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The Road Before & After Surgery
February 11, 2012
MORE SNOW=HAPPY DANCE!
Mood:  celebratory
Now Playing: Day 666-The Final Road To Survival

What a great weekend and look at all the snow! It makes me want to do the HAPPY DANCE! Instead I think Littleblue and Oreo are doing it for me since both of them spent lots of time outside in the snow today. The ground is nice and cold which makes for some great snow and thank goodness FINALLY some winter temperatures!

WHOAHOA!

Come on Mother Nature, take those temps all the way down! Real low...Like in the teens! Add about a foot of snow and you will find one happy gal. ME! I even got the ole shovel out and did a few sections of the wheelchair ramp and front porch. Yes. I was being extra careful and used my snow boots. How can one miss the opportunity finally being able to enjoy some of this beautiful snow? Sure. I also didn't feel like falling and having another concussion either so I had a huge bag of salt nearby. Hahahaha! I just better enjoy it now before the evil spring and summer months pay us a visit. My head can wait! Trust me! It can wait!

Today was a time-out day allowing my body to rest from all the weekend fun. I had plenty of things to do around the house and chores to catch up on so the day went by very quickly! Of course once again all good things must come to an end. Tomorrow finds me staring down another wicked jug of liquid dynamite. GEES! Let's not ruin a perfectly wonderful snow blog and think about that toxic poison! This gal is still basking in the joys of snow and cold weather. Not to mention a few spending dollars from the casino gaming board. Hahahaha! What did I get today? Why of course another wig to add to my collection! Hair today. Gone tomorrow. I don't care because at least while I bid it a fair well I will have fun with a few new styles that don't require hours with a blow dryer, curling iron or straighter. That means more time for life.

CHEERS to turning around a bad situation and seeing the silver lining and not the gray kind either! Hahahaha!


Posted by GastroparesisAwarenessCampaignOrg. at 11:54 PM EST
Updated: February 12, 2012 2:13 AM EST
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February 10, 2012
Taking A Snow Trip!
Mood:  celebratory
Now Playing: Day 665-The Final Road To Survival

LET IT SNOW! LET IT SNOW! LET IT SNOW!

LOOK OUT GP & MS! This gal is pushing you both aside and taking over the reigns today! WHOAHOA! I am ready for a road trip and what a better way than in the SNOW!

I just knew once I woke up this afternoon it was going to be a great day and I was determined as ever to get out of the house and have a "ME DAY." I think anyone who has Gastroparesis or heck! any chronic or terminal condition needs to plan at least one day a week to do something special for yourself. We all deserve it! Today was my day and I don't care if I need to bring the house pharmacy with me and Mr. Yellow Puke Pan I am getting the heck outta here! AMEN!

Although I didn't get up until around 2:30pm because my head and GP nausea/vomiting got to me early this morning I still had plenty of time to get ready to head out on the road. It wasn't snowing too bad when I got up but once 8pm hit and we headed out the door here come the snow, snow and more snow. LOVE IT! I don't mind driving in the snow and before I had to resign from my job and go on SSD I got the perfect car for it. Sadly that car now rarely sees the outside of the garage. Until today! WHOAHOA! I should had maybe learned how to use the traction buttons and traction system a few years ago but its never too late to learn. I asked my friend if they were ready to drive in the snow and head out to see if Lady Luck was on our side? They were GAME! No pun intended! Hahahaha!

An hour drive up and an hour drive back with the snow beneath our wings all I can say is it was worth the risk! I had a WONDERFUL TIME! Make that:

AN AWESOME TIME!

Add having Lady Luck on our side and hitting one of the progressive jackpots then you have a TERRIFIC TIME! HAHAHAHA! We only spent $5.00 which was on sugar, salt packets, milk and a Hershey bar. That was only because Mr. GP wanted to tag along. It was so nice to get out and feel a bit 'normal' for a change. Leaving behind all my cares and woes if only for an evening. I had a few head moments with my post concussion and MS but only as expected. I now do better knowing what I am dealing with and its easier to understand the waves of nausea and vomiting that will seize in time. It made taking a short road trip much more relaxing and less stressful.

Would I do it all over again?

IN A NEW YORK MINUTE!

CHEERS TO HAVING AN AMAZING 'ME DAY!' I can only hope and pray that each week brings a new journey of a happier and better lease on life. AMEN!


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST
Updated: February 12, 2012 1:53 AM EST
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February 9, 2012
Life Is A Constant Learning Lesson...
Mood:  cheeky
Now Playing: Day 664-The Final Road To Survival

Rule #1-

When your doctors warn you to be careful when getting up from a sitting or laying down position LISTEN to them!

Two words for you: FLIPPIN OUCH!

So maybe my memory slipped a bit when getting up off my ole couchbed a bit too quickly then walking right into a large glass dining room table but at least give me a bit of credit in saying I am keeping a closer eye on my blood pressure and blood sugar levels. Now if I could just keep a closer eye on where I am walking. Hahahaha!

My blood sugar still gives me a run for my money. Run for the Hershey company too! Now since my GP is giving me fits the only form of candy I can tolerate is plain Hershey miniatures. Let's just say they are getting old. Veryyyyy old! I tried just taking a few sugar packets and eating those but WOW! do they make me gag! I guess the miniature Hershey's is better than nothing at this point because I certainly don't need anymore blood sugar readings in the low 50's.

Since we are coming up on the weekend and I just finished up two of my Hell-In-A-Jug treatments I vowed to treat myself to a few days out on the town. Also getting out of the house-jail would be nice. Super nice! I asked a friend to go out this weekend seeing its suppose to be much cooler and its been SNOWING! Oh yes! I LOVE SNOW! Perfect time to get all bundled up and head out!

Littleblue and Oreo have already started shedding their winter coat a few months early so its been a job just brushing them every day. Thank goodness the ground is now frozen and they can get all their energy out. It looks like a great weekend for them too! I sure do miss my gang when I go out but once I walk through the front door they are always waiting for me with their tails wagging. They are the best! Aren't all fur kids?!

Wellness Tips we can learn from a Dog 

Never pass up the opportunity to go for a joy ride.
Let the experience of fresh air in your face be pure ecstasy.
When loved ones come home, always run to greet them.
Let others know when they've invaded your territory.
When it's in your best interests, practice obedience.
Take naps and stretch before rising.
Run, romp, and play daily.
Eat with gusto and enthusiasm.
Be loyal.
Never pretend to be something you're not.
If what you want lies buried, dig until you find it.
When someone is having a bad day, be silent, sit close by, and nuzzle them gently.
Avoid biting when a simple growl will do.
On hot days, drink lots of water and lay under a shady tree.
When you're happy, dance around and wag your entire body.
If you're scolded, don't buy into the guilt thing, run right back and make friends.
Delight in the simple joy of a long walk.


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST
Updated: February 12, 2012 1:32 AM EST
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February 8, 2012
A Longggg....Day....
Mood:  don't ask
Now Playing: Day 663-The Final Road To Survival

My Tuesday didn't end until this Wednesday morning around 9:30am. It was like a nightmare that I hope to never relive again. I don't feel the need to get into everything but let's just say between the darn Drano getting stuck in my upper intestines, becoming dehydrated, a ER visit to get some much needed fluids, waking up around 3pm feeling super dizzy then having a very low blood sugar reading this evening making my doctors scramble to get it back up makes for one hellish 48 hours.

If that wasn't enough I still had to fit in the rest of my Hell-In-A-Jug treatment today. I must start forcing more sugar and more Gatorade on a daily basis so I don't keep getting into trouble. I had a smashing headache caused by some outrageous stress that I quickly put a lid on followed by more Drano so I didn't go from tremors into seizures. Luckily I was able to sleep in between all the bathroom breaks catching up on a few hours here and there. I should sleep extremely well this evening due to sheer exhaustion. I have been keeping close tabs with two of my specialists who are trying to get my body to bounce back a bit with my blood pressure, blood sugar, pounding headache, head pressure, nerve pain and learning to tune out unnecessary stress that's interfering in my overall care.

I have learned from having this blog that there are people who are called friends located everywhere. Thank you to those who look after me and my well being. Most I have never met but hoping to meet a few friends next month as they come in town to visit. I never expect those who don't walk in the same shoes with any disability to understand what its like to be sick so I continue learning to tune it out and looking straight ahead. I have a life and although its been altered due to being sick and a stack full-arms length of medical records and over 16 specialists with medical facts I don't feel the need to continue forcing others to understand my condition. Those who question my specialists are welcome to reading the facts and hundreds of medical reports. I worked since I was 16 years old and paid into the system in order to provide myself some sort of assistance if I became disabled. The government does not just give out disability freely and they take each individual case very seriously. My SSD approval process took over two years due to a mountain of medical records and testimonies from numerous physicians. I would had continued working and did so until it become too dangerous for myself and others. I was then advised by three specialists that I had to stop working. My SSD case was overturned a little over two years later in court due to numerous connected problems with damaged nerves from my Idiopathic Gastroparesis. Anyone who thinks not working is fun or uses the system being disabled as a free ride obviously never found out what its like being sick. Gastroparesis has no cure nor does many other medical conditions that society suffers from but the last thing we need as patients is to be chastised for something we can't control. No one, no matter what disability should ever have to suffer from discrimination. I was discriminated against today and it was the lowest thing anyone could ever do to another individual. I choose not to blog what was said due to others who might get offended or take high offense. I got enough text messages and emails through out the day and have decided to take the high road and move past the hurtful words.

I answer online emails twice a week, those who know me best can vouch for this unless I am flagged on something otherwise. I do my blog on a daily basis even days like today when I am very sick and weak so others can keep up with how I am doing and feeling so I don't have to put hours into being online when I need to take that time to rest. Its also a way for me to heal emotionally and a way to keep up with my progress. If any of my experiences help others then I see nothing but good coming from my blog.

Its been a very long day with a few important lessons that been learned. The main one is finding out that support comes in many forms and from all walks of life. Thank you for being supportive! Thank you for being honest. Thank everyone for being 'YOU.'


Posted by GastroparesisAwarenessCampaignOrg. at 11:11 PM EST
Updated: February 9, 2012 1:16 AM EST
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February 7, 2012
A Drano Tale...
Mood:  don't ask
Now Playing: Day 662-The Final Road To Survival

We all know how this Drano tale goes...I like how the Drano product label reads, "For Sanitary Troubles. Frees Drains."

Hahahaha! And hair, grease, food, etc, etc, etc. Hmmmm....Kinda sounds like the Drano I endure on a weekly basis! DANGER is all they need to write. Same with the liquid dynamite jug I had today. Mind you it also tasted once again like plastic! UGGGG! Maybe its the way they ship and store the product? Not sure, but its a million times worse to consume with it tasting like warm plastic. If one day isn't enough I also have tomorrow to finish off the nasty stuff. GEES! Anymore I must break treatment in half because its becoming way too much to endure in one sitting.

The rest of the day consisted on trying to get this blastin stuff to work through my paralyzed intestines. At least I can say I did all the house chores times ten! I even had time to mop the floors. How do I feel now? BEAT!

This concludes my Drano day blog. Time to rest in between bathroom trips then right back at it again tomorrow. What a day! What a day!


Posted by GastroparesisAwarenessCampaignOrg. at 11:51 PM EST
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February 6, 2012
Busy As A Bee!
Mood:  cheeky
Now Playing: Day 661-The Final Road To Survival

Wow! What a busy day!

It bites when you can't get to sleep then when you finally do you can't wake up but I'm getting used to it and sometimes it is what it is. I had taxes to finish doing today for a friend and a few family members then off to try and fix the wire mess behind the living room entertainment system. Let's not go there on that one! Hahahaha! Let's just say Dish Network will be out tomorrow putting back together the mess that started while replacing the old entertainment centers and rearranging the living room. Hahahaha! I also had to run a few errands, mail out some forms for SSD Medicare, etc, etc, etc. This just wasn't the day to have any problems. That is until you wake up as you place your hand to your chest and ask yourself, "Is my heart still beating?"

Welcome to the world of Gastroparesis, MS and damaged nerves.

At least I can say after the scare from you know where I am bit more conscience of how much Gatorade and electrolyte water I am now drinking. The low blood pressure and low blood sugar problems is the reason how I got dizzy and fell three weeks ago and suffered a concussion so at least I didn't get up right away and got smarter this time around! I was told by my Gastroenterologist last week I need to drink at least 1/2 to a full 32oz bottle a day. Its tough because I am hardly thirsty and seldom hungry. I don't have normal hunger pains like most people and since my nerves are all haywire the sensors from my brain don't work properly. Now I find myself having to do post it note reminders again through out the house. At least they serve a purpose which is to "DRINK! DRINK! DRINK!"

I received the QMB forms to have the state pay for my added Medicare Part B coverage that I must now buy due to my not so wonderful insurance company named Medical Mutual making mandatory changes. Now Medicare will be my primary insurance company starting March 1st while Medical Mutual will only be paying up to 20% of all claims. In layman terms that means barely if anything. There are always things lurking right around the corner when one suffers from a chronic or terminal condition. Honestly I am lucky to now be used to it. Just part of the sick game. I don't sweat the big stuff anymore and instead do what needs to be done and do it quickly so I can move on with my life. Same with stress and drama. Been there. Done that. Not worth it so now I focus on me, my health and happiness. The fur gang couldn't agree more!

This evening I vowed to start working on court forms that need to be filled out, typed out and filed no later than the end of this month. I spent around three hours this evening pulling up and printing out so many requested papers that I almost ran out of a full ink cartridge. I also had to refill the paper three times. Crazy what the court system will request from you but no need to cry over spilled milk. I need to do what I need to do in order to move on with my life and finally be happy. Amen.

So in between a few head moments of pressure followed by nausea I pushed my way through and finished up a very productive day! Now its off to get my couchbed ready while Precious takes up the master bedroom. Is she spoiled or what?!

Tomorrow is Hell-In-A-Jug day so need I say more? Nope.


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST
Updated: February 7, 2012 3:22 AM EST
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February 5, 2012
Taking The Edge Off...
Mood:  bright
Now Playing: Day 660-The Final Road To Survival

It's Super Bowl Sunday!

I had planned on making this a very low key relaxing day. That was until the head pressure paid me a unwelcome visit. It started around 2pm then it all went down from there. My intentions were to have a friend over and watch the game but I didn't get that far and with the new medication not working it makes me wonder if its even getting into my blood stream. I contacted my pharmacist who explained due to my GI disorder its most likely because the pills are not breaking down properly that I am not benefiting from the medication. This wouldn't be the first time its happened nor the last. Its hard finding medication that works for me or that comes in liquid form. Seizure medication tends to be time released and works slowly building up to a therapeutic range in your blood. I have yet to find anything that works to protect me from seizures.

By this evening once the game started I said, "Oh heck with it!" and gave into my angry brain and head pressure. The waves of nausea weren't being too kind either so instead of pushing myself I decided it would be best to just veg on my couchbed and watch the game.

There were a few times today I experienced stress coming from others put I quickly shut down and flipped the switch to avoid it. It's very important to remember nerve damage needs peace and quiet. I need lots of calm in my life now so it will be a slow process changing my ways and how I react around others who might test me or push my buttons. So far I am doing rather well recognizing the stress and learning how to walk away. In the end it will benefit me by keeping my GP and MS under control.

Tomorrow is a new day and the start of a new week. I plan on trying to take a small road trip for a few days pending on what my GP and head decides. Its only a little over a two hour drive so if things go south-no pun intended-at least me and a friend of mine can turn around and head back. I must take baby steps first in order to test my physical and emotional strength. It will be a challenge but this gal is always up for one!

Here's to a better day!


Posted by GastroparesisAwarenessCampaignOrg. at 11:21 PM EST
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February 4, 2012
Having A Better Head Weekend!
Mood:  celebratory
Now Playing: Day 659-The Final Road To Survival

Finally! Its been two in a row of better head days and boy! does it feel GREAT! Sure, its not been a completely head-free day but I am slowly learning to work through the flair-ups that come with my unique medical condition. Today has also been one of a few last days left working on final touches putting together new entertainment systems. Time to down size! I had a few garage sales over the past year so the nick knacks aren't as bad but I have some furniture that is just too large for the rooms. The two new entertainment systems take up a lot less room and now there is also less furniture to clean. BONUS!

A friend of mine helped me put together the entertainment centers however we hit a few snags trying to hook back up the DVD player. No need to rush, there is always tomorrow. I am also in the process of moving a new large recliner from the back bedroom to the living room since I now have plenty of extra space. Since the living room is where I sleep and where my couchbed is located I plan on making it the most comfortable place in the house! Amen. The new recliners are nice because the top part comes off however the latch got stuck so looks like that will have to also wait till tomorrow.

I got a letter from my insurance company stating I must now buy Medicare Part A by March 31st seeing they will no longer be my primary carrier. This is a huge change seeing I have never heard of an insurance company dictating that you must buy into your SSD Medicare part A benefits. I always had Medical Mutual as my main insurance carrier so why do I 'have' to buy Medicare Part A if I don't want to?..

WELCOME TO THE NEW YEAR 2012!

Looks like also welcome to a new world and new year of crappy medical insurance! I even contacted my insurance provider on why I must buy into Medicare since I am on a fixed income but you know insurance companies! They could care less if you can or can't afford it. All I know and was told by them is I won't be the first nor the last complaining and I have no other choice but to buy Medicare Part A which will now cost me an additional $99.99 a month. OUCH! If you think this is a joke I must sadly warn you that there are other insurance companies who are also making the same changes this year. Seems there are going to be a lot of unhappy people who are disabled who will be forced to leave their main insurance provider due to not being able to afford both. I am fortunate to have someone who offered to pay for my monthly premium. This will be just until I get a few other things situated with my life and some court forms filed.

Isn't it stressful enough just being sick? Now you have to be discriminated once again by of all people...Your medical insurance provider! Thank you Oreo! I couldn't had said it better myself! Hahahaha!

If you ever wondered what life would be like if you were disabled or ended up with a Gastroparesis diagnosis then wonder no more! I am here to say if you don't do well with change then hold on tight because its going to be a very l o n g and bumpy GP ride. WHEW!

Like I mentioned before there are many changes ahead for this gal but in the end they will make my life far more happier. Cheers to working hard and achieving all my personal goals!


Posted by GastroparesisAwarenessCampaignOrg. at 11:53 PM EST
Updated: February 5, 2012 3:46 AM EST
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February 3, 2012
Learning To Live Life Again Around My Condition...
Mood:  bright
Now Playing: Day 658-The Final Road To Survival

You know what I love most about life? That when you are given another day to live you are also given another day to start on a clean slate. Life is great because when you wake up you are given another chance.

I can tell spring is right around the corner because the sun is now blazing through the curtains where I sleep on my couchbed. Now instead of just having black out curtains and dark colored towels over two large windows I now had to do the exact same thing with the other ones. Its a job just getting ready to lay down and sleep on my couchbed. Once I get up in the afternoon I am back to the same routine taking everything back down to let the sunlight in since I have plants in the room. GP is sure tough work isn't it?! We finally have a break from all the rain but don't knock on wood just yet seeing they are predicting more rain this weekend. UGGGG! Bring back the boats and repair kits for the foundation cracks in my basement. GEES! I dread rain anymore. Its scary because I never know what I will find. Forget ever having a house again with a basement. Thanks but no thanks and at this point downsizing from a three bedroom to a two bedroom might be better suited for this gal. Amen.

I am doing A-OK so far with all my new medication. Today was a better head & GP day. God knows I needed a break! I did run into a few issues this early afternoon but then with the head pressure that started coming on I quickly had to put a lid on it with nails included. You say the word: STRESS. I am outta there with the fastest pair of Nike's you can find! I will not do stress anymore. It is taking a huge toll on my health. My Gastroparesis, MS and other connected problems with my damaged nerves can not be anywhere near drama or stress. There are huge and definite changes that will continue being made for my health and happiness. I have learned to let go of those who decided they no longer want to be part of my life. I have learned to let go of those who do no want to be part of my support system. You can't force people to change but you can change how you react. Call it, 'I hit the don't care switch and now leaving it turned on.' Its time as many of my friends have highly suggested that I take care of myself for a change and not care two cents about those in the city who left my side because clearly they were only thinking about one person. Themselves. This also includes anyone who would rather bask in the sun sipping drinks while a loved one is in the hospital and home suffering. Clearly they too are thinking of only one person. Themselves. Thank you to those who watch my back, gave me a wake up call and made me finally see the light.

I am making my way around all my specialists over the course of the next three months. Now that I am fully aware of why I am getting head issues-seizures, etc connected with my Gastroparesis as well having fully understood post concussion syndrome and my limitations I am in the know and not scared anymore. It also is helping me feel more comfortable when I am home alone. I feel liberated now! With having a head free evening I decided to jump on an offer by a friend to head out to Dave and Busters entertainment complex. It was only for a few hours but I was just tickled pink to get the heck out of my house-jail! I did run into a few waves of head pressure, nausea and dizziness but I remained calm and told myself, "This is just nerve firing going on and it will let up soon. You have someone with you who understands and knows what to do if you have a seizure or black out. You will be ok." And I was! I was OK and I made it through both attacks.

Now instead of keeping things from my friends and those around me I now bring them to my doctors appointments so they can fully understand my unique medical condition. They enjoy meeting my amazing specialists who work endlessly to help me live a higher quality of life and work together to put the flair ups back to sleep. They also enjoy meeting my friends and it helps my friends to understand what I go through on a daily basis. I call it respecting the condition because you must do just that, "Respect the condition." I still need to reschedule my dentist appointment seeing my doctors feel any dental work right now might aggraviate things so its safer to wait. I did make it through my first Drano treatment of the week. It took much longer to work but only as expected since I had to hold treatment off for awhile. I am back to my second treatment come Tuesday next week.

My goal is to get out and enjoy life doing something special for myself as well doing something special with one of my friends a few times a week. Sometimes blood isn't always thicker than water. Although I now realize I only have two family members who are here and support me I pick up the rest times a hundred in friends who I call "My Angels." Amen.

A friend is someone who understands your past, believes in your future, and accepts you just the way you are.


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST
Updated: February 4, 2012 3:21 AM EST
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February 2, 2012
WHOAHOA! Last Doctor Appointment!
Mood:  bright
Now Playing: Day 657-The Final Road To Survival

 Since I am taking new medication which most are to relax the nerves that are running haywire in my body I was OUT LIKE A LIGHT last night! I woke up in the same exact position that I fell asleep in. If Littleblue didn't wake me up wanting to go outside I might had slept through my last doctor's appointment today. It was hard waking up because a few of the medications work like a tranquilizer. Trust me. I felt nothing! Hahahaha!

I see my Gastroenterologist today who takes care of my entire digestive system meaning my evil Idiopathic Gastroparesis. I just knew this would be a very long day seeing the Drano treatment didn't hit me until once I started moving around. Nothing like a 10 hour delay. NOT! I might had needed a Port'O'Potty but no worries because I plan on taking all side roads to this doctors appointment. Since I don't have any head pressure or pain so far today I decided to be brave and do this appointment solo. Sometimes I just need a time out for myself. Of course I chatted with a few friends on the way but also made sure someone was on standby in case I needed them to pick me up from my head issues paying an unwelcome visit.

I forgotten just how long I have been seeing my Gastroenterologist but looks like the same amount of time I have been seeing all of my other specialists. My GI doctors assistant Michelle knows me now by name. Shes extremely nice and has a wonderful sense of humor. Its hard to have a bad day and not smile around her. Shes also been extremely supportive when it comes to my Gastroparesis and other connected medical conditions. She said, "You must be having a good day because its so nice to see you smiling again!" I couldn't agree with her more but darn I was just happy to be out of house and driving again. AMEN!

My Gastroenterologist has a file on me now the size of a encyclopedia. We all laugh and make light of it because sometimes no matter how bad life can gets it still requires laughter. She explained they are going to electronic filing via a computer system by the end of the year. I feel sorry for whoever has to put my files onto computer format. YIKES! My GI doctor only ran a bit behind today but otherwise hes always on time. I only waited around ten minutes before he came back in the room which was good because it was too nice of a day to sit in the doctors office. He hasn't seen my cane yet so its been quite awhile since my last visit. I had to cancel the past four appointments due to being sick. He was aware of my past emergency room visits however he wasn't regarding my concussion. We did go over MS and my other Gastroparesis complications. He told me to make sure I was aware there is no turning back with my unique medical situation. He also asked how I was mentally. I replied by saying, "I always do better knowing. No matter how bad the news its still important for me to know what I am facing that way I can accept things at face value. I don't do well when things are hidden from me." My doctor shook his head in agreeing.

I was having nausea and vomiting before I fell and hit my head suffering from the concussion. The reason I am now dealing with the nausea and vomiting and not getting any relief from medications is due to the progression of my Idiopathic Gastroparesis. My doctor then told me, "This doesn't get any better and it is not going away. We can't keep you on some of these medications. You should get relief from them not feel worse. Your body is telling you it needs to rid whatever you consumed when you get these waves of nausea and vomiting. If you fight it things will only get worse. You must allow your body to go through it without medication." I do feel better once I get sick but worse taking the anti-nausea/vomiting medication. Same when I have to go to the emergency room. I might get a temp fix but I am back to square one and feeling worse the next day. I only get relief once I go through the wave of nausea then get sick.

My GI doctor altered a few medications which leaves me minus two now off my list of eight. I can still use peppermint oil at night on a piece of paper towel near my couchbed since I am not digesting it only inhaling it. He said, "I think you learned that after your last surgery when they used it to help your nausea." I told him I am on my second bottle and so far I feel it helps a bit at night when I am sleeping. The MS symptoms were there for quite awhile but agreed it takes time to put all the pieces together and although things haven't changed nor will change at least there is a name to put on the symptoms. Gastroparesis can sure cause all sorts of complications and other connected problems. I now fully believe once again anything is possible with GP. Expect the unexpected but as he said, "Don't expect it to get better. There is no turning back from here." I must take that information and now keep it to heart. If I want to go out on a good day and do something I will because I can't predict tomorrow.

Once we went over my medication and Hell-In-A-Jug treatments that I still must do on a weekly basis I told him, "I feel I am in a better place now because I understand fully what I am facing." He smiled and said just do me one thing. I said, "What?" He said, "Don't fall anymore before you scare the heck out of all of us." Hahahaha! I promised to continue being more aware of my blood pressure, blood sugar and not get up so fast from a sitting or laying down position. Just have to take it one step at a time. No pun intended! Hahahaha!

This evening I finished putting up the new curtain rod and relaxed with the fur kids. They are the best and I don't know what I would do without all my buddies.

 

"The man who can drive himself further once the effort gets painful is the man who will win."


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST
Updated: February 3, 2012 1:54 AM EST
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