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The Road Before & After Surgery
February 4, 2017
All Packed Up!
Mood:  chillin'
Now Playing: Day 2588-Next GP Chapter... Turning Lemons Into Lemonade :)

 

It was another cool, brisk, winter day in the country...

A great day to enjoy an early morning walk along the river trails. A gal could get used to this, if only we weren't destined to complete our final move out west.

We are still on hold in hopes of finding out the next round of state and county testing early next week, along with new certification information. Nevada's state and county academy test schedules are still not available for online review. Patience... p-a-t-i-e-n-c-e...

 With one heck of a crazy winter season, our home is in dire need of some temporary repairs. Certainly not financially$$$ planned, but unfortunately next week we have a contractor coming out to see what can be done. This house has definitely been a non-stop money pit, but tis better safe, than sorry. Last thing we need is the roof and thousands of pounds of sandstone falling on top of us. EEEE`YIKES! We have bags of Quikset concrete to use for a few areas around the foundation, but with this crazy winter weather, we might have to wait and check first with the contractor next week. I can only imagine what lies ahead for us with our house of lemons, if we are still here during the upcoming spring season. Insects and lots of bees that will most likely attempt finding their way indoors if we don't fix the foundation cracks outdoors. My anxiety spikes just thinking about all the additional work! Not that we haven't done enough work as it is for a house that had a clean disclosure. Yea..... RIGHT!... Ha!

At least we will have plenty to laugh about during the rest of this winter with our green screen. Heeheeheeheehee! I didn't realize just how complicated the photo software is when manipulating the green screen. I started working on it a bit last night, but the ole fatigue got the best of me. We did get quite a few really good laughs with some absolutely hilarious backgrounds! Of course, per President Trump's expense.

"We are going to make Green Screen GREAT again!"

Hahahahaha!

Next week is going to be one very busy week for both of us. We have a meeting at little E's school, drivers license and car tag changes, auditors office information to drop off for our upcoming taxes, contractor estimates for temporary foundation repairs, doctors appointments and far too many other errands to even remember. What we might be in dire need of next week, is lots of energy!

We better enjoy this low-key weekend while it lasts...


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 6, 2017 2:02 AM EST
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February 3, 2017
WOO~HOO! 6 MORE Weeks Of WINTER! :)
Mood:  celebratory
Now Playing: Day 2587-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Time to celebrate all that is good in life!

Like... Punxsutawney Phil saw his shadow yesterday and you know what that means! Right? R-I-G-H-T!

6 more weeks of super FAB, most BEAUTIFUL winter weather! WOO~HOO!! Bring on the SNOW!

By the looks of this radar, winter is here to stay for at least another 6 weeks. Hopefully more! I love winter! I dislike summer. I am so not looking forward to the summer heat, humidity and a real possibility of having to wait until Nevada's state certification for their prison system, along with the next round of classes becomes available. Since Eric is still waiting for a few certificates from the Army, we might end up missing the next round of training. This means that we will have to wait until the next open registration, in which we were told, call back in a few weeks. They don't have the next round of scheduled classes available, not just yet, so this means having to possibly continue dealing with a home that we are not certain what will happen next with the foundation. Since we were in the process of moving out of state and beginning process of court litigations with our home. Now we might have to put things on hold for a little bit longer.

Life happens. Not everything always goes as planned, but we will remain staying the course...

We are also looking into a possible move down south, close to framily, friends who are family. Sis and her family. We can't confirm anything, not just yet, but it is a possibility. A REAL possibility. Eric is as well, looking into county and state prison systems for their class schedules, along with their requirements. Regardless of what I am facing medically. It will not stop me, nor us, from pursuing our dreams and a final destination. A permanent place to finally call, "Home."

With a brisk winter weekend upon us. We finally got our Christmas gift out of it's box and put together. I am not one for reading directions. I consider myself more of a hands on person, so I decided to watch Eric put together our Christmas green screen photography kit. Talking about taking it to another professional level! You can only imagine how much FUN we plan on having in the very near future... Like this weekend! Who cares if we are stuck indoors while I am on my latest round of medication and antibiotics. We can still have fun indoors!

GREEN SCREEN FUN!

OH... WHAT FUN IT WILL BE!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 4, 2017 2:15 AM EST
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February 2, 2017
Keep Moving On!
Mood:  chillin'
Now Playing: Day 2586-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Another reason for loving the country life?

No more big city gas prices!

YAYYY!

We have yet to hardly see our little, lazy, river town gas prices go past $2.00 a gallon. Fact. A very happy wallet fact of life!

It was an early rise-n-shine morning... Back to the oncologists for another round of bad news. As for myself? Nothing new was much of any surprise to me. A bit disappointing? Sure. Myself and Eric know the drill, especially when new symptoms arise and instead of leaving. They are here to stay. I doubt that my oral surgeon would be any bit surprised at today's news, but all I can do is keep fighting. Sometimes... That is all you can do. Grin, bear it and keep moving on!

There are families that like to tell folks that, "It's always something with her health." These are the same folks that shun down at good ole fashion counseling. Although, most would agree with most folks by saying, "It's usually those families that shun down at counseling, that are the ones who need counseling the most." Especially to learn how to conduct themselves around those who are sick. As for us? We believe that taking good care of your mental health, is just as important as taking good care of your physical health. Some folks believe that if you have a bad run in with one counselor. That every other counselor will end up the exact same way. Non sense! That is like saying if you have a bad experience with one airlines. The other airlines will also end up leaving you with the same bad experience. Where I am going with this? If you are one reading this and shaking your head, then maybe you might need counseling.

Anywho... Moving on...

I have met my maximum, human capacity limits with oncology treatments. What does that mean? I am past the point of safety for my own health. Any other round of experimental oncology treatments, would end up fatal for me. We were told this at the last and final Cancer Center appointment. My fourth and final new Cancer Center and team of Oncologists whom delivered the news that there was no further options. All five avenues in oncology have been explored and nothing worked. What does this mean now? It means that oncology can stage new findings, but that is all they can do for me. This doesn't mean I have to like the facts, but that I must accept the fact.

Eric was on his best and most quiet behavior, while reading a really great book that our new counselor had requested for him to read. A very positive, uplifting and highly motivational book written by, Steve Harvey. "JUMP." Once Eric is done reading the book. I plan on reading it myself. There is nothing wrong with motivation books, same as, there is nothing wrong with counseling. Same as taking good care of your physical health, regardless if you are coming to the end of a long journey. Your mental health is just as important. We could all strive to be a better version of ourselves today, than what we were yesterday. Talking to a private, 3rd party, about issues you are facing or having in life is perfectly, OK. In fact, you will never find any doctor, specialist or oncologist to ever shun down on good counseling. Fact.

This might had been another very disappointing appointment for me, for us, today. What we did leave with was further insight on what I will be fighting with everything I got left inside of me. Some medical information will remain private. Some we have decided not to share on this blog. What I will remain sharing is the positive side of even the worst news. The silver linings. The need to continue every day laughter.

There is ALWAYS a silver lining.  ALWAYS.

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 4, 2017 1:25 AM EST
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February 1, 2017
Yells On Top Of The Mountain.. "E COLI!"
Mood:  chillin'
Now Playing: Day 2585-Next GP Chapter... Turning Lemons Into Lemonade :)

 

No...

Not, "RICOLA!"

BAH.

Heeheeheehee! Although, E Coli is no laughing matter.

8 months later...  I am still dealing with never-ending, E Coli, that has become resistant to quite a few antibiotics. Each rebounding-round of E Coli, has me right back up to the hospital for another round of IV medication, at home medication and more cultures to be sent out for further studies. This latest round, has now shown to be resistant to a few new additional antibiotics. Talking about SCARY! 

After each course of strong antibiotics, I get a mere week break before the E Coli cycle starts up all over again... I don't just have one team of specialists trying to figure out this great E Coli resistant mystery, but instead, now 4 teams of specialists. Yes, it does get old, but unfortunately no one asks for their immune system to turn against them. Experimental cancer-oncology treatments do sometimes help patients, but as well, they can hurt a patient. Especially your immune system. Staying super alert and in tune with new symptoms is a must! So is keeping your sense of humor, in which, me and Eric have become our own at-home comedy team!

#LiveToLaugh

I am blessed to not just have a super amazing spouse-caregiver, but as well, a super loving fur family. Our fur children.

Mittens kitty is quickly on her way to celebrating her 1st official birthday! You know when a kitty is growing out of her baby stages and into her kittyhood years, when she flashes you the 'kitten ear.' Heeheeheehee! Too darn cute!! Mittens is our little fur child blessing. I don't know what I would do without the unconditional love, tiny kisses and never ending fur gang support. They have yet to ever fail me. Ever fail us. Family? Well...

I am still determined as ever to see one of my all-time favorite bands in concert, Journey! I am scheduled for my next rescan, a mere 2 weeks, before we can decide if my body will be able to handle the 3 hour drive to the concert. I am hopeful, but yet, realistic. My mind is more than READY! My body? Only time will tell and so will my next rescan. If they can not get this darn rebounding E Coli under control, then clearly we will have to hand over our front row tickets to another lucky someone, some 2, else. I have plans for the once-in-a-lifetime tickets if we can not go. Hopefully, my body will allow a bit of time to decide if the concert will be a GO or a NO. If we can not go, I will be auctioning off the tickets online. Proceeds from the tickets will go towards local families in need of medical assistance. I also plan on doing something special for a few children that we had met during our short laundry mat, in need of washing machine assistance, when we had plumbing issues with our new home.

There is always... ALWAYS. A silver lining!

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 4, 2017 12:31 AM EST
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January 31, 2017
BLOGTASTIC!
Mood:  chatty
Now Playing: Day 2584-Next GP Chapter... Turning Lemons Into Lemonade :)

 

~BLOGTASTIC~

Nothing wrong with sharing some blog-positive reviews!

Here are some of my early New Year, new YOU`2017 reviews that are certainly worth sharing with YOU!

 

Hair So Fly

If you want to look your absolute best, while keeping your natural hair under wraps. Hair So Fly is your ultimate cyber shop with lots of new hair accessories and amazing deals!

Professional reviews, Show-N-Tell and HSF Rewards Program

Fast shipping, easy returns and outstanding customer service make a new YOU, a definite DO!

https://hairsoflyshop.com/

 

 

Artic Zero

Fit Frozen Desserts

I found this new product by accident while having to take a 4 day blog hiatus. I love ice cream, but with Gastroparesis, ice cream unfortunately does not love me back.

Artic Zero fit frozen desserts are not only super TASTY, but super healthy!

FAT FREE-LACTOSE FREE-GMO FREE-GLUTEN FREE-LOW GLYCEMIC-KOSHER

My two found favorites?

Chocolate Peanut Butter & Cookie Shake

https://www.arcticzero.com/

 

 

SYMCAT.COM

Symptoms To Solutions

What is bothering you today?

Starting to feel a bit under the weather? Not sure if you are suffering from the common cold or the flu? Need quick answers and a quick medical solution?

SYMCAT.COM-Symptoms To Solutions, is an easy to use web program that helps diagnose your medical ailment and direct your care.

Hospital shopper, medication care and other medical answers right at your finger tips!

*HINT~HINT... You would be surprised to find out just how many medical professionals also use SYMCAT.COM-Symptoms To Solutions

http://www.symcat.com/ 

 

 

Don't forget to mention this blog!

#HappyHair

#HappyTummy

#HappyHealthy


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: February 3, 2017 11:31 PM EST
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January 30, 2017
A Walk Down... Memory Lane...
Mood:  special
Now Playing: Day 2583-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Monday... Manic Monday.

We planned on taking a break to catch up on some last minute moving totes, neatly stacked, per-room-pile. What we weren't expecting, was a whole lot of driving today!

A friend of Eric's contacted us in regards to a large rental property one state over, Kentucky. Let's see... So far we have lived in Ohio, Indiana, bound for Nevada and why not just throw in Kentucky for a little extra pizzazz? Heeheeheehee! Sure, why not? At this point, we are both game for anything! We already made our first super major jump, out of Ohio and into Indiana. "I" Indiana. That's how I view this state. "I" comes before "U."

Take care of yourself first. "I." Indiana.

1pm, out the door and headed to the unknown. A very winding, heavily wooded, desolate unknown. We would be lying if we didn't say just how peaceful not only the drive was out to the property, but as well the property itself. The location? PERFECTO! The drive? Not so perfecto. Peace and quiet, country life, certainly fits well for our little family, but having to take a good 25 minute drive off the beaten path and onto a mere, one-lane, tiny, narrow road? A bit too much for both of us. No worries! We actually really enjoyed the peaceful ride, breathtakingly beautiful wooded views and discovering a new part of Kentucky. A part of Kentucky that we would had never known existed, if it wasn't for Eric's friend and a possible temporary rental home.

~There is always a silver lining~

As far as moving out west? Plans are still moving (no pun intended) in the right direction. Those who have asked how Littleblue is doing with her mammary cancer? The tumor is still growing, but thankfully, at a very slow pace. Since there are no surgical options, due to Littleblue's lungs being affected and needing to remain on medication to help with her breathing. Littleblue will remain under Veterinarian specialty care and continues doing well with at home care, along with daily medication.

Mittens, our special little kitty picked out by our beloved Lucky, continues to adjust quite well with the rest of her new siblings! We all miss Lucky and definitely believe that Mittens was meant to be as we took her in as a tiny stray outdoor kitty, to now a super spoiled indoor kitty! Heeheeheehee... Mittens is super smart, totally cute and with the most beautiful green eyes. She's a lover and a keeper for life! XOXOXO

Since some of our Manic Monday schedule brought us back over state lines, into Ohio, we decided to take a walk down memory lane... We once again, braved the brisk winter weather and took a walk at one of our prior parks that we enjoyed walking the trails at over the years. It's interesting when you have been away for awhile, from where you used to live and what you used to know, then go back, even if only for a mere few hours. A chance to visit the parks and walking trails that we enjoyed for years. We both miss the place that we used to call home, but I don't miss the stress. I don't miss feeling suffocated, around those whom caused us a great deal of stress over the years. I don't miss being in a very close proximity with the stress either or those who excluded us over the years, as if we had already died. We don't miss the big city noise, over populated cookie cutter neighborhoods nor the rudeness from living a fast pace way of life. It's strange how in a mere few hours visit, back to where we once called home, has changed over the past 4 months. Not that our current, newly purchased home feels anything like, 'Home.' Yet, what we don't have, is stress or the feeling of being suffocated, nor living within a close proximity around those whom have caused more hurt than they will ever know.

Living in a new state, a new city, in a sleepy, little, lazy, river town is actually quite refreshing! A final stop before our destination location. Nevada.

You can't blame our lemonade home, for what prior sellers failed to disclose, but instead hide while putting others health and safety in jeopardy. You certainly can't blame the house either on how prior parties either failed to take care of the house or used cheap, unprofessional means of repairs that were not disclosed, yet hidden very meticulously. Problem is, I am far wiser and smarter than all involved and all of the above. It didn't take me very long to listen and then visually see what our home had to tell us once the sellers decided to quickly remove their contents, a mere 2 hours, before closing. I may not look at life, the way that most look at life. I look at life through a different set of eyes. A far wiser, much more open to the impossible, set of eyes. I enjoy the process of learning something new each and every day. I am open to the possibilities of lessons that are still left to be learned along the way.

Infinite compassion, endless wisdom~

 


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 31, 2017 12:41 AM EST
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January 29, 2017
LOVING WINTER! :)
Mood:  on fire
Now Playing: Day 2582-Next GP Chapter... Turning Lemons Into Lemonade :)

 

LOVE, LOVE, LOVE this cold winter weather!

Lots of big, comfy clothes and warm blankets kind of weather here in our little, lazy, river town...

With still not feeling GI better, this afternoon was the perfect opportunity to put on our winter clothes and enjoy a short walk along the river trails. Littleblue and Snoreo are always up for a brisk winter walk, our trail leaders! I may not had been feeling too much up for it, physically, but have yet to finish a walk, look at Eric and say, "BOY! Do I feel horrible after that terribly relaxing walk!" Heeheeheehee... Never.

Mobility=Better Motility

What I have also still yet to do, since moving out of state, is to dust off and plug in the ole home treadmill. Luckily, our home foundation has been extremely quiet lately. We aren't sure if this might possibly have to do with Duke Energy hired crews cutting far too many trees in the back of our property, instead of pruning them?. Additional pressure and weight released from the foundation could very well be a possibility for the eerie silence. The cold winter weather and ground starting to freeze might also possibly have something to do with our home finally catching a break. Professional expects feel that it could be very well from both. Released pressure, weight from the trees and much cooler winter weather. This doesn't mean that our troubles are over. Not by any means. It just means that we have finally gotten our long overdue house break. Literally... Break.

With winter weather finally staying for more than a few days, the last thing that I want is to have to stay indoors. Regardless of puking and waves of nausea. There is always an extra large zip lock bag nearby! I still do my best to continue carrying on with life. I could choose to feel sorry for myself and fall victim on the couch `OR` I could vow to continue on and seize the day. You know me...

I decided to seize the day! That included running errands and... Dusting off my treadmill.

Dare you ask what comes next?

YOU already KNOW! #DeterminedAndFIERCE


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 30, 2017 10:04 PM EST
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January 28, 2017
Journey? JOURNEY!
Mood:  chillin'
Now Playing: Day 2581-Next GP Chapter... Turning Lemons Into Lemonade :)

 

With all this much cooler, FINALLY, winter weather. I have been thinking about a few Christmas gifts...

My DNA genetic testing is scheduled to come back within the next few weeks. Myself and Eric are super anxious to see if I am really related to Donald Trump...hmmm... BAH~HAHAHAHA! At this current moment, while he continues to seriously anger the living you-know-what out of folks. In and out of the country. I think it would be far safer right now to be related to Donald Duck. EEEEE~YIKES!!! *applauds*

Less than 2 weeks in office and he has already pissed off almost the entire world. I understand the need for change, but the guy needs to seriously s-l-o-w his r-o-l-l! Our president is becoming down right scary! I sure hope this isn't the making of our next assassinated president, but it sure isn't looking very good. My heart goes out to those who are needing to get back to their families here in the used-to-be, great USA. Those whom have been on a work permit program, working for large corporations like Proctor & Gamble, GE and many others. These same human beings, just like you and me, that have families anxiously awaiting for them to come back home. It's a shame that we the people, have voted for what now seems to be a great bully in the making, running our used-to-be, great country. Don't get me wrong. I like Donald Trump. I would like him even more back where he belongs... On 'Celebrity Apprentice.' If his hair stands as strong as his presidential term. Then we all need to be scared. VERY scared. EEEEEE~YIKES! Heeheeheehee...

Did I just write two paragraphs on politics?!?

LORDIE, I must be not feeling well! HAHAHAHA!

Where was I at again? Oh... yes... Christmas gifts! My other Christmas gift just happens to also be right around the corner, as I still hold the tickets to what should be, one amazing concert of a lifetime! Front row and center, tickets to see Journey at the end of March. YAYYYY! This means I am super excited at the idea of going and finally Journey in concert, but I am still a bit apprehensive. Sure, I have my tickets, but after yesterday's grand let down and unexpected internal war within surprise, who knows?. There is no way in this lifetime that I want to give my tickets away and I will do whatever it takes to attend the concert, but I must still be realistic. I can't predict my good days, from my bad days. I can't even predict anymore if a good day will end in a mere second. Like yesterday. The concert location is 3 hours away. A total of 6 hours in one day, driving time. That is A LOT to ask from my body. These are the times, that I wish research could invent some type of 24 hour magic pill. A one dose pill that would allow you to be free of being sick and other connected medical constraints. I used to think that it did exist, in the form of a little magical pill, Marinol. That was until yesterday.

I still have several weeks before my body ultimately decides for us, the fate of those concert tickets. In the meantime... I have an appointment with my specialist next week, to see where I am with an 8 month rebounding E Coli infection. I am almost certain on the exact location, where I picked up this upmost nasty infection. I remember the day when I gave up a room after radiation for another cancer patient who was struggling to walk after his chemotherapy treatment. On our way out of the oncology treatment center, I started feeling sick and was in need of a bathroom, ASAP! I ended up using a bathroom, right outside of the closed oncology society doors, in which, I would greatly regret later. Like days later, after the first initial signs of E Coli began to surface. The rest? The rest should be history, but unfortunately for me, it is still in the present. I plan on asking my specialist next week if we could possibly move up my dosage of Marinol. I started off on 2.5 mg capsules and now currently taking the 5 mg capsules. The problem is that I have to melt each 5 mg capsule in a large thermal mug of decaf coffee. That means having to drink two large thermal mugs of decaf coffee or decaf tea on a daily basis, on top of my other daily liquid nutrition. I am good just to be able to consume one large thermal mug a day. This might be why I am not reaping the full benefits of my little magical pill. Some days, even with medical, are better than others. If I didn't have an obsolete GI tract, Gastroparesis, my transit time with medications would be normal. I am not alone, but I still get by, like the rest of us GP'ers. One day at a time. Adding cancer treatments and rare tumors only made matters that much harder to handle. Far more difficult for a team of doctors to treat, but I vow to continue on...

Journey?  JOURNEY!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 29, 2017 1:42 AM EST
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January 27, 2017
Marinol... EPIC Fail!
Mood:  d'oh
Now Playing: Day 2580-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Today started off as a really 'good'  day!

Mother Nature brought us back much cooler temperatures and little white snowflakes this morning. A perfect opportunity to really bundle it up and head out to walk the trails along the river. Littleblue and Snoreo are both cold winter pups, so they were super excited to walk the trails with all the beautiful white snowflakes slowly falling from the sky. It was the first time to actually enjoy the snow, instead of only a mere window view or while in route to the hospital.

#SuperHAPPY #BeyondCONTENT

We were actually surprised at all the barges that were slowly drifting down the Ohio river. I love photography, always have, always will! It was a picture perfect morning walk on the new river trails. Cold weather must had scared other walkers and joggers away this morning. Not only was it a beautiful morning with tiny snowflakes falling from the sky, but as well, only us brave winter folks were out on the trails. What a peaceful walk!

One would think, since they started the day off on a 'good' note. The same would hold true for the rest of the day. At least one could had only hoped for as well a good afternoon and great evening! Since we didn't have any plans and Eric's overtime at work got canceled... Again. We decided to head out to watch a few of Eric's old Army buddies compete in a national dart tournament. Time to get out and enjoy something new for a change! I am not one for darts, but have played darts over the years. What we weren't expecting was the huge dart tournament set up with teams from all over the great USA. This was a first for us!

What a great way to team up and have some fun with friends, while also getting the chance to tour around to various locations during tournament season. Talking about some serious competition! Just when you think you have seen it all... You have never truly seen it all! Heeheeheehee~ We saw some of the most creative team shirts from Kentucky, Illinois, New York, Michigan, Ohio, Pennsylvania, Tennessee. You name the state and they were there to represent! Now I can see why Eric's friends are so passionate about playing darts, especially at the beginning of dart tournament season. Of course, we didn't play darts, but were there instead for team support, but unfortunately that support only lasted a mere 2 hours.

My Marinol is 'supposed' to stop nausea and vomiting. A day that started on a good note, which we assumed, would end on an even better note, quickly went all downhill...

I haven't been able to consume many of my nutritional shakes due to still dealing with E Coli intestinal pain. The new antibiotics also make me feel pretty darn achy. My Marinol was working really good on helping to counter act any side effects from the antibiotics, as well, effects from the E Coli itself. Nausea, pain and vomiting. Out of nowhere, the pain and nausea hit me as we quickly made a mad dash for our car. Eric didn't even get a chance to say goodbye to anyone, because I was already sprinting to the car in hopes of getting home ASAP! Needless to say, not having a handy extra large zip lock bag would be our lesson learned, so instead we used the next best thing. A clear bag in the glove box which we use to place the vehicle manufacturer information and other brochures.

Thank goodness Eric at least had left over napkins that he got from work the other day. We couldn't even make it out of the parking lot and the clear bag? It had a hole in it and of course, puke went everywhere! Down my pants, inside my boots, on the car seat, floor mats. UGGGGG! So much for keeping up with my Marinol on a daily basis. Looks like even sometimes, Marinol isn't going to win. It's quite frightening to now realize that I can't even predict when a good day can quickly turn for the worse. Even more frightening to think that if I didn't start sprinting to the car, I would had gotten sick in front of a very large crowd.

Talking about feeling a bit paranoid now!

The pain and puking didn't stop until an hour after we got home. Instead of enjoying the start to what could had been, a really good evening and end to a 'good' day. We instead had to spend it, once again, at home. Eric playing nurse and my beloved fur children by my side.

I am scheduled for my next rescan and labs for the first week of March. A mere 5 weeks away. A mere 5 very scary weeks away...

Facing the unknown, is a very uncomfortable feeling to face.


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EST
Updated: January 28, 2017 11:04 PM EST
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January 26, 2017
RE-Energize Day!
Mood:  chillin'
Now Playing: Day 2579-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Talking about burning the midnight oil!

After spending the past few days, doing a bit of sight seeing around the city, this gal is officially DONE. Time for some much needed rest... Time to re-energize! 

There is still so much more to explore around the little, lazy, river town. We also want to visit a local rescue organization, only a mere 10 minute drive from our home. The organization only allows visitors by appointment. It's hard to make an appointment, because my good and bad days are impossible to predict. I live day to day, hour by hour. Not on promises or any plans made well in advance. We live by the word, 'spontaneous.' Maybe next weeks doctors appointment will bring with it, some insight on any other possible treatments so I can enjoy far more good days! We have been told about possible, immunotherapy, but it never got past a brief conversation. For now, I must continue listening to my body, which unfortunately requires a lot of rest...

The first of the year brings with it, downtime at the Sheriff's department. Eric was fortunate to pick up a lot of overtime in the past few months, but as of now, there has been no overtime available. Overtime that he did sign up for in advance, has already been canceled. This is the time of year where we start to pinch pennies. Especially when our out-of-pocket insurance deductibles have officially been reset. We have to be extra careful with our budget. Not like living in a house with foundation issues isn't any better when it comes to the cost of our utilities. We hit an all-time record high on our gas and electric bill last month. So much for the listing agent telling us how much more cheaper utilities are in Indiana, compared to Ohio. Sure.... Maybe if you are staging the house you are selling, instead of actually living in it. BAH!

Next months blogs are going to be SUPER FUN! I can't wait to start using our green screen that we got for Christmas and start really having some SELFIE FUN!  

Kind of like Eric... Who might possibly be having a bit too much selfie fun! Heeheeheehee!


Posted by GastroparesisAwarenessCampaignOrg. at 10:22 PM EST
Updated: January 26, 2017 10:32 PM EST
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