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The Road Before & After Surgery
August 26, 2017
Medically Speaking...Feeling A Whole Lot...Uncomfortable.
Mood:  not sure
Now Playing: Day 2791-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Instead of me being down for the count...It's now Eric's turn.

Usually we have to utilize FMLA time due to various reasons with my health. But time, stress and lack of sleep finally took it's toll on Eric's health. Talking about sick. Eric has been hacking non-stop so finally I convinced him to visit our local Urgent Care. We both have to be extra careful keeping germs at bay. I still don't have the immunity to fight off infections. Especially with things progressing and no turning back. Tis better for us to be safe than sorry! This is going to be one very brutal and quite scary upcoming flu season for the both of us! Luckily Eric's diagnosis was due to hay fever which is now in full force. The worst time of year for him. Thankfully we have everything close by our new home here in Indiana. Including a doctors Urgent Care.

Looks like it's R&R time for Eric, myself and the fur gang this evening. We can't afford having both of us sick. No way. No how.

I am still doing my best to get my body and mind ready for final testing and surgery scheduled for next week. Attempt #3. It hasn't been easy physically nor mentally. I must at least maintain a body temperature of 97.5 which has been a very tough feat within itself! Lately my body temperature still remains far too low. Without getting into too much info right now, until at least after surgery. Once I wake up, my body only has so much left in reserve on vital chemicals and hormones that my brain can no longer provide me. Quickly becoming depleted once I wake up in the morning doesn't leave me with much time to get things done on a daily basis before I go into crisis mode. Then it's time for injections that I now must do at home. It hasn't been easy by any means and it also isn't very cheap. That's putting it lightly! This is why getting myself ready both physically and mentally next week for the third attempt is so very, very important.

Time is of the essence.

If it wasn't for such a scary injection that also must be used for final testing before surgery. I believe that one would be in a far better place mentally for what is ahead of me. If they didn't sit down with us, explaining the side effects, risks and sometimes fatal complications. One wouldn't be rethinking everything over and over and over again in my mind. It has gotten so bad that I had my first dream of actually dying. Of all places...I was having a test, in the hospital. I am most definitely one to believe in signs. The very vivid dream has me very frightened, extremely concerned and darn straight...worried! So much so that I reached out to my psychologist of over 9 years back in Ohio for a very important meeting next week. I really need some seriously sound advice and who better than from my psychologist who has been helping me cope with the in's and out's for almost a decade. I need some very serious and strong advice. So far, the advice and opinions of others are mostly ones of great concern. My therapist and LC here in Indiana have not been seeing me that long to know everything with regards to my unique journey. Although myself and Eric still highly respect and value their opinions with regards to my health.

But when it comes to this final phase of testing so my team of specialists can proceed ahead with surgery. It has been the toughest decision I have yet to be faced with during my journey. I thought signing liability forms for radiation and chemotherapy that all oncologists must have their patients fill out was scary. One single injection now has me more scared than facing cancer treatments alone.

Let's be honest by saying...when things progress to your brain and your body starts to go into crisis mode. I think anyone in my situation would be scared and extremely worried. Rightfully so!

I am not so sure what next week may hold for me. But one thing is for certain. When it comes to the opinions of those who know me and my health the best. Their opinions weigh very strongly with myself and Eric.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 25, 2017
B-E-A-U-T-I-F-U-L Views! :)
Mood:  happy
Now Playing: Day 2790-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Can you believe this absolutely b-e-a-u-t-i-f-u-l weather?!

Neither can I!

It is far too nice to be indoors! This morning was the most perfect walk yet along the river trails...60 degrees, partly cloudy skies and with a light breeze rippling across the water...

Nothing like getting your big, comfy fall clothes out a bit earlier than usual. But no complaints from this gal. I LOVE IT!

Today we decided to use one of Eric's birthday certificates in order to continue enjoying this most beautiful day! Nothing quite like taking in more country views along the river, a super nice golf course, heated indoor pool and plenty of much needed R&R for two! We couldn't have asked for a better day!

If this weather continues, we both plan on tackling this golf course next month. I might not be much of a golfer...but the views will most definitely be worth a try! Eric has played golf many times over his lifetime. As for myself...I am lucky to just hit the ball off the green. Hahahahaha! It should be a really good laugh of a time!  Hahahahaha!

It's been a pretty lucky day with some fabulous weather, great conversation, delicious fresh brewed international coffee tasting and the most beautiful views of the country hillside...PERFECT! Eric's picture perfect birthday was much needed after a not-so-good past few years with birthday celebrations. They say...When you rid the negative out of your life. You then make room for the positive.

Plenty of laughter, smiles and lots of LVE!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 26, 2017 3:46 PM EDT
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August 24, 2017
A Far HAPPIER Day! :)
Mood:  happy
Now Playing: Day 2789-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Why...Hello there my lovelies!

It is an absolutely, incredibly, b-e-a-u-t-i-f-u-l day here in the country! Actually...This most beautiful fall-like weather will be continuing for the next few weeks.

YAYYY! LOVE IT!

Today is hopefully the beginning to far happier days. Far happier times for our little family. It was a very productive days outdoors for Eric. While I remained productive indoors with finishing up this little hidden vintage gem. All it needed was a little TLC!

What a huge difference some paint can make! The second bedroom project just needed that certain something to make it complete! Only a little further vintage lace detailing and the room will finally be finished. Then it's onto continuing with the living room. I started that project last week. But issues going on with my health have caused a bit of a set back. But I remain hopeful to forge onward with our house flip! Soon enough, it will finally be complete!

We needed a good day...Like today.

A far HAPPIER  day!


Posted by GastroparesisAwarenessCampaignOrg. at 10:11 PM EDT
Updated: August 24, 2017 10:14 PM EDT
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August 22, 2017
The Choice Is Mine. And Solely Mine...For The Taking.
Mood:  sharp
Now Playing: Day 2787-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Gosh darn blessed!

4am...cold sweats, head pain and far too low body temperature.

This not only went on into the early morning hours. But as well followed us across state lines. Into the hospital back in Ohio.

About the only time you will catch this gal crossing state lines into the land of O-hell-io. There is nothing very positive back in Ohio. But a whole lot of negative. A past that I intend to keep in the past, back in the state of Ohio.

This gal has moved onto a new and far more happier way of life in our new home state...Indiana. Of course, my team of specialists still reside back across state lines in Ohio. So do the hospitals where they practice. Also back in Ohio. I cringe at the thought of once again having to cross state lines. Yet, find a huge sense of relief when heading back home. To our new home here in Indiana. That same bad energy state of Ohio still seems to somehow find a way to drain me emotionally. A very bad past 5+ years still resides in that state. We don't plan nor ever intend on moving back. So it's not any surprise that I went into another head-to-head, highly confrontational and most definitely toxic battle with absent family. It's no wonder that I couldn't even walk into this mornings scheduled testing at the hospital...successfully. Testing that should had followed up with a very important surgery. Two weeks in the making.

One would think that this gal should know better to continue battling with the same group of absent individuals whom most definitely do not have my best interest at heart. That also includes my health. Their stress can kill me. Literally. Medical records from as young as an infant. Show a pattern of not following through with specialty care. This isn't the first time to be brought to my attention. During my disability hearing, it was brought up by state attorneys within the first few minutes of my hearing. Some of this mornings 'new' records even took Eric by surprise. A means to an end for my team of oncologists in finding every single last medical history puzzle piece. Medical records don't lie. Although today...I sure wish they did as once again I find myself extremely disappointed with regards to past medical history of handling my health care. Once again being told, "Things like this don't just happen with ones health. Things like this progress over time. It starts as a young child. In your case. An infant. Following up with proper specialty care is crucial as a very sick child. It can make all the difference in the world."

So... I didn't pass the mandatory body temperature of 97.5 this morning. But thankfully I have a very understanding lead oncologist whom rescheduled everything, once again, pushed back another week.

After crossing back into our home state of Indiana. Right back to a nice, warm couch waiting for me....Thanks to Mittens and Beary kitty. Eric went to pick up another round of medication for what will hopefully be the last due to finally getting testing out of the way. Onto a very important surgery next week! We were told that time is of the essence. "We can't keep rescheduling when things are at the point where they are with your health." 

Either I start putting those who do not serve me well in my past. Permanently. Or I allow them to dig my own grave for me.

The choice is mine.

And solely mine...for the taking.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 21, 2017
SOLAR ECLIPSE... Of The Heart... :)
Mood:  bright
Now Playing: Day 2786-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's SOLAR ECLIPSE day!

I mean...who could really miss viewing this absolutely amazing solar eclipse?!

Not I...Not Us...No Way!

Yes, I was one of the lucky ones who ran across these pretty nifty and very cheap solar eclipse glasses over a month ago. A last second purchase while picking up my prescriptions. Eric of course...thought it was a senseless purchase. But not so much now! Most definitely not today!

If you didn't have special glasses to watch this incredibly magical moment as the sun and moon dazzled even the youngest of viewing crowds. You were either S-O-L or in need of an ophthalmologist appointment within the next few days! Heeheeheeheehee! I am not so sure of the old wives tales about instantly becoming blind while looking up at the eclipse. But we must admit. It sure was super bright! Most definitely something to see with the proper glasses! A last second, extremely smart decision purchase at the right time and at the right place!

Eric? He now most definitely agrees!

It's been decades since the last solar eclipse. I actually remember it, but don't remember these nifty glasses. I assume back then we just took our chances of looking up at God's magical solar light show while also taking our chances of becoming blind. Or...with some serious eye irritation and pain over the next few weeks. Heeheeheeheehee!

My idea of how to take these amazing pictures of the beautiful solar eclipse with my cell phone? Simply by placing the same nifty solar glasses over my cell phone camera lens. The trick was placing the solar glasses within a very small frame of the lens. Then looking through the camera lens with my own eyes. It took a bit... But these photos were well worth it!

Solar eclipse~MAGNIFIQUE!

No way! Was I going to miss out on another once-in-a-lifetime moment to view another solar eclipse! This was Eric's first viewing since he didn't remember having the ability to do so nor the nifty glasses during the last solar eclipse. As he put it so perfectly! "Another first of many for us. Viewing the solar eclipse...together." Not only for us, but for many families that came out along the river. On a most beautiful summer day.

A PICTURE~PERFECTO Solar Eclipse...

Of the Heart~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 24, 2017 7:30 PM EDT
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August 20, 2017
YOU Are B-E-A-U-T-I-F-U-L! :)
Mood:  happy
Now Playing: Day 2785-Next GP Chapter... Turning Lemons Into Lemonade :)

 

As I round off the weekend...

I am reminded of what is to come starting next week. Hospital testing, surgery and walking into the land of the unknown...

I am also reminded today of the good and the bad. What comes with enduring more treatments. Hair, no hair, eyebrows, no eyebrows, more weight loss, more dark circles under the eyes. All in hopes of the best hair and cosmetic arsenals that one can find! Heeheeheehee!

Sure, why yes! I can laugh! You see...I have been down this road before. Far too many times over the past 14 months and counting. But you know what? I still feel beautiful! You know what else? No matter how you feel or what anyone else might say or tell you. YOU are most B-E-A-U-T-I-F-U-L too!

Change? Change is good! Change is powerful! As a woman. We can change whenever, however and as many times or as often as we want! I received a very heartfelt email over the weekend from a young lady who is starting her final year in high school. A very proud senior at that! A young woman with a most beautiful smile and even more beautiful soul that embraces change that comes with her illness. Endometriosis. I was asked to share some of her story with you. I was asked to share how she began to understand that no matter how much her illness began affecting her. No matter how much weight she gained from her illness. No matter how ugly, swollen, bloated and pain she feels each and every day. There is ALWAYS. ALWAYS! A reason to feel beautiful!

So...maybe our challenges in life, medically, are different. Maybe our weight loss and gains might be different. Maybe we live differently among what we endure independently. But doesn't it feel damn good to know...WE are still every bit proud, brave and most importantly...B-E-A-U-T-I-F-U-L women! Thank you Melanda for your kind words. Thank you for sharing your brave journey. Thank you for inspiring me!

There are so many ways to embrace beauty. There are so many reasons for all of us, to feel beautiful each and every day! From a dark haired brunette, to a super light blond...I now embrace the fiery red head in me! Why? Because change is GOOD!

To all the woman out there in the world...

YOU are MOST BEAUTIFUL!

And don't YOU ever forget!

* It is beautiful to speak another language. It is beautiful to try.

* Beauty is long hair, and short hair; brown, black, pink, yellow, or white. Beauty is a smooth bald head.

* If you have been to hell and back, your resilience is beautiful.

* You are beautiful when you are afraid to do something, and you do it anyway.

* Flat stomachs are beautiful, sure, but big, soft bellies are beautiful, too.

* Beauty is putting paint on canvas, or strumming a guitar, or baking bread, or dancing with your eyes closed.

* Your bare face in the morning is beautiful. Ask the person who loves you. It’s true.

* Beauty is laughing so hard your eyes are watering and your stomach hurts and you’re yelling, “Stop, stop! Seriously, I’m peeing!” (Yes. Peeing your pants can be beautiful.)

* Beauty is telling a teenage girl that she’s going to be OK.

* Beauty is calling someone out for saying something hurtful, even if you weren’t the one getting hurt.

* Your legs are beautiful. No, really. They are. Look at the curve of your calves, the muscles in your thighs, the peaks and valleys of your knee.

* You are beautiful when you rock out so hard at a concert that your neck is sore the next day.

* Intelligence is beautiful.

* Worldliness is beautiful.

* Compassion is very, very beautiful.

* Beauty is wearing an outfit so fierce that when people compliment you on it you say, “I know, right?” and then, “Oh, I mean, thank you.”

* Strong opinions are beautiful.

* Respecting other people’s strong opinions is beautiful too.

* Women who never wear makeup, whatever their reasons, are beautiful.

* Women who always wear makeup, whatever their reasons, are beautiful.

* Floating in the ocean is a beautiful feeling.

* Your eyes are beautiful. Nobody else has eyes like yours. They are deep and inquisitive and instantly recognizable.

* Beauty is being able to walk gracefully in high heels.

* Beauty is digging your bare feet into the sand.

* Beauty is sitting very still with your thoughts.

* It is beautiful to find the strength to ask for help when you need it. We all feel like we’re drowning sometimes, and we would all be glad to pull you from the rapids.

* Beauty is loving your pet as much as they love you.

* Beauty is a fresh flower in your hair.

* The physical remnants of our life experiences–wrinkles, stretch marks, scars, and sun spots–are beautiful.

* Wisdom is beautiful.

* Humility is beautiful.

* Freedom is beautiful. You are free to fill your life with the things that make you happy.

* Happiness is beautiful.

YOU are BEAUTIFUL!

WDE


Posted by GastroparesisAwarenessCampaignOrg. at 6:03 PM EDT
Updated: July 5, 2018 8:01 AM EDT
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August 19, 2017
It's...Someone's...B-I-R-T-H-D-A-Y! ;)
Mood:  celebratory
Now Playing: Day 2784-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What a beautiful, picture perfect morning for the birthday boy!

It's...Someone's...B-I-R-T-H-D-A-Y today...

Nothing like starting a day full of celebrating than by taking Snoreo up to the dog park. Like...At 7:50am. Heeheeheeheehee! Yep, I am still up and early with the birds! That means once Eric gets home from work. It's time to change and head out the door! Of course, it seems that I am the only one used to this new sleep schedule. Ask Eric or Snoreo...and you can most certainly bet that their reply will follow up with a quick ZZZZZZ... Hahahahaha!

Everyone deserves a special treat for their birthday. Especially with a colorful birthday candle!

This year, Eric requested to have pie. A personal pizza pie! He isn't much for desert. I guess it's a good thing that I only enjoy the icing part on a really good cake! I was never much for the actual cake part of a birthday cake. A birthday pizza pie it is! And it was! Inhaled within a mere 5 minutes. Talking about a GREAT brick-oven, organic style birthday pizza pie! Heeheeheeheehee! Good thing I am not much for pizza either. Nah, I will gladly stick with a healthy protein shake!

Since getting up now between 4:30am-5:30am. And going to bed between 9pm-10pm. Eric was super tired today! He has yet to get used to my new sleep schedule. Another birthday request was given as a much needed nap to end a very long day of celebrating. It's been tough on our little family with one constant change after another! I am very fortune and most definitely blessed to be in it for the long haul with such a beyond patient and understanding spouse. Most folks in this world can't handle illness nor being around those who are sick. Mainly due to refusing to be inconvenienced and burdened by the illness and those who live with it. "I don't have time to help or to be of any kind of support." Yea...That's what they say. Most couples of those who battle illness each and every day end up divorced. It isn't by the spouse who is sick by any means. But due to the spouse whom lacks and refuses the compassion, time, energy and the heart to continue a marriage, in which they feel burdened by their ill spouse." 

Over the years by my own personal struggles, experience and being the support for others whom battle illness. I refuse to be another person who would rather not be burdened. Refusing to be inconvenienced by someone who is battling any illness. By wisdom. I have learned how to never act nor treat others who never asked to be sick in the first place.

I am thankful for my spouses mutual friends and our paths to have crossed many years ago. It couldn't had come at a much more appropriate time in my life! I believe in signs. I also believe that the good Lord closes doors for others to open. Amen.

Happy Birthday to my hubby, best friend, side jokester and most patience, kind, generous soul that I have the privilege to walk along side through out the remainder of my journey. Eric's love, kindness and support as my spouse has never faltered. Even through mishaps and mistakes, in which we all make, because no one is perfect. His heart has been in the right place. I know...because he is not just my spouse, but my only source of support through radiation, chemo and ongoing treatments.

May we all set out to be a far better example of how not to treat others. No one is a burden. We are all a blessing!

HAPPY BIRTHDAY & MANY-MANY MORE!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:04 AM EDT
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August 18, 2017
Let's Do This Weekend...RIGHT This Time!
Mood:  chillin'
Now Playing: Day 2783-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's another weekend...

Time to re-do last weekends steps before testing and surgery early next week. Time to take it easy this weekend. That includes NO drama, NO stress, NO NADA.

I need my body temperature and other levels to be as much on the normal side as possible. Maybe not-so-much as normal as most folks. But I need my levels to not be so foobar as last weekends. I only have this weekend to allow my body as much rest as possible. If I can go into testing and surgery next week, with levels on the okay side... Then my team of specialists won't have to keep rescheduling everything. That means, NO drama, NO stress, NO nada. 

Sunday will be my last round of meds and prep for next weeks rescheduled events. I have asked for advice and opinions from close friends over the past week. Most importantly, Eric's opinion. Making sure that I am making the right decision. Moving forward, once again, into the land of the unknown with my health. Uncharted waters that have once again, presented a very tough case for my team of specialists. Progression of current issues have pretty much left me having to move forward due to issues within my brain that control important bodily functions. Complications from tumors taking their toll, internally. The biggest concern is with not knowing how long it take my specialists to possibly correct what my brain can no longer provide for my body. We have been told, up to a year, possibly even two years. It's a very tough place to be in right now. Most all agree. If the last round of labs weren't so off-the-chart low. Then maybe you could push things off a bit. But since reports are still showing problems within the brain. All have said, they would most definitely move forward and not wait another day with testing and surgery.

Somehow...I remain strong.

Next week is going to be scary as hell. If I said otherwise...I would be lying to myself. But as with life in general. The show must go on. Life must go on. And what is and what will be. No one said it would be easy. But myself and Eric were warned on far too many occasions.

"There is no turning back. Be prepared for complications to continue as things progress."

Time to get my big gal panties on!

Time to repair for a very long week...ahead.

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 17, 2017
ALMOST Finished! :)
Mood:  celebratory
Now Playing: Day 2782-Next GP Chapter... Turning Lemons Into Lemonade :)

 

We are ALMOST  finished!

Can you believe this is part of what used to look like the master bedroom of the house we purchased several months ago?

It has been one heck of a flip! 

Repairing, repainting and redecorating anything and everything we come across through each and every room. This after deciding to take on the massive and quite timely project . Putting every last ounce of energy into creating a most b-e-a-u-t-i-f-u-l country coastal themed home!

This is the master bedroom. Almost, finally complete! Before and soon-to-be after. I found this one-of-a-kind family heirloom at a vintage store here in our little, lazy, river town that should tie in perfectly! A beautiful oil painting that someone no longer wanted for a mere $6.00. Truly a one-of-a-kind masterpiece that just needed a little TLC. Kind of goes with the house theme in general! Like a Charlie Brown Christmas cartoon. It just needs a little LOVE. Maybe...A WHOLE LOTTA LOVE with this house! No joke! HA!

From (literally) hand texturized ceilings with a glove. To chiseling wood floors. Repairing a home, from top-to-bottom that was seriously neglected by prior owners. Not to forget repairs that were way past our help and endless contractors coming and going over the past several months. The goal is to have our home ready to place on the market by next year, early spring.

I am not sure if we have saved the house...or the house has saved us by keeping our minds busy on far happier moments...Together.

Well...off to continue the Vintage lace detail project along the ceiling which will tie into the chandelier and the rest of the rooms theme!  

#LIVE #LOVE #LIFE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 20, 2017 2:23 PM EDT
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August 16, 2017
A Most B-E-E-U-T-I-F-U-L Gastroparesis Awareness Event! :)
Mood:  celebratory
Now Playing: Day 2781-Next GP Chapter... Turning Lemons Into Lemonade :)

 

JOIN US FOR A MOST B-E-E-U-T-I-F-U-L GASTROPARESIS AWARENESS EVENT!

 

 

RAISING GASTROPARESIS AWARENESS ONE PERSON AT A TIME

www.gastroparesisawareness.com

www.gastroparesisawareness.org

UNITED GP WALK SHIRTS, GEAR AND GASTROPARESIS AWARENESS RIBBONS AS SHOWN WITH BUMBLEBEE NOW AVAILABLE

DEADLINE TO ORDER: 9/21/2017

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 17, 2017 5:07 PM EDT
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