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The Road Before & After Surgery
August 10, 2012
Life Changes-Ahead.
Mood:  chillin'
Now Playing: Day 852-The Final Road To Survival

Yep, its that wonderful time again. DRANO TIME! UGGGG...

It's ok though because all day I made sure to wear my armor of steel just in case stress or drama came knocking at my door. Even so regardless I am learning the tools it takes to remove myself from the equation. There will be set backs. Isn't that what life is all about? I am proud of myself by taking set backs today with a grain of salt. I am doing my best to not allow people/things to continue getting to me. Why you may ask? Because its not worth it. I must continue to focus 100% attention now to #1-ME. I can't replace organs and the stress/drama just isn't worth losing more vital body parts. AMEN.

Eric called me out earlier this evening about walking into the alligator pit once again knowing I won't get out without being injured. HOWEVER this time around I proved him and myself wrong by handling the relentless stress that surrounds me in this city fairly well. CHEERS TO THAT! In between glasses of Drano I got out my paper and drew two separate columns then started weighing the pros and cons that are a must in order to make important life changes. After finishing I took a step back and thought to myself, "WOW!" On this side I have many negative things and this side I only have one positive thing. Not good! It all makes sense now when you step outside your own shoes and see what your stress/anxiety triggers have been for quite sometime. It didn't make me angry or upset but I felt a bit foolish because as told I have been enabling some very bad and inappropriate behavior. I must now make life changes in order to remove myself from the stress in the city until our big move out west. Thankfully no anxiety attacks today for this gal because when you know your triggers its important to do everything in your power to acknowledge them and then move on.

As far as treatment day...You can't win them all and yes, it will be a long night into the early morning hours but that is something I WILL tolerate and have for years. One can't say living a Gastroparesis life is easy by any means. It honestly took me many years to become my own GP-Pro but I can handle the good with the bad which has made me who I am today. A Fighter & SURVIVOR! If I can apply that same strength to other aspects of my life in order to finally have some peace then it will make a world of difference for #1-ME.

Note To Self: The world wasn't created in one day and even God understands neither can positive changes.

God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.


Posted by GastroparesisAwarenessCampaignOrg. at 11:11 PM EDT
Updated: August 11, 2012 2:25 AM EDT
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August 9, 2012
Coming Full Circle.
Mood:  chatty
Now Playing: Day 851-The Final Road To Survival

Talking about coming full circle!!

 

We both were out like a light last night and slept HARD! Make that ALL of us because even Littleblue didn't want to get up once the cell phone alarm went off. Today is the last of my doctors appointments. WOOHOA! This week has been so crazy and UFO that I can't figure out what day we are on. It seems like we just ended the weekend and tomorrow is already Friday.

Since I "thought" this was a new specialist I was seeing today we made sure to download directions to his office. After a ten minute drive I started to realize this wasn't a new doctor by any means, in fact this is the same specialist I saw in the beginning of my Idiopathic Gastroparesis diagnosis. In fact once we arrived and I walked inside the building it WAS the EXACT same DOCTOR! WOWWWW!! Talking about life making a full circle. Hahahaha! Once I finished filling out all the new patient forms (although I was far from new-maybe new since it has been 7 years since my last visit) they called me back to the room. It was the same doctor and the first words spoken were, "I made a full circle. I seen you almost 7 years to this date when you figured out the great medical mystery. Internally. If it wasn't for you flagging my doctors and surgeon they would had never known my stomach stopped working. After a few nuclear studies I was quickly diagnosed with Idiopathic Gastroparesis." His first reply was, "Wow, that is amazing! Well good to see you again!"

It was a great and extremely informative first or more like second visit however it will be my last because he figured out this other great medical mystery. It didn't take him but under 2 hours to confirm that I don't have any mental problems but I am suffering from PTSD and anxiety attacks due to relentless stress caused by some around this city. Things had finally come to a boiling point and the body as well brain can only take so much. I honestly have been doing the right and healthy thing which is to separate myself from the drama and stress. In my unique medical situation it can be destructive and dangerous. Its also causing me to now constantly change my weekly treatments. Thank goodness I am smart enough not to do treatment when stress is knocking at my door, phone or email. Since we clearly know my triggers, the next step is to get my anxiety and stress under control. This might take awhile because you can't unravel years over night. Patience is a must and together we will come up with a game plan in order to not further jeopardize or risk my fragile health.

What I did learn today is that you can't tell people how to think and everyone is entitled to their own opinions. I have spent far too much time trying to make others understand my medical condition when in all reality who cares what they do or don't believe. The arm length of medical records speak for themselves and its not up to me anymore to force others to see what they don't want to see. Instead I need to focus for once on only one person who matters most. Me. It was nice to hear my brain has conquered and overcome some hellish stress to say the least and Eric was wrong in thinking I wasn't continuing to be in battle mode. Me silencing myself if only for a few days is a way to recharge my brain and allow my body a much needed break from all the constant stress. People handle life battles differently. What works for one person might not always work for another. If anything, I have learned I am far, far stronger than I give myself credit for! AMEN.

We both got home feeling a huge sigh of relief. Its nice to talk to someone who is on neutral ground and a professional who deals first hand with resolving stress, anxiety and conflict when it comes to life. Some things that will have to happen will be hard at first. I must understand that things have to change. I have to now put myself and my health first. I was told to consider it like a physical disability that eventually will get easier over time. I sure hope they are right!

“Your thoughts about your circumstances have you down. On the other hand, you can be in one of the biggest battles of your life, and still be filled with joy and peace and victory - if you simply learn how to choose the right thought. It’s time to think about what you’re thinking about.”
-Joel Osteen


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: August 10, 2012 4:40 AM EDT
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August 8, 2012
What Sleep?!
Mood:  d'oh
Now Playing: Day 850-The Final Road To Survival

I am rotating with the season and so is my sleep. "We" didn't get to sleep until 6am. Me-because I was having a bad GP moment. Eric-because his body is so used to working third shift that he wasn't tired.

My heating pad and heat wraps have sure been put to the test lately and I hope they continue so I don't have to go back to feeling like a Zombie on pain medication. Not that getting to sleep at 6am isn't bad enough but at 9:00am I woke up in a huge sweat. I got up and went to the bathroom only to see the same darn abdominal rash I have been experiencing over the past few years. Since my Oncologist/Hematologist wanted me to take a few pictures and call his office next time I got the same rash I did both. After we got off the phone I was advised to take my blood pressure, temperature, blood sugar and peak flow-measuring my lung capacity. Since the rash was still present as well the sweats and chills he had me see my other doctor who is closer to my house. So....FINALLY today they were able to figure out these strange rashes which are tied to my compromised immune system. Since most of your immunity is based in your intestines and mine no longer work you can experience flair-ups or as he said, "Disturbances-Red flags" that your body is in battle mode and what is happening on your insides can actually show on the outside. Rash. Another dear fellow GP friend is also experiencing the same problem but she gets hers after consuming Magnesium-Citrate/clean outs. I am getting them during and after in no specific order but at least now I have an answer to the strange pop up rashes. So far they seem isolated to only the abdominal area but I was told if they spread I would need to head to the hospital. Hey! I have had far, far, far enough ER visits in my lifetime so hopefully it will never get to that point. For now I was told once again to not do treatment until tomorrow. I was also advised to continue using ice packs through out the day and was given an anti-inflammatory drug. Much like the other rashes it will resolve once my internal battle calms down.

Since we didn't get much sleep today once we did lay back down and my cell phone alarm went off it was already 4:25pm. GEES! Talking about a wasted day! It could had been a short non-productive day but instead we both kept busy so my mind could be free. Eric finished staining the side patio and started working on the front porch. I opted for some projects inside the house and by the time we were both finished it was already 8:30pm. Not bad for a short day. Hahahaha! At least Mr. Drano aka Hell-In-A-Jug got another break but it can't last long enough. Tomorrow is a new day, a new doctors appointment and another round of treatment. Well at least hopefully one out of two won't be bad!


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: August 9, 2012 3:51 AM EDT
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August 7, 2012
Rocky Mountain High.......
Mood:  lyrical
Now Playing: Day 849-The Final Road To Survival

My friend and his Son are having a GREAT time out west! Even having a few Rocky mountain high moments. LITERALLY! They will be spending the next few days roughing it with their camping gear in the mountains surrounded by Mother Nature. PRICELESS. The pictures he sends speak for themselves and its nice to be a part of their adventures. Yesterday they attended a Rockies game with his cousin. I am so glad they are having a great time!

My other friend John who now lives out west is in his first month detoxifying his body. No more cigarettes or alcohol but plenty of natural foods and lots of exercise. He's also enjoying new yoga classes which allow for far better sleep than he has in years. GOOD FOR JOHN! Robbie kitty even looks super content enjoying his new life out west.

Today was my first visit after the insurance company brought some great news this week by covering up to 12 physical therapy sessions and another visit to the Nutritionist. My intestines still haven't eased up yet but I am doing better adjusting to the pressure pain. I also haven't felt the need to use pain medication. I went back to the same group-Nutritionists I saw 8 years ago at our local hospital. The best thing they could offer me with my unique medical situation was the same game plan I already started. 95% liquids and must be watered down. They also want me to start using more whey protein drinks which are easier to break down in the body. Sugar is going to be a toughie seeing it takes a lot to keep my levels up so that will remain touch and go. They gave me lots of sample powder packets that you just add into water full of vitamins, nutrients and digestible fiber. Since I am a rare breed, they don't see many patients like myself very often that don't already have a tube or IV line for feedings. They do understand the complications and high risks with line infections in which my weakened immune system could not handle so I have to continue consuming the best I can with what my body can tolerate.

It was a long and tiring day so my brain didn't have time to think about any anxiety. Thank goodness for a break!! Keeping my mind busy is important and hopefully the physical therapists might be able to provide me with some ideas/suggests on new hobbies without jeopardizing my health. I have my last doctors appointment Thursday so we are hoping to get additional insight and a better perspective on how to cope with any unnecessary stress.

This evening I finally felt comfortable enough to go back to the local park. Once we pulled up and started making our way to the side walk we were greeted by two feather friends. Frank & Mike. My how fast they have grown! It was so nice to see them along with the other geese. I still feel horrible that they could not rescue and rehabilitate Miss Goose but I know she is no longer in pain. Eric says, "That one single goose the other day was her finally flying free because you let her live again." I hope she is watching over the baby rabbits too in a safer place called, "Heaven."


Posted by GastroparesisAwarenessCampaignOrg. at 11:23 PM EDT
Updated: August 9, 2012 3:05 AM EDT
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August 6, 2012
I Need A Break.
Mood:  chillin'
Now Playing: Day 848-The Final Road To Survival

If only us GP'ers could get this excited over food!

Hahahaha! Well...at least the fur gang and Bear kitty who "thinks" he is part dog agrees that this new food is DELICIOUS! This is also why at night we now have to put the food bowl up. Put a bag of food in front of someone who has Gastroparesis and we might as well start the barfing a bit early!

Its already starting to be one strange week and even after having a good first of two doctors appointments today stress was waiting for me once again when I got home. I give up and must admit I have had quite enough of this nonsense! Its time that maybe I take a break and get away for awhile. Since I can't get out west just yet for the big move my fellow GP friend Gabe who was in town this past weekend instead offered us his rental cabin in Tennessee.

HOW NICE WAS THAT?!!

It would only be for 4 weeks but heck! 4 weeks would give this gal enough of a break to revamp/recharge my tired body and brain. My doctors also agree that I really need to clear my head and maybe that will help the horrible anxiety caused by this cities relentless stress. For now they don't think its a good idea flying but when it comes to driving they are leaving that decision up to me. We would have to stop every hour and walk around so my spine doesn't lock up but I really should give this amazing offer from my dear friend some serious consideration! Eric has plenty of vacation time and we could bring the fur kids. Two of his friends in the city said they would come over and watch the kitty gang. We could even leave early if need be because I highly doubt I could stay the entire four weeks. Maybe one if I am lucky! Gabe left the offer on the table and said, "Its all yours if you want to get away because I think you both really need a break."

AMEN! AMEN! AMEN!

I have my last doctors appointment later this week so that should give me a better idea if its a NO or GO! I am hoping for the latter. Since fall and mid September is just around the corner it might be the best time to break away from the city. It will also "HOPEFULLY" be much cooler by then so my GP won't be so volatile unlike the constant heat and humidity over the past three months. I also have GP family and friends who live within an hour drive from the cabin. It would be very nice to finally visit with them.

THANK YOU SOOOOOOOO MUCH GABE for offering us a beautiful cabin get away and like always, time will tell (and my insides) if we can take that much needed break. Xoxoxoxo


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: August 7, 2012 3:57 AM EDT
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August 5, 2012
Feeling B L A H...
Mood:  down
Now Playing: Day 847-The Final Road To Survival

This is going to be a short blog for today... Just feeling drained out, stressed out, anxiety overload and B L A H... It might be a good thing I have two appointments this week and one is a new doctor who will help to get my head back on straight and better control the horrible anxiety attacks that seem to be taking over my life. They believe there was a significant trigger that started the attacks almost two weeks ago and sadly they haven't let up. The new medication for my seizures is suppose to calm down brain activity which helps control seizures but of course, "No Dice!"

We tried taking a short walk at the park near our house but I was feeling so dizzy that it didn't last that long. I haven't felt safe enough to start treatment either so it seems to be one thing after another and I am just hoping both doctors can get my brain and my body back on track sooner than later! CHEERS TO THAT!! Eric keeps thinking I am starting to lose my fight mode but I keep telling him its not that, I just have way too many battles on my hands right now and its gotten to be farrrrrrrrrr too overwhelming. Sure, drinking Drano isn't fun and I won't lie by saying, "I have also had enough of that nasty stuff too!" Instead of the two doctors appointments this coming week maybe I just need my dear friends from Texas to send me ONE HUGE BOOT! then give this gal a good swift kick! Hahahahaha!

Here's to a UFO upcoming week-full of strange things...


Posted by GastroparesisAwarenessCampaignOrg. at 11:45 PM EDT
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August 4, 2012
It Was Only Just A Dream...
Mood:  lyrical
Now Playing: Day 846-The Final Road To Survival

I thought I tapped my heels last night and woke up in Nevada but S I G H...Instead it was just my dear friend Kevin sending me photos of his cross country trip. DANG IT!

Well at least one of us-make it now two-has finally found their way out west. AMEN. Not I said the fly. I am still stuck here in the hellish city where most of my past is nothing more than a mere nightmare. It will happen, trust me the move out west will happen but darn! it can't get here soon enough! Eric even said, "DOUBLE DITTO TO THAT!" My friend and his Son started their adventure Thursday morning and will be making their way across the good USA for the next 11 days. At the tender age of 10 I am sure it will be one amazing adventure that his Son will never forget. Such beautiful photos of the great west and land that is still untouched and not destroyed by human hands. This city is just way too over-populated and what beautiful nature we once had is now being turned into excess, excess, excess and the people aren't any better. In fact when I used to work and traveled Cincinnati was the worst when it came to snooty folks and too much attitude to boot! Heck, even at corporate out in NJ/NY offices the richest of rich didn't have a huge-tude. John would even remark about the difference in folks once he jumped out of state. Sadly its not just me who enjoys more down to earth, friendly folk who are genuine. KUDDOS TO THAT!

I checked on the rabbit burrow last night in hopes of maybe seeing the Mom or more babies that could be saved. Sadly I once again only came upon an empty nest. Its tough and I doubt I will be able to move the nest for at least a week. Instead of Eric cutting the front yard today I just had him cut the back in order to not disturb where the nest is still located. Eric now has a far greater appreciation when it comes to my passion and love for the wildlife both great and small. He feels maybe seeing the one single goose yesterday was a sign of her saying, "Thank You" for not making me continue to suffer. The Angel photo with two bunnies on the small box I buried the babies in was also another sign in which we both believe is from above. I still have faith that we all do meet again in Heaven where I hope to see the two babies and female goose again.

Today was a very close day to finally bid farewell to the rest of my fragile hair but instead I decided to give it a few more weeks. Hair is hair and I have been losing so much due to not being able to absorb nutrients properly through out the years on top of the side affects with treatment that I doubt it will bother me much. When its time "I" will decide and make that final decision not the ole Drano aka Hell-In-A-Jug. We both vowed this evening to never allow anyone who doesn't believe I am sick or doubts my condition to ever be welcome in our home. I have felt this way for quite some time but finally I have decided the time has come to quit providing endless FACTS and instead exclude those who feel the need to put their blinders on. Yes! it does infuriate my specialists and rightfully so however I don't have time to keep providing facts and trying to explain my unique medical condition over and over again to anyone who refuses to listen. I am tired of wasting my time and I don't have time to waste on nonsense when I could be doing something else instead that makes me happy not upset. AMEN.

We are going to once again restart my treatments this weekend but no later than Monday evening. I have one of two specialist appointments still hanging in limbo for next Monday afternoon. Hopefully I won't have to reschedule this one again. My doctors will be continuing me on pain medication and I was also offered physical therapy by the colon surgeon I saw last month. Eric's insurance has to get back to us next week in regards to how much they will cover. The therapy will not cure anything by any means but they are hoping it might help ease some of the pain that my inflamed and angry intestines are causing by pushing on my damaged spine. This will also hopefully help by not having to rely on wearing the abdominal wrap so frequently. Of course I will always need my cane and wheelchair just in case and this past week it came in extremely handy getting around the house when my intestine decided to flip.

The constant changes that come with being sick haven't been easy but this evening when I looked up from the kitchen window someone was staring back at me. Yes, Mr. Groundhog aka Happy and once again he did as he always has when I am feeling sad and down, "He made me smile." 

He also munched on a few wildflowers but that's OK because his cuteness is well worth it! Xoxoxoxoxoxo


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: August 5, 2012 4:40 AM EDT
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August 3, 2012
SAD! SAD! SAD! DAY!!
Mood:  sad
Now Playing: Day 845-The Final Road To Survival

This has NOT been a good day. Not in the least bit and why does death always happen in waves of three? Same with bad luck? Why can't instead GOOD THINGS happen in threes? It must be how life works but DARN sometimes it just isn't fair and I even start to question my faith...

I might still be dealing with pain but at least its not sharp and instead dull/achy. What I might had been smart to do was take a Dilaudid right away when I got wake up because this was going to be one SAD DAY!

The first part of my NOT AT ALL good of a day was receiving a phone call from the Ranger station at our local park. If you recall we have been feeding an injured female goose while walking at the park over the past few weeks and they were going to have a rescue group come to get her some help. INSTEAD the call turned into my first of many SAD events today. The Sergeant explained that the goose was injured as we had been telling them the past few weeks however once they got a closer look the female goose was also getting very lethargic and couldn't walk any longer or eat. She also couldn't get into the water. The worse part was seeing kids while walking who should know better (including their parents) tormenting the poor goose by throwing rocks or running after her. Trust me by saying for weeks it had been testing my own patience and I played "KID COP" more than my fair share of times. They had a few naturalists who work for the county also look at the goose as well talking things through with a couple of other animal experts. Sadly they had to come to the decision to put her down due to her suffering.

NOT WHAT I WANTED TO HEAR. Especially when I am EMOTIONALLY STRESSED OUT and being sick is also EMOTIONALLY DISTRESSING! S I G H....

What used to be a peaceful place to walk and watch geese, ducks and other wildlife animals has now turned into a place of terror because all I can think about is this goose being shot and me being part of it. During our last walk the same area where we fed the injured female goose there was remnants of blood and I remember telling Eric I wonder if her leg is bleeding. I sure the heck didn't know they just shoot the poor goose right there?!! Eric thinks I am just way, way, way too hard on myself but when you live in a city where others are nothing but constantly hard on you what do you expect? Eventually it wears and breaks you down. To me animals have always been a constant source of love for years. After we finished the phone call I had mixed emotions. One, I didn't want to see the poor female goose suffer anymore and be left out from the flock however I know how that feels being different and to me that will always hold a special place in my heart. The other side is I feel that maybe they could had taken her to the animal hospital up north that helps treat geese and other wildlife then release her back into the wild instead of just ending her life.

S I G H.... S A D....

Not that the phone call wasn't hard enough but two hours later Eric comes back in the house after checking on the baby rabbits to tell me they weren't there. HUH?! This might had been a sign to get the pain meds ready because I told myself out loud, "This isn't going to be a good day!" I got enough energy to also walk outside to check on the nest and they were gone. I researched online last night about wild baby rabbits and trust me these were newborns and the Mom wouldn't just move them from the burrow unless she had another one and that would be impossible! I came back into the house and first thing that came to mind was an instinct to go back outside because I remembered this very vivid dream I had in which I "thought" I heard the babies crying so I went back outside and starting finding small pieces of the Mom's fur she uses for the burrow around the grass. Once I came back around near the nest the second part of this SAD SAD SAD day was seeing two mauled baby rabbits and blood below my feet.

I LOST IT!!!!

Being sick and in pain doesn't make for your head to be on straight when it comes to your emotions nor does unnecessary relentless stress surrounding you in this hellish city. Regardless of whatever pain I had I didn't care and instead bend down to see two tiny babies within three inches from each other. I could still recognize their ears and tiny feet. SAD AND HORRIFYING! I don't think those are the words to describe how I felt at that moment, more like DEVASTATED!! Yes. I lost it and through out the course of the entire SAD day I lost it over and over and over and over again. In fact its the first time even around Eric I didn't want to talk. I needed to silence myself so I could get my head back on straight from all the emotions. Eric felt absolutely horrible and could only comfort me but I was so angry at myself because I felt maybe I should had moved them to a safer place or instead of wood maybe he should had got chicken wire like it said online so the Mom could still go in and out of the burrow. I assume the poor and distraught Mom already came back earlier that morning to the nest only to find her babies dead. Too many thoughts that ran through my mind left me to do only one thing, silence myself the remainder of the day. I was too sad to talk, I had nothing to say. I have been around and seen first hand some of the most cruelest people around this city since I have been sick. Animals have been the most kind to me and have given me such unconditional love and happiness. Its Gods little creatures that always made me smile but today three of them sadly got called home to Heaven.

SAD, SAD, SAD...

Being so upset I took a pair of pink gloves and picked up the mangled bodies of the babies then went inside because I remembered I had a little Angel box that was small enough to place them in. What I didn't realize until an hour later was that this same Angel box had a little Angel on it sitting next to two rabbits. Eric found that very ironic. Since we had wood left over from the shelter he made yesterday I took two pieces and made a cross and painted it sky blue. I kept the two baby bunnies by my side in that Angel box until later in the evening when the sun started to set. It was time to say goodbye and I picked some pretty colorful wildflowers and placed them along with the Mom's fur and some hay to protect them. I left it up to me when to bury them seeing this was a very emotional and sad day but I knew the time had come and I kissed the tiny box small enough to hold in the palm of my hand and said goodbye. It wasn't easy in fact I cried, cried and cried again. Its hard when your sick and you lose everything. Not all at once but over time. It wears on your heart and your soul. Life sometimes isn't fair and it can be extremely cruel.

I stayed on the porch for an hour just feeling blank. Its been a horrible past 7 years and even the littlest of happiness sadly gets taken away. I don't get it and I never will. After once again questioning my faith I heard a loud sound and looked up to see one single goose flying over me. It was as if time stood still to serve as a reminder that even God renews all things and that includes our faith and spirit.

"Remember that God placed us here on earth to love and protect the animals. God made humans to take care of the beautiful world and all of His creatures."

-Nicole


Posted by GastroparesisAwarenessCampaignOrg. at 11:11 PM EDT
Updated: August 4, 2012 4:09 AM EDT
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August 2, 2012
Darn Intestines!!!!!!!!!!!!
Mood:  down
Now Playing: Day 844-The Final Road To Survival

One hour you are up! The next hour you are down! Only with Gastroparesis can you be fine one second then in the ER the next. It's no wonder I can't predict anything and forget planning ahead anymore. It doesn't exist.

I'm frustrated and honestly just BEAT physically and the last few weeks BEAT MENTALLY! Who would had guessed at 7am I would wake up with the worst sharp pain coming in waves only to realize later in the ER my intestines once again have flipped and twisted up on other organs. This is now the fourth documented time it has happened in the past two years.

NOT GOOD!

It might be a good thing my intestines no longer have motility and tent to flip and twist only while resting. It also might be a good thing the pain is so severe that it wakes me up because bowel perforation is a complication when this happens as well obstructions. Once the pain hit me I had to call Eric's name four times before he could hear me seeing I couldn't raise my voice due to the horrific pain. Last time I told the ambulance driver they might as well shoot me if this happens again because the pain is almost impossible to endure! Needless to say if I knew the next day would had included this hellish nightmare I might had taken up drinking last night. AMEN! At least it might had helped the pain to stay a bit numb. So far all the other three times my intestines eventually resolved themselves with the help of gravity and without any severe complications. Unfortunately this time my ovary is wrapped in the mess and they highly doubt that will remedy itself without surgery but guess what? They can't do surgery. There are no surgery options. I am just SOL!!

The end of my day included some strong pain meds (thank goodness for Morphine and Dilaudid) and plenty of couchbed rest. Eric has been amazing keeping up with the house chores inside and out. The fur kids don't mind spending some down time with Mom while she heals and slowly gets back on her feet. I don't need anymore stress that I am already having to deal with on top of not feeling well but of course in this city it tends to find you regardless of how well you are hiding. Amen!

Once I was finally able to catch a break with the pain Eric took the fur kids out for a walk at the park and on his way back he found a cute little nest of baby rabbits but in a bad spot-the front yard under a small bush. Since he knows my deep love for all wildlife he quickly headed up to the local hardware store and bought some wood to make a protective area for the babies. There are two baby rabbits but they don't have their eyes open just yet so they must be only days old. I love animals and always have my entire life. They are the only things that seem to bring me happiness anymore since I am limited being sick. I can't wait to watch them grow up and finally be on their own. After a nightmarish 24 hours I sure needed a reason to smile and they made my day! 


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: August 4, 2012 2:36 AM EDT
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August 1, 2012
Trying To Catch A GP Break!
Mood:  happy
Now Playing: Day 843-The Final Road To Survival

With only having 2 days of freedom left from the dreaded Drano aka Hell-In-A-Jug we thought it would be a great idea to meet some friends later this evening to get me of course out of the house and also give Eric a break! Its been a LOCO week and my nerves have been shot! Its getting rare to find any sort of break and since I thought today was a good head day and maybe I could have a chance to get away we made plans to go out this evening. Of course this was after the sun goes down and us Vampiressssssss (those with seizure issues) can break free.

We have finally be able to catch up on some much needed rain the past few weeks although its still very dry and the bushes in the front are already dropping their leaves. What hasn't been starving are all the darn weeds this year. GEEZ! Once you cut them back it seems only days later they return with avengeance. Sometimes I have a "denial moment" and believe maybe, just maybe it was all a bad dream and I am normal again. Its in these moments and lapse of thinking that tend to always get me into trouble.

Like today!

Ten minutes into "thinking" I could help with the yard work wearing my trusty mask and dark sunglasses instead turned into me about passing out in the backyard instead of helping to clean it up. NOTE TO SELF: NOT TOO SMART! It was a good thing my better half was outside with me and noticed my face turning bright red. Needless to say there won't be anymore bright ideas or lapse of judgment for this gal. That's the hard part living with a medical condition that is not only ruthless but you can never determine one minute from the next. My brain still wants desperately to be normal but my body begs to differ. Same with yesterday and sitting for way too long because last night my spine was suffering the consequences and so were my intestines. Today is all about keeping my body moving without having a heat stroke. DUH ON ME!

By the time we both finished doing the rest of the chores in and around the house it was already time to take a shower and get ready to head out for the evening. We decided to meet everyone around 8:30pm and drove separately just in case my GP payed me an unwelcoming visit. I did fairly well with just a few minor head and stomach issues-nausea, slight headache but that's what my emergency meds are for and I refused to not give it my all to finally have some low key fun. It felt GREAT to get out and feel normal for once! I try to keep my medical nightmare private when it comes to Eric's friends. They know I suffer from a incurable medical condition however they don't prey and leave things up to me if I want to talk about it. Its nice sometimes to be ME without Gastroparesis. I call it breaking free from reality if only for a few hours or so. AMEN!

By the time we were all ready to head home there were only three cars left in the parking lot. OURS. Hahahahaha! You know us VAMPIREEEEEEEEES......We tend to be awake at night and sleep during the day. Hey! that's life. My LIFE for ya! We both had a nice time but all good things must come to an end and this gal was EXHAUSTED! Once we got back home my better half did all the night time chores getting my couchbed ready and taking the fur kids outside for one last walk. Needless to say there won't be any sheep counting tonight!ZZZZZZZZZZZZZZZ........


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: August 2, 2012 4:04 AM EDT
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