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The Road Before & After Surgery
July 25, 2012
GP Changes...
Mood:  d'oh
Now Playing: Day 836-The Final Road To Survival

 I weigh HOW MUCH?!!

 Yes, it was another day when all my body wanted to do was sleep, sleep, sleep but instead we had a full days schedule which included doctor appointments, door repairs and friends coming over to visit. No sleeping all day for this gal but maybe another time later this week. Littleblue once again didn't help matters jumping back and forth between the couch and her den located under a side coffee table with her stuffed animal fur babies. At least Oreo doesn't do the same thing and instead finds complete comfort on his extra large floor bed.

The tremors seem to be more coming than going and after today's visit it appears they won't be leaving anytime soon. Same goes with the constant weight loss. 108 pounds is a number I don't remember seeing since I was in the 8th grade and even then I don't think I was that small! HOLYMOLY!! If my paralyzed and stretched colon wasn't still inside me they estimate my weight to be less than 100 pounds. NUTS!! As one doctor said, "You are all stomach." Ummm...More like stomach and intestines! Its no wonder Eric complains that I need smaller pants that fit and don't droop but lets be honest in saying it took me months just to find the three new pairs I bought this spring. They are all size 2 which means the next juniors size down is 1 or 0 and they are hard to find. I guess we know what Santa will be bringing me this holiday season. Eric even lost four pounds over the past week but his is due to all the stress that he has been taking off my shoulders. Its hard keeping up with the constant walking and moving around in order to not get myself in trouble-GP wise but I also lack the calories now since having to water down the heck out of everything I consume on a daily basis. 

One GP evil -vs- another.

Oh well....All I can do is continue doing the best I can do and at least my specialists totally understand! They don't want to go the tube or IV route seeing my compromised immune system couldn't handle any line infections. That would only make things a million times worse for me and for them! Lately I am just flat out TIRED but its only to be expected. Friends were over today and even commented on the fact I didn't look so good. Maybe since I see myself in the mirror everyday I don't see the changes as much unlike others who don't see me on a daily basis. I still respect their honesty because I can't deny the fact that if my insides are changing and not for the better my outer appearance will also in time suffer. Thank goodness for hair care products, wigs and make up but sometimes you can't always hide the bags and darkness under your eyes.

Since the tremors haven't been too kind this week once again the doctors have me pushing my treatment back another 24 hours. Not like it matters to me seeing I can't stand drinking that foul, warm, ocean, chlorine-toxic nightmare anymore. The only positive out of each dreaded experience is it does help to keep me out of trouble. This evening we only did half of a walk. Eric said, "I think this is the shortest walk we have ever done." NO JOKE! The rest of the evening consisted of running a few errands and I even bought myself some new fingernail polishes. What gal doesn't enjoy a few new shades for the upcoming fall season?! My colors, "Black polish with a bottle of festive sparkle topcoat." Call it the BLAH color mood of choice. Need I say more?... 

Hopefully this evening Miss Littleblue will be less of a jumping bean laying next to Mommy. If tomorrow finally brings my next treatment then I will surely need all the sleep I can get! AMEN.

You know when you get knocked on your A%% and you just can't take anymore....
Well there are people that are always there to pick you up... dust you off...and lend you their hand to help....  -FB Friend


Posted by GastroparesisAwarenessCampaignOrg. at 11:55 PM EDT
Updated: July 26, 2012 4:12 AM EDT
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July 24, 2012
Just Another GP Day...
Mood:  chillin'
Now Playing: Day 835-The Final Road To Survival

Wow! We are almost into the month of August! My how time flies by and soon enough my favorite seasons will be here, FALL & WINTER! WOOHOA!! I can't wait because this constant heat and humidity hasn't been too kind to my body. It seems lately I have also heard from other fellow GP'ers who are taking a brutal body beating from the wicked heat. Speaking of heat...since my intestines are starting to reject the Hell-In-A-Jug/Drano and its now taking almost a week per treatment to make its way through my paralyzed GI organs they now have me watering everything 85%+ down. This makes even "pleasant" things taste BLAH! Campbell's healthy choice low sodium cream soups now taste more like watersoup with a hint of flavor. I tried tomato the past few days which takes me 2-3 days just to consume one can seeing I have to add so much water that one can now becomes two. It honestly has about 5% tomato taste and 95% water. I was given the heads up to attempt my next treatment tomorrow seeing today I wasn't feeling well with the constant intermitten pain followed by severe fatigue and darn seizure aura. I'm not used to taking more than one nap through out the day but let's be honest by saying my body is officially B E A T! At least I was able to do some walking later this afternoon followed by a final walk with Eric and the fur kids this evening. Any little bit of help from gravity counts for us GP'ers.

My GP Angel Eliana got a late birthday gift from her ole GP Auntie Aunt today via mail. I am so glad she really loves her rainbow wall maker. TOO CUTE! I told her Mom this evening that if Eliana wakes up and finds a pot of gold in her room then this gal is getting one for herself! Hee,hee,hee...Eric thinks it would be a great idea to buy one for little Erik although I have a hunch I will be making the most use of it. Anything to soothe the soul during bad GP days and who doesn't love rainbows?!

It appears the last of the foundation work around the house is now COMPLETE! Three months later we now won't have to be walking on egg shells when it rains or wondering what type of flooding will happen in the basement. The only last few things left to do are finishing up sanding a few spots from repairing drywall and replacing the bottom door piece so we don't feel any drafts from the outside creeping in. It's a HUGE relief for both of us!! The new white stones also match the seashells I have around the landscaping from prior years vacationing down south in Florida. I can't wait for fall to enjoy our homemade sandbox in the backyard we made last year. Hopefully by then the temperatures will be much cooler and the honeysuckle bushes the neighbors butchered way too far back will be taller for some much needed shade. I also can't forget another reason why I love fall because it means plenty of relaxing evenings by the firepit. A H H H H...

One of my friends here in the city has been enjoying some down time with his Son taking in a few local Red's games. It would be great to join them but he totally understands I just can't do the heat with my Gastroparesis. The last time I did see a game was when I went with his amazing family and I remember having a blast! This of course was yearsss ago. Oh...the things I sure miss doing before I was sick...It can be down right depressing if you let it and frustrating as all heck too! I am sure many other patients can relate with the lack of energy and complete change of life. Its overwhelming at times but I still do my best to find other things in life to enjoy like watching my new wildlife kid outside. Yes, instead of Mr. Groundhog we officially named him "Mr. Happy" today because no matter how bad of a day you might be having just seeing this cute and huge ball of fur is enough to make you smile. Mr. Happy is getting so used to us and his daily feedings of Cheerios and Carrots that this afternoon he came within 8 feet without even flenching. Now that is TRUST! Since he lives in the front of the house we make sure to keep Oreo and Littleblue on a leash when letting them outside. When they play in the backyard we first do a complete walk around before letting them out just in case Mr. Happy is chomping on the grass.

Just the little things that we both find joy in when it comes to living a GP life. In the old fast paced lifestyle I used to live before GP I doubt I would had ever had the time to enjoy the many small blessings from God. Amen.

"The world is round and the place which may seem like the end may also be only the beginning."
-Ivy Baker Priest


Posted by GastroparesisAwarenessCampaignOrg. at 11:58 PM EDT
Updated: July 25, 2012 2:57 AM EDT
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July 23, 2012
Raising Awareness!
Mood:  bright
Now Playing: Day 834-The Final Road To Survival

I want to say "Thank you" to my dear fellow GP friend Jennifer who inspired me from her own blog regarding daily struggles living a Gastroparesis life. Over 2 years and close to 900 blogs later here I am also hoping to inspire other patients whether it be Gastroparesis or any other medical condition to never give up and continue fighting the good fight no matter what life throws your way! I also hope my blog will inspire other patients to create their own personal story regarding their journey in hopes of helping others. I always said if you never truly suffered for years then you will never truly know pain. If people don't like seeing what its like living with Gastroparesis and all the ups and downs including photos then don't read about it. I am sure others with various medical conditions have also run into people who don't understand the word "Awareness" when it comes to medical education on their own personal blogs or other social network sites. 

CASE CLOSED.

To the others who take the time to read blogs and other avenues when it comes awareness with any common or rare medical condition this gal says, "Thank you!" No one puts their time nor limited energy into sharing their life suffering from a medical condition for attention. They do it in order to help educate others on the seriousness of needing advancements in medical research. This involves a condition I personally suffer from called, "Gastroparesis" as well there are many other orphaned conditions in the world that also need any attention they can get in hopes of a future cure.

"Awareness!"

Caringbridge is a great organization for patients who suffer from various medical conditions. They also have a place for terminal patients to create their personal journeys through a blog. https://www.caringbridge.org/signin

I want to send out my thoughts and prayers to Mary Valastro and family upon her recent diagnosis of ALS. What most don't realize is ALS can cause Gastroparesis and Gastroparesis can cause ALS since they are both central nervous system disorders. I encourage any family who has a loved one suffering from ALS or any other medical condition to view the recent episode of "The Cake Boss" which aired this evening on TLC. This is a prime example of how family should unite helping a loved one in time of need. HUGE HUGS to Buddy and his entire family who are truly Angels!  http://watchseries.eu/serie/cake_boss


Posted by GastroparesisAwarenessCampaignOrg. at 11:45 PM EDT
Updated: July 24, 2012 4:27 AM EDT
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July 22, 2012
Am I Winning?
Mood:  vegas lucky
Now Playing: Day 833-The Final Road To Survival

Gastroparesis should have another name called, "RUSSIAN ROULETTE." If this darn weekly Drano aka Hell-In-A-Jug treatment had a name it would be called, "RUSSIAN ROULETTE THE EXTENDED VERSION."

That's how it feels to me anymore. Treatment now lingers for so long that by the time I start to feel better I have only two FREE-DAYS days before the next treatment begins. Tell that also to my angry insides and fused intestines that once again called for emergency care since darn Drano is having a hard time even with the assistance of gravity. The amount of constant moving is enough to make anyone feel exhausted! Ask the ER doctors who don't know how I do it but do have one question, "How much longer do you think you can keep doing this?" Hmmmm....that is the exact same question all of my specialists are also asking. The answer is I don't know because my brain is still in fight mode although my body is starting to slowly win this game called, "Russian Roulette."

Maybe this was just another day that "wishful" thinking would had just told me if I didn't have to keep my body moving I should had just stayed on my couchbed with Littleblue and her stuffed animal fur kids. Yes, she is still in Mommy-Mode which now makes her stuffed animal puppies 2 weeks old as of today. Hee,hee,hee...Shes still cute as ever and also continues to help her own Mom from thinking about the constant pain of her twisted organs by staying closely to my side.

The heat and humidity have once again arrived today. The wildflowers are sure loving it but so are the weeds. Before having to make an emergency visit Eric spent the early afternoon hours helping to run through two rechargeable batteries for the weedeater then baking in the sun while cutting the grass. I always try to help. Key word "TRY." When once again your brain wants to do what your body is not capable of very seldom will you succeed. I guess the rest of the weed eating will have to wait until tomorrow once both batteries are recharged but at least he was able to finish up the rest of the other yard and outdoor projects.

Cuddles kitty who lives with heart murmur problems is doing as well as one kitty can be. Oreo's medication continues to help him have less frequent seizures. Pumpkin and Precious kitty are finishing up medication for allergies which has been causing them sneezing and watery eyes. Bear kitty has been healthy as can be and continues to play babysitter to Littleblue's stuffed animal puppies.

Me?

I am here. I am still breathing, walking and living the Gastroparesis life. Family stress? Well...you can't have it all right? Some things in life never change and hope can sometimes only be a four letter word but I am doing better by not beating myself up about things I can not change. Eric said, "Just remember you must continue to hand the baton over to me because your body doesn't need the stress. Most people would had given up after the first, second or even third try reaching out to family but you never gave up so be proud of yourself." I agree and for now I must continue being focused on my health because there is only one me.


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: July 23, 2012 4:11 AM EDT
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July 21, 2012
B L A H!
Mood:  down
Now Playing: Day 832-The Final Road To Survival

Yep. This is what I should had done all day. Sleep.

I had high hopes today that quickly went no where. It's hard having a medical condition that evolves around food. We had plans today that didn't go as expected. I try to not let disappointment get the best of me but its been tough lately with surrounding people in the city letting me down then on top of it my own darn body. My brain was even let down. Yes. That is possible. Hahahaha!

Brian and his family came in town Thursday evening but of course when I make plans in advance they never turn out as expected. At least they were able to enjoy the Reds game that I could only "wish" I attended. This was a great weekend to go out and catch a much needed break but with Gastroparesis always expect the unexpected. I guess this time around I choose the optimistic route and I was sadly disappointed. Tomorrow they head back home down south to Texas. Brian hopes we can visit within the year but right now what he doesn't know is I am still trying to test "any" long distance trip just in a car. I try to keep certain aspects of my various limitations due to my unique medical condition to a minimum when it comes to friends. I learned from those around the city just like the ole female friends that when I was honest in what I experience medically I was only then poked fun of so now I have my guards back up.

RIGHTFULLY SO!

On a day when I would had rather just stayed on my couchbed instead involved lots of walking in order to continue getting this FLIPPIN treatment moving. Eric is already starting to get exhausted from the constant walking and so is my poor body. My brain is the only thing that keeps me moving and motivated. Must be the Angels that surround me telling me to not give up. I'm glad my brain continues to listen. This doesn't stand for a VIP parking spot that allows medical patients to park close. Today it stands for: VIP-VERY IRRITATED PATIENT.

Its not been a good day and all my plans got completely turned around which is a grim reminder that I have to take the good with the bad when it comes to being sick. Its tough when your brain battles with your body but there is always tomorrow. I guess you can say I too have my bad days and no one living in the GP world is perfect. The rest of this evening I took a que from Littleblue and stopped battling disappointment and instead embraced the love from my fur kids.

If the song clearly says, "Life is a highway, I want to ride it all night long" then I better at least start by getting my foot in the door and getting my butt on the seat because its going to be one LONG LIFE RIDE! AMEN WITH A CHERRY ON TOP!!


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: July 22, 2012 3:07 AM EDT
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July 20, 2012
Time To Pass The Baton.
Mood:  chillin'
Now Playing: Day 831-The Final Road To Survival

 Yep. You guessed right. I didn't get much sleep but I did do a whole lot of tossing and turning. Chalk up Littleblue too! Between both of us we were up and down all hours of the night into the early morning hours before finally waking up around 2:30pm. Typical Drano-treatment experience. Have I become a Drano-Pro by now? NO. This will be a very long weekend, one filled with plenty of walking to keep this latest treatment moving inside my paralyzed GI organs.

Today after a few rude awakenings I have decided to pass the baton onto my dear Hubby who gladly said, "NO problem!" Let's just say I have a big enough battle on my hands being sick and dealing with the constant changes due to my Idiopathic Gastroparesis in which none are positive. I don't have time to keep holding up the walls built by others who are trying to take me down. Take for instance old female friends here in the city that I haven't seen in over 13 years who some how take enjoyment in making "fun" of me on the ole never ending gossip site, "Facebook." Yes, the same social network that to this day I say is, "Trouble waiting to happen." I am guilty of recently re-activating my page in order for Eric to stay in touch with those who would need to know if something would ever happen to me. It has also come in handy keeping others updated on the 3rd annual "United GP Walk" however... Unfortunately its also a damning place to find out about those so called female friends from years ago who instead of recently caring about my well being only added onto the wall by making a mockery of me and my health. The one I have been holding up until day. Now the baton has been handed off along with the wall.

Nothing quite like being spoken in past tense. "HEY! I am still here!" I guess no one knew because they were too busy building the wall around me. Life is a constant learning lesson and sometimes when you learn the hard way its the best way. Amen.

An amazing fellow GP'er reached out to me this week regarding his own personal journey. He also shared with me the incredible software he developed in hopes of helping other organizations. The most ironic part was learning he too suffers not just from Idiopathic Gastroparesis but also seizures. YES! Seizures!! FINALLY! someone who truly understands what I am going through when it comes to seizures. Thankfully he has found a seizure medication that helps to keep them a bit better under control. My Neurologists unfortunately still haven't found my magic seizure pill. After four years they are still on the look out for any new medications that might finally do the trick for me. In the meantime I am making sure to heed any warnings and always keep my cell phone by my side in case Eric is at work and not at home. Nothing is worse than having a seizure when your by yourself but it has happened on a few occasions. That's life. GP life in a nut shell for ya!

After a day full of battling stress creeping around the corner we took a short walk at the park to visit the baby ducks. They aren't so little anymore, in fact they are both growing bigger by the day! Once we parked and walked near the lake here came the little ones as they quickly waddled their way towards our feet. What a priceless life event to experience two orphaned ducks working past their struggles in order to find acceptance by other feathered friends. Sometimes the best things in life you truly can't buy. AMEN!

"Things aren't always as they appear. Sometimes what seems to be the end is really just a new beginning. Like a caterpillar turning into a butterfly.

I remember a time when it felt like nothing could go right. The whole world appeared to be teamed up against me. But I kept on moving forward, even when I couldn't tell exactly where I was going.

I found in life it's not about attaining a goal. What's most important is who we become during our pursuit."

 

"We can not direct the wind but we can adjust the sails."

-Author Unknown


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: July 21, 2012 4:15 AM EDT
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July 19, 2012
I Need S L E E P....
Mood:  chillin'
Now Playing: Day 830-The Final Road To Survival

First of all I want to wish princess Eliana my long distance GP niece (Call me proud :) Auntie GP Aunt) a very happy and blessed 4th birthday! What a cutie and such an inspiration as she continues to fight the great GP fight. I can't wait to see the photos of Eliana's new horse!

CHEERS TO ELIANA!

We woke up to the sounds of much needed rain. Eric said, "WOOHOA! this means I won't have to once again water the flowers or apple trees." He definitely planted them just in time! The wildflowers are really taking off and hopefully soon enough so will the rest of the new flowers and trees. Unfortunately there isn't one peach left on the tree in the backyard. The deer came back and finished the rest up including peaches that fell on the ground. OH well...Better try next year. At least since the new apple trees were planted in the front yard hopefully the deer will shy away from late night snacking. Instead of just one Groundhog it looks like there is now a family taking shelter under the enclosed wood around the front porch. They have two entrances. One to the left of the porch and one to the right. At least other animals can't disturb them or our fur gang. They are fun to watch and cute as can be!

Today was of course the dreaded Drano aka Hell-In-A-Jug day. UGGGG! I try to do my best making light of a serious situation which is consuming this toxic poison on a weekly basis and not know what will happen with each treatment. This time around my Drano appeared to have went through plastic surgery. GET IT! "PLASTIC surgery." Hahahaha! I shared the new Drano photo with fellow clean-out friends who also got a good laugh. I don't know about the botox lips but hey! to each their own. Hahahaha! My fellow GP friend Jeannie said, "Now you have literally flipped your wig!" Hahahaha! You gotta take the good with the bad and find fun in it. Even with dynamite in a jug. AMEN!

Like I said before, you just never know how each treatment will hit you and once again its going be a very longggggggg time for this gal! So far its been 9 hours since finishing my last glass and I am still waiting for things to work. Its going to be a night of walking steps and taking short walks with Hubby at the park across from our house. GRRRR! DARN DRANO!! At least the foundation repairs are finished and we only have three small things left on the list. With no sleep in sight it might be a good thing they won't be back till after 3pm to wrap things up tomorrow. Hopefully it won't just be Littleblue tonight getting some zzzzz's but with Drano you just never know...


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 AM EDT
Updated: July 20, 2012 2:16 AM EDT
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July 18, 2012
Earning Her Wings!
Mood:  surprised
Now Playing: Day 829-The Final Road To Survival
    Guess who's going back to work?
LITTLEBLUE! That's who!
It seems Littleblue has decided to spread her wings and fly as she takes her first steps training to become a "Working Fur Kid!" WOOHOA! Good for Littleblue! Oreo looked at the paperwork this afternoon and said, "Nah, I would rather work on taking it easy, lounging all day and catching some zzzz's...." Hahahahaha! Well, we did ask him but he wasn't interested. This will be a great way for Littleblue to get training in helping other terminal patients and providing loving support. She is on her way to earning her own wings and we can't wait! I think she will be such a blessing to those who also love fur kids and need a smile to brighten their day. Eric will be taking her to training and hopefully once she graduates and earns her wings I can also go a few times a month visiting those who are terminally ill whether it be at a hospital, nursing home or personal residence.
What a blessing indeed and by the looks of it Littleblue is already resting up for her first big day of training. Hee,hee,hee,hee...

We finally got some much needed rain! The ground has been so dry its starting to crack. Its been a chore for Eric each evening to keep up with watering all the flowers and now the new apple trees. We sure needed Mother Natures help today and hopefully there will be more rain tomorrow. The glass block window was suppose to be installed as well the new wiring for the sump pump but since there was lots of lightening with the storms things will have to wait. A few of my dear friends from Texas are going to be in town later this week for their traditional family reunion. Its been yearssssssssss since I have last seen them. Their parents have such a great sense of humor and are super sweet. What a great tradition to have once a year reuniting family together to catch up on life and also enjoying all the festivities. Brian works 16 hour days protecting government oil fields in the heart of Texas so I certainly bet he can't wait to take a much needed break!

Unfortunately this wasn't the day to finally re-start treatment since my latest seizure. Instead I must wait another 24 hours since my doctors had to call in two new medications this evening to help control toxicity in my intestines. GEEZ! I must reiterate again that I have never blamed my condition on anyone. I didn't ask to be sick and who does but lets be honest by saying, "I handle it like a pro and I don't ask for pity parties but please if I ask for your support sometimes that means just lending an ear." Please don't compare Gastroparesis to cancer because they are two totally different conditions. That is like comparing apples to oranges. I had family members make comparisons for years and it bothered me then and it bothers me now. The only thing anyone with "any" medical condition wants to hear are the words of comfort and support.

Once again this evening I decided to reach out to family in hopes of everyone possibly sitting down to talk out the issues at hand. I was hoping to discuss the overwhelming stress I have been getting dished out for quite sometime but once again it failed. I got nowhere but hey! give this gal credit for trying over and over and over and over again. You can't make people change nor understand what they don't want to see but you can stop the stress and walk away. I don't mind if people want to put the weight of their shoulders on me and if it makes them feel better at the end of the day then so be it. Trust me, this gal can handle it!

"When you understand your purpose, turbulence doesn't upset you."


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: July 19, 2012 3:22 AM EDT
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July 17, 2012
The "Other" Side Of Gastroparesis
Mood:  bright
Now Playing: Day 828-The Final Road To Survival

"What most people don't understand is the flip-side of Gastroparesis. What goes on behind the scenes in the lives of patients."

Since starting the Gastroparesis Awareness Campaign over 7 years ago I have learned that accepting the truth can be the hardest part of living a Gastroparesis life. When I receive an email or letter regarding a loved one who has passed due to Gastroparesis complications it devastates me. No one should have to lose their life due to having an orphaned disease that lacks serious federal funding and research such as Gastroparesis. Patients should not have to suffer on a daily basis by the multitude of symptoms that occur with Gastroparesis. Patients should not have to suffer due to not having available medication made specifically for Gastroparesis.

Today I received another heart breaking email regarding someone losing a loved one due to Gastroparesis complications. This should never have to happen to anyone nor should supportive family have to sit back and watch their loved one suffer.

What most don't see is the other side of Gastroparesis. Most don't understand the severity of complications that can occur even without warning. They can also be life threatening. What most don't see is the multitude of patients who suffer from lack of support from family, friends and loved ones. This should never happen because we don't ask to be sick nor ask to be diagnosed with Gastroparesis. Why do patients have to sit back in silence suffering alone due to lack of support? This to me just doesn't make any sense. What most don't see is the amount of testing that every Gastroparesis patient must endure and face during the course of their condition. What most don't see is the financial burden and strain that is caused by Gastroparesis. What most don't see is the pain and suffering patients go through in order to keep food down and "possibly" being absorbed by paralyzed GI organs. What most don't understand is that Gastroparesis does progress over time. There are so many things on the other side of Gastroparesis that society fails to see because they fail to understand our unique condition. Over time most patients find themselves becoming a burden to not just family but also friends and loved ones. We lose our sense of being and our sense of hope. Thank God we have each other-Gastroparesis family made up of fellow Gastroparesis patients that consistently reach out and take the time to support one another.

No one should have to lose their life due to lack of research, answers and a cure. No one should have to scream for support and lose every aspect of their lives because of Gastroparesis. I hope those who read this blog and also suffer from Gastroparesis pass it on to family, friends and loved ones in hopes of providing further education on what lies on the flip-side of our condition. We shouldn't have to suffer in order to be heard.

It has been a day full of awakenings. I had two doctors appointments. Unfortunately there is nothing they can do to help control my seizures that are here to stay so the only thing I can do is take it one day at a time. I was also asked by one of my doctors today, "How are you doing since we out they can not do surgery?" My response, "I can't change the plate in front of me but when you have been battling and fighting the great fight for almost a decade you take the good with the bad." It hasn't been easy but God has a job for every one to do while here on Earth. I hope one day when I stand before him in Heaven I make him proud!

"If people have time and money to waste by getting elective cosmetic surgeries then they have the time to invest in Gastroparesis by raising Awareness and helping to save lives."

"I understand some procedures are necessary and God Bless those people but Vanity is a sin and when you reach the pearly gates and they don't recognize you, you will have some explaining to do !" -D


Posted by GastroparesisAwarenessCampaignOrg. at 11:47 PM EDT
Updated: July 18, 2012 2:51 AM EDT
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July 16, 2012
Post-Seizure Day...
Mood:  down
Now Playing: Day 827-The Final Road To Survival

This is what your body feels like after a seizure, as if people were standing there stretching and pulling on every single inch of you.

Yes. I was sore as all heck today! My entire body aches and rightfully so! If having a seizure wasn't enough to deal with we lost power around 4am. I was just about ready to fall back to sleep after taking medication to help loosen up my arms and legs when POOF!! there went the power. Eric was in the middle of finally being able to watch a movie he taped two weeks ago when POOF!! the TV went out.

DANG IT!

Its smart that we always fully charge our cell phones before we lay down to rest. After Eric made five phone calls to our energy company we were told it would take 3-5 hours for them to fix and restore electric to three areas around the city. What would had been an attempted great night of sleep instead went to finally having electric around 10am and not getting up till 5pm. I think we both officially beat any old sleeping records. Hahahaha! Littleblue drove me nuts jumping back and forth between the couch and floor all hours of the night and since once again the heat and humidity are back the house quickly got stuffy and hot. Once the electric came back on it took another hour to cool things back down. Work that was suppose to happen with house repairs today got postponed until Tuesday and Wednesday so this gal could get some much needed rest! AMEN.

I dealt with tremors for most of the day but thank goodness no after-seizures. I regained full use of my left side by 6pm just in time to play outside "Supervisor" while Eric planted the apple trees. He did a great job and they look sooooooooooo good! We had an empty part of the front yard that needed something and what it sure needed were some apple trees. Hopefully by next summer they will be twice the size if we don't have such a dry year. Eric was nice enough to finish all of the house chores and watering the flower beds outside. We now have over 14 different varieties of wildflowers starting to bloom. They really brighten things up! Even the new groundhog family get to enjoy them since their new home is near the wildflowers. Let's just hope they don't eat them. So far so good!

We didn't get to walk at the park and visit the baby ducks this evening since per my doctors suggestion its best to take it easy and let my body rest. Instead I was able to finally catch up on a few taped shows and Eric got to finish watching his movie. Drano aka Hell-In-A-Jug treatment also had to be postponed due to the seizure so hopefully I can play catch up in the next 48 hours.

Hey, life happens and so does GP...


Posted by GastroparesisAwarenessCampaignOrg. at 11:32 PM EDT
Updated: July 18, 2012 1:25 AM EDT
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