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The Road Before & After Surgery
June 27, 2012
Waiting For The Desert Heat...
Mood:  cool
Now Playing: Day 808-The Final Road To Survival

I wonder if the weatherman can get this forecast right or once again be "wrong?" We are suppose to get some wicked heat with humidity starting tomorrow. Today will sadly be the last day enjoying any type of outdoor activity. UGGGG!

It wasn't bad outside this afternoon however my allergies are starting to get worse. We haven't had any rain in quite sometime so the grass is starting to turn a few shades of brown and resembling a bit like tumbleweed. Eric might not have to cut the grass after today for another few weeks. Hey! we might not need to head out west after all and instead the desert might come to us. Ohioada-Ohio & Nevada. Hahahahaha! Since we have no plans right now to move due to a pending three step surgery I want to add a few nut trees around the property. The squirrel gang gave the idea a HIGH-FIVE from the current trees in the front yard upon the news. Hee,hee,hee,hee... Eric said, "Great! now we will have every squirrel in the city living around the house since they would now have an endless supply of food. They might instead think we are NUTS." Hahahahaha! Come on now. They already have an endless supply of food but now it would just make it more convenient for them. Call it a, "Self-Service Buffet." Hahahahaha!

We have just a few last minute things left to do on the project list. Today I got two of them done. I didn't realize how long I had some of my financial accounts and although all in good standing it was still time to part ways. One was opened over 14 years ago. WOW! Talking about time flying by! It felt good to continue making positive changes and at the same time closing a few old chapters of my life. Bear kitty even let me go through his huge basket of toys in order to clear out the old ones. OK. So it wasn't a lot because once he heard me in the basket of toys he quickly reclaimed them. Fur kids sure are smart!

My insides still remain quite angry and although most of the time increased walking helps but not this time. Once it got dark we were right back outside again trying to walk down some of this darn pain and horrible inflammation. Did it work? Nope. I wish. It might be a good thing my new surgeon and surgical team appointment is in a few days because I am not even sure right now if doing treatment this week is such a good idea. Who knows at this point if it would be safe or not so I will leave that up to the surgeon.

After walking, walking and more walking my body was beyond exhausted so this evening we caught up on our favorite television shows and had a low key night...


Posted by GastroparesisAwarenessCampaignOrg. at 11:51 PM EDT
Updated: June 28, 2012 4:34 AM EDT
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June 26, 2012
Running On Empty.
Mood:  chillin'
Now Playing: Day 807-The Final Road To Survival

I officially ran out of energy.

I literally was running on empty all day. "Trying" to keep a smile on my face while attempting a second day of fishing was extremely hard. My Dad decided to tag along today and must had brought the fish with him. He was the only one to not only get a few bites but catch anything. It must had been the secret bait weapon-a can of Spam. Yes, Spam! and the fish sure loved it! Hahahahaha!

Eric got a few snagged lines in the rocks but luckily he didn't have any problems with his reel today. It seemed warmer this afternoon because we didn't have the breeze like yesterday but I continued doing my best to have fun although I didn't last that long. We left earlier than expected but only because I honestly had zero energy left and my insides were screaming with pain. You can only imagine how the rest of my day went right? Right! A heating pad while lounging on my huge comfy recliner.

One of my fellow clean-out buddies and dear GP friend had surgery yesterday. She has also been having a horrible time with her intestines which keep causing her obstructions. Since her main surgeon refused to listen by expressing her concerns that something wasn't quite right a second opinion provided answers and a new surgeon. I never believed in the gastric pacemaker and rightfully so after she contacted me this evening regarding surgery and what the surgeon and surgical team found going on inside her body. Another reminder is the seriousness of Gastroparesis and complications that exist over time once the condition progresses.

I am going to re-post what I sent the online Gastroparesis support group that I started over 7 years ago. I am now a firm believer against anything experimental and not FDA approved.

Group Post-I was never one who was "for" the gastric pacemaker seeing FDA refuses after over a decade to approve the device in use for Gastroparesis-nausea/vomiting. After hearing AMarie's experience and what her surgical team found out yesterday during her surgery proved that maybe they actually need to place a ban on this device.
I just hope everyone who has a gastric pacemaker demands routine check ups and if you ever have any symptoms or complications go with the gut. Don't take them lightly! AMarie is very lucky and fortunate to had a surgeon take a second look and actually find out what the gastric pacemaker was doing to her insides.

Fwd: 3 open incisions and a drain. Much worse than surgeon anticipated. It was the pacemaker. It was entangled around small intestines causing obstructions. It eroded into the bowel and bowel was extremely inflamed. They had to take a section out of my stomach as it was causing problems there and they did take the pacer out. They think they might be able to save the bowel but it is a wait and see. They said I am lucky I didn't wait any longer. This is the worst surgical pain ever for me. I would never get another pacer. -AMarie

There are many GPer's who over the years have also had a gut their gastric pacemaker was making them feel worse. If this is the case and your surgeon will not remove the pacemaker then I highly suggest going over his/her head and getting a second opinion. Any clinic or surgeon who refuses to remove a gastric pacemaker by a patients request obviously is in my opinion using you as a guinea pig for some sort of research or perks-$$$. Gastroparesis patients are not guinea pigs. We are human beings.

It is extremely scary that AMarie had to go through hell and back to prove that these pacemakers are not FDA regulated for a good reason. They are dangerous. I am sending this post as a special notice because I know there are many in our group who have the gastric pacemaker or are in the process of getting one.

*Please remember there is no cure for Gastroparesis. There is currently no specific medication on the market for Gastroparesis. There are medications to help "possibly" ease one symptom or two however they are not Gastroparesis medications. A gastric pacemaker is an experimental device that could "possibly" ease some nausea or vomiting associated with Gastroparesis however it is not FDA approved. It is also not approved by most insurance companies because it is not an approved device. Sometimes with Gastroparesis "LESS" is truly "MORE." This means the more you place into a paralyzed GI tract via mouth or surgically implanted can actually cause further complications and problems. It is always an individual decision with each Gastroparesis patient however please make sure to carefully think things through no matter what plan of action your doctor or specialists suggest because we only have one body.

-Kimberly/Gastroparesis Awareness Campaign-Founder & Idiopathic GP patient


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: June 27, 2012 2:38 AM EDT
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June 25, 2012
Going WAY WAY Past My Comfort Zone...
Mood:  lucky
Now Playing: Day 806-The Final Road To Survival

Today was one of those days when you let the winds pick you up and take you some where you haven't been in years. After almost a decade for me it was:

FISHING! WOOHOA!!

My doctors continue to be adamant by saying, "Things are progressing and getting worse. Your insides are slowly becoming toxic and there is no turning back. The temporary bandaids are no longer working." Today also made me realize what my specialists are seeing during scans which is one huge megacolon that has not only stopped working but has stretched and is applying pressure to my lungs. My intestines are so darn inflamed I am now feeling the shortness of breath more frequently. I also noticed in some photos taken this afternoon at the lake the severe inflammation it is causing around my abdominal area. Did it finally scare me? Yes. A bit.

So after getting some bad news that this surgery will mostly likely become a 3 stage process that will be discussed with me this coming Friday I finally realized that just talking about life is too short isn't enough. Now I am literally scrambling to do what I love the most. Being around water is one of them. Ahhhh....There is nothing quite like hearing waves hit the shore, even if its not the ocean but instead a really huge and nice lake.

Call me, "SUPER SPONTANEOUS" now because if there is anything I want to do I am willing to run a risk to do so and if that means going way-WAY outside my comfort zone then so be it. AMEN! Eric knows how much I miss being near the water and since right now we must wait to find out the next step towards surgery we can't head down south right now. I wouldn't be able to drive with my deteriorating spine however I would risk it all and fly if it meant seeing the ocean one last time. You ever have that feeling that things aren't looking so good with your health? I have had a rude reality check lately with my specialists and of course today after my first fishing trip in years I found myself taking more frequent breaks in order to catch my breath.

DARN GP!

The lake was only a 15 minute drive from our house. I hadn't been there in over 10 years. So many things had changed but it still remained crystal clean and the water was perfect! They added a few new docks, picnic tables, gazebos and new walking trails. Not only is this a great place to fish but could even be a new place to walk. It wasn't even five minutes once we found a spot with lots of shade that two malard ducks made their way up to us. Do they know I will feed them or what?! Eric said, "Ok, Wildlife Mom I guess they know you have a stash of bread with you. How they know though I have no idea?.." Hahahaha! They just "know." Since it was only 82 degrees today with lots of wind and little humidity we stayed for a little over two hours with lots of breaks in between so my back didn't lock up. Thank goodness for the walking trails. Eric spent more time messing with his fishing pole and changing out the floater and weights. Hahahaha! Let's just say the last time these fishing poles were used was in Florida on a pontoon boat out in the middle of the ocean. The reel was full of sand so his pole kept locking up on him so it was smart to bring two extra fishing poles. I used the one I bought on my last trip down south so it was smooth sailing for me although the only thing that was biting at the lake was the ducks and geese who were eating the loaf of bread I brought with us. Who cares though because I had a great time! I forgot what fun it was fishing and how relaxing too!

We had plenty of shaded places at the lake to fish so I didn't get overheated or burnt. The sun was behind us so my head didn't suffer and we brought plenty of fluids and "what if" medication. All in all it was a perfect day and it sure brought back some fond memories. It was an emotional evening when even this gal started to finally fully understand the seriousness of my fragile health. Maybe I can visit Florida again one day soon. Maybe together as family we can visit the coast again for one last time by putting our differences aside before its too late. I still hold onto hope because in my life that's all I have left...

To get up in the morning only to know that you will have to face another obstacle takes strength.

To smile when the only thing you want to do is cry takes bravery.

To act happy & laugh when you know that times are at their worst takes courage.

To be joyous when the only good news is the best of the bad news takes support.

To be there & help others through the roughest times in life takes love.


Posted by GastroparesisAwarenessCampaignOrg. at 11:11 PM EDT
Updated: June 26, 2012 3:04 AM EDT
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June 24, 2012
What It Was Like To Feel & Be "Normal."
Mood:  not sure
Now Playing: Day 805-The Final Road To Survival

There is something way, way wrong when you find receipts from your last vacation you ever took in your life. Mine was June 2005.

BAH HUMBUG!

This day sure was one full of reminders of what "used" to be. More like what it used to feel like living a "normal" life with a "normal" body. AMEN TIMES 10!

What would the wildlife gang do without me? OK. Maybe not have an endless supply of food or their new treat Cheerios. Hahahaha! Eric got the squirrelie (new word) scared out of him this afternoon when he went outside to get something from the garage and the squirrel gang greeted him on the front porch. Hahahaha! What can I say? It was past their feeding time and since darn GP kept me up with pain until 8am I didn't get up until 3pm. It was way past their feeding time so they were pretty upset. Sooner or later they might learn how to ring the doorbell. Hahahahaha!

We finally got the dining room chairs finished today. They all turned out perfect and it only took us around 40 minutes. We bought a nice ivory striped table cloth and new placemats. It was our first project together and I must say we did a great job! Next on the list won't be until fall when the upstairs bedroom will get repainted. Same with the front porch and side awning that both need restained. Its just been already way too hot this year to do much outdoors and I don't think with all this heat its a good idea to stain anything wood outside. At least not until it cools down.

My friends sent me lots of photos this evening catching me up on their weekend adventures. Kevin had a huge family gathering out in Indiana at a vacation house-more like farm that his family owns. He has such a HUGE tight-knit family that gatherings are more like huge projects getting everyone under the same roof. I remember going to this same gathering years ago and I lost count of how many family members were there but all of them were super sweet and nice! I sure do miss a "normal" life but what can you do sometimes?.. John of course had to really round off my evening by sending me super jealous photos of the beautiful ocean that I love and truly miss. Sure...I have lakes here in the area but its not the same as the ocean and coastline. He had dinner with friends at a huge marina diner with an amazing view! SO JEALOUS! Of course he said, "Once you all get moved out west I promise to come pick you up and take you to all the big hangouts and the best beaches."

It couldn't come sooner!!

Eric is even starting to get antsy. Life is short and time waits for no one. I have already let over 8 years pass me by due to my Idiopathic Gastroparesis and connected problems. I miss all the vacations down south in Florida but time took over and some lost their true meaning of family. Now I only keep in touch with 2 family members-not by choice but because I have realized fighting with others over petty things just isn't worth it and in the process of all the bickering I wasted valuable time and progressed my already fragile health in the process. Hey, at least I have all the seashells I collected over the years around the front yard landscaping, photos of the ocean and past vacations but as well the long lost receipts of when life used to be carefree, fun and we all had our sense of heart.

This is going to be a busy upcoming week with new chapters opening in my GP life. At this point there is nothing left that is shocking to me except if they made Drano aka Hell-In-A-Jug chocolate flavored! Hahahaha!!


Posted by GastroparesisAwarenessCampaignOrg. at 11:47 PM EDT
Updated: June 25, 2012 3:01 AM EDT
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June 23, 2012
Leaving A Legacy...
Mood:  happy
Now Playing: Day 804-The Final Road To Survival

June 23, 2012

 

The Gastroparesis Awareness Campaign Team welcomes from the icon of American Pop and legendary TV show, The Brady Bunch

 "Alice B. Davis"

*From 1969 to 1974, Davis played housekeeper Alice Nelson in The Brady Bunch television series. Since then, she has returned to take part in various Brady Bunch TV movies, including The Brady Girls Get Married (1981) and A Very Brady Christmas (1988). She also reprised her role as Alice Nelson in two Brady Bunch spin-off television series: The Brady Brides (1981) and The Bradys (1990). Davis has appeared in a number of Brady Bunch reunion projects, most recently TV Land's The Brady Bunch 35th Anniversary Reunion Special: Still Brady After All These Years. The Brady Bunch was awarded the TV Land Pop Culture Award on the 5th annual TV Land Awards. Davis and other cast members accepted the award, and she received a standing ovation.

 TOGETHER LET'S HELP SAVE LIVES & RAISE GASTROPARESIS AWARENESS!

KEEP ON! KEEPING ON!

"There is nothing more gratifying in life than knowing you will leave a legacy behind when Heaven calls helping millions of other Gastroparesis patients on their own personal journey."

Gastroparesis Awareness Campaign/Founder-Kimberly

www.gastroparesisawareness.com


Posted by GastroparesisAwarenessCampaignOrg. at 11:11 PM EDT
Updated: June 24, 2012 2:49 AM EDT
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June 22, 2012
DranOVER Day!
Mood:  down
Now Playing: Day 803-The Final Road To Survival

Wow! Do I have a super Drano aka Hell-In-A-Jug hangover from hell!! I think Oreo is even having a sympathy day for me but at least one of us gets to rest. Forget about sleeping all day for this gal because I need to keep moving. It was a S-L-O -W day but heck! at least I did it and even with a smile on my face. Half-smile that is. Hahahahaha! The worst part of the darn weekly treatments is now I have to follow them up with the rest of the injections. Its like getting hit in the AS* twice! OUCH.Someone even wrote to GP Rocky last week saying, "Your diary reminds me of Anne Frank because you both are to the point and brutally honest." I certainly agree because you can't get more honest when the bathroom becomes your second best friend. Hee,hee,hee,hee...

Its also been a busy afternoon outdoors with the last of the house repairs. At least the jack hammer didn't bother me too much. The only annoying sound was when there were breaks in between the hammering. At least the humidifier that doesn't work got taken out so the air duct company can do a detailed cleaning of the a/c system and air ducts in a few weeks. We are getting down to the last of the house repairs and mold correction issues. The huge floor dehumidifiers on each level of the house not only are killing any existing mold but helping the air stay much drier and cooler too! The only down side might be the next electric bill coming in a few weeks. YIKES! I guess we will just have to wait and see... With no mold issues anymore from the monsoon rain we had in May and foundation repairs coming close to an end its enough to make us both JUMP FOR JOY! AHHHHHHHHHHHHH!! Eric said today, "'After everything is finally finished next month we might start getting bored because we are so used to having things to do." He might want to stop while he is ahead because when you live in a house there are "always" things to do. Hahahahaha!

Since this treatment will most likely take three days before I start bouncing back we got some new material to reupholster the dining room chairs. There isn't anything wrong with them but it will be nice to add a bit of new color and pattern. The material we found was on sale so it wasn't that expensive. I am hoping to have the chairs finished by this weekend with help of course from Hubby. HINT-HINT...

This evening we looked online at a few more properties out west in Nevada. I found some great potentials but of course we must see whats going to happen with surgery and my new surgeon and surgical team. Eric has the chance to work with another Sheriff's department in Nevada but had also gotten a few other job offers from fellow GP friends who have companies of their own out west. Its a win-win situation and if it means less allergy problems that is even a bigger bonus! I know my dear friend John would be super excited because that means we would only be a 2 hour drive away from where he lives in California. Life is always changing and life is also short so if you feel the winds of change its important sometimes to see where the winds might take you in the process.

With Gastroparesis its one day at a time. In my world its one jug at a time too! DITTO.


Posted by GastroparesisAwarenessCampaignOrg. at 11:35 PM EDT
Updated: June 23, 2012 2:26 AM EDT
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June 21, 2012
Heavy Thoughts On My Mind...
Mood:  quizzical
Now Playing: Day 802-The Final Road To Survival

"Most" people get to clear their minds and set them free by taking trips. Then there are those people like myself who can't travel and must unravel life's great mysteries without catching a break.

As soon as I get some sort of a Hell-In-A-Jug break here I am once again doing another treatment. If I sound like a broken record I am sorry but guess what? Its a broken Drano record. Its also easy to get extremely frustrated and literally as my dear friend Joe said, "Drop a jug down those who are selfish and find excuses not to make time to help or be supportive right down their mouth." Hahahaha! It was a great idea but even they would find an excuse not to drink it even if it was in the name of being "supportive." If you don't believe this stuff is liquid hell then you obviously haven't been lucky enough yet to drink it. DITTO!

I decided to re-locate the other stored jugs to a different location after my pharmacist said, "It might taste more salty due to not being stored at room temperature and out of sunlight." I took his advice and gave it a try but guess what? There wouldn't be a difference in the taste even if I stored it on Mars. Hahahaha! Its the same nasty, gritty, salty, bitter, acidity ocean tasting stuff it has been many hundred times before. UGGGG! Poor AnnMarie has to endure her own jug this weekend in order to be cleared out for surgery Monday. I feel for you AnnMarie! I reallllllllly feel for you!! I agree, its the last few glasses that literally make you gag!

With more treatments means less hair which means its getting closer to the point of saying, "Bye-Bye!" to my locks. So sad...So sad but its life. Drano life. I found a few styles that Rihanna has sported over the past few years. Even this cute but "dramatic" cut. I always said I would cut my own hair when it came time but maybe I should put that trust into my hairstylist since she totally understands my unique situation and the inevitable.

So with it being treatment day I can only say there wasn't much of anything else planned once the first glass was consumed. At least John has been having a blast getting used to his new life out west. He even got to meet one of his favorite legendary singers yesterday. I am so happy for him! He's planning a trip back to his old stomping grounds in September to come visit me. I can't wait!!

Its going to be a long evening into the early morning hours. Littleblue has already gotten a head start keeping my couchbed pillows warm. Hahahahaha!

Here's to another Drano day...


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: June 22, 2012 2:14 AM EDT
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June 20, 2012
Back To Life...Back To Reality...
Mood:  d'oh
Now Playing: Day 801-The Final Road To Survival

After getting home around 4:15am we were greeted by Littleblue and Oreo followed by some very bad kitties. Rule #1-NEVER fill both food bowls all the way to the top no matter how long you are going to be gone. Pumpkin the "Alpha" kitty decided to gorge himself so the other kitties couldn't get any food then ended up with a MASSIVE angry stomach and intestines. There was trails of puke and poo through out the house greeting us which turned into an hour clean up. GEES! Once we both sat down it was almost 5:30am and I was getting delirious from being so exhausted. We both literally laughed ourselves to sleep. Hahahaha!

My spine did great on the way to the mansion but horrible on the way back home. I felt like my body was made of toothpicks through out the day however these are the times when one is smart to keep moving because if I sit too long my spine will lock up. OUCH! We were able to take the fur kids out of a few walks which helps since I wasn't feeling too good and more like feeling flat out exhausted. What little energy I had left quickly dissipated by later this afternoon. Forget treatment this afternoon and forget treatment this evening. I don't want to end up back at the hospital so this time I listened to my gut and put the Hell-In-A-Jug to the side for the next 24 hours. Hopefully I will be able to do it tomorrow but only time will tell. More like my body will tell me when its OK. This is typical of the hellish treatment because you never know when it is or isn't safe.

After taking our day trip Eric now wants to save up for a bigger trip. WHO IS HE FOOLING?! I said, "Where? a larger mansion?" Hahahaha! I can't drive more than 1.5 hours. I can't sleep in a normal bad. I can't eat. I can't be in the heat for too long. Call me a "Gremlin" since we both have similar qualities and can only come out at night. Hahahaha! Eric said, "It was a good idea although I don't know how we would get there so even I have my GP denial moments." DITTO! Sadly he isn't alone because I know of some people who have known me for decades and they still sometimes don't "get it." Hahahahaha! Instead of heading to the beach we decided to once again bring the beach to us. Now not only do I have an adult sandbox on the back porch (darn neighbors recently cut all my shade but lets not go there again...) full of sand but we put all the seashells I have collected over the years from various parts of the coast around the flower beds and landscaping. PRICELESS!

This evening we wrapped up the day with a walk around the lake at our local park. One would think with this parking job instead of walking I should be resting. Hey! I have a handicap tag so its OK for one day to park handicapped too! Hahahahaha!


Posted by GastroparesisAwarenessCampaignOrg. at 11:58 PM EDT
Updated: June 21, 2012 2:09 AM EDT
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June 19, 2012
A Day Trip To R E L A X...
Mood:  chillin'
Now Playing: Day 800-The Final Road To Survival

We sure needed a day to take it easy and r e l a x...

Since living with Idiopathic Gastroparesis one quickly learns the meaning of being "spontaneous." Its a good thing my Husband understands it too seeing we booked a room at the Schneck mansion over a month ago however we weren't sure if it would be possible since I can never predict the next day due to my Gastroparesis.

We have both been not only mentally but physically exhausted lately and since winding down from list after list of things to do it was the perfect time to get away for a day. "Day" meaning since I can't sleep on a mattress because it causes me severe intestinal pain there is no spending the night. I haven't been able to take a "normal" trip in over 8 years but instead have learned to compromise for day trips. I did get to sleep a bit early last night so I was more than ready around 12pm to get up, get dressed and hit the road! The mansion is only a little over an hour away so just enough time not to aggraviate my spine too much. Anything over 1.5 hours and the pain game begins. It was another hot and humid day but a good one for driving with the a/c on. We arrived a hour and 10 minutes later so plenty of time to check out our room and hit the local casino to see if Lady Luck was on our side. Let's just say, "She was!" 2 hours and almost $400.00 later we said, "Thank you Belterra resort and casino" then headed back to the mansion. Hahahaha!

We all stayed at the Schneck mansion last year for my birthday but staying during the summer compared to the winter is an entirely different feeling. This visit we went solo and at least we were able to walk the grounds, check out the vineyards and historic town. I made sure to bring all my liquids with me and other GP necessities . The bed was huge and super comfy although instead of sitting on I wish I could had laid on it. This time we stayed in the only large suite on the main floor compared to our last stay upstairs in the three room suite. "Haunted suite" more like. I don't get too spooked or scared anymore. Gastroparesis can do that to a person over time because there is nothing scarier than a GP flair up or serious complications. AMEN. We brought our EVP recorder, video camera and a regular flash camera. Eric of course was a bit spooked out once we caught actual voices on the EVP recorder through out the mansion and an image of a robed person out near the gazebo behind the mansion. Since the mansion was built in the late 1800's its not too surprising to catch spirits still roaming the grounds, in fact the owners of the mansion are used to it. Seems others who have stayed through out the years agree after Eric read diary entrees from those who have stayed in the same suite.

I had a GREAT time! We both had a GREAT time! Sadly time truly does fly by when your having fun. At least I got to take my first bath in over a year soaking my tired body in the original old copper tub. Talking about an experience! I think they made copper tubs back in the day for those who were as tall as Paul Bunyon seeing I was surprised I didn't disappear in it. Hahahahaha!!

3am and our bed & breakfast (more like liquid dinner and bath) had to come to an end. Time to head back to life and back to reality in the big city...


Posted by GastroparesisAwarenessCampaignOrg. at 11:11 AM EDT
Updated: June 21, 2012 1:27 AM EDT
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June 18, 2012
Extreme Heat & Humidity=Crabby Folks In The City.
Mood:  d'oh
Now Playing: Day 799-The Final Road To Survival

Wow! we had been having some great weather and same with last night in the mid 70's "however" once I woke up this afternoon and let the dogs outside I just knew this was going to be a crazy day.

Maybe we can blame it on the full moon tomorrow night but today we can actually blame it on the extreme heat and humidity because people were acting all LOCO today. YIKES!!

I am so confused on which day we are on that it seems like Thursday but really its Monday. I also got another touch of reality when I went to fill the bird bath and got smacked in the face with the sun and heat. This isn't going to be a very nice summer for my GP or head issues/seizures. After being up for only three hours I was ready to take a nap. The heat-cold, heat-cold is exhausting so I will need to start spending more time indoors to keep my body moving so the GI pain doesn't get any worse. I do know of patients who end up spending most of the time laying around or sleeping due to sheer exhaustion and pain however with my unique Idiopathic Gastroparesis if I sit for too long at a time I only feel worse. Heaven forbid if I lay down flat because I might as well make my bed at the local ER. Its such a strange condition-Gastroparesis and even more strange the way patients must live their life on a daily basis.

Speaking of strange....

Once I let the fur kids in from the backyard five minutes later I heard Eric whisper, "Hey, come here real quietly!" As I came into the dining room I saw what appeared to be a large mountain lion or goat standing on top of the glass dining room table. What I quickly realized after taking a double look was Littleblue standing on top of the dining room table eating the rest of the cats can food. SAYYYYYYYYYY WHAT?!!!!!! Yes. It took me 10 second after picking up my jaw off the floor to ask her what the heck she was doing or more like thinking. WOW! This is a priceless photo and for those who ask, "Is she part Wolf?" I tend to think maybe "Yes" because its far from a small jump to get onto the table. I honestly didn't believe Eric the other day when he put the trash outside then came back into the house only to be greeted by Littleblue standing on top of the dining room table.

Blame it on the extreme temperature changes or maybe even the upcoming full moon since she really might be part Wolf-Werewolf that is! Hahahahaha...

I am used to summertime and dealing with the crazies out in the public. I worked for almost 15 years as a Division Team Leader being around cranky summer folks. One gets used to it and also learning how to use the ignore button. Eric on the other hand isn't quite so used to dealing with cranky summer folks. We ventured out to do some errands today and found ourselves dealing with people blaring horns at each other, mad drivers on the road and worse a cashier who literally bit our heads off because we had 24 items instead of the 20 at the register.

OH YES. It gets better...

Once we got up to the line and placed our items down I told Eric, "We might be a little over 20 items but there isn't anyone else in line at the other registers so we should be ok." What I didn't expect was one cranky person behind the register who must had a bad day due to the heat coming into the front doors because she quickly said, "Is this two separate orders?" Eric said, "No, its all one." She then said, "Well, this is a 20 item maximum check out." We both were shocked seeing she didn't say it nicely nor was there anyone else in line so I assume maybe lifting an additional 4-5 items wouldn't be too much work. Hmmmm?....I just said, "I noticed once we got up in line but there is no one else here so I thought it would still be ok." I got a few words mumbled back from her then a nasty look. Instead of reacting and getting mad which most people in this city during the hot/humid months of summer want you to do I instead replied by saying, "I guess the 20 item max police should arrest me then we can call it a day." Hee,hee,hee,hee...You sometimes have to make light of bad situations and this was clearly one of those moments. I began to think about a show I watched on TV last night where the couple said living in Las Vegas was very different from where they used to live because people were more laid back, didn't start trouble and kept to themselves. I told Eric out loud about it then said, "Surely I am in the wrong state because people are mean here."

Let's just say the rest of our check out experience was sugar, spice and everything nice!

Once we finished up our errands we came back home only to see one of our neighbors must had some crazy people of their own they dealt with today as they were patching their front lawn. It must had been the heat that caused the individual to "OOPSIE" miss the road and instead drive into their grass. Even Mr. Groundhog must had been in a heat daze as I went outside in the backyard to turn off the hose only to be greeted by him walking right up to me, stopped, looked, then slowly walked his way under the wood boards where the gutters are being replaced. WOW! I sure wish I had enough time to take a photo because that is a first coming that close to a Groundhog and especially during the day.

If today is any inkling how the rest of the week and the beginning of summer will be starting then maybe I will be safer staying indoors. Hahahaha! Eric said, "Ditto for him too!"

"A question that sometimes drives me hazy: am I or the others crazy?" -Albert Einstein


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: June 19, 2012 3:39 AM EDT
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