Mood:
quizzicalNow Playing: Day 776-The Final Road To Survival
We both didn't much sleep last night. My allergies and head were kicking my butt. My friend-Caregiver's allergies were causing him sneezing, headache and severe congestion. We still have three more days to look forward to with temperatures rising to the mid 90's. This would had been a great day to catch up on some rest but of course that isn't possible seeing there was "attempted" house repairs going on that started from 10:30am-6pm. This would had also been my treatment day "however" once again that was interrupted. I think maybe I need to just "sneak" in my treatment days or have someone fly me out to "NO PEOPLE ISLAND" that way no one can interfere in my care.
What started off this very interesting day was seeing a 12 year old girl outside my back bedroom window doing hard manual labor which consisted of shoveling solid dirt to dig a 2X2x12 foot hole. OK. My question is once again what is wrong with people? What happened to society? Are we that in dire need to save a buck by having a 12 year old girl help her poor Dad out in 94 degree temperatures???? WOW! My last question to this sickening scene is where are the individuals who make child labor laws to protect the children? No. We did not hire this help. Someone else did.
Not that the day didn't start off crazy enough but guess what? THERE IS A CURE FOR AIDS! HEPATITIS A, B, C! HERPES SIMPLEX 1&2, RABIES, TUBERCULOUS, PARVO, MRSA, POLIO VIRUS TYPE1 AND ECOLI! THERE IS EVEN A REACTION TIME PER VIRUS IN WHICH STATES HOW FAST QUAT WILL KILL ON AN INDIVIDUAL BASIS!! EXAMPLE: RABIES-30 SECONDS!!!
"I QUAT THAT!"
No seriously the chemical is called, "Quat" which is not only used to kill all the above but also kill mold and anything else living or breathing in its way at a very cheap price of $97.99 for a case of 12 bottles produced by 3M and banned in the state of California. Wow! you mean to tell me all along there WAS a cure for all the above? Well...if my Idiopathic Gastroparesis or toxic colon doesn't kill me there are individuals who are not licensed that believe you can spray this deadly chemical indoors while people are still residing in the residence. Me, my friend-Caregiver and my fur kids. Not that this isn't crazy enough, oh no it gets crazier by the hour since we were then told the city might possibly kick us out if we don't allow the chemical cleaner "Quat" to be sprayed in our home. Let's just say I don't need to say, "Over my dead body" because Quat could do that for us! YIKES!! After doing extensive research on my own I have not only found out Quat can kill and cure all the above but also has deadly reactions to its active ingredients. Two examples:
Ingestion: Gastrointestinal irritation, abdominal pain, nausea, diarrhea and vomiting.
*I guess instead of weekly treatments of Drano I can just inhale Quat! Or let me figure out if its a Gastroparesis flair up or a Quat flair up.
Target Organ Effects: Central Nervous System (CNS) Depression, headache, dizziness, drowsiness, incoordination, nausea, slowed reaction time, slurred speech, giddiness and unconsciousness.
*Forget going out and having a few drinks. Just stand in the house after being treated with Quat and you will have the same effect.
Yes, there are people out there and those who also work in the health department field who find it "OK" for any individual who is not licensed to treat a home with this toxic chemical while the home is still being occupied. SCARY isn't it?!! VERY!!!
Now for the end of my adventurous day called, "Do you really know someone?" This goes for those whom you might have known for years but do you really know them? I have found out some very shocking information regarding those who been very misleading about themselves. I "thought" I knew them but clearly I do not. Once again I question the behavior of people around this city. My faith in mankind is slowly dwindling..."The problem isn't the problems. Its the people who are creating the problems." Needless to say this house circus needs to not have anymore side shows. The air needs to be finally cleared. No PUN intended!
d'oh
Today was the last day enjoying a trip to the local park. The heat is getting to be just way too much for this gal. My Gastroparesis also dislikes heat along with the connected seizures/migraines.
Back to the park...
Since my holiday weekend will consist of me, a few glasses, red Hawaiian punch and a large jug of liquid Dynamite (Drano) my friend suggested we go out and do something. I couldn't agree more and lately with surgery on my mind and the house mold repair problems still lingering I flippin need a break! CHEERS TO THAT!! What seemed like a great idea didn't last but a few hours. Same with driving. Once we walked outside and started driving my head games began. I took all my medication but even after arriving at our destination it didn't get any better. The air indoors was musky, stuffy and humid. I was bummed because we rarely get a chance anymore to go out and have some fun. My good days are few and far between. We had an early night but the fur kids didn't seem to mind. After a disappointing evening and trip it was nice to see happy tails greeting us when we got home. This is going to be a very, very long weekend with no relief so far between medical/house issues in sight. 
happy
Where has the time gone? It feels like just yesterday when I bought Littleblue's first little pink dress. Now the only part of her that fits into the dress is her front paw. Hahahaha! Maybe "HUGEBLUE" would had been a better name!
Since this has been Littleblue's week she has been treated to plenty of walks at the local park, new chewies and lots of new toys and treats. Oreo hasn't complained one bit since Littleblue has been nice enough to share. Even her birthday shirt from last year barely fits. She has grown up to be one beautiful "BIG GIRL!" 
I wish my Gastroparesis would allow for more outdoor time but the sunlight and heat continue to easily get the best of me. We are suppose to have work started on the house repairs this weekend but we will have to wait and see. Thank goodness for no rain in the forecast but I sure won't be enjoying this crazy heat!
My dear friend John finally made his first trip out west to look for a new home since getting his new job with the government. He will be living in Napa, California and I couldn't be happier for him! We have been friends for almost nine years and had a bet for the past eight to see who would be the first to move out west. He always wanted to live in California and me-Nevada. Looks like one down and one left-Me. Hee,hee,hee,hee... So not fair the amazing photos he shared with me today. SOOOO NICE! John is hoping to finalize his move by the end of next month and if anyone deserves true happiness its him. CHEERS to John in finding his dream home!
HAPPY 4TH BIRTHDAY MY LITTLEBLUE XOXOXOXO
chillin'
Happiness to me is new emery boards and clothes that ACTUALLY fit! Its also finding a way to better darken my sleeping quarters so the spring/summer sunlight doesn't get the best of my head.
The spring and summer sunlight also got to me around this time last year and usually makes my seizures worse. Arm tremors drove me nuts today so if I need to make the front part of the house darker then welcome to my new bat cave. BOO! Talking about literally sleeping with the VAMPIRES...My friend-Caregiver said this evening, "Wow! this is going to make the room so dark that I might have a hard time now waking up." Hahahaha! The things you must do being sick. Crazy isn't it?
Who is that masked/sunglass woman anyways? Hahahaha! My joints and muscles are still sore and recovering from the last round of seizures so walking is a win-win for this gal. Hopefully I can catch a longer break and get back into some sort of routine but with Gastroparesis you don't live for tomorrow. You live for today.
celebratory
As a Idiopathic Gastroparesis patient I have found through the years that when there is bad news ten times as much good news soon follows! What has been pouring into my mailbox, email and cell phone has been an amazing amount of support from those who have decided to step forward helping to raise Gastroparesis Awareness. This blog that I started over two years ago has not only been a way for me to express myself but also a means to help others understand the many ups and downs living a life with Gastroparesis. 
You can write it out, map it out and even plan it out but sometimes life doesn't always go as planned. 
With any bad day there is always a silver lining! My doctor called later this afternoon with my lab work for my kidneys. Luckily I won't have to see another new specialist to add to the current list of 18 and instead I will just have to follow up additional testing with my Nephrologist. My friend also upon getting the mail brought in a package filled with amazing news in the fight for Gastroparesis Awareness. Indeed the Gastroparesis Awareness Campaign Team and GP family should be very proud! 
bright
I have quickly come to realize that when people alter their outer appearance it also alters their soul.
In the world of pain and suffering, true heroes can be found...providing special comfort and relief. They choose to make a difference, regardless of the cost...always willing to help others in their grief.
not sure
It took me a few days but I am starting to wrap my hands around the inevitable medical changes I am soon to face. 
The peace I have is knowing there is an amazing team of 18 specialists who all give 110% of their heart and soul in order to help me live the best life I can and truly CARE! Besides my specialists there is a lot of work and support that will need to go into the step by step process before and after surgery. Either that external support system behind the scenes are "in" or "out." I hope to be pleasantly surprised although expecting the worst but hoping for the best. I still have faith that people can change but only time will tell. As for now my friend-Caregiver has his list of duties to make this as smooth as a process it can be without any stress involved. Its amazing when my doctors told us how much internal damage stress can cause a pre existing condition so this time I am listening and staying with the no-stress program. 
They are just the cutest! His own fur kid enjoys watching the gang outside playing during the day while Mom stands close by protecting them. He said, "One day they just appeared and have been hanging out every sense." Hopefully Mom will continue taking great care of her little ones and they will find a new home soon before the summer heat arrives.
With a ton of things weighing on my mind regarding the house, moving and major life changes I added another one that trumped the rest this afternoon. My specialists appointment went as expected but with one huge twist. It seems the "temporary bandaids" for my paralyzed intestines aren't working anymore. In fact things are progressing faster than expected which is leaving me more sick than I already was to start with. My mind is still in a fog from the appointment. The only thing I can say on my blog today is I will once again have to endure another major surgery. Todays news has also trumped the decision of moving this month. In fact for my health sake I will need to hold off on things until the first of July. My Gastroenterologist also had reports and letters from my other specialists including my Oncologist/Hematologist which clearly explained the severity of things and the need to start getting my body and mind ready for surgery. Maybe once I can wrap my brain around things over the next 24 hours I can explain to others in further detail but for now its time as my doctor said to take that stress level from all the way up to all the way back down. DITTO! 