Mood:
Now Playing: Day 836-The Final Road To Survival
I weigh HOW MUCH?!!
Yes, it was another day when all my body wanted to do was sleep, sleep, sleep but instead we had a full days schedule which included doctor appointments, door repairs and friends coming over to visit. No sleeping all day for this gal but maybe another time later this week. Littleblue once again didn't help matters jumping back and forth between the couch and her den located under a side coffee table with her stuffed animal fur babies. At least Oreo doesn't do the same thing and instead finds complete comfort on his extra large floor bed.
The tremors seem to be more coming than going and after today's visit it appears they won't be leaving anytime soon. Same goes with the constant weight loss. 108 pounds is a number I don't remember seeing since I was in the 8th grade and even then I don't think I was that small! HOLYMOLY!! If my paralyzed and stretched colon wasn't still inside me they estimate my weight to be less than 100 pounds. NUTS!! As one doctor said, "You are all stomach." Ummm...More like stomach and intestines! Its no wonder Eric complains that I need smaller pants that fit and don't droop but lets be honest in saying it took me months just to find the three new pairs I bought this spring. They are all size 2 which means the next juniors size down is 1 or 0 and they are hard to find. I guess we know what Santa will be bringing me this holiday season. Eric even lost four pounds over the past week but his is due to all the stress that he has been taking off my shoulders. Its hard keeping up with the constant walking and moving around in order to not get myself in trouble-GP wise but I also lack the calories now since having to water down the heck out of everything I consume on a daily basis.
One GP evil -vs- another.
Oh well....All I can do is continue doing the best I can do and at least my specialists totally understand! They don't want to go the tube or IV route seeing my compromised immune system couldn't handle any line infections. That would only make things a million times worse for me and for them! Lately I am just flat out TIRED but its only to be expected. Friends were over today and even commented on the fact I didn't look so good. Maybe since I see myself in the mirror everyday I don't see the changes as much unlike others who don't see me on a daily basis. I still respect their honesty because I can't deny the fact that if my insides are changing and not for the better my outer appearance will also in time suffer. Thank goodness for hair care products, wigs and make up but sometimes you can't always hide the bags and darkness under your eyes.
Since the tremors haven't been too kind this week once again the doctors have me pushing my treatment back another 24 hours. Not like it matters to me seeing I can't stand drinking that foul, warm, ocean, chlorine-toxic nightmare anymore. The only positive out of each dreaded experience is it does help to keep me out of trouble. This evening we only did half of a walk. Eric said, "I think this is the shortest walk we have ever done." NO JOKE! The rest of the evening consisted of running a few errands and I even bought myself some new fingernail polishes. What gal doesn't enjoy a few new shades for the upcoming fall season?! My colors, "Black polish with a bottle of festive sparkle topcoat." Call it the BLAH color mood of choice. Need I say more?...
Hopefully this evening Miss Littleblue will be less of a jumping bean laying next to Mommy. If tomorrow finally brings my next treatment then I will surely need all the sleep I can get! AMEN. You know when you get knocked on your A%% and you just can't take anymore....
Well there are people that are always there to pick you up... dust you off...and lend you their hand to help.... -FB Friend
My GP Angel Eliana got a late birthday gift from her ole GP Auntie Aunt today via mail. I am so glad she really loves her rainbow wall maker. TOO CUTE! I told her Mom this evening that if Eliana wakes up and finds a pot of gold in her room then this gal is getting one for herself! Hee,hee,hee...Eric thinks it would be a great idea to buy one for little Erik although I have a hunch I will be making the most use of it. Anything to soothe the soul during bad GP days and who doesn't love rainbows?!
It's a HUGE relief for both of us!! The new white stones also match the seashells I have around the landscaping from prior years vacationing down south in Florida. I can't wait for fall to enjoy our homemade sandbox in the backyard we made last year.
Hopefully by then the temperatures will be much cooler and the honeysuckle bushes the neighbors butchered way too far back will be taller for some much needed shade. I also can't forget another reason why I love fall because it means plenty of relaxing evenings by the firepit. A H H H H...
One of my friends here in the city has been enjoying some down time with his Son taking in a few local Red's games. It would be great to join them but he totally understands I just can't do the heat with my Gastroparesis. The last time I did see a game was when I went with his amazing family and I remember having a blast! This of course was yearsss ago. Oh...the things I sure miss doing before I was sick...It can be down right depressing if you let it and frustrating as all heck too! I am sure many other patients can relate with the lack of energy and complete change of life. Its overwhelming at times but I still do my best to find other things in life to enjoy like watching my new wildlife kid outside. Yes, instead of Mr. Groundhog we officially named him "Mr. Happy" today because no matter how bad of a day you might be having just seeing this cute and huge ball of fur is enough to make you smile. Mr. Happy is getting so used to us and his daily feedings of Cheerios and Carrots that this afternoon he came within 8 feet without even flenching. Now that is TRUST! Since he lives in the front of the house we make sure to keep Oreo and Littleblue on a leash when letting them outside. When they play in the backyard we first do a complete walk around before letting them out just in case Mr. Happy is chomping on the grass. 


Gastroparesis should have another name called, "RUSSIAN ROULETTE." If this darn weekly Drano aka Hell-In-A-Jug treatment had a name it would be called, "RUSSIAN ROULETTE THE EXTENDED VERSION."
Yes, she is still in Mommy-Mode which now makes her stuffed animal puppies 2 weeks old as of today. Hee,hee,hee...Shes still cute as ever and also continues to help her own Mom from thinking about the constant pain of her twisted organs by staying closely to my side. 


Brian and his family came in town Thursday evening but of course when I make plans in advance they never turn out as expected. At least they were able to enjoy the Reds game that I could only "wish" I attended. This was a great weekend to go out and catch a much needed break but with Gastroparesis always expect the unexpected. I guess this time around I choose the optimistic route and I was sadly disappointed. Tomorrow they head back home down south to Texas. Brian hopes we can visit within the year but right now what he doesn't know is I am still trying to test "any" long distance trip just in a car. I try to keep certain aspects of my various limitations due to my unique medical condition to a minimum when it comes to friends. I learned from those around the city just like the ole female friends that when I was honest in what I experience medically I was only then poked fun of so now I have my guards back up.
On a day when I would had rather just stayed on my couchbed instead involved lots of walking in order to continue getting this FLIPPIN treatment moving. Eric is already starting to get exhausted from the constant walking and so is my poor body. My brain is the only thing that keeps me moving and motivated. Must be the Angels that surround me telling me to not give up. I'm glad my brain continues to listen. This doesn't stand for a VIP parking spot that allows medical patients to park close. Today it stands for: VIP-VERY IRRITATED PATIENT. 
Today after a few rude awakenings I have decided to pass the baton onto my dear Hubby who gladly said, "NO problem!" Let's just say I have a big enough battle on my hands being sick and dealing with the constant changes due to my Idiopathic Gastroparesis in which none are positive. I don't have time to keep holding up the walls built by others who are trying to take me down. Take for instance old female friends here in the city that I haven't seen in over 13 years who some how take enjoyment in making "fun" of me on the ole never ending gossip site, "Facebook." Yes, the same social network that to this day I say is, "Trouble waiting to happen." I am guilty of recently re-activating my page in order for Eric to stay in touch with those who would need to know if something would ever happen to me. It has also come in handy keeping others updated on the 3rd annual "United GP Walk" however... Unfortunately its also a damning place to find out about those so called female friends from years ago who instead of recently caring about my well being only added onto the wall by making a mockery of me and my health. The one I have been holding up until day. Now the baton has been handed off along with the wall.
Once we parked and walked near the lake here came the little ones as they quickly waddled their way towards our feet. What a priceless life event to experience two orphaned ducks working past their struggles in order to find acceptance by other feathered friends. Sometimes the best things in life you truly can't buy. AMEN!
CHEERS TO ELIANA!
Instead of just one Groundhog it looks like there is now a family taking shelter under the enclosed wood around the front porch. They have two entrances. One to the left of the porch and one to the right. At least other animals can't disturb them or our fur gang. They are fun to watch and cute as can be!





It has been a day full of awakenings. I had two doctors appointments. Unfortunately there is nothing they can do to help control my seizures that are here to stay so the only thing I can do is take it one day at a time. I was also asked by one of my doctors today, "How are you doing since we out they can not do surgery?" My response, "I can't change the plate in front of me but when you have been battling and fighting the great fight for almost a decade you take the good with the bad." It hasn't been easy but God has a job for every one to do while here on Earth. I hope one day when I stand before him in Heaven I make him proud!


I dealt with tremors for most of the day but thank goodness no after-seizures. I regained full use of my left side by 6pm just in time to play outside "Supervisor" while Eric planted the apple trees. He did a great job and they look sooooooooooo good! We had an empty part of the front yard that needed something and what it sure needed were some apple trees. Hopefully by next summer they will be twice the size if we don't have such a dry year. Eric was nice enough to finish all of the house chores and watering the flower beds outside. We now have over 14 different varieties of wildflowers starting to bloom. They really brighten things up! Even the new groundhog family get to enjoy them since their new home is near the wildflowers. Let's just hope they don't eat them. So far so good!