« September 2017 »
S M T W T F S
1 2
3 4 5 6 7 8 9
10 11 12 13 14 15 16
17 18 19 20 21 22 23
24 25 26 27 28 29 30
You are not logged in. Log in
Entries by Topic
All topics  «
Road to Survival
Blog Tools
Edit your Blog
Build a Blog
RSS Feed
View Profile
The Road Before & After Surgery
September 15, 2017
Angels Around Me *:)
Mood:  special
Now Playing: Day 2811-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I debated whether or not to share this story. The reason being due to such a rare, yet amazing thing that happened to me while at the hospital yesterday morning.

Some may believe in angels. While others may not.

Yesterday morning there was an angel that must had been following me. In that quiet hospital corridor as the angel made its presence know behind me.

I had anticipated telling Eric about what had transpired while my assigned nurse helped me to the restroom. I was honestly very nervous and anxious for what was ahead of me while they prepped me in the room. I didn't just ask to use the restroom once, prior to beginning the final test and then a very long surgical procedure. But even a mere second before the big silver tray was brought in with far too many scary needles and other medical instruments to mention. Maybe it was the sheer nervousness from watching another patient go under distress as a frantic mother yelled out for assistance for her daughter. Maybe it was watching those who were very ill, yet still holding on to a mere glimmer of hope while smiling. It was all very overwhelming. But somehow I still was able to find my peaceful place...within.

After already saying my prayers before leaving the house. While on the way to the hospital. Upon waiting to be brought back by the surgical staff. Even during the first trip to the bathroom before the scary stuff began. I once again asked my nurse if it was okay to once again use the restroom. She did chuckle a bit, but completely understood that maybe I was getting a bit nervous. Although, honestly I just wanted to make sure that my bladder was empty. Funny, but true! HA!

It was during that time when my nurse helped guide me through the quiet hallway that another nurse sitting at the main surgical station desk pulled my nurse to the side. As I continued my way to the restroom door. I overheard the nurse sitting behind the desk ask my nurse, "Did you just see that?" As I had my hand on the bathroom door handle. I then heard her whisper, "It looked like an angel behind your patient. Following right behind her." I was completely coherent and had yet to receive any medication. I knew exactly what I heard which would be later verified once again by a kind gesture by those same nurses before we were released from the hospital. Once I came out of the restroom. My nurse and the other nurse behind the desk asked if I was ready as both smiled from ear to ear. I played it off as if I didn't overhear them. But trust me by saying, I overheard everything.

That overwhelming sense of peace remained with me during the entire time while at the hospital. I remained calm during even the most stressful moments. When even the nurse and surgical staff weren't so sure what to expect as far as reactions. Will my body reject everything? Will I go under cardiac distress? Will my body be able to handle everything?

It seemed as if the angels were with me. One particular angel that made her presence known. While keeping a close watch behind me.

Once I could finally open my eyes long enough to talk to Eric. I decided to wait until later to explain what had happened. But instead the story unfolded on it's own. Before being released from the hospital. The nurse came up to myself and Eric. Looked at me and placed this into my hand. "You have been through so much. Please keep this close to your side. You have an angel with you at all times." We both were in complete awe, especially Eric. After I began to explain the story. Eric stopped me and said, "You don't need to say anymore. Just look at the angel on the stone you are holding."

The Serene Angel.

The same angel which is actually an angel urn that stands in my closet at home. A most beautiful glimmering angel. An angel that watches over me. This...I now know


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 18, 2017 12:57 AM EDT
Post Comment | Permalink
September 14, 2017
Peace Of Mind...HIPAA
Mood:  chillin'
Now Playing: Day 2810-Next GP Chapter... Turning Lemons Into Lemonade :)

 

7AM

Time to get up, get dressed and bravely head out the door to the unknown. What lies await for us at the hospital. Back across state lines...Ohio.

It's taken a little over a month. 5 weeks to be exact. Today was the day. When everything finally lined up in place. Today was certainly the right time and the right day to finally face the inevitable wall in front of me.

I would be lying if I didn't say that we both were a bit nervous. Eric was more like...a LOT nervous! HA! As for this gal. I did a lot of out loud talking from the moment we stepped into our car. To the time we had to separate while the nurse walked me back through the hospital corridors. What seemed like a very long walk through a very quiet hallway since being the first scheduled patient of the day. It was a long morning. It was a longer afternoon. And of course...it was an even longer 48-hours before the fogginess in my brain slowly began to become a bit more tolerable.

So here I am. Once again back-tracking my blog~one post at a time. To what I hope will be far better days that lie ahead of me.

What we have learned during this long awaited morning. Was the peace of mind that comes with using HIPAA to it's fullest potential. Choosing to keep my personal information and status, while at the hospital...private. What we both don't need is any type of interference nor any sort of stress. Mentally, physically, emotionally. What I can tell you is how peaceful it felt knowing that we didn't have to face any sort of stress with those forcing their way into the hospital. Or forcing their inquiring minds into a very personal battle that I faced today. Some things...still need to remain private. I have boundaries that now remain in place and will continue being respected. 

Not only was using HIPAA to secure our privacy at the hospital the best decision we have ever made in order to protect my privacy. But it as well will remain in place during the next phase and further surgeries. I can not begin to express how much more relaxed I was not having to worry about any type of interference. It was the very first time that Eric could sit comfortably, next to me while I was recovering.

 Everything in life happens for a reason. It may have taken 5 weeks for my body to finally be ready. But I made it. There is a lot to be said for facing your biggest fears. There is also something to be said for loving and respecting yourself enough to place healthy boundaries. 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 7:52 AM EDT
Post Comment | Permalink
September 13, 2017
Round 5.....READY!
Mood:  bright
Now Playing: Day 2809-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Why hello there my  lovelies!

Time to get my game face back on. Time to give my body some much needed rest. Physically and mentally.

Today was all about taking it easy. Clearing my mind for the fifth and final attempt at surgery. The very last test is right in front of me. A far too early morning drive back across state lines lies ahead of me...Ohio here we come again this week!

While prepping...I also like to prepare myself for anything goes when it comes to my health. Testing and surgeries seem to be like winning some sort of medical lottery for me. If only there was money involved. In my favor...HA!

While remnants of hurricane Irma come visit us over the next 24-hours. This gal will be taking it easy. Lots of rest and reflecting on what lies ahead of me. I have zero expectations. Although, I must admit...I remain pessimistic. Just in case things go completely rogue. Far from my team of specialists expectations. This morning I received information on an alternate game plan by my lead attending physician. Let's just say that I don't plan on going that route. So it's time to get ready! Time to get my game face back on!

There are always going to be times, through out your lifetime, when your back is against the wall. When you are faced with no other choice but to go through that wall. Facing adversity through your darkest fears. We all have a choice. The choice to give up and give in. Or the choice to keep fighting till the bitter end. The choice...is really ours for the taking.

Round 5.....READY!

Choice

/choise/

1. an act of selecting or making a decision when faced with two or more possibilities.

Remember my lovelies, you are NOT defined by your circumstances. You are NOT defined by others opinions. And you are NOT defined by your past.

Love yourself by showing others that it's OK to feel good about the whole being, flaws & all. Lighten up about the small things, even the big things in life aren't so big after all...

Live your best life NOW with the people that love you unconditionally. And make sure to reflect that love back into the world for all to see~

You ARE a beautiful and quite lovely being of light. And no matter what hurdles you face through out your life. Never, EVER give up the fight!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 14, 2017 4:54 AM EDT
Post Comment | Permalink
September 12, 2017
A CHANGE Is Gonna COME!
Mood:  vegas lucky
Now Playing: Day 2808-Next GP Chapter... Turning Lemons Into Lemonade :)

 

When you once again start seeing unicorns

You just KNOW that soon enough...

A CHANGE is gonna COME!

We are not only super busy finishing up the last of our 2 rooms within our one lemon of a gem home that we purchased almost a year ago. But as well I still have to face the sound of music back across state lines this week. Back to the ole hospital in Ohio to finish up one final test and then get this device implanted ASAP!

Not only do I need help stabilizing important hormones and chemicals that my kidneys and brain can no longer provide for me. But as well Eric needs to find his inner energy ASAP! We are on a roll towards the long-awaited POSITIVE CHANGE!

This also includes a positive change with regards to this blog. Not only will it help keep overloaded server crashes far at bay. But as well the new home for this blog can accommodate a much larger permalink reader database. The current website server has not only seen more crashes than a NASCAR race. But it also does not provide much, if any type of video capability to enhance the true blogging experience. Myself and Eric not only make sure to include lots of laughter into our daily lives. But as well we want to share that laughter with all of you! Life is far too short and way too serious not to laugh. Trust me...WE have a LOT to laugh about! Time to step into the blogging future with lots of video enhancements and other new features which will only add to the reading experience. Time to step it up for our next big blogging adventure!

I anticipate to have the new home for this blog up and ready within the next few months. Once it is finally up and running. The new blog link and information will be available on this current web page and at the top of the Gastroparesis Awareness Campaign website. 

Are you EXCITED for the new changes?! You bet! We are most definitely SUPER EXCITED!!

YAYYYYY!!! WOO~HOO!!!

A CHANGE is GONNA come!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 13, 2017 1:11 AM EDT
Post Comment | Permalink
September 11, 2017
The Sights, Smells & Tastes Of Autumn! :)
Mood:  bright
Now Playing: Day 2807-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Can you believe it?! We only have a few more weeks before the autumn season officially begins!

YAYYYY!

This means lots of big, super comfy clothes, colorful fall leaves, everything pumpkin and even a change in how we eat. Super colorful and very healthy fall comfort foods!

Ahhhhh...the sights, smells and tastes of autumn are already in the air...

In our house. Quick, healthy, delicious fall recipes are already beginning to stir up on the stove! Forget Gastroparesis! This gal always loves to cook up a new healthy dish or two! Fall means a time to get creative in what Eric eats for breakfast, lunch and dinner. Fall for this gal means mixing it up on what I create with my own daily protein shakes and homemade frozen yogurt.

These are two new recipes that are super colorful and very healthy during the cool, crisp days of autumn. Both are really easy to make and most definitely leave the house smelling OH-SO-GOOD! I love veggies and what better way than to incorporate some pumpkin and sunflower seeds! Baked kale salad bowl with sweet potatoes, broccoli and rice for lunch.

And...

A multi-veggie extravaganza for dinner garnished with raisins, pumpkin seeds, sunflower seeds, virgin olive oil and a healthy dash of pepper! 40 minutes in the oven on 375 degrees is really all it takes! 2 days worth of food for Eric...2 days cooking break for little ole me! Who says you can't cook with Gastroparesis? Of course you can still cook silly! And yes, you can also sample your very own creative dishes. It's really all about portion control. 'Tiny' tastes. Just make sure you follow it up with lots of clear fluids. A clear carbonated soda will also do! What can't go down, gravity will always be there to lend a helping hand!

As for the liquid part of GP dieting...

A HUGE BLOGTASTIC round of applause for this new product!

AQUA HYDRATE ph9+

2x more electrolytes than normal electrolyte-enhanced waters and advanced alkaline supercharged ph9+! This means less acidity and less stomach upset! Talking about staying hydrated for all the upcoming fall festivities! Talking about one super clean tasting water too!

I have not only been drinking my Aqua Hydrate straight from the new super-sized jug. But it has also been a great way to add more electrolytes to my daily protein shakes and other healthy drinks!

BLOGTASTIC PRODUCT! It's a GP patient MUST! In fact...I recommend AQUA HYDRATE for anyone looking for a healthy energy boost! An energy boost for the upcoming Autumn season!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 13, 2017 1:27 AM EDT
Post Comment | Permalink
September 9, 2017
Open Your Home...Open Your Heart~ :)
Mood:  bright
Now Playing: Day 2805-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What happens when strangers open their homes and in turn...open their hearts?

Over 3,000 families that desperately hit the open road in hopes of escaping the path of hurricane Irma. All in less than 48 hours. Were welcomed by one small group into the homes of over 3,000 families from Georgia, Mississippi, Tennessee, North Carolina, South Carolina, Ohio, Kentucky, Indiana, New York and even Canada who opened their doors to those in need.

HOW AMAZING IS THAT?!!

I say...PRETTY DARN FREAKIN AMAZING!

Every single individual. Every single family. Every single fur child in need. Everyone now has a safe place to rest. Every single request for help, as of this evening, has been filled. Even those who bravely filled their gas tanks and headed down south to pick up those who needed a lift to safety. The kindness of strangers who lent a hand to offer assistance with cash due to ATM machines that literally ran out of money. Those individuals who went out of their way to make sure others were able to have access to medically necessary drugs and other medical supplies.

YOU are the ones who help make America great again!

Let's continue to reach out to those in need during the next phase of hurricane Irma. There are still families that need temporary shelter over the next few days. Some over the next few weeks. Some may even need help in rebuilding their home again. Let's also not forget about those who still need our help in Texas. As the Mitchell family continues their drive up north to be with their extended family. We now have 2 bedrooms vacant and a homemade pot of chili ready for anyone who needs a place to rest. There are other families that also have listed their contact information for those who need a place to stay. With so many others donating their time or needs to so many families that are anxiously waiting to go back home again. Airbnb is still allowing free listings for those opening their homes to evacuees. As well there are many other online social media groups that are providing a safe place, food and shelter to those in need.

Open your home...Open your heart~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 10, 2017 11:45 PM EDT
Post Comment | Permalink
September 8, 2017
Open Your Home...Open Your Heart~
Mood:  hug me
Now Playing: Day 2804-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I am pleading for YOUR help!

Anyone that is willing to open their home to those that are looking for shelter and driving a long ways from Florida. There are a lot of families that are still in dire need. We are already maxed out with two bedrooms, yet so many other families are still desperately seeking shelter from those willing to open their homes.

Please help!

There really is no reason that everyone cannot find it within their hearts to open their homes to those who need urgent shelter. There are families willing to make the long drive even to Ohio, Kentucky and Indiana. There are numerous private social media groups for Irma evacuees seeking shelter. Airbnb is still allowing free listings for anyone who is willing to help families in need.

If you are still looking for shelter or willing to open your home to help a family in need. Please don't hesitate to contact us offline at the following email: gpawarenessfund@yahoo.com

We can then direct you to those families in need.

We have two private groups with many families through out the great USA that are opening their homes to those desperately looking for shelter. If you need assistance with fuel or shelter for your fur children, horses or anything else. Please don't hesitate to reach out for help. We do have a contact with CNN willing to list your business for those who are willing to help families seeking shelter. Any help is greatly appreciated!

These families are still in need of urgent assistance. If you can help, please let us know.

*Anyone near Pensacola/Navarre with room available? My family is on their way from Miami. We have maxed out room at our house in Navarre. Seeking safe shelter for my wife, cousin and their two children.

*Looking for lodging near Greensboro, Georgia. 2 adults, 3 children and 3 very friendly dogs.

*My family is stuck in southern Florida. We have a hotel right now but have to leave the evacuation zone by 10am, tomorrow. We have no clue where to head next. Need help!

*Anyone near Jasper, Tennessee I'm broke down on the side of highway 15 need a ride PLEASE I have 3 babies, have gas money.

*Need reduced price for cabin or rentals in the GA/Tennessee area. Two adults, two kids and our dog. Can't find anything open in the vicinity on Airbnb. Already drove 21 hours, only slept 4.

*Family of 4 adults now evacuating Hilton Naples. Visiting from the UK and looking for lodging. Thank you in advance!

*Anyone with hotel availability? Trying to stay under $100.00 a night, my husband and 7 month old.

*Need a place to go, in Pasco with two children, 14 dogs, 6 cats. All of our pets are crated.

*We are driving to Tallahassee looking for a place to stay asap! 4 adults and our dog. Please if someone could help we are desperate since the hotels are already booked.

*Need help in Chiefland, Florida! My friend is stuck on the side of the road with no gas. Roadside can't get to her until 9am.

*Family of 8 on the road. Also a 39 week pregnant one. Need lodging.  


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Post Comment | Permalink
September 7, 2017
First Signs Of Fall! :)
Mood:  celebratory
Now Playing: Day 2803-Next GP Chapter... Turning Lemons Into Lemonade :)

 

YAYYYYY! Our very first signs of fall!

It's not only in the air with super cool temperatures. But as well through out our yard. They might not have turned out to be the typical mammoth sunflowers. But since planting them late this season, at least they were able to bloom. A most b-e-a-u-t-i-f-u-l yellow sunflower bloom!

LOVING me some sunflowers! 

There are so many signs of fall in the air. Thanks to a certain someone...I have the biggest and most colorful fall mum on this entire side of the country! They certain do grow plants a heck of a lot BIGGER here in the country! When you see mums start to appear...you just know that fall is right around the corner. YAYYYY! Fall flowers, everything pumpkin, all sorts of warm comfy coffee flavored drinks and even the very first crockpot meal for a cold chilly night. A tri-bean delight!

It just wouldn't be fall without the very first sign of viruses in the air too! So looks like this homemade bean recipe will have to wait until tomorrow for Eric. Down for the count with a stomach virus means he is on my liquid diet for a change. I plan on doing what it takes to dodge this one! Masks and lots of Lysol for the taking!

I love everything about fall, especially all the big, comfy clothes that go with the season. Even my cowgirl boots! Appropriate for our new way of living life here in the country. All of the wildflower seeds that we planted during the first sign of summer have made for quite a backyard habitat for the deer! The problem with saying that is if you look closely at this picture. I don't remember ever hearing about a black cat-like type of deer. Especially one that sleeps on a tree stomp amidst the fall foliage... Heeheeheeheehee!

YAYYYYY for FALL!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 8, 2017 3:23 AM EDT
Post Comment | Permalink
September 6, 2017
Give Me A Sign...Given.
Mood:  not sure
Now Playing: Day 2802-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Sometimes...when you as for a sign.

It is given. And given sometimes in the most peculiar ways.

The fourth attempt was once again denied this morning. Another surgery canceled. Another hospital trip back across state lines. Another morning let down of sorts.

Another low body temperature reading at home that once again followed us to the hospital. Another very uncomfortable surgical team that led to another surgery...canceled. Where is the video that should easily go with such a crazy theme? Going on the fifth attempt come next week. Crazy isn't the word for it! But soon to come will be videos to go along with this blog.

More info to soon follow...

1 in 5 million deal with the same failed production of vital chemicals and hormones controlled by the kidneys and brain. This is what happens when radiation therapy and chemotherapy fail. When tumors are left to grow back and spread uncontrollably. If there were such a thing as the medical lottery. I would be a billionaire a million times over. But instead I have become a pro at my own demise. Who gets tired of being sick? This gal does and rightfully so! I have yet to encounter such a race against the clock within my own body. I have also yet to encounter such a fine tuned testing and surgery that relies on my very own body. A 97.5 or better body temperature. A much more normal blood pressure. All because my body can no longer regulate itself. When you surpass life expectancy of progressive medical issues. You can expect to deal with the unexpected. What isn't very normal. Not even to your own surgical team.

Until next week. Until my body decides to have a good morning. With a far more normal body temperature and blood pressure reading. When all the signs point to finally getting things moving forward so I no longer have to endure at home injections. Will I then be celebrating such a tough as nails feat!

Until then...I will be resting away, enjoying as much of the fall-like days here in the country...

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Post Comment | Permalink
September 5, 2017
You've Come A L-O-N-G Way Baby! :)
Mood:  hug me
Now Playing: Day 2801-Next GP Chapter... Turning Lemons Into Lemonade :)

 

You've come a l-o-n-g way baby!

Baby Big LOVE

So many have been asking how he has been doing since surgery?

I am very happy to say that Mr. Big LOVE is doing extremely well! Way past any expectations!

Our veterinarian here in town is very happy with his post-surgical recovery. We were told that Big LOVE might always have a bit of an issue with his tail due to the rope that was tightly tied around it. Over the past week we have come across another unfortunate new finding that has slowly come to light due to the abuse he suffered. Mr. Big LOVE has a hard time getting to sleep with the twitching that he experiences due to focal seizures. Our local veterinarian with a heart of gold for all rescued fur children believes that the neurological issues, along with many broken teeth could be from head trauma that he most likely suffered by the hands of the abuser.

It honestly just breaks my heart. It makes Eric livid as hell to imagine a person or persons that were so violent and abusive towards another living, breathing life. I firmly believe that we crossed paths with this little guy with a HUGE HEART for a reason. I also believe that the good Lord places those within our path for a reason. A very good reason! To be rescued and saved. To be cared for and loved for unconditionally by our entire little family. Even kitty sitter Snoreo that instantly bonded and keeps him company in front of his temporary giant crate when we have to step out of the house for a bit during the day.

Evenings are now the time that I look forward to the most! As I make my way back to Mr. Big LOVE's room and lay him on my lap among the many big comfy blankets. His eyes tell so much as if to unlock the key to his soul. He is as gentle as they come for undergoing such an undeserving start of life. I promise that here on out. His days will be filled with nothing but pure love and forever happiness. As spoiled as spoiled can be for such a very special kitty. Mr. Big LOVE deserves nothing but the best! The best he will have for the rest of his happy feline life with our little family.

A safe place, warm shelter, food, lots of treats and far too many toys with those who love him bigger than life itself.

Mr. Big LOVE's new home~

YOU'VE come a l-o-n-g way baby!

 XOXOXO


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: September 8, 2017 1:55 AM EDT
Post Comment | Permalink

Newer | Latest | Older