Mood:
downNow Playing: Day 832-The Final Road To Survival
Yep. This is what I should had done all day. Sleep.
I had high hopes today that quickly went no where. It's hard having a medical condition that evolves around food. We had plans today that didn't go as expected. I try to not let disappointment get the best of me but its been tough lately with surrounding people in the city letting me down then on top of it my own darn body. My brain was even let down. Yes. That is possible. Hahahaha!
Brian and his family came in town Thursday evening but of course when I make plans in advance they never turn out as expected. At least they were able to enjoy the Reds game that I could only "wish" I attended. This was a great weekend to go out and catch a much needed break but with Gastroparesis always expect the unexpected. I guess this time around I choose the optimistic route and I was sadly disappointed. Tomorrow they head back home down south to Texas. Brian hopes we can visit within the year but right now what he doesn't know is I am still trying to test "any" long distance trip just in a car. I try to keep certain aspects of my various limitations due to my unique medical condition to a minimum when it comes to friends. I learned from those around the city just like the ole female friends that when I was honest in what I experience medically I was only then poked fun of so now I have my guards back up.
RIGHTFULLY SO!
On a day when I would had rather just stayed on my couchbed instead involved lots of walking in order to continue getting this FLIPPIN treatment moving. Eric is already starting to get exhausted from the constant walking and so is my poor body. My brain is the only thing that keeps me moving and motivated. Must be the Angels that surround me telling me to not give up. I'm glad my brain continues to listen. This doesn't stand for a VIP parking spot that allows medical patients to park close. Today it stands for: VIP-VERY IRRITATED PATIENT.
Its not been a good day and all my plans got completely turned around which is a grim reminder that I have to take the good with the bad when it comes to being sick. Its tough when your brain battles with your body but there is always tomorrow. I guess you can say I too have my bad days and no one living in the GP world is perfect. The rest of this evening I took a que from Littleblue and stopped battling disappointment and instead embraced the love from my fur kids.
If the song clearly says, "Life is a highway, I want to ride it all night long" then I better at least start by getting my foot in the door and getting my butt on the seat because its going to be one 
LONG LIFE RIDE! AMEN WITH A CHERRY ON TOP!!
chillin'
Today after a few rude awakenings I have decided to pass the baton onto my dear Hubby who gladly said, "NO problem!" Let's just say I have a big enough battle on my hands being sick and dealing with the constant changes due to my Idiopathic Gastroparesis in which none are positive. I don't have time to keep holding up the walls built by others who are trying to take me down. Take for instance old female friends here in the city that I haven't seen in over 13 years who some how take enjoyment in making "fun" of me on the ole never ending gossip site, "Facebook." Yes, the same social network that to this day I say is, "Trouble waiting to happen." I am guilty of recently re-activating my page in order for Eric to stay in touch with those who would need to know if something would ever happen to me. It has also come in handy keeping others updated on the 3rd annual "United GP Walk" however... Unfortunately its also a damning place to find out about those so called female friends from years ago who instead of recently caring about my well being only added onto the wall by making a mockery of me and my health. The one I have been holding up until day. Now the baton has been handed off along with the wall. 
Once we parked and walked near the lake here came the little ones as they quickly waddled their way towards our feet. What a priceless life event to experience two orphaned ducks working past their struggles in order to find acceptance by other feathered friends. Sometimes the best things in life you truly can't buy. AMEN!
CHEERS TO ELIANA!
Instead of just one Groundhog it looks like there is now a family taking shelter under the enclosed wood around the front porch. They have two entrances. One to the left of the porch and one to the right. At least other animals can't disturb them or our fur gang. They are fun to watch and cute as can be!
I shared the new Drano photo with fellow clean-out friends who also got a good laugh. I don't know about the botox lips but hey! to each their own. 
Hahahaha! My fellow GP friend Jeannie said, "Now you have literally flipped your wig!" Hahahaha!
You gotta take the good with the bad and find fun in it. Even with dynamite in a jug. AMEN!
At least the foundation repairs are finished and we only have three small things left on the list. With no sleep in sight it might be a good thing they won't be back till after 3pm to wrap things up tomorrow. Hopefully it won't just be Littleblue tonight getting some zzzzz's but with Drano you just never know...
surprised
"When you understand your purpose, turbulence doesn't upset you."
bright
It has been a day full of awakenings. I had two doctors appointments. Unfortunately there is nothing they can do to help control my seizures that are here to stay so the only thing I can do is take it one day at a time. I was also asked by one of my doctors today, "How are you doing since we out they can not do surgery?" My response, "I can't change the plate in front of me but when you have been battling and fighting the great fight for almost a decade you take the good with the bad." It hasn't been easy but God has a job for every one to do while here on Earth. I hope one day when I stand before him in Heaven I make him proud!
I dealt with tremors for most of the day but thank goodness no after-seizures. I regained full use of my left side by 6pm just in time to play outside "Supervisor" while Eric planted the apple trees. He did a great job and they look sooooooooooo good! We had an empty part of the front yard that needed something and what it sure needed were some apple trees. Hopefully by next summer they will be twice the size if we don't have such a dry year. Eric was nice enough to finish all of the house chores and watering the flower beds outside. We now have over 14 different varieties of wildflowers starting to bloom. They really brighten things up! Even the new groundhog family get to enjoy them since their new home is near the wildflowers. Let's just hope they don't eat them. So far so good!
My seizure disorder started a little over four years ago. I tend to always get seizure-aura before the seizure starts but this time was different because I didn't get any warnings. My Neurologists call my seizures, "Complex seizures" same as with my Gastroparesis that also seems to be COMPLEX. My doctors have run numerous tests over the past four years and found my triggers which seem to be excessive light, flashing lights and bright lights. They have recently not only tried me on a few other new medications but adjusted the dosage but obviously they don't work due to the complexity of my seizures.The past two years they seem to occur the same time my Gastroparesis flairs up. Are they connected? Yes. This morning proved to my doctors once again there is a definite connection. 
Thankfully Eric was home and didn't leave yet for drill. Since I was in the process of standing up I didn't get the aura warning to lay down so the seizure knocked me back and locked my entire left side of my body. I suffered temporary memory loss which isn't the first time and although it can scare the crap out of anyone it sadly occurs following most seizures. Eric was very concerned because my left hand and foot were locked up and turned inward due to my joints being frozen from the seizure. Once my seizure stopped the after tremors lasted for 20 minutes and by that time I was mentally and physically EXHAUSTED! It was 7:30am before I was able to get back to sleep. Eric didn't get to sleep until 10am and also had to call his Commander to let them know what was going on. They are fully aware of my unique medical condition and felt it was important Eric stayed home to make sure I didn't have any after-seizures which can happen following a seizure and tremors. 
celebratory
I have always wanted an apple tree for the past seven years. Its hard to find apple trees and when I looked online last month it was too late in the season to order one. This afternoon I am happy to say we ironically stumbled across APPLE TREES! Not only did we buy one but instead bought two. Soon enough I will have enough wildlife animals around the property to call it my own personal little Zoo. Heeheeheehee... Mr. Groundhog is finally back with a new girlfriend living under the front porch. I have a feeling sooner or later we might see some baby Groundhogs. Eric said, "Wow! The male is HUGE! I have never been able to come this close to a Groundhog but they sure are cute." "The way things are going instead of buying a house out west we might end up with a farm. Hahahaha! I love animals because they will never leave you and always give unconditional love. DITTO TIMES 10!
Since tomorrow is Dranotini Sunday we decided to have a date-night this evening. It will do us both good to get out of the house for awhile! We tried to start the new tradition last month taking turns planning a night out each week but things got us side tracked and I was once again down for the count. Thank goodness I am spontaneous. You have to be living a Gastroparesis life. AMEN! Its been awhile since I was able to go out without hair extensions or wigs and it felt extremely liberating. I better do it now before its too late. Sometimes you just have to put what others say to the side and be YOURSELF. 
With all the house repairs going on Oreo has yet to catch up on his sleep. Littleblue doesn't help much since she is up most of the day and night rotating her stuffed animal fur babies. Hee,hee,hee,hee... Eric hasn't seen anything quite like it but does agree she sure is a great and protective Mom. Too bad most parents in the world aren't as protective of their own kids like Littleblue is with her fur babies.
We let him pick out the days activities which included dinner and games at Chuck E. Cheese. Since my last treatment is still trapped which makes me feel a bit foggy I got smart this time and brought along a magazine. Eric has a huge fear of the Teletubbies which is kinda ironic seeing the table we picked out seemed to be right next to them. The only problem was Eric didn't see them but I sure did. TOO FUNNY!
Little Erik had a great time playing all the games and watching Chuck E. Cheese perform on stage with the other characters. It was busy but not too crowded so we all got to enjoy playing a few game together until little Erik's energy was wiped out then we headed home. We all had a great time and it was nice to free my mind from all the stress that has been going on lately with family. AMEN!
Since a few close friends in the city told me I need to start calling them more often so they can share some laughs I did just that this morning. Like 2:30am. Hahahaha! OK. Now you all can't say I don't call when I am up because guess what? I was UP but the problem was one individual wasn't and instead of his phone ringer being off he accidentally left it on after falling asleep in his kids bed watching a movie. Talking about sharing a few laughs when he was completely out of it then freaked thinking he was late for work. Hahahaha! Maybe next time everyone will think twice about telling me to call them when I am up and can't sleep. At least we both got a huge kick out of it later this evening. I am hoping to be able to see my friends in the city a bit more often before making the big move out west. 
quizzical
Since the stress caused by family put a halt for two days with my treatment I now have to endure it one more time this weekend. Yesterdays treatment didn't work and its to no surprise when your insides are fighting two battles. This should be a clear example for me to finally GET IT and understand if family understood my condition they would had respected the hell I go through doing treatments and not added unnecessary stress. AMEN. Its OK though because here on out I won't have to worry about holding off on treatment and now maybe I can get back on a schedule. I did have an important appointment to have my lymph nodes rechecked by my Oncologist/Hematologist today "however" its like the domino effect. Stress=no treatment for two days=having to catch up on treatment=no sleep=doctor wants me to reschedule so I can rest. Crazy isn't it? Yes. It is.