for two of our visiting kitties. Papa kitty & Sweetie kitty who actually looks just like a little snow leopard. She is not only sweet, but super fluffy! Sweetie kitty and Papa kitty have actually grown to become close friends over the past few months. At least now they will be safe and warm through out the upcoming winter season.

If you haven't figured it out by now... loving and taking care of all god's creatures both big and small is a huge passion of mine. They truly are a  blessing!

I finally heard from oncology this morning. It wasn't exactly the news that we were expecting. But it seems that I have to continue playing the waiting game on a few issues at hand with regards to this weeks surgery. They wanted me to head up to the hospital back across state lines early this morning. But with the pain still going through my spine and down my legs from the ovarian tumors. It just wasn't a good idea for me to sit in a car and head back across state lines this morning. I already didn't get much, if any sleep. My pain medication would had worked great if my body could absorb it properly. I never did well with any form of morphine... but there's always a first for everything! I guess we will find out later this evening how well my body accepts a new pain medication from the good ole morphine family. Down right s-c-a-r-y! My medical team is doing everything in their power to make great attempts at getting one step ahead of the game with my health. Being such a highly complex case has proved to be anything, but easy. Friday morning I am scheduled for surgery. When asked if I should proceed ahead on the phone this morning with oncology... I was told to wait and see how I am feeling tomorrow morning.

Today was another day of rest in attempts of snapping my body out of this constant pain and funk. Cutie Patootie Babyblue surprised me by pulling a first this evening. I woke up from a nap and looked over to see Babyblue sleeping in Littleblue's spot on the other side of the couch as she stared back at me. All I could do was look back and smile with sheer happiness. It was just what I needed to bring me out of this funk lately. Another instance of just how much she reminds me of our beloved Littleblue. She must had been sent from heaven... Babyblue

This year, we were hopeful not to exhaust FMLA leave so quickly with Eric's employer. However... life happens. Some things you can't predict and that includes health matters that have continued to progress for the worst yet. Eric has used over 600 hours of FMLA paid and unpaid leave time in the past three years. Lately, it's been unpaid leave which hasn't been easy for our little family. Yet, we fully anticipate that he will need to take further time off from work, unpaid leave, through out the remainder of the next few months. On top of surgeries and surgical procedures. I also have other medical routine testing. Then of course, new medication that holds it's own host of problems when it comes to a first of not knowing how my body will respond. If we never understood the popular website, GoFundMe which helps families struggling financially. We fully understand it now. Families that need assistance when there is no further paid leave time to be with a loved one at the end of their journey. Right now... we remain hopeful things will all work out by the grace of God. We live for the moment, the minute, the hour and the very day that I am given on this journey. Some say... you have to walk a mile in someone else's shoes to fully understand what another human being is going through. Myself and Eric couldn't agree more.

So... as I call it a day and begin a new pain medication from the morphine family. It appears that someone else took over as the baking assistance for Eric this evening. You know... it's a good thing that I never really cared for Snickerdoodle holiday cookies.

Although... we might not be able to say the same for Snoreo. Hehehehehehe!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 30, 2017 1:24 AM EST
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November 28, 2017
It's...
Mood:  happy
Now Playing: Day 2884-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's... beginning to look a lot like  Christmas!

YAYYY!

I love outdoor holiday decorations! Especially the Christmassy kind! Not too many colors or far too many yard decorations. I am more so a minimalist lately. Less is more!

This year there wasn't such a rush to put up our outdoor Christmas decorations. Not like last year when just moving into our home here in the country. Less than a few months before Christmas. We had so much going on a year ago that Eric couldn't even remember how we had the decorations set up last year. It might be a good thing that I could help assist by navigating through totes filled to the brim with lights and extension cords from my couch-bed indoors.

I still have yet to get over this constant pain. It is also down right exhausting. Even with new medication that was called into our local pharmacy yesterday. I still have yet to find any sort of relief. My oncologist has been corresponding with Cleveland Clinic and hopes to have at least some sort of insight, possible help by tomorrow morning. This weeks surgery that got rescheduled yesterday morning is still up in the air until I hear back from my oncologist. I am already rescheduled for another scan and labs next month. The way things are looking, it might end up being a bit sooner than later. The only thing that I was told to do for now is rest, rest and more rest.

Christmas is that time of year when whimsical magic fills the air~

That time of year when it's far easier to place all your cares and woes off to the side... tidings of peace, love and joy! I love this time of year! There is just something special and quite mesmerizing about Christmas lights. The ability to look right outside our windows and see all the beautiful twinkling lights staring back at me. Remembering those dear in my heart. Indeed a quite magical time of the year.

Peace~Love~Joy


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 29, 2017 11:49 PM EST
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November 27, 2017
Last Chance.
Mood:  down
Now Playing: Day 2883-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I haven't felt this bad in a really long time.

What made things worse was the inability to flip over on either side in order to possibly catch at least some sort of rest before this mornings scheduled surgery. The pressure pain from the tumors continuing to grow, expand and push on my surrounding organs has become a new way of life. Trying to somehow adapt to this permanent change has been mind blowing. Somehow... I have come down to one final chance at any possible surgery. That also includes any type of surgical procedure.

I should had known better to realize what was making me feel so horribly sick this morning. The cold sweats on top of pain, dizziness and feeling as if I couldn't catch my breath had Eric contacting my surgeons office and the hospital around 7:30am. I really did my best to get lots of rest and take it easy over the weekend. However, when the internal war rears it's ugly head through very unexpected symptoms. There is no warning.

A very low body temperature and extremely low blood pressure that continued until 8:00am. As Eric made one final phone call back to my surgeons office only to be told that surgery would once again have to be canceled for this morning. Later this afternoon once I finally was able to get a bit of rest with the assistance of prescribed medication. I had a phone call to make to my surgeons office. It was then that I was told due to the seriousness of my condition and symptoms that have persisted has now landed me with only one more attempt at surgery scheduled for later this week. I was told this was the last time they would be able to proceed ahead with surgery. That includes any future surgical procedures. I wasn't expecting the news, but as well I am no fool to what has continued to only get worse with my health. Still... it was devastating to hear on the phone. It wasn't until later this afternoon with further rest that I was finally able to get my blood pressure and body temperature a bit more stabile. This has been the scariest for me yet as I have quickly come to realize how bad things are getting with my health continuing to deteriorate right before my very own eyes. It's still hard to fathom everything. Who knows if I will ever come to accept the very thought of being defeated after fighting for so many years.

With Cleveland Clinic now assisting my team of specialists here in Ohio and Indiana due to the uniqueness of my medical condition. Their opinion stands with the rest of my specialists. Any type of surgery or surgical procedure is already extremely risky. If I can't maintain a much more normal blood pressure or body temperature by later this week. There is no way anyone can proceed with surgery in order to gain some sort of control over my most recent infection. The risk would be far too great for any surgeon. With my specialists now needing assistance of their very own in order to manage my care has me very worried. Mentally... I still want to fight this battle. Physically... my body is giving up. The fatigue has quickly gotten a lot worse and honestly all I want to do anymore is lay on the couch with my heating pad and electric blanket. It sounds crazy to admit that I really look forward to just laying down and getting some sort of rest. The problem with that statement is when I am finally able to get to sleep. I can't hardly wake back up. There really are no words to describe what has been going on with my health lately and the very noticeable changes that even Eric has been bringing to my attention. However, I prefer not to discuss it. This blog is the only time you will read about it. I refuse to discuss it otherwise. Unless you are one of my specialists. Then of course, I really don't have much choice in the matter.

I have one final chance with surgery that was rescheduled for later this week. I have until then to somehow start feeling better. Internally speaking. Because lets face it. Mentally I am ready! My game face is on! Physically speaking is an entirely different story. If I can't maintain some sort of decent body temperature and blood pressure by the morning of surgery. Everything will officially be called off and not by my doing. But by my surgeons. Any future surgeries or future surgical procedures will as I was told on the phone... be no longer. That thought alone is frightening, because in my mind, it means having to accept being defeated in what I fought against for such a very long time. Yet, I will do everything in my power to somehow get myself physically back on track for surgery later this week. But the reality of it all still doesn't look very promising. Especially when my pain management doctor can't even get me to some sort of middle ground with the tumor pain. Endocrinology gave up on finding some sort of answers to help balance out issues with the inability to stabilize vitally important hormones that help to regulate normal bodily functions. My levels are off the charts due to the ovarian tumors continuing to feed from the hormones that I need in order to maintain some sort of normalcy. It's been that way for months now and it hasn't gotten any better.

If this blog entry reads as if I am airing out my brain that remains on overdrive. You are absolutely correct!

Well... back to finding a possible means for some sort of relief-zzzzz

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: November 28, 2017 6:07 AM EST
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