Mood: not sure
Now Playing: Day 768-The Final Road To Survival
It took me a few days but I am starting to wrap my hands around the inevitable medical changes I am soon to face.
I saw my Gastroenterologist and his assistant Thursday and then saw my other specialist Friday so they could run another round of tests on my kidney function. My kidneys are not functioning properly so after four rounds of tests and three rounds of medication not working I have to go back to my Nephrologist then see another new specialist in a few weeks-Urologist all of course GP related. Not sure what they can do at this point but unfortunately I must go through more extensive and costly tests...
My Gastroenterologist appointment was Thursday in which I was told my colon must come completely out. I have far too many narrowing passages and kinks with my intestines that it is causing partial obstructions. The other problem is parts of my colon are dying which can cause dangerous toxicity in the blood. I wasn't expecting the news however I knew things were not getting any better with my paralyzed intestines. My doctors said, "We only put in place temporary bandaids over the past eight years but now the bandaids are no longer working." The dangerous lymph nodes inside my intestines luckily are in the beginning stages and isolated in which my Oncologist/Hematologist doctor believes is in early stages enough to get that bad colon out. They did want Cleveland clinic to do the surgery however my body would not allow for the travel so I am very fortunate to have an amazing new specialist/surgical team who do nothing but colon surgeries here in
Cincinnati. I am scheduled to see my new surgeon and her surgical team in two weeks however it will be a step by step process with additional testing they will need to perform as well go over all my prior medical and surgical reports. I also had to start a new liquid diet a few days ago in order to get my body ready. With that being said not that a inevitable high risk surgery isn't enough to worry about but my mind also has to also be in the right place. Stress levels that are way up there need to start coming way down here and now!
The peace I have is knowing there is an amazing team of 18 specialists who all give 110% of their heart and soul in order to help me live the best life I can and truly CARE! Besides my specialists there is a lot of work and support that will need to go into the step by step process before and after surgery. Either that external support system behind the scenes are "in" or "out." I hope to be pleasantly surprised although expecting the worst but hoping for the best. I still have faith that people can change but only time will tell. As for now my friend-Caregiver has his list of duties to make this as smooth as a process it can be without any stress involved. Its amazing when my doctors told us how much internal damage stress can cause a pre existing condition so this time I am listening and staying with the no-stress program.
The goal now is to shift my attention by preparing my mind and body for surgery. The final road to survival.