Mood: hug me
Now Playing: Day 873-The Final Road To Survival
After a good nights sleep allowing my brain to recover I still woke up with the reality of changes to come. Its going to be a tough rest of the year but, "It is what it is." Seems to be my favorite saying lately doesn't it? Today was also a good day to get out and enjoy nature at the same time finding that inner kid again. The weather made it a perfect day to reflect on the many joys of life. Our feathered friends who were abandoned months ago also show me that no matter how tough life gets and no matter who leaves your side you can still do it! You can survive! Amen.
My appointment yesterday left no questions unanswered. It was also nice to finally have a CLEAR understanding regarding the great hair-loss caper and episodes of strange abdominal rashes along with high fevers. There isn't much my specialist can't answer which can be a good thing to someone like me who is a straight shooter and does better with knowing than those who would rather not know. The down side is the visit left Eric feeling a bit anxious and depressed. It is very clear now why I am getting the abdominal rashes with high fever and sweats. Its also very clear now why my hair has yet to stop coming out. What I didn't realize was how much of our GI system controls various parts of our body. One must never forget that 70% of the immune system can be found in our gut and intestines. The big problem is mine don't work and I am now experiencing the battle on the inside showing up in strange ways on the outside. This includes the rashes, fever, sweats, low blood pressure, low blood sugar problems, low serotonin levels, etc, etc, etc. Yes, it is officially "ALL" connected. Add the problem of almost zero absorption of important nutrients that easily explains all of the constant hair loss. I told my doctor, "It might be a good thing I was blessed with too much hair when I was born because it would had been gone many months ago." The sad fact is my hair doesn't have the nutrients to grow which is why its coming out by the root. Its in fact...dying.
Last month I got the other bad news after a well known Colon surgery advised me there are no further options nor treatments. Things have went past the point of help. They can't remove my colon nor parts of the small intestine because it would only cause further problems and surgical options would not help when things have quickly progressed beyond control. My specialist personally knows the surgeon although he didn't seem surprised to find out she could not remove the colon or parts of the intestines due to no further surgical options. The problem he said is my GI tract doesn't work and it is causing other organs to also malfunction. This includes my kidneys that work when they feel like it and also the misfiring within other organs in which I rarely get any warnings. I am very lucky to at least get an aura before my seizures. Since I had a photo of the rash yesterday it made diagnosing things that much easier for my specialist. Lesson learned that if something sounds strange or looks odd always write everything down as they are happening and by all means if you can, "TAKE A PHOTO!" This helps our doctors to get a better understanding and it could also mean an answer when time is of the essense.
Since my specialist is concerned of rapid changes and toxic levels within the blood unfortunately we had to run more tests. He will also need to scan me next month for possible tumors. He told me, "Its ok to sleep and we expect you to because your body is tired. I understand your brain wants to fight what your body can no longer tolerate. Its very common when you are sick and dealing with the progression of a condition. Make sure to allow yourself the rest because your body needs it." He also has me now taking Tylenol and Advil alternating between the two before and after each weekly treatment. Sleeping for 10 hours then waking up only to find your body once again tired after 4-5 hours is hard to swallow when I am used to staying active due to gravity is a GP patients best friend. Its no wonder my Gastroparesis has been in an uproar. Just another reason why its very important for me to stay on a liquid diet, continue watering things down and remaining closely on schedule with my weekly treatments.
I promised myself that when it was time to part ways with the rest of my hair it would be up to me and not my Idiopathic GP. Seems I am now at that point because as my doctor said, "It won't grow back. It doesn't have the nutrients to do so and your immune system isn't strong enough." S I G H... Oh well, like I always said, "Its only hair."
This evening I received another email about someone losing a loved one to the hands of Gastroparesis. My heart and prayers go out to their family, friends and loved ones. It is also a reminder on the seriousness of the condition that not just I suffer from but millions of people all around the world. It does put things in better perspective when it comes to the Gastroparesis Awareness Campaign mission and the continued fight for Awarenesss that one day will help lead to a cure.