Mood:
happyNow Playing: Day 700-The Final Road To Survival
If this St. Patrick's day weekend turns out anywhere close to the shade of green like the summer-like grass quickly growing outside (due to this crazy weather) then its going to be one LUCKY WEEKEND!
Sadly we found out I am once again building a resistance to my weekly treatments. The reason I had to stop treatments a year ago was due to the exact same reason. Since I am taking the name brand medication the pharmacist suggested I go back to trying the generic. The rash starts within 12 hours after consuming the last glass and goes into two days. I assume that is because it takes my paralyzed organs a few days to even start processing the liquid nightmare. It feels like a horrible sunburn with the chills and sweats. This time the rash broke out on my neck, back and arms. Its happened the past two treatments so now I must be very careful but thankfully the rash did ease up today. Although what I must endure on a weekly basis is not normal its still a must with my unique medical condition.
We are still determined to go out and celebrate the luck of the Irish this weekend but it wasn't going to happen today. There was just way too much going on and the day seemed to fly by! The weather is still bringing us summer like temperatures but it will quickly be coming to an end by later next week. This gal will be more than happy. At least I got a sneak peak of how my body is going to react this spring and summer. Two words: Not good. Better keep my boxing gloves close by for a long fight over the next six months. WHEW!
Later this evening I got some wonderful news regarding the Greyhounds and I am hoping to share it with everyone very, very soon! Indeed it is St. Patrick's Day weekend and may the luck of the Irish also be with you. May it be GP-FREE! CHEERS!
lazy
I slept horrible! Between the treatment getting stuck inside my intestines, Littleblue bouncing back and forth between the couch and the floor, sweats and the monsoon rain it was a sleepless night. The only positive thing was since the storms produced some serious high winds, hail and lightening most lost their electric. This means my dentist appointment will once again need to be moved to next week. Good news for me because I only got around four hours of sleep and wasn't physically in any way, shape or form capable of dealing with dental work today. Its already been such a hectic week that it might be better to wait things out a few days. I don't have any pain but that's only because of the extensive nerve damage from my GP. 
My friend has a new project on their hands since buying a large piece of gym equipment last week. The equipment just arrived Monday and since hes being putting it together solo we both realized the directions that say it takes 2-3 hours has now turned into 4-5 hours. Oreo and Pumpkin have been busy playing Supervisor but today its been more like sleeping on the job. Hahahaha!
Hes hoping to have it finished by this weekend so my GP room can be back to normal. Gym memberships anymore are so expensive with all sorts of hidden fees that its smarter to buy your own equipment. Its also nice to work out in the privacy of your own home and be able to watch what you like on TV. I sure do miss working out but mostly connecting with people-society. With my spine a mess and dealing with numerous GP problems the best I can do is walk. Its nice having the small park right in front of the house but looks like the rest of the week I might have to just settle for my treadmill. That is if I can catch a break with the Hell-In-A-Jug side effects. By that time I might be due for my next treatment. GEES!!
don't ask
Here we go again and again and again...
My friend has also gotten involved stepping in to speak on my behalf regarding new legislation to put a stop to Ohio Dog Auctions which will stop Puppy Mills. Sad when people lose the meaning of life and treat animals cruelly. 
celebratory
I already miss my snow. Sigh...The flowers are all blooming and the way things are going the grass might need to be cut by next weekend. YIKES! Soon everyone will have their pools open. This might be by next weekend so get your rafts out! I'll bring the Drano. Hahahahaha! Dranotini's for everyone!....
happy
Have you found your passion in life? I did a year into my Idiopathic Gastroparesis diagnosis. It was then I started the "Gastroparesis Awareness Campaign" and the online support family called the "GastroparesisPatientsGroup." This coming weekend I will be celebrating my 8 year fight for life. My Gastroenterologist said it will be 9 years but we found out it will actually be 8 years after finding my original GP diagnosis and GES test results last week. Trust me it feels three times longer than that! WHEW!
Fur kids will always have a huge place in my heart. My gang mean the world to me! They have been loyal and dedicated to their Mom through the worst of the worst being sick. I have also come across a few others who have found their passion in life and who also have a huge place in their hearts for the wildlife and fur kids. I didn't realize there are beloved pets who work hard to help those with disabilities and seizures at the organization 4 Paws for Ability. 
d'oh
Bring on the boat because its almost that time again to be sent out to sea as my balance issues fire right back up again. I might as well just go into hiding for the next six months. I used to enjoy spring and summertime but this was before of course I got sick. Forget telling you the last time I went on vacation and if I ever plan on taking one again it won't be until early fall and winter when my head issues can take a break. Gees!
Oreo has reallllllllly been enjoying his new huge bed! This afternoon it appeared he had a new sleeping buddy Cuddles kitty who found an open spot on his bed. Oreo tolerates the kitty gang although I won't say they are his bestest buddies, hahahahaha! At least he is learning to share and that's all that matters.
Hee,hee,hee,hee...My friend even joined in as he made changes of his own. Just part of life and we all go through it one day or another. One dreaded part out of the way for this gal and hopefully I can say the same thing for next week after my "I lost track" of dental repairs. Amen!
on fire
Is it me or when you are sick and handed the terminal card you become increasingly more AWARE of your surroundings? 
Hey! At least I do have a few working nerves left in this body! Hahahaha! I asked my friend if they saw what looked like a prison camp in the middle of an open field and they replied, "Yes but I sure hope its not what I think it is."
Can we say DUMB?!! Chalk up a few more to add to the list of IDIOTS who live in the great USA...I can't get too much into further detail but those who are also huge animal lovers and fans of the wildlife trust me by saying, "This gal won't stop until once again the fat lady sings." That won't be anytime soon either! Hahahahaha! 
I guess one could say while you are still leaving here on earth the good Lord uses those for various reasons in order to help others-even the fur kid kind. Mine must be to provide wings over those who can't speak for themselves. If that holds true then I sure hope when my time comes Crystalblue is waiting for me next to the golden gates of Heaven.
I attached some photos of families who have adopted Greyhounds from a Greyhound adoption agency here in my home town. Just look at these adorable faces and how much love they bring to others. My ultimate goal is to have these Greyhound pups rescued and also given the chance to be loved.
not sure
Nothing quite like having to take a walk at 5:30am due to achy pain and nausea. While the rest of the world is fast asleep I am just hoping to be able to catch a break! I tried sleeping but it felt as if I was laying on bricks due to the inflammation and pain. At least Oreo and Littleblue didn't mind the early morning walk but once we got back in the house they were both out like a light! My brain also won the battle once sheer exhaustion finally took over.
Today marks the last day of testing for the week and hopefully for the rest of the month. Better yet the rest of the year! I was smart to schedule my last tests for later in the week. Fridays are the best days for any hospital testing because employees are in a mad rush to get off work and head out to start the weekend. I told my friend to bring a magazine in case I am stuck in testing for a few hours. It seemed like once I was taken back to a changing room I was quickly whisked away to another room then another room then right back to the changing room. Talking about fast! I sure wish my dental appointments went that quickly but instead I am right back there again next week to finish up more repairs. Its a never ending battle with my teeth and only to be expected with the weekly treatments leaving a path of destruction. I might be finished with testing but doubt I will ever be finished seeing my dentist. I won't get my test results from today until Monday and Wednesday next week but not to worry nothing phases me anymore. My motto: Expect the unexpected then you will never be disappointed. Seems to work for me so far and when I do get good news I am actually surprised!
Oreo loves laying on his bed next to the new entertainment center but lately his bed has seen better days. I decided since we were out anyways why not stop by to get him a new bed. Once we got home the fur kids were happily waiting by the door. Boy! do they know when they have a surprise in the bag but this surprise wouldn't fit into a bag. I didn't realize I bought Oreo a bed that is much larger than his other one but he didn't mind a bit. In fact once we put the old bed in the washing machine and came back upstairs Oreo showed his sign of approval by laying right smack down in the middle of his new bed. The rest of the night you know what he was doing right? Yes. Lounging on his new bed! Hee,hee,hee,hee...
When faced with GP you must also face the sound of music and the hard core facts. Gastroparesis shuts down nerve function one organ at a time. Since being handed so far this year some bad but factual news it was inevitable to get my Will and Medical Dual Power of Attorney forms completed. This evening I got both finished and told my friend I would leave them all the jugs of Drano but they can't have my candy! Hahahahaha! Yes, its tough facing the unthinkable but I refuse to leave anyone in limbo regarding my final wishes or medical decisions. Trust me by saying anyone could get killed in a car wreck or some freak accident tomorrow so its important everyone is prepared. I don't hear the fat lady singing just yet and I still have things to finish up here on earth, those to help and then those to annoy. You know who you are, hahahaha! Who's laughing right? Right! *WINK *WINK!
Yep, I am still a smarty and still love to laugh. Sorry GP but you can never take that away. AMEN!
Hee,hee,hee,hee...Yep, it was too good not to go there! Sometimes when faced with a ocean full of Drano you might as well find some sort of humor in it!
I am once again enduring the treatment hangover from hell! I am dragging and honestly could be just content staying on my couchbed all day but the animal gang would never have it. No such luck although Pumpkin kitty didn't have a problem just lounging on his window bed all day. Lucky isn't he?! Instead I did my best to move around hoping to gain some energy. I am still taking my daily handful of vitamins as well liquids but I honestly don't feel any different. I still have yet to get any energy but will continue taking them to make my doctors happy. 
Friday I have my last test of the week and hopefully for the month or rest of the year. It sounded good anyways! Next week I am back to the dentist to repair the last two teeth on the right side but still have to find out if there is more damage again on the left side. Maybe me and my dentist need to just move next door to each other? This way I could just walk over in between treatments and get my dental work done. Hahahaha! Pretty sad when I see my dentist more than any other of my 16 specialists. 
special
I got an email from an amazing woman named Arlene who has a daughter named Brianna who also suffers from Gastroparesis. Brianna is only three years old and was born with Idiopathic Gastroparesis. Brianna's condition is chronic and terminal. Arlene came up with an amazing idea designing a clothing line called, "Bibi Wear" as well a cute teddy bear buddy named "Bibi Bear." Arlene was picked to be in a contest sponsored by Walmart called, "Walmart Get On The Shelf." The contest is a way for people to get their ideas out of their home and onto the shelves of the large retailer. Arlene is hoping to get both the clothing line and Bibi Bear available to the public so other children can have easy access and comfortable clothing that allows for quick change of any feeding tube/line. Bibi Bear is a special bear that allows a child to take with him/her when parents are not allowed whether it be surgical procedures, testing, etc.
