Mood:
brightNow Playing: Day 781-The Final Road To Survival
I am ready for the cold weather this weekend! Bring on the snow with it too because you sure won't hear this gal complain one bit. AMEN! My head needs a break and one is growing tired of playing musical seizure and migraine medicine. Hey, it happens and after many years some how we all become our own pros when it comes to a chronic medical condition. What I have yet to become a pro at is figuring out why they don't make needles a wee bit bigger so the don't break off or bend when injected. Seems I am not alone finding self injection faulty needles. For some reason my second box of medication also had a bad needle. Hmmmm...Maybe its because the manufacturer is hoping you don't have insurance and must refill a bit earlier at the price of $689.99 a box.
Didn't I tell you being sick isn't cheap? Neither is not being able to work but for some they will never understand that concept so instead just let them continue swimming in their own land of denial...
Oreo has been making it a day of rest with his buddy Snoopy. He hasn't been too active and its pretty tough getting him up to go outside. Since he can't hardly hear you have to now walk up to him so he understands you then guide him to the door. The new pain medication is so far so good with very few side effects although he is still getting lots of tremors.
His Veterinarian called today to let me know he won't need to be re-seen but if he does get worse they want me to bring him back up to their office. Its funny how life can connect people in the most strange ways! Since I have been seeing the same Veterinarian for years we have grown comfortable with each other. So comfortable he shared with me his recent Colonoscopy test. Hahahaha! Yes, HE DID! He knows all about my Idiopathic Gastroparesis but the last time we spoke I was only doing treatment once a month and now I am up to once to twice a week with also an injectable medication. He said, "I felt great after two days of clearing out and I even lost two pounds but now I am so run down I have to leave work half way through my shift. I thought eating pizza would be a good idea to get some energy but was I wrong! I don't know how you do it but you do and that to me is a true testament to your strength and will to survive. You don't understand how harsh that stuff is until you have to endure it but I have total respect for you now." He also went into the prior days prep before the Drano aka Hell-In-A-Jug treatment and was very happy to share the news, "No polyps and no cancer."
And who said you can't share Drano knowledge with the world? Hahahahaha!
“(After listening to people gripe and complain just smile and remember)
Crows can’t hang with eagles.”
- Joel Osteen
sharp
So maybe this isn't South Beach but for those of us who suffer from Gastroparesis life is far from a beach to start with in fact some of us like myself instead of walking in the sand I get to drink it. Hahahahaha! Others would never know what its like to suffer but in life just remember no one is invisible when sickness comes calling but make sure you have support. AMEN! I was recently called, "Selfish." I don't know how seeing I am not the one who is constantly vacationing across the great USA. Some folks sure are SILLY aren't they? Then some of us like myself are just plain SMART.
Today was once again a new start doing my best to get some additional walking in order to help prepare my body for the upcoming surgeries. I am also getting the legal side of things finalized in preparing for surgery which includes who can be present during surgery and who my surgeon and surgical staff will be talking to regarding post op and follow up therapy. Me and my friends are just hoping the surgical team down here won't back out and instead have the Cleveland Clinic team take over, YIKES! I can't even last past an hour in the car whether alone hours driving up north. NO WAY! If they bow out of the high risk surgery then this gal might as well start living like I am dying (Isn't that a song?) Hahahaha!! Maybe a bad joke to some but you can't always let serious situations in life take every bit of humor you have left inside of you. 
Poor Oreo puppy hasn't been feeling like himself the past week so I decided its time to take him to see his Veternarian. He has a very hard time laying down and standing up. He won't climb steps anymore so you have to carry him and when he is taken on car rides you have to pick him up so he can get into the car. After his appointment last week at the groomers we all noticed quite a few small bumps located on the side of his stomach, back legs, spine and one on top of his head. His tremors are also getting a bit worse and so has his hearing that started three weeks ago. Oreo will be 14 years old this December but to me he will always be my big puppy. He now sleeps next to Mommy at night by my side while Littleblue keeps my feet warm. I think he likes the feeling of being comforted. I think we all do!
I have been seeing the same Veternarian for years. Actually almost 14 years to be exact and he remembers me every time or maybe its because my sweet Pumpkin kitty decided to bite him during a surgical procedure. Hee,hee,hee,hee! Regardless he knows first hand I treat all my fur kids with the best care. They are my kids. Since getting up in age poor Oreo is starting to get not just one but many cysts. The original one which was found over two years ago and luckily remains the same size but the other ones are new. The Veternarian also said his arthritis has also gotten worse. This would explain why he is irritable and can't get comfortable. After he finished up Oreo's examination we were told he can no longer go up or down steps or jump onto things by himself. He will now need assistance. Since he is an older pup they can not do surgery to remove the cysts/tumors because it is far too risky. Because they are causing him pain they put him on two medications. Oreo's Veterinarian also said he needs to be limited on any activity however I did tell him the past few weeks he hasn't been doing much which is odd because he was always so active. Oreo will continue to be closely monitored for tremors/seizures and will not be allowed near other dogs which is sad since he has a new buddy next door but I know its for the best because he could snap at another fur kid. He said, "Littleblue understands he doesn't feel well. All dogs can sense when another dog is in pain which might be why lately she has been Mothering him." Thank goodness Oreo has his buddy Littleblue and we can still take them together for their daily car rides. For now I must continue keeping stress at a minimum which funny enough I have also been doing it for myself lately. 
happy
With it being a holiday weekend and no mail delivered yesterday the mailman made up for it today. Included in a huge stack of mail was another huge stack of papers for my upcoming surgeries. I am still dealing with the first round. This is almost like signing your life away and I am not even in the surgery room yet! Hahahaha! It might be a good thing I still have a little over a week to fill the rest of the paperwork out and mail it back to my new surgeons office. Thankfully there are no other doctor appointments scheduled for the remainder of this month so it looks like I will be catching a bit of a much needed break! 
d'oh
Well at least the generic Drano aka Hell-In-A-Jug is staying down far easier than the name brand ever did! I also don't have to worry about gagging on the extra salt chlorine taste with the generic brand. Not that it isn't there but it just doesn't taste as strong and it also seems to stay down without coming back up through my nose. UGGGG! 
Me and my friend-Caregiver and the fur gang had a very nice, low key and relaxing Memorial Day. My friend has been serving in the Army for almost 15 years. He not only helps to protect America but also took on the roll to help me. He recently gave up a rank promotion so he could remain in the states to help me medically and continue providing assistance around the house. When people like him give up important things in life not because they were told but because he wanted to shows the utmost support and act of selflessness. If only the world had more people who cared without being asked then maybe it would be a better place. He will not be re-enlisting next year even though he is only five years away from retirement. Why you may ask? Because he said, "Who would take care of you?" 
A team of 3 is now down to a team of 2 as my surgery day comes a bit closer. We are looking into nurse home care options and a few amazing GP friends of mine are also looking into their schedules to see if they might be able to help. My dear friend Kevin who lives here said he would be more than willing to step up to the plate and help too! For now I am going to become like the Bears and hibernate in order to get myself back on track. Stress up here must go back down there. I only have one me and I only go around once in this lifetime. I can't lose anymore precious time for hope in others but instead must now believe in myself.
The heat is upon us again today! I can't wait for some cooler temperatures instead of it feeling like August outside. My head issues-Seizures/migraine/tremors are sure not enjoying the extreme temperatures either. At least the dark sheet that plays as a make shift curtain blocking the sun from the back of the house into the living room so far has been working! It now stays super dark so I am not awakened by sunlight or migraines/tremors. Now it takes around 15 minutes to set everything up blocking the windows from any sunlight before going to sleep. Its a routine but after awhile you get used to it. 
This could make for one HUGE basement FLOOD if either its not finished within the next 24 hours or if someone gets doesn't get plywood and plastic large enough to cover the entire area. To make matters worse the workers left huge mounds of dirt through out the yard. This of course was after there was hours spent the past week cleaning up weeds along the fence line which was a waste of time. My friend-Caregiver spent most of the day working outdoors just catching up on the last bit of landscaping and cutting the grass. He now has a Memorial Day filled with dirt removal from one end of the yard to another.
WHOA! I "attempted" to clean the cars out later this afternoon which was going fairly well until the heat got the best of me. I am lucky for Gatorade and Pedialyte. Last thing I need is another trip to the hospital so it looks like the great outdoors will officially be off limits for this gal when the temperature exceeds over 83 degrees.
quizzical
What started off this very interesting day was seeing a 12 year old girl outside my back bedroom window doing hard manual labor which consisted of shoveling solid dirt to dig a 2X2x12 foot hole. OK. My question is once again what is wrong with people? What happened to society? Are we that in dire need to save a buck by having a 12 year old girl help her poor Dad out in 94 degree temperatures???? WOW! My last question to this sickening scene is where are the individuals who make child labor laws to protect the children? No. We did not hire this help. Someone else did.
Now for the end of my adventurous day called, "Do you really know someone?" This goes for those whom you might have known for years but do you really know them? I have found out some very shocking information regarding those who been very misleading about themselves. I "thought" I knew them but clearly I do not. Once again I question the behavior of people around this city. My faith in mankind is slowly dwindling..."The problem isn't the problems. Its the people who are creating the problems." Needless to say this house circus needs to not have anymore side shows. The air needs to be finally cleared. No PUN intended!
Today was the last day enjoying a trip to the local park. The heat is getting to be just way too much for this gal. My Gastroparesis also dislikes heat along with the connected seizures/migraines.
Back to the park...
Since my holiday weekend will consist of me, a few glasses, red Hawaiian punch and a large jug of liquid Dynamite (Drano) my friend suggested we go out and do something. I couldn't agree more and lately with surgery on my mind and the house mold repair problems still lingering I flippin need a break! CHEERS TO THAT!! What seemed like a great idea didn't last but a few hours. Same with driving. Once we walked outside and started driving my head games began. I took all my medication but even after arriving at our destination it didn't get any better. The air indoors was musky, stuffy and humid. I was bummed because we rarely get a chance anymore to go out and have some fun. My good days are few and far between. We had an early night but the fur kids didn't seem to mind. After a disappointing evening and trip it was nice to see happy tails greeting us when we got home. This is going to be a very, very long weekend with no relief so far between medical/house issues in sight. 
happy
Where has the time gone? It feels like just yesterday when I bought Littleblue's first little pink dress. Now the only part of her that fits into the dress is her front paw. Hahahaha! Maybe "HUGEBLUE" would had been a better name!
Since this has been Littleblue's week she has been treated to plenty of walks at the local park, new chewies and lots of new toys and treats. Oreo hasn't complained one bit since Littleblue has been nice enough to share. Even her birthday shirt from last year barely fits. She has grown up to be one beautiful "BIG GIRL!" 
I wish my Gastroparesis would allow for more outdoor time but the sunlight and heat continue to easily get the best of me. We are suppose to have work started on the house repairs this weekend but we will have to wait and see. Thank goodness for no rain in the forecast but I sure won't be enjoying this crazy heat!
My dear friend John finally made his first trip out west to look for a new home since getting his new job with the government. He will be living in Napa, California and I couldn't be happier for him! We have been friends for almost nine years and had a bet for the past eight to see who would be the first to move out west. He always wanted to live in California and me-Nevada. Looks like one down and one left-Me. Hee,hee,hee,hee... So not fair the amazing photos he shared with me today. SOOOO NICE! John is hoping to finalize his move by the end of next month and if anyone deserves true happiness its him. CHEERS to John in finding his dream home!
HAPPY 4TH BIRTHDAY MY LITTLEBLUE XOXOXOXO
chillin'
Happiness to me is new emery boards and clothes that ACTUALLY fit! Its also finding a way to better darken my sleeping quarters so the spring/summer sunlight doesn't get the best of my head.
The spring and summer sunlight also got to me around this time last year and usually makes my seizures worse. Arm tremors drove me nuts today so if I need to make the front part of the house darker then welcome to my new bat cave. BOO! Talking about literally sleeping with the VAMPIRES...My friend-Caregiver said this evening, "Wow! this is going to make the room so dark that I might have a hard time now waking up." Hahahaha! The things you must do being sick. Crazy isn't it?
Who is that masked/sunglass woman anyways? Hahahaha! My joints and muscles are still sore and recovering from the last round of seizures so walking is a win-win for this gal. Hopefully I can catch a longer break and get back into some sort of routine but with Gastroparesis you don't live for tomorrow. You live for today.
celebratory
As a Idiopathic Gastroparesis patient I have found through the years that when there is bad news ten times as much good news soon follows! What has been pouring into my mailbox, email and cell phone has been an amazing amount of support from those who have decided to step forward helping to raise Gastroparesis Awareness. This blog that I started over two years ago has not only been a way for me to express myself but also a means to help others understand the many ups and downs living a life with Gastroparesis. 