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The Road Before & After Surgery
June 14, 2017
Not tomorrow. Not even today.
Mood:  not sure
Now Playing: Day 2718-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I am still finding myself waking up to look over at the other side of the couch. Hoping that this is all a dream while finding Littleblue fast asleep next to Snoreo.

Somehow...I believe that Snoreo feels the exact same way as he continues through his own stages of grieving.

It's been hard. It has also been haunting. The images of watching my beloved Littleblue struggle to breathe and then finally take her last breath while looking up at me has been incredibly haunting. I don't believe that the image will ever escape my mind. We still have not felt emotionally comfortable enough to contact the lead veterinarian whom did everything in his power to help our Littleblue. The day of her passing he had reached out to me later that evening via phone. But I was so distraught and under stress that I just allowed the phone to ring and go over to voicemail. I plan on calling him back. Just not until I can get myself emotionally stable for the phone call. There are questions that still remain about the aggressiveness of the cancer. But right now the loss is far too soon. The hurt is still far too deep.

Cuddles kitty has been showing signs of her journey soon coming to an end. Today we had to begin the process of giving her home IV fluids. The thought of losing one more fur child is distressing. Eric lost it when I just brought it up this afternoon. The real possibility of losing another. A second loss in less than a week. I had always told him that I know when my time will be near. When God starts calling back the remainder of our fur children. I firmly believe that the process has already begun. Death does not scare me. Suffering scares me. Watching such unconditionally loving pets that we call family members, our beloved fur children, suffer till their final breath scares me. The entire process with watching Littleblue's cancer aggressively spin out of control is something that even an entire team of veterinarian specialists could not prevent nor could had ever predicted. We were just talking about picking her up after the other animal hospital started her on a few new drugs the day before she passed. Just hearing our groomer of over 10 years talk to Eric on the phone about grooming her a week prior and now she is gone shows us how incredibly evil the grips of cancer can take a life. Cancer forever changes the life of everyone involved. The patient, the family and doctors who attempt everything in their power to possibly save a life.

Human and fur children.

This is a reason why I was so adamant with discontinuing my 3-month rescans and labs. It used to be solely for me to know what I am up against. What I am battling. It is also for my own team of doctors who have taken part of a far bigger mystery while doing their own best to help save a life. Me. Somehow watching the inevitable unfold isn't something that I feel is important. What is important is living life to the fullest. Each and every day. I have learned by watching those we have lost over the years from cancer and other medical ailments is what matters most isn't necessarily what used to matter yesterday. The ending of life puts life into perspective. I wish we could all know when our last day was going to be spending with our family. Same as I wish we could had known that Littleblue would only be with us for only a mere 2 more days. Would I have lived those two days differently? You BET I would! How naïve are we to think we can control life. No one can predict the end of life. No one can predict the unpredictable path of cancer within the human body.

The first of two reminder phone calls and emails regarding my final rescan for later this week. Both left on my cell phone this morning. I have a really bad feeling on things. As well there is something that no one knows. Only myself and Eric. We want to believe, truly believe that it is true. But I have learned over the years by my own personal experience that nothing is promised.

Not tomorrow...Not even today.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 18, 2017 2:06 AM EDT
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June 13, 2017
10 Benefits Of Being A Hermit
Mood:  bright
Now Playing: Day 2717-Next GP Chapter... Turning Lemons Into Lemonade :)

 

My therapist today said it best...

"Depression is much like a flame. Some days it burns more brightly than others."

Depression is very new to me. This is the first time that I have suffered from major depression. Trust me by saying that it doesn't magically go away. Wishful thinking will also not make it magically go away. Neither will doing ones best to stay positive. Depression is like a dark cloud that creeps over you.

I really thought that maybe this would just go away. Doing my best to stay busy and out-think it. YEA RIGHT! I have even been doing my best to stay as busy as possible, thus now beginning the process of catching up with my blog. Thank YOU for understanding. Thank YOU as well to dear friends who are respectively allowing me time to clear my head. A very depressed, physically overworked brain.

In the mist of dealing with this relentless depression. I have learned that being a hermit isn't so bad. Especially when it comes to burning the midnight oil. In fact, I have accomplished quite a lot around the house by taking a time-out for myself, after dark. I have also figured a few great sinking foundation mysteries out during the hermit process. In honor of those whom as well may be suffering from depression. Here are my 10 things I have learned along the hermit way...

1. Darkness brings with it peace while the rest of the world is fast asleep

2. Your electric bill will benefit from accomplishing the day during the midnight hour and beyond

3. Phone reception not only works better at night, but so does your internet high speed connection

4. Walmart is a hermits best friend!

5. Watching your favorite DVR shows is far more relaxing when there are no outdoor distractions such as neighbors cutting grass or cars passing by beeping their horns

6. You can really get some incredible pictures of the moon and stars while wearing your craziest pj's without anyone knowing or seeing. How would they? Everyone else is asleep...

7. Wildlife are at their most active and can be quite fascinating to watch with a really great backyard porch light

8. There are no distractions from phone calls or text messages after midnight

9. One can be as productive as your body allows while staying cool indoors

10. The peaceful ambiance of night brings with it...

A chance to reflect on what is most important in life.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 18, 2017 1:01 AM EDT
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June 12, 2017
Cool~WHATTT Whip!?!!
Mood:  d'oh
Now Playing: Day 2716-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Here is a totally random blog post for your upcoming cookouts and other food-related summer festivities.

It's one thing to find out that Jell-O, Hell-NO, contains boiled skin, tendons, ligaments and bones from cows and pigs. "Cremains." Then again those gummy bears and gummy worms that everyone inhales contains the exact same ingredients...EEEEYIKES!

But now it's no wonder that although I love Cool-Whip. When it comes to my Gastroparesis...It was always a major flip! My GI tract can't handle Cool-Whip nor even Reddi Whip in a can. It's no wonder after a friend sent me some info this afternoon on the actual ingredients for the All-American topping found on many summer deserts and other treats.

No thanks... I will be placing Cool-Whip along side the ole Jell-O and Gummy Bears/Gummy Worms list of things to never eat.

 

Hell-NO!  GROSS!

 

Cool Whip is a popular summertime product used on desserts and other picnic treats. People love the light texture and creamy taste. However, this comes at a cost to your health. The ingredients in Cool Whip is nothing short of a walking heart attack.

Ingredients List

Corn Syrup/High Fructose Corn Syrup-This deadly sugar causes increased weight gain and contributes to obesity, high blood pressure, diabetes and heart disease. This dangerous ingredient also contains mercury, which may cause reproductive problems and degenerative diseases.

Hydrogenated Vegetable Oil-Yuck, yuck, yuck.... this product is made by taking normal vegetable oil and adding metal, heat and hydrogenated gas.

Sodium Caseinate-Biochemical name for casein, used as a food additive in industrial food manufacturing linked to autism and gastrointestinal problems.

Xanthan and Guar Gums-Created by the fermentation of corn sugar with the same bacteria that creates the black spots on cauliflower and broccoli.

Polysorbate 60-A chemical emulsifier that is used in sexual lubricants and beauty products. Research has demonstrated a strong connection between this ingredient and organ toxicity.

Sorbitan Monostearate-This substance may cause irritation to the eyes, respiratory system, skin and stomach.

Natural and Artificial Flavors-Could be anything from duck feathers to insect parts.

So, now that you know what is actually in Cool Whip and Cool Whip Lite, perhaps you will consider paying a tad more and getting some real heavy whipping cream.

After all, you don't want to insult your strawberries, do you?

~TheADaily


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 13, 2017 6:53 AM EDT
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June 11, 2017
Dreaming...A Little Dream~
Mood:  blue
Now Playing: Day 2715-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Lately my days consist of having to take something to help me sleep and then something to help me wake up.

Let's face it...Depression sucks the life out of you.

I knew it would only be a matter of time before I received a hospital mychart message from one of my treating specialists. It was only a matter of time before word traveled around my team of doctors regarding me canceling my 3-month rescan last week. But who could really blame me? I do like to know what I am battling. The possibility to know what I am facing. But we all know that it's a never-ending game. A very frustrating, hard reality to swallow, whether alone except, never-ending game. Just when I think that somehow I finally have some sort of control over some aspect of my life. A message from my lead oncologist trumps my decision due to the necessity of at least one final rescan. This is due to medical information that has been exchanged with rare cancer grants with my unique medical case. The grants are what has helped cover part of my treatment costs and Marinol. The magical little pill that used to work before the vicious cycle began all over again after failed oncology and many other experimental treatments.

Honestly, I have given Marinol a few additional tries over the past month. But it remains to have lost the magic that it once used to provide for me. I fear another rescan. But it looks like once again, the power is not mine for the taking. I have other medication that I must take in order to be able to function on a daily basis. 3 out of the 5 drugs are not covered by our medical insurance. Grant money helps offset some of our costs while providing updates for government research on my unique case. In all reality. It's about providing information in hopes of helping the next patient. Instead of having the power of choice. I am rescheduled now for hopefully what will be my last and FINAL rescan along with labs next week.

Time to get back to what hopefully will be a good nights sleep.

 Dreaming...A little dream...

A far happier time for our entire little family~

Missing our beloved Littleblue


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:46 AM EDT
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June 10, 2017
Back To Reality...After A WHOLE LOTTA HAPPY!!
Mood:  lyrical
Now Playing: Day 2714-Next GP Chapter... Turning Lemons Into Lemonade :)

 

What an amazing night!

Talking about making some seriously HAPPY MEMORIES!

I am still pinching myself!

I am forever grateful for days like yesterday. A chance to escape life...Even if only for a day. We have been through far too much in such a short amount of time. Yesterday was exactly what we needed to just let our minds be free from stress, sadness and far more serious things.

After a great Friday. It was time for reality Saturday.

Back to life. My life and my reality. Depression doesn't just POOF! 

We have a lot to catch up with on our lemonade home. This blog chapter will literally be living up to its name! "Turning Lemons Into Lemonade." There seems to be a calm after the foundation sinking storm with a lot of repairs to attend to inside and outside. We have no choice in the matter anymore. We must keep our house and pray that the good Lord continues keeping us safe. Amen. Our post-it notes are once again popping up all over the place. This time we plan to pace ourselves. One project at a time. We made the mistake early on after landing one hell of a foundation mess last year, October. One can not multi-task a home that needs attention to every little project detail. ONE repair project at a TIME! Not 10 projects going on at once. This is how we both ended up becoming quickly overwhelmed back in October.

Live, learn and don't repeat past mistakes.

Trust me, I have been applying that motto to many different aspects of my life lately. Nothing is worth stressing over because life is far too short to sweat anything. The same goes for anyone who brings you down. I refuse to continue on paths that got me absolutely no where but dealing with the same ole nonsense. Live, learn and don't repeat past mistakes. The biggest lesson is most definitely our house of a million lemons. Sooner or later. The lemons will be running out. It might take until the end of the summer-early fall. But we are determined to take one big negative experience and turn it into one huge positive experience. We have our sights on the prize which still screams, "NEVADA!" Where there is a will, BY GOLLY there will be a way!

In the meantime...I plan on living life to the fullest by whichever way the wind takes me...

#HappyMemories #OneForTheBooks #SilverLining


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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June 9, 2017
GENE SIMMONS?! VIP?! FRONT ROW SEATS?!
Mood:  surprised
Now Playing: Day 2713-Next GP Chapter... Turning Lemons Into Lemonade :)

 

TALKING ABOUT PULLING THE ULTIMATE SURPRISE!!!!!!

I am still pinching myself!

GENE SIMMONS?!  VIP?! FRONT ROW SEATS?!

Like I said before and I will say it again...Friends-framily. They understand me. They are the ones who 'get-it.' What I didn't expect was this! Seeing KISS in concert has always been on my Bucket List. What I didn't expect was to actually have the chance, 1 in ONLY 5 concerts this year to see Gene Simmons and his band in between breaking from the KISS tour. SAY-WHATTTTT?!!!?

Friends in and out of state meeting for a once-in-a-lifetime moment...

GENE SIMMONS!!! YEP!

I AM STILL PINCHING MYSELF!!

You know when things are just meant to be, everything falls into place. I was a bit apprehensive on how I would do making a surprise same-day trip in our car which isn't nearly as comfortable as an SUV. But somehow it all worked out. A beautiful sunset followed by a most beautiful full moon that served as this evenings photogenic backdrop! Signs? They were there and clearly it was meant to be! A once-in-a-lifetime moment to share with great friends. Some I haven't seen in years. PRICELESS!

Not only were we finally able to celebrate our anniversary. But there were a few other reasons to celebrate this evening...Together. A 50th birthday celebration, newlywed and best man, the start of a new business venture and of course doing so VIP-front row with GENE SIMMONS!!!

Actually a sold-out concert of a very intimate 3,000 that brought with it an entirely different concert experience! A far more laid back atmosphere, although, maybe it's because this gal is getting older. But who could tell with all of us in the front row instantly becoming teenagers again while sharing a once in a lifetime experience.

OMGGGGG!  GENE SIMMONS!!

There aren't enough words to describe the show, besides great rock-in-roll and one amazing band that played way past the midnight hour! Even the VIP bartenders were on point! I don't even like long island iced teas, but there were amazing! The entire night, from start to finish was one moment in my life that I will never, ever forget!

GENE SIMMONS!!!!

Did I forget to mention that all of us got to sing onstage like a bunch of crazy fans! HAHAHAHAHA! Age? What's that? Not when you are having the time of your life, celebrating life and with one pretty amazing, super rock-in group of friends!

And of course...

GENE SIMMONS!!!!

I AM STILL PINCHING MYSELF! WE ALL ARE STILL PINCHING OURSELVES!

GENE  SIMMONS!!!!!!!!!!!!!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 12, 2017 7:16 AM EDT
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June 8, 2017
G-O-T-T-A~Keep~G-o-i-n-g~
Mood:  chillin'
Now Playing: Day 2712-Next GP Chapter... Turning Lemons Into Lemonade :)

 

S-I-G-H... I must get out of this funk...

If not one thing, then it's clearly the other. Talking about feeling as if one is in a funk! BIG OLE FUNK.

I have a combination of things causing me to go into major hermit mode. Between losing our beloved Littleblue to cancer, coming off of stem cell pre-treatments, tumors coming back with major vengeance and of course the summer heat and humidity about ready to smack us square in the face. This gal is in one major FUNK.

We have our own funks with regards to our house. Inside and outside. I am sure that isn't helping matters. But one thing is for certain.

THANK THE GOOD LORD FOR GREAT FRIENDS-FRAMILY!!!!

Some may not understand how I have been feeling lately. But those who truly understand and 'get-it' are dear friends-framily. In and out of state. Thank goodness! Kev remembers me bringing over Littleblue as a puppy 10 years ago. He totally understands how hard it is to lose a beloved fur child. Even C, his son remembers meeting our beloved Littleblue for the first time. S-i-g-h... Everyone loved Littleblue. It was very hard for our groomer of over 10 years to listen to a voicemail I left regarding the loss of our most beautiful little girl. Not only did she take it hard. But so did the entire grooming staff who got to share in the love of such a wonderful fur child. 10 years is far too short. Littleblue had just visited with her wonderful groomers for a birthday spa day at the salon just a week prior. It's been devastating for all of us. Especially...Me.

They say that time heals all wounds. I have a feeling that this time it might take me awhile. A long while.

What I really needed was to get out of the house for awhile in hopes of getting my mind off of things. If only for a bit, because any little bit helps when you suffer a major loss. I don't do well sitting around the house due to the constant replaying everything in my mind. Wondering if there was anything else...Anything at all that I might had missed. Anything that I didn't do. But so far it seems that myself and Eric did absolutely everything in our power. Cancer... It's unforgiving.

Today was a day dedicated to doing my best to get out of this funk. Medically, I know that I have awhile before the last pre-treatment is out of my system. Not to mention the swift and harsh hormonal changes from tumors and oncology treatments. I am coming full circle again which means my ovaries are waking up from the deep radiation sleep. "Scary" is more like it when I think about having to come full circle again. Far too high hormone levels, no hormones, too high hormone levels, far too low hormone levels. It is only contributing to part of the problem when it comes to my depression. But as with life. I will have my good days and my bad days. The vampire in me just wants to embrace the peace and quiet of darkness. When the rest of the world is fast asleep. But days like today. I am more grateful than most will ever know of such dear friends.

Understanding~patience

And a peace sign too!  Heeheeheehee!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
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June 7, 2017
A Bit Of Normalcy...
Mood:  chillin'
Now Playing: Day 2711-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It has almost been a week since Littleblue was called back home to heaven. It has almost been a week since I have seen some sort of normalcy. Especially in our household.

What is 'normal' anyways?.

Mittens kitty is back to her terrible-twos ways. The problem with saying that is Mittens kitty will only be turning a year old this weekend. YIKES! She is every bit a toilet paper-paper towel connoisseur in making sure if you aren't looking. She will unravel and rip through every single sheet! Nothing quite like finally taking a shower and coming out to see sheets of toilet paper scattered through out the living room. No worries though, because the guilty refuses to hide. Hahahahaha! Yes, although paper connoisseur destructive, she is still every bit a cutie!

Snoreo on the other hand is still not himself. He misses Littleblue so much that he refuses to sleep anywhere, but on Littleblue's side of the couch. It breaks my heart to see him so sad. We do our best to keep him busy and today we took our first walk back to the river trails. Minus one very important fur child. Our beloved Littleblue. It was a very somber walk. Things will never be the same. Sad but true. At least the weather was nice. Instead of summer temperatures. It was more like fall. Another weekend is upon the horizon. And so is the summer heat and humidity. I am back in full force with my vampireeee ways... BOO! Night is the best time for depression. All is finally quiet while the rest of the world sleeps.

I was invited to Kev's sons baseball game tomorrow evening. Since becoming a depressed hermit. I am not sure if I will be attending. But I am very thankful to have the support and understanding from friends. Especially the understanding of having so much on my already full plate. Not a very positive plate either. But I know soon enough...

Another silver lining awaits...

This evening before calling it a day. I went to close the front door and saw the beautiful blue solar light reflecting from my cat decoration. This is only the second time I have seen the blue light since it stopped working a few years ago. The first time was right before Littleblue's passing. A sign maybe from heaven letting me know that Littleblue has reached the pearly gates across the Rainbow Bridge? It most definitely means something special... A sign.

 A smile that I had been missing for awhile came across my face.

Still yet... Its the little things.

~LOVE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 8, 2017 5:56 AM EDT
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June 6, 2017
Happy...Ummmm...Anniversary?.
Mood:  d'oh
Now Playing: Day 2710-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Happy...Ummmmm... Anniversary?

If I wouldn't had passed by the wall calendar on my way to take Snoreo out this morning. I would had never remembered that today was our anniversary. Eric? He also didn't remember. This is what happens when there is so much going on. When you suffer a great loss of another beloved fur child. Also when you get a phone call from your mortgage lender letting you know that the hardship loan modification got...Denied.

Honestly, I saw it coming. I just don't believe that Eric saw it coming. He took it very, very hard.

Instead of being able to modify the loan so we would have additional money to continue placing Band-Aids on our ever-sinking foundation. Eric got hit with unforeseen VA mortgage penalties and charges. OH YES! The sinking ship...Continues...Sinking...

We just went through a major tax change. The house initially was purchased with no exemptions filed by the prior owners which meant a higher tax bracket and higher than anticipated mortgage payment. After we filed four tax exemptions at the beginning of this year that just went into effect. Our mortgage payment should had decreased significantly. But OH NO... The wrong information and direction from the bank representative, as well not making Eric aware about all the penalties he could face if the modification loan wasn't approved cost us another additional $260.00 on our monthly mortgage payment. Starting July 1st.

YEP! I think I just saw Moby Dick as this ship continues to sink!

Happy Anniversary? I think...NOT. Most certainly not the gift we expected to get. Eric? Infuriated!!!!! Myself? Just going with the downhill spiral flow... 

Drinks anyone? Vodka & 7, Jack & Coke, Strawberry Margarita?

Heck! Just give me all 3!

HAPPY...UMMMMM... ANNIVERSARY.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:49 AM EDT
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June 5, 2017
Go BIG or Go HOME!
Mood:  chillin'
Now Playing: Day 2709-Next GP Chapter... Turning Lemons Into Lemonade :)

 

I am slowly getting back to life.

It hasn't been easy over this past week. In fact, what has been transpiring behind the scenes has been downright, brutal.

I made the decision this morning to cancel tomorrows last rescan. I refuse to bow down any further to what I could never control. Another same ole song and dance...The harsh realization and dance of another rescan. Realizing on the big screen of what never worked. That is depressing. It also signifies another aspect in my life that I can not control. More like...Spiraling out of control.

I will decide when it's my time to go. I refuse to senselessly suffer.

All of the scans, every 3 months, over the course of the past few years have not only been for the benefit of a team of specialists. A way to possibly understand something so rare. But it has also been a way for me to visually see what I am up against. What I am fighting. I have now come to realization of what we were told by Oncology. The vicious cycle remains. I am quickly coming to the point, internally, where I was before starting all of these experimental treatments.

1 year and 1 month ago.

Thankful, is having insurance to cover some of the continued costs. Reality, is realizing that I have the rest of my time here on earth to pay the remainder of what is never covered by insurance companies. Experimental, non-FDA treatments and drugs in hopes of being cured. I most definitely plan on documenting and blogging my entire experience of what it is like to lose it all. Going from almost perfect credit...To using every last single dollar on every single credit card that I proudly kept in great standing. A dear friend of mine in Indiana made a very important point to me today via text, "There is a point in your life when you realize that having perfect credit isn't everything. With life. There is so much more." I have that text message saved for when the collection agencies start their dance of harassment via phone and email. Being on permanent disability doesn't mean that you are permanently exempt from the collection harassment. It just means that your benefits are protected by the government. God help me when it comes time for the bank to take back Camping World's defect that is still sitting on their back lot (now 7 weeks) waiting on repairs that never happened. A mere 2 month old loan...A $32,000 loss and yet to this very day. Not one single phone call or update on what happened to that defective RV. Camping World. I highly don't recommend them seeing I could had at least took that money and put it towards a mortgage loan. A SAFE roof over our head.

You know... It's life. This is life. Everyday is a gamble. And you know what? Life...Isn't always fair. Even the most controlling person in the world. Doesn't necessarily always have control. God is the one who holds the steering wheel. I believe when the old saying was created, he most certainly meant it for me...

"GO BIG or GO HOME!"

I plan on GOING BIG!  Before I GO HOME!

Hahahaha~First time I have laughed in a very long time


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: June 8, 2017 4:33 AM EDT
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