Mood:
brightNow Playing: Day 834-The Final Road To Survival
I want to say "Thank you" to my dear fellow GP friend Jennifer who inspired me from her own blog regarding daily struggles living a Gastroparesis life. Over 2 years and close to 900 blogs later here I am also hoping to inspire other patients whether it be Gastroparesis or any other medical condition to never give up and continue fighting the good fight no matter what life throws your way! I also hope my blog will inspire other patients to create their own personal story regarding their journey in hopes of helping others. I always said if you never truly suffered for years then you will never truly know pain. If people don't like seeing what its like living with Gastroparesis and all the ups and downs including photos then don't read about it. I am sure others with various medical conditions have also run into people who don't understand the word "Awareness" when it comes to medical education on their own personal blogs or other social network sites.
CASE CLOSED.
To the others who take the time to read blogs and other avenues when it comes awareness with any common or rare medical condition this gal says, "Thank you!" No one puts their time nor limited energy into sharing their life suffering from a medical condition for attention. They do it in order to help educate others on the seriousness of needing advancements in medical research. This involves a condition I personally suffer from called, "Gastroparesis" as well there are many other orphaned conditions in the world that also need any attention they can get in hopes of a future cure.
"Awareness!"
Caringbridge is a great organization for patients who suffer from various medical conditions. They also have a place for terminal patients to create their personal journeys through a blog. https://www.caringbridge.org/signin
I want to send out my thoughts and prayers to Mary Valastro and family upon her recent diagnosis of ALS. What most don't realize is ALS can cause Gastroparesis and Gastroparesis can cause ALS since they are both central nervous system disorders. I encourage any family who has a loved one suffering from ALS or any other medical condition to view the recent episode of "The Cake Boss" which aired this evening on TLC. This is a prime example of how family should unite helping a loved one in time of need. HUGE HUGS to Buddy and his entire family who are truly Angels!
http://watchseries.eu/serie/cake_boss
vegas lucky
Gastroparesis should have another name called, "RUSSIAN ROULETTE." If this darn weekly Drano aka Hell-In-A-Jug treatment had a name it would be called, "RUSSIAN ROULETTE THE EXTENDED VERSION." 
Yes, she is still in Mommy-Mode which now makes her stuffed animal puppies 2 weeks old as of today. Hee,hee,hee...Shes still cute as ever and also continues to help her own Mom from thinking about the constant pain of her twisted organs by staying closely to my side. 
down
Brian and his family came in town Thursday evening but of course when I make plans in advance they never turn out as expected. At least they were able to enjoy the Reds game that I could only "wish" I attended. This was a great weekend to go out and catch a much needed break but with Gastroparesis always expect the unexpected. I guess this time around I choose the optimistic route and I was sadly disappointed. Tomorrow they head back home down south to Texas. Brian hopes we can visit within the year but right now what he doesn't know is I am still trying to test "any" long distance trip just in a car. I try to keep certain aspects of my various limitations due to my unique medical condition to a minimum when it comes to friends. I learned from those around the city just like the ole female friends that when I was honest in what I experience medically I was only then poked fun of so now I have my guards back up. 
On a day when I would had rather just stayed on my couchbed instead involved lots of walking in order to continue getting this FLIPPIN treatment moving. Eric is already starting to get exhausted from the constant walking and so is my poor body. My brain is the only thing that keeps me moving and motivated. Must be the Angels that surround me telling me to not give up. I'm glad my brain continues to listen. This doesn't stand for a VIP parking spot that allows medical patients to park close. Today it stands for: VIP-VERY IRRITATED PATIENT. 
LONG LIFE RIDE! AMEN WITH A CHERRY ON TOP!!
chillin'
Today after a few rude awakenings I have decided to pass the baton onto my dear Hubby who gladly said, "NO problem!" Let's just say I have a big enough battle on my hands being sick and dealing with the constant changes due to my Idiopathic Gastroparesis in which none are positive. I don't have time to keep holding up the walls built by others who are trying to take me down. Take for instance old female friends here in the city that I haven't seen in over 13 years who some how take enjoyment in making "fun" of me on the ole never ending gossip site, "Facebook." Yes, the same social network that to this day I say is, "Trouble waiting to happen." I am guilty of recently re-activating my page in order for Eric to stay in touch with those who would need to know if something would ever happen to me. It has also come in handy keeping others updated on the 3rd annual "United GP Walk" however... Unfortunately its also a damning place to find out about those so called female friends from years ago who instead of recently caring about my well being only added onto the wall by making a mockery of me and my health. The one I have been holding up until day. Now the baton has been handed off along with the wall. 
Once we parked and walked near the lake here came the little ones as they quickly waddled their way towards our feet. What a priceless life event to experience two orphaned ducks working past their struggles in order to find acceptance by other feathered friends. Sometimes the best things in life you truly can't buy. AMEN!
CHEERS TO ELIANA!
Instead of just one Groundhog it looks like there is now a family taking shelter under the enclosed wood around the front porch. They have two entrances. One to the left of the porch and one to the right. At least other animals can't disturb them or our fur gang. They are fun to watch and cute as can be!
I shared the new Drano photo with fellow clean-out friends who also got a good laugh. I don't know about the botox lips but hey! to each their own. 
Hahahaha! My fellow GP friend Jeannie said, "Now you have literally flipped your wig!" Hahahaha!
You gotta take the good with the bad and find fun in it. Even with dynamite in a jug. AMEN!
At least the foundation repairs are finished and we only have three small things left on the list. With no sleep in sight it might be a good thing they won't be back till after 3pm to wrap things up tomorrow. Hopefully it won't just be Littleblue tonight getting some zzzzz's but with Drano you just never know...
surprised
It has been a day full of awakenings. I had two doctors appointments. Unfortunately there is nothing they can do to help control my seizures that are here to stay so the only thing I can do is take it one day at a time. I was also asked by one of my doctors today, "How are you doing since we out they can not do surgery?" My response, "I can't change the plate in front of me but when you have been battling and fighting the great fight for almost a decade you take the good with the bad." It hasn't been easy but God has a job for every one to do while here on Earth. I hope one day when I stand before him in Heaven I make him proud!
I dealt with tremors for most of the day but thank goodness no after-seizures. I regained full use of my left side by 6pm just in time to play outside "Supervisor" while Eric planted the apple trees. He did a great job and they look sooooooooooo good! We had an empty part of the front yard that needed something and what it sure needed were some apple trees. Hopefully by next summer they will be twice the size if we don't have such a dry year. Eric was nice enough to finish all of the house chores and watering the flower beds outside. We now have over 14 different varieties of wildflowers starting to bloom. They really brighten things up! Even the new groundhog family get to enjoy them since their new home is near the wildflowers. Let's just hope they don't eat them. So far so good!
My seizure disorder started a little over four years ago. I tend to always get seizure-aura before the seizure starts but this time was different because I didn't get any warnings. My Neurologists call my seizures, "Complex seizures" same as with my Gastroparesis that also seems to be COMPLEX. My doctors have run numerous tests over the past four years and found my triggers which seem to be excessive light, flashing lights and bright lights. They have recently not only tried me on a few other new medications but adjusted the dosage but obviously they don't work due to the complexity of my seizures.The past two years they seem to occur the same time my Gastroparesis flairs up. Are they connected? Yes. This morning proved to my doctors once again there is a definite connection. 
Thankfully Eric was home and didn't leave yet for drill. Since I was in the process of standing up I didn't get the aura warning to lay down so the seizure knocked me back and locked my entire left side of my body. I suffered temporary memory loss which isn't the first time and although it can scare the crap out of anyone it sadly occurs following most seizures. Eric was very concerned because my left hand and foot were locked up and turned inward due to my joints being frozen from the seizure. Once my seizure stopped the after tremors lasted for 20 minutes and by that time I was mentally and physically EXHAUSTED! It was 7:30am before I was able to get back to sleep. Eric didn't get to sleep until 10am and also had to call his Commander to let them know what was going on. They are fully aware of my unique medical condition and felt it was important Eric stayed home to make sure I didn't have any after-seizures which can happen following a seizure and tremors. 
celebratory
I have always wanted an apple tree for the past seven years. Its hard to find apple trees and when I looked online last month it was too late in the season to order one. This afternoon I am happy to say we ironically stumbled across APPLE TREES! Not only did we buy one but instead bought two. Soon enough I will have enough wildlife animals around the property to call it my own personal little Zoo. Heeheeheehee... Mr. Groundhog is finally back with a new girlfriend living under the front porch. I have a feeling sooner or later we might see some baby Groundhogs. Eric said, "Wow! The male is HUGE! I have never been able to come this close to a Groundhog but they sure are cute." "The way things are going instead of buying a house out west we might end up with a farm. Hahahaha! I love animals because they will never leave you and always give unconditional love. DITTO TIMES 10!
Since tomorrow is Dranotini Sunday we decided to have a date-night this evening. It will do us both good to get out of the house for awhile! We tried to start the new tradition last month taking turns planning a night out each week but things got us side tracked and I was once again down for the count. Thank goodness I am spontaneous. You have to be living a Gastroparesis life. AMEN! Its been awhile since I was able to go out without hair extensions or wigs and it felt extremely liberating. I better do it now before its too late. Sometimes you just have to put what others say to the side and be YOURSELF. 