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The Road Before & After Surgery
August 18, 2017
Let's Do This Weekend...RIGHT This Time!
Mood:  chillin'
Now Playing: Day 2783-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's another weekend...

Time to re-do last weekends steps before testing and surgery early next week. Time to take it easy this weekend. That includes NO drama, NO stress, NO NADA.

I need my body temperature and other levels to be as much on the normal side as possible. Maybe not-so-much as normal as most folks. But I need my levels to not be so foobar as last weekends. I only have this weekend to allow my body as much rest as possible. If I can go into testing and surgery next week, with levels on the okay side... Then my team of specialists won't have to keep rescheduling everything. That means, NO drama, NO stress, NO nada. 

Sunday will be my last round of meds and prep for next weeks rescheduled events. I have asked for advice and opinions from close friends over the past week. Most importantly, Eric's opinion. Making sure that I am making the right decision. Moving forward, once again, into the land of the unknown with my health. Uncharted waters that have once again, presented a very tough case for my team of specialists. Progression of current issues have pretty much left me having to move forward due to issues within my brain that control important bodily functions. Complications from tumors taking their toll, internally. The biggest concern is with not knowing how long it take my specialists to possibly correct what my brain can no longer provide for my body. We have been told, up to a year, possibly even two years. It's a very tough place to be in right now. Most all agree. If the last round of labs weren't so off-the-chart low. Then maybe you could push things off a bit. But since reports are still showing problems within the brain. All have said, they would most definitely move forward and not wait another day with testing and surgery.

Somehow...I remain strong.

Next week is going to be scary as hell. If I said otherwise...I would be lying to myself. But as with life in general. The show must go on. Life must go on. And what is and what will be. No one said it would be easy. But myself and Eric were warned on far too many occasions.

"There is no turning back. Be prepared for complications to continue as things progress."

Time to get my big gal panties on!

Time to repair for a very long week...ahead.

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 17, 2017
ALMOST Finished! :)
Mood:  celebratory
Now Playing: Day 2782-Next GP Chapter... Turning Lemons Into Lemonade :)

 

We are ALMOST  finished!

Can you believe this is part of what used to look like the master bedroom of the house we purchased several months ago?

It has been one heck of a flip! 

Repairing, repainting and redecorating anything and everything we come across through each and every room. This after deciding to take on the massive and quite timely project . Putting every last ounce of energy into creating a most b-e-a-u-t-i-f-u-l country coastal themed home!

This is the master bedroom. Almost, finally complete! Before and soon-to-be after. I found this one-of-a-kind family heirloom at a vintage store here in our little, lazy, river town that should tie in perfectly! A beautiful oil painting that someone no longer wanted for a mere $6.00. Truly a one-of-a-kind masterpiece that just needed a little TLC. Kind of goes with the house theme in general! Like a Charlie Brown Christmas cartoon. It just needs a little LOVE. Maybe...A WHOLE LOTTA LOVE with this house! No joke! HA!

From (literally) hand texturized ceilings with a glove. To chiseling wood floors. Repairing a home, from top-to-bottom that was seriously neglected by prior owners. Not to forget repairs that were way past our help and endless contractors coming and going over the past several months. The goal is to have our home ready to place on the market by next year, early spring.

I am not sure if we have saved the house...or the house has saved us by keeping our minds busy on far happier moments...Together.

Well...off to continue the Vintage lace detail project along the ceiling which will tie into the chandelier and the rest of the rooms theme!  

#LIVE #LOVE #LIFE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 20, 2017 2:23 PM EDT
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August 16, 2017
A Most B-E-E-U-T-I-F-U-L Gastroparesis Awareness Event! :)
Mood:  celebratory
Now Playing: Day 2781-Next GP Chapter... Turning Lemons Into Lemonade :)

 

JOIN US FOR A MOST B-E-E-U-T-I-F-U-L GASTROPARESIS AWARENESS EVENT!

 

 

RAISING GASTROPARESIS AWARENESS ONE PERSON AT A TIME

www.gastroparesisawareness.com

www.gastroparesisawareness.org

UNITED GP WALK SHIRTS, GEAR AND GASTROPARESIS AWARENESS RIBBONS AS SHOWN WITH BUMBLEBEE NOW AVAILABLE

DEADLINE TO ORDER: 9/21/2017

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 17, 2017 5:07 PM EDT
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August 15, 2017
Resting & Celebrating! :)
Mood:  celebratory
Now Playing: Day 2780-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This gal might be resting today.

But as far as Eric...

he hasn't skipped a beat!

He also hasn't skipped a walk with Snoreo this morning either along the river trails. Another very foggy, almost eerie looking walk along the river trails...

Blame it on the high humidity and summer heat that leaves a thick morning fog along the river. It sure does make for a perfect background for a scary movie of some sorts. Maybe for another addition to the blockbuster movie series, 'Pirates of the Caribbean.' HA!

While I was home resting. At least Snoreo was able to enjoy a brisk, morning walk with his daddy. If only Littleblue was with them. Enjoying the peace and quiet of the early morning hours here in the country. But we know, by all the signs, she is still present. Just in a different form. Spiritual energy.

Regardless of medical set-backs. We still have a very busy and quite celebratory week ahead of us! Eric turns 57 this week! Heeheeheeheehee....So maybe...I added a few years or two. Hahahahaha! The only thing he has been asking for is something to help him gain back a lot of lost weight. Eric's metabolism is already high. Add stress of medical issues that we are enduring with my health. And his metabolism seems to have went off the charts! What he surely wasn't expecting. Was the largest container of protein weight gainer that even shocked him! By the looks of this photo...possibly even shocking Snoreo! Hahahahahaha!

Hey, what can I say?. I know a GREAT deal when I see one!

Looks like someone will be having lots of extra, healthy energy to spend through out the remainder of this project year. Slowly, but surely, we are making our way through flipping our house. One room at a time. The second bedroom project is most definitely taking a lot longer than anticipated. This doesn't even look like the same bedroom anymore. Whether alone the same house! When you take your time and do it right the first time. The end result will be worth the wait! Figuring out why this house had sustained so much damage isn't so much of any type of great mystery anymore. Serious prior neglect and improper reinforcement of a wall, sump pump and French drain system in the basement. The damage is quite obvious to us now. So is the hard work and losing track of far too many hours that we have spent to get this house it's most BEAUTIFUL yet!

This is the second bedroom project. Almost complete!

Country coastal and most definitely looking CHIC!

YAYYYYYYY!!!!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 17, 2017 4:40 PM EDT
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August 14, 2017
ALL Sorts Of FOOBAR!
Mood:  d'oh
Now Playing: Day 2779-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Well...Gosh Darn BLESSIT!

Today just wasn't my day.

Today I ended up all sorts of FOOBAR! Grrrrrr...

Thankfully, my oncologist was able to work me into their schedule after feeling all over the place. Infusion, treatments are suppose to slowly get me somewhat, back on track. What my brain can no longer supply, thanks to tumor complications, is suppose to slowly help me feel a bit better. More like myself. But instead...I woke up with once again, low body temperature, cold sweats, brain fog and my blood sugar levels far too high. Mind you, I haven't been able to consume much. What I have consumed has barely any sugar, not even close enough to spike my levels as soon as I woke up this morning.

Talking about feeling not-quite-right!

Instead of dressing for the hot, humid, summer weather. I went to my appointment this morning as if there was a blizzard outside. HA! This isn't complaining. This is what happens when you think Gastroparesis is bad enough. Trust me, there is always something far bigger and far more scarier! I thought being underneath the six-arm radiation cancer machine bandit was scary. HA! When your brain becomes affected by progression of far scarier things to come. THAT is SCARY! Radiation is also scary. So is chemotherapy and any other experimental oncology treatment. But when your brain starts to become affected. That is when you need to start to worry. 

I was scheduled for testing this week. Followed by surgery so a special pump from good ole London, England could be placed to replenish what my brain can no longer do normally for me. But...After far too low body temperature and far too high blood sugar levels. My team of specialists have decided to postpone everything. At least for a week. This way my body can rest. Along with more medication.

Bring on the comfy winter clothes! Time to catch up on the ole DVR!

Yep, you know how the rest of this story goes...

This TOO shall pass.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 11, 2017
Keep MOVING On! :)
Mood:  bright
Now Playing: Day 2776-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This picture taken of the river this morning pretty much has described my week! Not very clear. And extremely foggy!

I must clear my mind over this weekend in order to make way for next weeks tests and surgery. It isn't a question. It is a must. This means that anything or anyone that attempts to cause me stress, best be warned. I am not the same, weak, naïve, gullible, gal back in Ohio. I don't ask for respect. I demand it. Anything or anyone who stands in my way. Must literally...POOF! away like this foggy morning walk along the river trails.

7:20am to be precise!

I guess you can say that this gal is now one with the early birds. Although, I actually find it very peaceful walking the trails during the early morning hours. There are quite a few others who think alike while seeing the same exact smiling, happy morning faces. I LOVE INDIANA! It's totally different than back in Ohio. City life -vs.- County life. There is no comparison. I would take life in the country -vs.- life in the city, any ole day!

Waking up to the morning sun and then on my good days...Ending a most beautiful day with a most beautiful sunset...PRICELESS.

Tis going to be a very busy weekend! We have a lot on our already full plate and final touches to catch up on with 1 of 3 bedrooms. I started painting the living room. But had to take a bit of a break. Hopefully I can regain some energy in order to kick start this project already in the making! It's been one very interesting year for us. Yet, I am so beyond relieved that things are finally coming together for our little family. They say, when you rid the negative out of your life. Things are bound to get better! 

That is why...I... in Indiana continue to move forward in life. Choosing happiness! I also now choose a lot more wisely when it comes to my new friendships. Trust is earned and it doesn't come easy with me. I learned from the past. I no longer wear my heart on my sleeve for the taking. I didn't leave Ohio for no good reason. I left in order to make a new life for our little family. Away from the past. 

Keep moving on."

And...We will.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:08 AM EDT
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August 10, 2017
The Most Simplest Joys Of Life :)
Mood:  happy
Now Playing: Day 2775-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Lately, this prior night owl is now wide awake with the early morning birds!

Crazy isn't it?.

Days when my brain wants to go, but my body says, no. I still find myself setting my alarm so I am up early enough to watch all of the wildlife come out to enjoy their breakfast. This usually consists of fresh popped popcorn, donkey chow, bird seed, protein blocks for all the deer and fresh water.

This morning we had another special little visitor arrive with their mama by their side.

LOVELOVELOVE

If only those who hunt, as some means of who knows what kind of sport in their twisted minds, realized that when you senselessly shoot deer or any other animal. You are actually leaving their little ones to fend for themselves. Most of the time, what most hunters don't realize, is that the babies do not survive. Thankfully we live surrounded by 18 acres of wooded land that forbids hunting. We found that out rather quickly last fall when one gunshot that could be heard in the near distance came quickly followed by a slue of police sirens. If you hunt here on this land, be prepared to be the one hunted. As a craze-minded wheeling gun slinger. This will also land you a free night in jail and one very not-so-nice consequence with the county judge. Mind you...Country folk might not mind. But they do mind if you trespass or hunt on their land. Protecting their land with registered firearms...Not only legal, but perfectly normal here in the country! I have always had a huge passion for all of God's creatures. Both big and small. I also hold beyond respect for God's land. I doubt that I will be seeing those craze-minded hunters in heaven.

If only society understood, respected and truly appreciated the simplest joys of life. Those free for viewing pleasure. Beauty of the open land. The peaceful waves rushing across the shore. Sounds of early birds flying into the suns warm rays. Yet, somehow, we all forgot about the best part of living. Living...simply...within our means.

I don't miss Ohio. I don't miss living in an overpopulated, cookie-cutter type of community. I don't miss the rudeness and far too fast pace of life that doesn't allow for enjoying what's right in front of your very own eyes. Living in a little community here in Indiana. Living within means, not in excessive means. Actually means enjoying the simple things in life. The littlest wonders of the world and all of it's glory.

Life living in a little, lazy, river town is what country songs are all about...LIFE-LIVED...SIMPLY.

The simplest joys of life.

  

Are simply yours for the taking.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:09 AM EDT
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August 9, 2017
You Know It's Soooooo Wrong~But It Feels Soooooo Right! ;)
Mood:  bright
Now Playing: Day 2774-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Is this an absolutely AMAZING summer or what?!

We are finally able this year to enjoy a much more normal of a summer with much more normal temperatures. Compared to over the past few years and then some! I'm not sure with no longer living in the city suburbs makes a difference? However living in our new little, lazy, river town most definitely brings with it a very nice consistent breeze~

There was another most beautiful sunrise waiting for us this morning! How can one not like living on top of a wooded country hillside?. We love it! However...we would love it more if there was a guarantee that all of the hard work on the roof, gutters and French drain system is actually going to keep the water away from our house. It's been a little over two months. But we still remain hopeful and downright DILIGENT! There is only a few more months left before the summer temperatures will be a thing of the past. Then the real challenge begins! Winter brings with it signs of possible further foundation settlement. That is...if all of the hard work that has been done throughout the house doesn't pay off. No PUN intended!

For now...we continue moving forward with one project after another and another and another. Mr. Snoreo doesn't seem to mind a bit! He still enjoys time at our local dog park with other playful new friends that have been keeping him company. We were anticipating to welcome a new member to our family. But health-wise, we aren't sure what the future may or may not hold. We live for today. Not yesterday and most definitely...not tomorrow. Like I always say, "SEIZE THE MOMENT!"

Talking about seizing or more like...BUYING the moment...

You know when you are out, picking up a few odds and ends. Then of course, something crazy comes across your mind. That moment when walking to the front of the store in hopes of checking out safe and sound. Heeheeheehee! After receiving that final phone call this morning regarding last weeks labs, last weeks infusion and far too many hospital visits to count. As anticipated, my labs once again did not come back with flying colors. Once again, my lab work came back way too far off the charts from anything close to normal. My brain...failed the tests. I dreaded hearing the words from my team of specialists, one in particular today on the phone that is leading this latest progressive discovery, "We have you scheduled Monday with the hospital and oncology infusion team. Your labs are still coming back extremely low. We will need you to proceed forward with everything that has been discussed."

OK...BRING ON THE CANDY & WINE!

Yep, that's right! THIS will teach em! If I am going to have to face the sound of the scariest infusion treatments yet. The same ones that had me literally halt things last week due to fatal warnings. Then by all means, OH YES! You know it's SOOOOOO WRONG...but in my mind...IT FEELS SO RIGHT!

I have been beyond a good patient with regards of eliminating sugar over the past almost 4 weeks. But there are going to be moments in your life when splurging is a must! A reward ahead of time! I will most likely be looking back at this box of candy and wine come early next week...

S-M-I-L-I-N-G

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 11, 2017 4:24 AM EDT
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August 8, 2017
Don't Just Think Upon It...ACT Upon IT!
Mood:  bright
Now Playing: Day 2773-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Why...Hello there my  lovelies!

And what a beautiful morning sunrise here in the country!

This could only mean one thing and one thing only. Yes, another early morning Rise N' Shine for this gal! Time to get the ole game face on!

Since asking for another lab draw late last week before having to put another brave face on. We have been doing the ole waiting game. My labs of course didn't come back within normal levels. So once again they were sent up north for further testing. We already anticipate things to not be within normal range. But I still hold onto hope that possibly they are within at least somewhere on the range. If for obvious reasons they are still well within far-too-low of levels. I will be facing the music once again with my infusion team at the hospital within the next several days. I don't feel any differently since my last visit. In all actuality. I feel more fatigued. We all know that since oncology treatments failed to work. Things will continue to progress. I must face the reality. But I still vow to do so with one hell of a brave face! Having to most likely endure the scariest of injections within this next week. Pending what the lab reports show...A bit frightening. But we all can overcome fear. You can not let fear take over your life. As well, I don't plan on allowing fear to take over mine.

I have come this far and there is no turning back.

Today was a relaxing, take-it-easy kind of project day around the house. Eric began doing some final touch-ups with the hand texturized ceiling in the bedroom. We also have curtain rods and very pretty curtains to hang up which will blend perfectly with the rest of the room! I was even able to realize my dream of having our very first sparkly chandelier! Every gal needs a very pretty, most sparkly chandelier in her life! I am finally realizing mine as we traded our ceiling fans that did not match the current theme through out our home. Don't you just love the new décor apps that allow you to buy or switch out with those who may need what you no longer need when flipping your home! It took us less than 15 minutes to download our photos onto the app, plugged in our local area zip code and within 24 hours we found my chandelier! The other party found their ceiling fans that we no longer need, which were actually just sitting around in our basement. I can't wait to share photos, before and after, of our big bedroom repair, repaint and redecorating project! YAYYYYY!

We have a very tight schedule to stick by this week. Which includes keeping a very close eye on our Cuddles kitty. Grandma Cuddles who is now 19 years and 6 months young. It's so hard to know what to do when fur children start to become ill. Cuddles has more than defied the odds! She is a true feline fighter! We have continued with around the clock home care and IV fluids for her kidneys and heart. It hasn't been easy, but being a responsible fur parent is not an option. It is a MUST! Same as with human children. I have said it before and I will say it again. If you can not be a responsible parent of your fur children or human children. Then PLEASE allow someone else to provide the love and lifetime care that every fur child and human child so much deserves!

Over the past week. Myself and Eric were front and center of a young woman who was by herself at the hospital cancer center. Back in the infusion area. She arrived at the same time as my scheduled infusion. She was alone, by herself while enduring a very harsh round of chemotherapy. This wasn't her first treatment. In fact, when you are in the open infusion room. There is no privacy. You are with other patients, their oncologists, nurses as well those whom support each and every cancer patient. This young woman, one very brave soul, had no one to support her. As she sat there alone, her very concerned infusion nurse asked the young woman, "Is your father coming this morning or did he just drop you off again?" The young woman who was not only very ill, but all alone by herself could only nod her head, "Yes." We could tell that this question not only bothered the nurse, but it most definitely was a very hurtful reality for the young woman. Not once could she lift her head to look at the nurse. This isn't due to embarrassment by any means. This is due to what I am sure everyone could see on her face, disappointment and hurt of not having her father there by her side. Whether alone any other family member there by her side. I could feel her hurt, so could Eric, and it really made me angry. This is not only concerning, but it strikes a HUGE cord with me! I looked at Eric, as he just shook his head in complete disappointment hearing that the young woman's father was not present to support his daughter. I don't care what you have scheduled. I don't care how busy your life may or may not be. I don't care about any excuses you may or may not have. When you have a child or children...young, adult or elderly. I don't care what the age. YOU the parent have a responsibility. A LIFETIME responsibility of your child or children. If you can not be a responsible parent and place your child or children first before yourself. Then please allow someone else to do so for you. In my eyes, as well I am sure in the good Lord's eyes. There are absolutely NO excuses. Not in this lifetime.

As far as that young woman, bravely battling round after round of chemotherapy by herself. I hope that if we ever cross the path of that brave young woman again. Next time there will be someone sitting there, beside her during treatment. Helping, supporting and most definitely CHEERING her on during the most difficult journey of her life. AMEN.

I challenge anyone who has free time on their hands. Because in all actuality, we ALL have free time on our hands. How we choose to use our free time is up to YOU! There are plenty of organizations that need volunteers. Not just oncology, hospice or animal shelters. But many, many other amazing organizations around the world that serve for the better of our citizens, fur children, and every living, breathing form of life. Answering to the call of help.

 Don't just think upon it, act upon it!

Volunteer your time, your free time, to those in need.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:11 AM EDT
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August 7, 2017
Manic Monday~ More Like...RUSHED Monday!
Mood:  rushed
Now Playing: Day 2772-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This isn't a manic Monday.

No way!

This is a RUSHED MONDAY!

We have a lot going on this week. Today was no exception while needing to set our cell phone alarms through out the day. I couldn't get enough sleep in between needing to quickly get up, get dressed and once again, head back out the door! I have no idea how in the world this happens. But some weeks there is just way too much crammed into our crazy schedule!

Isn't that pretty much how today's society lives anyways? Like a bunch of crazy, over scheduled folks that need to just pull the reigns back a bit. More like...needing to really pull those reigns back... A LOT!

Mondays are my therapist and life coach days. Back-to-back appointments with meetings of the minds. A good day to make the most out of a far better, much more positive, a heck of a LOT happier life! Having the help of both has really made a very strong impact in not just my life. But in both of our lives! Even Eric chuckles now in how we used to handle problems, challenges and even the same ole song and dance moments. With the help of those whom live to help others find a better way and a much happier, less stressed, peaceful life. We are most definitely seeing the changes. WE are living the changes of embracing...change. ALL is that good! No negative.

The second bedroom which holds the key to what I hope will be a quite unique texturized ceiling. Still has a bit of work ahead of us. The hand texturized ceiling, literally, hasn't been as easy as one would had liked to imagine. In fact, it has taken more than a few extra days to finish. On my good days, I do my best to max out assisting with this huge project of a bedroom! Then there are days, like today, where my body has absolutely no further energy to lend a hand. This morning it was all up to Eric in hopes of finally finishing the ceiling so we can proceed ahead with any final touch-ups. So far, the texturized look on the ceiling is most definitely fitting the overall country coastal theme. Eric can't believe that he actually likes the overall appearance that it gives to the room. HA! We are hoping to finally have the bedroom finished by the end of this week. Then...It's onto the living room~

LORDIE! I can't begin to tell you how AMAZING it feels to finally bid our final ADIEU to the dark, depressing, dingy colors of the past. We aren't sure what the prior owners were thinking. But then again...maybe some things are better left unsaid. Heeheeheehee!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 9, 2017 3:03 AM EDT
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