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The Road Before & After Surgery
June 3, 2012
SUNDAY AFTER-DRANO FUNDAY!
Mood:  chillin'
Now Playing: Day 784-The Final Road To Survival

Its a chillin with the villain which includes Mr. Drano aftermath. This also means it was a low-key day while my friend did most of the indoor and outdoor work around the house. Not to forget running a few errands and restocking me on lots of Slimfast and other fruit/protein drinks. At least the last purchase lasted me for two weeks since most of them I still have to water down so they don't come back up or get stuck through my twisted intestines.

Since we got a pretty good rain the other day my peach tree is doing GREAT! We are going to have lots of peaches by the middle of next month. There are a few that the wildlife have gotten ahold of but those are peach seeds that didn't take to start with however Littleblue didn't find them too tasty. She picked one off a hanging branch today and after one bite into the extremely tart peach seed she quickly dropped it. Hahahaha! Same with the mulberries in the backyard falling from the branches. One tart bite and that was it for her! Hahahaha! The birds and other animals however have been quickly eating them so its been nice not having to clean them up this year.

This weather has been perfect! I sure wish it could stay in the 70's year round. Its also been great weather for outdoor sports. My friends son has been keeping busy all weekend in between his games. This was just too cute of a photo he sent me not to share with Angel kitty by Christopher's side. Hopefully the rain will stay far, far away for this upcoming week that way the rest of the outside house projects can get completed. They are calling for rain showers this evening into tomorrow however maybe it will stay farther down south. We just want dry skies so the new windows and drains can be installed. AMEN! Since there still is a slight chance of rain my friend had to fill one of the new holes back up with dirt on the side of the house this evening because the LAST thing we need is a flooded basement. Key and goal for very successful upcoming surgeries is: NO STRESS. I plan on taking every precaution to keep it that way too!

Oreo has been stress-free the past few days and a very relaxed puppy. His hearing seems to be getting a bit worse but he can still understand you because even fur kids know how to read lips. The medication has been helping him out a lot and he has been slowly catching up on his sleep. It has also been helping him with the pain and today he seemed to be moving around a bit better. I am hoping his Veterinarian won't have to increase his dosage since the medication can cause liver failure. Why can't they make medication for people and fur kids without causing other problems I will never know but I assume its a smart way for the big pharma companies to make more money. Might be why I have run into a few faulty needles with my medication. They are too busy making money instead of safe products.

It is amazing that people who think we cannot afford to pay for doctors, hospitals, and medication somehow think that we can afford to pay for doctors, hospitals, medication and a government bureaucracy to administer it.   -Thomas Sowell


Posted by GastroparesisAwarenessCampaignOrg. at 10:23 PM EDT
Updated: June 3, 2012 11:02 PM EDT
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June 2, 2012
DRANOTINI SATURDAY!
Mood:  incredulous
Now Playing: Day 783-The Final Road To Survival

THERE IS A DRANO GOD!

HE ACTUALLY VISITED ME AND ALLOWED FOR THE FIRST BEFORE & AFTER STRESS-FREE TREATMENT! WOOHOA!!!

Just like the toothfairy I knew there had to be a DRANO GOD FAIRY! Hee,hee,hee,hee...

Speaking of Drano...I wasn't sure how much liquid dynamite I had left at the house but I could only find a few jugs in the cabinet. Since I "thought" I was almost out I decided to call my pharmacy to get a refill. Little did I know after my Walgreen's experience did I have more Hell-In-A-Jug hidden in another cabinet, OOPS! Its always a fun experience dealing with the ole Drano and it never gets old. In fact each one is completely different. Like today! Once my Pharmacist pulled up my profile and prescription refill number she said, "It did go through your insurance company. When would you like to pick it up? Later this evening or tomorrow?" I paused for a moment and said, "Oh. So you have the entire eight jugs in stock for a change?" There was silence on the other line so I said, "Hello. Are you still there?" The person on the other line replied, "Um. Wow! Oh no. We don't have eight jugs in stock nor have we ever had that many on hand. We only carry around three a week. Are you sure that is correct, eight?" I said, "Yes. Its been that way for quite sometime." The Pharmacist chuckled and said, "Wow! You are correct, it does say here on your prescription quantity 8 and I am sorry but I have never seen such a large amount on a prescription for this particular medication." I said, "Now you have."

Hahahahahaha!

Nope the Drano saga never ends nor does it ever get boring. There will always be some sort of funny story behind each jug. Kinda like today's Drano face. My friends called this one, "Bowser." Hahahahaha! Too bad ole Bowser didn't warn me of things to come. This jug hit me just way too fast that it almost knocked me on my feet. Literally! No, it doesn't make you mean or moody. Heck! Who has the energy to feel as such but instead it just makes you flat out tired and out of it. By 10:30pm I almost fell asleep watching the "Ghost Adventurers" with my friend. That is very unusual for me but here I am chugging down as many fluids as I can in order to stay hydrated. Its been a Gatorade and Pedialyte night as my friend enjoys two special topping pizzas. One-Hawaiian three cheese and the other Chicken/Steak with feta cheese and white sauce. YUM!!! Good thing I was too tired to think about it further than a few seconds. I don't need to spend the night in the bathroom any longer than I will the next 24 hours.

Here's to "DRANOTINI SATURDAY" and a super comfy recliner, warm heating pad, Littleblue and her hedgehog friends and two fur kids by my side. ZZZZZ..........


Posted by GastroparesisAwarenessCampaignOrg. at 11:11 PM EDT
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June 1, 2012
No WHEY!
Mood:  chatty
Now Playing: Day 782-The Final Road To Survival

No WHEY! Say it isn't so! Ummm...Yep, it is so when finally I must bid farewell to any scaly ocean friends. Maybe taking a few small bites of fish yesterday evening wasn't so bright. Maybe when my doctors tell me to STICK to a strict liquid diet before my upcoming surgeries I should listen. OK. I will now listen. This was only after profound vomiting, hives, chills, fever and feeling extremely loopy did I finally GET IT. Why must I insist on learning the hard way? Oh I know...Maybe because I am hungry. Aren't we all hungry?.. (Gastroparesis patients)

Talking about no WHEY! Little did I realize my body actually does like and now tolerates small amounts at a time of whey protein drink products. My specialists have come up with a list and out of six I actually have found two that stay down and it sure beats living only a Slimfast way of life. I needed a long overdue break from the ole watered down Slimfast. I'm not saying it isn't a great meal supplement drink for those who suffer from Gastroparesis and can't tolerate the high fat content drinks like Boost and Ensure however after eight years let's just say it has gotten OLD. Protein is the #1 thing on my new diet plan as I make a step by step journey towards surgery. The new strawberry whey yogurt drinks aren't so bad either but those I do have to water down. When I must take in chocolate due to my low blood sugar since glucose tablets and gel are not enough I must also walk to help gravity work things down my paralyzed GI tract. If my friends were not in shape prior to meeting me now they could probably try out for a few marathons. Hahahahaha! One friend said today, "If I cheat with sweets at least I know being around you it won't go to my seat." Hahahahaha! Too funny! Gravity will always remain a Gastroparesis patients best friend. Sitting for a long period of time can be our worst enemy. I go online once a day which is in the evenings since I can't tolerate sitting around for too long at a time. Even after finally being able to sit and rest I still must take short breaks to walk around so the pain doesn't get unbearable. Gastroparesis life is sure one crazy life isn't it?!

Speaking of walking...Me and my friend/Caregiver decided to do a last second short walk at the local park before it started to get dark outside. Luckily we just missed the rain but did we laugh, laugh and laugh!!

RULE #1: Never take a loaf of bread around a group of ducks or worse a huge flock of geese unless you want to get chased or your gym shoes pecked. Hahahahaha! If we had a video camera it would be a top ten UTube video waiting to happen. Who would had known they were hungry seeing its a local park and surely they get fed from numerous people every day? I assume maybe since it was a rainy day and no one was hardly there they didn't get their daily loaf of bread or bag of popcorn. Once that bag was open it was ON! The white ducks weren't too bad although thank goodness we had gym shoes on "however" the geese came out of no where. All 30 of them including a family of five. Soon enough we found ourselves literally throwing the bread into pieces and doing a fast sprint as my friend screamed, "There's three getting ready to grab the back of your coat." YIKES!!! Might had been a good thing I had on his size extra large winter coat that was thickly lined because they must had mistaken me for bread. Hahahahaha! Oh it wassssssssssss toooooooooooooo funnnnnnnnnnnnny! I needed a good laugh and we sure did get one. We laughed all the way back to the car after having a flock of geese and some Mallard ducks follow us. Good thinking we left the fur kids at home. I couldn't imagine that scene coming out funny if we brought them along. WHEW!

I had a great day! Actually everyone had an amazing day! It was low key and filled with things money will never buy which are called, "Memories."

“You may think you’re getting the short end of the stick, but when it’s all said and done, God will make sure that you don’t lose anything truly valuable. Moreover, He’ll make sure you get your just reward. Your responsibility is to remain calm and peaceable even when those around you are not.”   -Joel Osteen


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: June 2, 2012 2:23 AM EDT
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May 31, 2012
Gastroparesis is a 13 Letter Word.
Mood:  bright
Now Playing: Day 781-The Final Road To Survival
 
This is the face of a Gastroparesis Survivor! This should be every patients inspiration because I know if she can do it we can all do it.! (The cute new top designed and made by Andrea doesn't hurt a bit either ;) Yes, send that coat and if not we can still wish for snow in a poncho! Hee,hee,hee,hee...)

I am ready for the cold weather this weekend! Bring on the snow with it too because you sure won't hear this gal complain one bit. AMEN! My head needs a break and one is growing tired of playing musical seizure and migraine medicine. Hey, it happens and after many years some how we all become our own pros when it comes to a chronic medical condition. What I have yet to become a pro at is figuring out why they don't make needles a wee bit bigger so the don't break off or bend when injected. Seems I am not alone finding self injection faulty needles. For some reason my second box of medication also had a bad needle. Hmmmm...Maybe its because the manufacturer is hoping you don't have insurance and must refill a bit earlier at the price of $689.99 a box.

Didn't I tell you being sick isn't cheap? Neither is not being able to work but for some they will never understand that concept so instead just let them continue swimming in their own land of denial...

Oreo has been making it a day of rest with his buddy Snoopy. He hasn't been too active and its pretty tough getting him up to go outside. Since he can't hardly hear you have to now walk up to him so he understands you then guide him to the door. The new pain medication is so far so good with very few side effects although he is still getting lots of tremors. His Veterinarian called today to let me know he won't need to be re-seen but if he does get worse they want me to bring him back up to their office. Its funny how life can connect people in the most strange ways! Since I have been seeing the same Veterinarian for years we have grown comfortable with each other. So comfortable he shared with me his recent Colonoscopy test. Hahahaha! Yes, HE DID! He knows all about my Idiopathic Gastroparesis but the last time we spoke I was only doing treatment once a month and now I am up to once to twice a week with also an injectable medication. He said, "I felt great after two days of clearing out and I even lost two pounds but now I am so run down I have to leave work half way through my shift. I thought eating pizza would be a good idea to get some energy but was I wrong! I don't know how you do it but you do and that to me is a true testament to your strength and will to survive. You don't understand how harsh that stuff is until you have to endure it but I have total respect for you now." He also went into the prior days prep before the Drano aka Hell-In-A-Jug treatment and was very happy to share the news, "No polyps and no cancer."

And who said you can't share Drano knowledge with the world? Hahahahaha!

The rest of the day included a list of home repairs that actually got finished. Mold remedies that also include their own separate list which are more than half way completed. WOOHOA! By the end of June we might actually be able to sit back and relax or maybe lounge some where on South Beach or party it up in Las Vegas (Being sarcastic). One never knows but then again I guess that's the point. When you don't live with Gastroparesis you don't nor will you ever truly know...

“(After listening to people gripe and complain just smile and remember)
Crows can’t hang with eagles.” 
- Joel Osteen


Posted by GastroparesisAwarenessCampaignOrg. at 11:52 PM EDT
Updated: June 1, 2012 3:37 AM EDT
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May 30, 2012
BULLSEYE!
Mood:  sharp
Now Playing: Day 780-The Final Road To Survival

Me:JEALOUS!

Friend: At least I'm not burnt yet.

Other Friend: You need a vacation but I forgot two other people who are suppose to not be selfish are taking it for you but glad you have us sweetie!  :)

Me: Why does the courts make it so darn difficult to do a first and last name change? One would think I was part of the Mob or something. Hahahaha!

Other Friend: Maybe you are?!

Friend: Bring your Dranotini's with an umbrella on over, hee,hee,hee,hee...

Other Friend: You can always move down south and my family insists.

Me: Dranotini's for all! Only if you share with me.  :)

Friend: BAH! I might then actually get burned!

Me: Hey, I need to continue this new lease on life but if only you all lived in Nevada then I would take you up on that offer.

Other Friend: Then moving we shall see Kalyani! By the way I like that name and the meaning sure fits you to a "T!"

Friend: You will always be Kimberloo to me.  :)

So maybe this isn't South Beach but for those of us who suffer from Gastroparesis life is far from a beach to start with in fact some of us like myself instead of walking in the sand I get to drink it. Hahahahaha! Others would never know what its like to suffer but in life just remember no one is invisible when sickness comes calling but make sure you have support. AMEN! I was recently called, "Selfish." I don't know how seeing I am not the one who is constantly vacationing across the great USA. Some folks sure are SILLY aren't they? Then some of us like myself are just plain SMART.

BULLSEYE!

Today was once again a new start doing my best to get some additional walking in order to help prepare my body for the upcoming surgeries. I am also getting the legal side of things finalized in preparing for surgery which includes who can be present during surgery and who my surgeon and surgical staff will be talking to regarding post op and follow up therapy. Me and my friends are just hoping the surgical team down here won't back out and instead have the Cleveland Clinic team take over, YIKES! I can't even last past an hour in the car whether alone hours driving up north. NO WAY! If they bow out of the high risk surgery then this gal might as well start living like I am dying (Isn't that a song?) Hahahaha!! Maybe a bad joke to some but you can't always let serious situations in life take every bit of humor you have left inside of you.

Speaking of NOT a laughing matter...

Poor Oreo puppy hasn't been feeling like himself the past week so I decided its time to take him to see his Veternarian. He has a very hard time laying down and standing up. He won't climb steps anymore so you have to carry him and when he is taken on car rides you have to pick him up so he can get into the car. After his appointment last week at the groomers we all noticed quite a few small bumps located on the side of his stomach, back legs, spine and one on top of his head. His tremors are also getting a bit worse and so has his hearing that started three weeks ago. Oreo will be 14 years old this December but to me he will always be my big puppy. He now sleeps next to Mommy at night by my side while Littleblue keeps my feet warm. I think he likes the feeling of being comforted. I think we all do!

Instead of taking him to see his Veternarian earlier this afternoon we decided to go this evening since it is less crowded. Littleblue also went as moral support. I think Oreo however was more nervous than Littleblue but since she tagged along we also decided to get her weight on the puppy scale. Oreo weighs 39 pounds and Littleblue topped off at 50. WOW! She has become a BIG GIRL! I have been seeing the same Veternarian for years. Actually almost 14 years to be exact and he remembers me every time or maybe its because my sweet Pumpkin kitty decided to bite him during a surgical procedure. Hee,hee,hee,hee! Regardless he knows first hand I treat all my fur kids with the best care. They are my kids. Since getting up in age poor Oreo is starting to get not just one but many cysts. The original one which was found over two years ago and luckily remains the same size but the other ones are new. The Veternarian also said his arthritis has also gotten worse. This would explain why he is irritable and can't get comfortable. After he finished up Oreo's examination we were told he can no longer go up or down steps or jump onto things by himself. He will now need assistance. Since he is an older pup they can not do surgery to remove the cysts/tumors because it is far too risky. Because they are causing him pain they put him on two medications. Oreo's Veterinarian also said he needs to be limited on any activity however I did tell him the past few weeks he hasn't been doing much which is odd because he was always so active. Oreo will continue to be closely monitored for tremors/seizures and will not be allowed near other dogs which is sad since he has a new buddy next door but I know its for the best because he could snap at another fur kid. He said, "Littleblue understands he doesn't feel well. All dogs can sense when another dog is in pain which might be why lately she has been Mothering him." Thank goodness Oreo has his buddy Littleblue and we can still take them together for their daily car rides. For now I must continue keeping stress at a minimum which funny enough I have also been doing it for myself lately.

Once we got home they both got a last walk in for the evening and I got Oreo situated on my couchbed all tucked in with his blankie. He is very good with his medicine and the first round he took with no problem. At least now he won't be in so much pain and hopefully be a lot more comfortable.

Being a fur Mom is the best job in the world and the benefits of unconditional love are priceless!


Posted by GastroparesisAwarenessCampaignOrg. at 11:00 PM EDT
Updated: May 31, 2012 4:08 AM EDT
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May 29, 2012
Thank YOU! :)
Mood:  happy
Now Playing: Day 779-The Final Road To Survival

It felt absolutely GREAT to finally catch up on some solid sleep! I am also glad the holiday Dranotini weekend is over. Now its time to bounce back from treatment and allow my body a few days of freedom before the next one begins.

With it being a holiday weekend and no mail delivered yesterday the mailman made up for it today. Included in a huge stack of mail was another huge stack of papers for my upcoming surgeries. I am still dealing with the first round. This is almost like signing your life away and I am not even in the surgery room yet! Hahahaha! It might be a good thing I still have a little over a week to fill the rest of the paperwork out and mail it back to my new surgeons office. Thankfully there are no other doctor appointments scheduled for the remainder of this month so it looks like I will be catching a bit of a much needed break!

Its been a very, very pleasant day and I feel good vibes ahead for next month. Today was a turning point and one step in the right direction. I asked last week, "Where is the help?" Guess what? It finally called, emailed and showed up today. Maybe breaking down some of my privacy walls is helpful in order for others to understand what I need as far as help. I am not the type of person to ask for help but with a team of 2 its almost impossible to handle our full plate. This afternoon a huge portion of that plate got lifted. It started early this morning in the form of emails then continued through out the afternoon with phone calls and visits to the house. The amount of support given by not just friends within the city but strangers whom I have yet to meet but care enough about us and my overall health and happiness stepped forward one by one. We no longer have to be concerned about anything other than getting my body ready for the upcoming surgeries.

Thank YOU!

There will be a few weeks ahead of us filled with changes but all positive. Its slowing starting to feel like a huge weight and burden is being released off our shoulders. Not that all this amazing help and support from everyone wasn't enough I also got treated from a very talented local hair stylist to a evening spoiling my poor locks. Thank you so much Jennifer! You are amazing and it was so nice to share an evening of conversation filled with smiles, tears and laughter. My hair also thanks you too! Jennifer will now be handling the final transition of going from hair here gone tomorrow but as a step by step process this way she said I don't go into hairless shock, hahahaha! I can't forget Frances aka Sis for all the support you and Roland have given me through this rough bump in the road. Gym Moms and their families who continue to cheer me on from the side line thank you for offering your help. Pam and Mike-Eric said thank you for sending over the home made dinners after hours of working outdoors helping with the house repairs. Big Joe and family for offering their assistance how ever it may be needed. HCSD employees and others who have remained anonymous thank you, thank you and thank you! Its through trying times in life that you realize strength is indeed in numbers. I am very humbled and we can't thank you enough!    -XOXOXOXOXO


Posted by GastroparesisAwarenessCampaignOrg. at 11:11 PM EDT
Updated: May 30, 2012 3:15 AM EDT
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May 28, 2012
HAPPY MEMORIALDRANOTINI DAY!
Mood:  d'oh
Now Playing: Day 778-The Final Road To Survival

Well at least the generic Drano aka Hell-In-A-Jug is staying down far easier than the name brand ever did! I also don't have to worry about gagging on the extra salt chlorine taste with the generic brand. Not that it isn't there but it just doesn't taste as strong and it also seems to stay down without coming back up through my nose. UGGGG!

We had work come out just a WEE bit too early this morning. I assume they didn't realize I had treatment so was unaware 10am might be a bit too early to start breaking up concrete on the side of the house. I have come to realize you can't expect or assume that the world understands your medical journey. Especially if you don't speak up. This afternoon I finally decided to break down my own concrete wall and spoke to someone I have known for over eight years regarding my unique medical condition and situation. Let's just say I might share certain things or parts of my life on this blog but I still have details of my life I keep extremely private. I was always known in highschool as the gal you could tell a secret to and trust it would stay as such, "A secret." Now as an adult there are many times I want to be ME and not ME with Gastroparesis. What I have also became aware of is sometimes you can't be yourself minus a medical condition and you need to be both. It would be great to run from Gastroparesis but sadly each time I have tried it quickly found me. Hahahaha! Telling someone you have known for over eight years that your medical condition has changed and progressed since the first and last time they heard of anything can be a bit shocking for them. I saw it first hand today but you know what? It felt good to be upfront and honest regarding my unique situation as well explaining truthfully why me and my ex are no longer together. "When you get sick not everyone can handle or wants to be around it. I am not the first to have it happen nor the last but you live, learn and move on with life making sure to fill it with those who do care and want to help." I have come to realize maybe we both just really didn't know much about each other to start with because two very private people doesn't always make for a very public conversation. It was nice to talk as adults and work out our differences and I finally have a glimmer of hope once again that not all people are the same. Some do care and others don't. Its up for us as patients to decipher the difference between the two. Sometimes it won't happen right away but eventually over time even caterpillars show their true colors.

Me and my friend-Caregiver and the fur gang had a very nice, low key and relaxing Memorial Day. My friend has been serving in the Army for almost 15 years. He not only helps to protect America but also took on the roll to help me. He recently gave up a rank promotion so he could remain in the states to help me medically and continue providing assistance around the house. When people like him give up important things in life not because they were told but because he wanted to shows the utmost support and act of selflessness. If only the world had more people who cared without being asked then maybe it would be a better place. He will not be re-enlisting next year even though he is only five years away from retirement. Why you may ask? Because he said, "Who would take care of you?"

Good point.

Thank you Eric for not just serving our great country but giving a huge part of your life in order to help me with mine.

A team of 3 is now down to a team of 2 as my surgery day comes a bit closer. We are looking into nurse home care options and a few amazing GP friends of mine are also looking into their schedules to see if they might be able to help. My dear friend Kevin who lives here said he would be more than willing to step up to the plate and help too! For now I am going to become like the Bears and hibernate in order to get myself back on track. Stress up here must go back down there. I only have one me and I only go around once in this lifetime. I can't lose anymore precious time for hope in others but instead must now believe in myself.

"Wisdom is knowing who deserves a second chance. Courage is knowing the next time will be the last."    -Mark Amend


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: May 29, 2012 4:01 AM EDT
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May 27, 2012
The Calm Before The Storm...
Mood:  bright
Now Playing: Day 777-The Final Road To Survival

The heat is upon us again today! I can't wait for some cooler temperatures instead of it feeling like August outside. My head issues-Seizures/migraine/tremors are sure not enjoying the extreme temperatures either. At least the dark sheet that plays as a make shift curtain blocking the sun from the back of the house into the living room so far has been working! It now stays super dark so I am not awakened by sunlight or migraines/tremors. Now it takes around 15 minutes to set everything up blocking the windows from any sunlight before going to sleep. Its a routine but after awhile you get used to it.

They are now calling for rain starting tomorrow afternoon into late Tuesday. Now not only do we have a huge hole just sitting there on the side of the house but to make matters worse the foundation cracks have yet to be fixed. This could make for one HUGE basement FLOOD if either its not finished within the next 24 hours or if someone gets doesn't get plywood and plastic large enough to cover the entire area. To make matters worse the workers left huge mounds of dirt through out the yard. This of course was after there was hours spent the past week cleaning up weeds along the fence line which was a waste of time. My friend-Caregiver spent most of the day working outdoors just catching up on the last bit of landscaping and cutting the grass. He now has a Memorial Day filled with dirt removal from one end of the yard to another. WHOA! I "attempted" to clean the cars out later this afternoon which was going fairly well until the heat got the best of me. I am lucky for Gatorade and Pedialyte. Last thing I need is another trip to the hospital so it looks like the great outdoors will officially be off limits for this gal when the temperature exceeds over 83 degrees.

We have still been on the great house hunt with so far no luck in sight. We have lost track on how many properties we have called, emailed or drove by in hopes of finding a new home. People don't realize how hard it is finding a handicap accessible home. Either we find a place that "seems" ok until we see it or we run into homes that were far from being taken care of aka "DUMPS." So far within the past 24 hours I have had two calls regarding properties and sent out 15 emails. This is almost becoming a full time job that I should "NOT" be doing. With us just being a team of two add onto the equation Drano aka Hell-In-A-Jug day which was today. I had to postpone it yesterday due to stress however I couldn't push it off another day longer. Call this holiday weekend:

"MEMORIALDRANOTINI TIME!"

We hope to find a new home soon seeing with the rain moving in the stress with this house isn't too far behind. AMEN.


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: May 28, 2012 1:35 AM EDT
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May 26, 2012
Do You "EVER" Really Know A Person?
Mood:  quizzical
Now Playing: Day 776-The Final Road To Survival

We both didn't much sleep last night. My allergies and head were kicking my butt. My friend-Caregiver's allergies were causing him sneezing, headache and severe congestion. We still have three more days to look forward to with temperatures rising to the mid 90's. This would had been a great day to catch up on some rest but of course that isn't possible seeing there was "attempted" house repairs going on that started from 10:30am-6pm. This would had also been my treatment day "however" once again that was interrupted. I think maybe I need to just "sneak" in my treatment days or have someone fly me out to "NO PEOPLE ISLAND" that way no one can interfere in my care.

What started off this very interesting day was seeing a 12 year old girl outside my back bedroom window doing hard manual labor which consisted of shoveling solid dirt to dig a 2X2x12 foot hole. OK. My question is once again what is wrong with people? What happened to society? Are we that in dire need to save a buck by having a 12 year old girl help her poor Dad out in 94 degree temperatures???? WOW! My last question to this sickening scene is where are the individuals who make child labor laws to protect the children? No. We did not hire this help. Someone else did.

Not that the day didn't start off crazy enough but guess what? THERE IS A CURE FOR AIDS! HEPATITIS A, B, C! HERPES SIMPLEX 1&2, RABIES, TUBERCULOUS, PARVO, MRSA, POLIO VIRUS TYPE1 AND ECOLI! THERE IS EVEN A REACTION TIME PER VIRUS IN WHICH STATES HOW FAST QUAT WILL KILL ON AN INDIVIDUAL BASIS!! EXAMPLE: RABIES-30 SECONDS!!! 

"I QUAT THAT!"

No seriously the chemical is called, "Quat" which is not only used to kill all the above but also kill mold and anything else living or breathing in its way at a very cheap price of $97.99 for a case of 12 bottles produced by 3M and banned in the state of California. Wow! you mean to tell me all along there WAS a cure for all the above? Well...if my Idiopathic Gastroparesis or toxic colon doesn't kill me there are individuals who are not licensed that believe you can spray this deadly chemical indoors while people are still residing in the residence. Me, my friend-Caregiver and my fur kids. Not that this isn't crazy enough, oh no it gets crazier by the hour since we were then told the city might possibly kick us out if we don't allow the chemical cleaner "Quat" to be sprayed in our home. Let's just say I don't need to say, "Over my dead body" because Quat could do that for us! YIKES!! After doing extensive research on my own I have not only found out Quat can kill and cure all the above but also has deadly reactions to its active ingredients. Two examples:

Ingestion: Gastrointestinal irritation, abdominal pain, nausea, diarrhea and vomiting.

*I guess instead of weekly treatments of Drano I can just inhale Quat! Or let me figure out if its a Gastroparesis flair up or a Quat flair up.

Target Organ Effects: Central Nervous System (CNS) Depression, headache, dizziness, drowsiness, incoordination, nausea, slowed reaction time, slurred speech, giddiness and unconsciousness.

*Forget going out and having a few drinks. Just stand in the house after being treated with Quat and you will have the same effect.

Yes, there are people out there and those who also work in the health department field who find it "OK" for any individual who is not licensed to treat a home with this toxic chemical while the home is still being occupied. SCARY isn't it?!! VERY!!! 

Now for the end of my adventurous day called, "Do you really know someone?" This goes for those whom you might have known for years but do you really know them? I have found out some very shocking information regarding those who been very misleading about themselves. I "thought" I knew them but clearly I do not. Once again I question the behavior of people around this city. My faith in mankind is slowly dwindling..."The problem isn't the problems. Its the people who are creating the problems." Needless to say this house circus needs to not have anymore side shows. The air needs to be finally cleared. No PUN intended!


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: May 27, 2012 1:57 AM EDT
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May 25, 2012
FORGET Any Attempts with Gastroparesis.
Mood:  d'oh
Now Playing: Day 775-The Final Road To Survival

Today was the last day enjoying a trip to the local park. The heat is getting to be just way too much for this gal. My Gastroparesis also dislikes heat along with the connected seizures/migraines.

No. There is no cure for Gastroparesis so if you hear the hype word to the wise: Don't believe it.

Gastroparesis is also not just a condition isolated to the stomach. It is a progressive condition that starts with vagus nerve damage which results with stomach dysmotility. Gastroparesis does over time progress unless it is a result of a virus which "if" caught in time it can be reversed with antibiotics. I am not sure why any clinic or teaching hospital would have their staff contact any Gastroparesis organization telling others there is a cure and always was a cure but they just hide it for years from patients. That is "false" information and very misleading. Never, ever give out false hope to a Gastroparesis patient. As my specialist team of 18 which includes three clinical hospitals and two mayo facilities stated, "If there was any surgical or medication cure for Gastroparesis we would be the first to know." Now only did my doctors clarify the information I also wanted to clear the air with other patients. Just remember Gastroparesis is a condition that results from extensive and severe nerve damage. Until stem cell research makes huge advances will we then have a cure. This includes testing to isolate the damaged nerves and surgical options to take out and replace damaged nerves. If you want to donate $$$$ for a Gastroparesis cure make sure you do so towards a stem cell research facility. AMEN!

Back to the park...

Its always nice to clear my thoughts and mind with a nice walk at the park. I am a HUGE FAN of the wildlife and land that hasn't been destroyed by human hands. Nature at peace! Since this is Memorial Day weekend others also had the same idea getting out to enjoy the day before the heat and humidity arrives. 90's should be left out west-Nevada not out east. Mother Nature is sure confused isn't she? My friend John said, "Its not even that hot out here in California," as he continues his search for a new home.

Since my holiday weekend will consist of me, a few glasses, red Hawaiian punch and a large jug of liquid Dynamite (Drano) my friend suggested we go out and do something. I couldn't agree more and lately with surgery on my mind and the house mold repair problems still lingering I flippin need a break! CHEERS TO THAT!! What seemed like a great idea didn't last but a few hours. Same with driving. Once we walked outside and started driving my head games began. I took all my medication but even after arriving at our destination it didn't get any better. The air indoors was musky, stuffy and humid. I was bummed because we rarely get a chance anymore to go out and have some fun. My good days are few and far between. We had an early night but the fur kids didn't seem to mind. After a disappointing evening and trip it was nice to see happy tails greeting us when we got home. This is going to be a very, very long weekend with no relief so far between medical/house issues in sight.

Where is the help when you need it? This is getting to be way, way, way, way, way, way, way too much for two people to handle. One sick-Me. Another being pulled in a million directions-my friend/Caregiver.


Posted by GastroparesisAwarenessCampaignOrg. at 12:41 AM EDT
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