Now Playing: Day 718-The Final Road To Survival
This is getting old!!!! I feel like I have plenty more patience to give but sometimes one pain affects you completely different than the others when its in your tailbone area and wraps around your entire leg. I can't sleep on my left side, I can't sleep on my back and I can't sleep on my right side unless I continue to hang my left leg over the couch or rest it on the step stool. The living room is once again looking like a make shift medical supply store. Hahahahaha! Add crutches now to the mix. Whether I like it or not I must admit keeping weight off my left leg and spine is a heck of a lot better than constantly enduring the stabbing hot nerve pain! The wheelchair is a great idea but its still uncomfortable to find a position that doesn't make things worse.
With not much sleep last night I still managed to get up once my cell phone alarm went off at 1pm. 1pm to most is a time you wake up during vacation but trust me being sick and disabled is NO VACATION by any means. Its exhausting but far from fun. Amen! I had post it note reminders waiting for me once I got up and I wanted to try getting through most of them before my Neurologist-Neurosurgeon appointment later this afternoon. This week and next week I like to call "Hell Weeks" but I must keep in mind all bad things eventually do come to an end. My friend Kevin always makes sure I keep those exact words in mind when having a stressful day.
Between the insurance company, Cobra company, Court docket office, legal offices, SSD office I am COMPANY-OFFICE MAXED OUT! Hahahahaha! I did accomplish all my necessary phone calls just in time to leave me a few hours to jump in the shower and take my time getting ready. I am not sure why some people think just because you are sick or disabled you are less competent than others. Lately I feel like I am being constantly challenged with my level of intelligence. Sorry to say folks but being sick actually makes you smarter and far wiser! I like to say us "unique" folks are more in tune with life in general. We also by far work harder than the normal person. Give us a challenge and I bet we will not only succeed but also prove you wrong. Titles for any job are just that "Titles" and it doesn't necessarily mean those who are disabled can't learn to do the same job. It might take us a little bit longer but I bet the finished product will turn out better because we take our time. Like I said, just because someone has Gastroparesis or any other disability doesn't mean you should question their abilities. By the time I got ready and helped to clean the house up a bit we headed off to my doctors appointment just in time for rush hour traffic or so I thought...3:45pm and we actually were ahead of traffic! Once we got out of my specialists office it was 5:30pm and surprisingly on the way home we didn't hit much work traffic either. WHOA! The drive was smooth but it wasn't a smooth ride for my back so I do my best not to take too many car rides for now. This week must be an exception since I have another important event to attend Thursday then back to my other specialist Friday and a few more tests. This is definitely going to be a low key Easter weekend for this gal!
By the time I got ready and helped to clean the house up a bit we headed off to my doctors appointment just in time for rush hour traffic or so I thought...3:45pm and we actually were ahead of traffic! Once we got out of my specialists office it was 5:30pm and surprisingly on the way home we didn't hit much work traffic either. WHOA! The drive was smooth but it wasn't a smooth ride for my back so I do my best not to take too many car rides for now. This week must be an exception since I have another important event to attend Thursday then back to my other specialist Friday and a few more tests. This is definitely going to be a low key Easter weekend for this gal!
I don't expect to be cured by any means or a magic wand waved over my tired insides. What I do expect from my specialists and have yet to be let down is pure honesty and a lot of medical education. My Neurologist-Neurosurgeon said, "You have a lot of nasty things going on inside your body that are causing you various types of pain. Its smart you are not taking strong narcotics that will only make your GI issues worse. I am not sure if or when things will get better with your spine and trapped sciatica nerve. We could try you on light physical therapy but I am afraid since you have other serious problems going on we could possibly make them worse. I don't think we need to put you in any further pain." Me and my friend-Caregiver totally agreed! They do want to run an MRI but I can't even sit still longer than five minutes without the pain getting worse. This presents another problem so for now I was asked to try my best keeping weight off my left leg if all possible. The nurse said, "Since your right leg and hip are compromising for your left side you are going to end up with problems as well with that leg so do your best using medical means whether the crutches or wheelchair to give your body a break." I agree.
So we left my specialists office with exactly as expected-more information and medical education. Maybe not a cure or a magic pill but remember I am the type of person who does better "in the know" than the "unknown." Since I still have quite a few tests and doctors appointments over the next few weeks they will wait to see what things show and then my team of amazing specialists will take things from there. Its a very strong possibility there isn't anything further they can do but try to manage the pain. I am looking at a 90% possibility. If only my tired body wasn't so tired they could discuss surgical options but those are out of the question so for now I continue to take things one day at a time.