Now Playing: Day 754-The Final Road To Survival
Looks like more rain is on the horizon so its going to be a very humid and wet weekend. Ugggg...This weather sure reminds me of being in Panama and visiting the rain forests. One trip in my 20's I will never forget along with many others happy memories. At least the roses and wildflowers in the front yard and around the landscaping are enjoying all this rain. This is the first year in quite awhile that the blooms on the rose bush are huge! My peach tree in the backyard is also doing quite well and looks like there could possibly be peaches to pick come mid June. Hope my new neighbors are ready! Homemade peach pie for all! YUMMY! Well, at least for those who can eat.
Today is Cuddles kitties 14th birthday. Littleblue's 4th birthday is next week. The fur gang are not only well taking care of but spoiled rotten! Hee,hee,hee,hee..Its hard to believe they will all be 14 years old this year. Where did the time go? They are quite energetic and Bear kitty still has his "Crazy-Cat hour" which starts around midnight and continues till 2am. Thank goodness I am on VAMPIREEEE time due to my medical condition because if I was still able to work Mr. Bear kitty would have to find a different play time.
With the rain heading in for the weekend me and my friend-Caregiver made some quick decisions on how to temporarily hold off having flood problems once again in the basement. The last clean up was enough of a pain and with the weather channel showing quite a bit of rain it might be a great idea to temp fix the failing outside drain and basement wall. After going to Lowes then running a few other errands we came back home so my friend could begin doing some quick patch work. So far. So good! If all else fails at least we now have more than enough buckets and mops. Hahahaha! My neighbors are also getting ready for the rain by stocking up on old towels just in case the dirt that was put down around the house foundation doesn't work. Looks like both of us will be seeing lots of repairs starting early next week. THANK GOODNESS! Its been a real challenge on my patience but I must remember there are far greater things in my life to be worried about. Amen.
Since this is day 4-after treatment my insides are sending me warnings of a few bad days to come. It feels like I have huge 50 pound bags of sand around my stomach due to severe intestinal inflammation from the Hell-In-A-Jug treatment. Regardless of the pain I still did my best to keep going today because its far easier to sit around and complain then to get up and try to do something about it. My spine was kind enough to give me a small break this evening so I could use my treadmill. So maybe it didn't help but at least I tried. My fellow GP friend who is also playing guinea pig to the new injectable drug Relistor is starting to have a few "new" problems. At least she is getting some relief but when she isn't using the medication its right back to the same ole song and dance. I think her Gastroenterologist also meant well by trying her on the new drug but its clearly not meant for Gastroparesis/paralyzed intestines but more for those who have been taking opiates for a long period of time. Like years. Its also for those who are recovering drug addicts or patients who have other chronic medical problems and use pain medication. For Gastroparesis patients? Forget it! I still have yet to find any relief but continue to deal with far more frequent tremors that dance on the seizure border. Not that I don't already have them nor is this weather helping but thankfully I only have a month/trial left to try the medication. Looks like Drano & Slimfast now have something in common with me. Its a permanent way of life!
"I hate people who complain, “I need a nap”, “I need some caffeine, I have a headache”, “I have pms cramps”, or even better… “I have a cold… I am Ddddddyyyiing!”. These expressions need to be banned, because they do not adequately describe how you are feeling and they belittle what pain and sickness I may be feeling.
I hate that I know my doctors better than I know my friends and some of my family.
I hate walking around in public with a limp, or worse, a set of crutches, a cane or a wheelchair. I hate not being able to wear tall sexy shoes, because I can not walk in them. I hate trying to quickly think of the much cooler reason for having a cane, or wheelchair. I hate that I don’t know a cooler reason.
I hate never feeling good enough, quick enough, pretty enough, or just “enough”. I hate living up to other people’s expectations of what being sick is."
"This is who I am. Good days and bad. Sometimes, there will be days where I am the funny, cute girl that you just can’t believe is sick. Then another day or week later- I may be that really sick girl who used to be funny." -Christine Miserandino