Now Playing: Day 813-The Final Road To Survival
Instead of throwing in the towel I am starting to find ways to keep it. I won't say depression isn't trying to take over the reins in my life because its normal to go through emotions after last weeks news regarding my medical situation. I would love to just sleep the next week away however today I only got as far as sleeping an extra hour before the pain took over my brain. The sweats and fever have continued on and off through out the day which leads me to believe either the treatment is playing with my immune system or visa versa. Regardless after contacting my Oncologist/Hematologist's assistant this afternoon it was strongly advised I keep my appointment for next week. My doctor needs to rescan and check my lymph nodes every three months and I am due so I guess there is no way getting out of this one.
Part of not throwing in the towel just yet includes building onto my GP oasis here at home. Since the tidings of bad news last week its important to make my home as safe as possible. This also includes the air quality. We are on our way of wrapping up months of house repairs due to the May monsoon rains and floods so the next step this week is to make sure the mold is also finally under control. Since we added new dehumidifiers on all three levels we have also noticed less water in the machines which means drier air in the house and hopefully no mold. We had James and Josh from Advanced Air Technologies come to our home today to clean out all the main lines in our furnace, air ducts and vents. They also checked on any mold issues that might be hiding inside the air ducts that can't be seen with a naked eye. It took them almost three hours and after wards they showed us what was picked up through out the house using a high quality filtration machine and vacuum system. Let's just say having a home 102 years old means lots of dirt the machine picked up but luckily for them no ghosts! Hahahahaha... Well we didn't see any but that doesn't mean they didn't take any home with them. Hee,hee,hee... James and Josh did a great job and I am happy to say between the latest air quality tests, mold interventions and today's air duct, vent and furnace system cleaning we are finally free of any scary mold! WOOHOA!! Now that IS reason to celebrate!
With any chronic or terminal medical condition its important when you are receiving any type of home treatments that the air in which you breathe in is safe. To me my home is now my GP oasis since I spend most of my time here and do weekly medical treatments. Its very important to be proactive by keeping my home a safe haven. I highly suggest other patients to also be proactive by having their homes inspected for possible hidden hazards once a year. (Did I just do another plug? I guess I did! Hahahahaha!)
After the house got a through cleaning we ran a few errands so I could take a breather. I was told by my doctor to step it up and try increasing my fluids and introduce at least a cup of yogurt into my diet once a day. I started the small cup of Dannon low fat yogurt once I got up and finally finished it this evening. 10 hours later. If you think that sounds bad it took me 3 days to finish a 12oz Bolthouse veggie drink because my intestines are so inflamed and narrowed. Since my insides are paralyzed I don't get the hunger pains like most people nor do I get thirsty so its important to set reminders through out the day. Even being watered down things lately are still getting stuck. I "tried" the watered down spinach dip and boy! did that NOT WORK! Instead Eric ate the rest for dinner. "A" for effort on my part. Maybe I will try it again later this week.
Its been more than a few days since I was able to walk at our local park and feed the ducks and geese. Being stuck indoors most of the time is enough to drive anyone nuts so we decided to take the wheelchair and head there this evening. 8:45pm is a great time to walk at the park seeing the sun is starting to go down which means less sunlight and heat. There is also a nice breeze around the lake and less people to stare at the masked gal-me. I am still getting used to it and wheelchairs strangely draw less attention than masks. Not quite sure why that is? Usually children are mostly the ones who stare and do the double takes but this evening I found myself doing my own double take. I haven't bounced back completely from this last treatment so I didn't make it that far around the lake but once we started to head back to the parking lot I locked eyes with a young girl who was around 9 years old. She was in a large bike stroller which wasn't what caught my attention. It was what was in the back of the stroller that did. Her Mom was using the large bike stroller so she had enough room for her daughter and the oxygen tank. It was obvious she too suffered from a medical condition and disability. We both had something in common. We shared masks. As we passed one another we locked eyes. She smiled and I smiled back. It almost made me cry. Not because it was sad but because for once I felt excepted by a child who did understand. Her Angelic smile made my day and one I will never forget.