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The Road Before & After Surgery
September 18, 2017
Turning Lemons Into SUPER SWEET LEMONADE! :)
Mood:  bright
Now Playing: Day 2814-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today's blog title seems very appropriate for not just today. But so far for the entire year!

Together...WE have come a very longgggg way!

2017 has been the year of transitions & transformations...turning lemons into SUPER SWEET LEMONADE!

Our current house flipping project, the living room, has been quite a nightmare! I anticipated this to be somewhat of a challenge. But it seems once again, I was sadly mistaken. Especially when it comes down to the timeframe on this massive feat in the making! Two weeks? Yea...r-i-g-h-t! It seems to be a project-within a project-on top of another project. Ha! The fireplace has been a project all on it's own since it can no longer be used. Trying to come up with an idea on how to close it off, on top of finding a creative do-it-yourself country-coastal theme fireplace cover has also been quite a challenge! I have been determined to stick with our overall theme through out the entire house. But since there seems to be nothing that works as far as online. I decided to make our own fireplace cover. Eric's job was to design something to safely close off the fireplace that can no longer be used. What we both have created separately could still work for next years potential buyers if they don't plan on putting additional money into having the fireplace liner repaired. As for us...we have put in enough time, money and energy. Along with far too many claims with our home warranty company. I have a feeling that someday soon. Around this time next year. The new homeowners might possibly have a fully functioning fireplace for the winter.

In the meantime....we are loving the almost completed huge fireplace project!

The enclosure behind this really beautiful fireplace cover was done by Eric. As far as this homemade fireplace door...why of course! By little ole me! It already blends in perfectly! LOVE IT!!

We still have another project that I began a little over a week ago which will also go along with the new fireplace enclosure. What we thought would also be a simple project. Is turning out to be a two-week project in the making! Between taking an old fireplace screen and literally cutting the sharp edged screen out. We also had to sand blast the old paint and redo the entire screen along with quite a few repairs. I have really enjoyed refurbishing old antiques. Without stripping too much of it's history. This old wrought iron fireplace screen is going to turn out to be one heck of a beauty!

I used to look at our lemon of a gem home that we purchased almost a year ago as a burden. But now I see this lemon of a gem as a huge blessing! A true diamond in the rough! The time spent together has only made our connection and love for one another so much stronger. Flipping a house that needed beyond a little love has also made us far more humble. As we continue appreciating the far simpler things in life so much more! I never wanted a cookie-cutter house in a cookie-cutter neighborhood. But then again...I never expected to literally be flipping a house from the inside-out. I do believe that everything happens for a reason. What we have endured over the past year has been quite a challenge! One hell of a feat within itself! But all good things come to those who wait. Those who also appreciate and truly respect life for what it is and all of it's glory. The bad times only made us stronger!

Turning lemons into SUPER SWEET LEMONADE!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 21, 2017 1:39 AM EDT
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September 17, 2017
Regardless...The House~Flip Must Carry On!
Mood:  bright
Now Playing: Day 2813-Next GP Chapter... Turning Lemons Into Lemonade :)

 

As suspected...labs have now made their way out of state. The same ole song and dance of what's to come. Facing the unknown.

Regardless of how I feel. Our house~flipping project must carry on! Since I am down for the count. Eric has been taking over our next big project. Repairing, repainting and remodeling the living room. Since we had to push back our listing date to early spring 2018. Days when we have other important matters to attend to...we at least have the time now to take a break. This house has been far from any sort of easy flip! The hidden lemon gems are still surfacing. And so is having to redo really shoddy repair work. At least now we can laugh about the next gem that awaits to be uncovered. Who knows what the winter season will bring as far as any shifting or moving foundation settlement. But at least now we have a far better understanding of what happened prior to this house that we bought a little under a year ago. A place that for now we call...home. Thanks to neighbors who let us in on other important, yet pertinent information about the history of our house here in the country. Now...it all makes sense. Perfect sense!

As for next year... 2018 looks very, VERY promising! We like to call it, "The year of Nevada!"

We plan on not only selling this home after our major~flip. But also finally coming to realization with our far bigger dream. Moving out west. The time couldn't had come any better! There are other huge changes over the horizon not just for Eric. But as well for myself. So many chances for a change for the better! There has yet to be something that we said we were going to do and literally did not do. Some things, like this final move, just had to take some extra time. Everything has to line up at the right place and at the right time. It may have taken longer than we ever could had anticipated. But life happens and so do unfortunate situations. You can certainly bet that when we finally arrive at our new home in Nevada come next year, 2018. We will be far more appreciative for it! Amen.

Our home has come a very long way and with a lot of hard work put into it! Just like a Charlie Brown Christmas tree. All it needed was a little l-o-v-e~

Okay....maybe a WHOLE heck of a LOT of love!

Heeheeheehee!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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September 16, 2017
Rejection Day...Literally.
Mood:  d'oh
Now Playing: Day 2812-Next GP Chapter... Turning Lemons Into Lemonade :)

 

There will be days like this...always days like this...

A super cute and cuddly little guy must had sure missed his human momma! This is what the past few days have looked like while resting and recovering. Heeheeheehee! Too darn cute! Mr. Big LOVE is here to stay and most definitely lets it be known! Who needs an extra blanket when you have a smiling kitty laying across your entire body. Heeheeheeheehee! Mr. Big LOVE has brought so much love, joy and lots of laughter into our lives. A little piece of my heart has once again been filled.

Today hasn't been the easiest kind of day. Unfortunately, all signs began to surface with regards to physical rejection. We were told that it is very possible that what has been done might be rejected by your body. Medication that should had also worked may as well show signs within a few days of being rejected. Let's face it. Today was 'rejection day.' Literally.

I wasn't feeling my best today. Yet, I did my best to remain calm. Keeping my inner peace. Some days have been more difficult than others. Especially when myself and Eric have no idea what the next move will be with my specialists. There is a fine-tuned game plan in action. But days like today sure don't make that game plan look very promising. Explaining another unfortunate set of medical circumstances gets about as old as hearing about it from my team of specialists. It's crazy to think that once again, I have been handed something else to deal with. Another connected issue. As clearly we were told at the hospital, "Your body is attacking itself." What is to blame for everything and where did it start...as a baby. So many decades ago...

Having to take life sustaining medication every day, for the rest of your life sure doesn't seem very promising. Every 4 hours sounds exhausting. And the side effects look frightening. Yet the signs continue to surface of another wall I have yet to face. Some days, like today. That wall looks more like a huge mountain in front of me. Sure, this too shall pass. But just not as easily and with a lifetime of more hurdles and brick walls I must face. It's bad enough for myself and Eric. Watching my body already reject everything. 

I anticipate a long week ahead for myself and Eric. There is a lot pending from pathology and other labs that were sent out of state. But you know what? Regardless of what I am facing. This gal has come a long way! I am proud as hell for everything I have faced head-on! Physically and emotionally. Most would never had survived. Or even wanted to in the first place. But for me, it's ALL about how you play the cards you are handed

Yep...enough said.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 7:50 AM EDT
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September 15, 2017
Angels Around Me *:)
Mood:  special
Now Playing: Day 2811-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I debated whether or not to share this story. The reason being due to such a rare, yet amazing thing that happened to me while at the hospital yesterday morning.

Some may believe in angels. While others may not.

Yesterday morning there was an angel that must had been following me. In that quiet hospital corridor as the angel made its presence know behind me.

I had anticipated telling Eric about what had transpired while my assigned nurse helped me to the restroom. I was honestly very nervous and anxious for what was ahead of me while they prepped me in the room. I didn't just ask to use the restroom once, prior to beginning the final test and then a very long surgical procedure. But even a mere second before the big silver tray was brought in with far too many scary needles and other medical instruments to mention. Maybe it was the sheer nervousness from watching another patient go under distress as a frantic mother yelled out for assistance for her daughter. Maybe it was watching those who were very ill, yet still holding on to a mere glimmer of hope while smiling. It was all very overwhelming. But somehow I still was able to find my peaceful place...within.

After already saying my prayers before leaving the house. While on the way to the hospital. Upon waiting to be brought back by the surgical staff. Even during the first trip to the bathroom before the scary stuff began. I once again asked my nurse if it was okay to once again use the restroom. She did chuckle a bit, but completely understood that maybe I was getting a bit nervous. Although, honestly I just wanted to make sure that my bladder was empty. Funny, but true! HA!

It was during that time when my nurse helped guide me through the quiet hallway that another nurse sitting at the main surgical station desk pulled my nurse to the side. As I continued my way to the restroom door. I overheard the nurse sitting behind the desk ask my nurse, "Did you just see that?" As I had my hand on the bathroom door handle. I then heard her whisper, "It looked like an angel behind your patient. Following right behind her." I was completely coherent and had yet to receive any medication. I knew exactly what I heard which would be later verified once again by a kind gesture by those same nurses before we were released from the hospital. Once I came out of the restroom. My nurse and the other nurse behind the desk asked if I was ready as both smiled from ear to ear. I played it off as if I didn't overhear them. But trust me by saying, I overheard everything.

That overwhelming sense of peace remained with me during the entire time while at the hospital. I remained calm during even the most stressful moments. When even the nurse and surgical staff weren't so sure what to expect as far as reactions. Will my body reject everything? Will I go under cardiac distress? Will my body be able to handle everything?

It seemed as if the angels were with me. One particular angel that made her presence known. While keeping a close watch behind me.

Once I could finally open my eyes long enough to talk to Eric. I decided to wait until later to explain what had happened. But instead the story unfolded on it's own. Before being released from the hospital. The nurse came up to myself and Eric. Looked at me and placed this into my hand. "You have been through so much. Please keep this close to your side. You have an angel with you at all times." We both were in complete awe, especially Eric. After I began to explain the story. Eric stopped me and said, "You don't need to say anymore. Just look at the angel on the stone you are holding."

The Serene Angel.

The same angel which is actually an angel urn that stands in my closet at home. A most beautiful glimmering angel. An angel that watches over me. This...I now know


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 18, 2017 12:57 AM EDT
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September 14, 2017
Peace Of Mind...HIPAA
Mood:  chillin'
Now Playing: Day 2810-Next GP Chapter... Turning Lemons Into Lemonade :)

 

7AM

Time to get up, get dressed and bravely head out the door to the unknown. What lies await for us at the hospital. Back across state lines...Ohio.

It's taken a little over a month. 5 weeks to be exact. Today was the day. When everything finally lined up in place. Today was certainly the right time and the right day to finally face the inevitable wall in front of me.

I would be lying if I didn't say that we both were a bit nervous. Eric was more like...a LOT nervous! HA! As for this gal. I did a lot of out loud talking from the moment we stepped into our car. To the time we had to separate while the nurse walked me back through the hospital corridors. What seemed like a very long walk through a very quiet hallway since being the first scheduled patient of the day. It was a long morning. It was a longer afternoon. And of course...it was an even longer 48-hours before the fogginess in my brain slowly began to become a bit more tolerable.

So here I am. Once again back-tracking my blog~one post at a time. To what I hope will be far better days that lie ahead of me.

What we have learned during this long awaited morning. Was the peace of mind that comes with using HIPAA to it's fullest potential. Choosing to keep my personal information and status, while at the hospital...private. What we both don't need is any type of interference nor any sort of stress. Mentally, physically, emotionally. What I can tell you is how peaceful it felt knowing that we didn't have to face any sort of stress with those forcing their way into the hospital. Or forcing their inquiring minds into a very personal battle that I faced today. Some things...still need to remain private. I have boundaries that now remain in place and will continue being respected. 

Not only was using HIPAA to secure our privacy at the hospital the best decision we have ever made in order to protect my privacy. But it as well will remain in place during the next phase and further surgeries. I can not begin to express how much more relaxed I was not having to worry about any type of interference. It was the very first time that Eric could sit comfortably, next to me while I was recovering.

 Everything in life happens for a reason. It may have taken 5 weeks for my body to finally be ready. But I made it. There is a lot to be said for facing your biggest fears. There is also something to be said for loving and respecting yourself enough to place healthy boundaries. 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 7:52 AM EDT
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September 13, 2017
Round 5.....READY!
Mood:  bright
Now Playing: Day 2809-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Why hello there my  lovelies!

Time to get my game face back on. Time to give my body some much needed rest. Physically and mentally.

Today was all about taking it easy. Clearing my mind for the fifth and final attempt at surgery. The very last test is right in front of me. A far too early morning drive back across state lines lies ahead of me...Ohio here we come again this week!

While prepping...I also like to prepare myself for anything goes when it comes to my health. Testing and surgeries seem to be like winning some sort of medical lottery for me. If only there was money involved. In my favor...HA!

While remnants of hurricane Irma come visit us over the next 24-hours. This gal will be taking it easy. Lots of rest and reflecting on what lies ahead of me. I have zero expectations. Although, I must admit...I remain pessimistic. Just in case things go completely rogue. Far from my team of specialists expectations. This morning I received information on an alternate game plan by my lead attending physician. Let's just say that I don't plan on going that route. So it's time to get ready! Time to get my game face back on!

There are always going to be times, through out your lifetime, when your back is against the wall. When you are faced with no other choice but to go through that wall. Facing adversity through your darkest fears. We all have a choice. The choice to give up and give in. Or the choice to keep fighting till the bitter end. The choice...is really ours for the taking.

Round 5.....READY!

Choice

/choise/

1. an act of selecting or making a decision when faced with two or more possibilities.

Remember my lovelies, you are NOT defined by your circumstances. You are NOT defined by others opinions. And you are NOT defined by your past.

Love yourself by showing others that it's OK to feel good about the whole being, flaws & all. Lighten up about the small things, even the big things in life aren't so big after all...

Live your best life NOW with the people that love you unconditionally. And make sure to reflect that love back into the world for all to see~

You ARE a beautiful and quite lovely being of light. And no matter what hurdles you face through out your life. Never, EVER give up the fight!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 14, 2017 4:54 AM EDT
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September 12, 2017
A CHANGE Is Gonna COME!
Mood:  vegas lucky
Now Playing: Day 2808-Next GP Chapter... Turning Lemons Into Lemonade :)

 

When you once again start seeing unicorns

You just KNOW that soon enough...

A CHANGE is gonna COME!

We are not only super busy finishing up the last of our 2 rooms within our one lemon of a gem home that we purchased almost a year ago. But as well I still have to face the sound of music back across state lines this week. Back to the ole hospital in Ohio to finish up one final test and then get this device implanted ASAP!

Not only do I need help stabilizing important hormones and chemicals that my kidneys and brain can no longer provide for me. But as well Eric needs to find his inner energy ASAP! We are on a roll towards the long-awaited POSITIVE CHANGE!

This also includes a positive change with regards to this blog. Not only will it help keep overloaded server crashes far at bay. But as well the new home for this blog can accommodate a much larger permalink reader database. The current website server has not only seen more crashes than a NASCAR race. But it also does not provide much, if any type of video capability to enhance the true blogging experience. Myself and Eric not only make sure to include lots of laughter into our daily lives. But as well we want to share that laughter with all of you! Life is far too short and way too serious not to laugh. Trust me...WE have a LOT to laugh about! Time to step into the blogging future with lots of video enhancements and other new features which will only add to the reading experience. Time to step it up for our next big blogging adventure!

I anticipate to have the new home for this blog up and ready within the next few months. Once it is finally up and running. The new blog link and information will be available on this current web page and at the top of the Gastroparesis Awareness Campaign website. 

Are you EXCITED for the new changes?! You bet! We are most definitely SUPER EXCITED!!

YAYYYYY!!! WOO~HOO!!!

A CHANGE is GONNA come!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 13, 2017 1:11 AM EDT
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September 11, 2017
The Sights, Smells & Tastes Of Autumn! :)
Mood:  bright
Now Playing: Day 2807-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Can you believe it?! We only have a few more weeks before the autumn season officially begins!

YAYYYY!

This means lots of big, super comfy clothes, colorful fall leaves, everything pumpkin and even a change in how we eat. Super colorful and very healthy fall comfort foods!

Ahhhhh...the sights, smells and tastes of autumn are already in the air...

In our house. Quick, healthy, delicious fall recipes are already beginning to stir up on the stove! Forget Gastroparesis! This gal always loves to cook up a new healthy dish or two! Fall means a time to get creative in what Eric eats for breakfast, lunch and dinner. Fall for this gal means mixing it up on what I create with my own daily protein shakes and homemade frozen yogurt.

These are two new recipes that are super colorful and very healthy during the cool, crisp days of autumn. Both are really easy to make and most definitely leave the house smelling OH-SO-GOOD! I love veggies and what better way than to incorporate some pumpkin and sunflower seeds! Baked kale salad bowl with sweet potatoes, broccoli and rice for lunch.

And...

A multi-veggie extravaganza for dinner garnished with raisins, pumpkin seeds, sunflower seeds, virgin olive oil and a healthy dash of pepper! 40 minutes in the oven on 375 degrees is really all it takes! 2 days worth of food for Eric...2 days cooking break for little ole me! Who says you can't cook with Gastroparesis? Of course you can still cook silly! And yes, you can also sample your very own creative dishes. It's really all about portion control. 'Tiny' tastes. Just make sure you follow it up with lots of clear fluids. A clear carbonated soda will also do! What can't go down, gravity will always be there to lend a helping hand!

As for the liquid part of GP dieting...

A HUGE BLOGTASTIC round of applause for this new product!

AQUA HYDRATE ph9+

2x more electrolytes than normal electrolyte-enhanced waters and advanced alkaline supercharged ph9+! This means less acidity and less stomach upset! Talking about staying hydrated for all the upcoming fall festivities! Talking about one super clean tasting water too!

I have not only been drinking my Aqua Hydrate straight from the new super-sized jug. But it has also been a great way to add more electrolytes to my daily protein shakes and other healthy drinks!

BLOGTASTIC PRODUCT! It's a GP patient MUST! In fact...I recommend AQUA HYDRATE for anyone looking for a healthy energy boost! An energy boost for the upcoming Autumn season!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 13, 2017 1:27 AM EDT
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September 9, 2017
Open Your Home...Open Your Heart~ :)
Mood:  bright
Now Playing: Day 2805-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What happens when strangers open their homes and in turn...open their hearts?

Over 3,000 families that desperately hit the open road in hopes of escaping the path of hurricane Irma. All in less than 48 hours. Were welcomed by one small group into the homes of over 3,000 families from Georgia, Mississippi, Tennessee, North Carolina, South Carolina, Ohio, Kentucky, Indiana, New York and even Canada who opened their doors to those in need.

HOW AMAZING IS THAT?!!

I say...PRETTY DARN FREAKIN AMAZING!

Every single individual. Every single family. Every single fur child in need. Everyone now has a safe place to rest. Every single request for help, as of this evening, has been filled. Even those who bravely filled their gas tanks and headed down south to pick up those who needed a lift to safety. The kindness of strangers who lent a hand to offer assistance with cash due to ATM machines that literally ran out of money. Those individuals who went out of their way to make sure others were able to have access to medically necessary drugs and other medical supplies.

YOU are the ones who help make America great again!

Let's continue to reach out to those in need during the next phase of hurricane Irma. There are still families that need temporary shelter over the next few days. Some over the next few weeks. Some may even need help in rebuilding their home again. Let's also not forget about those who still need our help in Texas. As the Mitchell family continues their drive up north to be with their extended family. We now have 2 bedrooms vacant and a homemade pot of chili ready for anyone who needs a place to rest. There are other families that also have listed their contact information for those who need a place to stay. With so many others donating their time or needs to so many families that are anxiously waiting to go back home again. Airbnb is still allowing free listings for those opening their homes to evacuees. As well there are many other online social media groups that are providing a safe place, food and shelter to those in need.

Open your home...Open your heart~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 10, 2017 11:45 PM EDT
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September 8, 2017
Open Your Home...Open Your Heart~
Mood:  hug me
Now Playing: Day 2804-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I am pleading for YOUR help!

Anyone that is willing to open their home to those that are looking for shelter and driving a long ways from Florida. There are a lot of families that are still in dire need. We are already maxed out with two bedrooms, yet so many other families are still desperately seeking shelter from those willing to open their homes.

Please help!

There really is no reason that everyone cannot find it within their hearts to open their homes to those who need urgent shelter. There are families willing to make the long drive even to Ohio, Kentucky and Indiana. There are numerous private social media groups for Irma evacuees seeking shelter. Airbnb is still allowing free listings for anyone who is willing to help families in need.

If you are still looking for shelter or willing to open your home to help a family in need. Please don't hesitate to contact us offline at the following email: gpawarenessfund@yahoo.com

We can then direct you to those families in need.

We have two private groups with many families through out the great USA that are opening their homes to those desperately looking for shelter. If you need assistance with fuel or shelter for your fur children, horses or anything else. Please don't hesitate to reach out for help. We do have a contact with CNN willing to list your business for those who are willing to help families seeking shelter. Any help is greatly appreciated!

These families are still in need of urgent assistance. If you can help, please let us know.

*Anyone near Pensacola/Navarre with room available? My family is on their way from Miami. We have maxed out room at our house in Navarre. Seeking safe shelter for my wife, cousin and their two children.

*Looking for lodging near Greensboro, Georgia. 2 adults, 3 children and 3 very friendly dogs.

*My family is stuck in southern Florida. We have a hotel right now but have to leave the evacuation zone by 10am, tomorrow. We have no clue where to head next. Need help!

*Anyone near Jasper, Tennessee I'm broke down on the side of highway 15 need a ride PLEASE I have 3 babies, have gas money.

*Need reduced price for cabin or rentals in the GA/Tennessee area. Two adults, two kids and our dog. Can't find anything open in the vicinity on Airbnb. Already drove 21 hours, only slept 4.

*Family of 4 adults now evacuating Hilton Naples. Visiting from the UK and looking for lodging. Thank you in advance!

*Anyone with hotel availability? Trying to stay under $100.00 a night, my husband and 7 month old.

*Need a place to go, in Pasco with two children, 14 dogs, 6 cats. All of our pets are crated.

*We are driving to Tallahassee looking for a place to stay asap! 4 adults and our dog. Please if someone could help we are desperate since the hotels are already booked.

*Need help in Chiefland, Florida! My friend is stuck on the side of the road with no gas. Roadside can't get to her until 9am.

*Family of 8 on the road. Also a 39 week pregnant one. Need lodging.  


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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