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The Road Before & After Surgery
August 22, 2017
The Choice Is Mine. And Solely Mine...For The Taking.
Mood:  sharp
Now Playing: Day 2787-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Gosh darn blessed!

4am...cold sweats, head pain and far too low body temperature.

This not only went on into the early morning hours. But as well followed us across state lines. Into the hospital back in Ohio.

About the only time you will catch this gal crossing state lines into the land of O-hell-io. There is nothing very positive back in Ohio. But a whole lot of negative. A past that I intend to keep in the past, back in the state of Ohio.

This gal has moved onto a new and far more happier way of life in our new home state...Indiana. Of course, my team of specialists still reside back across state lines in Ohio. So do the hospitals where they practice. Also back in Ohio. I cringe at the thought of once again having to cross state lines. Yet, find a huge sense of relief when heading back home. To our new home here in Indiana. That same bad energy state of Ohio still seems to somehow find a way to drain me emotionally. A very bad past 5+ years still resides in that state. We don't plan nor ever intend on moving back. So it's not any surprise that I went into another head-to-head, highly confrontational and most definitely toxic battle with absent family. It's no wonder that I couldn't even walk into this mornings scheduled testing at the hospital...successfully. Testing that should had followed up with a very important surgery. Two weeks in the making.

One would think that this gal should know better to continue battling with the same group of absent individuals whom most definitely do not have my best interest at heart. That also includes my health. Their stress can kill me. Literally. Medical records from as young as an infant. Show a pattern of not following through with specialty care. This isn't the first time to be brought to my attention. During my disability hearing, it was brought up by state attorneys within the first few minutes of my hearing. Some of this mornings 'new' records even took Eric by surprise. A means to an end for my team of oncologists in finding every single last medical history puzzle piece. Medical records don't lie. Although today...I sure wish they did as once again I find myself extremely disappointed with regards to past medical history of handling my health care. Once again being told, "Things like this don't just happen with ones health. Things like this progress over time. It starts as a young child. In your case. An infant. Following up with proper specialty care is crucial as a very sick child. It can make all the difference in the world."

So... I didn't pass the mandatory body temperature of 97.5 this morning. But thankfully I have a very understanding lead oncologist whom rescheduled everything, once again, pushed back another week.

After crossing back into our home state of Indiana. Right back to a nice, warm couch waiting for me....Thanks to Mittens and Beary kitty. Eric went to pick up another round of medication for what will hopefully be the last due to finally getting testing out of the way. Onto a very important surgery next week! We were told that time is of the essence. "We can't keep rescheduling when things are at the point where they are with your health." 

Either I start putting those who do not serve me well in my past. Permanently. Or I allow them to dig my own grave for me.

The choice is mine.

And solely mine...for the taking.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 21, 2017
SOLAR ECLIPSE... Of The Heart... :)
Mood:  bright
Now Playing: Day 2786-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's SOLAR ECLIPSE day!

I mean...who could really miss viewing this absolutely amazing solar eclipse?!

Not I...Not Us...No Way!

Yes, I was one of the lucky ones who ran across these pretty nifty and very cheap solar eclipse glasses over a month ago. A last second purchase while picking up my prescriptions. Eric of course...thought it was a senseless purchase. But not so much now! Most definitely not today!

If you didn't have special glasses to watch this incredibly magical moment as the sun and moon dazzled even the youngest of viewing crowds. You were either S-O-L or in need of an ophthalmologist appointment within the next few days! Heeheeheeheehee! I am not so sure of the old wives tales about instantly becoming blind while looking up at the eclipse. But we must admit. It sure was super bright! Most definitely something to see with the proper glasses! A last second, extremely smart decision purchase at the right time and at the right place!

Eric? He now most definitely agrees!

It's been decades since the last solar eclipse. I actually remember it, but don't remember these nifty glasses. I assume back then we just took our chances of looking up at God's magical solar light show while also taking our chances of becoming blind. Or...with some serious eye irritation and pain over the next few weeks. Heeheeheeheehee!

My idea of how to take these amazing pictures of the beautiful solar eclipse with my cell phone? Simply by placing the same nifty solar glasses over my cell phone camera lens. The trick was placing the solar glasses within a very small frame of the lens. Then looking through the camera lens with my own eyes. It took a bit... But these photos were well worth it!

Solar eclipse~MAGNIFIQUE!

No way! Was I going to miss out on another once-in-a-lifetime moment to view another solar eclipse! This was Eric's first viewing since he didn't remember having the ability to do so nor the nifty glasses during the last solar eclipse. As he put it so perfectly! "Another first of many for us. Viewing the solar eclipse...together." Not only for us, but for many families that came out along the river. On a most beautiful summer day.

A PICTURE~PERFECTO Solar Eclipse...

Of the Heart~


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 24, 2017 7:30 PM EDT
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August 20, 2017
YOU Are B-E-A-U-T-I-F-U-L! :)
Mood:  happy
Now Playing: Day 2785-Next GP Chapter... Turning Lemons Into Lemonade :)

 

As I round off the weekend...

I am reminded of what is to come starting next week. Hospital testing, surgery and walking into the land of the unknown...

I am also reminded today of the good and the bad. What comes with enduring more treatments. Hair, no hair, eyebrows, no eyebrows, more weight loss, more dark circles under the eyes. All in hopes of the best hair and cosmetic arsenals that one can find! Heeheeheehee!

Sure, why yes! I can laugh! You see...I have been down this road before. Far too many times over the past 14 months and counting. But you know what? I still feel beautiful! You know what else? No matter how you feel or what anyone else might say or tell you. YOU are most B-E-A-U-T-I-F-U-L too!

Change? Change is good! Change is powerful! As a woman. We can change whenever, however and as many times or as often as we want! I received a very heartfelt email over the weekend from a young lady who is starting her final year in high school. A very proud senior at that! A young woman with a most beautiful smile and even more beautiful soul that embraces change that comes with her illness. Endometriosis. I was asked to share some of her story with you. I was asked to share how she began to understand that no matter how much her illness began affecting her. No matter how much weight she gained from her illness. No matter how ugly, swollen, bloated and pain she feels each and every day. There is ALWAYS. ALWAYS! A reason to feel beautiful!

So...maybe our challenges in life, medically, are different. Maybe our weight loss and gains might be different. Maybe we live differently among what we endure independently. But doesn't it feel damn good to know...WE are still every bit proud, brave and most importantly...B-E-A-U-T-I-F-U-L women! Thank you Melanda for your kind words. Thank you for sharing your brave journey. Thank you for inspiring me!

There are so many ways to embrace beauty. There are so many reasons for all of us, to feel beautiful each and every day! From a dark haired brunette, to a super light blond...I now embrace the fiery red head in me! Why? Because change is GOOD!

To all the woman out there in the world...

YOU are MOST BEAUTIFUL!

And don't YOU ever forget!

* It is beautiful to speak another language. It is beautiful to try.

* Beauty is long hair, and short hair; brown, black, pink, yellow, or white. Beauty is a smooth bald head.

* If you have been to hell and back, your resilience is beautiful.

* You are beautiful when you are afraid to do something, and you do it anyway.

* Flat stomachs are beautiful, sure, but big, soft bellies are beautiful, too.

* Beauty is putting paint on canvas, or strumming a guitar, or baking bread, or dancing with your eyes closed.

* Your bare face in the morning is beautiful. Ask the person who loves you. It’s true.

* Beauty is laughing so hard your eyes are watering and your stomach hurts and you’re yelling, “Stop, stop! Seriously, I’m peeing!” (Yes. Peeing your pants can be beautiful.)

* Beauty is telling a teenage girl that she’s going to be OK.

* Beauty is calling someone out for saying something hurtful, even if you weren’t the one getting hurt.

* Your legs are beautiful. No, really. They are. Look at the curve of your calves, the muscles in your thighs, the peaks and valleys of your knee.

* You are beautiful when you rock out so hard at a concert that your neck is sore the next day.

* Intelligence is beautiful.

* Worldliness is beautiful.

* Compassion is very, very beautiful.

* Beauty is wearing an outfit so fierce that when people compliment you on it you say, “I know, right?” and then, “Oh, I mean, thank you.”

* Strong opinions are beautiful.

* Respecting other people’s strong opinions is beautiful too.

* Women who never wear makeup, whatever their reasons, are beautiful.

* Women who always wear makeup, whatever their reasons, are beautiful.

* Floating in the ocean is a beautiful feeling.

* Your eyes are beautiful. Nobody else has eyes like yours. They are deep and inquisitive and instantly recognizable.

* Beauty is being able to walk gracefully in high heels.

* Beauty is digging your bare feet into the sand.

* Beauty is sitting very still with your thoughts.

* It is beautiful to find the strength to ask for help when you need it. We all feel like we’re drowning sometimes, and we would all be glad to pull you from the rapids.

* Beauty is loving your pet as much as they love you.

* Beauty is a fresh flower in your hair.

* The physical remnants of our life experiences–wrinkles, stretch marks, scars, and sun spots–are beautiful.

* Wisdom is beautiful.

* Humility is beautiful.

* Freedom is beautiful. You are free to fill your life with the things that make you happy.

* Happiness is beautiful.

YOU are BEAUTIFUL!

WDE


Posted by GastroparesisAwarenessCampaignOrg. at 6:03 PM EDT
Updated: July 5, 2018 8:01 AM EDT
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August 19, 2017
It's...Someone's...B-I-R-T-H-D-A-Y! ;)
Mood:  celebratory
Now Playing: Day 2784-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What a beautiful, picture perfect morning for the birthday boy!

It's...Someone's...B-I-R-T-H-D-A-Y today...

Nothing like starting a day full of celebrating than by taking Snoreo up to the dog park. Like...At 7:50am. Heeheeheeheehee! Yep, I am still up and early with the birds! That means once Eric gets home from work. It's time to change and head out the door! Of course, it seems that I am the only one used to this new sleep schedule. Ask Eric or Snoreo...and you can most certainly bet that their reply will follow up with a quick ZZZZZZ... Hahahahaha!

Everyone deserves a special treat for their birthday. Especially with a colorful birthday candle!

This year, Eric requested to have pie. A personal pizza pie! He isn't much for desert. I guess it's a good thing that I only enjoy the icing part on a really good cake! I was never much for the actual cake part of a birthday cake. A birthday pizza pie it is! And it was! Inhaled within a mere 5 minutes. Talking about a GREAT brick-oven, organic style birthday pizza pie! Heeheeheeheehee! Good thing I am not much for pizza either. Nah, I will gladly stick with a healthy protein shake!

Since getting up now between 4:30am-5:30am. And going to bed between 9pm-10pm. Eric was super tired today! He has yet to get used to my new sleep schedule. Another birthday request was given as a much needed nap to end a very long day of celebrating. It's been tough on our little family with one constant change after another! I am very fortune and most definitely blessed to be in it for the long haul with such a beyond patient and understanding spouse. Most folks in this world can't handle illness nor being around those who are sick. Mainly due to refusing to be inconvenienced and burdened by the illness and those who live with it. "I don't have time to help or to be of any kind of support." Yea...That's what they say. Most couples of those who battle illness each and every day end up divorced. It isn't by the spouse who is sick by any means. But due to the spouse whom lacks and refuses the compassion, time, energy and the heart to continue a marriage, in which they feel burdened by their ill spouse." 

Over the years by my own personal struggles, experience and being the support for others whom battle illness. I refuse to be another person who would rather not be burdened. Refusing to be inconvenienced by someone who is battling any illness. By wisdom. I have learned how to never act nor treat others who never asked to be sick in the first place.

I am thankful for my spouses mutual friends and our paths to have crossed many years ago. It couldn't had come at a much more appropriate time in my life! I believe in signs. I also believe that the good Lord closes doors for others to open. Amen.

Happy Birthday to my hubby, best friend, side jokester and most patience, kind, generous soul that I have the privilege to walk along side through out the remainder of my journey. Eric's love, kindness and support as my spouse has never faltered. Even through mishaps and mistakes, in which we all make, because no one is perfect. His heart has been in the right place. I know...because he is not just my spouse, but my only source of support through radiation, chemo and ongoing treatments.

May we all set out to be a far better example of how not to treat others. No one is a burden. We are all a blessing!

HAPPY BIRTHDAY & MANY-MANY MORE!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:04 AM EDT
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August 18, 2017
Let's Do This Weekend...RIGHT This Time!
Mood:  chillin'
Now Playing: Day 2783-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's another weekend...

Time to re-do last weekends steps before testing and surgery early next week. Time to take it easy this weekend. That includes NO drama, NO stress, NO NADA.

I need my body temperature and other levels to be as much on the normal side as possible. Maybe not-so-much as normal as most folks. But I need my levels to not be so foobar as last weekends. I only have this weekend to allow my body as much rest as possible. If I can go into testing and surgery next week, with levels on the okay side... Then my team of specialists won't have to keep rescheduling everything. That means, NO drama, NO stress, NO nada. 

Sunday will be my last round of meds and prep for next weeks rescheduled events. I have asked for advice and opinions from close friends over the past week. Most importantly, Eric's opinion. Making sure that I am making the right decision. Moving forward, once again, into the land of the unknown with my health. Uncharted waters that have once again, presented a very tough case for my team of specialists. Progression of current issues have pretty much left me having to move forward due to issues within my brain that control important bodily functions. Complications from tumors taking their toll, internally. The biggest concern is with not knowing how long it take my specialists to possibly correct what my brain can no longer provide for my body. We have been told, up to a year, possibly even two years. It's a very tough place to be in right now. Most all agree. If the last round of labs weren't so off-the-chart low. Then maybe you could push things off a bit. But since reports are still showing problems within the brain. All have said, they would most definitely move forward and not wait another day with testing and surgery.

Somehow...I remain strong.

Next week is going to be scary as hell. If I said otherwise...I would be lying to myself. But as with life in general. The show must go on. Life must go on. And what is and what will be. No one said it would be easy. But myself and Eric were warned on far too many occasions.

"There is no turning back. Be prepared for complications to continue as things progress."

Time to get my big gal panties on!

Time to repair for a very long week...ahead.

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 17, 2017
ALMOST Finished! :)
Mood:  celebratory
Now Playing: Day 2782-Next GP Chapter... Turning Lemons Into Lemonade :)

 

We are ALMOST  finished!

Can you believe this is part of what used to look like the master bedroom of the house we purchased several months ago?

It has been one heck of a flip! 

Repairing, repainting and redecorating anything and everything we come across through each and every room. This after deciding to take on the massive and quite timely project . Putting every last ounce of energy into creating a most b-e-a-u-t-i-f-u-l country coastal themed home!

This is the master bedroom. Almost, finally complete! Before and soon-to-be after. I found this one-of-a-kind family heirloom at a vintage store here in our little, lazy, river town that should tie in perfectly! A beautiful oil painting that someone no longer wanted for a mere $6.00. Truly a one-of-a-kind masterpiece that just needed a little TLC. Kind of goes with the house theme in general! Like a Charlie Brown Christmas cartoon. It just needs a little LOVE. Maybe...A WHOLE LOTTA LOVE with this house! No joke! HA!

From (literally) hand texturized ceilings with a glove. To chiseling wood floors. Repairing a home, from top-to-bottom that was seriously neglected by prior owners. Not to forget repairs that were way past our help and endless contractors coming and going over the past several months. The goal is to have our home ready to place on the market by next year, early spring.

I am not sure if we have saved the house...or the house has saved us by keeping our minds busy on far happier moments...Together.

Well...off to continue the Vintage lace detail project along the ceiling which will tie into the chandelier and the rest of the rooms theme!  

#LIVE #LOVE #LIFE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 20, 2017 2:23 PM EDT
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August 16, 2017
A Most B-E-E-U-T-I-F-U-L Gastroparesis Awareness Event! :)
Mood:  celebratory
Now Playing: Day 2781-Next GP Chapter... Turning Lemons Into Lemonade :)

 

JOIN US FOR A MOST B-E-E-U-T-I-F-U-L GASTROPARESIS AWARENESS EVENT!

 

 

RAISING GASTROPARESIS AWARENESS ONE PERSON AT A TIME

www.gastroparesisawareness.com

www.gastroparesisawareness.org

UNITED GP WALK SHIRTS, GEAR AND GASTROPARESIS AWARENESS RIBBONS AS SHOWN WITH BUMBLEBEE NOW AVAILABLE

DEADLINE TO ORDER: 9/21/2017

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 17, 2017 5:07 PM EDT
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August 15, 2017
Resting & Celebrating! :)
Mood:  celebratory
Now Playing: Day 2780-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This gal might be resting today.

But as far as Eric...

he hasn't skipped a beat!

He also hasn't skipped a walk with Snoreo this morning either along the river trails. Another very foggy, almost eerie looking walk along the river trails...

Blame it on the high humidity and summer heat that leaves a thick morning fog along the river. It sure does make for a perfect background for a scary movie of some sorts. Maybe for another addition to the blockbuster movie series, 'Pirates of the Caribbean.' HA!

While I was home resting. At least Snoreo was able to enjoy a brisk, morning walk with his daddy. If only Littleblue was with them. Enjoying the peace and quiet of the early morning hours here in the country. But we know, by all the signs, she is still present. Just in a different form. Spiritual energy.

Regardless of medical set-backs. We still have a very busy and quite celebratory week ahead of us! Eric turns 57 this week! Heeheeheeheehee....So maybe...I added a few years or two. Hahahahaha! The only thing he has been asking for is something to help him gain back a lot of lost weight. Eric's metabolism is already high. Add stress of medical issues that we are enduring with my health. And his metabolism seems to have went off the charts! What he surely wasn't expecting. Was the largest container of protein weight gainer that even shocked him! By the looks of this photo...possibly even shocking Snoreo! Hahahahahaha!

Hey, what can I say?. I know a GREAT deal when I see one!

Looks like someone will be having lots of extra, healthy energy to spend through out the remainder of this project year. Slowly, but surely, we are making our way through flipping our house. One room at a time. The second bedroom project is most definitely taking a lot longer than anticipated. This doesn't even look like the same bedroom anymore. Whether alone the same house! When you take your time and do it right the first time. The end result will be worth the wait! Figuring out why this house had sustained so much damage isn't so much of any type of great mystery anymore. Serious prior neglect and improper reinforcement of a wall, sump pump and French drain system in the basement. The damage is quite obvious to us now. So is the hard work and losing track of far too many hours that we have spent to get this house it's most BEAUTIFUL yet!

This is the second bedroom project. Almost complete!

Country coastal and most definitely looking CHIC!

YAYYYYYYY!!!!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 17, 2017 4:40 PM EDT
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August 14, 2017
ALL Sorts Of FOOBAR!
Mood:  d'oh
Now Playing: Day 2779-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Well...Gosh Darn BLESSIT!

Today just wasn't my day.

Today I ended up all sorts of FOOBAR! Grrrrrr...

Thankfully, my oncologist was able to work me into their schedule after feeling all over the place. Infusion, treatments are suppose to slowly get me somewhat, back on track. What my brain can no longer supply, thanks to tumor complications, is suppose to slowly help me feel a bit better. More like myself. But instead...I woke up with once again, low body temperature, cold sweats, brain fog and my blood sugar levels far too high. Mind you, I haven't been able to consume much. What I have consumed has barely any sugar, not even close enough to spike my levels as soon as I woke up this morning.

Talking about feeling not-quite-right!

Instead of dressing for the hot, humid, summer weather. I went to my appointment this morning as if there was a blizzard outside. HA! This isn't complaining. This is what happens when you think Gastroparesis is bad enough. Trust me, there is always something far bigger and far more scarier! I thought being underneath the six-arm radiation cancer machine bandit was scary. HA! When your brain becomes affected by progression of far scarier things to come. THAT is SCARY! Radiation is also scary. So is chemotherapy and any other experimental oncology treatment. But when your brain starts to become affected. That is when you need to start to worry. 

I was scheduled for testing this week. Followed by surgery so a special pump from good ole London, England could be placed to replenish what my brain can no longer do normally for me. But...After far too low body temperature and far too high blood sugar levels. My team of specialists have decided to postpone everything. At least for a week. This way my body can rest. Along with more medication.

Bring on the comfy winter clothes! Time to catch up on the ole DVR!

Yep, you know how the rest of this story goes...

This TOO shall pass.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 11, 2017
Keep MOVING On! :)
Mood:  bright
Now Playing: Day 2776-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This picture taken of the river this morning pretty much has described my week! Not very clear. And extremely foggy!

I must clear my mind over this weekend in order to make way for next weeks tests and surgery. It isn't a question. It is a must. This means that anything or anyone that attempts to cause me stress, best be warned. I am not the same, weak, naïve, gullible, gal back in Ohio. I don't ask for respect. I demand it. Anything or anyone who stands in my way. Must literally...POOF! away like this foggy morning walk along the river trails.

7:20am to be precise!

I guess you can say that this gal is now one with the early birds. Although, I actually find it very peaceful walking the trails during the early morning hours. There are quite a few others who think alike while seeing the same exact smiling, happy morning faces. I LOVE INDIANA! It's totally different than back in Ohio. City life -vs.- County life. There is no comparison. I would take life in the country -vs.- life in the city, any ole day!

Waking up to the morning sun and then on my good days...Ending a most beautiful day with a most beautiful sunset...PRICELESS.

Tis going to be a very busy weekend! We have a lot on our already full plate and final touches to catch up on with 1 of 3 bedrooms. I started painting the living room. But had to take a bit of a break. Hopefully I can regain some energy in order to kick start this project already in the making! It's been one very interesting year for us. Yet, I am so beyond relieved that things are finally coming together for our little family. They say, when you rid the negative out of your life. Things are bound to get better! 

That is why...I... in Indiana continue to move forward in life. Choosing happiness! I also now choose a lot more wisely when it comes to my new friendships. Trust is earned and it doesn't come easy with me. I learned from the past. I no longer wear my heart on my sleeve for the taking. I didn't leave Ohio for no good reason. I left in order to make a new life for our little family. Away from the past. 

Keep moving on."

And...We will.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:08 AM EDT
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