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The Road Before & After Surgery
May 27, 2017
Enjoying The Holiday Weekend :)
Mood:  chillin'
Now Playing: Day 2700-Next GP Chapter... Turning Lemons Into Lemonade :)

 

No rain today means time to get out and enjoy a bit of the holiday weekend!

Snoreo? He's all about finding the biggest stick possible while enjoying a quick morning walk along the river trails. Heeheeheehee! Too darn cute!

Littleblue hasn't been feeling very well over the past 24 hours. We have been noticing that her breathing problems are getting a bit worse. This could be due to that time of the year, allergies, which doesn't help any type of pre-existing issues. Littleblue has been on a bronchial dilator for awhile that had been helping. So we aren't quite sure what the change has been to make her feel so bad?. But for now we don't want to risk having her outdoors for too long of a period at a time. Tis better to play it safe! Walking at the trails for Snoreo and less than 5 minute walks for Littleblue. They both don't do very well in the heat or humidity. But for Littleblue and her super thick Siberian Husky fur, it's much worse on top of having respiratory issues.

We have no holiday plans for this weekend since there is still so much on our list of things to do. Eric has to work all weekend, on top of quite a few Band-Aids that once again need placed through out the house. Inside and outside. Hopefully the Band-Aids will help prevent it from collapsing a bit longer while we continue to strategize on what to do next. There are quite a few Memorial Day festivities going on around our little, lazy, river town. But as for now, I am doing my best to avoid any and all stress. That includes the stress of being in the middle of large holiday crowds. Sandwiched among hundreds of loud, hot, sweaty, drunk folks just doesn't sound very relaxing to us. Nor getting run over, ankles first, by hot-rod baby stroller drivers. Heeheeheeheehee! Hey, just being honest!

Today was all about being productive, yet still finding time to enjoy the great outdoors. There is always time for a breather or two.. Even Snoreo has a pastime which includes watching all the deer come up to my homemade food station feeder. Snoreo doesn't bark, but instead just freezes up until Eric sneaks up behind him! Hahahaha! As far as the deer... I think they are just used to not only us, but Snoreo and the rest of our fur children. We have quite an interesting little family and same goes for who shows up at our homemade feeding station. Lately it's been the most unusual wildlife pair ever!

Raccoons and deer can be best friends

 

 

Even while eating side-by-side together

A beautiful ending to a most beautiful day!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: May 28, 2017 4:10 AM EDT
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May 26, 2017
Wait For It... Wait For It... NEVADA!
Mood:  bright
Now Playing: Day 2699-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Two lemons.

Myself and Eric have each, crazy enough, stumbled onto two separate, yet entirely different lemons. HA!

Mere coincidence or what?.

I am not quite sure.

Eric? He is at a crossroads of his own with regards to our home that we should had vacated out of months ago. Instead, we are still playing a game of the great western standoff to see who will outwit, outlast and literally outlive the opposing side first. The problem with that game just happens to be the other component who is a house with thousands upon thousands of pounds of Bedford stone that could collapse and kill you in one split second. We know first hand by photos shared with us from two engineers on the serious matter at hand. Pictures of homes sitting on unsafe foundations built with Bedford stone. Some with deadly consequences. At this point. Who isn't aware of the dire need to get the hell out of here?! We would had been out of here. If only the next lemon didn't have to magically appear.

Next... My lemon.

We had honestly sold far too many personal items that I care to mention in order to make way for our new temporary home. While the bank and other parties litigate a very serious matter with our home's foundation, fraud disclosure and other private matters. Those parties need us out of this unsafe home. But here we are yet to find a temporary home. Instead I am still dealing with Camping World, Heartland and now the bank who has my new travel trailer loan. Could things get any crazier? I am sure they most definitely could, so for now we continue doing our best in a very tricky situation to remain as calm as possible. Stress at this point, especially for me receiving my next round of new treatments, would do us no good. Who in the right frame of mind would buy a home if they knew upfront the sellers hidden agenda?. Pulling the best David Copperfield of all time while concealing very serious foundation problems. Who has the power to set up a seriously defective mechanical system inside a brand new 36-foot travel trailer? Mind you... All three slides with the same failing mechanical cable system. Sorry, but I can not take the honors of such a lemon when the wrong trailer was sold to me in the first place. Honors to Camping World on that huge mistake.

The craziest part of all, is that there really is no good answer. There are no good resolutions to either matter. But to stay in a home that has been deemed time and time and time again. Unsafe. If it seems  crazy, that is because it is crazy.

When it comes to my brand new travel trailer purchase mistake. It has now been over 3 weeks. No one contacts us on either side of Heartland Corporation or Camping World. They never have, since why would they, when Camping World has already been paid. I had to once again, contact all parties involved today in hopes of getting some answers only to find out. Nothing has yet to be done nor even started at this point. YOLO remains sitting on a second Camping World back lot in waiting. I was told on the phone today by the service department representative reading a long list of notes regarding YOLO. The body shop manager contacted Heartland Corporation in requests to send a representative down to see the major manufacturer defect. This of course might just take them another 3 weeks, 3 months, who knows at this point?

The RV lemon law applies to every state in order to help protect the consumer. In my case the lemon law states that a major repair must be performed in a timely manner. 30 days is the max. Come next week. I will be past my 30 days and already had paid out two payments later with nothing to show for it. No YOLO. In fact, the insurance has now been cut off. The site is no longer after those who own the site expressed their concern on having a serious mechanical issue with all three slide cable systems that constantly remain under high tension and pressure. They expressed to myself and Eric that if it were to ricochet screws again, but this time through a window and hurt someone. It would be a major liability on their part since they are now fully aware of the Heartland defect. Same with insurance not covering a travel trailer that should had already been recalled and paid back in full by Camping World. Let them deal with Heartland Corporation. Sure, it all makes sense doesn't it?. Easier said, than done. 

Maybe I should end this awe inspiring, positively most f-a-b-u-l-o-u-s blog much like a Geico commercial! Hahahahaha! We did at least find a few exceptional buys with my Elite Good Sam Card at Camping World after turning in unused overpriced RV items... TADA!

Yep, that is my silver lining for today~

Peaceful dreams... hdf


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 8:58 AM EDT
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May 25, 2017
Decisions~Decisions
Mood:  bright
Now Playing: Day 2698-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Decisions... Decisions.

We are about to face two, back-to-back not very welcoming decisions with regards to a few issues that will much sooner than later be coming to a head. More like...a close. Not exactly two very positive decisions. But two decisions that must be done no later than next month.

It seems as if we have come to many crossroads over the past few months. How appropriate is this photo taken this morning while getting a bit of exercise on the new river trails. Beautiful country scenery with a friendly reminder that life is constantly changing. We are constantly evolving. Sometimes it's good changes. Other times there might not be any other choice. But to accept and embrace the not-so-great nor fun changes.

If life were constantly all smiles among a bed of rose. Then how the heck would we ever learn? The hardest struggles bring with them the greatest lessons learned. It is through those struggles that we learn how to be strong!

I have my next 3-month rescan and labs in a week. Unfortunately those whom have been doing their best to figure out how to quickly resolve a few connected medical issues are still at a loss. This afternoon I received a personal email from my specialist and his assistant with regards to having to send me to a higher power that be... Be? Another specialist and specialty oncologist. In this situation, I really have no choice in the matter. If I want to continue fighting the great fight and live to the best of my ability. Then I must continue seeking the highest care possible. Especially when issues arise that continue to unexplainably cause my body temperature to plummet out of nowhere. This is not only a huge problem. But it is quite dangerous. They aren't sure why my body can no longer regulate temperature. But feel it is most likely related to ongoing medical issues.

Another crossroad getting ready to hit me is with regards to my current scheduled labs and rescans. It is up to me after this next rescan if I want to continue them every three months or wait and rescan every 6 months. Nothing has really changed since my last several scans. It is more so for my sake since I am the type of person who wants to know what I am battling. What I might possibly be facing. My oncologists and specialists have left the decision up to me if I want to continue rescans every 3 months or just do so when complications arise. This is something that I will need to make a firm decision on by early next month. For now it's onto a new specialist and specialty oncologist who will being assisting my team of doctors.

My life has evolved so much around illness, that sometimes I just need to get away. A great escape!

This is where photography has always been a great passion and joy of mine over the years. Especially when it comes to taking photos of nature and all of God's creatures, both big and small. This is our first teeny, tiny, 1 week old newborn turtle that actually stumbled upon us while walking along the river trails. It's quite fascinating if you think about such a long journey from nesting to now quickly learning to adapt and overcome this brave new world. A quite scary and dangerous new world for tiny little baby turtles such as this baby snapping turtle. Of course we weren't going to leave this little guy in any sort of harms way. So we gently picked this little cutie up and took him home with us to a far safer place. The same place where we placed the rescued box turtle that got stuck in the middle of a very busy intersection just a few weeks ago while on our way to my morning treatment.

We may not have much of a safe home when it comes to our foundation. But we most definitely are surrounded by an incredibly safe habitat for lots of rescued turtles, among many other wildlife that roam free through out the 18 surrounding acres of God's country. I have a feeling this little guy will be safe and sound! Lots of greenery to eat, plenty of shelter and a creek with fresh water to drink and bathe. Of course, having a human wildlife mom to spoil you and the rest of the wildlife animals doesn't hurt either. Heeheeheehee!

Decisions, decisions. We sure do have a lot. But sometimes those decisions can wait. This evening it was time for a much needed break.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: May 28, 2017 1:05 AM EDT
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May 24, 2017
A Very Special Happy Birthday! :)
Mood:  celebratory
Now Playing: Day 2697-Next GP Chapter... Turning Lemons Into Lemonade :)

 

HAPPY BIRTHDAY OUR LITTLEBLUE

A big 1-0!

Littleblue has officially joined ranks with defying the odds in our little family. Still there are no signs of her cancerous growth since undergoing emergency surgery for mammary cancer. She still has connected issues with her breathing while remaining on medication. But today... Today was another reason to truly CELEBRATE a very lucky and quite special Littleblue birthday!

I can still remember her as a puppy staring at me inside this little cat carrier. Two crystal blue colored bandit eyes. Heeheeheehee! I wasn't sure if she was a Littleblue or a tiny baby raccoon. Littleblue has grown into such a beautiful and super sweet fur child with lots of love for her entire family. Snoreo and Littleblue have yet to truly bond since Mr. Snoreo is still in his teenage rebellion stage. But I have a feeling that sooner than later the two will grow to have a very close bond.

From only having a mere week or less to live due to such an aggressive cancer. To now celebrating 10 years of life. We indeed are not only feeling super lucky. But forever 110% BLESSED!

Crazy isn't it? How the cancer journey can take so many twists and turns. Even the best of the best doctors in the world can not predict the end of life. Yet all cancer patients, even fur children, still hold onto the sheer will to survive. That fighting spirit in hopes to live to see another beautiful day.

Cancer not only strikes humans. It strikes every single living breathing form of life. The only thing cancer can't do is to take away such fighting spirit as the spirit who continues defying the odds.

HAPPY 10TH BIRTHDAY OUR LITTLEBLUE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: May 25, 2017 4:53 AM EDT
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May 23, 2017
Learn From Yesterday, Live For Today, Hope For Tomorrow
Mood:  hug me
Now Playing: Day 2696-Next GP Chapter... Turning Lemons Into Lemonade :)

 

 

Don't you just love anxiety that tries it's best to go straight into a full blown panic attack? Said no one. Ever.

One would think that with over 7+ years of professional therapy. That all that counseling would had finally sunk in. Especially lately with a new doctor. One would had thought that this gal would had already learned her lesson since realizing that my anxiety and panic attacks are only from one source. Talking about needing to learn the hard way. Yep, I most definitely did and once again those doors are now closed. A very hard lesson learned.

But what I have learned is that some doors need to remain closed for good reasons. Most importantly for my health. Sad but true.

Learn from yesterday, live for today, hope for tomorrow. And ALL will be.. OK.

HBD


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 9:00 AM EDT
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May 22, 2017
A Lesson In Camping... Camping World.
Mood:  bright
Now Playing: Day 2695-Next GP Chapter... Turning Lemons Into Lemonade :)

 

So... Almost 3 weeks later and we are still without our $32,000+ brand new travel trailer that we unfortunately purchased from Camping World.

Mistake? Let's just say that I was personally WARNED. Actually... VERY WARNED by quite a few prior unhappy customers. Travel trailer, fifth wheel, RV, you name it and their experience was as well, far from any better. One would had thought I would had taken their advice. But NO... I had to once again learn the hard way.

With that being said. We would like to share our top 10 things we learned about Camping World through our own personally horrible experience. Hahahahaha! No really... BAH!

 

 10 Things We Learned About Camping World

#10-Even after 5 phone calls to the dealership on numerous incorrect information given to the bank and insurance company. Don't expect a phone call.

#9-Make sure you match the stock number and vin number to when the RV, travel trailer, fifth wheel, etc was actually delivered to the Camping World location. We found out that it wasn't a mistake to be initially sold the wrong travel trailer. It was intentional since finding out the one they wrongfully sold to us had been sitting on their back sales lot for months. Many months.

#8-Expect after your purchase and closing to never, ever, EVER again receive any type of customer service with regards to your new purchase. Once Camping World finalizes a sale. You are one and DONE!

#7-Expect your initial walk-through to be at the speed of light. Un-informative and a huge waste of time. You would be far better off reading the many owner manuals that come with the travel trailer, fifth wheel, RV, etc.

#6-A speed of light walk-through means far more time trying to sell you outrageously over priced equipment for your new purchase such as water hoses, extension cords, surge protector, converter, water pressure reducer attachment, water filter, over priced toiletries that honestly still don't dissolve in the underbelly tank. Save yourself a LOT of money and just buy Charmin Extra Soft Tissue.

#5-Expect at the end of the very LENGTHY Camping World store walk-though to spend an easy $300.00+ when really all you need to do is some thrifty online research. Purchasing online versus buying from any Camping World will save you a heck of a LOT of $$$~

#4-The ticket price means absolutely nothing at Camping World and the same holds true for their online price and even other ads Camping World places online such as RV Trader. Through my own personal experience with Camping World and doing a lot of homework has shown me that the General Manager does a whole lot of scamming with various price changes. Increasing sticker prices all the way up to $25,000. OH YES! Do your homework before stepping into any Camping World.

#3-Deal against Deal. This pretty much speaks for itself when it comes to an all-out biding war with any other interested customer that also might want to purchase the same travel trailer, fifth wheel, RV, etc. There is no rhyme or reason when it comes to the sticker price. It's whatever the General Manager decides on that particular day.

#2-Never, EVER have a General Manager tell you that they will be loaning you any RV, travel trailer or fifth wheel while your defective, brand new camper is sitting for weeks at their dealership for repairs. We learned this quickly! I was very smart to once again listen to my gut instincts and not use the so-called, "Loaner." Our loaner wasn't a loaner by any means. It was actually just a used fifth wheel that the General Manager placed on the camping site for us since our brand new purchase turned out to be nothing but one big lemon. The problem was after not telling us that he actually still planned on selling the loaner fifth wheel and then actually sold the fifth wheel when it was suppose to be our loaner until our travel trailer was repaired. HA! The same General Manager who didn't pay for the camping site and then found his RV techs coming to pick up the loaner that he sold after refusing to sell it to us... Let's just say that the universe tends to also deliver it's own huge blow! Not paying for the camp site and just dropping off the Camping World loaner fifth wheel?

Pictures sometimes really do speak volumes. Louder than words when the campground owner blocks your fifth wheel in from all angles UNTIL they get their money. Priceless!

#1-Always, ALWAYS do your homework before ever purchasing a travel trailer, fifth wheel, RV, etc. And of course... NEVER buy from Camping World. Google and many other online review websites DO NOT LIE. 

Lesson LEARNED. 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: May 25, 2017 2:26 AM EDT
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May 21, 2017
Whiskey City Regatta!
Mood:  cheeky
Now Playing: Day 2694-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Eric is looking at me right now saying, "I can't believe you are blogging that!"

HAHAHAHA!

This was just too darn FUNNY not to share with almost 1.5 million readers! Oh yea... Eric had an extreme blond moment!

A bit down east of us, along the river is where the first Whiskey City Regatta will be taking place next month. Typically the regattas take place in our little, lazy, river town. But due to construction, they haven't held any type of regatta in quite a few years. Instead, they have been taking place at a neighboring site. Another little, lazy, river town. Lately we have been noticing quite a lot of advertisement starting to show up around our area regarding the first Whiskey City Regatta.

Mind you... What Eric thought this event was about couldn't be anything further than the truth! Hahahahaha!

Instead of writing about what Eric's response to what the Whiskey City Regatta is all about. I decided to just let our text messages do a-l-l the talking! Heeheeheeheehee! For those who are going to be attending or traveling to the event next month. Whiskey or no whiskey... Hahahahaha!

http://www.thinklawrenceburg.com/event/whiskey-city-regatta/

Me: Hey, maybe we should check out the Whiskey City Regatta next month. Have you seen all of the promotional signs on the main drag going into town?

Eric: Whiskey City Regatta? What's that?

Me: Have you ever been to a regatta?

Eric: OH. Is that where they bring in all sorts of whiskey into town on boats?

Me laughing and yet still laughing as I am typing this blog! HAHAHAHA!

Me: LOLOLOLOLOLOL~LMAO!!!!!

Eric: What?

Me: OMG! Nooooo! It's where they race boats. Speed boats! You know... Professional drivers who race speed boats and they make it a big event with vendors, etc. It's not boats that come into town carrying whiskey! Hahahahaha!

Eric: Lol oh

Me: I'm still laughing!!!!! You were so serious too! I don't care who you are that there is funny!

Then I decided to add my own funny Eric spin on him really believing the Whiskey City Regatta was an event where boats from all over the United States bring in different kinds of whiskey~

Me: Hark! See that there ship! That there carries the dark whiskey!

Me: And that little tugboat there. That there carries the little whiskey!

Me: What about there!? What about there pa? What does that big barge carry?.

Me: Why... That there carries all sorts of whiskey son!

Me: But Dad, why do they have all these racing boats if they're supposed to carry whiskey to all of us in the crowd?

Me: Son, the faster they get the whiskey to us, the faster we all be drunk!

Me: And that's the story behind the Whiskey Regatta. A version...for Eric anyways...

Eric: haha

HAHAHAHAHAHA! LOVE IT! A one-of-a-kind blond moment in history that Eric will never be able to live down! EVER. HAHAHAHAHAHA!

The End.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: July 5, 2018 9:01 AM EDT
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May 20, 2017
Ahhhhh... Life With A German Shepherd... Snoreo~
Mood:  cheeky
Now Playing: Day 2693-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Ahhhhh... Life with a German Shepherd... Tis ALWAYS a learning experience!

Meet our 3 years young, 93 pound Mr. Snoreo who is every bit a German Shepherd. A really BIG BABY German Shepherd who is also extremely fond of anything that smells or tastes fruity. HA!

His favorite past-time? Begging for any of my super fruity scented and flavored EOS lip balms. Heeheeheeheehee!

We could never figure out why he has such a crazy EOS fruit lip balm addiction, but he does. Yep, blame it on the German Shepherd genes after quickly finding out from his trainer that ALL German Shepherds love anything fruity. I could be standing on the opposite end of the house, twisting open the round top of my pink grapefruit EOS lip balm and POOF! There is Snoreo! Hahahahaha!

I personally have never raised a German Shepherd. Snoreo is actually a mix of German Shepherd, Siberian Husky, Alaskan Malamute and the little Caesar dog food mascot breed, West Highland White Terrier. Talking about one strange mix! But we do have Snoreo's genetic lab results to prove his sometimes quite odd, yet every single bit German Shepherd looks and mentality. Smart? YOU BET! Although we tend to believe the only Siberian Husky side of Snoreo is his one single blue eye. His large bone structure is every bit a mixture of German Shepherd and Alaskan Malamute. Temper tantrums seem to be the Caesar dog side of Snoreo. Hahahahahaha!

For those who own a German Shepherd or a special kind of German Shepherd, like our Snoreo, here are few really funny facts. All... TRUE!

As for Snoreo? He's still fixated on my pink grapefruit EOS. Heeheeheehee!

Always wanting to know your business all the time. Expect to be followed everywhere, even into the bathroom. Busybody who wants to know where you are and what you are doing at all times.

Get ready to play rough! Be ready for an intense playtime! Always take time-outs so that the play doesn't get too overwhelming.

Negative public perceptions. Thanks to the media, history, popular culture, and surely many mishandled, don't expect to receive a very warm public reaction when outdoors. Some people might automatically get scared due to what they may hear or perceive. We have seen lots of mixed reactions from people who will literally take their time to walk around us and Snoreo to even those who will literally wait in their car until we are out of sight with Snoreo. Hahahaha! Trust me. His objective by breed is to make you as intimidated as possible! But underneath it all, he really just wants your attention. ALLLLL of your attention and lots of spoiling! Heeheeheehee!

Be prepared for some serious vocal demands. I have seen some big baby whiners in my lifetime. But Snoreo takes the cake! He most definitely takes after his German Shepherd side when it comes to constantly talking, whining and all sorts of strange barking. He will whine for all sorts of reasons! Excitement, joy, stress, to get attention, food, etc. Sometimes he will just whine or talk for no reason.

You don't own the furniture. German Shepherds own the furniture in your house. Snoreo is a couch and recliner hog. He doesn't just sit, oh NO, he literally OWNS the couch and recliner. Ready to sit down? Best just take to the floor!

Life with a German Shepherd... In all honesty...

We wouldn't have it any other way

 

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: May 22, 2017 2:40 AM EDT
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May 19, 2017
"Humble And Kind"
Mood:  bright
Now Playing: Day 2692-Next GP Chapter... Turning Lemons Into Lemonade :)

 

"Humble And Kind"

You know there's a light that glows by the front door
Don't forget the key's under the mat
When childhood stars shine,
Always stay humble and kind

Go to church 'cause your mamma says to
Visit grandpa every chance that you can
It won't be wasted time
Always stay humble and kind

Hold the door, say "please", say "thank you"
Don't steal, don't cheat, and don't lie
I know you got mountains to climb
But always stay humble and kind
When the dreams you're dreamin' come to you
When the work you put in is realized
Let yourself feel the pride
But always stay humble and kind

Don't expect a free ride from no one
Don't hold a grudge or a chip and here's why:
Bitterness keeps you from flyin'
Always stay humble and kind

Know the difference between sleeping with someone
And sleeping with someone you love
"I love you" ain't no pick-up line
So always stay humble and kind

Hold the door, say "please", say "thank you"
Don't steal, don't cheat, and don't lie
I know you got mountains to climb
But always stay humble and kind
When those dreams you're dreamin' come to you
When the work you put in is realized
Let yourself feel the pride
But always stay humble and kind

When it's hot, eat a root beer popsicle
Shut off the AC and roll the windows down
Let that summer sun shine
Always stay humble and kind

Don't take for granted the love this life gives you
When you get where you're going don't forget turn back around
And help the next one in line
Always stay humble and kind
 
 
(written by Lori McKenna)

Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: May 22, 2017 10:34 PM EDT
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May 18, 2017
Tax Dollars Hard At Work~Medical Grants~Thank YOU! :)
Mood:  lucky
Now Playing: Day 2691-Next GP Chapter... Turning Lemons Into Lemonade :)

 

This is what makes me  truly happy!

The 3 Kitty Amigos enjoying each others company while taking in an early afternoon nap. It's the little things in life, when least expected, that bring me the most joy~LOVE

Regardless of hardships and struggles that each one of us will endure through out our lifetime. There are still plenty of reasons to be happy. There are endless reasons to smile. For me... It will always be the little things. Like my first accomplishment today putting together a new vacuum while Eric ran a few errands. I even surprised myself! TADA!! With a household of fur children. We tend to be quite hard on vacuums. I have lost track on how many we have went through over the years. Far too many to count! Yep, it's that OCD neat-freak in me! Blame it on the ole genetics. Heeeheeheehee!

I can't believe that the weekend is once again quickly upon us. Where does the time go? This year is already flying by, yet we still have so many things left to accomplish on our full plate. Medically, I still have a lot to accomplish and overcome. I am thankful to have the little things in life to truly enjoy. Each new experimental treatment most definitely puts life in a whole new perspective, not just for myself, but as well for Eric. We have learned a great deal. I will have to admit that each new treatment brings with it an entirely new found appreciation for life. I have lived, learned and yet I still find myself learning something new each and every day.

Happiness for me is enjoying what the good Lord has created for all of us. It's the little things that I appreciate and respect so much more! 

Within such a short amount of time. What I have learned to also be thankful for is where some of our hard earned tax dollars go. Tax money hard at work helping others. I wasn't always on disability. SSD was not by my choice, but rather because I had no choice, medically. Like most americans. I worked through out my lifetime. Like most americans. I also paid my fair share of taxes through out my lifetime. Yet, I was never fully aware of where some of our tax dollars go with regards to government grants.

There are patients, like myself, who are blessed enough to benefit from medical grants. Tax money hard at work helping those who fight each and every single day for another chance at life. Far better days. This bill we received today in the mail signifies how some of those tax dollars help fund grants. For myself, rare cancer grants. Ongoing experimental oncology treatments that are not covered by insurance companies. If it weren't for our tax dollars hard at work. I wouldn't be so fortunate as I am today.

Humble? That is an understatement!

This is only a mere amount out of a total $37,275 that we have to pay. Such a small amount for experimental treatments that could possibly help me to continue living far better days ahead. Without being so sick, without being in so much pain and without worrying if we can afford the next experimental drug or treatment.

I am one of many patients who benefit from government funded medical grants. Rare cancer grants allow for me to receive costly medication that is as well not covered by our insurance company. All I can say is thank YOU. Thank you for allowing myself along with so many other patients the chance to fight in order to see and most importantly, enjoy far better days.

Thank you for helping to make rare cancer grants possible.

Thank YOU!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: May 20, 2017 4:41 AM EDT
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