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The Road Before & After Surgery
August 6, 2017
Waiting...For A Sign.
Mood:  special
Now Playing: Day 2771-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It's been awhile since our last Celebration Sunday.

So many reasons to be happy, blessed and thankful in our lives. Yet, for over the past few weeks. We have endured quite a lot on our already full plate. Project-wise with our home. Medically-wise with my health. Yet, through it all. We remain strong...Together.

Our beloved Littleblue's cremains have yet to be united with her siblings. The little velvet pouch that holds Littleblue's cremains have remained next to the beautiful sky blue marble urn here at our home. The same urn which will unite her with our other beloved fur children's cremains. Over the past few months, since her passing. I had yet to feel that time...an appropriate time. I have been hoping and praying for the right time, through signs.

This morning. I received my sign.

Today might not be the typical Celebration Sunday. A time to toast to all that is good in life. An evening out on our new festive red patio table and chairs. An intimate dinner for two. But today was still a day of celebration. Celebrating a most beautiful life of such a loving husky with the bluest of blue eyes. Our beloved Littleblue.

This evening we gathered the small box that held a pretty silver heart charm. Along with the beautiful sky blue marble urn. We also decided that today, was okay to finally open up the huge box that contains a new urn. A much larger urn. A beautiful Angel urn with sparkling wings that will one day hold the cremains of our entire little family...Together.

It took a bit to actually open the box. Needing to be extra careful so nothing got damaged. I held the sides of the strong cardboard while Eric carefully slide the box open, one section at a time. Inside held the most beautiful Angel.

There is something to be said in pre-planning. Having the power to make final decisions. Making important life decisions for #1..You.

For us, this day might had taken two months in order to finally receive a sign. That yes, it is most definitely okay! Life is, as it always will be, the most beautiful gift of all. Yet at the end. The most beautiful gift is being able to share the end of your journey...Together.

LiveLOVELife


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 9, 2017 2:10 AM EDT
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August 5, 2017
HAND Texturing...LITERALLY! ;)
Mood:  bright
Now Playing: Day 2770-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Why HELLO there my lovelies!

12+ hours of sleep later...Ahhhhh...Felt GREAT!

Yep, I most definitely felt the side effects this morning from over the past few days. My body was beat! My body needed all of that sleep and then some!

Yesterday evening we celebrated Mr. Snoreo's 3rd birthday. YAYYYY! Who was missing, was his best buddy, Littleblue. It sure didn't feel the same, but all signs point to her still being with us. Signs...spiritually. Snoreo was one very proud birthday boy! Even posing for the camera! Heeheeheehee!

After we both caught up, more on my end, of some much needed sleep. I woke up to Eric getting a jump start on hand texturizing the ceiling of our second bedroom. Another huge project in the making! This is a first, most likely a first of anyone ever hearing or seeing hand texturizing a ceiling while literally using your hand! Hahahahaha! Call it...whatever you will...but this was my idea in the making! We just aren't sure how this hand idea in the making will end up turning out, but creative and artistic is what we are aiming for! Eric...He most likely won't be able to feel his hands or his neck come tomorrow morning. Heeheeheehee! I did assist, but it only lasted for around 10 minutes. I don't have the precise, constant, arm pressure needed, so I opted for the paint brush on the last and final sections of the bedroom walls.

I am going for a unique textured look on the ceiling. I didn't expect this to go very smoothly nor very neatly. But I have a good hunch that the ways things are coming along. The sky is the limit! No PUN intended! Yet, still sticking to a country, coastal theme through out the house.

These photo beauties taken while walking along the river trails will soon enough come to life among the hand  texturing...


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 4, 2017
Round 2! COOL As A CUCUMBER!
Mood:  chillin'
Now Playing: Day 2769-Next GP Chapter... Turning Lemons Into Lemonade :)

 

6AM.

Rise n' Shine!

Another day at the hospital.

Feathers certainly got ruffled after yesterday's failed event of the pharmacist at Ohio's hospital cancer center not checking to make sure that all medication was delivered. Instead they figured it out, after I was already there, waiting for the procedure and everything else to begin. I believe in signs. Possibly, that was one VERY big sign! This after we were placed into a separate room to learn all about the one, single missing injection. Or...As the infusion nurse so carefully explained while telling us, "Please don't let it scare you, but we do need you to read the pamphlet regarding the medication."

1. WARNING/CAUTION: Some people may have very bad and sometimes deadly side effects

O...K... Ummmmm?. These are the side effects that in my opinion. As a patient who is on the receiving end. Should be told prior to the day of, moments before receiving the sometimes deadly side effect injectable drug. But hey! What do I know? I am just the receiving end called, the patient. HA! Or...maybe that was my not-so-cool as a cucumber side of my brain talking. HA! As Eric remained nervous through out the past 24+ hours. Another day of fasting and prepping before this mornings other hospital visit in this time, our home state of Indiana. Let me...think about this... As I contacted my team of specialists yesterday evening.

Thinking about things landed me into more treatments today. The reason is because my brain can no longer provide chemicals and hormones that are used to provide normal, daily, bodily functions. My brain does not provide, now five of these vital chemicals and hormones. I am almost depleted, so replenishment by any means is the most important thing right now. Then it's back to the ole scary stuff. Back to being as COOL as a CUCUMBER! The past few blogs are not about seeking attention by any means. HA! It's about the reality of things going wrong. In various ways with this crazy place we call, life. In all actuality...things do go wrong in life. But in the end. It's how you handle those things that don't go as planned.

I am sure things will hit me, physically, starting tomorrow morning. But for today. I will handle my good moments, good hours and even, good minutes in the making!

Yep, life up those coffee mugs, wine glasses and even a bottle or two.. CHEERS to being determined and defiant as long as the good Lord allows!

No worries, because this too shall pass.

Consider your bad-hair-day...Lucky!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 3, 2017
Sometimes...Things Don't Always Go As Planned.
Mood:  chillin'
Now Playing: Day 2768-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Time to play catch up on the ole blog!

I needed a few days to also catch up on some solid sleep. Much needed for the body and soul!

It has been an eventful past three days. One day I am scheduled early in the morning at a hospital in Ohio. The next morning I am scheduled in another hospital closer to home in Indiana. It's been crazy. But this gal has been determined as ever to remain one thing. Patient. This is a really good sign of change. Positive change in the right direction! With everything that has transpired in the past few days. The old me would had already lost her cool.

But the new me...COOL as a CUCUMBER!

This morning was rather nerve racking for Eric. Nerve racking might be putting it nicely or lightly. I never took Eric back in the oncology treatment areas when first starting treatments. Instead, I would have him wait in the main area due to fear of possibly scaring him or maybe just...protecting him. But this morning was very different. This time Eric was front and center of everything. I mean...E-v-e-r-y-t-h-i-n-g! After the cancer center infusion nurse took me back into the big open treatment room. Then got my huge recliner chair ready and comfy with a new white sheet and warm blankets. She then called for Eric who happened to be sitting in the main waiting area. This time he would be right by my side. Literally. What I forgot was how new this would all be for him. Eric has never truly seen, up front, close and personal what it is like back in the chemo-infusion-treatment room.

While my nurse was getting things ready. Eric came back looking as nervous as one can be! You would had thought that he was the one ready to get their brave face on. His complexion...Casper the Friendly Ghost white. Heeheeheehee! I took one look at him as the nurse asked if he would like anything to drink and said, "Haven't you ever seen or been back in the infusion, chemo treatment area before this?" His reply, "Yea, in the movie 50/50, but not right here. Right in front of everything and everyone." He...was a nervous wreck. While this gal remained holding firmly as COOL as a CUCUMBER! Call it, self-meditating and lots of prior experience in and out of various hospital cancer centers. This time was a bit different, because after 24-hours of fasting and prepping. The pharmacist came out to introduce himself. Why of course, to let us know that one of the main injections never arrived yesterday.

O...K....

One of the main injections that is needed for this morning was never delivered by their carrier yesterday. Nor this morning. By this time it was already past the 8am deadline to begin everything. Cancer centers work the same as every other hospital. They both work on a very tight schedule. And so do my team of specialists. Instead of getting all worked up. The new, improved me just took a deep breath and said, "Well...Okay. Things happen." My nurse and the very sympathetic pharmacist looked as if to take a huge sigh of their own relief. What most need to understand is that it's not me that will be very upset. It's my ordering and attending team of specialists. Let's just say that feathers got ruffled. But what one must remember is that I am the patient. They are the doctors. Let THEM handle it. And....I did.

Eric? He was relieved to just get the heck out of there! Hahahahaha! I think he had enough of being in the midst of those who endure the harshest and most bravest battle of all. Cancer. My heart will always be with those patients. Patients and their family, friends and loved ones. Standing and some even sitting by the side of the strongest group of people I know...Those whom battle cancer.

Tomorrow TIS another day


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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August 2, 2017
Fear...LESS!
Mood:  bright
Now Playing: Day 2767-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Fear...

Another round of some serious KICKA** is needed come early tomorrow morning! This after needing to brave some serious fear ahead of me.

My Sherlock Holmes team of specialists have done another unthinkable! An outstanding and most QUICK job of figuring out another medical connected mystery. Since now I am down to one kidney. There was a need for my specialists to dig a lot further due to other labs reporting back far from normal reports. If it wasn't for the necessity of life sustaining chemicals and hormones. There would be no need for my hospital visit come tomorrow morning. Unfortunately, this is just another case of way-past-the point of taking a pill.

I have come to realize, by another duo of an amazing life coach and outstanding therapist. That some things in life are perfectly fine and A-OK to share with others. It isn't about seeking attention. It's about sharing the power of overcoming fear and adversity. Inspiring others along the way! The difference is learning and knowing the limits of what to share and what to keep private. Confidential.

As I bravely walk into another land of the unknown round of hospital testing come tomorrow morning. Which will land me into another surgery. I am hopeful that everyone's morning CHEERS with a cup of ole Joe, a glass of wine...OR even a bottle! HA! Helps land me another successful round of testing, into a very successful surgery. My fear has been getting the best of me with testing that is necessary for issues within my brain. Connected issues that were bound, in time, to progress. What I have come to realize, by far too much personal medical experience, is that fear can get the best of you. But YOU can learn from fear.

Over the past week. I have learned to turn all of that fear into becoming KICKA**....

FearLESS!

I got my game face ready! Time to get these shenanigans ON!

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 5, 2017 11:57 PM EDT
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August 1, 2017
AUGUST 1ST?!?!
Mood:  rushed
Now Playing: Day 2766-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Why HELLO again my lovelies!

And what a most beautiful summer morning here in the country!

I can't believe it...AUGUST 1ST?!? Where does the time go? I also can't believe it, but school has officially started back as well here in the country. We should had taken the hint while at our local retailer. All of the school supplies were literally WIPED OUT! Little E also starts back to school this month. It's crazy to think that soon enough, he will be in middle school...YIKES! Then of course, Eric has his birthday celebration this month. And Mr. Snoreo will officially be turning 3 years old later this week! Will his birthday wish of a friend aka partner-in-crime come true? Only time will tell...

Speaking of time!

We have begun the process of working on the second bedroom. The bedroom closet turned out phenomenal! My expectations of how the rest of the bedroom will turn out are just as high! I have grown tired of working in such small, confined spaces, closets. Having big, open walls to start my next repairing, repainting project is just what this gal needed! Let the house-flipping FUN begin!

As a tool carrying gal on a mission...I am very excited and most proud to announce that my plumbing skills that have been put to the test, proved to be not only successful! But we have officially saved over $800.00 in what would had been some serious plumbing work done by our contractor! YAYYYYY! A little bit of plumbers tape, a touch of flexible rubber tape and good ole Flex-Seal...WHA~LA!

And who says that women can't be just as successful, if not more successful in flipping a house than men?! Let's just say that I will be putting all of my new skills to the test in a few months. We are saving the biggest repair project which happens to be the third and final bedroom for last. I went from a beginner to hopefully a master in house repairs. A Rootin-Tootin-Repairin Queen! Thank you most definitely Flex-Seal for not letting a gal down! YAYYYY!

Well...It's time to get back to work! With this year flying by, there is no time to waste! I also have to check in with Mittens kitty and her ghost appearing outdoor friend who has been paying her a visit. Heeheeheeheehee! Ironically, this is how Mitten's kitty began to appear in our lives. By looking in the window.

Hmmmmmm....


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 3, 2017 4:46 AM EDT
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July 31, 2017
Last & Final Closet...COMPLETE! :)
Mood:  on fire
Now Playing: Day 2765-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This is the last and final closet repairing, repainting, makeover project...Before.

And...After...COMPLETE!

YAYYYYYYYY!  WOO~HOO!!

BOY is this gal on a ROLL! She is every bit like the song,

"THIS GIRL IS ON FIRE~THIS GIRL IS ON F-I-R-E-RRRRR~"

Heeheeheeheehee!

I may have my fair share of bad days. But world, WATCH OUT on my good days! I am ON FIRE! We are literally on a roll...A very serious roll with getting this house flipped and ready to place back on the market. However, due to the many lemon gems that we continue to find through out the house. Instead of having it ready by this fall. We have decided to have it ready to sell by early spring, 2018. I plan on staying around long enough to make sure that this house is S-O-L-D! No hidden agendas nor hidden lemon gems like we were left with through out this house. We plan on doing this house flip of repairs, repainting and everything else in between...RIGHT!

RIGHT the first time!

We have our eye on the same location out west, in Nevada. If for some reason, we can not reach our final moving destination come spring, Nevada. We have a backup plan! There is another area in INdiana that we have our eyes on. Another little ole, lazy river town with lots of open land. That means lots of farm land, animals to rescue that can finally roam free. Yep, just call me Mother Wild, in the making! Heeheeheehee!

As for now...Just call me a house-flippin gal on a mission!

"THIS GIRL IS ON FIRE~

THIS GIRL IS ON F-I-R-E-RRRRR~"

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 1, 2017 2:05 AM EDT
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July 30, 2017
If You Want To Lift Yourself Up, Lift Someone Else First.
Mood:  bright
Now Playing: Day 2764-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Why...HELLO My Lovelies!

We have been continuing to stay crazy busy with our house-flip! But sometimes too much, can be a bit too much for me, physically.

Most recently, I have been dealt another unfortunate blow, medically. With each new challenge. I have learned that stepping back for some personal solitude time in order to evaluate the matter at hand is first and upmost important. Not jumping into things, head first, so-to-speak. Having an amazing therapist and new life coach has made all the difference in the world in how I react and respond to progressing issues with my health. It may not be easy. But moving forward, diligently, yet still realistically has proven to work best for me.

I am not asking for prayers. I believe that others whom are in far worse situations than myself could really use our prayers. Instead I ask to cheer my success with upcoming testing and surgery with a coffee, glass of wine or yours for the choosing! That's how I view all the obstacles in life. A means to celebrate an adventure that is as successful as the good Lord allows it to be or become. If you know me. I also don't do pity parties. For myself, I see it as a sign of weakness. Lord knows that is the last thing this gal is...Weak.

So I thank YOU for cheering me on during the upcoming weeks!

As far as prayers of support and means of providing hope. I am asking everyone to please consider helping Clark to find a kidney. I am also asking for your prayers today with great healing powers for Clark who is in need of a kidney.

When you come to a crossroads. Remember that someone else may have it far worse. When you come to a crossroads, remember that this too shall pass. There is always something bigger and yet, far scarier. But through it all. We ALL could not get through the crossroads in life without the compassion from one another. LOVE from one another. Helping one another. Let's all help Clark find a kidney!

If you would like to be considered as a possible donor match for Clark. If you know someone who is willing to see if they are a possible kidney donor match for Clark. Please contact:

UNIVERSITY OF CINCINNATI HOSPITAL

TRANSPLANT DEPARTMENT

1-513-584-7001

1-855-GO-KIDNE

Thank...YOU!

 

"If you want to lift yourself up, lift someone else up first."


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: August 1, 2017 1:32 AM EDT
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July 29, 2017
Movin...ON! ;)
Mood:  on fire
Now Playing: Day 2763-Next GP Chapter... Turning Lemons Into Lemonade :)

 

OK.

We had about enough of the bathroom repairing and repainting project. That is until we find out in the next 24-hours if my latest and greatest pipe connecting idea works...Or not. Heeheeheeheehee!

In the meantime. It's time to continue on this great house flipping project! Time to move onto the second bedroom! The last closet to be repaired and repainted. YAYYYYY! Let's be honest. I am beyond thankful to finally have the bathroom complete! Even if the sink pipes don't connect and are a work-in-progress. Either by myself, Eric or the plumber in a week. We did send off the work estimate to our home warranty company. Who knows what they will or will not cover since they asked us to seek an outside contractor after they failed to find one that is willing to have an I-O-U. For now it's off to begin a new project! Have to keep going forward! The plumbing can wait for now as I am crossing all my fingers and toes. Betting everything on good ole Flex-Seal! More of that later... Hahahahaha!

This is my closet of the choosing since buying this monstrosity of a house. There is a lot to patching and repairing to be done before the painting begins. But I am becoming a pro at this kind of stuff! Give me a day to repair and a day to paint! Closets...They tend to be the easiest for me. If I was a heavy gal, this closet would not be so easy. I tend to believe that they built this house for Twiggy the model from back in the day. Hahahahaha! OK. That WAS funny!

While in between patching, repairing and waiting for drywall to literally dry. I decided to whip up another new recipe. Created by little ole me. I never tend to like using recipes. I would much rather create something on my own. Healthy by all means. Eric, he can forget Little Debbie. Her not-so-healthy snack cakes are a thing of the past. A diet of the past. He did admit to feeling a whole lot better, more wide awake and lots more energy since continuing on the new diet of eating clean and organic. I have to stick to my protein shakes today. Liquid for me! Eric got to try my new and latest fish dish. Thai-fish casserole! It sure smelled really GOOD! After Eric inhaled half of the large casserole dish within a few hours. I guess we can safely assume that it tasted, A-OK! Heeheeheeheehee! Steamed veggies, coconut oil, filleted tilapia and a few secret Thai herbs and seasoning. Before and after cooking. For most, it should last a few days. For Eric. It may only last one. Unless Mittens kitty finds her way up to the kitchen counter, again. Lesson learned last week! Never leave left overs on top of the stove after cooling. Then assume that one year old Mittens is all good for staying on the kitty honor system. I honor not to jump up on the stove, remove the Reynolds wrap and eat daddy's left over rice dish. Hahahahaha!

Well...LOOKIE there! When you work on and off, through out the day, in between napping. This closet might just be finished in a few days. Not 3 as initially anticipated.

YAYYYY! Almost...COMPLETE!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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July 28, 2017
Ripping Out...The WALL?!??!!!
Mood:  d'oh
Now Playing: Day 2762-Next GP Chapter... Turning Lemons Into Lemonade :)

 

When the lemons rain...they literally pour at our house!

Thank goodness the umpteen new drain system actually worked during a few downpours here in the country. The Speedy~Gonzales goal is to make sure that all of the water is being directed 'away' from our house. Not directly over and under our house as prior lack-of proper drains that were installed by the prior owners. I should really highlight the word, "improper." There has yet to be any sort of easy fix with this entire house. Just when we think there will be something that will actually go fairly smoothly...It tends to usually turn out to be a huge undertaking!

The bathroom repairing and repainting project is finally complete. That is...if you don't count another plumber having to make a visit to our house of hidden lemon gems. Pffffff... Seems the prior owners literally joined two different types of pipes, along with two totally different sizes of pipes to hook up the bathroom sink. HOW they meshed the two together can only be described as something out of the stone-age. Literally! Instead of replacing the entire pipe that runs from the sink, through the wall and down into the main drain in the basement. They only replaced one section of the pipe. With what we assumed and today's plumber quickly confirmed. A completely different size pipe, held together by condensation. Water dripping over a long period of time. Most likely in some sort of drip pan or bowl placed behind the sink that actually formed a really thick limestone barrier around the joint that doesn't even fit. How we personally found out was after unscrewing the thick, scaly mess that literally held together two different size pipes. PFFFFF!

We attempted to do our best of using every type of plumbing aid to connect the two different pipes. Thanks also to quite a few online plumbing videos! But after chiseling the thick, nasty crud that was literally holding the two different size pipes together. Nothing has been able to reconnect them without water seeping at a pretty good rate! We are now down to the tub for water, kitchen sink and basement utility tub. OOPS! Can't forget the outdoor hose nozzle! Heeheeheehee! For now anyways... That is because the total cost of having to rip out the wall connected to the original pipe that the prior owners did not replace. But instead used, I assume extra PVC piping laying around in the basement. HA! Will be at the tune of $885.00+. That is also because there is additional plumbing work that needs to be addressed which is connected to the bathroom sink plumbing. Hahahahaha! Hidden agenda? YA THINK! These sellers knew what they were doing. Literally hiding! They aren't fooling me, not one bit! That is because I seem to be the one who is actually stumbling across one huge lemon gem after another. Of course, they moved way, far away to another city in Indiana. I would too if there was a huge possibility of running into the buyers whom are finding one bad repair job or lack of...after another. 

Thankfully, our home warranty company will be covering a good majority of this latest gem of a find! That is...after we pay the plumber first and then have to wait 7-10 days or longer to be compensated by the home warranty company. Seems they can't find anyone that is contracted on their end. We even personally gave them 10 plumbing company names and phone numbers. But sorry home warranty company. This isn't the wild-wild-west where we, "I-OWE-U." No company in their right frame of mind is willing to be paid almost 2 weeks later. BAH! This is how it works in this day and age. A company does the work. A company gets paid after their job is complete. Not 7 to 10 days later. Or longer. Tis why we have to pick and choose right now on what is mandatory. Seems using anything, but the bathroom sink is last on the priority list. That is until I put my Wonder Woman skills, tools and ideas to work! GIRL POWER!

Well...At least now the bathroom looks super nice, clean and shower tiles as white as a sheet of paper! You just can't use the sink. But it looks good! Insert....Laughter~

*WINKWINK*


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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